Key Update, April 2023, Volume 19, Number 10

The National Mental Health Consumers’ Self-Help Clearinghouse is affiliated with the Temple University Collaborative on Community Inclusion.

TO CONTACT: THE CLEARINGHOUSE: SELFHELPCLEARINGHOUSE@GMAIL.COM  … SUSAN ROGERS: SUSAN.ROGERS.ADVOCACY@GMAIL.COM … JOSEPH ROGERS: JROGERS08034@GteMAIL.COM 

THE KEY UPDATE IS COMPILED, WRITTEN, AND EDITED BY SUSAN ROGERS, DIRECTOR, NATIONAL MENTAL HEALTH CONSUMERS’ SELF-HELP CLEARINGHOUSE.

NOTE: THE "FROM PREVIOUS EDITIONS OF THE KEY UPDATE BUT STILL FRESH!" DEPARTMENT, WHICH IS DIRECTLY BELOW THE MONTHLY CRIMINAL LEGAL SYSTEM DIGEST, INCLUDES ITEMS THAT HAD BEEN POSTED "ABOVE THE FOLD" IN EARLIER EDITIONS BUT ARE STILL RELEVANT. THESE INCLUDE ONGOING RESEARCH STUDIES THAT ARE STILL SEEKING PARTICIPANTS, AS WELL AS UPCOMING WEBINARS AND CONFERENCES, AND OTHER ITEMS OF CONTINUED INTEREST. DON'T MISS IT!

DEADLINE ALERT: See “Webinars, Conferences, and Other Events” below for several events happening this week (the last week of March) and “Other Opportunities” for a March 31 deadline!

NEWS

SAMHSA Invites Public Comment on Its National Model Standards for Peer Support Certification. Deadline: April 10

“...SAMHSA’s Office of Recovery (OR) has developed a set of National Model Standards for Peer Support Certification, inclusive of Mental Health, Substance Use, and Family/Youth Peer Support.” The deadline for comments is April 10, 2023, at 5 p.m. ET. For more information, click here. To comment, click here.

The New Yorker Asks: “Can A.I. Treat Mental Illness?”

"The treatment of mental illness requires imagination, insight, and empathy—traits that A.I. can only pretend to have…” To read the article, click here. See also “ ‘Out Of Control’: Dozens of Telehealth Startups Sent Sensitive Health Information to Big Tech Companies,” in the February 2023 Key Update. ICYMI, click here. And see “The Imminent Danger of A.I. Is One We’re Not Talking About,” originally published in The New York Times (click here).

HHS Announces the Theme for National Minority Health Month (April 2023)

The theme for National Minority Health Month 2023 is “Better Health Through Better Understanding.” For details, click here. For the announcement in Spanish, click here.

“Psychedelics are a Promising Therapy, but They Can Be Dangerous for Some”

The recent popularity of psychedelics “is partly attributed to clinical trials showing that the drugs, most notably psilocybin and ketamine, hold real promise in treating some mental health disorders, particularly depression,” according to an article originally in The New York Times. But “experts’ primary worry about [some of these drugs] is that they can trigger a psychotic or manic episode” as well as other dangerous side effects. For the article, click here.

“SAMHSA Seeks $10.8 Billion in FY 2024 to Bolster Mental Health and Substance Use Services”

“The President’s Budget for FY 2024 includes $10.8 billion for SAMHSA, $3.3 billion over the agency’s FY 2023 enacted budget,” according to a SAMHSA press release. “Investments will fund critical needs in key priority programs that address crisis care, youth mental health, and overdose prevention.” For the press release, click here. For SAMHSA’s FY 2024 Congressional Budget Justification, click here. (Courtesy of Anthony Fox)

Is Psychoanalysis Worth a Second Look?

In “Therapy Wars: the Revenge of Freud,” The Guardian writes: “Cheap and effective, CBT became the dominant form of therapy, consigning Freud to psychology’s dingy basement. But new studies have cast doubt on its supremacy – and shown dramatic results for psychoanalysis. Is it time to get back on the couch?” For the article, click here.

“3 Skills from Psychotherapy That Can Change Your Brain” Draws Some Criticism

“Choose reflection over reflex; bring softness, not hostility; and be curious, not judgmental,” psychiatrist and psychoanalyst Christopher W.T. Miller writes in The Washington Post. “The benefits of psychotherapy, exercise, mindfulness, yoga and meditation for mental health have been backed by encouraging scientific data,” Miller adds. But Chuck Ruby, PhD, executive director of the International Society for Ethical Psychology & Psychiatry (ISEPP), responded to the article on Twitter as follows: “A token nod to exploring meaning through a relationship, yet still desperately clinging to the brain defect idea...” For the Post article, click here. For Chuck Ruby on Twitter, search @ISEPPDirector.

Exercise Found to Be 53% More Effective, on Average, Than Medication or Psychotherapy

After a “comprehensive synthesis” involving “97 reviews of 1,039 published randomized controlled trials that included 128,000 adult participants,” British researchers recommended that exercise “should be integrated as a standard component of treatment for mental health conditions.” This is a departure from U.S. clinical guidelines, which “only mention exercise and diet as second-line approaches when therapy or medications are ‘ineffective or unacceptable,’” the article, in MindSiteNews, notes. For the article, which includes a link to the article in BMJ’s British Journal of Sports Medicine, click here.

“The World Mourns the Passing of Judy Heumann, Disability Rights Activist” 

On March 4, 2023, powerful disability rights activist Judy Heumann died in Washington, D.C., at age 75. To read about her many important achievements, click here and on Heumann’s website, which includes the recording of her funeral and memorial service. “Some people say that what I did changed the world,” Heumann wrote. “But really, I simply refused to accept what I was told about who I could be. And I was willing to make a fuss about it.”

WEBINARS, CONFERENCES, AND OTHER EVENTS

“Empowering the Peer Workforce by Taking Charge Together”

On March 28, 2023, at 2 p.m. ET, Doors to Wellbeing will present a free webinar exploring how Project Return Peer Support Network has empowered the peer workforce through the utilization of trainings from a values-based peer perspective, modeling, and sharing of lived experience. For more information and to register, click here.

“Engaging Students in Building Emotional Self-Awareness”

On March 28 at 2 p.m. ET, Mental Health America, Child Trends, and NACDD will present a 60-minute webinar panel discussion to discuss “the importance of emotional self-awareness for youth, the different factors that impact how youth identify and manage their emotions, and strategies educators can use to support students in developing self-awareness and emotional regulation.” For details and to register, click here.

14th Annual Pat Risser RSVP Conference on March 29, 2023

This hybrid conference, livestreamed for $15 with CEUs, $10 without CEUs, “brings together a distinguished group of presenters, discussing critical and cutting-edge topics that impact behavioral health.” For details and to register, click here

You’re Invited to SAMHSA’s Recovery Exchange Meeting on March 29

On March 29, 2023, at 1 p.m. ET, The Substance Abuse and Mental Health Services Administration invites you to participate in a stakeholder meeting for an update on the goals and activities of SAMHSA’s Office of Recovery (OR), to meet the OR team, and to talk with recovery leaders from across the U.S. To register, click here. (Courtesy of Braunwynn Franklin)

“The Growth Equation: Improving Financials to Achieve Your Goals”

On March 29, 2023, at 1 p.m. ET, Netsmart will present a free webinar aimed at human services provider organizations. “...Efficient and simplified financial operations play a significant role in sustainability and ability to seize new opportunities…[S]uccess means preparing for growth through focused attention to financial and administrative operational practices, staffing shortages and the ever-changing funding landscape.” For details and to register, click here.

“Using Mainstream ‘Apps’ in Mental Health Services”

On March 30, 2023, at 12 p.m. ET, the Temple University Collaborative on Community Inclusion will present an interactive webinar on “Using Mainstream ‘Apps’ in Mental Health Services.” It will include strategies that “practitioners” can employ to identify, evaluate, and use mainstream applications–either cell phone apps or internet apps–to increase the community participation of service recipients. To register, click here.

CMS Innovation Center Invites You to a Virtual Listening Session on March 31

On March 31, 2023, at 2:30 p.m. ET, the Centers for Medicare & Medicaid Services (CMS) Innovation Center invites you to join a one-hour virtual listening session on “The Approach to Person-Centered Care: Commitment to Patient Partnership Across the Model Lifecycle.” Attendees may submit written comments or questions before the webinar via the registration page or during the session in the Question & Answer window. To register, click here. For more information, click here.

In April, Judi’s Room Will Celebrate Sally Zinman, a Fierce Warrior for Social Justice

On April 5, 2023, at 6 p.m. ET (3 p.m. PT), I Love You, Lead On and MindFreedom International will present a free Judi’s Room event, via Zoom, celebrating the life of Sally Zinman (1937-2022), one of the founders of the consumer/survivor movement for social justice. To register, click here.

“Soteria: The Power of Human Connection” on April 5 and May 3

On April 5, 2023, from 9 a.m. to 12 p.m. ET, and again on May 3, from 1 p.m. to 4 p.m. ET, Pathways Vermont Training Institute will present “Soteria: The Power of Human Condition,” an interactive online workshop. Among topics covered will be the history of Soteria, modern updates to the original Soteria, and the power of human connection in non-coercive settings. For more information and to register for the April 5 workshop, click here. To register for the May 3 workshop, click here. (Courtesy of Yulia Mikhailova)

PENTAC’s National Peer Entrepreneur Speaker Series Continues on April 6

On April 6, 2023, at 12 p.m. ET, PENTAC will feature Jennifer Randal-Thorpe, president and CEO of Meaningful Minds United, the statewide peer-run organization in Louisiana. For details and to register, click here.

“Exploring the Role of Employers and Systems in Workforce Retention”

The Peer Recovery Center of Excellence has opened applications for a six-month training and technical assistance series designed to support employers in implementing changes in policies and procedures, hiring practices, and systemic relationships in order to improve the retention of peer staff. The series will serve 10 to 15 employers from across the country. The deadline for programs or organizations to apply is April 7, 2023. For details and the application, click here.

NCMHR Invites You to Its Next Advocacy Call, on April 10 at 2 p.m. ET

The National Coalition for Mental Health Recovery (NCMHR) invites you to participate in a series of advocacy calls on the second Monday of each month through December 2023. (The times will alternate between 2 p.m. and 5 p.m. ET: On May 8, the time will be 5 p.m. ET. ) You do not need to have attended Alternatives 2022 in order to participate. (Mark your calendars: Unless these plans change, this will be your last reminder.) For details and the Zoom link (which is always the same), click here

“Your ADA Rights at Work”’

On April 11, 2023, at 2 p.m. ET (11 a.m. PT), Disability Rights California will present a free webinar on “Your ADA Rights at Work. “Join us as we discuss the ADA and ways to find information on the types of accommodations you can ask for, as well as how to file a complaint if it comes to that, and much more…This training is presented from a peer perspective…” For details and to register, click here.

NARPA Announces Call for Papers. Deadline: April 12, 2023

The 2023 conference of the National Association for Rights Protection and Advocacy (NARPA) will be held in New Orleans September 6-9. The deadline to submit a workshop proposal is April 12, 2023. For the Request for Proposals (RFP) and links to additional information, click here.

Early Psychosis Care (Free, Hybrid) Conference, April 12-13

Missouri’s first free, hybrid Early Psychosis Care conference will be held April 12-13, 2023. “The goals of our conference are to provide early psychosis care education, reduce stigma associated with psychosis, explain evidence-based models of care, and show there is hope through engaging voices of lived experience.” For details and to register, click here. (Courtesy of Yulia Mikhailova)

PeerTAC to Present a Peer Support Supervision Webinar and Consultation Call in April

On April 13, 2023, at 12 p.m. ET, PeerTAC will host a 75-minute presentation on “Supervision,” with a follow-up 75-minute “Supervision Consultation Call” on April 20, at 12 p.m. ET. For more information and to register for these events, scroll down at this link.

ISPS-US Launches Trans-theoretical Peer Supervision Group

“Join ISPS-US as a member to access our new Trans-theoretical Peer Supervision Group! This group will provide an opportunity for ISPS-US members from various orientations...to come together to discuss clinical work with individuals experiencing psychosis and extreme states.” The first session is April 14 at 12 p.m. ET. To join ISPS-US, click here. Members can register for the event by clicking here.

“A Guide to Psychiatric Service and Emotional Support Animals”

On April 27, 2023, at 2 p.m. ET (11 a.m. PT),  Disability Rights California will present a free webinar on psychiatric service and emotional support animals. “Many people with mental health disabilities find that having a psychiatric service or emotional support animal improves their daily lives and their mental health and wellness. Learn the difference between these assistance animals and your rights regarding public access and reasonable accommodations.” For details and to register, click here.

OTHER OPPORTUNITIES

MHA Invites Applications for the Bell Seal for Workplace Mental Health

“In 2019, Mental Health America launched the Bell Seal for Workplace Mental Health to recognize and support corporate leaders and advocates committed to worker mental health and well-being. Submission deadline: March 31, 2023, at 11:59 p.m. ET. To find out if your workplace qualifies, take this two-minute quiz here. For the recording of a one-hour webinar about the Bell Seal, click here. For details and to apply, click here. Questions? Contact Taylor Adams at tadams@mhanational.org.

National Survey of Peer Supporters’ Experiences Using Spirituality and Religion in Their Work

The Copeland Center on Wellness and Recovery and the Temple University Collaborative on Community Inclusion invite peer supporters to participate in a brief survey whose goal is “to better understand whether and how they use religion and spirituality in their work. Perceived barriers and facilitators of using religion/spirituality will also be explored.” Participants become eligible for a raffle with cash prizes. Questions? Contact PI Elizabeth Thomas, PhD.: elizabeth.thomas@temple.edu or 215.204.1699. For details and for the Research Subject Consent Form, click here

Research Opportunity for Young Adult Peer Supporters

The Mental Health Services Research Lab of the Temple University College of Public Health invites youth peer support workers ages 18-30 who are currently working full-time or part-time in a peer support role to participate in a survey that aims to gather information about their workplace experiences. Questions? Contact Elizabeth Thomas at 215.204.1699 or elizabeth.thomas@temple.edu, or Haley Payne at haleypayne097@gmail.com. Those who complete the survey may be entered into a raffle to win cash prizes! For the Informed Consent Form and the survey, click here.

Are You a SUD Certified Peer Recovery Specialist? Then You’re Invited to Participate in a Study

You are invited to participate in a research study of “Stress and Coping Among SUD Certified Peer Recovery Specialists” if you are at least 18 years old and are employed or volunteering as a certified peer recovery specialist. (The job title in your state may be different.) The results of this study will be used to increase knowledge of job-related stress and coping among SUD Certified Peer Recovery Specialists. It involves two online surveys that take approximately 15 minutes to complete. All responses will be kept anonymous. You will not be asked to provide your name or contact information. To participate, click here. Questions? cynthia.thomas@waldenu.edu, 612.312.1210. 

RESOURCES

NCAPPS Launches a Culture and Person-Centered Practices Video Series 

In a new series of short videos, community members of the National Center on Advancing Person-Centered Practices and Systems “share their thoughts on how their racial and cultural identities shape their expectations and views of support systems…[K]ey topics include cultural norms, language barriers, ageism, sexuality, spirituality, and disability.” For details and to access the videos and a companion guide, click here. (Courtesy of Jacek Haciak)

The Cafe TA Center Is Offering Two Free Employment Guides

Although these two new employment guides are primarily targeted toward employers, the Cafe TA Center writes that First Seek to Understand and Dealing with Disclosure have broad applicability: “Whether you are an employer looking to improve your workplace culture, an employee seeking resources to explain mental health to your employer, or an advocate in need of tools to talk about workplace mental health, these two guides can be helpful for you!” For more information and to download the free guides, click here.

“Designing Withdrawal Support Services for Antidepressant Users”

In an article subtitled “Patients’ views on existing services and what they really need,” prominent British researchers concluded, in part: “Our findings indicate, in keeping with previous studies, that clinicians require upskilling in safe tapering of antidepressants, and that patients need specialized services to help them stop safely.” For the abstract, click here. For the “Harm Reduction Guide to Coming Off Psychiatric Drugs,” click here.

Mad in Ireland Presents a Podcast About Domestic and Sexual Violence Peer Support

Some peer supporters “are using their own lived experience of sexual violence and mental health to support others,” Mad In Ireland reports. “In this podcast facilitated by Martha Griffin of Mad in Ireland, Leona O’Callaghan from Haven Hub, Limerick, and Karol Mac Gairbheith from Peer Practice, Donegal speak about sexual violence, peer support working, trauma, safeguarding and personal boundaries.” For the podcast, click here.

The April 2023 Digest of Articles Offering Healthy Lifestyle Advice

For “How to Feel Alive Again,” click here. For “How to Meditate When You Can’t Sit Still,” click here. For “5 Exercises to Keep an Aging Body Strong and Fit,” click here. For “How to Reset Your Happiness Set Point: The surprising truth about what science says makes us happier in the long term,” click here. For “An illustrated guide to feeling happier, every day,” click here

The April 2023 Digest of Articles about the Criminal Legal System, in Which Many Individuals with Mental Health Conditions Are Incarcerated (and the Key Update continues after this Digest)

For “​​In Florida, showing mental health struggles could get a child detained: Advocates say the Baker Act, designed as a measure of last resort, is not used that way. The result: Kindergarteners can be forcibly committed to psych centers for exams,” click here. For “How ‘Cruel and Not Unusual’ Conditions Persist in Many Lockups: Insight from a discussion with journalists, formerly incarcerated people and experts,” click here. For “What Can Federal Courts Do About Extreme, Outdated Sentences? The scattered aftermath of a recent Supreme Court ruling shows the need for new solutions.” click here. For “State Prison Sentences in the U.S. Are Getting Longer—But Not Necessarily Keeping Us Safer,” click here. For “Study Shows Low Safety Risk of Reducing Long Sentences: Recent Council on Criminal Justice research suggests that reducing sentences of 10 years or longer by modest margins could significantly reduce prison populations without damaging public safety,” click here. For “It took almost 30 years for Pell Grants to return to prison. But, for many, college is still out of reach,” click here. For  “U.S. Justice Department urges panel not to limit 'acquitted conduct' sentencings: Despite White House promises of sentencing reform, Justice Department lawyers told the U.S. Sentencing Commission last week that trial judges should be allowed to impose longer sentences on defendants based on conduct for which they were acquitted at trial. The Commission announced a proposal to eliminate such “acquitted conduct” sentences last month. The Commission has until May 1 to submit its final proposal to Congress for approval,” click here. For “Supporting Improved Responses to People with Intellectual and Developmental Disabilities,” click here. For “California faces hefty court fines for lagging efforts to prevent prisoner suicides,” click here. For “Police Pleaded for Hours With a N.J. Man in Crisis. Then They Shot Him,” click here. For “Are guns, tasers and shields the best response to a mental health crisis? Paterson police killing again forces question of how officers handle people in distress,” click here. For “The Books Banned in Your State’s Prisons,” click here. For “5 Things We Learned About Prison Book Ban Policies,” click here. For “Qualified Immunity Is Burning a Hole in the Constitution: Police officers’ go-to defense against civil suits allows them to violate the Constitution with impunity,” click here. For “Texas death row inmate Andre Thomas’ attorneys apply for clemency, citing mental illness: At issue is whether Thomas, who gouged out his eyes after confessing to the 2004 murders of his estranged wife, their son and her daughter, is competent to be executed in April,” click here. For “Prison Deaths Rose Almost 50% When Pandemic Hit, Report Shows,” click here. For “Justice Dept. touts new focus on local violence intervention programs: Attorney General Merrick Garland spoke to the first grantees of a federal program focused on investing in community anti-violence efforts,” click here. For “Shooting First and Asking Questions Later: In rural communities, fatal police shootings have occurred at high rates, without the attention (and protests) that urban shootings have drawn,” click here. For “Sexual harassment of corrections staff plagues Bureau of Prisons,” click here. For “No Cop City Anywhere: Chicago’s #NoCopAcademy campaign and #StopCopCity in Atlanta are part of the same movement: to end violent policing, protect the environment and defend Black and brown lives,” click here. For “What the Panic Over Shoplifting Reveals About American Crime Policy: Lawmakers consider bills to crack down on people ripping off retailers, even as some stores walk back claims about a growing theft problem,” click here. For “How the State Sanctions Police Violence: In a new book, civil rights lawyer Joanna Schwartz explores how myths about public safety have been used to roll back civil rights and protect police,” click here. For “Understanding Firearm Deaths by State—and How to Reduce Them,” click here. For “Overdose Prevention Centers: A Successful Strategy for Preventing Death and Disease: Strong evidence indicates that overdose prevention centers (OPCs) reduce the transmission of HIV and hepatitis, prevent overdose deaths, reduce public injections, reduce the volume of shared or discarded syringes, and increase the number of drug users entering treatment programs,” click here. “Guest: I am one of many domestic violence victims incarcerated in Oklahoma, but there's hope: In almost every state, including Oklahoma, it is unusual for courts to consider the abuse a survivor has suffered in sentencing. What does it say about a society that it treats some of its most victimized and vulnerable citizens with so little compassion and mercy?” click here. “As crime-solving goes hi-tech, public defenders scramble to keep up,” click here. For “A state-funded reentry program stops the revolving door for Colorado’s formerly incarcerated,” click here For “The Mercy Workers: For three decades, a little-known group of “mitigation specialists” has helped save death-penalty defendants by documenting their childhood traumas. A rare look inside one case, click here. For “Women’s Mass Incarceration: The Whole Pie 2023,” click here. “Don't Just Hire 'Better Cops.' Punish the Bad Ones: Convincing law enforcement officers that those who do wrong will suffer consequences is by far the most powerful tool for changing police behavior in the long run,” click here. For “Biggest racial gap in prison is among violent offenders – focusing on intervention instead of incarceration could change the numbers,” click here. For “Jail Before Trial Should Be the Exception, Not the Norm: Lawmakers in some states are pushing to make it harder for defendants to avoid pretrial detention. There are better ways to protect public safety that don’t conflict with the presumption of innocence,” click here. For “Choice of Counsel: People assigned a public defender are the only ones deprived of the right to choose their lawyer. This often intersects disastrously with racial bias,” click here. For “Elizabeth Holmes Has Two Young Children. Should That Keep Her Out of Prison? Sending new moms to prison has devastating consequences. Some states are starting to rethink the practice,” click here. For “The State of the Nation on Gideon’s 60th Anniversary,” click here. For “The Prison Newspaper Directory finds that the number of prison-based papers is growing: There are at least 24 known prison newspapers in 12 states, and four of them were launched in 2022,” click here. For “The Rise of Life-Without-Parole Sentences: We explore sentences that imprison people for life without parole, and comedian Ali Siddiq unpacks his behind-bars beginning in comedy,” click here. For “A New Idea on Justice Reform: An innovative proposal would channel money to states with the goal of reducing prison populations while preserving public safety,” click here. For 

FROM PREVIOUS EDITIONS OF THE KEY UPDATE BUT STILL FRESH!

CONFERENCES, WEBINARS, AND TRAININGS

APS Learning Community Hosts a Weekly Networking Meeting. Check Out Its Website for Upcoming Events.

The Academy of Peer Services (APS) Virtual Learning Community Networking Meeting for Peer Specialists is every Tuesday from 5:15 p.m. to 6:30 p.m. ET. Its purpose is to share ideas, experiences, and opportunities with others in the field of peer support, as well as to give and receive support to each other. To register, click here. For the Virtual Learning Community website, which includes a calendar of upcoming events, resources, and more, click here.

SHARE!’s Free, Virtual Peer Workforce Conference Will Take Place on April 26; Deadline to Submit Proposals Is April 5

SHARE! will host its free, virtual 2023 Peer Workforce Conference–”Bridging Research and Practice”–on April 26. For more information and to register, click here. To submit a proposal by April 5, click here.

ISSTD to Host 40th Annual Conference in Louisville April 13-17, 2023

The International Society for the Study of Trauma and Dissociation (ISSTD) will host its 40th annual conference in Louisville; the pre-conference will be held April 13-14 and the conference April 15-17. The theme is “Shifting the Societal Denial of Dissociation.” A virtual option (details of which are explained at the conference link, here) will also be available. 

NAADAC Hosts Free “Peer Recovery Support” Webinar Series

The National Association for Alcoholism and Drug Abuse Counselors (NAADAC)—now known as the Association for Addiction Professionals—will continue its free, 10-part “Peer Recovery Support” webinar series on April 27, 3 p.m.-4:30 p.m. ET. For details, click here. (Courtesy of Jessi Davis)

Peerpocalypse is Coming! Are You Ready?

Peerpocalypse, organized by the Mental Health & Addiction Association of Oregon, will take place May 8-11, 2023, in Seaside Oregon, and virtually! For details, click here. To register, click here.

“Too Mad to Be True II—The Promises and Perils of the First-Person Perspective,” May 26-28, 2023

“Too mad to be true II—The promises and perils of the first-person perspective” (May 26-28, 2023) will be hosted by the University of Ghent and the Foundation for Psychiatry and Philosophy. For details, click here. Meanwhile, Dr. Nev Jones, a researcher and assistant professor at the University of Pittsburgh who has lived experience of psychosis, and who was a keynote speaker at the first conference, discusses some of the events at the conference and responses to her keynote in a second presentation. In that presentation, Mad In America (MIA) reports, she takes issue with the individualizing, pathologizing focus of the “phenomenology of psychosis” literature, “argu[ing] that psychosis ‘could never be divorced from the structural vectors of poverty, incarceration and various neoliberal welfare schemes, but has always been intimately bound up with them.’” For the MIA article, click here. To see "To Do Justice to Madness: Orienting to the Politics of Phenomenological Psychopathology," click here.

Active Minds Mental Health Conference July 7-8, 2023, in Washington, D.C.

Calling its conference “the nation’s leading mental health conference for young adults,” Active Minds will host its 2023 conference in Washington, D.C., July 7-8. Early bird registration is available until May 15 at 5:30 p.m. ET ($110 for students, $175 for general). For more information and to register, click here.

MHTTC Publishes Calendar of Events from Now Until September 19, 2023

The Mental Health Technology Transfer Center Network (MHTTC) has published a calendar of its events from now through September 19. The calendar covers the 10 U.S.-based regional MHTTCs as well as the two national MHTTCs. The MHTTC is funded by the Substance Abuse and Mental Health Services Administration. For the calendar, click here. (Courtesy of NYAPRS E-News)

ABCT 2023 Conference Is November 16-19 in Seattle

The Association for Behavioral and Cognitive Therapies (ABCT) 2023 conference will be held November 16-19 in Seattle. Its theme is “Cultivating Joy with CBT [Cognitive Behavioral Therapy].” For more information about the conference, click here. (Courtesy of Yulia Mikhailova)

MHTTC Offers Free Online Behavioral Health Courses

The Mental Health Technology Transfer Center Network (MHTTC) “currently offers 20 online courses available through Healtheknowledge.org. HealtheKnowledge.org offers high-quality, on-demand, and instructor-led courses that are open to the public. Courses are free for a certificate of completion, and yearly membership options are available for purchase to gain access to other HealtheKnowledge resources and earn unlimited CE credits. View our course listings here. View our how-to guide to set up your HealtheKnowledge account.” MHTTC is funded by the Substance Abuse and Mental Health Services Administration (SAMHSA).

RESOURCES AND OPPORTUNITIES

Call for Book Chapter Proposals for “Beyond Accommodations: ‘Cripping’ Possibilities in Higher Education”

“What would it look like to re-imagine academia as a place of acceptance, belonging, and flourishing of disabled faculty, staff, and students?...[T]his edited book invites contributions from disabled, chronically ill, mad, and neurodivergent people across the globe to (desire and) share how they are ‘cripping’ and transforming the classroom, the university, and academia more broadly.” “Please submit a 250-word abstract with tentative chapter title and short bio to Dr. Alan Martino, alan.martino@ucalgary.ca. Deadline for abstracts: March 31, 2023.” (Courtesy of Konstantina [Dina] Poursanidou)

Request for Information (RFI): Gaps and Opportunities in Global Mental Health Research

“Respond to NIMH’s request for information (RFI) to identify research gaps and opportunities that will advance our understanding and role in supporting basic, translational, and services-oriented global mental health research. All responses must be submitted electronically by May 5, 2023, at 11:59 p.m. ET. Please use this submission web form or email NIMHGlobalMentalHealthRFI@nih.gov. Please use the subject line GMH RFI Response.” 

OPPORTUNITIES TO PARTICIPATE IN RESEARCH

EPICC Works to Help Parents with Mental Health Conditions Connect with Their Kids

Engaging Parents and Increasing Connections with Children (EPICC) is a 10-week program created by the Temple University Collaborative on Community Inclusion that is focused on helping parents with serious mental health conditions connect with their children through meaningful activities. For details and to apply, click here.

Young Adults with Psychiatric Diagnoses Are Sought for Study on Community Participation

The Temple University Collaborative on Community Inclusion is recruiting young adults (ages 18-30) with a diagnosis of schizophrenia, bipolar disorder, or major depression to take part in ConnectionsRx, designed to support engagement in meaningful community activities. Participants will be enrolled in the peer-led study for six months, and receive support to help meet community participation goals. Interviews (approximately 60 minutes each) will take place on Zoom. Participants will receive a $15 Amazon gift card (to a maximum of $45) for each survey completed. For the website, click here. Questions? Write to ConnectionsRx@temple.edu. 

South Southwest MHTTC Launches Youth and Young Adult Peer Supporters Survey

“Are you a peer specialist who provides peer support to other people under the age of 30? We want to hear from you! Please fill out the survey to assist the South Southwest Mental Health Technology Transfer Center (South Southwest MHTTC) in learning more about youth peer support across the country! The intent is to be able to include these peer supporters in research, training, and technical assistance activities surrounding youth peer support. The form should take 5-10 minutes to fill out, and can be done from a phone or a computer browser. To take the survey, click here.” Questions? Write to southsouthwest@mhttcnetwork.org.

Are You Interested in Pursuing Graduate School and/or a Research Career? Read Below.

Stephania Hayes (UC Davis), Shannon Pagdon (Columbia/NYS Psychiatric Institute/University of Pittsburgh), and Nev Jones (University of Pittsburgh) write: “We are gathering information from people with lived experience in the Coordinated Specialty Care (CSC) or early psychosis space (including peer specialists, current/former CSC participants, and CSC youth coordinators) who are potentially interested in pursuing graduate school and/or a research career. All of us identify as having lived experience, work in CSC, and are invested in supporting the next generation of scholars who also have lived experience. We would like to create a discussion group and/or other supports for people interested in this career path. The link below leads to a very brief survey that will help us understand the level of interest in such supports, as well as areas of career interest. (Please note that this is not a research study.)” To participate in the anonymous survey, click here.

“Help Us Map the Landscape of Lived Experience and Family Involvement in 988 Policy and Related Crisis Response System Planning!”

“As 988 implementation rolls out alongside additional efforts to strengthen crisis response systems throughout the U.S., it's important to gauge the extent to which direct stakeholders (i.e., individuals who use or have used mental health crisis services and their families) have been involved in related policy, implementation and evaluation at the local, regional, state or federal levels. To map out involvement nationally, Mental Health America (lead: Kelly Davis), Nev Jones (University of Pittsburgh) and Keris Myrick (National Association of Peer Supporters) have developed a survey aimed at documenting the extent of stakeholder involvement, the forms this involvement has taken, and, where available, what concerns stakeholders have raised. Any individual with knowledge of lived experience and family involvement is eligible to participate; individuals completing the survey do not have to have lived experience themselves.” For more information and to access the survey, click here.

Survey Seeks Respondents Who Have Taken Mental Health Courses Involving Their Own Diagnoses

Have you taken a mental health course that covers a diagnosis you have? If so, you are invited to participate in a brief, anonymous, online survey--designed by a University of Pittsburgh MSW student--about what it's like for students with lived experience to study their own diagnoses in a classroom. The survey covers students' experiences of studying such subjects as "abnormal psychology," "psychopathology," and diagnosis and assessment when their own diagnoses are covered. "The goal of the project is to better understand what it feels like to take courses in which someone’s diagnosis is being taught/defined/discussed. There is currently no literature or reporting on the experiences of students in the above circumstances, or the associated impact." Interested? Please click here. Questions? Please email the project lead, Charlie Clement, at cjc204@pitt.edu

Peer Support in Higher Education Survey Seeks Respondents

“Peer support programs are growing on college campuses across the U.S. Mental Health America, Doors to Wellbeing, and the Temple University Collaborative on Community Inclusion want to better understand the availability of peer support in higher education as well as the experiences and needs of students accessing peer support programs…We hope to use this research to support the expansion of peer support in higher education, including developing a national database of peer support programs in higher education and documenting pressing issues in campus programs…You may also indicate if you are interested in having your school’s peer support program listed in a national database of peer support programs in higher education.” For more information and to complete the survey, click here

BU Seeks Peer Support Specialists for a Research Study

The Center for Psychiatric Rehabilitation at Boston University is developing and testing the effectiveness of a coaching service called Coaching and Advancement for Peer Providers (CAPP) “to increase organizational commitment and job satisfaction and decrease turnover among mental health peer providers.” BU CPR writes: “We need Peer Support Specialists (PSS) to participate in our study. Who can participate? People who are in a paid job as a Peer Support Specialist providing support to other people with mental health challenges, who are employed at least 10 hours per week, who have worked for the past six months in a mental health program, and who are experiencing stress because of challenges in the workplace. The study involves 16 one-hour sessions of coaching over a four-month period designed to help you with your job, meeting online (through Zoom, for example) with your coach, and filling out surveys one time before coaching starts and three additional times. You will have a 50/50 chance of getting a coach or having a one-time meeting to give you information about challenges at work. Benefits? You may learn strategies to help make work less stressful.” For more information, click here. For questions, contact Principal Investigator E. Sally Rogers, Sc.D., at erogers@bu.edu or 617-353-3549.

Supported Education Survey Needs Your Help

Do you operate a program that provides dedicated supported education services for individuals with psychiatric disabilities/mental health conditions? If so, you are invited to complete the survey at the link below. The primary goal of the survey is to help create a National Supported Education Database (NSEdD) that will be "a searchable listing of diverse supported education programs and services for individuals experiencing psychiatric disabilities and/or mental health challenges...across the US and its territories." The NSEdD project is sponsored by the Substance Abuse and Mental Health Services Administration (SAMHSA) and co-administered by the five SAMHSA-funded national consumer and consumer-supporter technical assistance centers, in collaboration with research partners Drs. Nev Jones (University of Pittsburgh) and Mark Salzer (Temple University). For a link to the survey, which includes a definition of supported education, click here. For a flyer with information about the survey, click here.    

National Survey on Student Rights, Discrimination, and Accommodations in Higher Education Seeks Respondents  

"Have you experienced psychiatric disability-based discrimination or the denial of an accommodation in a postsecondary institution in the United States? Interested in informing national advocacy focus on psych disability rights in higher ed? Mental Health America (lead: Kelly Davis) and collaborators Dr. Nev Jones (University of Pittsburgh), Stefanie Kaufman-Mthimkhulu (Project LETS) and Brit Vanneman Esq. (Bazelon Center for Mental Health Law) have developed "a survey aimed at providing a more comprehensive understanding of student experiences of campus-based discrimination, mandated leaves of absence, and/or denial of academic, administrative and/or student-work accommodations in the U.S. Data will be used to inform national advocacy efforts and future projects, and in reports, presentations and publications." For eligibility and to access the survey, click here.

If You've Had, or Been Labeled with, "Negative Symptoms" in the Context of Psychosis...

"If you have experienced or been labeled with 'negative symptoms' in the context of psychosis, please consider contributing an anonymous account of your views and experiences," Dr. Nev Jones writes. "Currently, there is nowhere one can go to find lived experience perspectives/accounts on this topic—even though 'negative symptoms' regularly feature in research and clinical trials. Help us change this!" This survey is a companion to Psychosis Outside the Box; for that survey, click here. For more information and/or to share your story about "negative symptoms," click here.

“Are You Between the Ages of 21 and 60 and Drink Alcohol?”

"Researchers at the National Institutes of Health (NIH) are seeking adults--[both smokers and non-smokers]--to study whether a gene and smoking may affect drinking alcohol. Volunteers should be healthy and drug-free, and not seeking treatment for alcohol-related problems. Research participation includes three outpatient visits at the NIH Clinical Center in Bethesda, MD; alcohol consumption; brain scans (MRI), blood draws, and filling out questionnaires. There is no cost to participate and compensation may be provided." For more information, click here. (Courtesy of Fran Hazam)

TU Collaborative Seeks Participants for Its Parenting Through Leisure Project; See Also the TU Collaborative's Parenting Resources, Including Information on Custody Issues

The Temple University Collaborative on Community Inclusion is seeking parents with lived experience of a mental health condition to participate in a paid research study. The TU Collaborative writes: "Our program, Parenting Through Leisure, focuses on helping parents with a serious mental illness participate in leisure activities with their child. We are looking for individuals who are 18 and older; are an adult parent with a diagnosis of schizophrenia-spectrum disorder, bipolar disorder, or depression; have a child who is 7 to 15 years old and is interested in participating in family leisure with you; have legal visitation rights, joint custody or full custody of the child, with at least weekly contact; and have a desire to engage in more leisure activities with their child." For details about the study and the remuneration as well as other benefits to eligible participants, and a link to sign up, click here. Questions? Please contact TUCollab@temple.edu. And for the TU Collaborative's Parenting web page--which includes links to many resources for parents with lived experience, including information about custody laws and a model family reunification statute--click here.

Survey Seeks Respondents Who Are in Administrative/Leadership Positions in the Mental Health Field

If you are in an administrative/leadership position in the mental health arena, “the Group for the Advancement of Psychiatry (GAP) Committee on Psychiatric Administration and Leadership invites you to participate in the International Survey on Administrative Psychiatry. The survey has two purposes: 1. To identify the concerns and needs of mental health professionals/psychiatrists in administrative and leadership positions. 2. To determine training needs in administrative psychiatry. We ask you to complete this brief, [15- to 20-minute] questionnaire to help us in developing recommendations for action. We also want to let you know that, if you fill out this questionnaire, you permit the committee to use your anonymous data for scientific work.” Peer providers are included. For the survey, click here. (Courtesy of Oryx Cohen)

International Survey on Antipsychotic Medication Withdrawal Seeks Respondents

“Have you taken antipsychotic medication (such as Zyprexa, Seroquel, Abilify, Risperdal, Haldol, Geodon, Stelazine, and others), for any condition or diagnosis, with or without other medications? And did you ever stop taking antipsychotics, or try to stop taking them? Are you 18 years or older? If yes, you can take this survey about antipsychotic withdrawal and attempts to withdraw, including if you stopped taking them completely or if you tried to come off and still take them. The survey aims to improve mental health services by better understanding medication withdrawal. Lead researcher is Will Hall, a therapist and Ph.D. student who has himself taken antipsychotics. Service users/survivors/consumers from around the world also gave input. The study is sponsored by Maastricht University in the Netherlands; co-sponsors include the International Institute for Psychiatric Drug Withdrawal. Questions? Please contact will.hall@maastrichtuniversity.nl.”  For more information or to take the survey, click on www.antipsychoticwithdrawalsurvey.com

OTHER OPPORTUNITIES AND RESOURCES

TU Collaborative Wants to Hear Your Story!

“We are working on a project to better understand social connections among adults with significant mental health challenges,” the Temple University Collaborative on Community Inclusion writes. “We are seeking your stories on your social connections generally” and “what those connections mean to you.” The TU Collaborative will compile these stories based on a series of brief surveys. For details and to share your story, click here.

Call for Papers: “Recovery at 30: Emancipation, cooptation, or the end of an era?”

“The year 2023 marks exactly three decades since the publication of Bill Anthony’s seminal “Recovery from mental illness: the guiding vision of the mental health service system in the 1990s" (click here)...”In this special issue of Community Mental Health Journal,” the editors write, “we are soliciting both concept pieces (commentaries, critical reviews) and empirical work (qualitative, quantitative, ethnographic or mixed methods) that explore the question of whether recovery policy remains relevant and emancipatory today or whether the psy-fields are instead in need of fresh thinking and new, more diverse values-based frameworks.” The submission deadline is September 1, 2023. For more information, click here.

Common Threads: Stories of Survival & Recovery from Mental Illness

Common Threads: Stories of Survival & Recovery from Mental Illness, a 108-page compendium, includes “tales of survival and recovery” by a number of Floridians. To quote from the Introduction, “Many of the people in these stories have lived significant portions of their lives in psychiatric institutions, and only through their strengths have they found their way back to the community…In these tales, we hear about the importance of education and peer support…” To download the free document, click here.

“Crisis Now” Offers a “Roadmap to Safe, Effective Crisis Care”

The goal of Crisis Now: Transforming Crisis Services—led by the National Association of State Mental Health Program Directors (NASMHPD) and developed with the National Action Alliance for Suicide Prevention, the National Suicide Prevention Lifeline, the National Council for Mental Wellbeing, and RI International—is “to provide all communities a roadmap to safe, effective crisis care that diverts people in distress from the emergency department and jail by developing a continuum of crisis care services that match people’s clinical needs.” Among the resources offered on the website are SAMHSA’s 80-page “National Guidelines for Behavioral Health Crisis Care Best Practice Toolkit” (2020), an “Overview of Crisis Funding Sources Available to States and Localities” (last updated March 2, 2022), and assessment tools, such as “How Does Your Crisis System Rate?” The Crisis Now partners write: “Are you interested in adding your organization to the list supporting Crisis Now, or do you have questions? Reach out to us at info@crisisnow.com. For the website, click here.

“What Is the Meaning of Life?” This Free Online Collection Offers Answers

Excellence Reporter offers more than “1,200 articles-interviews on ‘What Is the Meaning of Life?’ written by renowned spiritual leaders, mindfulness experts, great thinkers and authors, elders, artists, musicians, CEOs, etc.” The contributors include such renowned figures as Bertrand Russell; Carl Jung; the Dalai Lama; Eleanor Roosevelt; Epicurus; Erich Fromm; Kahlil Gibran; Buckminster Fuller; Robert Louis Stevenson; and Ron Bassman, executive director of MindFreedom International. To browse the free compendium, click here.

The UIC Center’s Solutions Suite for Health & Recovery Offers Free Tools

"The UIC Center offers tools, curricula, and implementation manuals for free use in community-based programs, peer-run programs, or one's own life. You can introduce the entire complement of products to foster improved health, wellness, and mental health recovery. Or, you can choose the ones that will work best for your program or your life. The Suite was developed in collaboration with Collaborative Support Programs of New Jersey. The UIC Center is funded by NIDILRR (National Institute on Disability, Independent Living, and Rehabilitation Research). For the UIC Solutions Suite for Health & Recovery, click here. (Courtesy of Peggy Swarbrick via Jacek Haciak)

U.S. Surgeon General Creates Community Toolkit for Addressing Health Misinformation

"The U.S. Surgeon General’s Community Toolkit for Addressing Health Misinformation, developed in collaboration with the HHS Office of Evaluation Sciences (OES), provides specific guidance and resources for health care providers, educators, librarians, faith leaders, and trusted community members to understand, identify, and stop the spread of health misinformation in their communities." For information about the toolkit (a 22-page overview of health misinformation, and resources to stop it), and links to a “Talk to Your Community About Health Misinformation” Infographic, a “Health Misinformation Checklist” Infographic, and the Surgeon General's press release, click here.

"Psychiatrist with Philosophical Interests" leads "Conversations in Critical Psychiatry," a Psychiatric Times Series

Awais Aftab, who describes himself as a "psychiatrist with philosophical interests" in his Twitter bio, leads "Conversations in Critical Psychiatry," which, he says, "explores critical and philosophical perspectives in psychiatry and engages with prominent commentators within and outside the profession who have made meaningful criticisms of the status quo." Among those interviewed are Allen Frances, M.D., author of Saving Normal; Sandra Steingard, M.D., and G. Scott Waterman, M.D., on "Integrating Academic Inquiry and Reformist Activism in Psychiatry"; Susannah Cahalan, author of Brain on Fire: My Month of Madness, on "50 Shades of Misdiagnosis"; Kathy Flaherty, J.D., executive director of the Connecticut Legal Rights Project, Inc., on "Reconsidering Care and Coercion in Psychiatry"; Nev Jones, Ph.D., on "Phenomenology, Power, Polarization, and the Discourse on Psychosis"; Dainius Puras, M.D., on "Global Psychiatry's Crisis of Values"; and many others. For the archived interviews, click here.

CNN Offers “A Guide to Helping and Getting Help During the Coronavirus Crisis”

CNN writes: “The coronavirus pandemic is overwhelming, and one of the most excruciating parts for many people is the feeling of utter helplessness in the face of widespread suffering and hardship. CNN’s Impact Your World has compiled a list of donation opportunities and tips to help those affected by the crisis. Click on a category or scroll down to browse a list of organizations, resources and ideas. Need help? Most categories also include resources for financial, emotional or social support.” For the free guide, click here.

U.S. DOL Releases Guidance on FMLA Leave and Mental Health

The U.S. Department of Labor’s newly issued Fact Sheet #280 about the Family and Medical Leave Act (FMLA) explains when eligible employees may take FMLA leave to address mental health conditions, and new Frequently Asked Questions (FAQs) offers additional information. (Although the FMLA covers public and private employers nationwide, only those private employers who have 50 or more employees for at least 20 workweeks in a year are required to provide their eligible employees with FMLA leave.) For details, click here.

Hearing Voices Network Is Now Hosting Online Groups

“There are now ONLINE opportunities to connect, share experiences, and find mutual support,” the Hearing Voices Network (HVN) writes. “These groups are accessible via web-based platforms and by phone…Online groups are specifically for those with personal lived experience with hearing voices, seeing visions, and/or negotiating alternative realities. They are voice-hearer facilitated. With further questions and for details on how to access the group[s], please email info@hearingvoicesusa.org.” To read this announcement online and for more information, click here.

Virtual Group Works to Advance Peer Research Capacity, Leadership, and Involvement

Nev Jones, PhD—a strong advocate for building research capacity, leadership, and involvement among peers, survivors, and service users—leads a virtual group dedicated to this effort. Dr. Jones—assistant professor, School of Social Work, University of Pittsburgh—was part of the team that developed “User/Survivor Leadership & Capacity Building in Research: White Paper on Promoting Engagement Practices in Peer Evaluation/Research (PEPPER),” published by the Lived Experience Research Network. For the white paper, click here. Anyone interested in joining the virtual group can email Nev at nev.inbox@gmail.com.

Mad In America Invites You to Submit Your Personal Story (Within Certain Guidelines)

Mad In America writes: “A ‘personal story’ is defined as your story of being in relationship to psychiatry and/or the mental health system, whatever that means to you. It might involve your opinions and analysis of what happened to you, as well. It can be about a specific event, or about your overall journey, provided it fits the length requirements (1,500 to 3,000 words) and has a narrative arc. The piece should be about your personal experiences, not psychiatry or the mental health system in general. Submissions should fall under the theme of rethinking psychiatry and the mental health system, and should be original works not previously published elsewhere. For examples of the types of stories we publish, view our personal stories archive here.” For more information and/or to submit a personal story, click here.

Seven Ways to Keep a Digital Copy of Your Vaccination Card on Your Smartphone

“You'll need proof of vaccination to go back to work or enter many restaurants, gyms and event venues, so keep your COVID-19 card handy.” This is the advice of CNET.com, a tech support website. Besides the obvious—taking a photo of the card to store on your phone—there are six other suggestions. For details, click here. (Courtesy of Yvonne Smith)

ISPS-US Offers an Array of Archived Webinars—Free but Donations Are Welcomed

The ISPS-US (The International Society for Psychological and Social Approaches to Psychosis-US Chapter) is offering a whole raft of archived webinars, which are free (although donations are welcomed). Among the webinars are "Cognitive Behavioral & Related Therapies for Psychosis: Diverse Approaches to Supporting Recovery," "How Can the Uncontainable Be Contained? Paradoxes of Madness & Philosophy," "Robert Whitaker: The Rising Non-Pharmaceutical Paradigm for 'Psychosis,'" "Life with Voices: A Guide for Harmony," "COPE Project: Non-Pharmaceutical Research on Influencing Voices and Visions," "What Hurts and What Helps In Treatment For 'Psychosis': Insider Perspectives," and many others. For more information and to access the webinars, click here.

“Where DNA and Medications Meet”

Not all drugs are effective for all people; therapeutic response rates for many drugs are only 50%-75%. “OneOme, co-founded by [the] Mayo Clinic, provides evidence-based pharmacogenomic solutions that help improve patient outcomes and reduce costs through more personalized medication decisions.” OneOme’s RightMed Test is “a doctor-ordered pharmacogenomic (PGx) test that analyzes your DNA and provides your doctors with genetic information to help them determine how you may respond to certain medications. The results may help your doctors reduce medication trial and error, minimize risk of side effects, save you time and money, and make more informed prescribing decisions. Because your DNA doesn’t change over time, your doctors can use your test results to make more personalized medication decisions for you over the course of your lifetime.” For more information, click here. (Courtesy of Robin Osborne)

Doors to Wellbeing Offers “State Selfies: A Picture of Peer Services Reported by Peers”

Doors to Wellbeing’s “Peer Album” is a directory of nearly 600 peer-run organizations throughout the U.S. They invite updates and offer instructions for providing them and add, “If your entry has not made this first draft, we encourage you to re-submit.” For the 158-page directory, click here.

Disclaimer: The Clearinghouse does not necessarily endorse the opinions and opportunities included in the Key Update.

About the Key Update

The National Mental Health Consumers’ Self-Help Clearinghouse is affiliated with the Temple University Collaborative on Community Inclusion. The Key Update is the free monthly e-newsletter of the National Mental Health Consumers’ Self-Help Clearinghouse. Volume 19, No. 10, April 2023. For content, reproduction or publication information, please contact Susan Rogers at selfhelpclearinghouse@gmail.com. Follow Susan on Twitter at @SusanRogersMH



Key Update, March 2023, Volume 19, Number 9

The National Mental Health Consumers’ Self-Help Clearinghouse is affiliated with the Temple University Collaborative on Community Inclusion.

TO CONTACT: THE CLEARINGHOUSE: SELFHELPCLEARINGHOUSE@GMAIL.COM  … SUSAN ROGERS: SUSAN.ROGERS.ADVOCACY@GMAIL.COM … JOSEPH ROGERS: JROGERS08034@GMAIL.COM 

THE KEY UPDATE IS COMPILED, WRITTEN, AND EDITED BY SUSAN ROGERS, DIRECTOR, NATIONAL MENTAL HEALTH CONSUMERS’ SELF-HELP CLEARINGHOUSE.

NOTE: THE "FROM PREVIOUS EDITIONS OF THE KEY UPDATE BUT STILL FRESH!" DEPARTMENT, WHICH IS DIRECTLY BELOW THE MONTHLY CRIMINAL LEGAL SYSTEM DIGEST, INCLUDES ITEMS THAT HAD BEEN POSTED "ABOVE THE FOLD" IN EARLIER EDITIONS BUT ARE STILL RELEVANT. THESE INCLUDE ONGOING RESEARCH STUDIES THAT ARE STILL SEEKING PARTICIPANTS, AS WELL AS UPCOMING WEBINARS AND CONFERENCES, AND OTHER ITEMS OF CONTINUED INTEREST. DON'T MISS IT!

NEWS

“Cause for Concern: The Stripping Away of Patients' Rights”

“There's a problematic trend toward binding arbitration agreements,” MedPage Today reports. “An investigation by The Markup and STAT found that dozens of direct-to-consumer telehealth companies ‘were leaking sensitive medical information they collect to the world's largest advertising platforms.’...[and] 46 of the 50 companies (92%) required that disputes be resolved via arbitration…When patients sign a binding arbitration agreement or realize in retrospect that they implicitly agreed to these terms, they understandably assume it is enforceable and that they've already given up their rights” even if these agreements may not be enforceable under state law. For the article, click here

MHA Publishes “2022: The State of Mental Health in America”

In “2022: The State of Mental Health in America,” Mental Health America ranks the 50 states and the District of Columbia based on 15 measures. To download the free, 45-page report and to see additional statistics, click here.

“Performing Acts of Kindness Is a Powerful Tool to Fight Depression and Anxiety, Study Finds”

“According to a study from researchers at Ohio State University published in The Journal of Positive Psychology, performing acts of kindness may even result in greater social well-being than techniques used in cognitive behavioral therapy (CBT) to treat depression and anxiety. 'Social connection seems to be one of the most powerful ingredients for flourishing in life,' David Cregg, Ph.D., a clinical psychologist and co-author of the study, told TODAY in a segment that aired Jan. 20." For an article about the study, click here. (Courtesy of Peggy Swarbrick)

CONFERENCES AND OTHER EVENTS

NDRN (Virtual) Conference to Be Held February 27-March 2

The (virtual) 2023 conference of the National Disability Rights Network (#NDRN2023) will take place February 27-March 2. “Members of the public may register at a cost of $40 per session. Attendees seeking CLEs at an eligible session pay an additional $35 per session.” For details (including the presentation topics on each day) and to register, click here

Peerpocalypse 2023 Scholarships Applications Are Due February 28!

Scholarship applications for Peerpocalypse (May 8-11 in Seaside, Oregon) are due Saturday, February 28th, 2023 at 11:59 pm Pacific Time. For the scholarship application and more information about the conference, click here. (Courtesy of Kevin Fitts)

Call for Applications: Emerge July 2023 Hybrid Disability Studies Workshop. Deadline: February 28! 

“The Paul K. Longmore Institute on Disability at San Francisco State University proudly announces Emerge, a three-year initiative made possible thanks to a generous $1 million grant from the Mellon Foundation. This support will allow the Longmore Institute to lead a month-long July workshop for 10 emerging Disability Studies scholar-activists, held three consecutive summers at San Francisco State University with an option for hybrid participation.” The deadline for the Call for Applications for “disabled activists, artists, cultural producers, filmmakers, and academics” is February 28, 2023, at 8 p.m. ET, 5 p.m. PT. For details and to apply, click here. (Courtesy of Bevin Croft and Nev Jones)

Deadline to Apply for Mad Camp 2023 Is March 1!

The deadline to apply for Mad Camp (July 20-24 2023) is March 1! Will Hall writes: “Mad people gathering for community and connection in the forested mountains of Northern California. Wow! We are now launching ticket applications. (We raised more than $4,400 in scholarship funds and counting!) Deadline to apply is March 1! Space is limited so if you are planning on coming, please fill out the application form! Check www.madcamp.net for information, including the Frequent Questions page. Go HERE to fill out the ticket application form!” For the Facebook event page you can share, click here.

ABCT Issues Call for Proposals for Its 2023 Conference, November 16-19 in Seattle. Deadline: March 14

The Association for Behavioral and Cognitive Therapies (ABCT) has issued a call for proposals for its 2023 conference, to be held November 16-19 in Seattle. Its theme is “Cultivating Joy with CBT [Cognitive Behavioral Therapy].” For more information about the conference, click here. For details about submitting proposals, due by March 14 at 11:59 p.m. Pacific Time, click here. (Courtesy of Yulia Mikhailova)

Call for Proposals: “Too Mad to Be True II—The Promises and Perils of the First-Person Perspective.” Deadline: March 15

March 15 is the deadline to submit a proposal for “Too mad to be true II—The promises and perils of the first-person perspective” (May 26-28, 2023), hosted by the University of Ghent and the Foundation for Psychiatry and Philosophy. For details, click here. Meanwhile, Dr. Nev Jones, a researcher and assistant professor at the University of Pittsburgh who has lived experience of psychosis, and who was a keynote speaker at the first conference, discusses some of the events at the conference and responses to her keynote in a second presentation. In that presentation, Mad In America (MIA) reports, she takes issue with the individualizing, pathologizing focus of the “phenomenology of psychosis” literature, “argu[ing] that psychosis ‘could never be divorced from the structural vectors of poverty, incarceration and various neoliberal welfare schemes, but has always been intimately bound up with them.’” For the MIA article, click here. To see "To Do Justice to Madness: Orienting to the Politics of Phenomenological Psychopathology," click here.

Registration Is Open for the ADA Virtual Mini-Con, March 28, 2023

The theme of the ADA Virtual Mini-Con, to be held on March 28, 2023 (9 a.m.-4 p.m. ET), is “Emerging Issues in the ADA and Criminal Justice.” Registration ends on March 24, 2023, at 11:59 p.m. ET. Space is limited to the first 500 registrants who pay the $50 fee. For details and to register, click here

SHARE!’s Free, Virtual Peer Workforce Conference Will Take Place on April 26; Deadline to Submit Proposals Is April 5

SHARE! will host its free, virtual 2023 Peer Workforce Conference–”Bridging Research and Practice”–on April 26. For more information and to register, click here. To submit a proposal by April 5, click here.

Active Minds Mental Health Conference July 7-8, 2023, in Washington, D.C.

Calling its conference “the nation’s leading mental health conference for young adults,” Active Minds will host its 2023 conference in Washington, D.C., July 7-8. Early bird registration is available until May 15 at 5:30 p.m. ET ($110 for students, $175 for general). For more information and to register, click here.

FREE WEBINARS AND OTHER EVENTS

CoE-IHS Webinar: “Peers Part 1–Leveraging the Untapped Potential of Peer Services in Integrated Care”

On February 28, 2023, at 12 p.m. ET, The Center of Excellence for Integrated Health Solutions (CoE-IHS) will present a free, one-hour webinar entitled “Leveraging the Untapped Potential of Peer Services in Integrated Care.” CoE-IHS writes: “Join us…to learn more about the critical role that peer support plays in integrated care settings, aiding in the healing and recovery of individuals with mental health conditions and substance use disorders.” For more information and to register, click here

“What is Peer Support and How Do I Supervise A Peer Support Specialist?”

On February 28, 2023, 2 p.m.-3 p.m. ET, Doors to Wellbeing will present the latest in its monthly webinar series: “What is Peer Support and How Do I Supervise A Peer Support Specialist?” Doors to Wellbeing writes: “This webinar will address the questions: What is it Peer Support Specialists do that is so different from other mental health professionals? And how do supervisors provide guidance and support to the Peer Support Specialists they manage?” For details and to register, click here

“Community-Driven Crisis Response: A Workbook for Coordinators” to Be Launched on February 28

On February 28, 2023, from 2 p.m. to 3:30 p.m. ET, the Council of State Governments Justice Center and the Bureau of Justice Assistance will launch “Community-Driven Crisis Response: A Workbook for Coordinators.” “This new resource was designed specifically for planning team coordinators who have been tasked with developing and implementing community-led responses to behavioral health crisis calls.” For more information and to register, click here.  

The Next Judi’s Room Will Celebrate the Life of Celia Brown

On March 1, 2023, at 6 p.m. ET (3 p.m. PT), I Love You, Lead On and MindFreedom International will host a free Judi’s Room event, via Zoom, celebrating the life of beloved mental health advocate Celia Brown (1952-2022). “After our remembrances of Celia, there will be time for general networking,” the organizers write. Everyone is welcome. “Meeting ID: 856 1185 8093. ASL will be provided if requested one week in advance.” To pre-register and get a passcode, click here.

PENTAC Will Host the Next Presentation in Its National Entrepreneur Speaker Series on March 2 

On March 2 (12 p.m.-1 p.m. ET), you can view the “National Entrepreneur Speaker Series, featuring Darian Elmendorf, co-founder and CEO of Compass Peer Services in Delaware. To register, click here

"Our Disability Roadmap” Webinar on March 10

On March 10, 2023, at 1 p.m. ET, “join Samuel Habib as he speaks with disability justice pioneer Bob Williams in the fifth of [Communication First’s] year-long, FREE series of webinars: ‘Our Disability Roadmap.’ Bob and Samuel will discuss a wide range of issues…including career pathways, higher education, independent living, AAC [Augmentative and Alternative Communication], advocacy, and much more.” For more information and to register, click here.

NCMHR Invites You Its Next Advocacy Call, on March 13 

The National Coalition for Mental Health Recovery (NCMHR) is inviting you to participate in a series of advocacy calls that will take place the second Monday of each month through December 2023. The first meeting was on February 13 at 2 p.m. ET. (Meeting times will alternate between midday and evenings; the time on March 13 is 5 p.m. ET.) You do not need to have attended Alternatives 2022 in order to participate in these calls. For details and the Zoom link, click here

The 3rd “Trauma in the Workplace” Webinar Is Coming Up

The Academy of Peer Services (APS) Virtual Learning Community is presenting the third 90-minute webinar in its “Trauma in the Workplace” series at 10 a.m. ET on March 16, 2023. A recording of the first webinar is available; the second webinar will also be archived. For details and to register, click here.

“Exclusionary Sanism: A Critical Dialogue” on March 21

On March 21, 2023, at 12 p.m. ET (9 a.m. PT), Nev Jones, Nika Mavrody, Aerik Woodams, and David Mordecai will engage in a panel discussion on “Exclusionary Sanism: A Critical Dialogue.” The discussion is connected to the Critical Psychiatry Conference.To register for the panel discussion, click here.

RESOURCES AND OPPORTUNITIES

WPA Invites Responses to Its Survey on “Implementing Alternatives to Coercion as a Key Component to Improving Mental Health Care”

March 15, 2023, is the World Psychiatric Association’s deadline for responding to its survey on alternatives to coercion. WPA writes: “We want to incorporate the voices of persons with lived experience of mental health conditions and their families and caregivers into our work. Therefore we have prepared this survey to gather ideas from a range of perspectives…[W]e thank you very much for sharing your important insights…If you have any questions or difficulties with GoogleForms please contact WPAConsultation22@gmail.com.” For the survey and additional information, click here(Courtesy of Shira Collings)

Request for Information (RFI): Gaps and Opportunities in Global Mental Health Research

“Respond to NIMH’s request for information (RFI) to identify research gaps and opportunities that will advance our understanding and role in supporting basic, translational, and services-oriented global mental health research. All responses must be submitted electronically by May 5, 2023, at 11:59 p.m. ET. Please use this submission web form or email NIMHGlobalMentalHealthRFI@nih.gov. Please use the subject line GMH RFI Response.” 

“Stigma Toward Peer Specialists on Inpatient Units”

“Being a peer specialist on an inpatient unit has been a powerful experience. I have seen great care provided, and I have been a part of many transformative conversations. However, the work culture of the unit I work on and other units I have been to does not include staff treating patients and peer specialists as equals. A major shift in the culture of these units is definitely needed.” So begins a personal account of “Stigma Toward Peer Specialists on Inpatient Units,” in Psychiatric Services. For the story, click here. (Courtesy of Nev Jones)

Call for Book Chapter Proposals for “Beyond Accommodations: ‘Cripping’ Possibilities in Higher Education”

“What would it look like to re-imagine academia as a place of acceptance, belonging, and flourishing of disabled faculty, staff, and students?...[T]his edited book invites contributions from disabled, chronically ill, mad, and neurodivergent people across the globe to (desire and) share how they are ‘cripping’ and transforming the classroom, the university, and academia more broadly.” “Please submit a 250-word abstract with tentative chapter title and short bio to Dr. Alan Martino, alan.martino@ucalgary.ca. Deadline for abstracts: March 31, 2023.” (Courtesy of Konstantina (Dina) Poursanidou)

EPICC Works to Help Parents with Mental Health Conditions Connect with Their Kids

Engaging Parents and Increasing Connections with Children (EPICC) is a 10-week program created by the Temple University Collaborative on Community Inclusion that is focused on helping parents with serious mental health conditions connect with their children through meaningful activities. For details and to apply, click here.

The March 2023 Digest of Articles Offering Healthy Lifestyle Advice

For “9 Tips to Help Stop Ruminating: Ruminating over the past, present, or future can be challenging, but there are strategies to manage it. Here are a few tips that can help,” click here. For “How to Tell If Your Brain Needs a Break,” click here. For “PFAS expert tips: How to reduce your exposure to harmful ‘forever chemicals,’” click here. For “Many Personal Care Products Contain Harmful Chemicals. Here’s What to Do About It,” click here. For “12 Chemicals in Personal Care Products You Should Avoid: The Dirty Dozen,” click here. For “Want to live a longer life? Try eating like a centenarian: You can’t change your genes, but improving your diet will make you healthier and could make a difference in life expectancy,” click here. For “These everyday items endanger the environment. Here’s how to handle them. How to safely dispose of paint, batteries, light bulbs and other potentially risky products cluttering up your cabinets,” click here. For “The Secret to a Better Workout Is Probably Already in Your Kitchen,” click here

The March 2023 Digest of Articles about the Criminal Legal System, in Which Many Individuals with Mental Health Conditions Are Incarcerated (and the Key Update continues after this Digest)

For “Is It Forensics or Is It Junk Science?” click here. For “How ‘Cruel and Not Unusual’ Conditions Persist in Many Lockups: Insight from a discussion with journalists, formerly incarcerated people and experts,” click here. For “Prosecuting the unthinkable: Experts question handling of cases where mothers are accused of killing their children,” click here. For “Addressing Trauma in Women’s Prisons,” click here. For “Giving Incarcerated People What They Want—Better News Access: The Marshall Project explains its decision to offer free news to incarcerated people on tablets that otherwise charge users,” click here. For “Texans with mental illnesses are dying in Houston-area jails. They didn’t need to be there,” click here. For “The Marshall Project and Vice News to Launch Inside Story Show: Developed by formerly incarcerated people, the video series brings news, interviews and profiles into U.S. prisons and jails,” click here. For “Defending Attica: How Radical Lawyers Played a Key Role Standing Up for Survivors of the Attica Uprising,” click here. For “How the Department of Justice is Failing Victims of Sexual Assault in Prison,” click here. For “The U.S. Probation System Has Become a Quagmire: What was originally intended as an alternative to incarceration has become a system for mass state control,” click here. For “‘You Ain’t No Big Man’: Videos Show Disparities in Cleveland Police Response to Kids in Crisis: Body cam footage reveals that officers don’t always follow department guidelines or training,” click here. For “When Law Enforcement Alone Can’t Stop the Violence: Amid a murder crisis in America, community-based solutions have received a flood of funding. How effective are they?,” click here. For “‘America’s dirty little secret’: Thousands of misdemeanor defendants don’t get attorneys,” click here. For “Prison, jail staff rarely face legal consequences after sex abuse of inmates, report finds,” click here. For “Bouie: Memphis proves the police cannot be a law unto themselves: Institution of American policing lies outside of any meaningful democratic control,” click here. For ‘Unconstitutional’ public defense systems upend lives, freedom across West,” click here. For “9th Circuit upholds California prison reforms, citing abuse of inmates with disabilities,” click here. For “When You’re Sentenced for a Crime That Even a Jury Agrees You Didn’t Commit: The Supreme Court might end an infuriatingly unjust practice in criminal sentencing,” click here. For “First sweeping federal gun crime report in 20 years released,” click here. For “Sending Help Instead of the Police in Albuquerque: A novel community-safety department has been taking calls off the hands of a force with the country’s second-highest fatal-shooting rate. Has it improved public safety?,” click here. For “The Killing of Tyre Nichols Reaffirms the Urgent Need for Police Accountability,” click here. For “The Culture and Practices of Policing That Killed Tyre Nichols (and So Many Others),” click here. For “​​The Lawfare Podcast: How the Police Became Untouchable,” click here. For “Mapping the Legacy of Prison Hunger Strikes in Texas: ‘I'm willing to die for the cause, because I can't live,’" click here. For “Criminalizing Survival: The Criminal Legal System Heaps More Violence on Victims of Gender-based Violence. Ending These Structures Is the Only Way to Protect Them,” click here. For “Spiritual Advisors Offering Final Comfort in Execution Rooms,” click here. For “Originalism Is Going to Get Women Killed: A federal court has ruled that a law barring domestic-violence offenders from owning firearms is unconstitutional,” click here. For “A Cop Sexually Assaulted Their Son. Then Child Protective Services Retaliated. How a family in Missouri almost lost their kid, and couldn’t fight back thanks to qualified immunity laws,” click here. For “One State’s Effort to Keep Some Police Encounters From Turning Deadly,” click here. For “What Can Federal Courts Do About Extreme, Outdated Sentences?,” click here. For “From Freddie Gray to Tyre Nichols, early police claims often misleading. An examination of seven prominent deadly cases where initial statements by authorities turned out to be false or incomplete,” click here. For “Texas death row inmate Andre Thomas’ attorneys apply for clemency, citing mental illness. At issue is whether Thomas, who gouged out his eyes after confessing to the 2004 murders of his estranged wife, their son and her daughter, is competent to be executed in April,” click here. For “Using State Constitutional Protections to Improve Life Behind Bars: Rulings in Oregon and Utah offer a road map for other state courts,” click here.

FROM PREVIOUS EDITIONS OF THE KEY UPDATE BUT STILL FRESH!

CONFERENCES, WEBINARS, AND TRAININGS

MHTTC Publishes Calendar of Events from Now Until September 19, 2023

The Mental Health Technology Transfer Center Network (MHTTC) has published a calendar of its events from now through September 19. The calendar covers the 10 U.S.-based regional MHTTCs as well as the two national MHTTCs. The MHTTC is funded by the Substance Abuse and Mental Health Services Administration. For the calendar, click here. (Courtesy of NYAPRS E-News)

NAADAC Hosts Free “Peer Recovery Support” Webinar Series, Issues Call for Proposals for Its Annual Conference, and Will Present Third Annual Virtual Summit on “Engagement in the Black Community”

First, the National Association for Alcoholism and Drug Abuse Counselors (NAADAC)—now known as the Association for Addiction Professionals—will launch its free, 10-part “Peer Recovery Support” webinar series on January 26, 3 p.m.-4:30 p.m. ET. For details, click here. Second, NAADAC members and non-members are invited to submit presentation proposals for 1.5-hour breakout sessions at its 2023 Annual Conference, to be held in Denver October 6-11. Submission deadline: January 31. For details and to submit a proposal, click here. Third, NADAAC will present its third annual virtual summit on “Engagement in the Black Community” on February 9-10, 2023, 12 p.m.-5 p.m. ET. For details and to register, click here. (Courtesy of Jessi Davis)

APS Learning Community Offers a Free, Three-Part Webinar Series on “Trauma in the Workplace” and Hosts a Weekly Networking Meeting. Check Out Its Website for Upcoming Events.

The Academy of Peer Services (APS) Virtual Learning Community will continue its free, three-part “Trauma in the Workplace” webinar series on February 16, 2023, at 10 a.m. ET, with the second webinar in the series. For details and to register, click here. The third of the 90-minute webinars will take place on March 16 at 10 a.m. ET; for details and to register, click here. The first webinar in the series, presented on January 19, is available for free viewing, along with other archived APS Learning Community webinars (click here). In addition, the APS Networking Meeting for Peer Specialists is every Tuesday from 5:15 p.m. to 6:30 p.m. ET. Its purpose is to share ideas, experiences, and opportunities with others in the field of peer support, as well as to give and receive support to each other. To register, click here. For the Virtual Learning Community website, which includes a calendar of upcoming events, resources, and more, click here.

MHTTC Offers Free Online Behavioral Health Courses

The Mental Health Technology Transfer Center Network (MHTTC) “currently offers 20 online courses available through Healtheknowledge.org. HealtheKnowledge.org offers high-quality, on-demand, and instructor-led courses that are open to the public. Courses are free for a certificate of completion, and yearly membership options are available for purchase to gain access to other HealtheKnowledge resources and earn unlimited CE credits. View our course listings here. View our how-to guide to set up your HealtheKnowledge account.” MHTTC is funded by the Substance Abuse and Mental Health Services Administration (SAMHSA).

ISSTD to Host 40th Annual Conference in Louisville April 13-17, 2023

The International Society for the Study of Trauma and Dissociation (ISSTD) will host its 40th annual conference in Louisville; the pre-conference will be held April 13-14 and the conference April 15-17. The theme is “Shifting the Societal Denial of Dissociation.” A virtual option (details of which are explained at the conference link, here) will also be available. Early Bird registration is available through February 15.

BHN/OMH to Host a Free, Four-Part (Virtual) Series on Understanding and Reducing Stigma This Winter

“Mental Health Stigma: What Is It? Who Does It Impact? How Do We Reduce It?” Behavioral Health News and the New York State Office of Mental Health will offer a four-part (virtual) roundtable series to discuss these questions, featuring people with lived experience, advocates, policy makers, mental health providers, community leaders, researchers, and media figures. The four 90-minute roundtables, each of which will begin at 2 p.m. ET, are “Understanding the Experience of Mental Health Stigma” (January 12); “The Experience of Mental Health Stigma among Diverse Groups” (January 26); “The Role of the Media in Reducing Stigma” (February 9); and “Paths to Reduce Stigma and Promote Positive Attitudes” (March 2). For details and to register for any or all of the free roundtables, click here.

“So You’re Ready to Work; Now What?”

Rebel Leadership Group LLC and CAFE TAC has launched a new, 12-part interactive employment training series! “This series will be recovery-centered and strengths-based, examining the process of finding, applying for, and succeeding in a job through the lens of recovery, helping attendees to identify strengths and skills, align the job-seeking and employment experience with their personal recovery path, and providing opportunity for discussion in a peer-centered space…Registering for any of the 12 sessions will automatically register you for all future sessions.” For details and to register, click here

“The Role of Peer Specialists in Promoting Health Equity”: A 5-Part Series

On January 19, 2023, at 1 p.m. ET, PENTAC will present the first 90-minute webinar in a five-part series; the topic will be “Understanding the Drivers of Health Inequities.” The rest of the series is scheduled for January 26 (“Racial Justice and the Mental Health Recovery Movement”), February 9 (“Helpers, Healers, and Jailers–Understanding the Difference”), February 16 (“Implementing a Framework for Culturally Relevant Peer Support Services”), and March 2 (“Putting All the Pieces Together: An Action Plan for Promoting Health Equity”). All of the 90-minute sessions will begin at 1 p.m. ET. To register for the first webinar (which will enroll you in all of the sessions), click here.

OPPORTUNITIES TO PARTICIPATE IN RESEARCH

New TU Collaborative Study on Bringing Activity into (or Back into) Your Life

“The Temple University Collaborative on Community Inclusion, in collaboration with the Copeland Center for Wellness and Recovery, is conducting research on a new online peer group workshop called REACH (Resilience, Education, Action, Community, Health). Participation (for adults 18-65 who have “significant mental health concerns”) involves a 12-session (on Mondays) “peer-delivered online intervention by the Copeland Center to explore meaningful activities.” For more information or to volunteer to participate, contact TUCollab@temple.edu. 

Young Adults with Psychiatric Diagnoses Are Sought for Study on Community Participation

The Temple University Collaborative on Community Inclusion is recruiting young adults (ages 18-30) with a diagnosis of schizophrenia, bipolar disorder, or major depression to take part in ConnectionsRx, designed to support engagement in meaningful community activities. Participants will be enrolled in the peer-led study for six months, and receive support to help meet community participation goals. Interviews (approximately 60 minutes each) will take place on Zoom. Participants will receive a $15 Amazon gift card (to a maximum of $45) for each survey completed. For the website, click here. Questions? Write to ConnectionsRx@temple.edu. 

South Southwest MHTTC Launches Youth and Young Adult Peer Supporters Survey

“Are you a peer specialist who provides peer support to other people under the age of 30? We want to hear from you! Please fill out the survey to assist the South Southwest Mental Health Technology Transfer Center (South Southwest MHTTC) in learning more about youth peer support across the country! The intent is to be able to include these peer supporters in research, training, and technical assistance activities surrounding youth peer support. The form should take 5-10 minutes to fill out, and can be done from a phone or a computer browser. To take the survey, click here.” Questions? Write to southsouthwest@mhttcnetwork.org.

Are You Interested in Pursuing Graduate School and/or a Research Career? Read Below.

Stephania Hayes (UC Davis), Shannon Pagdon (Columbia/NYS Psychiatric Institute/University of Pittsburgh), and Nev Jones (University of Pittsburgh) write: “We are gathering information from people with lived experience in the Coordinated Specialty Care (CSC) or early psychosis space (including peer specialists, current/former CSC participants, and CSC youth coordinators) who are potentially interested in pursuing graduate school and/or a research career. All of us identify as having lived experience, work in CSC, and are invested in supporting the next generation of scholars who also have lived experience. We would like to create a discussion group and/or other supports for people interested in this career path. The link below leads to a very brief survey that will help us understand the level of interest in such supports, as well as areas of career interest. (Please note that this is not a research study.)” To participate in the anonymous survey, click here.

“Help Us Map the Landscape of Lived Experience and Family Involvement in 988 Policy and Related Crisis Response System Planning!”

“As 988 implementation rolls out alongside additional efforts to strengthen crisis response systems throughout the U.S., it's important to gauge the extent to which direct stakeholders (i.e., individuals who use or have used mental health crisis services and their families) have been involved in related policy, implementation and evaluation at the local, regional, state or federal levels. To map out involvement nationally, Mental Health America (lead: Kelly Davis), Nev Jones (University of Pittsburgh) and Keris Myrick (National Association of Peer Supporters) have developed a survey aimed at documenting the extent of stakeholder involvement, the forms this involvement has taken, and, where available, what concerns stakeholders have raised. Any individual with knowledge of lived experience and family involvement is eligible to participate; individuals completing the survey do not have to have lived experience themselves.” For more information and to access the survey, click here.

Survey Seeks Respondents Who Have Taken Mental Health Courses Involving Their Own Diagnoses

Have you taken a mental health course that covers a diagnosis you have? If so, you are invited to participate in a brief, anonymous, online survey--designed by a University of Pittsburgh MSW student--about what it's like for students with lived experience to study their own diagnoses in a classroom. The survey covers students' experiences of studying such subjects as "abnormal psychology," "psychopathology," and diagnosis and assessment when their own diagnoses are covered. "The goal of the project is to better understand what it feels like to take courses in which someone’s diagnosis is being taught/defined/discussed. There is currently no literature or reporting on the experiences of students in the above circumstances, or the associated impact." Interested? Please click here. Questions? Please email the project lead, Charlie Clement, at cjc204@pitt.edu

Peer Support in Higher Education Survey Seeks Respondents

“Peer support programs are growing on college campuses across the U.S. Mental Health America, Doors to Wellbeing, and the Temple University Collaborative on Community Inclusion want to better understand the availability of peer support in higher education as well as the experiences and needs of students accessing peer support programs…We hope to use this research to support the expansion of peer support in higher education, including developing a national database of peer support programs in higher education and documenting pressing issues in campus programs…You may also indicate if you are interested in having your school’s peer support program listed in a national database of peer support programs in higher education.” For more information and to complete the survey, click here

BU Seeks Peer Support Specialists for a Research Study

The Center for Psychiatric Rehabilitation at Boston University is developing and testing the effectiveness of a coaching service called Coaching and Advancement for Peer Providers (CAPP) “to increase organizational commitment and job satisfaction and decrease turnover among mental health peer providers.” BU CPR writes: “We need Peer Support Specialists (PSS) to participate in our study. Who can participate? People who are in a paid job as a Peer Support Specialist providing support to other people with mental health challenges, who are employed at least 10 hours per week, who have worked for the past six months in a mental health program, and who are experiencing stress because of challenges in the workplace. The study involves 16 one-hour sessions of coaching over a four-month period designed to help you with your job, meeting online (through Zoom, for example) with your coach, and filling out surveys one time before coaching starts and three additional times. You will have a 50/50 chance of getting a coach or having a one-time meeting to give you information about challenges at work. Benefits? You may learn strategies to help make work less stressful.” For more information, click here. For questions, contact Principal Investigator E. Sally Rogers, Sc.D., at erogers@bu.edu or 617-353-3549.

Supported Education Survey Needs Your Help

Do you operate a program that provides dedicated supported education services for individuals with psychiatric disabilities/mental health conditions? If so, you are invited to complete the survey at the link below. The primary goal of the survey is to help create a National Supported Education Database (NSEdD) that will be "a searchable listing of diverse supported education programs and services for individuals experiencing psychiatric disabilities and/or mental health challenges...across the US and its territories." The NSEdD project is sponsored by the Substance Abuse and Mental Health Services Administration (SAMHSA) and co-administered by the five SAMHSA-funded national consumer and consumer-supporter technical assistance centers, in collaboration with research partners Drs. Nev Jones (University of Pittsburgh) and Mark Salzer (Temple University). For a link to the survey, which includes a definition of supported education, click here. For a flyer with information about the survey, click here.    

National Survey on Student Rights, Discrimination, and Accommodations in Higher Education Seeks Respondents  

"Have you experienced psychiatric disability-based discrimination or the denial of an accommodation in a postsecondary institution in the United States? Interested in informing national advocacy focus on psych disability rights in higher ed? Mental Health America (lead: Kelly Davis) and collaborators Dr. Nev Jones (University of Pittsburgh), Stefanie Kaufman-Mthimkhulu (Project LETS) and Brit Vanneman Esq. (Bazelon Center for Mental Health Law) have developed "a survey aimed at providing a more comprehensive understanding of student experiences of campus-based discrimination, mandated leaves of absence, and/or denial of academic, administrative and/or student-work accommodations in the U.S. Data will be used to inform national advocacy efforts and future projects, and in reports, presentations and publications." For eligibility and to access the survey, click here.

If You've Had, or Been Labeled with, "Negative Symptoms" in the Context of Psychosis...

"If you have experienced or been labeled with 'negative symptoms' in the context of psychosis, please consider contributing an anonymous account of your views and experiences," Dr. Nev Jones writes. "Currently, there is nowhere one can go to find lived experience perspectives/accounts on this topic—even though 'negative symptoms' regularly feature in research and clinical trials. Help us change this!" This survey is a companion to Psychosis Outside the Box; for that survey, click here. For more information and/or to share your story about "negative symptoms," click here.

“Are You Between the Ages of 21 and 60 and Drink Alcohol?”

"Researchers at the National Institutes of Health (NIH) are seeking adults--[both smokers and non-smokers]--to study whether a gene and smoking may affect drinking alcohol. Volunteers should be healthy and drug-free, and not seeking treatment for alcohol-related problems. Research participation includes three outpatient visits at the NIH Clinical Center in Bethesda, MD; alcohol consumption; brain scans (MRI), blood draws, and filling out questionnaires. There is no cost to participate and compensation may be provided." For more information, click here. (Courtesy of Fran Hazam)

TU Collaborative Seeks Participants for Its Parenting Through Leisure Project; See Also the TU Collaborative's Parenting Resources, Including Information on Custody Issues

The Temple University Collaborative on Community Inclusion is seeking parents with lived experience of a mental health condition to participate in a paid research study. The TU Collaborative writes: "Our program, Parenting Through Leisure, focuses on helping parents with a serious mental illness participate in leisure activities with their child. We are looking for individuals who are 18 and older; are an adult parent with a diagnosis of schizophrenia-spectrum disorder, bipolar disorder, or depression; have a child who is 7 to 15 years old and is interested in participating in family leisure with you; have legal visitation rights, joint custody or full custody of the child, with at least weekly contact; and have a desire to engage in more leisure activities with their child." For details about the study and the remuneration as well as other benefits to eligible participants, and a link to sign up, click here. Questions? Please contact TUCollab@temple.edu. And for the TU Collaborative's Parenting web page--which includes links to many resources for parents with lived experience, including information about custody laws and a model family reunification statute--click here.

Survey Seeks Respondents Who Are in Administrative/Leadership Positions in the Mental Health Field

If you are in an administrative/leadership position in the mental health arena, “the Group for the Advancement of Psychiatry (GAP) Committee on Psychiatric Administration and Leadership invites you to participate in the International Survey on Administrative Psychiatry. The survey has two purposes: 1. To identify the concerns and needs of mental health professionals/psychiatrists in administrative and leadership positions. 2. To determine training needs in administrative psychiatry. We ask you to complete this brief, [15- to 20-minute] questionnaire to help us in developing recommendations for action. We also want to let you know that, if you fill out this questionnaire, you permit the committee to use your anonymous data for scientific work.” Peer providers are included. For the survey, click here. (Courtesy of Oryx Cohen)

International Survey on Antipsychotic Medication Withdrawal Seeks Respondents

“Have you taken antipsychotic medication (such as Zyprexa, Seroquel, Abilify, Risperdal, Haldol, Geodon, Stelazine, and others), for any condition or diagnosis, with or without other medications? And did you ever stop taking antipsychotics, or try to stop taking them? Are you 18 years or older? If yes, you can take this survey about antipsychotic withdrawal and attempts to withdraw, including if you stopped taking them completely or if you tried to come off and still take them. The survey aims to improve mental health services by better understanding medication withdrawal. Lead researcher is Will Hall, a therapist and Ph.D. student who has himself taken antipsychotics. Service users/survivors/consumers from around the world also gave input. The study is sponsored by Maastricht University in the Netherlands; co-sponsors include the International Institute for Psychiatric Drug Withdrawal. Questions? Please contact will.hall@maastrichtuniversity.nl.”  For more information or to take the survey, click on www.antipsychoticwithdrawalsurvey.com

OTHER OPPORTUNITIES AND RESOURCES

Nominations Are Open for Six Mental Health America Awards

“Nominations are now open for six MHA awards that recognize peers, individuals, journalists, advocates, and MHA affiliates making a difference in mental health,” Mental Health America writes. “These awards will be given out during formal ceremonies at the 2023 Mental Health America Conference, held June 8-10, 2023 in Washington, D.C.” The deadline to nominate yourself or others is March 1, 2023, at 5 p.m. ET. For information about the six awards, and to submit one or more nominations, click here.

TU Collaborative Wants to Hear Your Story!

“We are working on a project to better understand social connections among adults with significant mental health challenges,” the Temple University Collaborative on Community Inclusion writes. “We are seeking your stories on your social connections generally” and “what those connections mean to you.” The TU Collaborative will compile these stories based on a series of brief surveys. For details and to share your story, click here.

Call for Papers: “Recovery at 30: Emancipation, cooptation, or the end of an era?”

“The year 2023 marks exactly three decades since the publication of Bill Anthony’s seminal “Recovery from mental illness: the guiding vision of the mental health service system in the 1990s" (click here)...”In this special issue of Community Mental Health Journal,” the editors write, “we are soliciting both concept pieces (commentaries, critical reviews) and empirical work (qualitative, quantitative, ethnographic or mixed methods) that explore the question of whether recovery policy remains relevant and emancipatory today or whether the psy-fields are instead in need of fresh thinking and new, more diverse values-based frameworks.” The submission deadline is September 1, 2023. For more information, click here.

Common Threads: Stories of Survival & Recovery from Mental Illness

Common Threads: Stories of Survival & Recovery from Mental Illness, a 108-page compendium, includes “tales of survival and recovery” by a number of Floridians. To quote from the Introduction, “Many of the people in these stories have lived significant portions of their lives in psychiatric institutions, and only through their strengths have they found their way back to the community…In these tales, we hear about the importance of education and peer support…” To download the free document, click here.

“Crisis Now” Offers a “Roadmap to Safe, Effective Crisis Care”

The goal of Crisis Now: Transforming Crisis Services—led by the National Association of State Mental Health Program Directors (NASMHPD) and developed with the National Action Alliance for Suicide Prevention, the National Suicide Prevention Lifeline, the National Council for Mental Wellbeing, and RI International—is “to provide all communities a roadmap to safe, effective crisis care that diverts people in distress from the emergency department and jail by developing a continuum of crisis care services that match people’s clinical needs.” Among the resources offered on the website are SAMHSA’s 80-page “National Guidelines for Behavioral Health Crisis Care Best Practice Toolkit” (2020), an “Overview of Crisis Funding Sources Available to States and Localities” (last updated March 2, 2022), and assessment tools, such as “How Does Your Crisis System Rate?” The Crisis Now partners write: “Are you interested in adding your organization to the list supporting Crisis Now, or do you have questions? Reach out to us at info@crisisnow.com. For the website, click here.

“What Is the Meaning of Life?” This Free Online Collection Offers Answers

Excellence Reporter offers more than “1,200 articles-interviews on ‘What Is the Meaning of Life?’ written by renowned spiritual leaders, mindfulness experts, great thinkers and authors, elders, artists, musicians, CEOs, etc.” The contributors include such renowned figures as Bertrand Russell; Carl Jung; the Dalai Lama; Eleanor Roosevelt; Epicurus; Erich Fromm; Kahlil Gibran; Buckminster Fuller; Robert Louis Stevenson; and Ron Bassman, executive director of MindFreedom International. To browse the free compendium, click here.

The UIC Center’s Solutions Suite for Health & Recovery Offers Free Tools

"The UIC Center offers tools, curricula, and implementation manuals for free use in community-based programs, peer-run programs, or one's own life. You can introduce the entire complement of products to foster improved health, wellness, and mental health recovery. Or, you can choose the ones that will work best for your program or your life. The Suite was developed in collaboration with Collaborative Support Programs of New Jersey. The UIC Center is funded by NIDILRR (National Institute on Disability, Independent Living, and Rehabilitation Research). For the UIC Solutions Suite for Health & Recovery, click here. (Courtesy of Peggy Swarbrick via Jacek Haciak)

U.S. Surgeon General Creates Community Toolkit for Addressing Health Misinformation

"The U.S. Surgeon General’s Community Toolkit for Addressing Health Misinformation, developed in collaboration with the HHS Office of Evaluation Sciences (OES), provides specific guidance and resources for health care providers, educators, librarians, faith leaders, and trusted community members to understand, identify, and stop the spread of health misinformation in their communities." For information about the toolkit (a 22-page overview of health misinformation, and resources to stop it), and links to a “Talk to Your Community About Health Misinformation” Infographic, a “Health Misinformation Checklist” Infographic, and the Surgeon General's press release, click here.

"Psychiatrist with Philosophical Interests" leads "Conversations in Critical Psychiatry," a Psychiatric Times Series

Awais Aftab, who describes himself as a "psychiatrist with philosophical interests" in his Twitter bio, leads "Conversations in Critical Psychiatry," which, he says, "explores critical and philosophical perspectives in psychiatry and engages with prominent commentators within and outside the profession who have made meaningful criticisms of the status quo." Among those interviewed are Allen Frances, M.D., author of Saving Normal; Sandra Steingard, M.D., and G. Scott Waterman, M.D., on "Integrating Academic Inquiry and Reformist Activism in Psychiatry"; Susannah Cahalan, author of Brain on Fire: My Month of Madness, on "50 Shades of Misdiagnosis"; Kathy Flaherty, J.D., executive director of the Connecticut Legal Rights Project, Inc., on "Reconsidering Care and Coercion in Psychiatry"; Nev Jones, Ph.D., on "Phenomenology, Power, Polarization, and the Discourse on Psychosis"; Dainius Puras, M.D., on "Global Psychiatry's Crisis of Values"; and many others. For the archived interviews, click here.

CNN Offers “A Guide to Helping and Getting Help During the Coronavirus Crisis”

CNN writes: “The coronavirus pandemic is overwhelming, and one of the most excruciating parts for many people is the feeling of utter helplessness in the face of widespread suffering and hardship. CNN’s Impact Your World has compiled a list of donation opportunities and tips to help those affected by the crisis. Click on a category or scroll down to browse a list of organizations, resources and ideas. Need help? Most categories also include resources for financial, emotional or social support.” For the free guide, click here.

U.S. DOL Releases Guidance on FMLA Leave and Mental Health

The U.S. Department of Labor’s newly issued Fact Sheet #280 about the Family and Medical Leave Act (FMLA) explains when eligible employees may take FMLA leave to address mental health conditions, and new Frequently Asked Questions (FAQs) offers additional information. (Although the FMLA covers public and private employers nationwide, only those private employers who have 50 or more employees for at least 20 workweeks in a year are required to provide their eligible employees with FMLA leave.) For details, click here.

Hearing Voices Network Is Now Hosting Online Groups

“There are now ONLINE opportunities to connect, share experiences, and find mutual support,” the Hearing Voices Network (HVN) writes. “These groups are accessible via web-based platforms and by phone…Online groups are specifically for those with personal lived experience with hearing voices, seeing visions, and/or negotiating alternative realities. They are voice-hearer facilitated. With further questions and for details on how to access the group[s], please email info@hearingvoicesusa.org.” To read this announcement online and for more information, click here.

Virtual Group Works to Advance Peer Research Capacity, Leadership, and Involvement

Nev Jones, PhD—a strong advocate for building research capacity, leadership, and involvement among peers, survivors, and service users—leads a virtual group dedicated to this effort. Dr. Jones—assistant professor, School of Social Work, University of Pittsburgh—was part of the team that developed “User/Survivor Leadership & Capacity Building in Research: White Paper on Promoting Engagement Practices in Peer Evaluation/Research (PEPPER),” published by the Lived Experience Research Network. For the white paper, click here. Anyone interested in joining the virtual group can email Nev at nev.inbox@gmail.com.

Mad In America Invites You to Submit Your Personal Story (Within Certain Guidelines)

Mad In America writes: “A ‘personal story’ is defined as your story of being in relationship to psychiatry and/or the mental health system, whatever that means to you. It might involve your opinions and analysis of what happened to you, as well. It can be about a specific event, or about your overall journey, provided it fits the length requirements (1,500 to 3,000 words) and has a narrative arc. The piece should be about your personal experiences, not psychiatry or the mental health system in general. Submissions should fall under the theme of rethinking psychiatry and the mental health system, and should be original works not previously published elsewhere. For examples of the types of stories we publish, view our personal stories archive here.” For more information and/or to submit a personal story, click here.

Seven Ways to Keep a Digital Copy of Your Vaccination Card on Your Smartphone

“You'll need proof of vaccination to go back to work or enter many restaurants, gyms and event venues, so keep your COVID-19 card handy.” This is the advice of CNET.com, a tech support website. Besides the obvious—taking a photo of the card to store on your phone—there are six other suggestions. For details, click here. (Courtesy of Yvonne Smith)

ISPS-US Offers an Array of Archived Webinars—Free but Donations Are Welcomed

The ISPS-US (The International Society for Psychological and Social Approaches to Psychosis-US Chapter) is offering a whole raft of archived webinars, which are free (although donations are welcomed). Among the webinars are "Cognitive Behavioral & Related Therapies for Psychosis: Diverse Approaches to Supporting Recovery," "How Can the Uncontainable Be Contained? Paradoxes of Madness & Philosophy," "Robert Whitaker: The Rising Non-Pharmaceutical Paradigm for 'Psychosis,'" "Life with Voices: A Guide for Harmony," "COPE Project: Non-Pharmaceutical Research on Influencing Voices and Visions," "What Hurts and What Helps In Treatment For 'Psychosis': Insider Perspectives," and many others. For more information and to access the webinars, click here.

“Where DNA and Medications Meet”

Not all drugs are effective for all people; therapeutic response rates for many drugs are only 50%-75%. “OneOme, co-founded by [the] Mayo Clinic, provides evidence-based pharmacogenomic solutions that help improve patient outcomes and reduce costs through more personalized medication decisions.” OneOme’s RightMed Test is “a doctor-ordered pharmacogenomic (PGx) test that analyzes your DNA and provides your doctors with genetic information to help them determine how you may respond to certain medications. The results may help your doctors reduce medication trial and error, minimize risk of side effects, save you time and money, and make more informed prescribing decisions. Because your DNA doesn’t change over time, your doctors can use your test results to make more personalized medication decisions for you over the course of your lifetime.” For more information, click here. (Courtesy of Robin Osborne)

Doors to Wellbeing Offers “State Selfies: A Picture of Peer Services Reported by Peers”

Doors to Wellbeing’s “Peer Album” is a directory of nearly 600 peer-run organizations throughout the U.S. They invite updates and offer instructions for providing them and add, “If your entry has not made this first draft, we encourage you to re-submit.” For the 158-page directory, click here.

Disclaimer: The Clearinghouse does not necessarily endorse the opinions and opportunities included in the Key Update.

About the Key Update

The National Mental Health Consumers’ Self-Help Clearinghouse is affiliated with the Temple University Collaborative on Community Inclusion. The Key Update is the free monthly e-newsletter of the National Mental Health Consumers’ Self-Help Clearinghouse. Volume 19, No. 9, March 2023. For content, reproduction or publication information, please contact Susan Rogers at selfhelpclearinghouse@gmail.com. Follow Susan on Twitter at @SusanRogersMH

 

Key Update, February 2023, Volume 19, Number 8

The National Mental Health Consumers’ Self-Help Clearinghouse is affiliated with the Temple University Collaborative on Community Inclusion.

TO CONTACT: THE CLEARINGHOUSE: SELFHELPCLEARINGHOUSE@GMAIL.COM  … SUSAN ROGERS: SUSAN.ROGERS.ADVOCACY@GMAIL.COM … JOSEPH ROGERS: JROGERS08034@GMAIL.COM 

THE KEY UPDATE IS COMPILED, WRITTEN, AND EDITED BY SUSAN ROGERS, DIRECTOR, NATIONAL MENTAL HEALTH CONSUMERS’ SELF-HELP CLEARINGHOUSE.

NOTE: THE "FROM PREVIOUS EDITIONS OF THE KEY UPDATE BUT STILL FRESH!" DEPARTMENT, WHICH IS DIRECTLY BELOW THE MONTHLY CRIMINAL LEGAL SYSTEM DIGEST, INCLUDES ITEMS THAT HAD BEEN POSTED "ABOVE THE FOLD" IN EARLIER EDITIONS BUT ARE STILL RELEVANT. THESE INCLUDE ONGOING RESEARCH STUDIES THAT ARE STILL SEEKING PARTICIPANTS, AS WELL AS UPCOMING WEBINARS AND CONFERENCES, AND OTHER ITEMS OF CONTINUED INTEREST. DON'T MISS IT!

DEADLINE ALERT: There are three webinars scheduled for today (January 26) and a fourth for tomorrow (January 27)! See the first three items under “Webinars, Trainings, and Conferences” for details.

NEWS

“NIH Advances Landmark Recommendations on Disability Inclusion and Anti-ableism”

“In 2021, within its Working Group on Diversity, the NIH [National Institutes of Health] established a subgroup on individuals with disabilities…to explore ways to increase disability equity and inclusion. The committee that advises the NIH’s director endorsed the subgroup’s landmark set of recommendations, which were finally published on Dec. 30." To read the STAT article, click here

“ ‘Out Of Control’: Dozens of Telehealth Startups Sent Sensitive Health Information to Big Tech Companies”

“An investigation by The Markup and STAT found 49 out of 50 telehealth websites sharing health data via Big Tech’s tracking tools,” according to a recent article. For the article, click here.

“What Is the Frequency and Nature of Visual Hallucinations in Non-clinical Participants?”

According to a study published in November 2022, visual hallucinations (VH) “are seemingly common in non-clinical populations and are similar in a number of ways to those of people with psychosis. Awareness that VH occur on a continuum could normalize people's experiences and reduce their negative appraisals and related distress.” For the study, © British Psychological Society, click here

“Talking about...PPI” [Patient and Public Involvement] in Mental Health Research

“'Talking about...PPI' [Patient and Public Involvement] is a new video series in which experienced public contributors in mental health research talk to researchers about their role. The conversations offer lots of useful insight, experience and guidance for researchers.” For more information, click here.

Yale’s New Policies Will Help Students with Mental Health Conditions; NASMHPD Manuals May Help Students, Families, and Campus Staff and Administrators

Yale University has made major changes to its medical leave policy that will allow students struggling with mental health problems to take time off—rather than withdraw—and to return to campus when they’re ready, without reapplying. In addition, for the “Student and Family” Version of “Back to School: Toolkits to Support the Full Inclusion of Students with Early Psychosis in Higher Education,” a 94-page manual–one of a two-part series available from the National Association of State Mental Health Program Directors (NASMHPD)--click here. For the 57-page “Campus Staff and Administrator Version,” click here.

Your Consent Is Not Required: The Rise in Psychiatric Detentions, Forced Treatment, and Abusive Guardianships

Your Consent Is Not Required: The Rise in Psychiatric Detentions, Forced Treatment and Abusive Guardianships “investigates people's experiences of civil psychiatric detentions, and the science, economics, and cultural politics of forced treatment,” says its author, Rob Wipond. Author and psychologist Bruce Levine described the book as "a hugely important investigation of psychiatry's ‘extra-legal’ policing of people who have done nothing illegal but who create tension for their families or society… A vivid picture of an injustice ignored by the mainstream media.” And Scientific American columnist John Horgan wrote: "Rob Wipond's exposé is passionate, thoroughly reported and rigorously reasoned. This book grabbed my attention from the start and never let go.” For more information and to order the book, click here or visit your local bookstore.

WEBINARS, TRAININGS, AND CONFERENCES

MHTTC Publishes Calendar of Events from Now Until September 19, 2023

The Mental Health Technology Transfer Center Network (MHTTC) has published a calendar of its events from now through September 19. The calendar covers the 10 U.S.-based regional MHTTCs as well as the two national MHTTCs. The MHTTC is funded by the Substance Abuse and Mental Health Services Administration. For the calendar, click here. (Courtesy of NYAPRS E-News)

NAADAC Hosts Free “Peer Recovery Support” Webinar Series, Issues Call for Proposals for Its Annual Conference, and Will Present Third Annual Virtual Summit on “Engagement in the Black Community”

First, the National Association for Alcoholism and Drug Abuse Counselors (NAADAC)—now known as the Association for Addiction Professionals—will launch its free, 10-part “Peer Recovery Support” webinar series on January 26, 3 p.m.-4:30 p.m. ET. For details, click here. Second, NAADAC members and non-members are invited to submit presentation proposals for 1.5-hour breakout sessions at its 2023 Annual Conference, to be held in Denver October 6-11. Submission deadline: January 31. For details and to submit a proposal, click here. Third, NADAAC will present its third annual virtual summit on “Engagement in the Black Community” on February 9-10, 2023, 12 p.m.-5 p.m. ET. For details and to register, click here. (Courtesy of Jessi Davis)

“Psychosis, Sociopolitical Trauma and the Asian Diaspora”

On January 27, 2023, at 4:30 p.m. ET, the International Society for Psychological and Social Approaches to Psychosis-U.S. Chapter (ISPS-US) will present a “conversation about the impact of trauma born of war on those who are deemed ‘other’ within the communities in which they seek refuge.” For more information about this 90-minute webinar, click here.

Café TA Center to Present “Master Your Personal Narrative: Storytelling as a Leadership Tool”

This free six-part series—beginning on January 31, 2023, at 1:30 p.m. ET and continuing every Tuesday at the same time through March 7—will explore how to “broaden the idea of the personal recovery narrative and discuss how you can use your story as a leadership tool in different contexts, including advocacy, executive/organizational leadership, and agency-level systems change.” For details and to register, click here.

“Finding Your Rhythm: Infusing Music into Crisis Settings”

On January 31, 2023, at 2 p.m. ET, the National Empowerment Center (NEC) will present a free, 90-minute webinar on “Finding Your Rhythm: Infusing Music into Crisis Settings.” NEC writes: “In this webinar, learn about meaningful and creative ways to bring music into crisis treatment settings, from songwriting and singalongs to intimate performances.” For details and to register, click here.

“Expanding Access to and Use of Behavioral Health Services for People Experiencing Homelessness”

On February 2, at 2 p.m. ET (11 a.m. PT), “join the MHTTC Network, SAMHSA and Abt Associates for an upcoming webinar highlighting findings from SAMHSA's new guide, “Expanding Access to and Use of Behavioral Health Services for People Experiencing Homelessness.” “This webinar will provide an overview of the SAMHSA guide and include presentations from four organizations that are currently using the evidence-based practices featured in this guide to support mental health and substance use needs among individuals experiencing homelessness.” For details and to register, click here.

Free Intentional Peer Support Training on February 5

On February 5, 2023, at 12 p.m. ET, a free Intentional Peer Support (IPS) training will be sponsored by the 2022 International Peer Respite/Soteria Summit. It is a follow-up to the Summit, but new participants are welcome. The sponsors write: “In this three-hour online overview, participants will learn about the history of IPS as well as the tasks and principles of this transformational framework. There will be an opportunity to ask questions and have interactive discussions with the facilitators and other participants.” The Summit website has a list of resources; and some short videos from the Summit are available here. For more information and to register, click here; registrants will be emailed the link to participate before February 5.

Online Conference on “Withdrawal from Psychiatric Drugs 2,” February 10-11, 2023

The International Institute for Psychiatric Drug Withdrawal (IIPDW) is holding its second online conference–"Withdrawal from Psychiatric Drugs 2”–February 10-11, 2023. “...The conference will look at the latest developments in research and the world of online peer support…Anyone with a personal or professional interest is welcome.” For more information and to register, click here

ADAA to Offer Two Free Webinars in February; Others Can Be Viewed on Demand

The Anxiety and Depression Association of America (ADAA) will offer two free 60-minute webinars in February: on February 9, 2023, at 1 p.m. ET: “Perfectly Imperfect Love: Tips to Recognize & Move Past Relationship OCD” (click here); and “Athletes and Mental Health,” on February 13 at 12 p.m. ET (click here). All webinars are recorded and are available to watch on-demand. For more information, click here.

APS Learning Community Offers a Free, Three-Part Webinar Series on “Trauma in the Workplace” and Hosts a Weekly Networking Meeting. Check Out Its Website for Upcoming Events.

The Academy of Peer Services (APS) Virtual Learning Community will continue its free, three-part “Trauma in the Workplace” webinar series on February 16, 2023, at 10 a.m. ET, with the second webinar in the series. For details and to register, click here. The third of the 90-minute webinars will take place on March 16 at 10 a.m. ET; for details and to register, click here. The first webinar in the series, presented on January 19, is available for free viewing, along with other archived APS Learning Community webinars (click here). In addition, the APS Networking Meeting for Peer Specialists is every Tuesday from 5:15 p.m. to 6:30 p.m. ET. Its purpose is to share ideas, experiences, and opportunities with others in the field of peer support, as well as to give and receive support to each other. To register, click here. For the Virtual Learning Community website, which includes a calendar of upcoming events, resources, and more, click here.

Doors to Wellbeing to Host the Next Webinar in Its Monthly Series on February 28

Stay tuned to the Doors to Wellbeing website for details of its February webinar!

MHTTC Offers Free Online Behavioral Health Courses

The Mental Health Technology Transfer Center Network (MHTTC) “currently offers 20 online courses available through Healtheknowledge.org. HealtheKnowledge.org offers high-quality, on-demand, and instructor-led courses that are open to the public. Courses are free for a certificate of completion, and yearly membership options are available for purchase to gain access to other HealtheKnowledge resources and earn unlimited CE credits. View our course listings here. View our how-to guide to set up your HealtheKnowledge account.” MHTTC is funded by the Substance Abuse and Mental Health Services Administration (SAMHSA).

ISSTD to Host 40th Annual Conference in Louisville April 13-17, 2023

The International Society for the Study of Trauma and Dissociation (ISSTD) will host its 40th annual conference in Louisville; the pre-conference will be held April 13-14 and the conference April 15-17. The theme is “Shifting the Societal Denial of Dissociation.” A virtual option (details of which are explained at the conference link, here) will also be available. Early Bird registration is available through February 15.

OPPORTUNITIES

“Want to Help Transform Campus Mental Health Policy and Supports in the United States?” 

Leaders of the disability rights movement who have received a PCORI “convening” grant “are recruiting potential members for workgroups to develop research priorities in each of three areas leading up to the convening, or who are interested in participating in the final all-day virtual summit in Fall 2023.” The three areas are “campus crisis response and integration of campus support in the context of hospitalization; medical leaves and/or psychiatric disabilities requiring cross-division coordination; and psychiatric disability accommodations and ADA-related policy and practice…To facilitate diverse involvement, we are asking interested individuals to fill out an expression of interest form.” For details and the application, click here. Deadline: February 3, 2023.

New TU Collaborative Study on Bringing Activity into (or Back into) Your Life

“The Temple University Collaborative on Community Inclusion, in collaboration with the Copeland Center for Wellness and Recovery, is conducting research on a new online peer group workshop called REACH (Resilience, Education, Action, Community, Health). Participation (for adults 18-65 who have “significant mental health concerns”) involves a 12-session (on Mondays) “peer-delivered online intervention by the Copeland Center to explore meaningful activities.” For more information or to volunteer to participate, contact TUCollab@temple.edu. 

Nominations Are Open for Six Mental Health America Awards

“Nominations are now open for six MHA awards that recognize peers, individuals, journalists, advocates, and MHA affiliates making a difference in mental health,” Mental Health America writes. “These awards will be given out during formal ceremonies at the 2023 Mental Health America Conference, held June 8-10, 2023 in Washington, D.C.” The deadline to nominate yourself or others is March 1, 2023, at 5 p.m. ET. For information about the six awards, and to submit one or more nominations, click here.

RESOURCES

“The Need for a New Generation of Digital Mental Health Tools to Support More Accessible, Effective and Equitable Care”

An editorial in the February 2023 edition of World Psychiatry highlights “the need for a new generation of digital mental health tools to support more accessible, effective and equitable care.” The authors conclude: “Achieving optimal health, including mental health, means that we must address social/political determinants of health. Technology literacy now is considered a social determinant of health…Thus, supporting digital self-determination should be the first priority…” Scroll down for the editorial at this link.

Mental Health Advocate Pat Deegan’s Website Offers 2 Articles and 24 Posters for Free

“We are making a change to our website so that everyone can access my FREE posters and papers more easily,” Pat Deegan writes. The two articles currently available are “Recovery, Rehabilitation, and the Conspiracy of Hope” and “Prescribing Hope for Recovery.” The website also includes 24 free posters, with messages such as “Recovery happens for ordinary people like me and you who, upon awakening, swing our feet over the edge of the bed, stand up and face the day." For the articles and posters, click here. (Courtesy of Elizabeth R. Stone)

The February 2023 Digest of Articles Offering Healthy Lifestyle Advice

For “How a Bit of Awe Can Improve Your Health,” click here. For “The 7-Day Happiness Challenge: If you take this seven-day challenge and if you commit yourself to doing all of these things without cheating, not only you will know what makes happy people happy, but at the end of the challenge, you might also experience that happiness for yourself,” click here. For “How to Become a Morning Exercise Person,” click here. For “You Can Do This 10-Minute Workout at Home with No Equipment,” click here

The February 2023 Digest of Articles about the Criminal Legal System, in Which Many Individuals with Mental Health Conditions Are Incarcerated (and the Key Update continues after this Digest)

For “Drive Change is a New York City nonprofit that ‘provides opportunities for young people to further their social and professional development through the power of work…At Drive Change our mission is to support formerly incarcerated young people, and create quality employment pathways to ensure their economic and emotional wellbeing,’” click here. For “W.Va. journalist let go after reporting on abuse allegations: A West Virginia journalist lost her job last month after she reported about alleged abuse of people with disabilities within the state agency that runs West Virginia’s foster care and psychiatric facilities,” click here. For “Reflections on Long Prison Sentences: A Conversation with Crime Survivors, Formerly Incarcerated People, and Family Members: If we want to improve conditions in prisons and protect public safety we need to think differently about long prison sentences. That starts with listening more often to incarcerated people and their families,” click here. For “Brady ’s Failure: The rule was supposed to prevent prosecutors from hiding evidence. It hasn’t worked—but there’s a better way,” click here. For “Federal Inmates Suffering From Unconstitutional Medical Neglect Could Get Relief Under Rule Change: The U.S. Sentencing Commission might make medical neglect a qualifying condition for compassionate release,” click here. For “The Brutal Reality of Life in America’s Most Notorious Jail: I’ve been locked up in maximum-security prisons for two decades. My time on Rikers Island was worse,” click here. For “'This Place Is Crazy': Our mental-health-care system is broken. Ten of every eleven psychiatric patients housed by the government are incarcerated. Here’s what this crisis looks like from the inside—a series of lost lives and a few rare victories—as reported by a prisoner-journalist,” click here. For “‘Riotsville, USA’ Shows the Birth of Police Militarization: Everything Looks Like a Nail–A new documentary uses archive footage to show how the government started thinking of protesters as enemies, and police as soldiers,” click here. For “How an Illicit Cell Phone Helped Me Take College Courses from Prison: ‘I didn’t want to give any type of indication that I am in prison, because I didn’t want to be kicked out,’” click here. For “The Many Ingenious Ways People in Prison Use (Forbidden) Cell Phones: Despite the security concerns of administrators, incarcerated people use phones to hustle, make TikToks or publicize prison conditions,” click here. For “EXPLAINER: Biden inaction, mixed signals on death penalty,” click here. For “How Biden Can Reverse Trump’s Death Penalty Expansion: Biden vowed to end the death penalty. A recent court filing suggests where he might start,” click here. For “Proposed BOP Rule Will Hurt Struggling Families,” click here. For “To avoid false confessions, Pennsylvania needs to mandate taped interrogations | Opinion,” click here. For “Is Bail Reform Causing an Increase in Crime? Bail reform isn’t increasing crime. At least not in Chicago, Houston, Philadelphia and New Jersey. ‘Neither violent nor nonviolent crimes or charges increased markedly immediately after jurisdictions implemented bail reform,’” click here. For “Data-Driven Decarceration: A close analysis of prison data can help us think strategically about the tradeoffs of different approaches to ending mass incarceration,” click here. For “Editorial: Three police killings in one week expose L.A.'s deadly response to mental health crisis,” click here. For “California says it will dismantle death row. The move brings cheers and anger,” click here. For “Police Killed 1,183 People in 2022. Despite a Viral Claim, That's Not a 'Record High.' Any unjustified killing by the government demands public attention. But fatal shootings by police used to be much more common,” click here. For “District attorney determines 'no basis' for criminal liability in Brieon Green jail death,” click here. For “Why So Many Jails Are in a ‘State of Complete Meltdown’: Overcrowding, violence and abuse proliferate at jails across the country, as staffing problems make long-simmering problems worse,” click here. For “The Graying of America’s Prisons: In a first-of-its-kind project, PJP contributors chronicle the now ubiquitous experience of growing old behind bars,” click here. For “Is Death by Incarceration the New Normal for Aging Prisoners? Thousands of older people occupy bed space in maximum security prisons, even though the recidivism rate for people older than 65 is close to zero,” click here. For “A New Beginning for Formerly Incarcerated Women,” click here. For “For the exonerated, compensation is a battle for stability and dignity,” click here. For “ ‘It’s Crushing’: The Lasting Trauma of the Exonerated: Proving your innocence is only part of the battle to put your life back together,” click here. For “Maine’s Prisons Taught Washington a Crucial Lesson in Fighting Opioids: Using drugs to treat addicts inside prison might just be the best way to stem the crisis of overdose deaths,” click here. For “Federal Prisons Were Told to Provide Addiction Medications. Instead, They Punish People Who Use Them. Congress directed the Bureau of Prisons to make Suboxone and other medications widely available, but only a small fraction of those who need the help have received it,” click here. For “Biden signs bill to ease costs for prisoner calls to family,” click here. For “Txas Cities Prioritize Police Over People: Fort Worth spends six times more on criminal justice than community services,” click here. For “Man died in Maricopa County jail after law enforcement used excessive force, family alleges,” click here. For “Notable ruling on meth sentencing guidelines by a notable federal sentencing judge,” click here. For “US, Massachusetts prison officials strike mental health deal,” click here. For “Bill forcing feds to fix prison cameras is signed into law,” click here

FROM PREVIOUS EDITIONS OF THE KEY UPDATE BUT STILL FRESH!

CONFERENCES, WEBINARS, AND TRAININGS

BHN/OMH to Host a Free, Four-Part (Virtual) Series on Understanding and Reducing Stigma This Winter

“Mental Health Stigma: What Is It? Who Does It Impact? How Do We Reduce It?” Behavioral Health News and the New York State Office of Mental Health will offer a four-part (virtual) roundtable series to discuss these questions, featuring people with lived experience, advocates, policy makers, mental health providers, community leaders, researchers, and media figures. The four 90-minute roundtables, each of which will begin at 2 p.m. ET, are “Understanding the Experience of Mental Health Stigma” (January 12); “The Experience of Mental Health Stigma among Diverse Groups” (January 26); “The Role of the Media in Reducing Stigma” (February 9); and “Paths to Reduce Stigma and Promote Positive Attitudes” (March 2). For details and to register for any or all of the free roundtables, click here.

“So You’re Ready to Work; Now What?”

Rebel Leadership Group LLC and CAFE TAC has launched a new, 12-part interactive employment training series! “This series will be recovery-centered and strengths-based, examining the process of finding, applying for, and succeeding in a job through the lens of recovery, helping attendees to identify strengths and skills, align the job-seeking and employment experience with their personal recovery path, and providing opportunity for discussion in a peer-centered space…Registering for any of the 12 sessions will automatically register you for all future sessions.” For details and to register, click here

“The Role of Peer Specialists in Promoting Health Equity”: A 5-Part Series

On January 19, 2023, at 1 p.m. ET, PENTAC will present the first 90-minute webinar in a five-part series; the topic will be “Understanding the Drivers of Health Inequities.” The rest of the series is scheduled for January 26 (“Racial Justice and the Mental Health Recovery Movement”), February 9 (“Helpers, Healers, and Jailers–Understanding the Difference”), February 16 (“Implementing a Framework for Culturally Relevant Peer Support Services”), and March 2 (“Putting All the Pieces Together: An Action Plan for Promoting Health Equity”). All of the 90-minute sessions will begin at 1 p.m. ET. To register for the first webinar (which will enroll you in all of the sessions), click here.

OPPORTUNITIES TO PARTICIPATE IN RESEARCH

Young Adults with Psychiatric Diagnoses Are Sought for Study on Community Participation

The Temple University Collaborative on Community Inclusion is recruiting young adults (ages 18-30) with a diagnosis of schizophrenia, bipolar disorder, or major depression to take part in ConnectionsRx, designed to support engagement in meaningful community activities. Participants will be enrolled in the peer-led study for six months, and receive support to help meet community participation goals. Interviews (approximately 60 minutes each) will take place on Zoom. Participants will receive a $15 Amazon gift card (to a maximum of $45) for each survey completed. For the website, click here. Questions? Write to ConnectionsRx@temple.edu. 

South Southwest MHTTC Launches Youth and Young Adult Peer Supporters Survey

“Are you a peer specialist who provides peer support to other people under the age of 30? We want to hear from you! Please fill out the survey to assist the South Southwest Mental Health Technology Transfer Center (South Southwest MHTTC) in learning more about youth peer support across the country! The intent is to be able to include these peer supporters in research, training, and technical assistance activities surrounding youth peer support. The form should take 5-10 minutes to fill out, and can be done from a phone or a computer browser. To take the survey, click here.” Questions? Write to southsouthwest@mhttcnetwork.org.

Are You Interested in Pursuing Graduate School and/or a Research Career? Read Below.

Stephania Hayes (UC Davis), Shannon Pagdon (Columbia/NYS Psychiatric Institute/University of Pittsburgh), and Nev Jones (University of Pittsburgh) write: “We are gathering information from people with lived experience in the Coordinated Specialty Care (CSC) or early psychosis space (including peer specialists, current/former CSC participants, and CSC youth coordinators) who are potentially interested in pursuing graduate school and/or a research career. All of us identify as having lived experience, work in CSC, and are invested in supporting the next generation of scholars who also have lived experience. We would like to create a discussion group and/or other supports for people interested in this career path. The link below leads to a very brief survey that will help us understand the level of interest in such supports, as well as areas of career interest. (Please note that this is not a research study.)” To participate in the anonymous survey, click here.

“Help Us Map the Landscape of Lived Experience and Family Involvement in 988 Policy and Related Crisis Response System Planning!”

“As 988 implementation rolls out alongside additional efforts to strengthen crisis response systems throughout the U.S., it's important to gauge the extent to which direct stakeholders (i.e., individuals who use or have used mental health crisis services and their families) have been involved in related policy, implementation and evaluation at the local, regional, state or federal levels. To map out involvement nationally, Mental Health America (lead: Kelly Davis), Nev Jones (University of Pittsburgh) and Keris Myrick (National Association of Peer Supporters) have developed a survey aimed at documenting the extent of stakeholder involvement, the forms this involvement has taken, and, where available, what concerns stakeholders have raised. Any individual with knowledge of lived experience and family involvement is eligible to participate; individuals completing the survey do not have to have lived experience themselves.” For more information and to access the survey, click here.

Survey Seeks Respondents Who Have Taken Mental Health Courses Involving Their Own Diagnoses

Have you taken a mental health course that covers a diagnosis you have? If so, you are invited to participate in a brief, anonymous, online survey--designed by a University of Pittsburgh MSW student--about what it's like for students with lived experience to study their own diagnoses in a classroom. The survey covers students' experiences of studying such subjects as "abnormal psychology," "psychopathology," and diagnosis and assessment when their own diagnoses are covered. "The goal of the project is to better understand what it feels like to take courses in which someone’s diagnosis is being taught/defined/discussed. There is currently no literature or reporting on the experiences of students in the above circumstances, or the associated impact." Interested? Please click here. Questions? Please email the project lead, Charlie Clement, at cjc204@pitt.edu

Peer Support in Higher Education Survey Seeks Respondents

“Peer support programs are growing on college campuses across the U.S. Mental Health America, Doors to Wellbeing, and the Temple University Collaborative on Community Inclusion want to better understand the availability of peer support in higher education as well as the experiences and needs of students accessing peer support programs…We hope to use this research to support the expansion of peer support in higher education, including developing a national database of peer support programs in higher education and documenting pressing issues in campus programs…You may also indicate if you are interested in having your school’s peer support program listed in a national database of peer support programs in higher education.” For more information and to complete the survey, click here

BU Seeks Peer Support Specialists for a Research Study

The Center for Psychiatric Rehabilitation at Boston University is developing and testing the effectiveness of a coaching service called Coaching and Advancement for Peer Providers (CAPP) “to increase organizational commitment and job satisfaction and decrease turnover among mental health peer providers.” BU CPR writes: “We need Peer Support Specialists (PSS) to participate in our study. Who can participate? People who are in a paid job as a Peer Support Specialist providing support to other people with mental health challenges, who are employed at least 10 hours per week, who have worked for the past six months in a mental health program, and who are experiencing stress because of challenges in the workplace. The study involves 16 one-hour sessions of coaching over a four-month period designed to help you with your job, meeting online (through Zoom, for example) with your coach, and filling out surveys one time before coaching starts and three additional times. You will have a 50/50 chance of getting a coach or having a one-time meeting to give you information about challenges at work. Benefits? You may learn strategies to help make work less stressful.” For more information, click here. For questions, contact Principal Investigator E. Sally Rogers, Sc.D., at erogers@bu.edu or 617-353-3549.

Supported Education Survey Needs Your Help

Do you operate a program that provides dedicated supported education services for individuals with psychiatric disabilities/mental health conditions? If so, you are invited to complete the survey at the link below. The primary goal of the survey is to help create a National Supported Education Database (NSEdD) that will be "a searchable listing of diverse supported education programs and services for individuals experiencing psychiatric disabilities and/or mental health challenges...across the US and its territories." The NSEdD project is sponsored by the Substance Abuse and Mental Health Services Administration (SAMHSA) and co-administered by the five SAMHSA-funded national consumer and consumer-supporter technical assistance centers, in collaboration with research partners Drs. Nev Jones (University of Pittsburgh) and Mark Salzer (Temple University). For a link to the survey, which includes a definition of supported education, click here. For a flyer with information about the survey, click here.    

National Survey on Student Rights, Discrimination, and Accommodations in Higher Education Seeks Respondents  

"Have you experienced psychiatric disability-based discrimination or the denial of an accommodation in a postsecondary institution in the United States? Interested in informing national advocacy focus on psych disability rights in higher ed? Mental Health America (lead: Kelly Davis) and collaborators Dr. Nev Jones (University of Pittsburgh), Stefanie Kaufman-Mthimkhulu (Project LETS) and Brit Vanneman Esq. (Bazelon Center for Mental Health Law) have developed "a survey aimed at providing a more comprehensive understanding of student experiences of campus-based discrimination, mandated leaves of absence, and/or denial of academic, administrative and/or student-work accommodations in the U.S. Data will be used to inform national advocacy efforts and future projects, and in reports, presentations and publications." For eligibility and to access the survey, click here.

If You've Had, or Been Labeled with, "Negative Symptoms" in the Context of Psychosis...

"If you have experienced or been labeled with 'negative symptoms' in the context of psychosis, please consider contributing an anonymous account of your views and experiences," Dr. Nev Jones writes. "Currently, there is nowhere one can go to find lived experience perspectives/accounts on this topic—even though 'negative symptoms' regularly feature in research and clinical trials. Help us change this!" This survey is a companion to Psychosis Outside the Box; for that survey, click here. For more information and/or to share your story about "negative symptoms," click here.

“Are You Between the Ages of 21 and 60 and Drink Alcohol?”

"Researchers at the National Institutes of Health (NIH) are seeking adults--[both smokers and non-smokers]--to study whether a gene and smoking may affect drinking alcohol. Volunteers should be healthy and drug-free, and not seeking treatment for alcohol-related problems. Research participation includes three outpatient visits at the NIH Clinical Center in Bethesda, MD; alcohol consumption; brain scans (MRI), blood draws, and filling out questionnaires. There is no cost to participate and compensation may be provided." For more information, click here. (Courtesy of Fran Hazam)

TU Collaborative Seeks Participants for Its Parenting Through Leisure Project; See Also the TU Collaborative's Parenting Resources, Including Information on Custody Issues

The Temple University Collaborative on Community Inclusion is seeking parents with lived experience of a mental health condition to participate in a paid research study. The TU Collaborative writes: "Our program, Parenting Through Leisure, focuses on helping parents with a serious mental illness participate in leisure activities with their child. We are looking for individuals who are 18 and older; are an adult parent with a diagnosis of schizophrenia-spectrum disorder, bipolar disorder, or depression; have a child who is 7 to 15 years old and is interested in participating in family leisure with you; have legal visitation rights, joint custody or full custody of the child, with at least weekly contact; and have a desire to engage in more leisure activities with their child." For details about the study and the remuneration as well as other benefits to eligible participants, and a link to sign up, click here. Questions? Please contact TUCollab@temple.edu. And for the TU Collaborative's Parenting web page--which includes links to many resources for parents with lived experience, including information about custody laws and a model family reunification statute--click here.

Survey Seeks Respondents Who Are in Administrative/Leadership Positions in the Mental Health Field

If you are in an administrative/leadership position in the mental health arena, “the Group for the Advancement of Psychiatry (GAP) Committee on Psychiatric Administration and Leadership invites you to participate in the International Survey on Administrative Psychiatry. The survey has two purposes: 1. To identify the concerns and needs of mental health professionals/psychiatrists in administrative and leadership positions. 2. To determine training needs in administrative psychiatry. We ask you to complete this brief, [15- to 20-minute] questionnaire to help us in developing recommendations for action. We also want to let you know that, if you fill out this questionnaire, you permit the committee to use your anonymous data for scientific work.” Peer providers are included. For the survey, click here. (Courtesy of Oryx Cohen)

International Survey on Antipsychotic Medication Withdrawal Seeks Respondents

“Have you taken antipsychotic medication (such as Zyprexa, Seroquel, Abilify, Risperdal, Haldol, Geodon, Stelazine, and others), for any condition or diagnosis, with or without other medications? And did you ever stop taking antipsychotics, or try to stop taking them? Are you 18 years or older? If yes, you can take this survey about antipsychotic withdrawal and attempts to withdraw, including if you stopped taking them completely or if you tried to come off and still take them. The survey aims to improve mental health services by better understanding medication withdrawal. Lead researcher is Will Hall, a therapist and Ph.D. student who has himself taken antipsychotics. Service users/survivors/consumers from around the world also gave input. The study is sponsored by Maastricht University in the Netherlands; co-sponsors include the International Institute for Psychiatric Drug Withdrawal. Questions? Please contact will.hall@maastrichtuniversity.nl.”  For more information or to take the survey, click on www.antipsychoticwithdrawalsurvey.com

OTHER OPPORTUNITIES AND RESOURCES

TU Collaborative Wants to Hear Your Story!

“We are working on a project to better understand social connections among adults with significant mental health challenges,” the Temple University Collaborative on Community Inclusion writes. “We are seeking your stories on your social connections generally” and “what those connections mean to you.” The TU Collaborative will compile these stories based on a series of brief surveys. For details and to share your story, click here.

Call for Papers: “Recovery at 30: Emancipation, cooptation, or the end of an era?”

“The year 2023 marks exactly three decades since the publication of Bill Anthony’s seminal “Recovery from mental illness: the guiding vision of the mental health service system in the 1990s" (click here)...”In this special issue of Community Mental Health Journal,” the editors write, “we are soliciting both concept pieces (commentaries, critical reviews) and empirical work (qualitative, quantitative, ethnographic or mixed methods) that explore the question of whether recovery policy remains relevant and emancipatory today or whether the psy-fields are instead in need of fresh thinking and new, more diverse values-based frameworks.” The submission deadline is September 1, 2023. For more information, click here.

Common Threads: Stories of Survival & Recovery from Mental Illness

Common Threads: Stories of Survival & Recovery from Mental Illness, a 108-page compendium, includes “tales of survival and recovery” by a number of Floridians. To quote from the Introduction, “Many of the people in these stories have lived significant portions of their lives in psychiatric institutions, and only through their strengths have they found their way back to the community…In these tales, we hear about the importance of education and peer support…” To download the free document, click here.

“Crisis Now” Offers a “Roadmap to Safe, Effective Crisis Care”

The goal of Crisis Now: Transforming Crisis Services—led by the National Association of State Mental Health Program Directors (NASMHPD) and developed with the National Action Alliance for Suicide Prevention, the National Suicide Prevention Lifeline, the National Council for Mental Wellbeing, and RI International—is “to provide all communities a roadmap to safe, effective crisis care that diverts people in distress from the emergency department and jail by developing a continuum of crisis care services that match people’s clinical needs.” Among the resources offered on the website are SAMHSA’s 80-page “National Guidelines for Behavioral Health Crisis Care Best Practice Toolkit” (2020), an “Overview of Crisis Funding Sources Available to States and Localities” (last updated March 2, 2022), and assessment tools, such as “How Does Your Crisis System Rate?” The Crisis Now partners write: “Are you interested in adding your organization to the list supporting Crisis Now, or do you have questions? Reach out to us at info@crisisnow.com. For the website, click here. (Courtesy of Kevin Fitts)

“What Is the Meaning of Life?” This Free Online Collection Offers Answers

Excellence Reporter offers more than “1,200 articles-interviews on ‘What Is the Meaning of Life?’ written by renowned spiritual leaders, mindfulness experts, great thinkers and authors, elders, artists, musicians, CEOs, etc.” The contributors include such renowned figures as Bertrand Russell; Carl Jung; the Dalai Lama; Eleanor Roosevelt; Epicurus; Erich Fromm; Kahlil Gibran; Buckminster Fuller; Robert Louis Stevenson; and Ron Bassman, executive director of MindFreedom International. To browse the free compendium, click here.

The UIC Center’s Solutions Suite for Health & Recovery Offers Free Tools

"The UIC Center offers tools, curricula, and implementation manuals for free use in community-based programs, peer-run programs, or one's own life. You can introduce the entire complement of products to foster improved health, wellness, and mental health recovery. Or, you can choose the ones that will work best for your program or your life. The Suite was developed in collaboration with Collaborative Support Programs of New Jersey. The UIC Center is funded by NIDILRR (National Institute on Disability, Independent Living, and Rehabilitation Research). For the UIC Solutions Suite for Health & Recovery, click here. (Courtesy of Peggy Swarbrick via Jacek Haciak)

U.S. Surgeon General Creates Community Toolkit for Addressing Health Misinformation

"The U.S. Surgeon General’s Community Toolkit for Addressing Health Misinformation, developed in collaboration with the HHS Office of Evaluation Sciences (OES), provides specific guidance and resources for health care providers, educators, librarians, faith leaders, and trusted community members to understand, identify, and stop the spread of health misinformation in their communities." For information about the toolkit (a 22-page overview of health misinformation, and resources to stop it), and links to a “Talk to Your Community About Health Misinformation” Infographic, a “Health Misinformation Checklist” Infographic, and the Surgeon General's press release, click here.

"Psychiatrist with Philosophical Interests" leads "Conversations in Critical Psychiatry," a Psychiatric Times Series

Awais Aftab, who describes himself as a "psychiatrist with philosophical interests" in his Twitter bio, leads "Conversations in Critical Psychiatry," which, he says, "explores critical and philosophical perspectives in psychiatry and engages with prominent commentators within and outside the profession who have made meaningful criticisms of the status quo." Among those interviewed are Allen Frances, M.D., author of Saving Normal; Sandra Steingard, M.D., and G. Scott Waterman, M.D., on "Integrating Academic Inquiry and Reformist Activism in Psychiatry"; Susannah Cahalan, author of Brain on Fire: My Month of Madness, on "50 Shades of Misdiagnosis"; Kathy Flaherty, J.D., executive director of the Connecticut Legal Rights Project, Inc., on "Reconsidering Care and Coercion in Psychiatry"; Nev Jones, Ph.D., on "Phenomenology, Power, Polarization, and the Discourse on Psychosis"; Dainius Puras, M.D., on "Global Psychiatry's Crisis of Values"; and many others. For the archived interviews, click here.

CNN Offers “A Guide to Helping and Getting Help During the Coronavirus Crisis”

CNN writes: “The coronavirus pandemic is overwhelming, and one of the most excruciating parts for many people is the feeling of utter helplessness in the face of widespread suffering and hardship. CNN’s Impact Your World has compiled a list of donation opportunities and tips to help those affected by the crisis. Click on a category or scroll down to browse a list of organizations, resources and ideas. Need help? Most categories also include resources for financial, emotional or social support.” For the free guide, click here.

U.S. DOL Releases Guidance on FMLA Leave and Mental Health

The U.S. Department of Labor’s newly issued Fact Sheet #280 about the Family and Medical Leave Act (FMLA) explains when eligible employees may take FMLA leave to address mental health conditions, and new Frequently Asked Questions (FAQs) offers additional information. (Although the FMLA covers public and private employers nationwide, only those private employers who have 50 or more employees for at least 20 workweeks in a year are required to provide their eligible employees with FMLA leave.) For details, click here.

Hearing Voices Network Is Now Hosting Online Groups

“There are now ONLINE opportunities to connect, share experiences, and find mutual support,” the Hearing Voices Network (HVN) writes. “These groups are accessible via web-based platforms and by phone…Online groups are specifically for those with personal lived experience with hearing voices, seeing visions, and/or negotiating alternative realities. They are voice-hearer facilitated. With further questions and for details on how to access the group[s], please email info@hearingvoicesusa.org.” To read this announcement online and for more information, click here.

Virtual Group Works to Advance Peer Research Capacity, Leadership, and Involvement

Nev Jones, PhD—a strong advocate for building research capacity, leadership, and involvement among peers, survivors, and service users—leads a virtual group dedicated to this effort. Dr. Jones—assistant professor, School of Social Work, University of Pittsburgh—was part of the team that developed “User/Survivor Leadership & Capacity Building in Research: White Paper on Promoting Engagement Practices in Peer Evaluation/Research (PEPPER),” published by the Lived Experience Research Network. For the white paper, click here. Anyone interested in joining the virtual group can email Nev at nev.inbox@gmail.com.

Mad In America Invites You to Submit Your Personal Story (Within Certain Guidelines)

Mad In America writes: “A ‘personal story’ is defined as your story of being in relationship to psychiatry and/or the mental health system, whatever that means to you. It might involve your opinions and analysis of what happened to you, as well. It can be about a specific event, or about your overall journey, provided it fits the length requirements (1,500 to 3,000 words) and has a narrative arc. The piece should be about your personal experiences, not psychiatry or the mental health system in general. Submissions should fall under the theme of rethinking psychiatry and the mental health system, and should be original works not previously published elsewhere. For examples of the types of stories we publish, view our personal stories archive here.” For more information and/or to submit a personal story, click here.

Seven Ways to Keep a Digital Copy of Your Vaccination Card on Your Smartphone

“You'll need proof of vaccination to go back to work or enter many restaurants, gyms and event venues, so keep your COVID-19 card handy.” This is the advice of CNET.com, a tech support website. Besides the obvious—taking a photo of the card to store on your phone—there are six other suggestions. For details, click here. (Courtesy of Yvonne Smith)

ISPS-US Offers an Array of Archived Webinars—Free but Donations Are Welcomed

The ISPS-US (The International Society for Psychological and Social Approaches to Psychosis-US Chapter) is offering a whole raft of archived webinars, which are free (although donations are welcomed). Among the webinars are "Cognitive Behavioral & Related Therapies for Psychosis: Diverse Approaches to Supporting Recovery," "How Can the Uncontainable Be Contained? Paradoxes of Madness & Philosophy," "Robert Whitaker: The Rising Non-Pharmaceutical Paradigm for 'Psychosis,'" "Life with Voices: A Guide for Harmony," "COPE Project: Non-Pharmaceutical Research on Influencing Voices and Visions," "What Hurts and What Helps In Treatment For 'Psychosis': Insider Perspectives," and many others. For more information and to access the webinars, click here.

“Where DNA and Medications Meet”

Not all drugs are effective for all people; therapeutic response rates for many drugs are only 50%-75%. “OneOme, co-founded by [the] Mayo Clinic, provides evidence-based pharmacogenomic solutions that help improve patient outcomes and reduce costs through more personalized medication decisions.” OneOme’s RightMed Test is “a doctor-ordered pharmacogenomic (PGx) test that analyzes your DNA and provides your doctors with genetic information to help them determine how you may respond to certain medications. The results may help your doctors reduce medication trial and error, minimize risk of side effects, save you time and money, and make more informed prescribing decisions. Because your DNA doesn’t change over time, your doctors can use your test results to make more personalized medication decisions for you over the course of your lifetime.” For more information, click here. (Courtesy of Robin Osborne)

Doors to Wellbeing Offers “State Selfies: A Picture of Peer Services Reported by Peers”

Doors to Wellbeing’s “Peer Album” is a directory of nearly 600 peer-run organizations throughout the U.S. They invite updates and offer instructions for providing them and add, “If your entry has not made this first draft, we encourage you to re-submit.” For the 158-page directory, click here.

Disclaimer: The Clearinghouse does not necessarily endorse the opinions and opportunities included in the Key Update.

About the Key Update

The National Mental Health Consumers’ Self-Help Clearinghouse is affiliated with the Temple University Collaborative on Community Inclusion. The Key Update is the free monthly e-newsletter of the National Mental Health Consumers’ Self-Help Clearinghouse. Volume 19, No. 8, February 2023. For content, reproduction or publication information, please contact Susan Rogers at selfhelpclearinghouse@gmail.com. Follow Susan on Twitter at @SusanRogersMH












Key Update, January 2023, Volume 19, Number 7

The National Mental Health Consumers’ Self-Help Clearinghouse is affiliated with the Temple University Collaborative on Community Inclusion.

TO CONTACT: THE CLEARINGHOUSE: SELFHELPCLEARINGHOUSE@GMAIL.COM  … SUSAN ROGERS: SUSAN.ROGERS.ADVOCACY@GMAIL.COM … JOSEPH ROGERS: JROGERS08034@GMAIL.COM 

THE KEY UPDATE IS COMPILED, WRITTEN, AND EDITED BY SUSAN ROGERS, DIRECTOR, NATIONAL MENTAL HEALTH CONSUMERS’ SELF-HELP CLEARINGHOUSE.

NOTE: THE "FROM PREVIOUS EDITIONS OF THE KEY UPDATE BUT STILL FRESH!" DEPARTMENT, WHICH IS DIRECTLY BELOW THE MONTHLY CRIMINAL LEGAL SYSTEM DIGEST, INCLUDES ITEMS THAT HAD BEEN POSTED "ABOVE THE FOLD" IN EARLIER EDITIONS BUT ARE STILL RELEVANT. THESE INCLUDE ONGOING RESEARCH STUDIES THAT ARE STILL SEEKING PARTICIPANTS, AS WELL AS UPCOMING WEBINARS AND CONFERENCES, AND OTHER ITEMS OF CONTINUED INTEREST. DON'T MISS IT!

***

NEWS

“Mental Health Care is Broken. Is Police Hospitalizing More People the Answer?”

“In New York City and other areas across the country, some leaders are pushing to forcefully commit more people,” the Marshall Project reports. The New York City plan is especially controversial: It involves giving police officers’ the task of deciding whether unhoused people are unable to care for themselves, despite the fact that “encounters between officers and people in crisis can easily escalate, and end in use of force, criminal charges, or even death.” In addition, locking people up against their will is traumatizing; and studies have shown that “in the week following discharge from a psychiatric hospital, people are at a dramatically high risk for suicide.” Instead, cities should invest in community-based services and supports, such as Housing First and peer-run crisis respites. For “Rethinking How Law Enforcement Is Deployed: Many major cities no longer rely solely on police to address social issues and traffic violations,” click here. For the Marshall Project story, click here. To sign a petition addressed to Mayor Adams of New York City to “Stop the Expansion of Involuntary Removal for People Living with Serious Mental Illness,” click here.

Death of Beloved Movement Leader Celia Brown Inspires Heartfelt Tributes; Her Final Presentation Was a Keynote on How “Peer Support Facilitates Change” 

When Celia Brown, board president of MindFreedom International and a founder of Surviving Race: The intersection of Disability, Injustice and Human Rights, died of cancer on December 11, 2022, many of her numerous friends and colleagues posted loving memories of her. NYAPRS CEO Harvey Rosenthal wrote: “Celia was and will always be one of our movement’s most cherished and most influential leaders....” Taina Laing, CEO, Baltic Street AEH, wrote: “Celia was a pioneer and what we call a Mother of The Movement.” PsychRights.org founder and author of The Zyprexa Papers Jim Gottstein, quoted in Mad In America, noted Celia’s instrumental role in the passage of the UN’s Convention on the Rights of Persons with Disabilities, and wrote: “There have been an immense number of accolades for Celia Brown on her passing, all deserved and none hyped.” “...it’s hard to overstate the impact she had and the void she is leaving behind,” wrote psychiatrist and activist Peter Stastny. For NYAPRS’s “In Honor and Remembrance of Celia Brown,” click here. For the Mad In America tribute, click here. For Celia’s final presentation, a keynote entitled “Peer Support Facilitates Change,” at the 2022 ISPS-US conference on November 5, 2022, click here

Flaws, Bias, and Deception Affect the Approval Process for Drugs and Other Medical Interventions

The approval process for drugs and other medical interventions is flawed due to reporting bias and Broad Medical Uncertainty (BMU) as well as “image manipulation,” according to three 2022 articles, and a fourth study, from 2016. In “Selective publication of antidepressant trials and its influence on apparent efficacy…,” published by PLOS Medicine, the authors note that the published literature has “inflated the apparent efficacy of antidepressant drugs.” They conclude that “[r]eporting bias persists but appears to have diminished for newer, compared to older, antidepressants.” In “Broad Medical Uncertainty and the Ethical Obligation for Openness,” British researchers argue that “flaws in medical research methodologies, bias in publication practices, financial and other conflicts of interest, and features of how evidence is translated into practice” have resulted in “ ‘Broad Medical Uncertainty’ (BMU) regarding the effectiveness of many medical interventions.” And in “Image manipulation in science is suddenly in the news. But these cases are hardly rare,” published by STAT, the authors write, “Thanks to Photoshop, researchers could prettify the images in their manuscripts in ways that might cross the line into deception in an effort to clear the bar of peer review,” and that “[a] retraction for image manipulation happens about once every other day…” For the PLOS Medicine article, click here. For the BMU paper, published by Springer, click here. For the STAT article (Courtesy of Berta Britz), click here. And for “Antidepressants 'likely increase suicides in all ages' and manufacturers underreport side effects: Study” (2016), click here.

Birdwatching Is Good for Your Mental Health

British researchers used the “Urban Mind smartphone application to examine the impact of seeing or hearing birds on self-reported mental well-being in real-life contexts” on 1,292 participants between April 2018 and October 2021. They reported that “everyday encounters with birdlife were associated with time-lasting improvements in mental well-being. These improvements were evident not only in healthy people but also in those with a diagnosis of depression…” For a Nice News article about the study, published in Scientific Reports, click here.

TRAININGS, WEBINARS, AND CONFERENCES

BHN/OMH to Host a Free, Four-Part (Virtual) Series on Understanding and Reducing Stigma This Winter

“Mental Health Stigma: What Is It? Who Does It Impact? How Do We Reduce It?” Behavioral Health News and the New York State Office of Mental Health will offer a four-part (virtual) roundtable series to discuss these questions, featuring people with lived experience, advocates, policy makers, mental health providers, community leaders, researchers, and media figures. The four 90-minute roundtables, each of which will begin at 2 p.m. ET, are “Understanding the Experience of Mental Health Stigma” (January 12); “The Experience of Mental Health Stigma among Diverse Groups” (January 26); “The Role of the Media in Reducing Stigma” (February 9); and “Paths to Reduce Stigma and Promote Positive Attitudes” (March 2). For details and to register for any or all of the free roundtables, click here.

HUG ME Ink Seeks Planning Committee Members for 2024 Peer-A-Palooza

HUG ME Ink will be hosting its 2nd Annual Peer-A-Palooza Peer Summit in 2024, and is seeking members for the Planning Committee. “If you're interested in being on the Planning Committee for the 2024 PEER-A-PALOOZA, please fill out the application HERE. The deadline to apply is January 7, 2023, at 11:59 p.m. CST.” For information about the 2022 Peer-A-Palooza, click here.

MHA Issues Call for Proposals for its Annual Conference: Deadline January 9

The theme of Mental Health America’s annual conference, to be held June 6-10, 2023, in Washington, DC, and online, is Next Gen Prevention. Workshop proposals are due by January 9; Affiliate Day proposals are due by January 13. For details and to apply, click here.

“The Role of Peer Specialists in Promoting Health Equity”: A 5-Part Series

On January 19, 2023, at 1 p.m. ET, PENTAC will present the first 90-minute webinar in a five-part series; the topic will be “Understanding the Drivers of Health Inequities.” The rest of the series is scheduled for January 26 (“Racial Justice and the Mental Health Recovery Movement”), February 9 (“Helpers, Healers, and Jailers–Understanding the Difference”), February 16 (“Implementing a Framework for Culturally Relevant Peer Support Services”), and March 2 (“Putting All the Pieces Together: An Action Plan for Promoting Health Equity”). All of the 90-minute sessions will begin at 1 p.m. ET. To register for the first webinar (which will enroll you in all of the sessions), click here.

Beyond the Bars Conference 2023 Issues Request for Proposals: Deadline, January 20

Columbia University’s Center for Justice has issued a Request for Proposals (RFP) for its 2023 Beyond the Bars conference, to be held March 24-26, 2023. “This year's conference theme is Seeding Justice, exploring the ways in which movements for justice cultivate healing, accountability and transformation, for people and communities, as well as to hold harmful carceral systems to account.” For details about the conference, to be held at the Columbia University School of Social Work in New York City, and/or to submit a proposal, click here. The deadline is January 20 at 11:59 p.m. ET.

2023 Conference on Critical Psychiatry Issues Call for (Blogpost) Proposals

Vanderbilt University’s (Virtual/Hybrid) Conference on Critical Psychiatry (CCP), April 1-2, 2023, welcomes blogposts to be shared on the CCP website. Deadline: February 3, 2023 at 11:59PM CST. CCP writes that the conference will be “led by students + academics + practitioners + activists mostly from the US; we want to form a unified front of critiques.” The conference theme is Pluralism in Anti-oppressive Praxis. For more about the conference, click here. For details and to submit a proposal, click here.

Free Trainings Are Offered by Crestwood Behavioral Health Recovery Resilience Solutions 

“Recovery Resilience Solutions offers a wide range of peer, recovery, resilience and wellness trainings, products and events.” These include “Terms of Enpeerment,” a free 90-minute workshop which “will help your team, organization, and/or system fully embrace inclusion of peer support specialists to increase recovery outcomes”; “Building Bounce Back Families,” “a free 90-minute fun, engaging, and highly interactive workshop to provide participants with concrete tools and a process to build and strengthen resilient family relationships”; and “40 Days to a Resilient Journey of Meaning and Purpose,” accompanied by a “Next 40 Days Flight Packet.” For details about these and other trainings, some of which are California-specific, and to register, click here.

Introduction to Advocacy for Youth and Young Adults: Free National Virtual Workshop

PENTAC (Peer Experience National Technical Assistance Center) is presenting a free two-part workshop on “Introduction to Advocacy for Youth and Young Adults.” In Part 1, on January 25, 2023, 6:30 p.m.-8:00 p.m. ET, youth and young adults will explore advocacy topics to help them learn how to determine their needs, speak up to communicate, and ask for the help they need. In Part 2, March 22, 2023, 6:30 p.m.-8:00 p.m. ET, they will also learn the basics of being able to mentor others. Exclusive to individuals 12+; minors must have the permission of a caregiver. For details and to register for the January 25 workshop, click here. (Registration for the March 22 workshop will be available later.)

“How to Live and Work with Differing Perspectives” Is the Next Doors to Wellbeing Webinar

Doors to Wellbeing will present the next webinar in its monthly series on January 31, 2023, at 2 p.m. ET. Doors to Wellbeing writes: “Wellness and recovery are self-directed and can take many different paths. However, as peer supporters, we may feel conflicts with those perspectives. This webinar will explore strategies and skills to help us navigate differing perspectives, our own judgements, and support us to meet people where they are at.” For details and to register, click here.

“The Potential Contribution of User/Survivor-led Research and Open Dialogue to PPI [Patient and Public Involvement] Research Capacity”

INTAR (International Network Towards Alternatives and Rights-Based Supports) is offering three archived webinars, held in October and November 2022, that focus on user-led research in the context of mental health. The three are “Dialogue between established Peer Leaders in the mental health field,” “Owning our Own Destiny: Survivor/Service User Research & the Implications for PPI,” and “Open Dialogue Approaches to Public/Citizen Engagement in Research–doubling roles and moving forward.” For details and to view the webinars, click here

RESEARCH STUDIES

“Boundary Ethics in Peer Support: A Case Study”

In “Boundary Ethics in Peer Support: A Case Study,” the author, who has lived experience and a “side gig” as a peer supporter, writes: “Despite the rising prominence of peer support, little literature has explored ethics in the provision of care between people with mental illness. Drawing on a case narrative from a larger empirical study on peer support in the United States, this paper will reflect on boundary ethics: that is, the physical, emotional, and social parameters that people engaged in peer support set in relationships with one another.” For the article, published in the Journal of Ethics in Mental Health, click here.

“Perspectives from Voice-hearers and Their Voices on the ‘Talking with Voices’ Approach”

Talking with Voices (TwV) "is based on an understanding of voice-hearing as a relational phenomenon, often linked to trauma. Therapy involves facilitation of dialogical engagement between hearers and their voices…The current study explored experiences of the TwV approach from the perspectives of voice-hearers and also of their voices. Ten qualitative interviews were subjected to Interpretative Phenomenological Analysis.” For “ ‘It allowed us to let our pain out’: perspectives from voice-hearers and their voices on the ‘talking with voices’ approach,” click here.

RESOURCES

“A Selected Compendium of Mental Health Programs, Initiatives, and Resources on College Campuses”

The Temple University Collaborative on Community Inclusion has published the 55-page “Selected Compendium of Mental Health Programs, Initiatives, and Resources on College Campuses.” The author writes, “This document will highlight both the unique innovative efforts and common health promotion efforts on college campuses that assist students in maximizing their mental health and academic success.” To download the free document, click here.

Cafe TA Center Newsletter Focuses on Disaster Preparedness

“Mental Health and Natural Disasters: Including Your Disaster Plan in Your Recovery Plan” is the Page 1 headline of Focus 2.0, the newsletter of the Cafe TA Center.  “Natural disasters can be traumatizing experiences that create real challenges for people in recovery from serious mental health conditions. The good news is that by making disaster prep part of your personal recovery plan, you can make sure you’re ready for whatever comes your way!” For the newsletter, click here.

International Mad Studies Journal Is Launched

Volume 1, Number 1, of the International Mad Studies Journal has been published, and is available online for free! It was founded by a psychiatric survivor in Australia “in the context of working in academia and seeing the challenges of producing alternative knowledges and ideas in mental health,” according to the Introduction. Together with “like-minded people” with lived experience as well as allies, they “wanted to challenge the dominance of traditional mental health discourse, both inside and outside the academy.” To read the Journal, click here.

Global Mental Health Peer Network Offers Many Free Resources

The Global Mental Health Peer Network offers numerous free resources “from lived experience perspectives and our collective expertise in various areas of mental health.” Among the podcasts are “A Story of Living and Thriving with Schizophrenia” and “Supporting My Mother with Her Mental Illness.” Among the free academic publications are “Testifying after an Investigation: Shaping the Mental Health of Public Safety Personnel,” “Mental Health and the City in th Post-Covid-19 Era,” and “Rights-based Mental Health Care.” For the resources, click here.

“The Politics of Service User Labour” is a Zine about the Politics of Peer Support Employment

“ ‘The Politics of Service User Labour’ talks about issues that concern service users/survivors who perform different kinds of labour (paid and unpaid) in the mental health sector…Though there have been improvements in employment and inclusion opportunities over the years, problems remain. We still need to work together to advance working conditions, wages, and benefits for service users/survivors.” For the 19-page zine, click here. (Courtesy of Ann Kasper and Karen Machin)

Disability Visibility Project Creates, Shares, and Amplifies Disability Media and Culture

“The Disability Visibility Project (DVP) is an online community dedicated to creating, sharing, and amplifying disability media and culture." Among its many activities, DVP “publishes original essays, reports, and blog posts about ableism, intersectionality, culture, media, and politics from the perspective of disabled people; builds online spaces for people to share and connect; champions disability culture and history; organizes and facilitates events, gives presentations, participates on panels; supports and amplifies the work of other disabled people and organizations in the community using social media; and partners and collaborates with other activists and organizations in various campaigns such as #CripTheVote, #CripLit, Access Is Love, and DisabledWriters.com." For the DVP website, click here.

“Therapeutic Drama Therapy Opens the Door to Healing Through Performance”

A recent article in Yes! Solutions Journalism reports on the positive impact of psychodrama, “a method of drama therapy in which the client dramatizes an inner wound or conflict by casting the rest of the group as characters in their story. The North American Drama Therapy Association describes drama therapy as an embodied, experiential practice that invites ‘participants to tell their stories, set goals and solve problems, express feelings, or achieve catharsis.’ Other methods include improvisation, masks, puppetry, and writing plays or poetry.” For the article, click here. (Courtesy of Kevin Fitts)

The January 2023 Digest of Articles Offering Healthy Lifestyle Advice

For “Small Steps to Improve Your Mental Health in 2023: Well’s most popular mental health stories of 2022 are full of insights and guidance to usher you into the new year,” click here. FOR “14 Steps to a Healthy Lifestyle,” click here. For “Need to Defuse Family Squabbles? Learn From an FBI Crisis Negotiator,” click here. For “Why Does My Sleep Become Worse as I Age?” click here.

The January 2023 Digest of Articles about the Criminal Legal System, in Which Many Individuals with Mental Health Conditions Are Incarcerated (and the Key Update continues after this Digest)

For “Jail Is a Death Sentence for a Growing Number of Americans: In Houston’s jail, where the population is at its highest in a decade, 24 people have died this year. More than half had a history of mental problems,” click here. For “Why So Many Jails Are in a ‘State of Complete Meltdown’: Overcrowding, violence and abuse proliferate at jails across the country, as staffing problems make long-simmering problems worse,” click here. For “Sentenced to Trauma: Inside the volatility and disorder of prison: ‘I have been in the penal system since 2004. I have been changed, but not for the better,’” click here. For “The Death of Daniel Prude and the Birth of a Thousand Lies,” click here. For “The Wyoming Honor Farm: Where Prisoners Learn to Train Wild Horses,” click here. For “As Police Arrest More Seniors, Those With Dementia Face Deadly Consequences: Many cities are changing how they respond to mental health calls, but less attention has been paid to the unique risks for people with Alzheimer’s and other brain diseases,” click here. For “The Crime Spike Is No Mystery: By zooming out and looking at the big picture, the question of what causes violence becomes quite answerable. Producing a sustained reduction in violence may not be possible without addressing extreme, persistent segregation by race, ethnicity and income,” click here. For “The Search for Beauty in a Prison Cell: ‘People don’t understand how many of us sought to become more than our crimes or how many of us starved for lack of a conduit to the dignity that we sought,’ writes Reginald Dwayne Betts,” click here. For “What You Need to Know About the Rise in U.S. Mass Shootings,” click here. For “Why states should change Medicaid rules to cover people leaving prison: People leaving prison have sky-high mortality rates. Most are likely Medicaid-eligible. Making sure they are covered upon release from prison would save lives and reduce recidivism,” click here. For “Eleanor Jackson Piel, Lawyer Who Fought Capital Convictions, Dies at 102,” click here. For “Troubled south Mississippi man becomes another casualty in rising number of jail suicides: People battling mental illness in Mississippi jails spend an average of 555 days in custody before a judge orders they be evaluated to determine whether they are mentally competent to stand trial. It then takes an average of another 191 days to process someone through their competency hearing,” click here. For “As fatal police shootings increase, more go unreported: Flawed FBI data has left thousands of deaths uncounted and complicates efforts to hold troubled police departments accountable,” click here. For “The Year in Books: As 2022 draws to a close, we reflect on books that informed, inspired, and empowered us to envision a world without mass incarceration,” click here. For “News Inside: Welcome to our award-winning print publication, circulating free of charge in hundreds of prisons and jails across the United States. To request a subscription for an incarcerated person, please fill out this registration form. Contact us at newsinside@themarshallproject.org with any questions.” For more information about News Inside and links to the previous issues, click here. For “Hugh Ryan on the Urgency of Prison Abolition: ‘Let’s tear down these monstrous warehouses of human misery,’” click here. For “Federal Prisons Were Told to Provide Addiction Medications. Instead, They Punish People Who Use Them. Congress directed the Bureau of Prisons to make Suboxone and other medications widely available, but only a small fraction of those who need the help have received it,” click here. For “Why Youth Incarceration Fails: An Updated Review of the Evidence” (34 pages), click here. For “Bars and Barriers: Far from a decarceral plan, 'Barred' is nonetheless a trenchant look at how the criminal system fails the innocent and guilty alike,” click here. For “Study: Federal magistrates, prosecutors misunderstand bail law, jailing people who should go free: Despite the study, the Administrative Office of the U.S. Courts says the federal judiciary has worked hard to make sure defendants aren't detained ‘unless the law identifies a specific need to protect the public,’" click here. For “Senate Investigation Finds Federal Prisons Fail to Prevent or Investigate Rapes: Long delays and management failures ‘allowed serious, repeated sexual abuse in at least four facilities to go undetected,’” click here. For “The United States Is Crime Sick. Health Care Is the Cure. Politicians on both sides of the aisle spent the midterms telling us that more police and prisons will make us safer. Voters didn’t bite—and perhaps they know better,” click here. For “Experience the Great Outdoors From Prison: Incarcerated men and women watch nature videos on loop in a mental health program,” click here. For “The Books Banned in Your State’s Prisons,” click here. For “Prisoners in 2021: Statistical Tables,” by the Bureau of Justice Statistics, click here. For “ ‘Suicide by Cop’: How Police Present Killings as Unavoidable,” click here. For “Some of Our Best Work of 2022: From coverage of prison violence and abuses in a juvenile lockup to investigations by our new Cleveland team, our reporters told stories that made a difference,” by the Marshall Project, click here.

FROM PREVIOUS EDITIONS OF THE KEY UPDATE BUT STILL FRESH!

CONFERENCES, WEBINARS, AND TRAININGS

“So You’re Ready to Work; Now What?”

Rebel Leadership Group LLC and CAFE TAC has launched a new, 12-part interactive employment training series! “This series will be recovery-centered and strengths-based, examining the process of finding, applying for, and succeeding in a job through the lens of recovery, helping attendees to identify strengths and skills, align the job-seeking and employment experience with their personal recovery path, and providing opportunity for discussion in a peer-centered space…Registering for any of the 12 sessions will automatically register you for all future sessions.” For details and to register, click here

Rutgers University Sponsors Free Wellness Self-Care Program for Service Providers

The Wellness Training Learning Collaborative of the Rutgers Center of Alcohol and Substance Use Studies Is sponsoring a series of free wellness trainings, designed as stand-alone sessions, for health care professionals. They write: “Join us to engage in a series of interactive sessions to empower [health care] professionals to practice simple self-care strategies to stay well. Learn how to build these wellness self-care habits into day-to-day life.” The upcoming sessions are on Jan. 19 and Jan. 26, 2023. For descriptions and to register for one or both of the sessions, whose times vary, click here and scroll down to page 5. (Although the times say EDT, EST began on Nov. 6.)

NASMHPD’s 2014 Webinar Series on Trauma-Informed Peer Support Is Still Relevant“

SAMHSA’s National Center for Trauma-Informed Care (NCTIC) hosted a series of three 75-minute webinars in September 2014 that introduced key concepts in NCTIC’s day-long Trauma-Informed Peer Support (TIPS) training. Peer support providers are the primary audience. For more information and to listen to the recordings and download the PowerPoint slides, click here.

PsychAlive Offers a Variety of Webinars on Mental Health Topics, Many Free, Others $15

PsychAlive is a free, nonprofit resource created by the Glendon Association, whose mission is “to save lives and enhance mental health by addressing the social problems of suicide, violence, child abuse and troubled interpersonal relationships.” Psychalive.org offers a variety of upcoming and archived webinars, many of which are free, while others are available for $15. Among the myriad topics are “From Anxiety to Action: How to Stay Sane While Fighting Climate Change,” “How to Overcome Insecurity,” “Powerful Tools to Fight Depression,” and “Understanding and Overcoming Adverse Childhood Experiences.” To check out the webinars, click here.

Learning Collaborative Webinar Series Offers Several Archived Presentations 

The Doors to Wellbeing website offers a number of webinars that you may find of interest: “The Importance of Policies and Procedures in Peer-run Organizations”; “Building Partnerships to Enhance the Peer Workforce,” by Kyneta Lee, Tim Saubers, and Todd Noack; “Handing Over the Keys: Leadership Succession Planning in Non-Profit Organizations,” by Elise Padilla and Maxine Henry; “How to Embed Strategic Planning into the Culture of Your Organization,” by Oryx Cohen; “Fundraising and Sustainability: Building your Organization by Telling the Right Story to the Right Audience”; “Developing a Board of Directors for Mental Health Organizations,” by Amey Dettmer and Matthew Federici; and “Conflict Management in Peer-Run Organizations: Tools for Effective Conversations.” Certificates of attendance are not available for any of these presentations. For more information and to register for any or all of them, click here

National Safety Council Offers a Free Webinar Series Focusing on Mental Health in the Workplace

"The impact of the COVID-19 pandemic will affect employees well beyond the initial crisis," the National Safety Council writes. "Employers have a unique ability and responsibility to address the mental health and wellbeing of their workers, which is a true organization-wide effort. This free Mental Health Webinar Series led by the National Safety Council, and first presented in August 2020, speaks to a variety of positions within an organization and how each one can address stress and mental health." Four of the five webinars are titled: "Supporting Employee Mental Health" and respectively subtitled "Resources for Employees," "Actions for Leadership," "Actions for Supervisors," and "Actions for HR Professionals." To view the free, archived webinars, click here.

OPPORTUNITIES TO PARTICIPATE IN RESEARCH

Telehealth Research Study for Behavioral Health Services Providers

The Great Lakes MHTTC is seeking participants for their research study on the use of virtual behavioral health services and its benefits and challenges…If you choose to be in this voluntary study, please complete this 10-minute survey developed by the Great Lakes MHTTC to gain a better understanding of a) how telehealth is being used by behavioral health services providers, b) its benefits, c) its challenges, and d) projected use in the future. You can receive a copy of the survey results by including your email at the end of the survey. The survey results will also be available on the Great Lakes MHTTC website. Note: This survey is open to the public, regardless of location.” Take the survey here. Questions? todd.molfenter@wisc.edu

Young Adults with Psychiatric Diagnoses Are Sought for Study on Community Participation

The Temple University Collaborative on Community Inclusion is recruiting young adults (ages 18-30) with a diagnosis of schizophrenia, bipolar disorder, or major depression to take part in ConnectionsRx, designed to support engagement in meaningful community activities. Participants will be enrolled in the peer-led study for six months, and receive support to help meet community participation goals. Interviews (approximately 60 minutes each) will take place on Zoom. Participants will receive a $15 Amazon gift card (to a maximum of $45) for each survey completed. For the website, click here. Questions? Write to ConnectionsRx@temple.edu. 

South Southwest MHTTC Launches Youth and Young Adult Peer Supporters Survey

“Are you a peer specialist who provides peer support to other people under the age of 30? We want to hear from you! Please fill out the survey to assist the South Southwest Mental Health Technology Transfer Center (South Southwest MHTTC) in learning more about youth peer support across the country! The intent is to be able to include these peer supporters in research, training, and technical assistance activities surrounding youth peer support. The form should take 5-10 minutes to fill out, and can be done from a phone or a computer browser. To take the survey, click here.” Questions? Write to southsouthwest@mhttcnetwork.org.

Are You Interested in Pursuing Graduate School and/or a Research Career? Read Below.

Stephania Hayes (UC Davis), Shannon Pagdon (Columbia/NYS Psychiatric Institute/University of Pittsburgh), and Nev Jones (University of Pittsburgh) write: “We are gathering information from people with lived experience in the Coordinated Specialty Care (CSC) or early psychosis space (including peer specialists, current/former CSC participants, and CSC youth coordinators) who are potentially interested in pursuing graduate school and/or a research career. All of us identify as having lived experience, work in CSC, and are invested in supporting the next generation of scholars who also have lived experience. We would like to create a discussion group and/or other supports for people interested in this career path. The link below leads to a very brief survey that will help us understand the level of interest in such supports, as well as areas of career interest. (Please note that this is not a research study.)” To participate in the anonymous survey, click here.

“Help Us Map the Landscape of Lived Experience and Family Involvement in 988 Policy and Related Crisis Response System Planning!”

“As 988 implementation rolls out alongside additional efforts to strengthen crisis response systems throughout the U.S., it's important to gauge the extent to which direct stakeholders (i.e., individuals who use or have used mental health crisis services and their families) have been involved in related policy, implementation and evaluation at the local, regional, state or federal levels. To map out involvement nationally, Mental Health America (lead: Kelly Davis), Nev Jones (University of Pittsburgh) and Keris Myrick (National Association of Peer Supporters) have developed a survey aimed at documenting the extent of stakeholder involvement, the forms this involvement has taken, and, where available, what concerns stakeholders have raised. Any individual with knowledge of lived experience and family involvement is eligible to participate; individuals completing the survey do not have to have lived experience themselves.” For more information and to access the survey, click here.

Survey Seeks Respondents Who Have Taken Mental Health Courses Involving Their Own Diagnoses

Have you taken a mental health course that covers a diagnosis you have? If so, you are invited to participate in a brief, anonymous, online survey--designed by a University of Pittsburgh MSW student--about what it's like for students with lived experience to study their own diagnoses in a classroom. The survey covers students' experiences of studying such subjects as "abnormal psychology," "psychopathology," and diagnosis and assessment when their own diagnoses are covered. "The goal of the project is to better understand what it feels like to take courses in which someone’s diagnosis is being taught/defined/discussed. There is currently no literature or reporting on the experiences of students in the above circumstances, or the associated impact." Interested? Please click here. Questions? Please email the project lead, Charlie Clement, at cjc204@pitt.edu

Peer Support in Higher Education Survey Seeks Respondents

“Peer support programs are growing on college campuses across the U.S. Mental Health America, Doors to Wellbeing, and the Temple University Collaborative on Community Inclusion want to better understand the availability of peer support in higher education as well as the experiences and needs of students accessing peer support programs…We hope to use this research to support the expansion of peer support in higher education, including developing a national database of peer support programs in higher education and documenting pressing issues in campus programs…You may also indicate if you are interested in having your school’s peer support program listed in a national database of peer support programs in higher education.” For more information and to complete the survey, click here

BU Seeks Peer Support Specialists for a Research Study

The Center for Psychiatric Rehabilitation at Boston University is developing and testing the effectiveness of a coaching service called Coaching and Advancement for Peer Providers (CAPP) “to increase organizational commitment and job satisfaction and decrease turnover among mental health peer providers.” BU CPR writes: “We need Peer Support Specialists (PSS) to participate in our study. Who can participate? People who are in a paid job as a Peer Support Specialist providing support to other people with mental health challenges, who are employed at least 10 hours per week, who have worked for the past six months in a mental health program, and who are experiencing stress because of challenges in the workplace. The study involves 16 one-hour sessions of coaching over a four-month period designed to help you with your job, meeting online (through Zoom, for example) with your coach, and filling out surveys one time before coaching starts and three additional times. You will have a 50/50 chance of getting a coach or having a one-time meeting to give you information about challenges at work. Benefits? You may learn strategies to help make work less stressful.” For more information, click here. For questions, contact Principal Investigator E. Sally Rogers, Sc.D., at erogers@bu.edu or 617-353-3549.

Supported Education Survey Needs Your Help

Do you operate a program that provides dedicated supported education services for individuals with psychiatric disabilities/mental health conditions? If so, you are invited to complete the survey at the link below. The primary goal of the survey is to help create a National Supported Education Database (NSEdD) that will be "a searchable listing of diverse supported education programs and services for individuals experiencing psychiatric disabilities and/or mental health challenges...across the US and its territories." The NSEdD project is sponsored by the Substance Abuse and Mental Health Services Administration (SAMHSA) and co-administered by the five SAMHSA-funded national consumer and consumer-supporter technical assistance centers, in collaboration with research partners Drs. Nev Jones (University of Pittsburgh) and Mark Salzer (Temple University). For a link to the survey, which includes a definition of supported education, click here. For a flyer with information about the survey, click here.    

National Survey on Student Rights, Discrimination, and Accommodations in Higher Education Seeks Respondents  

"Have you experienced psychiatric disability-based discrimination or the denial of an accommodation in a postsecondary institution in the United States? Interested in informing national advocacy focus on psych disability rights in higher ed? Mental Health America (lead: Kelly Davis) and collaborators Dr. Nev Jones (University of Pittsburgh), Stefanie Kaufman-Mthimkhulu (Project LETS) and Brit Vanneman Esq. (Bazelon Center for Mental Health Law) have developed "a survey aimed at providing a more comprehensive understanding of student experiences of campus-based discrimination, mandated leaves of absence, and/or denial of academic, administrative and/or student-work accommodations in the U.S. Data will be used to inform national advocacy efforts and future projects, and in reports, presentations and publications." For eligibility and to access the survey, click here.

If You've Had, or Been Labeled with, "Negative Symptoms" in the Context of Psychosis...

"If you have experienced or been labeled with 'negative symptoms' in the context of psychosis, please consider contributing an anonymous account of your views and experiences," Dr. Nev Jones writes. "Currently, there is nowhere one can go to find lived experience perspectives/accounts on this topic—even though 'negative symptoms' regularly feature in research and clinical trials. Help us change this!" This survey is a companion to Psychosis Outside the Box; for that survey, click here. For more information and/or to share your story about "negative symptoms," click here.

"Are You Between the Ages of 21 and 60 and Drink Alcohol?"

"Researchers at the National Institutes of Health (NIH) are seeking adults--[both smokers and non-smokers]--to study whether a gene and smoking may affect drinking alcohol. Volunteers should be healthy and drug-free, and not seeking treatment for alcohol-related problems. Research participation includes three outpatient visits at the NIH Clinical Center in Bethesda, MD; alcohol consumption; brain scans (MRI), blood draws, and filling out questionnaires. There is no cost to participate and compensation may be provided." For more information, click here. (Courtesy of Fran Hazam)

TU Collaborative Seeks Participants for Its Parenting Through Leisure Project; See Also the TU Collaborative's Parenting Resources, Including Information on Custody Issues

The Temple University Collaborative on Community Inclusion is seeking parents with lived experience of a mental health condition to participate in a paid research study. The TU Collaborative writes: "Our program, Parenting Through Leisure, focuses on helping parents with a serious mental illness participate in leisure activities with their child. We are looking for individuals who are 18 and older; are an adult parent with a diagnosis of schizophrenia-spectrum disorder, bipolar disorder, or depression; have a child who is 7 to 15 years old and is interested in participating in family leisure with you; have legal visitation rights, joint custody or full custody of the child, with at least weekly contact; and have a desire to engage in more leisure activities with their child." For details about the study and the remuneration as well as other benefits to eligible participants, and a link to sign up, click here. Questions? Please contact TUCollab@temple.edu. And for the TU Collaborative's Parenting web page--which includes links to many resources for parents with lived experience, including information about custody laws and a model family reunification statute--click here.

Survey Seeks Respondents Who Are in Administrative/Leadership Positions in the Mental Health Field

If you are in an administrative/leadership position in the mental health arena, “the Group for the Advancement of Psychiatry (GAP) Committee on Psychiatric Administration and Leadership invites you to participate in the International Survey on Administrative Psychiatry. The survey has two purposes: 1. To identify the concerns and needs of mental health professionals/psychiatrists in administrative and leadership positions. 2. To determine training needs in administrative psychiatry. We ask you to complete this brief, [15- to 20-minute] questionnaire to help us in developing recommendations for action. We also want to let you know that, if you fill out this questionnaire, you permit the committee to use your anonymous data for scientific work.” Peer providers are included. For the survey, click here. (Courtesy of Oryx Cohen)

International Survey on Antipsychotic Medication Withdrawal Seeks Respondents

“Have you taken antipsychotic medication (such as Zyprexa, Seroquel, Abilify, Risperdal, Haldol, Geodon, Stelazine, and others), for any condition or diagnosis, with or without other medications? And did you ever stop taking antipsychotics, or try to stop taking them? Are you 18 years or older? If yes, you can take this survey about antipsychotic withdrawal and attempts to withdraw, including if you stopped taking them completely or if you tried to come off and still take them. The survey aims to improve mental health services by better understanding medication withdrawal. Lead researcher is Will Hall, a therapist and Ph.D. student who has himself taken antipsychotics. Service users/survivors/consumers from around the world also gave input. The study is sponsored by Maastricht University in the Netherlands; co-sponsors include the International Institute for Psychiatric Drug Withdrawal. Questions? Please contact will.hall@maastrichtuniversity.nl.”  For more information or to take the survey, click on www.antipsychoticwithdrawalsurvey.com

OTHER OPPORTUNITIES AND RESOURCES

TU Collaborative Wants to Hear Your Story!

“We are working on a project to better understand social connections among adults with significant mental health challenges,” the Temple University Collaborative on Community Inclusion writes. “We are seeking your stories on your social connections generally” and “what those connections mean to you.” The TU Collaborative will compile these stories based on a series of brief surveys. For details and to share your story, click here.

Call for Papers: “Recovery at 30: Emancipation, cooptation, or the end of an era?”

“The year 2023 marks exactly three decades since the publication of Bill Anthony’s seminal “Recovery from mental illness: the guiding vision of the mental health service system in the 1990s" (click here)...”In this special issue of Community Mental Health Journal,” the editors write, “we are soliciting both concept pieces (commentaries, critical reviews) and empirical work (qualitative, quantitative, ethnographic or mixed methods) that explore the question of whether recovery policy remains relevant and emancipatory today or whether the psy-fields are instead in need of fresh thinking and new, more diverse values-based frameworks.” The submission deadline is September 1, 2023. For more information, click here.

Common Threads: Stories of Survival & Recovery from Mental Illness

Common Threads: Stories of Survival & Recovery from Mental Illness, a 108-page compendium, includes “tales of survival and recovery” by a number of Floridians. To quote from the Introduction, “Many of the people in these stories have lived significant portions of their lives in psychiatric institutions, and only through their strengths have they found their way back to the community…In these tales, we hear about the importance of education and peer support…” To download the free document, click here.

“Crisis Now” Offers a “Roadmap to Safe, Effective Crisis Care”

The goal of Crisis Now: Transforming Crisis Services—led by the National Association of State Mental Health Program Directors (NASMHPD) and developed with the National Action Alliance for Suicide Prevention, the National Suicide Prevention Lifeline, the National Council for Mental Wellbeing, and RI International—is “to provide all communities a roadmap to safe, effective crisis care that diverts people in distress from the emergency department and jail by developing a continuum of crisis care services that match people’s clinical needs.” Among the resources offered on the website are SAMHSA’s 80-page “National Guidelines for Behavioral Health Crisis Care Best Practice Toolkit” (2020), an “Overview of Crisis Funding Sources Available to States and Localities” (last updated March 2, 2022), and assessment tools, such as “How Does Your Crisis System Rate?” The Crisis Now partners write: “Are you interested in adding your organization to the list supporting Crisis Now, or do you have questions? Reach out to us at info@crisisnow.com. For the website, click here. (Courtesy of Kevin Fitts)

“What Is the Meaning of Life?” This Free Online Collection Offers Answers

Excellence Reporter offers more than “1,200 articles-interviews on ‘What Is the Meaning of Life?’ written by renowned spiritual leaders, mindfulness experts, great thinkers and authors, elders, artists, musicians, CEOs, etc.” The contributors include such renowned figures as Bertrand Russell; Carl Jung; the Dalai Lama; Eleanor Roosevelt; Epicurus; Erich Fromm; Kahlil Gibran; Buckminster Fuller; Robert Louis Stevenson; and Ron Bassman, executive director of MindFreedom International. To browse the free compendium, click here.

The UIC Center’s Solutions Suite for Health & Recovery Offers Free Tools

"The UIC Center offers tools, curricula, and implementation manuals for free use in community-based programs, peer-run programs, or one's own life. You can introduce the entire complement of products to foster improved health, wellness, and mental health recovery. Or, you can choose the ones that will work best for your program or your life. The Suite was developed in collaboration with Collaborative Support Programs of New Jersey. The UIC Center is funded by NIDILRR (National Institute on Disability, Independent Living, and Rehabilitation Research). For the UIC Solutions Suite for Health & Recovery, click here. (Courtesy of Peggy Swarbrick via Jacek Haciak)

U.S. Surgeon General Creates Community Toolkit for Addressing Health Misinformation

"The U.S. Surgeon General’s Community Toolkit for Addressing Health Misinformation, developed in collaboration with the HHS Office of Evaluation Sciences (OES), provides specific guidance and resources for health care providers, educators, librarians, faith leaders, and trusted community members to understand, identify, and stop the spread of health misinformation in their communities." For information about the toolkit (a 22-page overview of health misinformation, and resources to stop it), and links to a “Talk to Your Community About Health Misinformation” Infographic, a “Health Misinformation Checklist” Infographic, and the Surgeon General's press release, click here.

"Psychiatrist with Philosophical Interests" leads "Conversations in Critical Psychiatry," a Psychiatric Times Series

Awais Aftab, who describes himself as a "psychiatrist with philosophical interests" in his Twitter bio, leads "Conversations in Critical Psychiatry," which, he says, "explores critical and philosophical perspectives in psychiatry and engages with prominent commentators within and outside the profession who have made meaningful criticisms of the status quo." Among those interviewed are Allen Frances, M.D., author of Saving Normal; Sandra Steingard, M.D., and G. Scott Waterman, M.D., on "Integrating Academic Inquiry and Reformist Activism in Psychiatry"; Susannah Cahalan, author of Brain on Fire: My Month of Madness, on "50 Shades of Misdiagnosis"; Kathy Flaherty, J.D., executive director of the Connecticut Legal Rights Project, Inc., on "Reconsidering Care and Coercion in Psychiatry"; Nev Jones, Ph.D., on "Phenomenology, Power, Polarization, and the Discourse on Psychosis"; Dainius Puras, M.D., on "Global Psychiatry's Crisis of Values"; and many others. For the archived interviews, click here.

CNN Offers “A Guide to Helping and Getting Help During the Coronavirus Crisis”

CNN writes: “The coronavirus pandemic is overwhelming, and one of the most excruciating parts for many people is the feeling of utter helplessness in the face of widespread suffering and hardship. CNN’s Impact Your World has compiled a list of donation opportunities and tips to help those affected by the crisis. Click on a category or scroll down to browse a list of organizations, resources and ideas. Need help? Most categories also include resources for financial, emotional or social support.” For the free guide, click here.

U.S. DOL Releases Guidance on FMLA Leave and Mental Health

The U.S. Department of Labor’s newly issued Fact Sheet #280 about the Family and Medical Leave Act (FMLA) explains when eligible employees may take FMLA leave to address mental health conditions, and new Frequently Asked Questions (FAQs) offers additional information. (Although the FMLA covers public and private employers nationwide, only those private employers who have 50 or more employees for at least 20 workweeks in a year are required to provide their eligible employees with FMLA leave.) For details, click here.

Hearing Voices Network Is Now Hosting Online Groups

“There are now ONLINE opportunities to connect, share experiences, and find mutual support,” the Hearing Voices Network (HVN) writes. “These groups are accessible via web-based platforms and by phone…Online groups are specifically for those with personal lived experience with hearing voices, seeing visions, and/or negotiating alternative realities. They are voice-hearer facilitated. With further questions and for details on how to access the group[s], please email info@hearingvoicesusa.org.” To read this announcement online and for more information, click here.

Virtual Group Works to Advance Peer Research Capacity, Leadership, and Involvement

Nev Jones, PhD—a strong advocate for building research capacity, leadership, and involvement among peers, survivors, and service users—leads a virtual group dedicated to this effort. Dr. Jones—assistant professor, School of Social Work, University of Pittsburgh—was part of the team that developed “User/Survivor Leadership & Capacity Building in Research: White Paper on Promoting Engagement Practices in Peer Evaluation/Research (PEPPER),” published by the Lived Experience Research Network. For the white paper, click here. Anyone interested in joining the virtual group can email Nev at nev.inbox@gmail.com.

Mad In America Invites You to Submit Your Personal Story (Within Certain Guidelines)

Mad In America writes: “A ‘personal story’ is defined as your story of being in relationship to psychiatry and/or the mental health system, whatever that means to you. It might involve your opinions and analysis of what happened to you, as well. It can be about a specific event, or about your overall journey, provided it fits the length requirements (1,500 to 3,000 words) and has a narrative arc. The piece should be about your personal experiences, not psychiatry or the mental health system in general. Submissions should fall under the theme of rethinking psychiatry and the mental health system, and should be original works not previously published elsewhere. For examples of the types of stories we publish, view our personal stories archive here.” For more information and/or to submit a personal story, click here.

Seven Ways to Keep a Digital Copy of Your Vaccination Card on Your Smartphone

“You'll need proof of vaccination to go back to work or enter many restaurants, gyms and event venues, so keep your COVID-19 card handy.” This is the advice of CNET.com, a tech support website. Besides the obvious—taking a photo of the card to store on your phone—there are six other suggestions. For details, click here. (Courtesy of Yvonne Smith)

ISPS-US Offers an Array of Archived Webinars—Free but Donations Are Welcomed

The ISPS-US (The International Society for Psychological and Social Approaches to Psychosis-US Chapter) is offering a whole raft of archived webinars, which are free (although donations are welcomed). Among the webinars are "Cognitive Behavioral & Related Therapies for Psychosis: Diverse Approaches to Supporting Recovery," "How Can the Uncontainable Be Contained? Paradoxes of Madness & Philosophy," "Robert Whitaker: The Rising Non-Pharmaceutical Paradigm for 'Psychosis,'" "Life with Voices: A Guide for Harmony," "COPE Project: Non-Pharmaceutical Research on Influencing Voices and Visions," "What Hurts and What Helps In Treatment For 'Psychosis': Insider Perspectives," and many others. For more information and to access the webinars, click here.

“Where DNA and Medications Meet”

Not all drugs are effective for all people; therapeutic response rates for many drugs are only 50%-75%. “OneOme, co-founded by [the] Mayo Clinic, provides evidence-based pharmacogenomic solutions that help improve patient outcomes and reduce costs through more personalized medication decisions.” OneOme’s RightMed Test is “a doctor-ordered pharmacogenomic (PGx) test that analyzes your DNA and provides your doctors with genetic information to help them determine how you may respond to certain medications. The results may help your doctors reduce medication trial and error, minimize risk of side effects, save you time and money, and make more informed prescribing decisions. Because your DNA doesn’t change over time, your doctors can use your test results to make more personalized medication decisions for you over the course of your lifetime.” For more information, click here. (Courtesy of Robin Osborne)

Doors to Wellbeing Offers “State Selfies: A Picture of Peer Services Reported by Peers”

Doors to Wellbeing’s “Peer Album” is a directory of nearly 600 peer-run organizations throughout the U.S. They invite updates and offer instructions for providing them and add, “If your entry has not made this first draft, we encourage you to re-submit.” For the 158-page directory, click here.

Disclaimer: The Clearinghouse does not necessarily endorse the opinions and opportunities included in the Key Update.

About the Key Update

The National Mental Health Consumers’ Self-Help Clearinghouse is affiliated with the Temple University Collaborative on Community Inclusion. The Key Update is the free monthly e-newsletter of the National Mental Health Consumers’ Self-Help Clearinghouse. Volume 19, No. 7, January 2023. For content, reproduction or publication information, please contact Susan Rogers at selfhelpclearinghouse@gmail.com. Follow Susan on Twitter at @SusanRogersMH

Key Update, December 2022, Volume 19, Number 6

Deadline Alert! Under CONFERENCES, TRAININGS, AND WEBINARS, and under …BUT STILL FRESH, a few of the events listed are taking place on November 28 (the publication date of this newsletter!), November 29, November 30, December 1, and December 2.

The National Mental Health Consumers’ Self-Help Clearinghouse is affiliated with the Temple University Collaborative on Community Inclusion.

TO CONTACT: THE CLEARINGHOUSE: SELFHELPCLEARINGHOUSE@GMAIL.COM  … SUSAN ROGERS: SUSAN.ROGERS.ADVOCACY@GMAIL.COM … JOSEPH ROGERS: JROGERS08034@GMAIL.COM 

THE KEY UPDATE IS COMPILED, WRITTEN, AND EDITED BY SUSAN ROGERS, DIRECTOR, NATIONAL MENTAL HEALTH CONSUMERS’ SELF-HELP CLEARINGHOUSE.

NOTE: THE "FROM PREVIOUS EDITIONS OF THE KEY UPDATE BUT STILL FRESH!" DEPARTMENT, WHICH IS DIRECTLY BELOW THE MONTHLY CRIMINAL LEGAL SYSTEM DIGEST, INCLUDES ITEMS THAT HAD BEEN POSTED "ABOVE THE FOLD" IN EARLIER EDITIONS BUT ARE STILL RELEVANT. THESE INCLUDE ONGOING RESEARCH STUDIES THAT ARE STILL SEEKING PARTICIPANTS, AS WELL AS UPCOMING WEBINARS AND CONFERENCES, AND OTHER ITEMS OF CONTINUED INTEREST. DON'T MISS IT!

***

NEWS

“Telehealth Giant Drew People with Addiction. Deaths, Overdoses Followed”

“Cerebral, once the fastest-growing provider of online mental healthcare, was ill-equipped to treat those who didn’t disclose substance-use disorders, employees say,” a recent Bloomberg article reported. Multiple overdoses and deaths have resulted. “For most of its history, the company delegated the delicate task of interacting with patients in emergency situations to…mostly unlicensed personnel” and provided very little crisis training. (Psychiatrist David Mou said Cerebral has been striving to do better since he became CEO in May 2022. However, Cerebral’s performance during the 16 months in which Mou was chief medical officer have also “generated criticism,” Bloomberg notes.) Psychiatrist/neurologist Alyson Maloy, a Physicians for Patient Protection board member, said (generalizing): “‘When corporations come in and they try to squeeze the practice of medicine into this corporate model of productivity and maximizing profit, there are many situations in which it doesn’t work. And those tension points are where people get hurt.’” For the Bloomberg article, click here.

Two Recent Articles Highlight the Value of Lived Experience

In STAT and Slate, NAMI’s chief medical officer, Ken Duckworth, MD, writes about the value of lived experience to both individuals and in designing mental health policy. In STAT, he writes, “The country needs to determine a unique, even radical, path for reimagining treatment and, in the meantime, offer a different perspective on what ‘expertise’ means…Lived experience is expertise.” For “Unseen Mental Health Experts: People with Mental Illness,” in STAT, click here. And in Slate, he writes, “There are lots of ideas about how to overcome the shortage of mental health professionals…But there’s one thing we can definitely do: broaden the idea of who has something to offer…Peers may be a helpful resource to consider when you are waiting for weeks or months at a time for a licensed professional.” (Duckworth also promotes the medical model, and takes a “both/and” approach to peer support.) For “The Mental Health Care System Is Finally Recognizing the Value of Peer Support,” in Slate, click here.

PEER Magazine Names 10 Top Innovators

In PEER Magazine’s inaugural issue (Autumn/Winter 2022), 10 individuals are highlighted as top innovators. The 10 are Dan Fisher, MD, PhD (on the cover); Eliza Alys Young; Braunwynn Franklin; Becky Ray; Mark Salzer, PhD; Chris Hansen; Laura Rose; Jerome Lawrence; Brandee Roloff Izquierdo Johnson, PhD; and Celia Brown. Also included is an article about “Mental American Monster: The Sprawl of American Psychiatry: True Horror,” a documentary by Lauren J. Tenney and Richard J. Hall (click here); and “The Trans Lifeline (click here): Actionizing a National Campaign to Do No Harm in Response to 988.” PEER is edited by Jen Padron. For the magazine, click here; for a free Kindle copy, click here.

“Too Evil to Be Believable”: Attorney Jim Gottstein, Author of The Zyprexa Papers, Is Interviewed

Attorney and PsychRights founder Jim Gottstein, author of The Zyprexa Papers, is interviewed by psychologist Nick Fortino on the Psychology Is podcast. Among the many topics covered are Eli Lilly’s dishonest “science” (08:28), Jim’s experience of receiving and releasing the Zyprexa papers (26:35), What if there were no drugs? (52:40), and Might The Zyprexa Papers become a movie? (01:11:00). To listen, click here. Jim was also interviewed on Facebook by Nicole Lamberson of Medicating Normal. For that interview, click here.

New Book Examines the History, Research, Values, Guidelines, and Practice of Peer Support

A new book—What it Takes: Wisdom from Peer Support Specialists and Supervisors—by members of the National Association of Peer Supporters (N.A.P.S.) “is about the practice of peer support from its origins in self-help to its continuing evolution as a profession…The book is intended to provide the latest information on a philosophy and profession that is at the forefront of the transformation of behavioral health services from a medical model satisfied with symptom relief and stability to a recovery model determined to inform those with a diagnosis of mental illness that a quality life is possible and doable.” Rita Cronise, one of the editors, notes that all of the proceeds from the sale of the book will support ongoing efforts of the National Association of Peer Supporters: "Everything beyond the expenses of publishing and promotion will go to N.A.P.S." For more information about the book, due to be published on February 14, 2023, click here.

Rest In Power Lois Curtis, Lead Plaintiff in Olmstead v. L.C.

Lois Curtis, the lead plaintiff in the U.S. Supreme Court’s 1999 case that upheld the community integration mandate of the Americans with Disabilities Act, died on November 3, 2022, of pancreatic cancer at her home outside of Atlanta. (Curtis’s co-plaintiff, Elaine Wilson, died in 2004.) The Olmstead decision had a significance in the disability rights community that has been compared to Brown v. Board of Education. "We went from a system in 1999 that the only places that most people with disabilities and older adults could get services were in institutions like nursing homes and psychiatric hospitals, to systems that are primarily focused on supporting people with services in their own homes,” U.S. Department of Health and Human Services official Alison Barkoff told NPR. For the NPR article, click here

Music May Improve Mental Health as Much as Exercise, Research Shows

“[A] scientific review published in JAMA concludes that music’s benefit to mental health is actually comparable to that of exercise…The review found “moderate-quality quantitative evidence of associations between music interventions and clinically significant changes in mental HRQOL [health-related quality of life]...However, the review is not without limitations, including the broad nature of inclusion criteria and the possibility of bias in the studies analyzed.” For the article, in Nice News, click here.

CONFERENCES, TRAININGS, AND WEBINARS

MHAAO  Issues Call for Proposals for Peerpocalypse; Deadline: November 30

The deadline to apply to present a workshop at Peerpocalypse, presented by the Mental Health & Addiction Association of Oregon (MHAAO), is November 30! The conference will be held May 8-11, 2023, in Seaside, Oregon, and virtually. For more information and to submit a proposal, click here. For more about the conference, click here. (The deadline on the form is October 31; however, it has been extended to November 30.)

Mindspring to Present Numerous Free Webinars in November and December

“Talking to Kids about Mental Health,” the first of many upcoming webinars offered by Mindspring Mental Health Alliance, will take place on November 28, 2022, at 1 p.m. ET. Mindspring writes: ”Learn how to help children understand what mental illness is and is not, and how to answer their questions, with a licensed therapist.”  For more information and to register, click here. For information about upcoming Mindspring webinars on November 29 and 30 and in December, click here.

PSCFL Presents Speaker Series Featuring Peer Entrepreneurs

On December 1, 2022, at 12 p.m. ET, the Peer Support Coalition of Florida (PSCFL) will host Kwadeidra Zhane Wilson, “the creative eye and old soul behind Experience KZW.” PSCFL writes: “Join us for this inspiring series where we will ‘Take a Walk in the Shoes of a Peer Entrepreneur!…Learn about their businesses, how they got started, and how they balance managing their wellness while running a successful business.” Questions? Contact Sherry Warner, sherry@peersupportfl.org, 407.793.1139 ext. 108. For details and to register, click here.

“Serving an Underserved Population: Peer Support, Disability, and Mental Health”

On December 1, 2022, at 2 p.m. ET, Mental Health America will present a free, 60-minute webinar entitled “Serving an Underserved Population: Peer Support, Disability, and Mental Health.” According to the Centers for Disease Control and Prevention, “Adults with disabilities report experiencing frequent mental distress almost 5 times as often as adults without disabilities.” Mental Health America writes that “persons with disabilities face additional challenges to both recovery and the services of peer support.” For details and to register, click here.

NEC to Present an International Virtual eCPR Training, Beginning December 2

The National Empowerment Center (NEC) will present an international virtual eCPR (emotional CPR) training comprising three four-hour sessions, on December 2, 9, and 16, 2022, from 9 a.m. to 1 p.m. ET. The training is limited to 12 participants. To receive a certificate, you need to attend all three four-hour sessions. NEC writes: “The cost is $120 to $250; please pay what you can afford. Those who can afford to pay $250 will help subsidize those who cannot. A limited number of scholarships are available; to apply, please email info@emotional-cpr.org.” For details and to register, click here.

“The Peer Support Specialist Workforce During Covid-19: Changes, Challenges, and Opportunities”

On December 7, 2022, at 1 p.m. ET, the Center for Psychiatric Rehabilitation will present “The Peer Support Specialist Workforce During Covid-19: Changes, Challenges, and Opportunities” as part of its “Making Sense of Employment Research” webinar series “designed to discuss a recently published research study, in a clear and relevant way, even for those who know little or nothing about research.” For more information and to register, click here.

“Integrating Behavioral Health Peer Support Specialists into Crisis Response”

On December 8, 2022, at 1 p.m. ET, the Bureau of Justice Assistance’s Academic Training Initiative to Inform Police Responses will present a one-hour webinar that will “provide an overview of the roles of behavioral health peer support specialists across the criminal [legal] system, discuss the newer role of peer support specialists in crisis response, and provide examples of how peer support specialists are trained and embedded in teams of professionals tasked with responding to crisis calls in the community. Additionally, this webinar will consider how people with intellectual and developmental disabilities (IDD) might be integrated into similar peer support roles to enhance crisis responses to people with IDD.” For details and to register, click here. (Courtesy of Elizabeth R. Stone)

National Empowerment Center to Host a Virtual Coffee House on December 8

On December 8, 2022, from 12 p.m. to 1:30 p.m. ET, the National Empowerment Center will host Kim’s Coffee House, “a virtual space where we can informally get together, share stories, perhaps strategize together, and support each other. We are opening the Coffee House in December particularly because the holidays can be such a difficult time for folks and we wanted to hold space for anybody who would like some support or just pop in to say hi. Everyone is welcome at Kim's Coffee House, no matter where you are or how you are doing; positive and celebratory sharing is welcome as much as holding space for folks going through a hard time.” For more information and to register (for free), click here.

McLean Hospital Offers “The Global Impact of Emotional Trauma: A Course for Professionals”

“McLean Hospital is pleased to offer this on-demand course aimed at dispelling long-held misconceptions about assessing and treating emotional trauma. Experts from around the world will share the latest updates in the field, including delivering care in low-resource settings and exploring special populations such as the unique experiences of refugees and displaced persons.” For more information and to register, click here. For other free on-demand McLean webinars on mental health topics, click here.

Peer Support Coalition of Florida Offers a Variety of Free Trainings

The Peer Support Coalition of Florida (PSCFL)–dedicated to advancing peer support in Florida and throughout the nation–is offering a number of free trainings, which are outlined in their 10-page training calendar. The dates of the trainings–for peers, for peer supervisors, and for youth and those who serve youth–are on page 10 of the catalog, which is available here.

OPPORTUNITIES

HSRI Offers Policy Fellowship for People with Lived Experience

The Human Services Research Institute (HSRI) has established a Policy Fellowship for people with lived experience of behavioral health systems to gain experience with applied research into behavioral health systems. HSRI writes: “We're deeply committed to hiring and developing leaders with lived experience, and this fellowship is one more step in that direction. It's designed for people who may not have a ton of research experience and want to get a foot in the door. Please get in touch with Bevin Croft (bcroft@hsri.org) if you have any questions. Applicants are asked to respond here: HSRI’s Career Center.”

TU Collaborative Wants to Hear Your Story!

“We are working on a project to better understand social connections among adults with significant mental health challenges,” the Temple University Collaborative on Community Inclusion writes. “We are seeking your stories on your social connections generally” and “what those connections mean to you.” The TU Collaborative will compile these stories based on a series of brief surveys. For details and to share your story, click here.

Telehealth Research Study for Behavioral Health Services Providers

The Great Lakes MHTTC is seeking participants for their research study on the use of virtual behavioral health services and its benefits and challenges…If you choose to be in this voluntary study, please complete this 10-minute survey developed by the Great Lakes MHTTC to gain a better understanding of a) how telehealth is being used by behavioral health services providers, b) its benefits, c) its challenges, and d) projected use in the future. You can receive a copy of the survey results by including your email at the end of the survey. The survey results will also be available on the Great Lakes MHTTC website. Note: This survey is open to the public, regardless of location.” Take the survey here. Questions? todd.molfenter@wisc.edu

Call for Papers: “Recovery at 30: Emancipation, cooptation, or the end of an era?”

“The year 2023 marks exactly three decades since the publication of Bill Anthony’s seminal “Recovery from mental illness: the guiding vision of the mental health service system in the 1990s" (click here)...”In this special issue of Community Mental Health Journal,” the editors write, “we are soliciting both concept pieces (commentaries, critical reviews) and empirical work (qualitative, quantitative, ethnographic or mixed methods) that explore the question of whether recovery policy remains relevant and emancipatory today or whether the psy-fields are instead in need of fresh thinking and new, more diverse values-based frameworks.” The submission deadline is September 1, 2023. For more information, click here.

RESOURCES

Common Threads: Stories of Survival & Recovery from Mental Illness

Common Threads: Stories of Survival & Recovery from Mental Illness, a 108-page compendium, includes “tales of survival and recovery” by a number of Floridians. To quote from the Introduction, “Many of the people in these stories have lived significant portions of their lives in psychiatric institutions, and only through their strengths have they found their way back to the community…In these tales, we hear about the importance of education and peer support…” To download the free document, click here.

MHA Publishes “Getting Started Guide for New Caregivers”

Mental Health America’s “Getting Started Guide for New Caregivers” is “an online guide to help new mental health caregivers navigate their role.” The web page offers links to Getting Started; Challenging Stigma; Starting a Conversation; Legal Caregivers; Caregiving in the Treatment Setting; Navigating Red Tape, Cost, & Logistics; Best Practices in Supporting Your Loved One; Understanding Challenges During the Recovery Process; Caregiver Concerns; Taking Care of Yourself; and Additional Resources. For the online guide, click here

“Physical Wellness for Work” Workbook Offers Activities to Augment Health and Wellness

“Success at work requires a level of stamina, energy, and concentration that can be challenging to sustain without attention to daily wellness habits and routines. ‘Physical Wellness for Work’ offers manageable activities to augment health and wellness. Its underlying philosophy is that even small changes in daily habits can result in increased energy and health for a better and more satisfying workday.” For the free 21-page workbook, a product of the UIC Health & Recovery Solutions Suite, click here. (Courtesy of Peggy Swarbrick via Jacek Haciak)

The December 2022 Digest of Articles Offering Healthy Lifestyle Advice

For “Feeling Dismissed? How to Spot ‘Medical Gaslighting’ and What to Do About It. Experts share tips on advocating for yourself in a health care setting,” click here. For “Can’t Sleep? Try Sticking Your Head in the Freezer. In a new book, a sleep scientist offers tips for better rest—without reaching for a pill,” click here.

The December 2022 Digest of Articles about the Criminal Legal System, in Which Many Individuals with Mental Health Conditions Are Incarcerated (and the Key Update continues after this Digest)

For “Why So Many Jails Are in a ‘State of Complete Meltdown’: Overcrowding, violence and abuse proliferate at jails across the country, as staffing problems make long-simmering problems worse,” click here. For “Record numbers of people are dying in Georgia’s largest jails: The deaths have been attributed to drug overdoses, suicides and other causes in the state’s five biggest lockups amid a trio of crises,” click here. For “Who’s Really Cycling In and Out of Cleveland’s Courts? Often miscast as violent criminals, most repeat defendants commit nonviolent crimes borne out of untreated addiction and mental illness, a Marshall Project analysis shows,” click here. For “The Problem With How Courts Decide Whether Someone Can Be Executed: The criminal justice system is unequipped to grapple with the complexity of mental illness,” click here. For “An autistic teen needed mental health help. He spent weeks in an ER instead. Zach Chafos languished for a total of 76 days in a Maryland ER waiting for a psychiatric bed -- part of a growing mental health treatment crisis for teens across the country,” click here. For “Inmate Suicides Rose Sharply in U.S. Prisons, Jails During Pandemic: More inmates kill themselves amid pandemic isolation, increased use of drugs, staff shortages,” click here. For “He Pocketed His Victims’ Organs. Was His Death Penalty Trial Fair? As Andre Thomas faces execution for three gory murders, a court questions jury bias and his competency,” click here. For “In Pa. county jails, people with mental illness are routinely met with pepper spray and stun guns: A WITF investigation finds that corrections officers use physical force on people who may be unable to comply with orders due to a mental health condition,” click here. For “Chilling Audio Provides Rare Glimpse Into Abuse at Troubled Illinois Residential Facility: No one was charged when staff were caught on a 911 tape threatening violence against a Choate Mental Health and Developmental Center resident who has developmental disabilities. New reporting shows a culture of cover-ups at the facility,” click here. For “New Orleans capital defense attorney Billy Sothern dies,” click here. For “Billy Sothern, Crusading New Orleans Defense Lawyer, Dies at 45: He was known for taking on some of Louisiana’s toughest cases, including the wrongful conviction of Albert Woodfox, who spent 42 years in solitary confinement,” click here. For “Rochester to Pay $12 Million to Family of Man Killed by the Police: Daniel Prude died in March 2020 after police officers put a mesh hood over his head and pressed his face into the pavement,” click here. For “Florida’s Voter Fraud Arrests Are Scaring Away Formerly Incarcerated Voters: DeSantis made a spectacle of arresting voters with felony convictions. Now, some eligible voters are opting out of midterms even beyond Florida,” click here. For “After an autistic teen’s in-custody death, Jefferson Parish Sheriff’s Office used criminal search warrants to dig into his past,” click here. For “In San Francisco, ‘No Intention to Seek Justice’: Internal emails, interviews with former DA staff, and the recent treatment of certain victim families show how Chesa Boudin’s recall and Brooke Jenkins’s early decisions disrupted the city’s most sensitive and rarely-prosecuted cases—police killings,” click here. For “I Spent Over 40 Years Working in Corrections. I Wasn’t Ready for Rikers. Rikers Island jail complex ‘reflects our nation’s racist and destructive fixation on imprisonment,’ writes former New York City jails commissioner Vincent Schiraldi. ‘It’s Exhibit A for why we need to end mass incarceration,’” click here. For “A deputy mistook a blind man’s cane for a gun. He ended up in jail anyway. Sheriff Mark Hunter called the man’s arrest ‘unacceptable’ as he announced the deputy and her supervisor had been punished,” click here. For “Report Finds ‘Code of Silence’ at Mental Health Facility Where Staff Abused and Neglected Patients: A newly released report from an agency watchdog echoes reporting published earlier this year that revealed widespread collusion to cover up misconduct at the Illinois facility,” click here. For “Forced Prison Labor Was Also on the Ballot: Voters in four states—Alabama, Oregon, Tennessee, and Vermont —approved ending the practice of involuntary labor and slavery as punishment for a criminal conviction,” click here. For “La. voters keep ‘slavery’ at Angola prison, once and still a plantation,” click here. For “End of slavery exception in state constitutions could reform prison labor: ‘Personal profit in the system is an opening for justice to be corrupted,’” click here. For “7 Key Criminal Justice Takeaways From the Midterms: Sheriffs. Prosecutors. Abortion and slavery amendments,” click here. For “Bobby Bostic released on parole after being imprisoned in Missouri for 27 years: The St. Louis native who has been behind bars since he was 16 was among 100 people given life sentences as juveniles who got a new chance at parole after state legislators passed a law in 2021,” click here. For “A Passport to the Future: Restoring Pell grants for incarcerated students is long overdue. But without meaningful infrastructure, true freedom will remain elusive,” click here. For “Jeffery Gerritt: Extend moratorium, then kill Pa.'s death penalty,” click here. For “He Pocketed His Victims’ Organs. Was His Death Penalty Trial Fair? As Andre Thomas faces execution for three gory murders, a court questions jury bias and his competency,” click here. For “D’Angelo Burgess Fled From Police. Does That Make Him a Killer? An Oklahoma case raises issues about both felony murder charges and high-speed police pursuits,” click here. For “Record number of defendants with mental illness 'decompensating' in Washington jails. More people than ever before with mental illness are waiting in Washington jails for court-ordered treatment. Research shows this causes their illnesses to worsen,” click here. For “Why unhoused people in the US are choosing to go to jail: ‘I kept reoffending’: People on the street who are resistant to shelters face a cruel choice: living rough in the cold or spending time behind bars,” click here. For “Son's killing by officers forges a mom's campaign to divert the police,” click here. For “How Mass Incarceration Shapes Our Elections,” click here. For “Wait times for mental health services in WA jails worsen as fines spiral,” click here. For “‘I will not be party to this violent system’: An abolitionist against jailing gets a jury summons in Baltimore City | GUEST COMMENTARY,” click here. For “Prosecutors in These States Can Review Sentences They Deem Extreme. Few Do. Five states now allow prosecutors to seek shorter sentences in old cases. Louisiana shows why many DAs haven’t,” click here. For “Course Correcctions: The Return of Prison Education: Federal grants are rebooting higher education behind bars, but the benefits aren't evenly distributed to all of the incarcerated,” click here. For “What’s It Like to Be an Editor of a Prison Newspaper? The incarcerated editor of The Nash News in North Carolina shares about the power of higher ed and his work at the prison newspaper,” click here. For “Recidivism Is Inadequate Measure of Success After Prison; New Measurements and National Standards Are Needed, Says New Report,” click here. For “Juvenile (in)justice: girls in the system,” click here.

FROM PREVIOUS EDITIONS OF THE KEY UPDATE BUT STILL FRESH!

CONFERENCES, WEBINARS, AND TRAININGS

30th Annual (Virtual) Forensic Rights and Treatment Conference, Nov. 30-Dec. 1

The theme of Drexel University’s 30th Annual Forensic Rights and Treatment Conference, to be held November 30-December 1, 2022, is Homeward Bound: Exploring Issues Faced by Justice-Involved Persons. Drexel writes: “The conference will be available to registrants until December 31, 2022, and you will be able to see all of the workshop offerings. Once you complete the evaluation tool and a validation tool, you will receive your CE credit within two weeks…The times represented on the brochure may slightly change in the virtual event.” Questions? Write to bheweb@drexel.edu or call us at 215.831.4055. For more information and to register, click here.

“So You’re Ready to Work; Now What?”

On October 11, 2022, at 12 p.m. ET, Rebel Leadership Group LLC and CAFE TAC launched a new, 12-part interactive employment training series! “This series will be recovery-centered and strengths-based, examining the process of finding, applying for, and succeeding in a job through the lens of recovery, helping attendees to identify strengths and skills, align the job-seeking and employment experience with their personal recovery path, and providing opportunity for discussion in a peer-centered space…Registering for any of the 12 sessions will automatically register you for all future sessions.” For details and to register, click here

ISEPP’s 2021 Conference Is Available to View Online

The 2021 conference of the International Society for Ethical Psychology and Psychiatry can be viewed online. The theme of the conference, convened October 9-10, 2021, was “The Destructive Propaganda of the Mental Health Industry: How Did We Get Here? Where Are We Going?” It was dedicated to the life and memory of Paula J. Caplan, Ph.D. To buy a ticket to watch the full conference recording for $22.85, click here.

Rutgers University Sponsors Free Wellness Self-Care Program for Service Providers

The Wellness Training Learning Collaborative of the Rutgers Center of Alcohol and Substance Use Studies Is sponsoring a series of free wellness trainings, designed as stand-alone sessions, for health care professionals. They write: “Join us to engage in a series of interactive sessions to empower [health care] professionals to practice simple self-care strategies to stay well. Learn how to build these wellness self-care habits into day-to-day life.” The upcoming sessions are on Dec. 8, 2022, and Jan. 19 and Jan. 26, 2023. For descriptions and to register for one or more of the sessions, whose times vary, click here and scroll down to page 5. (Although all the times say EDT, EST began on Nov. 6.)

NASMHPD’s 2014 Webinar Series on Trauma-Informed Peer Support Is Still Relevant“

SAMHSA’s National Center for Trauma-Informed Care (NCTIC) hosted a series of three 75-minute webinars in September 2014 that introduced key concepts in NCTIC’s day-long Trauma-Informed Peer Support (TIPS) training. Peer support providers are the primary audience. For more information and to listen to the recordings and download the PowerPoint slides, click here.

PsychAlive Offers a Variety of Webinars on Mental Health Topics, Many Free, Others $15

PsychAlive is a free, nonprofit resource created by the Glendon Association, whose mission is “to save lives and enhance mental health by addressing the social problems of suicide, violence, child abuse and troubled interpersonal relationships.” Psychalive.org offers a variety of upcoming and archived webinars, many of which are free, while others are available for $15. Among the myriad topics are “From Anxiety to Action: How to Stay Sane While Fighting Climate Change,” “How to Overcome Insecurity,” “Powerful Tools to Fight Depression,” and “Understanding and Overcoming Adverse Childhood Experiences.” To check out the webinars, click here.

Learning Collaborative Webinar Series Offers Several Archived Presentations 

The Doors to Wellbeing website offers a number of webinars that you may find of interest: “The Importance of Policies and Procedures in Peer-run Organizations”; “Building Partnerships to Enhance the Peer Workforce,” by Kyneta Lee, Tim Saubers, and Todd Noack; “Handing Over the Keys: Leadership Succession Planning in Non-Profit Organizations,” by Elise Padilla and Maxine Henry; “How to Embed Strategic Planning into the Culture of Your Organization,” by Oryx Cohen; “Fundraising and Sustainability: Building your Organization by Telling the Right Story to the Right Audience”; “Developing a Board of Directors for Mental Health Organizations,” by Amey Dettmer and Matthew Federici; and “Conflict Management in Peer-Run Organizations: Tools for Effective Conversations.” Certificates of attendance are not available for any of these presentations. For more information and to register for any or all of them, click here

National Safety Council Offers a Free Webinar Series Focusing on Mental Health in the Workplace

"The impact of the COVID-19 pandemic will affect employees well beyond the initial crisis," the National Safety Council writes. "Employers have a unique ability and responsibility to address the mental health and wellbeing of their workers, which is a true organization-wide effort. This free Mental Health Webinar Series led by the National Safety Council, and first presented in August 2020, speaks to a variety of positions within an organization and how each one can address stress and mental health." Four of the five webinars are titled: "Supporting Employee Mental Health" and respectively subtitled "Resources for Employees," "Actions for Leadership," "Actions for Supervisors," and "Actions for HR Professionals." To view the free, archived webinars, click here.

OPPORTUNITIES TO PARTICIPATE IN RESEARCH

Young Adults with Psychiatric Diagnoses Are Sought for Study on Community Participation

The Temple University Collaborative on Community Inclusion is recruiting young adults (ages 18-30) with a diagnosis of schizophrenia, bipolar disorder, or major depression to take part in ConnectionsRx, designed to support engagement in meaningful community activities. Participants will be enrolled in the peer-led study for six months, and receive support to help meet community participation goals. Interviews (approximately 60 minutes each) will take place on Zoom. Participants will receive a $15 Amazon gift card (to a maximum of $45) for each survey completed. For the website, click here. Questions? Write to ConnectionsRx@temple.edu. 

Researchers Ask, How Can Community-Based Organizations Use Data to Thrive?

“Researchers at Live & Learn Inc. are exploring the needs and preferences of community-based organizations that want to use data to improve and sustain their programs. What we learn will help us to develop tools to support community-based organizations to conduct program evaluation. If you represent a community-based organization that offers programs and services to support the well-being of people with mental health and substance use concerns, please take 15 minutes to complete our survey. Survey respondents will be entered into a raffle for a $25 eGift card. After the survey, we may invite you to participate in an interview, for which you will be compensated. Responses to the survey and interviews will not be shared with anyone outside of the research team. For more information, visit our website or contact Morgan Pelot: morgan@livelearninc.net, 805.244.5262.”

South Southwest MHTTC Launches Youth and Young Adult Peer Supporters Survey

“Are you a peer specialist who provides peer support to other people under the age of 30? We want to hear from you! Please fill out the survey to assist the South Southwest Mental Health Technology Transfer Center (South Southwest MHTTC) in learning more about youth peer support across the country! The intent is to be able to include these peer supporters in research, training, and technical assistance activities surrounding youth peer support. The form should take 5-10 minutes to fill out, and can be done from a phone or a computer browser. To take the survey, click here.” Questions? Write to southsouthwest@mhttcnetwork.org.

Are You Interested in Pursuing Graduate School and/or a Research Career? Read Below.

Stephania Hayes (UC Davis), Shannon Pagdon (Columbia/NYS Psychiatric Institute/University of Pittsburgh), and Nev Jones (University of Pittsburgh) write: “We are gathering information from people with lived experience in the Coordinated Specialty Care (CSC) or early psychosis space (including peer specialists, current/former CSC participants, and CSC youth coordinators) who are potentially interested in pursuing graduate school and/or a research career. All of us identify as having lived experience, work in CSC, and are invested in supporting the next generation of scholars who also have lived experience. We would like to create a discussion group and/or other supports for people interested in this career path. The link below leads to a very brief survey that will help us understand the level of interest in such supports, as well as areas of career interest. (Please note that this is not a research study.)” To participate in the anonymous survey, click here.

“Help Us Map the Landscape of Lived Experience and Family Involvement in 988 Policy and Related Crisis Response System Planning!”

“As 988 implementation rolls out alongside additional efforts to strengthen crisis response systems throughout the U.S., it's important to gauge the extent to which direct stakeholders (i.e., individuals who use or have used mental health crisis services and their families) have been involved in related policy, implementation and evaluation at the local, regional, state or federal levels. To map out involvement nationally, Mental Health America (lead: Kelly Davis), Nev Jones (University of Pittsburgh) and Keris Myrick (National Association of Peer Supporters) have developed a survey aimed at documenting the extent of stakeholder involvement, the forms this involvement has taken, and, where available, what concerns stakeholders have raised. Any individual with knowledge of lived experience and family involvement is eligible to participate; individuals completing the survey do not have to have lived experience themselves.” For more information and to access the survey, click here.

Survey Seeks Respondents Who Have Taken Mental Health Courses Involving Their Own Diagnoses

Have you taken a mental health course that covers a diagnosis you have? If so, you are invited to participate in a brief, anonymous, online survey--designed by a University of Pittsburgh MSW student--about what it's like for students with lived experience to study their own diagnoses in a classroom. The survey covers students' experiences of studying such subjects as "abnormal psychology," "psychopathology," and diagnosis and assessment when their own diagnoses are covered. "The goal of the project is to better understand what it feels like to take courses in which someone’s diagnosis is being taught/defined/discussed. There is currently no literature or reporting on the experiences of students in the above circumstances, or the associated impact." Interested? Please click here. Questions? Please email the project lead, Charlie Clement, at cjc204@pitt.edu

Peer Support in Higher Education Survey Seeks Respondents

“Peer support programs are growing on college campuses across the U.S. Mental Health America, Doors to Wellbeing, and the Temple University Collaborative on Community Inclusion want to better understand the availability of peer support in higher education as well as the experiences and needs of students accessing peer support programs…We hope to use this research to support the expansion of peer support in higher education, including developing a national database of peer support programs in higher education and documenting pressing issues in campus programs…You may also indicate if you are interested in having your school’s peer support program listed in a national database of peer support programs in higher education.” For more information and to complete the survey, click here

BU Seeks Peer Support Specialists for a Research Study

The Center for Psychiatric Rehabilitation at Boston University is developing and testing the effectiveness of a coaching service called Coaching and Advancement for Peer Providers (CAPP) “to increase organizational commitment and job satisfaction and decrease turnover among mental health peer providers.” BU CPR writes: “We need Peer Support Specialists (PSS) to participate in our study. Who can participate? People who are in a paid job as a Peer Support Specialist providing support to other people with mental health challenges, who are employed at least 10 hours per week, who have worked for the past six months in a mental health program, and who are experiencing stress because of challenges in the workplace. The study involves 16 one-hour sessions of coaching over a four-month period designed to help you with your job, meeting online (through Zoom, for example) with your coach, and filling out surveys one time before coaching starts and three additional times. You will have a 50/50 chance of getting a coach or having a one-time meeting to give you information about challenges at work. Benefits? You may learn strategies to help make work less stressful.” For more information, click here. For questions, contact Principal Investigator E. Sally Rogers, Sc.D., at erogers@bu.edu or 617-353-3549.

Supported Education Survey Needs Your Help

Do you operate a program that provides dedicated supported education services for individuals with psychiatric disabilities/mental health conditions? If so, you are invited to complete the survey at the link below. The primary goal of the survey is to help create a National Supported Education Database (NSEdD) that will be "a searchable listing of diverse supported education programs and services for individuals experiencing psychiatric disabilities and/or mental health challenges...across the US and its territories." The NSEdD project is sponsored by the Substance Abuse and Mental Health Services Administration (SAMHSA) and co-administered by the five SAMHSA-funded national consumer and consumer-supporter technical assistance centers, in collaboration with research partners Drs. Nev Jones (University of Pittsburgh) and Mark Salzer (Temple University). For a link to the survey, which includes a definition of supported education, click here. For a flyer with information about the survey, click here.    

National Survey on Student Rights, Discrimination, and Accommodations in Higher Education Seeks Respondents  

"Have you experienced psychiatric disability-based discrimination or the denial of an accommodation in a postsecondary institution in the United States? Interested in informing national advocacy focus on psych disability rights in higher ed? Mental Health America (lead: Kelly Davis) and collaborators Dr. Nev Jones (University of Pittsburgh), Stefanie Kaufman-Mthimkhulu (Project LETS) and Brit Vanneman Esq. (Bazelon Center for Mental Health Law) have developed "a survey aimed at providing a more comprehensive understanding of student experiences of campus-based discrimination, mandated leaves of absence, and/or denial of academic, administrative and/or student-work accommodations in the U.S. Data will be used to inform national advocacy efforts and future projects, and in reports, presentations and publications." For eligibility and to access the survey, click here.

If You've Had, or Been Labeled with, "Negative Symptoms" in the Context of Psychosis...

"If you have experienced or been labeled with 'negative symptoms' in the context of psychosis, please consider contributing an anonymous account of your views and experiences," Dr. Nev Jones writes. "Currently, there is nowhere one can go to find lived experience perspectives/accounts on this topic—even though 'negative symptoms' regularly feature in research and clinical trials. Help us change this!" This survey is a companion to Psychosis Outside the Box; for that survey, click here. For more information and/or to share your story about "negative symptoms," click here.

"Are You Between the Ages of 21 and 60 and Drink Alcohol?"

"Researchers at the National Institutes of Health (NIH) are seeking adults--[both smokers and non-smokers]--to study whether a gene and smoking may affect drinking alcohol. Volunteers should be healthy and drug-free, and not seeking treatment for alcohol-related problems. Research participation includes three outpatient visits at the NIH Clinical Center in Bethesda, MD; alcohol consumption; brain scans (MRI), blood draws, and filling out questionnaires. There is no cost to participate and compensation may be provided." For more information, click here. (Courtesy of Fran Hazam)

TU Collaborative Seeks Participants for Its Parenting Through Leisure Project; See Also the TU Collaborative's Parenting Resources, Including Information on Custody Issues

The Temple University Collaborative on Community Inclusion is seeking parents with lived experience of a mental health condition to participate in a paid research study. The TU Collaborative writes: "Our program, Parenting Through Leisure, focuses on helping parents with a serious mental illness participate in leisure activities with their child. We are looking for individuals who are 18 and older; are an adult parent with a diagnosis of schizophrenia-spectrum disorder, bipolar disorder, or depression; have a child who is 7 to 15 years old and is interested in participating in family leisure with you; have legal visitation rights, joint custody or full custody of the child, with at least weekly contact; and have a desire to engage in more leisure activities with their child." For details about the study and the remuneration as well as other benefits to eligible participants, and a link to sign up, click here. Questions? Please contact TUCollab@temple.edu. And for the TU Collaborative's Parenting web page--which includes links to many resources for parents with lived experience, including information about custody laws and a model family reunification statute--click here.

Survey Seeks Respondents Who Are in Administrative/Leadership Positions in the Mental Health Field

If you are in an administrative/leadership position in the mental health arena, “the Group for the Advancement of Psychiatry (GAP) Committee on Psychiatric Administration and Leadership invites you to participate in the International Survey on Administrative Psychiatry. The survey has two purposes: 1. To identify the concerns and needs of mental health professionals/psychiatrists in administrative and leadership positions. 2. To determine training needs in administrative psychiatry. We ask you to complete this brief, [15- to 20-minute] questionnaire to help us in developing recommendations for action. We also want to let you know that, if you fill out this questionnaire, you permit the committee to use your anonymous data for scientific work.” Peer providers are included. For the survey, click here. (Courtesy of Oryx Cohen)

International Survey on Antipsychotic Medication Withdrawal Seeks Respondents

“Have you taken antipsychotic medication (such as Zyprexa, Seroquel, Abilify, Risperdal, Haldol, Geodon, Stelazine, and others), for any condition or diagnosis, with or without other medications? And did you ever stop taking antipsychotics, or try to stop taking them? Are you 18 years or older? If yes, you can take this survey about antipsychotic withdrawal and attempts to withdraw, including if you stopped taking them completely or if you tried to come off and still take them. The survey aims to improve mental health services by better understanding medication withdrawal. Lead researcher is Will Hall, a therapist and Ph.D. student who has himself taken antipsychotics. Service users/survivors/consumers from around the world also gave input. The study is sponsored by Maastricht University in the Netherlands; co-sponsors include the International Institute for Psychiatric Drug Withdrawal. Questions? Please contact will.hall@maastrichtuniversity.nl.”  For more information or to take the survey, click on www.antipsychoticwithdrawalsurvey.com

OTHER OPPORTUNITIES AND RESOURCES

“Crisis Now” Offers a “Roadmap to Safe, Effective Crisis Care”

The goal of Crisis Now: Transforming Crisis Services—led by the National Association of State Mental Health Program Directors (NASMHPD) and developed with the National Action Alliance for Suicide Prevention, the National Suicide Prevention Lifeline, the National Council for Mental Wellbeing, and RI International—is “to provide all communities a roadmap to safe, effective crisis care that diverts people in distress from the emergency department and jail by developing a continuum of crisis care services that match people’s clinical needs.” Among the resources offered on the website are SAMHSA’s 80-page “National Guidelines for Behavioral Health Crisis Care Best Practice Toolkit” (2020), an “Overview of Crisis Funding Sources Available to States and Localities” (last updated March 2, 2022), and assessment tools, such as “How Does Your Crisis System Rate?” The Crisis Now partners write: “Are you interested in adding your organization to the list supporting Crisis Now, or do you have questions? Reach out to us at info@crisisnow.com. For the website, click here. (Courtesy of Kevin Fitts)

“What Is the Meaning of Life?” This Free Online Collection Offers Answers

Excellence Reporter offers more than “1,200 articles-interviews on ‘What Is the Meaning of Life?’ written by renowned spiritual leaders, mindfulness experts, great thinkers and authors, elders, artists, musicians, CEOs, etc.” The contributors include such renowned figures as Bertrand Russell; Carl Jung; the Dalai Lama; Eleanor Roosevelt; Epicurus; Erich Fromm; Kahlil Gibran; Buckminster Fuller; Robert Louis Stevenson; and Ron Bassman, executive director of MindFreedom International. To browse the free compendium, click here.

The UIC Center’s Solutions Suite for Health & Recovery Offers Free Tools

"The UIC Center offers tools, curricula, and implementation manuals for free use in community-based programs, peer-run programs, or one's own life. You can introduce the entire complement of products to foster improved health, wellness, and mental health recovery. Or, you can choose the ones that will work best for your program or your life. The Suite was developed in collaboration with Collaborative Support Programs of New Jersey. The UIC Center is funded by NIDILRR (National Institute on Disability, Independent Living, and Rehabilitation Research). For the UIC Solutions Suite for Health & Recovery, click here. (Courtesy of Peggy Swarbrick via Jacek Haciak)

Poetry Coalition to Launch "Poetry & Disability Justice" Initiative

"This year, the 25+ organizations nationwide that comprise the Poetry Coalition will launch 'The future lives in our bodies: Poetry & Disability Justice,' the coalition’s sixth annual programming initiative...Poetry Coalition members aim to demonstrate how poetry can inspire questions in their communities about disability justice and spark increased engagement with this important theme. Member organizations are committed to offering programming that is accessible and that includes disabled, neurodivergent, and d/Deaf poets and those of diverse racial, ethnic, and gender identities, backgrounds, and communities. All organizations and others interested are invited to create programs on this theme in 2022 and share their efforts using the hashtags #DisabilityJustice and #PoetryCoalition. For some additional resources to assist with programming, particularly in creating accessible programming, click here.

U.S. Surgeon General Creates Community Toolkit for Addressing Health Misinformation

"The U.S. Surgeon General’s Community Toolkit for Addressing Health Misinformation, developed in collaboration with the HHS Office of Evaluation Sciences (OES), provides specific guidance and resources for health care providers, educators, librarians, faith leaders, and trusted community members to understand, identify, and stop the spread of health misinformation in their communities." For information about the toolkit (a 22-page overview of health misinformation, and resources to stop it), and links to a “Talk to Your Community About Health Misinformation” Infographic, a “Health Misinformation Checklist” Infographic, and the Surgeon General's press release, click here.

"Psychiatrist with Philosophical Interests" leads "Conversations in Critical Psychiatry," a Psychiatric Times Series

Awais Aftab, who describes himself as a "psychiatrist with philosophical interests" in his Twitter bio, leads "Conversations in Critical Psychiatry," which, he says, "explores critical and philosophical perspectives in psychiatry and engages with prominent commentators within and outside the profession who have made meaningful criticisms of the status quo." Among those interviewed are Allen Frances, M.D., author of Saving Normal; Sandra Steingard, M.D., and G. Scott Waterman, M.D., on "Integrating Academic Inquiry and Reformist Activism in Psychiatry"; Susannah Cahalan, author of Brain on Fire: My Month of Madness, on "50 Shades of Misdiagnosis"; Kathy Flaherty, J.D., executive director of the Connecticut Legal Rights Project, Inc., on "Reconsidering Care and Coercion in Psychiatry"; Nev Jones, Ph.D., on "Phenomenology, Power, Polarization, and the Discourse on Psychosis"; Dainius Puras, M.D., on "Global Psychiatry's Crisis of Values"; and many others. For the archived interviews, click here.

CNN Offers “A Guide to Helping and Getting Help During the Coronavirus Crisis”

CNN writes: “The coronavirus pandemic is overwhelming, and one of the most excruciating parts for many people is the feeling of utter helplessness in the face of widespread suffering and hardship. CNN’s Impact Your World has compiled a list of donation opportunities and tips to help those affected by the crisis. Click on a category or scroll down to browse a list of organizations, resources and ideas. Need help? Most categories also include resources for financial, emotional or social support.” For the free guide, click here.

U.S. DOL Releases Guidance on FMLA Leave and Mental Health

The U.S. Department of Labor’s newly issued Fact Sheet #280 about the Family and Medical Leave Act (FMLA) explains when eligible employees may take FMLA leave to address mental health conditions, and new Frequently Asked Questions (FAQs) offers additional information. (Although the FMLA covers public and private employers nationwide, only those private employers who have 50 or more employees for at least 20 workweeks in a year are required to provide their eligible employees with FMLA leave.) For details, click here.

Hearing Voices Network Is Now Hosting Online Groups

“There are now ONLINE opportunities to connect, share experiences, and find mutual support,” the Hearing Voices Network (HVN) writes. “These groups are accessible via web-based platforms and by phone…Online groups are specifically for those with personal lived experience with hearing voices, seeing visions, and/or negotiating alternative realities. They are voice-hearer facilitated. With further questions and for details on how to access the group[s], please email info@hearingvoicesusa.org.” To read this announcement online and for more information, click here.

Virtual Group Works to Advance Peer Research Capacity, Leadership, and Involvement

Nev Jones, PhD—a strong advocate for building research capacity, leadership, and involvement among peers, survivors, and service users—leads a virtual group dedicated to this effort. Dr. Jones—assistant professor, School of Social Work, University of Pittsburgh—was part of the team that developed “User/Survivor Leadership & Capacity Building in Research: White Paper on Promoting Engagement Practices in Peer Evaluation/Research (PEPPER),” published by the Lived Experience Research Network. For the white paper, click here. Anyone interested in joining the virtual group can email Nev at nev.inbox@gmail.com.

Mad In America Invites You to Submit Your Personal Story (Within Certain Guidelines)

Mad In America writes: “A ‘personal story’ is defined as your story of being in relationship to psychiatry and/or the mental health system, whatever that means to you. It might involve your opinions and analysis of what happened to you, as well. It can be about a specific event, or about your overall journey, provided it fits the length requirements (1,500 to 3,000 words) and has a narrative arc. The piece should be about your personal experiences, not psychiatry or the mental health system in general. Submissions should fall under the theme of rethinking psychiatry and the mental health system, and should be original works not previously published elsewhere. For examples of the types of stories we publish, view our personal stories archive here.” For more information and/or to submit a personal story, click here.

Seven Ways to Keep a Digital Copy of Your Vaccination Card on Your Smartphone

“You'll need proof of vaccination to go back to work or enter many restaurants, gyms and event venues, so keep your COVID-19 card handy.” This is the advice of CNET.com, a tech support website. Besides the obvious—taking a photo of the card to store on your phone—there are six other suggestions. For details, click here. (Courtesy of Yvonne Smith)

ISPS-US Offers an Array of Archived Webinars—Free but Donations Are Welcomed

The ISPS-US (The International Society for Psychological and Social Approaches to Psychosis-US Chapter) is offering a whole raft of archived webinars, which are free (although donations are welcomed). Among the webinars are "Cognitive Behavioral & Related Therapies for Psychosis: Diverse Approaches to Supporting Recovery," "How Can the Uncontainable Be Contained? Paradoxes of Madness & Philosophy," "Robert Whitaker: The Rising Non-Pharmaceutical Paradigm for 'Psychosis,'" "Life with Voices: A Guide for Harmony," "COPE Project: Non-Pharmaceutical Research on Influencing Voices and Visions," "What Hurts and What Helps In Treatment For 'Psychosis': Insider Perspectives," and many others. For more information and to access the webinars, click here.

“Where DNA and Medications Meet”

Not all drugs are effective for all people; therapeutic response rates for many drugs are only 50%-75%. “OneOme, co-founded by [the] Mayo Clinic, provides evidence-based pharmacogenomic solutions that help improve patient outcomes and reduce costs through more personalized medication decisions.” OneOme’s RightMed Test is “a doctor-ordered pharmacogenomic (PGx) test that analyzes your DNA and provides your doctors with genetic information to help them determine how you may respond to certain medications. The results may help your doctors reduce medication trial and error, minimize risk of side effects, save you time and money, and make more informed prescribing decisions. Because your DNA doesn’t change over time, your doctors can use your test results to make more personalized medication decisions for you over the course of your lifetime.” For more information, click here. (Courtesy of Robin Osborne)

Doors to Wellbeing Offers “State Selfies: A Picture of Peer Services Reported by Peers”

Doors to Wellbeing’s “Peer Album” is a directory of nearly 600 peer-run organizations throughout the U.S. They invite updates and offer instructions for providing them and add, “If your entry has not made this first draft, we encourage you to re-submit.” For the 158-page directory, click here.

Disclaimer: The Clearinghouse does not necessarily endorse the opinions and opportunities included in the Key Update.

About The Key Update

The National Mental Health Consumers’ Self-Help Clearinghouse is now affiliated with the Temple University Collaborative on Community Inclusion.

The Key Update is the free monthly e-newsletter of the National Mental Health Consumers’ Self-Help Clearinghouse. Volume 19, No. 6, December 2022. For content, reproduction or publication information, please contact Susan Rogers at selfhelpclearinghouse@gmail.com. Follow Susan on Twitter at @SusanRogersMH

 

 

 


Key Update, November 2022, Volume 19, Number 5

The National Mental Health Consumers’ Self-Help Clearinghouse is affiliated with the Temple University Collaborative on Community Inclusion.

TO CONTACT: THE CLEARINGHOUSE: SELFHELPCLEARINGHOUSE@GMAIL.COM  … SUSAN ROGERS: SUSAN.ROGERS.ADVOCACY@GMAIL.COM … JOSEPH ROGERS: JROGERS08034@GMAIL.COM 

THE KEY UPDATE IS COMPILED, WRITTEN, AND EDITED BY SUSAN ROGERS, DIRECTOR, NATIONAL MENTAL HEALTH CONSUMERS’ SELF-HELP CLEARINGHOUSE.

NOTE: THE "FROM PREVIOUS EDITIONS OF THE KEY UPDATE BUT STILL FRESH!" DEPARTMENT, WHICH IS DIRECTLY BELOW THE MONTHLY CRIMINAL LEGAL SYSTEM DIGEST, INCLUDES ITEMS THAT HAD BEEN POSTED "ABOVE THE FOLD" IN EARLIER EDITIONS BUT ARE STILL RELEVANT. THESE INCLUDE ONGOING RESEARCH STUDIES THAT ARE STILL SEEKING PARTICIPANTS, AS WELL AS UPCOMING WEBINARS AND CONFERENCES, AND OTHER ITEMS OF CONTINUED INTEREST. DON'T MISS IT!

***

NEWS

Study Examines “The Economic Burden of Mental Health Inequities in the United States”

In “The Economic Burden of Mental Health Inequities in the United States,” the Satcher Health Leadership Institute (SHLI) reports on a four-year period (2016-2020) when, at minimum, nearly 117,000 lives and approximately $278 billion could have been saved. This study, led by Daniel E. Dawes JD, “aims to close an important gap in behavioral health and health equity research relative to mental health inequities.” “For the first time,” Dawes writes, “there is tangible evidence demonstrating how decades of systemic health inequities have yielded significantly worse outcomes for racial and ethnic minoritized, marginalized, and under-resourced populations.” For more information and to download the free, 62-page report, published by SHLI at the Morehouse College of Medicine, click here.

A Treatment for Schizophrenia? What about Dicing with Ego Death? Researchers Seek Answers about Psychedelics. 

There has recently been a surge in research into psychedelic drugs because clinical studies have shown that microdosing such drugs as LSD, psilocybin (’shrooms) and mescaline can help treat anxiety, mood, and substance use disorders; suicidal ideation, and PTSD. But “Could Psychedelic Drugs Have a Role in the Treatment of Schizophrenia?” (click here). (See also “New Paradigms of Old Psychedelics in Schizophrenia” [click here].) Meanwhile, some people are using psychedelics to pursue “ego death,” i.e., “a loss of one’s sense of self.” However, “[w]hile some of those who seek out ego death find themselves happier after the experience, the scientific jury is still out on the topic,” according to “Why more people are seeking out ‘ego death’ via psychedelic drugs” (click here), in Salon. (Courtesy of Kevin Fitts)

CONFERENCES, TRAININGS, AND WEBINARS

You Are Invited to a National Stakeholder Call with the CMS Administrator (November 1)

On November 1, 2022, from 3 p.m. to 4 p.m. ET, the Centers for Medicare & Medicaid Services (CMS) will provide an update on their recent accomplishments and—CMS writes—“how our cross-cutting initiatives are advancing CMS's Strategic Plan.” After registering, you will receive a confirmation email containing a link to join the call. When you click on the link on November 1, “you will see a message stating that the host will allow you to join the event momentarily. Please continue to wait at that screen until the CMS team begins the call.” These national stakeholder calls will be held quarterly. To register, click here.

Free, Virtual Alternatives 2022 Conference Publishes Exciting Schedule Details!

The National Coalition for Mental Health Recovery is finalizing plans for the FREE—donations are welcome!—virtual Alternatives 2022, on November 2 and November 3, from 1 p.m. to 7 p.m. ET; and November 4, from 1 p.m. to 4 p.m. ET. The conference theme is “Our Roots, Advocacy, Policies & Future.” Each day will feature keynote presentations offering a variety of perspectives on the past, present, and future of the peer movement. For details of the speakers and presentations, click here. Action Groups will meet every day. In addition to time dedicated to strategic planning, there will be short presentations from subject experts. For more information, click here. Networking, arts, and movement sessions are scheduled from 6 p.m. to 7:00 p.m. ET on Nov. 3 and Nov. 4 (click here). To register, click here.

Rutgers University Sponsors Free Wellness Self-Care Program for Service Providers

The Wellness Training Learning Collaborative of the Rutgers Center of Alcohol and Substance Use Studies Is sponsoring a series of free wellness trainings, designed as stand-alone sessions, for health care professionals. They write: “Join us to engage in a series of interactive sessions to empower [health care] professionals to practice simple self-care strategies to stay well. Learn how to build these wellness self-care habits into day-to-day life.” The upcoming sessions are on Nov. 3, Nov. 17, and Dec. 8, 2022; and Jan. 19 and Jan. 26, 2023. For descriptions and to register for one or more of the sessions, whose times vary, click here and scroll down to pages 4 and 5.

Mental Health America to Present Two Free Webinars in Early November

On November 3 at 1 p.m. ET, Mental Health America (MHA) will present “Creating a Mental Health Strategy with DEIB at the Core.” “Developing a meaningful mental health strategy with diversity, equity, inclusion, and belonging (DEIB) in mind affects the culture, employees’ feelings of confidence and inclusion, and opportunities available to employees with diverse backgrounds. This panel-style webinar will discuss ways to approach your organization’s mental health strategy with DEIB at its core.” And on November 9 at 1 p.m. ET, MHA will present “Who Cares for the Caregiver?” “This webinar will answer that question and provide encouragement to caregivers, as well as offer tips to non-caregivers on how to support caregivers in their life.” For more information and to register for either or both webinars, click here.

Wildflower Alliance to Host a Virtual 16-Hour Training on the “Alternatives to Suicide” Approach

When Conversation Turns to Suicide is “a 16-hour training based on the Alternatives to Suicide approach, and intended as an alternative to ASIST, QPR, and similar approaches that remain rooted in conventional medicalized systems,” the Wildflower Alliance writes. “Participants will learn common myths about suicide, a framework for being in conversation with someone who is struggling, the links between trauma (including systemic oppression) and suicide, the importance of power sharing, and more!” The four-part training will be held on November 7, 8, 14, and 15, from 12:30 p.m. to 4:30 p.m. ET, via Zoom. Tickets are on a sliding scale from $25 to $200; sales end on November 6. For details and to register, click here. (Courtesy of Judene Shelley)

Pathways Vermont to Host a Training on “Soteria: The Power of Human Connection”

On November 9, 2022, at 1 p.m. ET, Pathways Vermont will host a three-hour interactive online workshop on Soteria House. “In this workshop, we’ll cover the history of Soteria and its place in the larger history of mental health reform movements dating back to the 1950s…” For details about the rest of the agenda, and to register, click here.  (“Tickets for this event are $50 per person. If this amount is a barrier to your attendance, please contact training@pathwaysvermont.org to explore possibilities.”) (Courtesy of Jim Gottstein)

“Madness: Fighting for Justice in Mental Health,” Streaming Free on Nov. 25-27

The 28th conference of the Disruption Network Lab (#DNL28) will take place November 25-27, 2022, in Berlin, Germany–and will be streamed internationally for free! The organizers write: “What does it mean to have a just mental health care system and who has access to it? Who decides who is labeled as mad?” Wilda White is among the keynote speakers. For details and to obtain a ticket, click here.

Doors to Wellbeing Will Host Its Next Free Webinar on November 29

On November 29, 2022, at 2 p.m. ET, Doors to Wellbeing will host the latest webinar in its monthly one-hour series. The topic will be “Peer Internship Program: Where Lived and Work Experience Make the Difference.” “Learn about [the Peer Internship Program in Delaware] and how it is benefiting their community.” For more information and to register, click here

30th Annual (Virtual) Forensic Rights and Treatment Conference, Nov. 30-Dec. 1

The theme of Drexel University’s 30th Annual Forensic Rights and Treatment Conference, to be held November 30-December 1, 2022, is Homeward Bound: Exploring Issues Faced by Justice-Involved Persons. Drexel writes: “The conference will be available to registrants until December 31, 2022, and you will be able to see all of the workshop offerings. Once you complete the evaluation tool and a validation tool, you will receive your CE credit within two weeks…The times represented on the brochure may slightly change in the virtual event.” Questions? Write to bheweb@drexel.edu or call us at 215.831.4055. For more information and to register, click here.

RESEARCH OPPORTUNITIES

Young Adults with Psychiatric Diagnoses Are Sought for Study on Community Participation

The Temple University Collaborative on Community Inclusion is recruiting young adults (ages 18-30) with a diagnosis of schizophrenia, bipolar disorder, or major depression to take part in ConnectionsRx, designed to support engagement in meaningful community activities. Participants will be enrolled in the peer-led study for six months, and receive support to help meet community participation goals. Interviews (approximately 60 minutes each) will take place on Zoom. Participants will receive a $15 Amazon gift card (to a maximum of $45) for each survey completed. For the website, click here. Questions? Write to ConnectionsRx@temple.edu

Researchers Ask, How Can Community-Based Organizations Use Data to Thrive?

“Researchers at Live & Learn Inc. are exploring the needs and preferences of community-based organizations that want to use data to improve and sustain their programs. What we learn will help us to develop tools to support community-based organizations to conduct program evaluation. If you represent a community-based organization that offers programs and services to support the well-being of people with mental health and substance use concerns, please take 15 minutes to complete our survey. Survey respondents will be entered into a raffle for a $25 eGift card. After the survey, we may invite you to participate in an interview, for which you will be compensated. Responses to the survey and interviews will not be shared with anyone outside of the research team. For more information, visit our website or contact Morgan Pelot: morgan@livelearninc.net, 805.244.5262.”

South Southwest MHTTC Launches Youth and Young Adult Peer Supporters Survey

“Are you a peer specialist who provides peer support to other people under the age of 30? We want to hear from you! Please fill out the survey to assist the South Southwest Mental Health Technology Transfer Center (South Southwest MHTTC) in learning more about youth peer support across the country! The intent is to be able to include these peer supporters in research, training, and technical assistance activities surrounding youth peer support. The form should take 5-10 minutes to fill out, and can be done from a phone or a computer browser. To take the survey, click here.” Questions? Write to southsouthwest@mhttcnetwork.org.

RESOURCES

From You, I Get the Story: Amplifying the Voices of Students with Mental Health Issues on College Campuses

This free, 33-page manual, published by the Temple University Collaborative on Community Inclusion, “brings more than 50 student voices to the forefront to help college faculty, administrators, and staff better understand and serve students with significant mental health issues. Read their thoughts about what students think faculty, staff, administrators, and other students should understand about them, advice they would give to other students about being successful and dealing with discrimination, and more. (The title is excerpted from “See Me, Feel Me,” by The Who.) To download From You, I Get the Story: Amplifying the Voices of Students with Mental Health Issues on College Campuses, click here.

Wellness Activity Manual Helps People Learn Healthy New Behaviors & Habits

The free, 64-page Wellness Activity Manual: A Guide for Group Leaders “focuses on helping people with mental health conditions learn new behaviors and habits to improve their personal wellness. Each lesson has been constructed as a group activity that maximizes learning through building positive interpersonal relationships and actively involving participants. The Wellness Group meets weekly for one hour. The manual contains nine lessons focused on physical, emotional, and intellectual wellness. Each lesson can be used as a stand-alone group or combined into a multi-session series.” For details and to download the free manual, click here. (Courtesy of Peggy Swarbrick, via Jacek Haciak)

MHA Toolkit Offers Free Mental Health Resources for Students, Parents, and Teachers

“Mental Health America has created free resources that look at the issues young people face that are having an impact on their mental health and offer tips on how to deal with these issues and the resulting emotions. The MHA toolkit can also help parents and school personnel better understand the issues, such as the effects of social media on youth mental health and how to be supportive.” To download the free toolkit, click here.

30 Comics About Mental Health That You Might Relate To

“My comics cover a variety of topics, like love, depression, self-reflection, and anxiety,” artist Holly Chisolm writes. “After about 6 months of making comics, I decided to quit my job and freelance part-time so that I could dedicate more time to making and promoting Just Peachy. In the future, I hope to make a book and raise awareness about mental illnesses and my personal struggle with depression.” For Holly’s comics, click here.

The November 22 Digest of Articles Offering Healthy Lifestyle Advice

For “Taking a break from the news can improve mental health, study finds,” click here. For “Small Daily Practices to Boost Mental Health: Positive psychological behaviors promote good mental health hygiene, which reduces stress and improves overall well-being,” click here. For “In stressful jobs, depression risk rises with hours worked, study in new doctors finds,” click here. For “Patients believe in psychotherapy more when practitioners demonstrate warmth and competence,” click here. For “How to Fall Back Without Missing a Beat: Earlier mornings and shorter evening light can be a tough adjustment. But there are ways to prepare for the end of daylight saving,” click here.

The November 2022 Digest of Articles about the Criminal Legal System, in Which Many Individuals with Mental Health Conditions Are Incarcerated (and the Key Update continues after this Digest)

For “‘A Moral Disgrace’: How The U.S. Stopped Counting Deaths Behind Bars: The Department of Justice is failing miserably at collecting data on deaths. Experts say that makes it hard to identify the worst prisons and jails,” click here. For “The First Step Act’s Prison Reforms: The law has failed to reach many of its intended beneficiaries in federal prisons. Congress and the Department of Justice must act to fulfill its promise,” click here. For “Banned From Jobs: People Released From Prison Fight Laws That Keep Punishing Them. Post-conviction employment bans put many on the road back to prison,” click here. For “Defund Social Workers. They’re often just cops by another name,” click here. For “A new community safety blueprint: How the federal government can address violence and harm through a public health approach,” click here. For “I spent years in solitary confinement. End this horrific mistreatment of people in prison. Choose care over punishment. Listen to alternatives proposed by people who, like me, have survived the same prison conditions,” click here. For “Biden pledged to end solitary confinement. Federal prisons are increasing its use. Data from the federal Bureau of Prisons shows inmates held in "restrictive housing" increased 7% from May to September and more than 11% from spring 2021,” click here. For “Increasing the Demand for Workers with a Criminal Record: The partner for our study is a large nationwide staffing platform based in the United States, which third‐party businesses use to connect with available workers,” click here. For “How I Survived a Year in ‘the Hole’ Without Losing My Mind: In prison, going to ‘the hole’ can mean spending 23 hours a day alone in a tiny cell. Here, incarcerated author Michael J. Nichols shares his top 10 tips for enduring long stretches of ‘administrative segregation,’” click here. For “Shackles, depression, 100 days in solitary: Records shed light on NC prison suicides,” click here. For “Rikers Could Soon Have a Federal Receiver—How Have Takeovers Worked in Other U.S. Jails? Corrections departments in California and Chicago highlight benefits and challenges of moves to place chaotic lockups under outside control,” click here. For “International Wrongful Conviction Day is Nothing to Celebrate | Opinion,” click here. For “They’re in federal prison, and they’re done staying quiet. One D.C. man in a federal facility describes a ‘revolving door of death and depression’ in a new report that offers a unique look into the nation’s prisons,” click here. For “New Yorkers can now look up the records of police they encounter,” click here. For “What an Alabama Prisoners’ Strike Tells Us About Prison Labor: Exploitation of incarcerated people isn’t limited to lockups. Voters in some states have a chance to curtail it,” click here. For “Murder Rate Mystery: New FBI Crime Stats Don’t Include NYC, LA. Biggest US cities haven’t converted to new reporting system. Policymakers urged to exercise care amid data ‘blind spots,’” click here. For “What Can FBI Data Say About Crime in 2021? It’s Too Unreliable to Tell. The transition to a new data system creates huge gaps in national crime stats sure to be exploited by politicians in this election year,” click here. For “NYPD is Illegally Sending People to Rikers Without Ever Seeing a Judge, Lawsuit Claims: ‘Nothing short of an extrajudicial campaign of terror and kidnapping,’” click here. For “Opinion: For those freed after wrongful convictions, gratitude is a lot to ask,” click here. For “ ‘It’s Crushing’: The Lasting Trauma of the Exonerated. Proving your innocence is only part of the battle to put your life back together,” click here. For “‘A Moral Disgrace’: How The U.S. Stopped Counting Deaths Behind Bars: The Department of Justice is failing miserably at collecting data on deaths. Experts say that makes it hard to identify the worst prisons and jails,” click here. For “A Jury Acquitted Them of Various Charges. They Served Prison Time for Them Anyway. The Supreme Court may soon consider if acquitted conduct sentencing is illegal,” click here. For “Thousands of eligible Wisconsin voters face ballot barriers in jail: While many incarcerated people retain the constitutional right to vote, Wisconsin counties can do more to ensure that right can be exercised,” click here. For “Opinion  Why D.C. has rehired fired police—and given them back pay,” click here. For “The Department of Corrections Couldn’t Stop This Lifer From Winning a Pulitzer Prize—It Tried,” click here. For “A Los Angeles Supportive Housing Program Interrupted the Cycle Between Jail and Homelessness—and Largely Paid for Itself,” click here.

FROM PREVIOUS EDITIONS OF THE KEY UPDATE BUT STILL FRESH!

OPPORTUNITIES TO PARTICIPATE IN RESEARCH

Researcher Seeks Peer Supporters for Survey of Burnout and Job Satisfaction

“Evidence has demonstrated that peer support is beneficial to individuals receiving services for mental health treatment,” writes PhD candidate Melody Madaris, a therapist who has been diagnosed with bipolar disorder and PTSD. “However, there is little research showing how providing peer services affects the peer support worker. The goal of this 20-minute, anonymous survey—for which respondents will not be compensated—is to give supervisors and policy makers information to better support peers in the workforce.” About her experience as a therapist, Melody has written, “I have seen how my just being real about my own story with clients has sometimes created better outcomes than the use of regimented, evidence-based curriculums.” For the informed consent statement (pages 1 and 2), and the Institutional Review Board (IRB) approval letter (page 3), click here. To participate in the survey, click here.

Are You Interested in Pursuing Graduate School and/or a Research Career? Read Below.

Stephania Hayes (UC Davis), Shannon Pagdon (Columbia/NYS Psychiatric Institute/University of Pittsburgh), and Nev Jones (University of Pittsburgh) write: “We are gathering information from people with lived experience in the Coordinated Specialty Care (CSC) or early psychosis space (including peer specialists, current/former CSC participants, and CSC youth coordinators) who are potentially interested in pursuing graduate school and/or a research career. All of us identify as having lived experience, work in CSC, and are invested in supporting the next generation of scholars who also have lived experience. We would like to create a discussion group and/or other supports for people interested in this career path. The link below leads to a very brief survey that will help us understand the level of interest in such supports, as well as areas of career interest. (Please note that this is not a research study.)” To participate in the anonymous survey, click here.

“Help Us Map the Landscape of Lived Experience and Family Involvement in 988 Policy and Related Crisis Response System Planning!”

“As 988 implementation rolls out alongside additional efforts to strengthen crisis response systems throughout the U.S., it's important to gauge the extent to which direct stakeholders (i.e., individuals who use or have used mental health crisis services and their families) have been involved in related policy, implementation and evaluation at the local, regional, state or federal levels. To map out involvement nationally, Mental Health America (lead: Kelly Davis), Nev Jones (University of Pittsburgh) and Keris Myrick (National Association of Peer Supporters) have developed a survey aimed at documenting the extent of stakeholder involvement, the forms this involvement has taken, and, where available, what concerns stakeholders have raised. Any individual with knowledge of lived experience and family involvement is eligible to participate; individuals completing the survey do not have to have lived experience themselves.” For more information and to access the survey, click here.

Survey Seeks Respondents Who Have Taken Mental Health Courses Involving Their Own Diagnoses

Have you taken a mental health course that covers a diagnosis you have? If so, you are invited to participate in a brief, anonymous, online survey--designed by a University of Pittsburgh MSW student--about what it's like for students with lived experience to study their own diagnoses in a classroom. The survey covers students' experiences of studying such subjects as "abnormal psychology," "psychopathology," and diagnosis and assessment when their own diagnoses are covered. "The goal of the project is to better understand what it feels like to take courses in which someone’s diagnosis is being taught/defined/discussed. There is currently no literature or reporting on the experiences of students in the above circumstances, or the associated impact." Interested? Please click here. Questions? Please email the project lead, Charlie Clement, at cjc204@pitt.edu

Peer Support in Higher Education Survey Seeks Respondents

“Peer support programs are growing on college campuses across the U.S. Mental Health America, Doors to Wellbeing, and the Temple University Collaborative on Community Inclusion want to better understand the availability of peer support in higher education as well as the experiences and needs of students accessing peer support programs…We hope to use this research to support the expansion of peer support in higher education, including developing a national database of peer support programs in higher education and documenting pressing issues in campus programs…You may also indicate if you are interested in having your school’s peer support program listed in a national database of peer support programs in higher education.” For more information and to complete the survey, click here

BU Seeks Peer Support Specialists for a Research Study

The Center for Psychiatric Rehabilitation at Boston University is developing and testing the effectiveness of a coaching service called Coaching and Advancement for Peer Providers (CAPP) “to increase organizational commitment and job satisfaction and decrease turnover among mental health peer providers.” BU CPR writes: “We need Peer Support Specialists (PSS) to participate in our study. Who can participate? People who are in a paid job as a Peer Support Specialist providing support to other people with mental health challenges, who are employed at least 10 hours per week, who have worked for the past six months in a mental health program, and who are experiencing stress because of challenges in the workplace. The study involves 16 one-hour sessions of coaching over a four-month period designed to help you with your job, meeting online (through Zoom, for example) with your coach, and filling out surveys one time before coaching starts and three additional times. You will have a 50/50 chance of getting a coach or having a one-time meeting to give you information about challenges at work. Benefits? You may learn strategies to help make work less stressful.” For more information, click here. For questions, contact Principal Investigator E. Sally Rogers, Sc.D., at erogers@bu.edu or 617-353-3549.

Supported Education Survey Needs Your Help

Do you operate a program that provides dedicated supported education services for individuals with psychiatric disabilities/mental health conditions? If so, you are invited to complete the survey at the link below. The primary goal of the survey is to help create a National Supported Education Database (NSEdD) that will be "a searchable listing of diverse supported education programs and services for individuals experiencing psychiatric disabilities and/or mental health challenges...across the US and its territories." The NSEdD project is sponsored by the Substance Abuse and Mental Health Services Administration (SAMHSA) and co-administered by the five SAMHSA-funded national consumer and consumer-supporter technical assistance centers, in collaboration with research partners Drs. Nev Jones (University of Pittsburgh) and Mark Salzer (Temple University). For a link to the survey, which includes a definition of supported education, click here. For a flyer with information about the survey, click here.    

National Survey on Student Rights, Discrimination, and Accommodations in Higher Education Seeks Respondents  

"Have you experienced psychiatric disability-based discrimination or the denial of an accommodation in a postsecondary institution in the United States? Interested in informing national advocacy focus on psych disability rights in higher ed? Mental Health America (lead: Kelly Davis) and collaborators Dr. Nev Jones (University of Pittsburgh), Stefanie Kaufman-Mthimkhulu (Project LETS) and Brit Vanneman Esq. (Bazelon Center for Mental Health Law) have developed "a survey aimed at providing a more comprehensive understanding of student experiences of campus-based discrimination, mandated leaves of absence, and/or denial of academic, administrative and/or student-work accommodations in the U.S. Data will be used to inform national advocacy efforts and future projects, and in reports, presentations and publications." For eligibility and to access the survey, click here.

If You've Had, or Been Labeled with, "Negative Symptoms" in the Context of Psychosis...

"If you have experienced or been labeled with 'negative symptoms' in the context of psychosis, please consider contributing an anonymous account of your views and experiences," Dr. Nev Jones writes. "Currently, there is nowhere one can go to find lived experience perspectives/accounts on this topic—even though 'negative symptoms' regularly feature in research and clinical trials. Help us change this!" This survey is a companion to Psychosis Outside the Box; for that survey, click here. For more information and/or to share your story about "negative symptoms," click here.

"Are You Between the Ages of 21 and 60 and Drink Alcohol?"

"Researchers at the National Institutes of Health (NIH) are seeking adults--[both smokers and non-smokers]--to study whether a gene and smoking may affect drinking alcohol. Volunteers should be healthy and drug-free, and not seeking treatment for alcohol-related problems. Research participation includes three outpatient visits at the NIH Clinical Center in Bethesda, MD; alcohol consumption; brain scans (MRI), blood draws, and filling out questionnaires. There is no cost to participate and compensation may be provided." For more information, click here. (Courtesy of Fran Hazam)

TU Collaborative Seeks Participants for Its Parenting Through Leisure Project; See Also the TU Collaborative's Parenting Resources, Including Information on Custody Issues

The Temple University Collaborative on Community Inclusion is seeking parents with lived experience of a mental health condition to participate in a paid research study. The TU Collaborative writes: "Our program, Parenting Through Leisure, focuses on helping parents with a serious mental illness participate in leisure activities with their child. We are looking for individuals who are 18 and older; are an adult parent with a diagnosis of schizophrenia-spectrum disorder, bipolar disorder, or depression; have a child who is 7 to 15 years old and is interested in participating in family leisure with you; have legal visitation rights, joint custody or full custody of the child, with at least weekly contact; and have a desire to engage in more leisure activities with their child." For details about the study and the remuneration as well as other benefits to eligible participants, and a link to sign up, click here. Questions? Please contact TUCollab@temple.edu. And for the TU Collaborative's Parenting web page--which includes links to many resources for parents with lived experience, including information about custody laws and a model family reunification statute--click here.

Survey Seeks Respondents Who Are in Administrative/Leadership Positions in the Mental Health Field

If you are in an administrative/leadership position in the mental health arena, “the Group for the Advancement of Psychiatry (GAP) Committee on Psychiatric Administration and Leadership invites you to participate in the International Survey on Administrative Psychiatry. The survey has two purposes: 1. To identify the concerns and needs of mental health professionals/psychiatrists in administrative and leadership positions. 2. To determine training needs in administrative psychiatry. We ask you to complete this brief, [15- to 20-minute] questionnaire to help us in developing recommendations for action. We also want to let you know that, if you fill out this questionnaire, you permit the committee to use your anonymous data for scientific work.” Peer providers are included. For the survey, click here. (Courtesy of Oryx Cohen)

International Survey on Antipsychotic Medication Withdrawal Seeks Respondents

“Have you taken antipsychotic medication (such as Zyprexa, Seroquel, Abilify, Risperdal, Haldol, Geodon, Stelazine, and others), for any condition or diagnosis, with or without other medications? And did you ever stop taking antipsychotics, or try to stop taking them? Are you 18 years or older? If yes, you can take this survey about antipsychotic withdrawal and attempts to withdraw, including if you stopped taking them completely or if you tried to come off and still take them. The survey aims to improve mental health services by better understanding medication withdrawal. Lead researcher is Will Hall, a therapist and Ph.D. student who has himself taken antipsychotics. Service users/survivors/consumers from around the world also gave input. The study is sponsored by Maastricht University in the Netherlands; co-sponsors include the International Institute for Psychiatric Drug Withdrawal. Questions? Please contact will.hall@maastrichtuniversity.nl.”  For more information or to take the survey, click on www.antipsychoticwithdrawalsurvey.com

CONFERENCES

“So You’re Ready to Work; Now What?”

On October 11, 2022, at 12 p.m. ET, Rebel Leadership Group LLC and CAFE TAC launched a new, 12-part interactive employment training series! “This series will be recovery-centered and strengths-based, examining the process of finding, applying for, and succeeding in a job through the lens of recovery, helping attendees to identify strengths and skills, align the job-seeking and employment experience with their personal recovery path, and providing opportunity for discussion in a peer-centered space…Registering for any of the 12 sessions will automatically register you for all future sessions.” For details and to register, click here

National Association for Rural Mental Health Conference to Be Held November 2-4, 2022

The 47th Annual National Association for Rural Mental Health (NARMH) conference will be held at the Embassy Suites in Boulder, Colorado, November 2-4, 2022. The theme is “Beyond the Pandemic—Building on Rural Resiliency.” The early-bird registration fee is $500; for people who are retired or students, it’s $250. For more information as it becomes available, click here.

The International Conference on Trauma and Mental Health Will Take Place November 3-4

The International Conference on Trauma and Mental Health will take place November 3-4, 2022, in San Francisco. For more information, click here.

ISPS-US (Hybrid) 2022 Conference to Be Held November 4-6

The 2022 ISPS-US (International Society for Psychological and Social Approaches to Psychosis—U.S. Chapter) conference will be held November 4-6 in Sacramento, California, as well as online. The conference theme is Opportunity Through Experience: Psychosis, Extreme States, and Possibilities for Transformation. ISPS-US writes: “People with lived experience, family members, clinicians, and researchers are all invited to propose presentations that promote mutual collaboration and respect, and can allow us to offer each other both greater understanding and more light. We especially welcome proposals from members of marginalized groups whose experiences have included systemic as well as relational traumas and challengesFor more information, click here. (Courtesy of Jacek Haciak)

ISEPP’s 2021 Conference Is Available to View Online

The 2021 conference of the International Society for Ethical Psychology and Psychiatry can be viewed online. The theme of the conference, convened October 9-10, 2021, was “The Destructive Propaganda of the Mental Health Industry: How Did We Get Here? Where Are We Going?” It was dedicated to the life and memory of Paula J. Caplan, Ph.D. To buy a ticket to watch the full conference recording for $22.85, click here.

Save the Date! MHAAO to Host Peerpocalypse 2023 May 8-11

The Mental Health & Addiction Association of Oregon will host the tenth annual Peerpocalypse conference May 8-11, 2023. More information will follow on the conference web page; stay tuned!

OTHER OPPORTUNITIES AND RESOURCES

“Crisis Now” Offers a “Roadmap to Safe, Effective Crisis Care”

The goal of Crisis Now: Transforming Crisis Services—led by the National Association of State Mental Health Program Directors (NASMHPD) and developed with the National Action Alliance for Suicide Prevention, the National Suicide Prevention Lifeline, the National Council for Mental Wellbeing, and RI International—is “to provide all communities a roadmap to safe, effective crisis care that diverts people in distress from the emergency department and jail by developing a continuum of crisis care services that match people’s clinical needs.” Among the resources offered on the website are SAMHSA’s 80-page “National Guidelines for Behavioral Health Crisis Care Best Practice Toolkit” (2020), an “Overview of Crisis Funding Sources Available to States and Localities” (last updated March 2, 2022), and assessment tools, such as “How Does Your Crisis System Rate?” The Crisis Now partners write: “Are you interested in adding your organization to the list supporting Crisis Now, or do you have questions? Reach out to us at info@crisisnow.com. For the website, click here. (Courtesy of Kevin Fitts)

“What Is the Meaning of Life?” This Free Online Collection Offers Answers

Excellence Reporter offers more than “1,200 articles-interviews on ‘What Is the Meaning of Life?’ written by renowned spiritual leaders, mindfulness experts, great thinkers and authors, elders, artists, musicians, CEOs, etc.” The contributors include such renowned figures as Bertrand Russell; Carl Jung; the Dalai Lama; Eleanor Roosevelt; Epicurus; Erich Fromm; Kahlil Gibran; Buckminster Fuller; Robert Louis Stevenson; and Ron Bassman, executive director of MindFreedom International. To browse the free compendium, click here.

Rutgers Releases W-TLC Virtual Toolbox and Training/Learning Collaborative Series

“The Rutgers Center of Alcohol & Substance Use Studies has announced the release of the Wellness Training Learning Collaborative (W-TLC) virtual toolbox and Training/Learning Collaborative series…This toolkit provides peer support, individual, and organizational approaches to support the wellbeing of the critical health care workforce.” For descriptions of the 12 upcoming sessions—including two in July (July 7 and July 28), with the remaining sessions to be held August 2022 through January 2023—and to register for them, click here. For the “Journey to Wellness Guide,” click here. (Note: Information about the Journey to Wellness Guide was included in the April 2022 Key Update.)

The UIC Center’s Solutions Suite for Health & Recovery Offers Free Tools

"The UIC Center offers tools, curricula, and implementation manuals for free use in community-based programs, peer-run programs, or one's own life. You can introduce the entire complement of products to foster improved health, wellness, and mental health recovery. Or, you can choose the ones that will work best for your program or your life. The Suite was developed in collaboration with Collaborative Support Programs of New Jersey. The UIC Center is funded by NIDILRR (National Institute on Disability, Independent Living, and Rehabilitation Research). For the UIC Solutions Suite for Health & Recovery, click here. (Courtesy of Peggy Swarbrick via Jacek Haciak)

Poetry Coalition to Launch "Poetry & Disability Justice" Initiative

"This year, the 25+ organizations nationwide that comprise the Poetry Coalition will launch 'The future lives in our bodies: Poetry & Disability Justice,' the coalition’s sixth annual programming initiative...Poetry Coalition members aim to demonstrate how poetry can inspire questions in their communities about disability justice and spark increased engagement with this important theme. Member organizations are committed to offering programming that is accessible and that includes disabled, neurodivergent, and d/Deaf poets and those of diverse racial, ethnic, and gender identities, backgrounds, and communities. All organizations and others interested are invited to create programs on this theme in 2022 and share their efforts using the hashtags #DisabilityJustice and #PoetryCoalition. For some additional resources to assist with programming, particularly in creating accessible programming, click here.

U.S. Surgeon General Creates Community Toolkit for Addressing Health Misinformation

"The U.S. Surgeon General’s Community Toolkit for Addressing Health Misinformation, developed in collaboration with the HHS Office of Evaluation Sciences (OES), provides specific guidance and resources for health care providers, educators, librarians, faith leaders, and trusted community members to understand, identify, and stop the spread of health misinformation in their communities." For information about the toolkit (a 22-page overview of health misinformation, and resources to stop it), and links to a “Talk to Your Community About Health Misinformation” Infographic, a “Health Misinformation Checklist” Infographic, and the Surgeon General's press release, click here.

"Psychiatrist with Philosophical Interests" leads "Conversations in Critical Psychiatry," a Psychiatric Times Series

Awais Aftab, who describes himself as a "psychiatrist with philosophical interests" in his Twitter bio, leads "Conversations in Critical Psychiatry," which, he says, "explores critical and philosophical perspectives in psychiatry and engages with prominent commentators within and outside the profession who have made meaningful criticisms of the status quo." Among those interviewed are Allen Frances, M.D., author of Saving Normal; Sandra Steingard, M.D., and G. Scott Waterman, M.D., on "Integrating Academic Inquiry and Reformist Activism in Psychiatry"; Susannah Cahalan, author of Brain on Fire: My Month of Madness, on "50 Shades of Misdiagnosis"; Kathy Flaherty, J.D., executive director of the Connecticut Legal Rights Project, Inc., on "Reconsidering Care and Coercion in Psychiatry"; Nev Jones, Ph.D., on "Phenomenology, Power, Polarization, and the Discourse on Psychosis"; Dainius Puras, M.D., on "Global Psychiatry's Crisis of Values"; and many others. For the archived interviews, click here.

CNN Offers “A Guide to Helping and Getting Help During the Coronavirus Crisis”

CNN writes: “The coronavirus pandemic is overwhelming, and one of the most excruciating parts for many people is the feeling of utter helplessness in the face of widespread suffering and hardship. CNN’s Impact Your World has compiled a list of donation opportunities and tips to help those affected by the crisis. Click on a category or scroll down to browse a list of organizations, resources and ideas. Need help? Most categories also include resources for financial, emotional or social support.” For the free guide, click here.

U.S. DOL Releases Guidance on FMLA Leave and Mental Health

The U.S. Department of Labor’s newly issued Fact Sheet #280 about the Family and Medical Leave Act (FMLA) explains when eligible employees may take FMLA leave to address mental health conditions, and new Frequently Asked Questions (FAQs) offers additional information. (Although the FMLA covers public and private employers nationwide, only those private employers who have 50 or more employees for at least 20 workweeks in a year are required to provide their eligible employees with FMLA leave.) For details, click here.

Hearing Voices Network Is Now Hosting Online Groups

“There are now ONLINE opportunities to connect, share experiences, and find mutual support,” the Hearing Voices Network (HVN) writes. “These groups are accessible via web-based platforms and by phone…Online groups are specifically for those with personal lived experience with hearing voices, seeing visions, and/or negotiating alternative realities. They are voice-hearer facilitated. With further questions and for details on how to access the group[s], please email info@hearingvoicesusa.org.” To read this announcement online and for more information, click here.

Virtual Group Works to Advance Peer Research Capacity, Leadership, and Involvement

Nev Jones, PhD—a strong advocate for building research capacity, leadership, and involvement among peers, survivors, and service users—leads a virtual group dedicated to this effort. Dr. Jones—assistant professor, School of Social Work, University of Pittsburgh—was part of the team that developed “User/Survivor Leadership & Capacity Building in Research: White Paper on Promoting Engagement Practices in Peer Evaluation/Research (PEPPER),” published by the Lived Experience Research Network. For the white paper, click here. Anyone interested in joining the virtual group can email Nev at nev.inbox@gmail.com.

Mad In America Invites You to Submit Your Personal Story (Within Certain Guidelines)

Mad In America writes: “A ‘personal story’ is defined as your story of being in relationship to psychiatry and/or the mental health system, whatever that means to you. It might involve your opinions and analysis of what happened to you, as well. It can be about a specific event, or about your overall journey, provided it fits the length requirements (1,500 to 3,000 words) and has a narrative arc. The piece should be about your personal experiences, not psychiatry or the mental health system in general. Submissions should fall under the theme of rethinking psychiatry and the mental health system, and should be original works not previously published elsewhere. For examples of the types of stories we publish, view our personal stories archive here.” For more information and/or to submit a personal story, click here.

NASMHPD’s 2014 Webinar Series on Trauma-Informed Peer Support Is Still Relevant“

SAMHSA’s National Center for Trauma-Informed Care (NCTIC) hosted a series of three 75-minute webinars in September 2014 that introduced key concepts in NCTIC’s day-long Trauma-Informed Peer Support (TIPS) training. Peer support providers are the primary audience. For more information and to listen to the recordings and download the PowerPoint slides, click here.

PsychAlive Offers a Variety of Webinars on Mental Health Topics, Many Free, Others $15

PsychAlive is a free, nonprofit resource created by the Glendon Association, whose mission is “to save lives and enhance mental health by addressing the social problems of suicide, violence, child abuse and troubled interpersonal relationships.” Psychalive.org offers a variety of upcoming and archived webinars, many of which are free, while others are available for $15. Among the myriad topics are “From Anxiety to Action: How to Stay Sane While Fighting Climate Change,” “How to Overcome Insecurity,” “Powerful Tools to Fight Depression,” and “Understanding and Overcoming Adverse Childhood Experiences.” To check out the webinars, click here.

Learning Collaborative Webinar Series Offers Several Archived Presentations 

The Doors to Wellbeing website offers a number of webinars that you may find of interest: “The Importance of Policies and Procedures in Peer-run Organizations”; “Building Partnerships to Enhance the Peer Workforce,” by Kyneta Lee, Tim Saubers, and Todd Noack; “Handing Over the Keys: Leadership Succession Planning in Non-Profit Organizations,” by Elise Padilla and Maxine Henry; “How to Embed Strategic Planning into the Culture of Your Organization,” by Oryx Cohen; “Fundraising and Sustainability: Building your Organization by Telling the Right Story to the Right Audience”; “Developing a Board of Directors for Mental Health Organizations,” by Amey Dettmer and Matthew Federici; and “Conflict Management in Peer-Run Organizations: Tools for Effective Conversations.” Certificates of attendance are not available for any of these presentations. For more information and to register for any or all of them, click here

National Safety Council Offers a Free Webinar Series Focusing on Mental Health in the Workplace

"The impact of the COVID-19 pandemic will affect employees well beyond the initial crisis," the National Safety Council writes. "Employers have a unique ability and responsibility to address the mental health and wellbeing of their workers, which is a true organization-wide effort. This free Mental Health Webinar Series led by the National Safety Council, and first presented in August 2020, speaks to a variety of positions within an organization and how each one can address stress and mental health." Four of the five webinars are titled: "Supporting Employee Mental Health" and respectively subtitled "Resources for Employees," "Actions for Leadership," "Actions for Supervisors," and "Actions for HR Professionals." To view the free, archived webinars, click here.

Seven Ways to Keep a Digital Copy of Your Vaccination Card on Your Smartphone

“You'll need proof of vaccination to go back to work or enter many restaurants, gyms and event venues, so keep your COVID-19 card handy.” This is the advice of CNET.com, a tech support website. Besides the obvious—taking a photo of the card to store on your phone—there are six other suggestions. For details, click here. (Courtesy of Yvonne Smith)

 ISPS-US Offers an Array of Archived Webinars--Free but Donations Are Welcomed

The ISPS-US (The International Society for Psychological and Social Approaches to Psychosis-US Chapter) is offering a whole raft of archived webinars, which are free (although donations are welcomed). Among the webinars are "Cognitive Behavioral & Related Therapies for Psychosis: Diverse Approaches to Supporting Recovery," "How Can the Uncontainable Be Contained? Paradoxes of Madness & Philosophy," "Robert Whitaker: The Rising Non-Pharmaceutical Paradigm for 'Psychosis,'" "Life with Voices: A Guide for Harmony," "COPE Project: Non-Pharmaceutical Research on Influencing Voices and Visions," "What Hurts and What Helps In Treatment For 'Psychosis': Insider Perspectives," and many others. For more information and to access the webinars, click here.

“Where DNA and Medications Meet”

Not all drugs are effective for all people; therapeutic response rates for many drugs are only 50%-75%. “OneOme, co-founded by [the] Mayo Clinic, provides evidence-based pharmacogenomic solutions that help improve patient outcomes and reduce costs through more personalized medication decisions.” OneOme’s RightMed Test is “a doctor-ordered pharmacogenomic (PGx) test that analyzes your DNA and provides your doctors with genetic information to help them determine how you may respond to certain medications. The results may help your doctors reduce medication trial and error, minimize risk of side effects, save you time and money, and make more informed prescribing decisions. Because your DNA doesn’t change over time, your doctors can use your test results to make more personalized medication decisions for you over the course of your lifetime.” For more information, click here. (Courtesy of Robin Osborne)

Lived Experience Leadership Features 12 Years of Research Studies...

"Lived Experience Leadership features 12 years of research studies focused on this workforce in a range of settings, to foster a better of understanding and respect for Lived Experience as a distinct discipline and build clarity on what makes this work unique and valuable. Importantly, this body of research was led by Lived Experience researchers. Lived Experience Leadership provides clear and simple to read research summaries to allow community members and people employed within various industries the opportunity to easily understand and apply strategies within their own workplace. This website also includes easy to download definitions, audio/visual resources, and key work by other Australian and International sources. The website will continue to grow to include larger collections of our research as well as other key work. For the Lived Experience Leadership website, click here. (Courtesy of Jacek Haciak)

Doors to Wellbeing Offers “State Selfies: A Picture of Peer Services Reported by Peers”

Doors to Wellbeing’s “Peer Album” is a directory of nearly 600 peer-run organizations throughout the U.S. They invite updates and offer instructions for providing them and add, “If your entry has not made this first draft, we encourage you to re-submit.” For the 158-page directory, click here.

Disclaimer: The Clearinghouse does not necessarily endorse the opinions and opportunities included in the Key Update.

About The Key Update

The National Mental Health Consumers’ Self-Help Clearinghouse is now affiliated with the Temple University Collaborative on Community Inclusion.

The Key Update is the free monthly e-newsletter of the National Mental Health Consumers’ Self-Help Clearinghouse. Volume 19, No. 5, November 2022. For content, reproduction or publication information, please contact Susan Rogers at selfhelpclearinghouse@gmail.com. Follow Susan on Twitter at @SusanRogersMH

Key Update, October 2022, Volume 19, Number 4

The National Mental Health Consumers’ Self-Help Clearinghouse is affiliated with the Temple University Collaborative on Community Inclusion.

TO CONTACT: THE CLEARINGHOUSE: SELFHELPCLEARINGHOUSE@GMAIL.COM  … SUSAN ROGERS: SUSAN.ROGERS.ADVOCACY@GMAIL.COM … JOSEPH ROGERS: JROGERS08034@GMAIL.COM 

The Key Update is compiled, written, and edited by Susan Rogers, Director, National Mental Health Consumers’ Self-Help Clearinghouse.

NOTE: THE "FROM PREVIOUS EDITIONS OF THE KEY UPDATE BUT STILL FRESH!" DEPARTMENT, WHICH IS DIRECTLY BELOW THE MONTHLY CRIMINAL LEGAL SYSTEM DIGEST, INCLUDES ITEMS THAT HAD BEEN POSTED "ABOVE THE FOLD" IN EARLIER EDITIONS BUT ARE STILL RELEVANT. THESE INCLUDE ONGOING RESEARCH STUDIES THAT ARE STILL SEEKING PARTICIPANTS, AS WELL AS UPCOMING WEBINARS AND CONFERENCES, AND OTHER ITEMS OF CONTINUED INTEREST. DON'T MISS IT!

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The Current U.S. Drug Policy Is Not “Scientifically Coherent,” Researchers Say

“Evidence points to an incongruence between international drug policy and expert opinion about safety, abuse potential, and therapeutic potential of specific drugs,” Ohio State and Johns Hopkins University researchers noted in a recent article published in the International Journal of Drug Policy. Focusing on four drugs–psilocybin, methamphetamine, ketamine, and alprazolam (Xanax)–the researchers found that “American psychiatrists’ perceptions about safety and abuse/therapeutic potentials associated with certain psychoactive drugs were inconsistent with those indicated by their placement in drug schedules. These findings add to a growing consensus amongst experts that the current drug policy is not scientifically coherent.” For the article, click here. (Courtesy of Elizabeth R. Stone)

NCMHR Is Excited to Host Free (Virtual) Alternatives 2022: Nov. 2, 3, and 4!

The National Coalition for Mental Health Recovery (NCMHR) will host Alternatives 2022, a virtual conference, on November 2 and November 3, from 1 p.m. to 7 p.m. ET; and November 4, from 1 p.m. to 4 p.m. ET. The conference will be FREE—although donations are welcome! November 2 includes a Youth Leader Panel, who will describe the future they want to see; a presentation on the history of the peer self-help and advocacy movement by longtime movement leaders; and the opportunity for participants to plan actions in one of three strategic areas: Advocacy at the Federal and State Levels; Alternatives to Force, Confinement, & Coercion; and Joining Our Struggle for Freedom to Other Struggles. November 3 includes presentations on peer crisis alternatives and additional organizing in the action groups, which will continue on November 4. On November 2 and November 3 between 6 p.m. and 7 p.m. ET, there will be a choice of arts and movement activities as well as networking opportunities. As more information becomes available, it will be posted on the Alternatives conference website (click here). To register, click here.

MindFreedom International’s Next Judi’s Room to Be Held on October 5

On October 5, 2022, at 6:00 p.m. ET, 3 p.m. PT, MindFreedom International will host its next monthly Judi’s Room. The topic is “Independent Living Advocates: Potential Allies in the Fight for Alternatives to Guardianship.” The speakers will be Ron Bassman, former MindFreedom International executive director, and Karen Koch, advocate at Roads to Freedom Center for Independent Living (RTFCIL), one of the largest CILs in Pennsylvania. For more information and to register for free, click here.

Next Installment in PSCFL's National Peer Entrepreneur Speaker Series Is on October 6

On October 6, 2022, the Peer Support Coalition of Florida (PSCFL) Inc. will present the next episode in its National Peer Entrepreneur Series, held every first Thursday of the month at 12 p.m. ET. “Learn about [the peer entrepreneurs’] businesses, how they got started, and how they balance managing their wellness while running a successful business,” PSCFL writes. Those who attend any episodes in the series can apply to enroll in a six-session Aspiring Entrepreneurship Workshop, “which concludes with a warm handoff to a SCORE mentor for business development support,” PSCFL adds. “If you are a peer entrepreneur and would like to share your story of recovery and entrepreneurship, please contact Sherry@peersupportfl.org." To register for the October 6 workshop, click here. For more about peer entrepreneurs, and an interview with Live & Learn Inc. CEO and founder Laysha Ostrow, click here.

NYAPRS Seeks Presenters for TED-Style Talks at Its Rehabilitation and Recovery Academy

The deadline is October 7 to apply to present a 13-minute TED-style talk at NYAPRS’s Rehabilitation and Recovery Academy, to be held in person at the Hilton in downtown Albany on November 8-9, 2022. NYAPRS writes: “Details coming soon for an exciting program filled with best practices and innovation related to psychiatric rehabilitation services. Apply today to share your stories of support, best-practice implementation or other stories of recovery!” To apply, click here.

Are You Interested in Pursuing Graduate School and/or a Research Career? Read Below.

Stephania Hayes (UC Davis), Shannon Pagdon (Columbia/NYS Psychiatric Institute/University of Pittsburgh), and Nev Jones (University of Pittsburgh) write: “We are gathering information from people with lived experience in the Coordinated Specialty Care (CSC) or early psychosis space (including peer specialists, current/former CSC participants, and CSC youth coordinators) who are potentially interested in pursuing graduate school and/or a research career. All of us identify as having lived experience, work in CSC, and are invested in supporting the next generation of scholars who also have lived experience. We would like to create a discussion group and/or other supports for people interested in this career path. The link below leads to a very brief survey that will help us understand the level of interest in such supports, as well as areas of career interest. (Please note that this is not a research study.)” To participate in the anonymous survey, click here.

“Making Mental Health & Well-Being for All a Global Priority” Is the Theme of World Mental Health Day (October 10)

“Growing social and economic inequalities, protracted conflicts, violence and public health emergencies affect whole populations, threatening progress towards improved well-being,” the World Health Organization writes in honor of World Mental Health Day on October 10. “We must deepen the value and commitment we give to mental health as individuals, communities and governments and match that value with more commitment, engagement and investment by all stakeholders, across all sectors. We must strengthen mental health care so that the full spectrum of mental health needs is met through a community-based network of accessible, affordable and quality services and supports.” For more information, click here.

“So You’re Ready to Work; Now What?”

On October 11, 2022, at 12 p.m. ET, Rebel Leadership Group LLC and CAFE TAC will launch a new, 12-part interactive employment training series! “This series will be recovery-centered and strengths-based, examining the process of finding, applying for, and succeeding in a job through the lens of recovery, helping attendees to identify strengths and skills, align the job-seeking and employment experience with their personal recovery path, and providing opportunity for discussion in a peer-centered space…Registering for any of the 12 sessions will automatically register you for all future sessions.” For details and to register, click here

PSCFL's 3-Part National Supervision Series Begins on October 13

On October 13 and October 27, 2022, from 1 p.m. to 2:30 p.m. ET, the Peer Experience National Technical Assistance Center, a program of Peer Support Coalition of Florida (PSCFL) Inc., will host the first two parts of a three-part “National Supervision Series.” The date of Part 3 is to be determined. (Hurricane Ian required canceling the original Part 1 date of September 29 and a shift in the schedule.) PSCFL writes: “This series is a skill-building framework for effective peer support supervision with an understanding of best practices of both peer services and supervision. It is recommended for anyone who supervises peer specialists.” To register for all three sessions, click here. (“The sessions can be beneficial independently, and registration for each is independent,” PSCFL writes.) (Because the sessions are interactive, they will not be archived.)

Free Webinar: “Art and Healing—The Beauty Path”

On October 20, 2022, at 2 p.m. ET, the National Empowerment Center (NEC) will present a free, 90-minute webinar on “Art and Healing—The Beauty Path.” NEC writes: “We know that hope and healing are closely related, and this webinar will explore how art guides one artist, Meghan Caughey, in her recovery, plus how making art can be a tool for you in your own path and in supporting others.” For more information and to register, click here.

“Mental Illness Is Not in Your Head”

“Two recent books by historians explore the crisis in biological psychiatry, tracing the political, economic, social, and professional factors that led psychiatrists to attempt to pin the reality of mental illness—and the legitimacy of the profession—on the brain,” writes a Yale University historian of medicine and psychiatry resident in Boston Review. “They reveal that U.S. psychiatry, across its history, has been dangerously susceptible to hype and ‘cool,’ ranging from enthusiasm for brain dissection in the 1890s to the fanfare surrounding neurotransmitters and genetics a century later.” For the article, click here. (Courtesy of Berta Britz)

Celebrate Global Peer Support Celebration Day at the N.A.P.S. Conference! And Download the “Global Peer Support Celebration Day Toolkit”!

On October 20, 2022, to observe Global Peer Support Celebration Day—always the third Thursday in October—N.A.P.S. has invited writer, consultant, facilitator, advocate, and psychiatric survivor Nze Okoronta (they/them) to speak during a lunchtime plenary session at the annual conference. Nze specializes in the design, operation and supervision of peer-led and peer-operated crisis alternatives based in harm-reduction principles, informed consent models, and safer alternatives to navigating emotional distress. For more about Nze, click here and here. For the “Global Peer Support Celebration Day Toolkit,” click here. Nze also co-authored “Hotline Peer Specialist Integration: Preliminary Considerations for Equity and Sustainability” (click here.) (This document was included in the July 2022 Key Update.)

Researcher Seeks Peer Supporters for Survey of Burnout and Job Satisfaction

“Evidence has demonstrated that peer support is beneficial to individuals receiving services for mental health treatment,” writes PhD candidate Melody Madaris, a therapist who has been diagnosed with bipolar disorder and PTSD. “However, there is little research showing how providing peer services affects the peer support worker. The goal of this 20-minute, anonymous survey—for which respondents will not be compensated—is to give supervisors and policy makers information to better support peers in the workforce.” About her experience as a therapist, Melody has written, “I have seen how my just being real about my own story with clients has sometimes created better outcomes than the use of regimented, evidence-based curriculums.” For the informed consent statement (pages 1 and 2), and the Institutional Review Board (IRB) approval letter (page 3), click here. To participate in the survey, click here.

Doors to Wellbeing Will Host Its Next Free Webinar on October 25

On October 25, 2022, at 2 pm. ET, Doors to Wellbeing will host the latest webinar in its monthly one-hour series. The topic will be “How DEI (Diversity, Equity, and Inclusion) Initiatives Can Be Leveraged to Advance Peer Support Work.” “Studies have shown that when it comes to DEI initiatives, the one demographic that is the most often left out or an afterthought is those with disabilities. This is especially true for those with invisible disabilities. With over 61 million Americans having a physical or mental disability, it is important that peer supporters have a seat at the table when DEI initiatives are crafted. This webinar will provide an overview of diversity, equity, & inclusion, how we can respond when faced with microaggressions, and five ways that peer supporters can be change agents for DEI initiatives.”  For more information and to register, click here.

“Hearing Voices” Exhibit Provides First-Person Accounts of Life in 19th-Century Asylums

“Hearing Voices: Memoirs from the Margins of Mental Health” is a free in-person and virtual exhibit presented by the Library Company of Philadelphia at 1314 Locust Street, Philadelphia. “These first-hand accounts range from positive tales of redemption and recovery, to harrowing stories of deceit and torture...[W]e are provided with an insight into the inner-workings of 19th-century asylums and the experiences of some of the most vulnerable in our society.” The exhibit runs through December 22, 2022; Library Company visitors must present proof of Covid-19 vaccination and wear a mask. For more information, click here. To view the exhibit online, click here. (Courtesy of Loran Kundra)

MHAAO Issues Call for Proposals for Peerpocalypse 2023

The Mental Health & Addiction Association of Oregon will host the tenth annual Peerpocalypse conference May 8-11, 2023, and is seeking presentation proposals for its workshop sessions. MHAAO writes: “This year's Peerpocalypse will be held in a hybrid format with in-person participation in beautiful Seaside, Oregon, and virtually.” The deadline for proposals is October 31, 2022, at 11:45 p.m. PT. For details and to submit a proposal, click here. (Courtesy of Kevin Fitts)

Mental Health America Offers “Peer Support: Research and Reports”

“Peers are an essential component of recovery-focused systems and are key across settings and stages of recovery,” writes Mental Health America on a web page devoted to “Peer Support: Research and Reports.” The page has numerous subsidiary topics and links. For the compendium, click here.

Peer Support Toolkit Is Designed to Help Agencies Successfully Integrate Peer Providers

The Philadelphia Department of Behavioral Health and Intellectual disAbility Services (DBHIDS) has created a toolkit “designed to support behavioral health treatment agencies with the process of integrating peer providers into their service settings…Tools in this kit are designed to help agencies to recruit, retain, and effectively deploy people in recovery in a variety of peer support roles. The resources and information provided [are] relevant for executive leadership along with supervisors and peer staff.” For details and to download the toolkit, click here.

NASMHPD’s 2014 Webinar Series on Trauma-Informed Peer Support Is Still Relevant

SAMHSA’s National Center for Trauma-Informed Care (NCTIC) hosted a series of three 75-minute webinars in September 2014 that introduced key concepts in NCTIC’s day-long Trauma-Informed Peer Support (TIPS) training. Peer support providers are the primary audience. For more information and to listen to the recordings and download the PowerPoint slides, click here.

The October 22 Digest of Articles Offering Healthy Lifestyle Advice

For “NIH-funded study shows sound sleep supports immune function: Adults who cut back on sleep for six weeks had increased markers of inflammation,” click here. (Courtesy of Peggy Swarbrick via Jacek Haciak) For “What Is a Vulnerability Hangover and How Do You Deal with Them? Getting things off our chest and sharing helps us feel better, we’re told. However, what about the shame or fear of judgment that can sometimes follow? Sonia Vadlamani explains what causes this initial regret—known as a vulnerability hangover—and how to overcome it,” click here. For “Are You a Clutterer? Do you have more possessions than you can comfortably handle? Are you embarrassed to invite family, friends, health care providers, or maintenance workers into your home …? Do you find it easier to drop something instead of putting it away … ?” click here. For “Surprisingly Happy to Have Helped: Underestimating Prosociality Creates a Misplaced Barrier to Asking for Help,” click here.

The October 2022 Digest of Articles about the Criminal Legal System, in Which Many Individuals with Mental Health Conditions Are Incarcerated (and the Key Update continues after this Digest)

For “Decarcerating from Within: A path for imprisoned writers to offer reasoned analysis on policies affecting the carceral state,” click here. For “Let Incarcerated People Serve the Communities They Hurt: A group of men in a New York prison organized a school supply donation campaign. Then prison leadership squashed it,” click here. For “Growing Justice: Why understanding restorative and transformative justice on their own terms, and at their best and worst, will help us build more of both,” click here. For “Prisoner Advocates Turn to the UN to End Extreme Prison Sentences: In a sharply worded complaint to UN special rapporteurs submitted on Thursday, advocacy groups call for an end to ‘death by incarceration’ sentencing in the U.S.,” click here. For “Afraid of Jail? Buy an Upgrade: How California’s pay-to-stay jails create a two-tiered justice system,” click here. For “Providing Health Care at Reentry Is a Critical Step in Criminal Justice Reform,” click here. For “An average of 25 mentally ill Mississippians wait in jail for hospital bed each day, report finds,” click here. For “People Age Out of Crime. Prison Sentences Should Reflect That,” click here. For “From Prison to the Art Gallery: Formerly incarcerated artists are making waves in the collecting world, hoping to create pathways, and dignity, for their peers,” click here. For “Protecting the Connection Between Parents in Prison and Their Children: The child of a formerly incarcerated person writes about how bad policies make the hardships of separation even worse,” click here. For “Clear Creek County deputies shoot and kill man who asked for help after car crash,” click here. For “Senate Investigation Finds Justice Department Undercounted Prison and Jail Deaths Last Year by Nearly 1,000: The report says the inaccuracies ‘deprived Congress and the American public of information about who is dying in custody and why,’” click here. For “The Irrefutable Case for Police Reform: Lawless cops must be subordinated to democracy,” click here. For “What’s Dangerous Is America’s Lack of Crime Data,” click here. For “Millions of People With Felonies Can Now Vote. Most Don’t Know It. In a handful of key states, no more than 1 in 4 formerly incarcerated people registered in time for the 2020 election, a Marshall Project analysis found,” click here.

FROM PREVIOUS EDITIONS OF THE KEY UPDATE BUT STILL FRESH!

OPPORTUNITIES TO PARTICIPATE IN RESEARCH

“Help Us Map the Landscape of Lived Experience and Family Involvement in 988 Policy and Related Crisis Response System Planning!”

“As 988 implementation rolls out alongside additional efforts to strengthen crisis response systems throughout the U.S., it's important to gauge the extent to which direct stakeholders (i.e., individuals who use or have used mental health crisis services and their families) have been involved in related policy, implementation and evaluation at the local, regional, state or federal levels. To map out involvement nationally, Mental Health America (lead: Kelly Davis), Nev Jones (University of Pittsburgh) and Keris Myrick (National Association of Peer Supporters) have developed a survey aimed at documenting the extent of stakeholder involvement, the forms this involvement has taken, and, where available, what concerns stakeholders have raised. Any individual with knowledge of lived experience and family involvement is eligible to participate; individuals completing the survey do not have to have lived experience themselves.” For more information and to access the survey, click here.

Survey Seeks Respondents Who Have Taken Mental Health Courses Involving Their Own Diagnoses

Have you taken a mental health course that covers a diagnosis you have? If so, you are invited to participate in a brief, anonymous, online survey--designed by a University of Pittsburgh MSW student--about what it's like for students with lived experience to study their own diagnoses in a classroom. The survey covers students' experiences of studying such subjects as "abnormal psychology," "psychopathology," and diagnosis and assessment when their own diagnoses are covered. "The goal of the project is to better understand what it feels like to take courses in which someone’s diagnosis is being taught/defined/discussed. There is currently no literature or reporting on the experiences of students in the above circumstances, or the associated impact." Interested? Please click here. Questions? Please email the project lead, Charlie Clement, at cjc204@pitt.edu

Peer Support in Higher Education Survey Seeks Respondents

“Peer support programs are growing on college campuses across the U.S. Mental Health America, Doors to Wellbeing, and the Temple University Collaborative on Community Inclusion want to better understand the availability of peer support in higher education as well as the experiences and needs of students accessing peer support programs…We hope to use this research to support the expansion of peer support in higher education, including developing a national database of peer support programs in higher education and documenting pressing issues in campus programs…You may also indicate if you are interested in having your school’s peer support program listed in a national database of peer support programs in higher education.” For more information and to complete the survey, click here

BU Seeks Peer Support Specialists for a Research Study

The Center for Psychiatric Rehabilitation at Boston University is developing and testing the effectiveness of a coaching service called Coaching and Advancement for Peer Providers (CAPP) “to increase organizational commitment and job satisfaction and decrease turnover among mental health peer providers.” BU CPR writes: “We need Peer Support Specialists (PSS) to participate in our study. Who can participate? People who are in a paid job as a Peer Support Specialist providing support to other people with mental health challenges, who are employed at least 10 hours per week, who have worked for the past six months in a mental health program, and who are experiencing stress because of challenges in the workplace. The study involves 16 one-hour sessions of coaching over a four-month period designed to help you with your job, meeting online (through Zoom, for example) with your coach, and filling out surveys one time before coaching starts and three additional times. You will have a 50/50 chance of getting a coach or having a one-time meeting to give you information about challenges at work. Benefits? You may learn strategies to help make work less stressful.” For more information, click here. For questions, contact Principal Investigator E. Sally Rogers, Sc.D., at erogers@bu.edu or 617-353-3549.

Supported Education Survey Needs Your Help

Do you operate a program that provides dedicated supported education services for individuals with psychiatric disabilities/mental health conditions? If so, you are invited to complete the survey at the link below. The primary goal of the survey is to help create a National Supported Education Database (NSEdD) that will be "a searchable listing of diverse supported education programs and services for individuals experiencing psychiatric disabilities and/or mental health challenges...across the US and its territories." The NSEdD project is sponsored by the Substance Abuse and Mental Health Services Administration (SAMHSA) and co-administered by the five SAMHSA-funded national consumer and consumer-supporter technical assistance centers, in collaboration with research partners Drs. Nev Jones (University of Pittsburgh) and Mark Salzer (Temple University). For a link to the survey, which includes a definition of supported education, click here. For a flyer with information about the survey, click here.    

National Survey on Student Rights, Discrimination, and Accommodations in Higher Education Seeks Respondents  

"Have you experienced psychiatric disability-based discrimination or the denial of an accommodation in a postsecondary institution in the United States? Interested in informing national advocacy focus on psych disability rights in higher ed? Mental Health America (lead: Kelly Davis) and collaborators Dr. Nev Jones (University of Pittsburgh), Stefanie Kaufman-Mthimkhulu (Project LETS) and Brit Vanneman Esq. (Bazelon Center for Mental Health Law) have developed "a survey aimed at providing a more comprehensive understanding of student experiences of campus-based discrimination, mandated leaves of absence, and/or denial of academic, administrative and/or student-work accommodations in the U.S. Data will be used to inform national advocacy efforts and future projects, and in reports, presentations and publications." For eligibility and to access the survey, click here.

If You've Had, or Been Labeled with, "Negative Symptoms" in the Context of Psychosis...

"If you have experienced or been labeled with 'negative symptoms' in the context of psychosis, please consider contributing an anonymous account of your views and experiences," Dr. Nev Jones writes. "Currently, there is nowhere one can go to find lived experience perspectives/accounts on this topic—even though 'negative symptoms' regularly feature in research and clinical trials. Help us change this!" This survey is a companion to Psychosis Outside the Box; for that survey, click here. For more information and/or to share your story about "negative symptoms," click here.

"Are You Between the Ages of 21 and 60 and Drink Alcohol?"

"Researchers at the National Institutes of Health (NIH) are seeking adults--[both smokers and non-smokers]--to study whether a gene and smoking may affect drinking alcohol. Volunteers should be healthy and drug-free, and not seeking treatment for alcohol-related problems. Research participation includes three outpatient visits at the NIH Clinical Center in Bethesda, MD; alcohol consumption; brain scans (MRI), blood draws, and filling out questionnaires. There is no cost to participate and compensation may be provided." For more information, click here. (Courtesy of Fran Hazam)

TU Collaborative Seeks Participants for Its Parenting Through Leisure Project; See Also the TU Collaborative's Parenting Resources, Including Information on Custody Issues

The Temple University Collaborative on Community Inclusion is seeking parents with lived experience of a mental health condition to participate in a paid research study. The TU Collaborative writes: "Our program, Parenting Through Leisure, focuses on helping parents with a serious mental illness participate in leisure activities with their child. We are looking for individuals who are 18 and older; are an adult parent with a diagnosis of schizophrenia-spectrum disorder, bipolar disorder, or depression; have a child who is 7 to 15 years old and is interested in participating in family leisure with you; have legal visitation rights, joint custody or full custody of the child, with at least weekly contact; and have a desire to engage in more leisure activities with their child." For details about the study and the remuneration as well as other benefits to eligible participants, and a link to sign up, click here. Questions? Please contact TUCollab@temple.edu. And for the TU Collaborative's Parenting web page--which includes links to many resources for parents with lived experience, including information about custody laws and a model family reunification statute--click here.

Survey Seeks Respondents Who Are in Administrative/Leadership Positions in the Mental Health Field

If you are in an administrative/leadership position in the mental health arena, “the Group for the Advancement of Psychiatry (GAP) Committee on Psychiatric Administration and Leadership invites you to participate in the International Survey on Administrative Psychiatry. The survey has two purposes: 1. To identify the concerns and needs of mental health professionals/psychiatrists in administrative and leadership positions. 2. To determine training needs in administrative psychiatry. We ask you to complete this brief, [15- to 20-minute] questionnaire to help us in developing recommendations for action. We also want to let you know that, if you fill out this questionnaire, you permit the committee to use your anonymous data for scientific work.” Peer providers are included. For the survey, click here. (Courtesy of Oryx Cohen)

International Survey on Antipsychotic Medication Withdrawal Seeks Respondents

“Have you taken antipsychotic medication (such as Zyprexa, Seroquel, Abilify, Risperdal, Haldol, Geodon, Stelazine, and others), for any condition or diagnosis, with or without other medications? And did you ever stop taking antipsychotics, or try to stop taking them? Are you 18 years or older? If yes, you can take this survey about antipsychotic withdrawal and attempts to withdraw, including if you stopped taking them completely or if you tried to come off and still take them. The survey aims to improve mental health services by better understanding medication withdrawal. Lead researcher is Will Hall, a therapist and Ph.D. student who has himself taken antipsychotics. Service users/survivors/consumers from around the world also gave input. The study is sponsored by Maastricht University in the Netherlands; co-sponsors include the International Institute for Psychiatric Drug Withdrawal. Questions? Please contact will.hall@maastrichtuniversity.nl.”  For more information or to take the survey, click on www.antipsychoticwithdrawalsurvey.com

CONFERENCES

APA to Host Mental Health Services Conference October 13-14 in Washington, DC

The American Psychiatric Association writes: “The 2022 Mental Health Services Conference will bring psychiatrists and other mental health professionals together to collaborate on practical advice to influence systems-level change for their patients. Join us in-person in Washington, D.C. at the Capital Hilton Hotel, October 13-14, as we work together to develop practical solutions to solve real-world issues.” Sessions include “988 and Crisis Care: What Happens After the Call?”; “Mental Health Professionals’ Role in Reclaiming Community Members from the Justice System”; and “The Overturning of Roe vs Wade: Implications for Women’s Health and the Practice of Medicine.” For more information, click here.

NARPA Announces Exciting Keynoters to Speak at Its 2022 Annual Rights Conference, October 26-29

The National Association for Rights Protection and Advocacy (NARPA) will hold its 2022 Annual Rights Conference at the DoubleTree by Hilton Hotel Newark Airport October 26-29. The four inspiring keynote speakers will be Rob Wipond, an activist, investigative journalist, and author of the upcoming “Your Consent Is Not Required: The Rise in Forced Detentions, Forced Treatment, And Abusive Guardianships; Ruth Lowenkron, Director, Disability Justice Program, New York Lawyers for the Public Interest, who has filed lawsuits against the New York Police Department about their responses to mental health crisis calls; Vesper Moore, an indigenous political activist, leader, author, trainer and educator in the psychiatric survivor and disability rights movements; Deborah Dorfman, Executive Director, Disability Rights Connecticut, who is active in individual, class action, and systemic reform litigation for disability rights around the nation; and Robert Dinerstein, Professor of Law, American University Washington College of Law, who will speak about recent developments in mental health law. Visit www.narpa.org for registration form and updates. 

National Association for Rural Mental Health Conference to Be Held November 2-4, 2022

The 47th Annual National Association for Rural Mental Health (NARMH) conference will be held at the Embassy Suites in Boulder, Colorado, November 2-4, 2022. The theme is “Beyond the Pandemic—Building on Rural Resiliency.” The early-bird registration fee is $500; for people who are retired or students, it’s $250. For more information as it becomes available, click here.

The International Conference on Trauma and Mental Health will take place November 3-4, 2022, in San Francisco. For more information, click here.

ISPS-US (Hybrid) 2022 Conference to Be Held November 4-6

The 2022 ISPS-US (International Society for Psychological and Social Approaches to Psychosis—U.S. Chapter) conference will be held November 4-6 in Sacramento, California, as well as online. The conference theme is Opportunity Through Experience: Psychosis, Extreme States, and Possibilities for Transformation. ISPS-US writes: “People with lived experience, family members, clinicians, and researchers are all invited to propose presentations that promote mutual collaboration and respect, and can allow us to offer each other both greater understanding and more light. We especially welcome proposals from members of marginalized groups whose experiences have included systemic as well as relational traumas and challengesFor more information, click here. (Courtesy of Jacek Haciak)

ISEPP’s 2021 Conference Is Available to View Online

The 2021 conference of the International Society for Ethical Psychology and Psychiatry can be viewed online. The theme of the conference, convened October 9-10, 2021, was “The Destructive Propaganda of the Mental Health Industry: How Did We Get Here? Where Are We Going?” It was dedicated to the life and memory of Paula J. Caplan, Ph.D. To buy a ticket to watch the full conference recording for $22.85, click here.

OTHER OPPORTUNITIES AND RESOURCES

“Crisis Now” Offers a “Roadmap to Safe, Effective Crisis Care”

The goal of Crisis Now: Transforming Crisis Services—led by the National Association of State Mental Health Program Directors (NASMHPD) and developed with the National Action Alliance for Suicide Prevention, the National Suicide Prevention Lifeline, the National Council for Mental Wellbeing, and RI International—is “to provide all communities a roadmap to safe, effective crisis care that diverts people in distress from the emergency department and jail by developing a continuum of crisis care services that match people’s clinical needs.” Among the resources offered on the website are SAMHSA’s 80-page “National Guidelines for Behavioral Health Crisis Care Best Practice Toolkit” (2020), an “Overview of Crisis Funding Sources Available to States and Localities” (last updated March 2, 2022), and assessment tools, such as “How Does Your Crisis System Rate?” The Crisis Now partners write: “Are you interested in adding your organization to the list supporting Crisis Now, or do you have questions? Reach out to us at info@crisisnow.com. For the website, click here. (Courtesy of Kevin Fitts)

“What Is the Meaning of Life?” This Free Online Collection Offers Answers

Excellence Reporter offers more than “1,200 articles-interviews on ‘What Is the Meaning of Life?’ written by renowned spiritual leaders, mindfulness experts, great thinkers and authors, elders, artists, musicians, CEOs, etc.” The contributors include such renowned figures as Bertrand Russell; Carl Jung; the Dalai Lama; Eleanor Roosevelt; Epicurus; Erich Fromm; Kahlil Gibran; Buckminster Fuller; Robert Louis Stevenson; and Ron Bassman, executive director of MindFreedom International. To browse the free compendium, click here.

Rutgers Releases W-TLC Virtual Toolbox and Training/Learning Collaborative Series

“The Rutgers Center of Alcohol & Substance Use Studies has announced the release of the Wellness Training Learning Collaborative (W-TLC) virtual toolbox and Training/Learning Collaborative series…This toolkit provides peer support, individual, and organizational approaches to support the wellbeing of the critical health care workforce.” For descriptions of the 12 upcoming sessions—including two in July (July 7 and July 28), with the remaining sessions to be held August 2022 through January 2023—and to register for them, click here. For the “Journey to Wellness Guide,” click here. (Note: Information about the Journey to Wellness Guide was included in the April 2022 Key Update.)

Peer Advocates Over 50 Years Old Are Invited to a Weekly Empowering Support Group

"People over 50 who are mental health lived-experience advocates, change makers, visionaries, and current status quo challengers" are invited to join "a weekly, open, upbeat, peer-support empowering environment for seasoned peers with lived experience who are active, and were active, as advocates for positive change," the WiseCrackers write. The goal of the recently launched group is "to support mental health advocates over 50 years of age with pure peer support practices based on natural curiosity, acceptance, humor, and positive networking." The free, 90-minute Zoom meetings are held on Mondays at 7 p.m. ET, 6 p.m. CT, 5 p.m. MT, and 4 p.m. PT. The meetings are currently co-facilitated by "East and West Coast Peers" and sponsored by the Community for Positive Aging. To register and to review the WiseCracker Principles of support, click here. Questions? Contact info@choiceheals.com or 503.208.0065.

The UIC Center’s Solutions Suite for Health & Recovery Offers Free Tools

"The UIC Center offers tools, curricula, and implementation manuals for free use in community-based programs, peer-run programs, or one's own life. You can introduce the entire complement of products to foster improved health, wellness, and mental health recovery. Or, you can choose the ones that will work best for your program or your life. The Suite was developed in collaboration with Collaborative Support Programs of New Jersey. The UIC Center is funded by NIDILRR (National Institute on Disability, Independent Living, and Rehabilitation Research). For the UIC Solutions Suite for Health & Recovery, click here. (Courtesy of Peggy Swarbrick via Jacek Haciak)

Poetry Coalition to Launch "Poetry & Disability Justice" Initiative

"This year, the 25+ organizations nationwide that comprise the Poetry Coalition will launch 'The future lives in our bodies: Poetry & Disability Justice,' the coalition’s sixth annual programming initiative...Poetry Coalition members aim to demonstrate how poetry can inspire questions in their communities about disability justice and spark increased engagement with this important theme. Member organizations are committed to offering programming that is accessible and that includes disabled, neurodivergent, and d/Deaf poets and those of diverse racial, ethnic, and gender identities, backgrounds, and communities. All organizations and others interested are invited to create programs on this theme in 2022 and share their efforts using the hashtags #DisabilityJustice and #PoetryCoalition. For some additional resources to assist with programming, particularly in creating accessible programming, click here.

U.S. Surgeon General Creates Community Toolkit for Addressing Health Misinformation

"The U.S. Surgeon General’s Community Toolkit for Addressing Health Misinformation, developed in collaboration with the HHS Office of Evaluation Sciences (OES), provides specific guidance and resources for health care providers, educators, librarians, faith leaders, and trusted community members to understand, identify, and stop the spread of health misinformation in their communities." For information about the toolkit (a 22-page overview of health misinformation, and resources to stop it), and links to a “Talk to Your Community About Health Misinformation” Infographic, a “Health Misinformation Checklist” Infographic, and the Surgeon General's press release, click here.

"Psychiatrist with Philosophical Interests" leads "Conversations in Critical Psychiatry," a Psychiatric Times Series

Awais Aftab, who describes himself as a "psychiatrist with philosophical interests" in his Twitter bio, leads "Conversations in Critical Psychiatry," which, he says, "explores critical and philosophical perspectives in psychiatry and engages with prominent commentators within and outside the profession who have made meaningful criticisms of the status quo." Among those interviewed are Allen Frances, M.D., author of Saving Normal; Sandra Steingard, M.D., and G. Scott Waterman, M.D., on "Integrating Academic Inquiry and Reformist Activism in Psychiatry"; Susannah Cahalan, author of Brain on Fire: My Month of Madness, on "50 Shades of Misdiagnosis"; Kathy Flaherty, J.D., executive director of the Connecticut Legal Rights Project, Inc., on "Reconsidering Care and Coercion in Psychiatry"; Nev Jones, Ph.D., on "Phenomenology, Power, Polarization, and the Discourse on Psychosis"; Dainius Puras, M.D., on "Global Psychiatry's Crisis of Values"; and many others. For the archived interviews, click here.

CNN Offers “A Guide to Helping and Getting Help During the Coronavirus Crisis”

CNN writes: “The coronavirus pandemic is overwhelming, and one of the most excruciating parts for many people is the feeling of utter helplessness in the face of widespread suffering and hardship. CNN’s Impact Your World has compiled a list of donation opportunities and tips to help those affected by the crisis. Click on a category or scroll down to browse a list of organizations, resources and ideas. Need help? Most categories also include resources for financial, emotional or social support.” For the free guide, click here.

U.S. DOL Releases Guidance on FMLA Leave and Mental Health

The U.S. Department of Labor’s newly issued Fact Sheet #280 about the Family and Medical Leave Act (FMLA) explains when eligible employees may take FMLA leave to address mental health conditions, and new Frequently Asked Questions (FAQs) offers additional information. (Although the FMLA covers public and private employers nationwide, only those private employers who have 50 or more employees for at least 20 workweeks in a year are required to provide their eligible employees with FMLA leave.) For details, click here.

Hearing Voices Network Is Now Hosting Online Groups

“There are now ONLINE opportunities to connect, share experiences, and find mutual support,” the Hearing Voices Network (HVN) writes. “These groups are accessible via web-based platforms and by phone…Online groups are specifically for those with personal lived experience with hearing voices, seeing visions, and/or negotiating alternative realities. They are voice-hearer facilitated. With further questions and for details on how to access the group[s], please email info@hearingvoicesusa.org.” To read this announcement online and for more information, click here.

Virtual Group Works to Advance Peer Research Capacity, Leadership, and Involvement

Nev Jones, PhD—a strong advocate for building research capacity, leadership, and involvement among peers, survivors, and service users—leads a virtual group dedicated to this effort. Dr. Jones—assistant professor, School of Social Work, University of Pittsburgh—was part of the team that developed “User/Survivor Leadership & Capacity Building in Research: White Paper on Promoting Engagement Practices in Peer Evaluation/Research (PEPPER),” published by the Lived Experience Research Network. For the white paper, click here. Anyone interested in joining the virtual group can email Nev at nev.inbox@gmail.com.

Mad In America Invites You to Submit Your Personal Story (Within Certain Guidelines)

Mad In America writes: “A ‘personal story’ is defined as your story of being in relationship to psychiatry and/or the mental health system, whatever that means to you. It might involve your opinions and analysis of what happened to you, as well. It can be about a specific event, or about your overall journey, provided it fits the length requirements (1,500 to 3,000 words) and has a narrative arc. The piece should be about your personal experiences, not psychiatry or the mental health system in general. Submissions should fall under the theme of rethinking psychiatry and the mental health system, and should be original works not previously published elsewhere. For examples of the types of stories we publish, view our personal stories archive here.” For more information and/or to submit a personal story, click here.

PsychAlive Offers a Variety of Webinars on Mental Health Topics, Many Free, Others $15

PsychAlive is a free, nonprofit resource created by the Glendon Association, whose mission is “to save lives and enhance mental health by addressing the social problems of suicide, violence, child abuse and troubled interpersonal relationships.” Psychalive.org offers a variety of upcoming and archived webinars, many of which are free, while others are available for $15. Among the myriad topics are “From Anxiety to Action: How to Stay Sane While Fighting Climate Change,” “How to Overcome Insecurity,” “Powerful Tools to Fight Depression,” and “Understanding and Overcoming Adverse Childhood Experiences.” To check out the webinars, click here.

Learning Collaborative Webinar Series Offers Several Archived Presentations 

The Doors to Wellbeing website offers a number of webinars that you may find of interest: “The Importance of Policies and Procedures in Peer-run Organizations”; “Building Partnerships to Enhance the Peer Workforce,” by Kyneta Lee, Tim Saubers, and Todd Noack; “Handing Over the Keys: Leadership Succession Planning in Non-Profit Organizations,” by Elise Padilla and Maxine Henry; “How to Embed Strategic Planning into the Culture of Your Organization,” by Oryx Cohen; “Fundraising and Sustainability: Building your Organization by Telling the Right Story to the Right Audience”; “Developing a Board of Directors for Mental Health Organizations,” by Amey Dettmer and Matthew Federici; and “Conflict Management in Peer-Run Organizations: Tools for Effective Conversations.” Certificates of attendance are not available for any of these presentations. For more information and to register for any or all of them, click here

National Safety Council Offers a Free Webinar Series Focusing on Mental Health in the Workplace

"The impact of the COVID-19 pandemic will affect employees well beyond the initial crisis," the National Safety Council writes. "Employers have a unique ability and responsibility to address the mental health and wellbeing of their workers, which is a true organization-wide effort. This free Mental Health Webinar Series led by the National Safety Council, and first presented in August 2020, speaks to a variety of positions within an organization and how each one can address stress and mental health." Four of the five webinars are titled: "Supporting Employee Mental Health" and respectively subtitled "Resources for Employees," "Actions for Leadership," "Actions for Supervisors," and "Actions for HR Professionals." To view the free, archived webinars, click here.

Seven Ways to Keep a Digital Copy of Your Vaccination Card on Your Smartphone

“You'll need proof of vaccination to go back to work or enter many restaurants, gyms and event venues, so keep your COVID-19 card handy.” This is the advice of CNET.com, a tech support website. Besides the obvious—taking a photo of the card to store on your phone—there are six other suggestions. For details, click here. (Courtesy of Yvonne Smith)

ISPS-US Offers an Array of Archived Webinars--Free but Donations Are Welcomed

The ISPS-US (The International Society for Psychological and Social Approaches to Psychosis-US Chapter) is offering a whole raft of archived webinars, which are free (although donations are welcomed). Among the webinars are "Cognitive Behavioral & Related Therapies for Psychosis: Diverse Approaches to Supporting Recovery," "How Can the Uncontainable Be Contained? Paradoxes of Madness & Philosophy," "Robert Whitaker: The Rising Non-Pharmaceutical Paradigm for 'Psychosis,'" "Life with Voices: A Guide for Harmony," "COPE Project: Non-Pharmaceutical Research on Influencing Voices and Visions," "What Hurts and What Helps In Treatment For 'Psychosis': Insider Perspectives," and many others. For more information and to access the webinars, click here.

“Where DNA and Medications Meet”

Not all drugs are effective for all people; therapeutic response rates for many drugs are only 50%-75%. “OneOme, co-founded by [the] Mayo Clinic, provides evidence-based pharmacogenomic solutions that help improve patient outcomes and reduce costs through more personalized medication decisions.” OneOme’s RightMed Test is “a doctor-ordered pharmacogenomic (PGx) test that analyzes your DNA and provides your doctors with genetic information to help them determine how you may respond to certain medications. The results may help your doctors reduce medication trial and error, minimize risk of side effects, save you time and money, and make more informed prescribing decisions. Because your DNA doesn’t change over time, your doctors can use your test results to make more personalized medication decisions for you over the course of your lifetime.” For more information, click here. (Courtesy of Robin Osborne)

Lived Experience Leadership Features 12 Years of Research Studies...

"Lived Experience Leadership features 12 years of research studies focused on this workforce in a range of settings, to foster a better of understanding and respect for Lived Experience as a distinct discipline and build clarity on what makes this work unique and valuable. Importantly, this body of research was led by Lived Experience researchers. Lived Experience Leadership provides clear and simple to read research summaries to allow community members and people employed within various industries the opportunity to easily understand and apply strategies within their own workplace. This website also includes easy to download definitions, audio/visual resources, and key work by other Australian and International sources. The website will continue to grow to include larger collections of our research as well as other key work. For the Lived Experience Leadership website, click here. (Courtesy of Jacek Haciak)

Doors to Wellbeing Offers “State Selfies: A Picture of Peer Services Reported by Peers”

Doors to Wellbeing’s “Peer Album” is a directory of nearly 600 peer-run organizations throughout the U.S. They invite updates and offer instructions for providing them and add, “If your entry has not made this first draft, we encourage you to re-submit.” For the 158-page directory, click here.

Disclaimer: The Clearinghouse does not necessarily endorse the opinions and opportunities included in the Key Update.

About The Key Update

The National Mental Health Consumers’ Self-Help Clearinghouse is now affiliated with the Temple University Collaborative on Community Inclusion.

The Key Update is the free monthly e-newsletter of the National Mental Health Consumers’ Self-Help Clearinghouse. Volume 19, No. 4, October 2022. For content, reproduction or publication information, please contact Susan Rogers at selfhelpclearinghouse@gmail.com. Follow Susan on Twitter at @SusanRogersMH

 

 

Key Update, September 2022, Volume 19, Number 3

The National Mental Health Consumers’ Self-Help Clearinghouse is affiliated with the Temple University Collaborative on Community Inclusion.

TO CONTACT: THE CLEARINGHOUSE: SELFHELPCLEARINGHOUSE@GMAIL.COM  … SUSAN ROGERS: SUSAN.ROGERS.ADVOCACY@GMAIL.COM … JOSEPH ROGERS: JROGERS08034@GMAIL.COM 

The Key Update is compiled, written, and edited by Susan Rogers, Director, National Mental Health Consumers’ Self-Help Clearinghouse.

NOTE: THE "FROM PREVIOUS EDITIONS OF THE KEY UPDATE BUT STILL FRESH!" DEPARTMENT, WHICH IS DIRECTLY BELOW THE MONTHLY CRIMINAL LEGAL SYSTEM DIGEST, INCLUDES ITEMS THAT HAD BEEN POSTED "ABOVE THE FOLD" IN EARLIER EDITIONS BUT ARE STILL RELEVANT. THESE INCLUDE ONGOING RESEARCH STUDIES THAT ARE STILL SEEKING PARTICIPANTS, AS WELL AS UPCOMING WEBINARS AND CONFERENCES, AND OTHER ITEMS OF CONTINUED INTEREST. DON'T MISS IT!

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New Report Reveals Big Pharma’s Threats to Medical Whistleblowers

New research published in the Journal of Scientific Practice and Integrity provides details of publicly documented threats to, and harassment of, clinicians and scientists after they communicated “safety, efficacy, or data integrity findings contrary to corporate interests.” Two of the many drugs covered in the report—entitled “Davids versus Goliaths: Pharma and academia threats to individual scientists and clinicians”—are antidepressants: paroxetine (brand names Paxil, Aropax, Pexeva, Seroxat, Sereupin and Brisdelle) and fluoxetine (Prozac). For “Davids versus Goliaths,” click here. In addition, attorney Jim Gottstein blew the whistle on atypical antipsychotic olanzapine (Zyprexa). He tells this story in his masterly book, The Zyprexa Papers (click here). (Courtesy of Elizabeth Saenger)

“Psychiatric Advance Directives—What They Can Do for You”

On August 31, at 4 p.m. ET, 1 p.m. PT, Disability Rights California will present “Psychiatric Advance Directives—What They Can Do for You.” The speakers will discuss “what Psychiatric Advance Directives (PADs) are, why they are important, how they can protect rights, PAD section options, and advocacy opportunities for PADs.” For details and to register, click here. (The link skips to the registration field; scroll up for details of the webinar.)

Save the Date! NCMHR to Host Alternatives 2022, a Virtual Conference, on Nov. 2, 3, and 4

The National Coalition for Mental Health Recovery will host Alternatives 2022, a virtual conference, on November 2 and November 3, from 1 p.m. to 7 p.m. ET; and November 4, from 1 p.m. to 4 p.m. ET. The conference will be FREE—although donations are welcome! “Alternatives 2022 will be a ‘working conference’ where we will return to our roots of advocacy and social justice,” NCMHR writes. “In addition to speakers and panels, conference participants will be able to join work groups to develop action steps in key priority areas. We need to make the voice of persons with lived experience more prominent nationally. We want to fire up our movement and remind everyone of our roots and the need for advocacy.” As more information becomes available, it will be posted on the Alternatives conference website (click here). To register, click here.

Stakeholders with Lived Experience Work to Prevent Co-optation and Tokenism in Research

“As reviewers, editors, and researchers with lived experience of mental health challenges, addiction, and/or psychosocial distress/disability, the authors have struggled to find an adequate way to address inappropriate or misleading use of the term ‘participatory methods’ to describe research that involves people with lived experience in only a superficial or tokenistic manner….” To read their entire article—“Strengthening Review and Publication of Participatory Mental Health Research to Promote Empowerment and Prevent Co-optation”—published online by Psychiatric Servicesclick here. (For more on this topic, see below.)

Two Recent Articles Explain: People with Lived Experience Can Play a Vital Role in Research

In “They’re Able to See Things That I Don’t” and “The lived experience of psychosis,” the authors, respectively, explain the important contributions that individuals with lived experience can make in research. “People with disorders are no longer simply subjects to be studied but ‘experts by experience,’ who can play key roles in the research process itself,” write the authors in “They’re able to see things that I don’t,” published in August 2022 by the British Psychological Society (BPS). And in “The lived experience of psychosis: a bottom-up review co-written by experts by experience and academics,” published in May 2022 in World Psychiatry, “experts by experience played a major role in picking the themes for the study and in screening and discussing first-person accounts.” For the BPS article, click here. For the World Psychiatry article, click here. (Courtesy of Janet Paleo)

Researchers Develop New Scale to Measure Patients’ Psychological Safety

Researchers at the University of Strathclyde in Glasgow have devised a measure to assess an individual’s feelings of safety. According to a recent Science Daily piece, the Neuroception of Psychological Safety Scale (NPSS)—called “the first of its kind”—has the potential to be used in a variety of settings, “such as tracking progress in psychological therapy or assessing whether a sense of psychological safety enhances learning or improves hospital outcomes.” Using statistical methods to assess participants’ responses to a questionnaire, the researchers established which statements were most associated with feeling safe, leading to the 29-item scale. The study has been published in the journal Psychological Trauma: Theory, Research, Practice, and Policy. For the Science Daily report, click here.

MHA Will Present Three Youth-Focused Webinars in September

Mental Health America will present three webinars in September that highlight youth mental health: “Reducing the Risk of Youth Suicide: A Discussion on Education, Prevention, and Early Intervention” (September 6, 1 p.m. ET); “ ‘Follow Me and Like My Beautiful Selfies’: Social Media Use and Adolescent Mental Health” (September 13, 2 p.m. ET); and “Where do I fit in?” (September 20, 3 p.m. ET). For details and to register, click here.

“‘The Best Tool We Have’ for Self-Harming and Suicidal Teens” and “This Teen was Prescribed 10 Psychiatric Drugs. She’s Not Alone.”

“Studies indicate that dialectical behavior therapy offers greater benefits than more generalized therapy” for teens with mental health challenges, according to a recent article in The New York Times. “A 2018 study in the Journal of the American Medical Association…found that DBT led to sharper drops in suicidal attempts and self-harm among adolescents than a more generalized therapy did. A 2014 study by researchers in Norway found a similar effect, noting that the therapy also has a relatively low dropout rate, and concluded that ‘it is indeed possible for adolescents to be engaged, retained, and treated’ using DBT.” This article was a sidebar to a Page 1 New York Times story: “This Teen was Prescribed 10 Psychiatric Drugs. She’s Not Alone.” For the main story on the New York Times website, click here. If you’re stuck behind the New York Times paywall, here’s a different link (courtesy of Kevin Fitts): (click here). For “‘The Best Tool We Have’ for Self-Harming and Suicidal Teens” on the New York Times website,  click here.

MindFreedom International’s Next Judi's Room to Be Held on September 7

On September 7, 2022, at 6:00 p.m. ET, 3 p.m. PT, MindFreedom International will host its next monthly Judi’s Room. For more information stay tuned here! To register for free, click here.

Guide Offers Best Practices for Peer Support and Leadership in EIP Services

A 106-page guide— Peer Involvement and Leadership in Early Intervention in Psychosis Services: From Planning to Peer Support and Evaluation—aims “to provide a range of different stakeholders with information and best practices for peer support and leadership in early intervention for psychosis (EIP) services…Unlike many other U.S. peer support manuals, the aim of this guide is to provide coverage of a broad range of domains in which peers might assume leadership or advisory roles. These include program development and planning, direct service delivery (including peer support), public outreach and engagement, clinician education, and quality improvement and evaluation.” The author is Nev Jones, Ph.D., a “community engaged mental health services researcher” who has lived experience. For the guide, click here.

Seven Years of Stepping Up Will Highlight Efforts to Reduce Criminal Legal System Involvement of Individuals with Mental Health Conditions

On September 8, 2022, from 2 p.m. to 3 p.m. ET, the Council of State Governments Justice Center (CSG JC) will host Seven Years of Stepping Up. CSG JC writes: “Communities across the country are reducing over-incarceration of people with mental illnesses as part of the national Stepping Up initiative…The virtual event will highlight counties’ achievements over the past seven years, explore emerging trends in the field, and chart a path forward for the movement. It is free and open to the public.  The latest CSG JC newsletter also includes “How to Use an Integrated Approach to Address the Mental Health Needs of Youth in the Justice System” and a lot of other information. For the newsletter, click here. For another CSG JC newsletter (State of Justice, August 19, 2022), click here. (For more about the criminal legal system, in which many individuals with mental health conditions find themselves, scroll down.)

Suicide Hotlines: What the Research Says; “New 988 Hotline Doesn’t Currently Use Geolocation Services,” AP Reports; NBC News: “New 988 hotline draws criticism that it could lead to a police response, but advocates say it’s misguided”; NPR: “Social Media Posts Warn People Not to Call 988. Here’s What You Need to Know”; and SAMHSA’S “988 Frequently Asked Questions”

Now that the 988 Suicide & Crisis Lifeline has launched, “it helps [journalists] to be familiar with the research on suicide prevention lifelines," writes Naseem Miller, senior health editor of The Journalist’s Resource, a project of the Harvard Kennedy School’s Shorenstein Center on Media, Politics and Public Policy. For the research roundup, click here. (Courtesy of Elizabeth R. Stone) In addition, AP reports, the claims that using the new 988 mental health hotline “will automatically route your geolocation information to local authorities,” are false. For the AP article, click here. However, the headline of “New 988 hotline draws criticism that it could led to a police response…” is misleading in claiming that “advocates say it’s misguided,” because some advocates disagree. For the NBC News article, click here. And a recent segment on NPR attempts to answer the question, “So should I use 988 or not?” Their answer? “It depends.” For the NPR article, click here. Meanwhile, SAMHSA reports that “the FCC held a 988 Geolocation Forum in May 2022 and the agency is actively analyzing the information gathered during that forum,” For more, click here. (For more about 988, see below.)

Free Webinar: “988: What’s the Scoop?”

On September 13, 2022, at 12 p.m. ET, PsychU will host a free, one-hour “discussion with experts in suicide prevention and mental health: ‘988: What’s the Scoop?’ ” PsychU writes: “…Our experts will share insights on nationwide and state-specific efforts and gaps with respect to 988, and what this means for health care providers and individuals in crisis. Finally, we will highlight how 988 could evolve over time to shape our mental health care environment and the role health care providers can play to make positive changes at their local and regional levels.” Certificates of Completion can be downloaded. For details and to register, click here.

“Mental Health Activists Hold Diverse and Varied Perspectives on Psychiatry”

“An article published in the journal Psychiatric Services looks at the variety of perspectives in the world of mental health activists and advocates (MHAAs),” Mad in America writes. For their review (including a link to the abstract of the article: “Beyond binary narratives of mental health advocacy: Latent profiles of mental health activists and advocates with lived experience”), click here.

September 14 Is World Hearing Voices Day; (Hybrid) World Hearing Voices Congress 2022 to Be Held in Brazil; Study Highlights Positive Outcomes of Voice-Hearing Group Members in Brazil

1. “World Hearing Voices Day recognizes and values the diversity of those of us who hear voices, see visions, or have related sensory experiences,” writes Intervoice. “It is a day to promote our right to define our experiences in our own way.” 2. This year’s International Hearing Voices Congress will be hosted in Porto Alegre, Brazil, November 3-5, by Hearing Voices Brazil. The Congress will also be running online in partnership with Online Events. “We will share more details on themes and topics when we have them,” Intervoice writes (click here). 3. Mad In America reports on new research in Brazil demonstrating “how voice hearing groups can be a strategy for the care and recovery of individuals who hear voices.” For the article, click here.

Mental Health Book Fair Will Celebrate Students Who Combat Prejudice and Discrimination

On September 16, 2022, three college students who have disclosed their mental health status in ways that help combat prejudice and discrimination will each receive a $500 Disclosure Scholarship at the Prevention, Wellness & Recovery Book Fair sponsored by Gift of Voice, a mental health training and technical assistance center based in Edwardsville, Illinois. The Fair will feature published authors who themselves are in mental health and addiction recovery. “With so many negative consequences for mental health disclosure, it’s no wonder people don’t seek out support when they’re struggling,” said Gift of Voice founder AJ French. “The only way I know how to change these life-altering outcomes is by developing positive consequences for disclosure.” For more about the Fair, including the location and the hours, click here.

NYAPRS Opens Registration for Its 2022 Annual Conference

NYAPRS has launched registration for its 2022 Annual Conference (September 21-23, Villa Roma Resort and Conference Center, Callicoon, New York). Conference fees will appear as you proceed through the registration process. For more information, visit the NYAPRS website. Program details will be released soon via the NYAPRS E-News and website. For more about registration (including Covid precautions), click here.

NARPA Rights Conference Offers Scholarships for Persons with Lived Experience

The deadline is September 20 to apply for a scholarship to attend the NARPA Rights Conference, to be held at the Doubletree by Hilton Hotel Newark Airport in Newark, New Jersey, October 26-29, 2022. For details and to apply, click here.

Doors to Wellbeing Will Host Its Next Free Webinar on September 27
On September 27, 2022, at 2 pm. ET, Doors to Wellbeing will host the latest in its monthly one-hour webinar series. For more information as it becomes available, and to register, click here.

Protest Planned at AOT Conference in San Antonio, October 13-14

Texas mental health advocates are planning a protest at the Treatment Advocacy Center’s National AOT [Assisted Outpatient Treatment] Symposium and Learning Collaborative, to be held at the Menger Hotel in San Antonio, Texas, October 13-14, 2022. For information about the conference, click here. For the Treatment Advocacy Center’s 74-page “2022 Texas AOT Practitioner’s Guide,” click here. “Attendance for this event is FREE. However, there will be a charge of $150 for any cancellations after October 6, 2022 or for no shows.” As information about the protest becomes available, it will be posted on the Prosumers International website (click here).

“Start Your Own Friendship Project with This Easy-to-Follow Guide”

“The Friendship Squad is a mutual aid project for social support,” writes Dan Frey, director of City Voices. “Basically, my purpose was to connect people who were secure in their recovery from mental health and/or addiction challenges and who have a solid support system, with people who may be struggling, lacking support, lonely and/or isolated,” he said. If you want to start your own Friendship Project, “I will help you every step of the way free of charge.” For more information, click here. (Courtesy of Surviving Spirit Newsletter)

Invitation to Contribute to a Celebration of Steve Harrington

We are holding a celebration of the life of Steve Harrington at the upcoming N.A.P.S. Annual Conference. Steve was the founder of the National Association of Peer Specialists, and touched many lives in his quest for growing the peer support workforce. He died in November 2021. Rita Cronise is collecting items to include in a slideshow of Steve’s life that will be shared at the conference. If you knew Steve and have a brief memory or photo to share, please contact Rita at rita.cronise@rutgers.edu.  

The Movement Mourns Sally Zinman, Fierce Warrior for Social Justice, Who Died on August 25, 2022

Sally Zinman, who struggled with cancer for many years, died on August 25, 2022. Announcing Sally’s death, Harvey Rosenthal wrote: "Rest in peace & power, Sally, & know that your legacy of self-empowerment, community organizing & activism...& transformational change & courage, determination & love will go on forever." Addressing her community of mental health activists in her acceptance speech at the SAMHSA Voice Awards ceremony in 2016, Sally said: “We, all of us, have been soldiers in a march towards transformation, from a system based on chronicity to one of recovery, from a system that decided everything about us without us, to one in which nothing is about us without us. From a system that considered people with lived experience as not able to run their own lives, to one that values consumer-run programs and peer support. From a system based on force to one based on choice and self-determination and freedom. And from a world that dehumanized and isolated people with lived experience to one that embraces us as neighbors, friends, family members, business colleagues, and every kind of professional.” For the entirety of Sally’s speech, click here. (Courtesy of Ann Kasper)

The September 2022 Digest of Articles Offering Healthy Lifestyle Advice

For “Wellness in Eight Dimensions,” click here. For “How to Make Friends as an Adult,” click here. For “Can You Pass the 10-Second Balance Test? This simple, often neglected skill can pay huge dividends later in life,” click here.

The September 2022 Digest of Articles about the Criminal Legal System, in Which Many Individuals with Mental Health Conditions Are Incarcerated (and the Key Update continues after this Digest)

For “After Another Mentally Ill Person Dies in Police Custody, Experts Call for Widespread Training, Health Resources,” click here. For “Mental Health Professionals Really Can Assume Some Police Duties: In Denver, it’s proving cheaper and maybe more effective—in limited circumstances. Here’s how,” click here. For “How Qualified Immunity Fails People at Risk of Suicide,” click here. For “A BFD for Criminal Justice Reform: The fight to reduce mass incarceration just got a big boost,” click here. For “Bringing Balance and Fairness to Reporting on Safety and Justice: A New Resource for Reporters Who Cover Complex Issues Involving Crime & the Legal System,” click here. For “Voting in Jails: Advocacy Strategies to #UnlockTheVote,” click here. For “How Policing Has—and Hasn’t—Changed Since George Floyd: More than two years after millions took to the streets to protest police violence, the problem persists. That doesn’t mean nothing has changed,” click here. For “Jail Guitar Doors goes into the prisons, jails, and juvenile detention facilities all around this nation bringing with us the undeniable, UNIVERSAL POWER OF MUSIC to help our fellow imprisoned human beings onto the right track toward successful reentry,” click here. (Courtesy of Surviving Spirit newsletter) For “Restraints and involuntary medication are widespread at corrections facility for people with mental illness, report alleges,” click here. For “ ‘When People Fear Me Based on My Jail Tats and Scars, They Miss the Real Me’: A recent ride to a public clinic gave Jose Armendariz a quick break from jail. But he couldn’t escape the fear and judgment of the other patients,” click here. For “The Arizona Prison System Is Censoring The Nation. We’re Doing Something About It. Arizona prison authorities are stopping incarcerated people from reading The Nation. We’re working with the ACLU’s National Prison Project to assert their First Amendment rights,” click here. For “How Electronic Monitoring Incentivizes Prolonged Punishment: An innovative method to help reduce mass incarceration is often derailed by outrageous fees and onerous rules that can send people back to prison,” click here. For “ ‘It’s Crushing’: The Lasting Trauma of the Exonerated. Proving your innocence is only part of the battle to put your life back together,” click here. For “For wrongfully convicted Black men, exoneration can be just as traumatizing as prison: Black people are wrongfully convicted at a higher rate—and pay a high price even after being exonerated,” click here. For “Via multiple rulings, Michigan Supreme Court places new restrictions on when juveniles can receive life sentences,” click here. For “Hundreds of Thousands of Incarcerated People Are in Danger Amid Scorching Heat,” click here. For “ ‘Cooking Them to Death’: The Lethal Toll of Hot Prisons,” click here. For “Prison Money Diaries: What People Really Make (and Spend) Behind Bars: We asked people in prison to track their earning and spending — and bartering and side hustles — for 30 days. Their accounts reveal a thriving underground economy behind bars,” click here. For “We Spent a Year Following a Troubled Police Force. Listen to the Entire Podcast Series: ‘Changing the Police,’ a podcast from The Marshall Project and NPR’s Embedded, examines what one community wants from its cops,” click here. “Some [cities] have launched crisis-response programs that offer alternatives to the police for some non-violent mental health emergencies. But in Yonkers, for now, the police still handle these calls.” See Episode 4, which covers this issue, at this link (click here). For ”Albert Woodfox, Angola 3 member and prison reformer, dies at 75. He served 43 years in solitary confinement, perhaps longest in U.S. history,” click here. For “US Sentencing Commission Restocked After Senate Confirmations,” click here. For “I spent 14 years in solitary confinement. Here’s why we should end the practice. Solitary confinement took away a piece of me that I will never get back. It's also more expensive and hurts prisoners' mental health,” click here. For “Seattle's Crackdown on Low-Level Crime Targets the Poor, Mentally Ill. The City’s Quest for ‘Accountability’ Also Reinforces Systemic Racism,” click here. For “How funding mental health services could reduce incarceration in Oklahoma,” click here. For “Staffing shortages and deficient training leave First Step Act floundering, federal prison employees say: ‘This is the biggest failure I've seen of something that's a law. It's pathetic,’ one prison counselor said,” click here.

FROM PREVIOUS EDITIONS OF THE KEY UPDATE BUT STILL FRESH!

OPPORTUNITIES TO PARTICIPATE IN RESEARCH

“Help Us Map the Landscape of Lived Experience and Family Involvement in 988 Policy and Related Crisis Response System Planning!”

“As 988 implementation rolls out alongside additional efforts to strengthen crisis response systems throughout the U.S., it's important to gauge the extent to which direct stakeholders (i.e., individuals who use or have used mental health crisis services and their families) have been involved in related policy, implementation and evaluation at the local, regional, state or federal levels. To map out involvement nationally, Mental Health America (lead: Kelly Davis), Nev Jones (University of Pittsburgh) and Keris Myrick (National Association of Peer Supporters) have developed a survey aimed at documenting the extent of stakeholder involvement, the forms this involvement has taken, and, where available, what concerns stakeholders have raised. Any individual with knowledge of lived experience and family involvement is eligible to participate; individuals completing the survey do not have to have lived experience themselves.” For more information and to access the survey, click here.

Survey Seeks Respondents Who Have Taken Mental Health Courses Involving Their Own Diagnoses

Have you taken a mental health course that covers a diagnosis you have? If so, you are invited to participate in a brief, anonymous, online survey--designed by a University of Pittsburgh MSW student--about what it's like for students with lived experience to study their own diagnoses in a classroom. The survey covers students' experiences of studying such subjects as "abnormal psychology," "psychopathology," and diagnosis and assessment when their own diagnoses are covered. "The goal of the project is to better understand what it feels like to take courses in which someone’s diagnosis is being taught/defined/discussed. There is currently no literature or reporting on the experiences of students in the above circumstances, or the associated impact." Interested? Please click here. Questions? Please email the project lead, Charlie Clement, at cjc204@pitt.edu

Peer Support in Higher Education Survey Seeks Respondents

“Peer support programs are growing on college campuses across the U.S. Mental Health America, Doors to Wellbeing, and the Temple University Collaborative on Community Inclusion want to better understand the availability of peer support in higher education as well as the experiences and needs of students accessing peer support programs…We hope to use this research to support the expansion of peer support in higher education, including developing a national database of peer support programs in higher education and documenting pressing issues in campus programs…You may also indicate if you are interested in having your school’s peer support program listed in a national database of peer support programs in higher education.” For more information and to complete the survey, click here

BU Seeks Peer Support Specialists for a Research Study

The Center for Psychiatric Rehabilitation at Boston University is developing and testing the effectiveness of a coaching service called Coaching and Advancement for Peer Providers (CAPP) “to increase organizational commitment and job satisfaction and decrease turnover among mental health peer providers.” BU CPR writes: “We need Peer Support Specialists (PSS) to participate in our study. Who can participate? People who are in a paid job as a Peer Support Specialist providing support to other people with mental health challenges, who are employed at least 10 hours per week, who have worked for the past six months in a mental health program, and who are experiencing stress because of challenges in the workplace. The study involves 16 one-hour sessions of coaching over a four-month period designed to help you with your job, meeting online (through Zoom, for example) with your coach, and filling out surveys one time before coaching starts and three additional times. You will have a 50/50 chance of getting a coach or having a one-time meeting to give you information about challenges at work. Benefits? You may learn strategies to help make work less stressful.” For more information, click here. For questions, contact Principal Investigator E. Sally Rogers, Sc.D., at erogers@bu.edu or 617-353-3549.

Supported Education Survey Needs Your Help

Do you operate a program that provides dedicated supported education services for individuals with psychiatric disabilities/mental health conditions? If so, you are invited to complete the survey at the link below. The primary goal of the survey is to help create a National Supported Education Database (NSEdD) that will be "a searchable listing of diverse supported education programs and services for individuals experiencing psychiatric disabilities and/or mental health challenges...across the US and its territories." The NSEdD project is sponsored by the Substance Abuse and Mental Health Services Administration (SAMHSA) and co-administered by the five SAMHSA-funded national consumer and consumer-supporter technical assistance centers, in collaboration with research partners Drs. Nev Jones (University of Pittsburgh) and Mark Salzer (Temple University). For a link to the survey, which includes a definition of supported education, click here. For a flyer with information about the survey, click here.    

National Survey on Student Rights, Discrimination, and Accommodations in Higher Education Seeks Respondents  

"Have you experienced psychiatric disability-based discrimination or the denial of an accommodation in a postsecondary institution in the United States? Interested in informing national advocacy focus on psych disability rights in higher ed? Mental Health America (lead: Kelly Davis) and collaborators Dr. Nev Jones (University of Pittsburgh), Stefanie Kaufman-Mthimkhulu (Project LETS) and Brit Vanneman Esq. (Bazelon Center for Mental Health Law) have developed "a survey aimed at providing a more comprehensive understanding of student experiences of campus-based discrimination, mandated leaves of absence, and/or denial of academic, administrative and/or student-work accommodations in the U.S. Data will be used to inform national advocacy efforts and future projects, and in reports, presentations and publications." For eligibility and to access the survey, click here.

If You've Had, or Been Labeled with, "Negative Symptoms" in the Context of Psychosis...

"If you have experienced or been labeled with 'negative symptoms' in the context of psychosis, please consider contributing an anonymous account of your views and experiences," Dr. Nev Jones writes. "Currently, there is nowhere one can go to find lived experience perspectives/accounts on this topic—even though 'negative symptoms' regularly feature in research and clinical trials. Help us change this!" This survey is a companion to Psychosis Outside the Box; for that survey, click here. For more information and/or to share your story about "negative symptoms," click here.

"Are You Between the Ages of 21 and 60 and Drink Alcohol?"

"Researchers at the National Institutes of Health (NIH) are seeking adults--[both smokers and non-smokers]--to study whether a gene and smoking may affect drinking alcohol. Volunteers should be healthy and drug-free, and not seeking treatment for alcohol-related problems. Research participation includes three outpatient visits at the NIH Clinical Center in Bethesda, MD; alcohol consumption; brain scans (MRI), blood draws, and filling out questionnaires. There is no cost to participate and compensation may be provided." For more information, click here. (Courtesy of Fran Hazam)

TU Collaborative Seeks Participants for Its Parenting Through Leisure Project; See Also the TU Collaborative's Parenting Resources, Including Information on Custody Issues

The Temple University Collaborative on Community Inclusion is seeking parents with lived experience of a mental health condition to participate in a paid research study. The TU Collaborative writes: "Our program, Parenting Through Leisure, focuses on helping parents with a serious mental illness participate in leisure activities with their child. We are looking for individuals who are 18 and older; are an adult parent with a diagnosis of schizophrenia-spectrum disorder, bipolar disorder, or depression; have a child who is 7 to 15 years old and is interested in participating in family leisure with you; have legal visitation rights, joint custody or full custody of the child, with at least weekly contact; and have a desire to engage in more leisure activities with their child." For details about the study and the remuneration as well as other benefits to eligible participants, and a link to sign up, click here. Questions? Please contact TUCollab@temple.edu. And for the TU Collaborative's Parenting web page--which includes links to many resources for parents with lived experience, including information about custody laws and a model family reunification statute--click here.

Survey Seeks Respondents Who Are in Administrative/Leadership Positions in the Mental Health Field

If you are in an administrative/leadership position in the mental health arena, “the Group for the Advancement of Psychiatry (GAP) Committee on Psychiatric Administration and Leadership invites you to participate in the International Survey on Administrative Psychiatry. The survey has two purposes: 1. To identify the concerns and needs of mental health professionals/psychiatrists in administrative and leadership positions. 2. To determine training needs in administrative psychiatry. We ask you to complete this brief, [15- to 20-minute] questionnaire to help us in developing recommendations for action. We also want to let you know that, if you fill out this questionnaire, you permit the committee to use your anonymous data for scientific work.” Peer providers are included. For the survey, click here. (Courtesy of Oryx Cohen)

International Survey on Antipsychotic Medication Withdrawal Seeks Respondents

“Have you taken antipsychotic medication (such as Zyprexa, Seroquel, Abilify, Risperdal, Haldol, Geodon, Stelazine, and others), for any condition or diagnosis, with or without other medications? And did you ever stop taking antipsychotics, or try to stop taking them? Are you 18 years or older? If yes, you can take this survey about antipsychotic withdrawal and attempts to withdraw, including if you stopped taking them completely or if you tried to come off and still take them. The survey aims to improve mental health services by better understanding medication withdrawal. Lead researcher is Will Hall, a therapist and Ph.D. student who has himself taken antipsychotics. Service users/survivors/consumers from around the world also gave input. The study is sponsored by Maastricht University in the Netherlands; co-sponsors include the International Institute for Psychiatric Drug Withdrawal. Questions? Please contact will.hall@maastrichtuniversity.nl.”  For more information or to take the survey, click on www.antipsychoticwithdrawalsurvey.com

CONFERENCES

National Latino Behavioral Health Conference to Be Held in Las Vegas September 15-16, 2022

“The National Hispanic and Latino Addiction Technology Transfer Center (NHL-ATTC) and the National Hispanic and Latino Prevention Technology Transfer Center (NHL-PTTC) invite you to join us for the 2022 National Latino Behavioral Health Conference: Latino Behavioral Health Equity ¡Juntos Podemos! [Together We Can!] on September 15-16, 2022 at the Sahara Hotel in Las Vegas, Nevada. The purpose of the 2022 National Latino Behavioral Health Conference is to highlight the latest and most relevant data around Prevention, Treatment, Recovery, Policy, and Research focusing on the Hispanic and Latino communities.” For more information and to register, click here.

AD4E 2022 Virtual Conference to Take Place September 16

The 3rd annual A Disorder for Everyone (AD4E) festival, to take place on September 16, 2022, “will bring you a whole day of change-making talks, presentations, conversations, poetry from far and wide,” the organizers write. The conference will begin at 9:00 BST (British Summer Time). For a time conversion table, click here. For more information and to buy a ticket, click here. (Courtesy of Kevin Fitts)

APA to Host Mental Health Services Conference October 13-14 in Washington, DC

The American Psychiatric Association writes: “The 2022 Mental Health Services Conference will bring psychiatrists and other mental health professionals together to collaborate on practical advice to influence systems-level change for their patients. Join us in-person in Washington, D.C. at the Capital Hilton Hotel, October 13-14, as we work together to develop practical solutions to solve real-world issues.” Sessions include “988 and Crisis Care: What Happens After the Call?”; “Mental Health Professionals’ Role in Reclaiming Community Members from the Justice System”; and “The Overturning of Roe vs Wade: Implications for Women’s Health and the Practice of Medicine.” For more information, click here.

2022 N.A.P.S. (Hybrid) Conference to Be Held 10/19-21

The 2022 conference of the National Association of Peer Supporters will be held October 19-21, 2022, at the Sheraton DFW (at the Dallas/Ft. Worth International Airport), and virtually. The conference theme is The Value and Values of Peer Support. "The 2022 N.A.P.S. conference will be the first time we gather in person since 2019. I can't wait to see you there! Join us for networking, education, and celebration of each other," said Jessi Davis, N.A.P.S. board president. To register, click here.

NARPA Announces Exciting Keynoters to Speak at Its 2022 Annual Rights Conference, October 26-29

The National Association for Rights Protection and Advocacy (NARPA) will hold its 2022 Annual Rights Conference at the DoubleTree by Hilton Hotel Newark Airport October 26-29. The four inspiring keynote speakers will be Rob Wipond, an activist, investigative journalist, and author of the upcoming “Your Consent Is Not Required: The Rise in Forced Detentions, Forced Treatment, And Abusive Guardianships; Ruth Lowenkron, Director, Disability Justice Program, New York Lawyers for the Public Interest, who has filed lawsuits against the New York Police Department about their responses to mental health crisis calls; Vesper Moore, an indigenous political activist, leader, author, trainer and educator in the psychiatric survivor and disability rights movements; Deborah Dorfman, Executive Director, Disability Rights Connecticut, who is active in individual, class action, and systemic reform litigation for disability rights around the nation; and Robert Dinerstein, Professor of Law, American University Washington College of Law, who will speak about recent developments in mental health law. Visit www.narpa.org for registration form and updates. 

National Association for Rural Mental Health Conference to Be Held November 2-4, 2022

The 47th Annual National Association for Rural Mental Health (NARMH) conference will be held at the Embassy Suites in Boulder, Colorado, November 2-4, 2022. The theme is “Beyond the Pandemic—Building on Rural Resiliency.” The early-bird registration fee is $500; for people who are retired or students, it’s $250. For more information as it becomes available, click here.

The International Conference on Trauma and Mental Health will take place November 3-4, 2022, in San Francisco. For more information, click here.

ISPS-US (Hybrid) 2022 Conference to Be Held November 4-6

The 2022 ISPS-US (International Society for Psychological and Social Approaches to Psychosis—U.S. Chapter) conference will be held November 4-6 in Sacramento, California, as well as online. The conference theme is Opportunity Through Experience: Psychosis, Extreme States, and Possibilities for Transformation. ISPS-US writes: “People with lived experience, family members, clinicians, and researchers are all invited to propose presentations that promote mutual collaboration and respect, and can allow us to offer each other both greater understanding and more light. We especially welcome proposals from members of marginalized groups whose experiences have included systemic as well as relational traumas and challengesFor more information, click here. (Courtesy of Jacek Haciak)

ISEPP’s 2021 Conference Is Available to View Online

The 2021 conference of the International Society for Ethical Psychology and Psychiatry can be viewed online. The theme of the conference, convened October 9-10, 2021, was “The Destructive Propaganda of the Mental Health Industry: How Did We Get Here? Where Are We Going?” It was dedicated to the life and memory of Paula J. Caplan, Ph.D. To buy a ticket to watch the full conference recording for $22.85, click here.

PETITIONS AND OPEN LETTERS

ISEPP Invites Mental Health Practitioners and Academicians to Sign Its Open Letter to the Major U.S. Mental Health Professional Organizations

The Coalition Against Medicalized Psychology & Psychiatry (CAMPP)—the action committee of the International Society for Ethical Psychology & Psychiatry (ISEPP)—asks mental health practitioners and academicians worldwide “to join us in signing an open letter to the American Psychiatric Association, American Psychological Association, American Counseling Association, National Association of Social Workers, and American Association for Marriage and Family Therapy to provide evidence for framing emotional distress and troublesome behaviors as illnesses or defects in a person’s biology—and, if they can't, to publicly reject the medical model of mental disorder. With this we hope to raise awareness of the harmful effects of that model. Send me your name, credentials, profession, position, city, state, and country to be appended to the letter. Pass this email on to others in your network and ask them to sign too. Our plan is to share the above organizations' responses (or lack of responses) with The Washington Post and The New York Times science and/or health editors.” For the letter, click here. (Courtesy of Elizabeth R. Stone) (For another ISEPP petition, see below.)

ISEPP Circulates Petition to Support Human Rights in Psychiatric Treatment

ISEPP seeks signatures on a petition to  "[m]ake a strong statement that any psychiatric or psychotherapeutic interventions without full and honest informed consent are unethical and inhumane." For the petition, click here. (Courtesy of Amy Smith)

Please Sign a Petition to Help Save a Public Mental Health Model in Italy

"Trieste is recognized by the World Health Organization as the model of global best practice in mental health care," according to a change.org petition highlighted in a recent NPR article. "It has inspired dozens of programs throughout the world to create an integrated network of community services focused upon the whole-person needs of its users; maintaining their dignity as citizens; and minimizing the coercive practices of old fashioned institutional settings...Trieste has shown us how community inclusion improves people’s lives. But this great achievement is now threatened by a new right-wing regional government that, on poorly informed and ideological grounds, is fast and impulsively dismantling Trieste's wonderful system of community care...As a Friend of Trieste and all that it stands for, please sign this petition and distribute it widely. For updates on this situation, please consult www.accoglienza.us." For the NPR article, "A public mental health model in Italy earns global praise. Now it faces its demise," click here. For the petition, click here. (Courtesy of Laura Van Tosh)

OTHER OPPORTUNITIES AND RESOURCES

“Crisis Now” Offers a “Roadmap to Safe, Effective Crisis Care”

The goal of Crisis Now: Transforming Crisis Services—led by the National Association of State Mental Health Program Directors (NASMHPD) and developed with the National Action Alliance for Suicide Prevention, the National Suicide Prevention Lifeline, the National Council for Mental Wellbeing, and RI International—is “to provide all communities a roadmap to safe, effective crisis care that diverts people in distress from the emergency department and jail by developing a continuum of crisis care services that match people’s clinical needs.” Among the resources offered on the website are SAMHSA’s 80-page “National Guidelines for Behavioral Health Crisis Care Best Practice Toolkit” (2020), an “Overview of Crisis Funding Sources Available to States and Localities” (last updated March 2, 2022), and assessment tools, such as “How Does Your Crisis System Rate?” The Crisis Now partners write: “Are you interested in adding your organization to the list supporting Crisis Now, or do you have questions? Reach out to us at info@crisisnow.com. For the website, click here. (Courtesy of Kevin Fitts)

South Southwest MHTTC Publishes “Hotline Peer Specialist Integration: Preliminary Considerations for Equity and Sustainability”

“Authors Kirill Staklo (he/him) and Nze Okoronta (they/them) provide an overview of the necessary information for the integration of peer specialists in hotline programming for equity and sustainability. Topics include Intro to the Peer Role; Medical trauma and minority stress; Hotline work: How is it different?; Informed consent and harm reduction; Best practices in service establishment and training; and further resources.” For the 26-page document, published by the South Southwest Mental Health Technology Transfer Center Network, click here. (Courtesy of Jessi Davis)

“What Is the Meaning of Life?” This Free Online Collection Offers Answers

Excellence Reporter offers more than “1,200 articles-interviews on ‘What Is the Meaning of Life?’ written by renowned spiritual leaders, mindfulness experts, great thinkers and authors, elders, artists, musicians, CEOs, etc.” The contributors include such renowned figures as Bertrand Russell; Carl Jung; the Dalai Lama; Eleanor Roosevelt; Epicurus; Erich Fromm; Kahlil Gibran; Buckminster Fuller; Robert Louis Stevenson; and Ron Bassman, executive director of MindFreedom International. To browse the free compendium, click here.

Rutgers Releases W-TLC Virtual Toolbox and Training/Learning Collaborative Series

“The Rutgers Center of Alcohol & Substance Use Studies has announced the release of the Wellness Training Learning Collaborative (W-TLC) virtual toolbox and Training/Learning Collaborative series…This toolkit provides peer support, individual, and organizational approaches to support the wellbeing of the critical health care workforce.” For descriptions of the 12 upcoming sessions—including two in July (July 7 and July 28), with the remaining sessions to be held August 2022 through January 2023—and to register for them, click here. For the “Journey to Wellness Guide,” click here. (Note: Information about the Journey to Wellness Guide was included in the April 2022 Key Update.)

“Would You Like to Share Your Experiences to Help Others Who Are Trying to Find Freedom, Healing & Hope Beyond Psychiatry?”

“I am currently working on a book about life beyond psychiatric services and would love to include the wisdom and expertise of as many survivors as possible!,” Jacqui Dillon, a person with lived experience in the UK, posted on Facebook. “I am looking for submissions between 500 and 2,000 words. I am aiming to cover a range of issues and experiences which many of us have had to engage with, which will be useful for people currently trying to navigate their way out of the system. Please feel free to focus on whichever areas interest you most. You are free to use your own name, or a pseudonym, whichever feels most comfortable to you. Please contact me here for further information, or send your submissions here: beyondthemadhouse@gmail.com. Submissions are required by mid-September.” For the Facebook post, click here. (Courtesy of Philip Benjamin via Jacek Haciak)

Lancet Offers Stakeholders New Opportunities

Check out these opportunities for stakeholder involvement! (1) The Lancet Psychiatry Commission's "Lived Experience Hub" invites stakeholders to contribute blogposts to convey criticisms, concerns and/or ideas relevant to the work of the Commission. For details, click here. To submit a blog, email lancetcommissionpsychosis@gmail.com. (2) The Lancet Psychiatry Commission's "lived experience research group" is a new listserv focused on lived experience advocacy and activism on participatory psychosis research and related policy and practice. In part, this will serve as a sounding board for Lancet Commission work and a place to engage in dialogue about what needs to change. To join, email  lancetcommissionpsychosis@gmail.com. (Courtesy of Dr. Nev Jones)

Peer Advocates Over 50 Years Old Are Invited to a Weekly Empowering Support Group

"People over 50 who are mental health lived-experience advocates, change makers, visionaries, and current status quo challengers" are invited to join "a weekly, open, upbeat, peer-support empowering environment for seasoned peers with lived experience who are active, and were active, as advocates for positive change," the WiseCrackers write. The goal of the recently launched group is "to support mental health advocates over 50 years of age with pure peer support practices based on natural curiosity, acceptance, humor, and positive networking." The free, 90-minute Zoom meetings are held on Mondays at 7 p.m. ET, 6 p.m. CT, 5 p.m. MT, and 4 p.m. PT. The meetings are currently co-facilitated by "East and West Coast Peers" and sponsored by the Community for Positive Aging. To register and to review the WiseCracker Principles of support, click here. Questions? Contact info@choiceheals.com or 503.208.0065.

The UIC Center’s Solutions Suite for Health & Recovery Offers Free Tools

"The UIC Center offers tools, curricula, and implementation manuals for free use in community-based programs, peer-run programs, or one's own life. You can introduce the entire complement of products to foster improved health, wellness, and mental health recovery. Or, you can choose the ones that will work best for your program or your life. The Suite was developed in collaboration with Collaborative Support Programs of New Jersey. The UIC Center is funded by NIDILRR (National Institute on Disability, Independent Living, and Rehabilitation Research). For the UIC Solutions Suite for Health & Recovery, click here. (Courtesy of Peggy Swarbrick via Jacek Haciak)

Poetry Coalition to Launch "Poetry & Disability Justice" Initiative

"This year, the 25+ organizations nationwide that comprise the Poetry Coalition will launch 'The future lives in our bodies: Poetry & Disability Justice,' the coalition’s sixth annual programming initiative...Poetry Coalition members aim to demonstrate how poetry can inspire questions in their communities about disability justice and spark increased engagement with this important theme. Member organizations are committed to offering programming that is accessible and that includes disabled, neurodivergent, and d/Deaf poets and those of diverse racial, ethnic, and gender identities, backgrounds, and communities. All organizations and others interested are invited to create programs on this theme in 2022 and share their efforts using the hashtags #DisabilityJustice and #PoetryCoalition. For some additional resources to assist with programming, particularly in creating accessible programming, click here.

U.S. Surgeon General Creates Community Toolkit for Addressing Health Misinformation

"The U.S. Surgeon General’s Community Toolkit for Addressing Health Misinformation, developed in collaboration with the HHS Office of Evaluation Sciences (OES), provides specific guidance and resources for health care providers, educators, librarians, faith leaders, and trusted community members to understand, identify, and stop the spread of health misinformation in their communities." For information about the toolkit (a 22-page overview of health misinformation, and resources to stop it), and links to a “Talk to Your Community About Health Misinformation” Infographic, a “Health Misinformation Checklist” Infographic, and the Surgeon General's press release, click here.

"Psychiatrist with Philosophical Interests" leads "Conversations in Critical Psychiatry," a Psychiatric Times Series

Awais Aftab, who describes himself as a "psychiatrist with philosophical interests" in his Twitter bio, leads "Conversations in Critical Psychiatry," which, he says, "explores critical and philosophical perspectives in psychiatry and engages with prominent commentators within and outside the profession who have made meaningful criticisms of the status quo." Among those interviewed are Allen Frances, M.D., author of Saving Normal; Sandra Steingard, M.D., and G. Scott Waterman, M.D., on "Integrating Academic Inquiry and Reformist Activism in Psychiatry"; Susannah Cahalan, author of Brain on Fire: My Month of Madness, on "50 Shades of Misdiagnosis"; Kathy Flaherty, J.D., executive director of the Connecticut Legal Rights Project, Inc., on "Reconsidering Care and Coercion in Psychiatry"; Nev Jones, Ph.D., on "Phenomenology, Power, Polarization, and the Discourse on Psychosis"; Dainius Puras, M.D., on "Global Psychiatry's Crisis of Values"; and many others. For the archived interviews, click here.

CNN Offers “A Guide to Helping and Getting Help During the Coronavirus Crisis”

CNN writes: “The coronavirus pandemic is overwhelming, and one of the most excruciating parts for many people is the feeling of utter helplessness in the face of widespread suffering and hardship. CNN’s Impact Your World has compiled a list of donation opportunities and tips to help those affected by the crisis. Click on a category or scroll down to browse a list of organizations, resources and ideas. Need help? Most categories also include resources for financial, emotional or social support.” For the free guide, click here.

U.S. DOL Releases Guidance on FMLA Leave and Mental Health

The U.S. Department of Labor’s newly issued Fact Sheet #280 about the Family and Medical Leave Act (FMLA) explains when eligible employees may take FMLA leave to address mental health conditions, and new Frequently Asked Questions (FAQs) offers additional information. (Although the FMLA covers public and private employers nationwide, only those private employers who have 50 or more employees for at least 20 workweeks in a year are required to provide their eligible employees with FMLA leave.) For details, click here.

Hearing Voices Network Is Now Hosting Online Groups

“There are now ONLINE opportunities to connect, share experiences, and find mutual support,” the Hearing Voices Network (HVN) writes. “These groups are accessible via web-based platforms and by phone…Online groups are specifically for those with personal lived experience with hearing voices, seeing visions, and/or negotiating alternative realities. They are voice-hearer facilitated. With further questions and for details on how to access the group[s], please email info@hearingvoicesusa.org.” To read this announcement online and for more information, click here.

Virtual Group Works to Advance Peer Research Capacity, Leadership, and Involvement

Nev Jones, PhD—a strong advocate for building research capacity, leadership, and involvement among peers, survivors, and service users—leads a virtual group dedicated to this effort. Dr. Jones—assistant professor, School of Social Work, University of Pittsburgh—was part of the team that developed “User/Survivor Leadership & Capacity Building in Research: White Paper on Promoting Engagement Practices in Peer Evaluation/Research (PEPPER),” published by the Lived Experience Research Network. For the white paper, click here. Anyone interested in joining the virtual group can email Nev at nev.inbox@gmail.com.

Mad In America Invites You to Submit Your Personal Story (Within Certain Guidelines)

Mad In America writes: “A ‘personal story’ is defined as your story of being in relationship to psychiatry and/or the mental health system, whatever that means to you. It might involve your opinions and analysis of what happened to you, as well. It can be about a specific event, or about your overall journey, provided it fits the length requirements (1,500 to 3,000 words) and has a narrative arc. The piece should be about your personal experiences, not psychiatry or the mental health system in general. Submissions should fall under the theme of rethinking psychiatry and the mental health system, and should be original works not previously published elsewhere. For examples of the types of stories we publish, view our personal stories archive here.” For more information and/or to submit a personal story, click here.

PsychAlive Offers a Variety of Webinars on Mental Health Topics, Many Free, Others $15

PsychAlive is a free, nonprofit resource created by the Glendon Association, whose mission is “to save lives and enhance mental health by addressing the social problems of suicide, violence, child abuse and troubled interpersonal relationships.” Psychalive.org offers a variety of upcoming and archived webinars, many of which are free, while others are available for $15. Among the myriad topics are “From Anxiety to Action: How to Stay Sane While Fighting Climate Change,” “How to Overcome Insecurity,” “Powerful Tools to Fight Depression,” and “Understanding and Overcoming Adverse Childhood Experiences.” To check out the webinars, click here.

Learning Collaborative Webinar Series Offers Several Archived Presentations 

The Doors to Wellbeing website offers a number of webinars that you may find of interest: “The Importance of Policies and Procedures in Peer-run Organizations”; “Building Partnerships to Enhance the Peer Workforce,” by Kyneta Lee, Tim Saubers, and Todd Noack; “Handing Over the Keys: Leadership Succession Planning in Non-Profit Organizations,” by Elise Padilla and Maxine Henry; “How to Embed Strategic Planning into the Culture of Your Organization,” by Oryx Cohen; “Fundraising and Sustainability: Building your Organization by Telling the Right Story to the Right Audience”; “Developing a Board of Directors for Mental Health Organizations,” by Amey Dettmer and Matthew Federici; and “Conflict Management in Peer-Run Organizations: Tools for Effective Conversations.” Certificates of attendance are not available for any of these presentations. For more information and to register for any or all of them, click here

National Safety Council Offers a Free Webinar Series Focusing on Mental Health in the Workplace

"The impact of the COVID-19 pandemic will affect employees well beyond the initial crisis," the National Safety Council writes. "Employers have a unique ability and responsibility to address the mental health and wellbeing of their workers, which is a true organization-wide effort. This free Mental Health Webinar Series led by the National Safety Council, and first presented in August 2020, speaks to a variety of positions within an organization and how each one can address stress and mental health." Four of the five webinars are titled: "Supporting Employee Mental Health" and respectively subtitled "Resources for Employees," "Actions for Leadership," "Actions for Supervisors," and "Actions for HR Professionals." To view the free, archived webinars, click here.

Seven Ways to Keep a Digital Copy of Your Vaccination Card on Your Smartphone

“You'll need proof of vaccination to go back to work or enter many restaurants, gyms and event venues, so keep your COVID-19 card handy.” This is the advice of CNET.com, a tech support website. Besides the obvious—taking a photo of the card to store on your phone—there are six other suggestions. For details, click here. (Courtesy of Yvonne Smith)

ISPS-US Offers an Array of Archived Webinars--Free but Donations Are Welcomed

The ISPS-US (The International Society for Psychological and Social Approaches to Psychosis-US Chapter) is offering a whole raft of archived webinars, which are free (although donations are welcomed). Among the webinars are "Cognitive Behavioral & Related Therapies for Psychosis: Diverse Approaches to Supporting Recovery," "How Can the Uncontainable Be Contained? Paradoxes of Madness & Philosophy," "Robert Whitaker: The Rising Non-Pharmaceutical Paradigm for 'Psychosis,'" "Life with Voices: A Guide for Harmony," "COPE Project: Non-Pharmaceutical Research on Influencing Voices and Visions," "What Hurts and What Helps In Treatment For 'Psychosis': Insider Perspectives," and many others. For more information and to access the webinars, click here.

“Where DNA and Medications Meet”

Not all drugs are effective for all people; therapeutic response rates for many drugs are only 50%-75%. “OneOme, co-founded by [the] Mayo Clinic, provides evidence-based pharmacogenomic solutions that help improve patient outcomes and reduce costs through more personalized medication decisions.” OneOme’s RightMed Test is “a doctor-ordered pharmacogenomic (PGx) test that analyzes your DNA and provides your doctors with genetic information to help them determine how you may respond to certain medications. The results may help your doctors reduce medication trial and error, minimize risk of side effects, save you time and money, and make more informed prescribing decisions. Because your DNA doesn’t change over time, your doctors can use your test results to make more personalized medication decisions for you over the course of your lifetime.” For more information, click here. (Courtesy of Robin Osborne)

Lived Experience Leadership Features 12 Years of Research Studies...

"Lived Experience Leadership features 12 years of research studies focused on this workforce in a range of settings, to foster a better of understanding and respect for Lived Experience as a distinct discipline and build clarity on what makes this work unique and valuable. Importantly, this body of research was led by Lived Experience researchers. Lived Experience Leadership provides clear and simple to read research summaries to allow community members and people employed within various industries the opportunity to easily understand and apply strategies within their own workplace. This website also includes easy to download definitionsaudio/visual resources, and key work by other Australian and International sources. The website will continue to grow to include larger collections of our research as well as other key work. For the Lived Experience Leadership website, click here. (Courtesy of Jacek Haciak)

Doors to Wellbeing Offers “State Selfies: A Picture of Peer Services Reported by Peers”

Doors to Wellbeing’s “Peer Album” is a directory of nearly 600 peer-run organizations throughout the U.S. They invite updates and offer instructions for providing them and add, “If your entry has not made this first draft, we encourage you to re-submit.” For the 158-page directory, click here.

Disclaimer: The Clearinghouse does not necessarily endorse the opinions and opportunities included in the Key Update.

About The Key Update

The National Mental Health Consumers’ Self-Help Clearinghouse is now affiliated with the Temple University Collaborative on Community Inclusion.

The Key Update is the free monthly e-newsletter of the National Mental Health Consumers’ Self-Help Clearinghouse. Volume 19, No. 3, September 2022. For content, reproduction or publication information, please contact Susan Rogers at selfhelpclearinghouse@gmail.com. Follow Susan on Twitter at @SusanRogersMH

 

 

 

Key Update, August 2022, Volume 19, Number 2

The National Mental Health Consumers’ Self-Help Clearinghouse is affiliated with the Temple University Collaborative on Community Inclusion.

TO CONTACT: THE CLEARINGHOUSE: SELFHELPCLEARINGHOUSE@GMAIL.COM  … SUSAN ROGERS: SUSAN.ROGERS.ADVOCACY@GMAIL.COM … JOSEPH ROGERS: JROGERS08034@GMAIL.COM 

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The Key Update is compiled, written, and edited by Susan Rogers, Director, National Mental Health Consumers’ Self-Help Clearinghouse.

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NOTE: THE "FROM PREVIOUS EDITIONS OF THE KEY UPDATE BUT STILL FRESH!" DEPARTMENT, WHICH IS DIRECTLY BELOW THE MONTHLY CRIMINAL LEGAL DIGEST, INCLUDES ITEMS THAT HAD BEEN POSTED "ABOVE THE FOLD" IN EARLIER EDITIONS BUT ARE STILL RELEVANT. THESE INCLUDE ONGOING RESEARCH STUDIES THAT ARE STILL SEEKING PARTICIPANTS, AS WELL AS UPCOMING WEBINARS AND CONFERENCES, AND OTHER ITEMS OF CONTINUED INTEREST. DON'T MISS IT!

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A Great Opportunity! FDA Issues Request for Nominations for Individuals and Consumer Organizations for Advisory Committees! Deadline: August 15

The Food and Drug Administration (FDA) is soliciting nominations for its advisory committees! You can nominate yourself or be nominated by a peer-run organization. “FDA seeks to include the views of individuals on its advisory committees regardless of their gender identification, religious affiliation, racial and ethnic identification, or disability status and, therefore, encourages nominations of appropriately qualified candidates from all groups.” Deadline: August 15, 2022. For details and instructions, click here. (Courtesy of Ann Marshall)

Your Input Is Sought for SAMHSA’s August 2022 Office of Recovery Planning Meeting

In mid-August 2022, some 150 invited representatives from around the U.S. and from across the field will gather in Maryland at a meeting convened by SAMHSA’s Office of Recovery, which was launched last year to evaluate and initiate policy, programs, and services with a recovery focus, and to ensure that voices of individuals in recovery are represented. The goal is to develop a road map for the future. To provide input in advance of the meeting, choose one of these two remaining one-hour Zoom meetings. (The meetings will be recorded, and you must register in advance.) To register for the July 31 meeting (at 8 p.m. ET), click here. To register for the August 2 meeting (at 3 p.m. ET), click here. You can also send written comments by August 4 to peer representative Ann Kasper (ann@kasperconnects.com); she will share your input with SAMHSA. SAMHSA’s plan is to review the recovery definition, dimensions, and guiding principles to ensure use across programs and services; discuss successes, challenges, and innovations of the last 10 years to improve recovery-oriented systems of care; and generate ideas and strategies to inform development of the Office of Recovery. (Ann writes: “Please note that I am providing Zoom information meetings to you as a volunteer and not fiscally sponsored by any organization.”)

Informational Webinar for “Emerging Adults” (18-30) on ConnectionsRx: August 1

The Temple University Collaborative on Community Inclusion will host an informational webinar on August 1 at 11 a.m. ET about “ConnectionsRx, an intervention program designed to support emerging adults (18-30) with mental health conditions to participate in the community. The program consists of 1-1 supports and a peer support group facilitated through Discord…[T]he program is designed to support social relationships, resilience, and competence.” To register, click here. Can’t make it? Contact Marcus.Robinson@temple.edu for eligibility information and benefits of participation in this research opportunity.

A Free, Two-Part SAMHSA-Sponsored Webinar on Youth Mental Wellness on August 3 and 4

On August 3 and August 4, 2022, SAMHSA will sponsor a two-part TA Coalition webinar series on Social Connectedness–A Key Component to Youth Mental Wellness, Including Youth with Serious Mental Illness or Emotional Disturbances,” presented on behalf of the Association of State and Territorial Health Officials (ASTHO). Participants in the 90-minute August 3 webinar, beginning at 2 p.m. ET, can register for Part Two–a 60-minute intimate dialogue with the presenters–Linda Hall, director, Wisconsin Office of Children’s Mental Health, and Kini-Ana Tinkham, executive director, Maine Resilience Building Network–on August 4 at 2 p.m. ET. For details and to register, click here. (Courtesy of Judene Shelley)

MindFreedom International’s Next Judi's Room to Be Held on August 3

On August 3, 2022, at 6:00 p.m. ET, 3 p.m. PT, MindFreedom International will host its next monthly Judi’s Room. For more information stay tuned here! To register for free, click here.

There Is "No Evidence Low Serotonin Causes Depression"
As has been reported in numerous publications recently, "After decades of public misperception, a major review finally lays the chemical imbalance theory of depression to rest." For the Mad in America article, which includes links to additional information, click here.

Past Alternatives Conference Attendees: Your Input Is Sought as NCMHR Plans Alternatives 2022!

“We are excited to announce that planning is under way for a virtual Alternatives 2022 for the beginning of November,” the Alternatives 2022 Planning Committee writes. “We would very much like to have your input as you attended the Alternatives conference at least once in the last few years. Please take a few minutes to complete the survey at this link (click here). We will be sending additional details about the conference based on the input your give. Thank you for your time! We look forward to seeing you at Alternatives 2022! For this announcement, click here.

Two SAMHSA-sponsored Webinars Will Highlight NASMHPD’s Racial Equity Guidance

NASMHPD’s racial equity guidance for state behavioral health offices will be the focus of a SAMHSA-sponsored, two-part webinar series entitled “Guidance, Actionable Steps, and Examples to Begin to Address Behavioral Health Care Disparities & Bring Racial Equity within the Behavioral Health Care System.” Part One, a 90-minute webinar, will take place on August 11, 2022, at 2:30 pm. ET. Part Two, on August 12, is a 60-minute roundtable discussion. For the 12-page document, click here. For details and to register, click here. Questions? Contact kelle.masten@nasmhpd.org (Courtesy of Judene Shelley)

MHA Is Accepting Applications for Its Young Mental Health Leaders Council

Mental Health America is accepting applications for its 2022-2023 Young Mental Health Leaders Council. “YMHLC identifies young adults (ages 18-25) who have created programs and initiatives that fill gaps in mental health resources in their communities...Selected applicants participate in a six-month cohort to connect and share ideas with other leaders from across the U.S.” Applications are due by August 19. For more information and to apply, click here.

“Crisis Now” Offers a “Roadmap to Safe, Effective Crisis Care”

The goal of Crisis Now: Transforming Crisis Services—led by the National Association of State Mental Health Program Directors (NASMHPD) and developed with the National Action Alliance for Suicide Prevention, the National Suicide Prevention Lifeline, the National Council for Mental Wellbeing, and RI International—is “to provide all communities a roadmap to safe, effective crisis care that diverts people in distress from the emergency department and jail by developing a continuum of crisis care services that match people’s clinical needs.” Among the resources offered on the website are SAMHSA’s 80-page “National Guidelines for Behavioral Health Crisis Care Best Practice Toolkit” (2020), an “Overview of Crisis Funding Sources Available to States and Localities” (last updated March 2, 2022), and assessment tools, such as “How Does Your Crisis System Rate?” The Crisis Now partners write: “Are you interested in adding your organization to the list supporting Crisis Now, or do you have questions? Reach out to us at info@crisisnow.com. For the website, click here. (Courtesy of Kevin Fitts)

South Southwest MHTTC Publishes “Hotline Peer Specialist Integration: Preliminary Considerations for Equity and Sustainability”

“Authors Kirill Staklo (he/him) and Nze Okoronta (they/them) provide an overview of the necessary information for the integration of peer specialists in hotline programming for equity and sustainability. Topics include Intro to the Peer Role; Medical trauma and minority stress; Hotline work: How is it different?; Informed consent and harm reduction; Best practices in service establishment and training; and further resources.” For the 26-page document, published by the South Southwest Mental Health Technology Transfer Center Network, click here. (Courtesy of Jessi Davis)

Free Webinar: "Returning to Our Roots: Remembering Why the Work Is Important and Why We Love It"

NYAPRS will host a free webinar on August 10, 2022, at 12 p.m. ET entitled "Returning to Our Roots: Remembering Why the Work Is Important and Why We Love It.” NYAPRS writes: "Reconnecting with our personal ‘why’ is important. Being connected to our convictions, our purpose, and our personal mission motivates us to be focused on our impact, to reflect and to recalibrate. Join NYAPRS Training Collective team member Robert Statham in a conversation to take a closer look at your own ‘why.’” To register, click here.

New Study Explores Employment Outcomes of Certified Peer Specialists

A recent three-year, four-state study of employment outcomes of certified peer specialists (CPSs) by Live & Learn Inc. has found that “[w]orkers with a CPS credential had higher employment rates, compared with [other] adults with psychiatric disabilities, and the quality of peer specialist jobs was equal to or higher than the quality of other jobs held by study participants.” For the abstract, published in Psychiatric Services, click here. (Live & Learn is purchasing open access; in the meantime, contact@livelearninc.net and they will send a PDF copy.)

HALI’s Next Academy of Peer Services Learning Collaborative Will Begin on August 22
Hands Across Long Island will begin its next Academy of Peer Services Learning Collaborative on August 22, 2022. The free one-hour Zoom sessions will be held every Monday (Tuesdays on holiday weekends) at 3 p.m. ET through November 14, 2022. Although some of the information will be New York State-specific, most of it will be applicable across the U.S. Participants are urged, although not required, to log in (for free) to the Academy of Peer Services website (click here) and look over the identified module prior to each week's session. For the HALI calendar of events, which includes the Zoom link and a New York State phone number, click here. For more information, and for phone numbers outside New York State, contact Em Wasserman: ewasserman@hali88.org 

Building Culturally & Linguistically Specific Recovery Community Organizations for Latinos
On August 30, 2022, at 2 p.m. ET, Doors to Wellbeing will host the latest in its monthly webinar series: “Building Culturally & Linguistically Specific Recovery Community Organizations for Latinos.” The presentation will cover what its founders call “the first, and still only one of its kind, culturally and linguistically specific Recovery Community Organization for Latinos in Oregon.” Founded in 2021, the Recovery Drop-in Center quickly became a hub for the local Latino recovery community. The presenter writes: “This presentation will talk about how we did what we did, what we learned about launching this project, and what we think can help others launch similar projects.” For more information and to register, click here.

Learning Collaborative Webinar Series Offers Several Archived Presentations 

The Doors to Wellbeing website offers a number of webinars that you may find of interest: “The Importance of Policies and Procedures in Peer-run Organizations”; “Building Partnerships to Enhance the Peer Workforce,” by Kyneta Lee, Tim Saubers, and Todd Noack; “Handing Over the Keys: Leadership Succession Planning in Non-Profit Organizations,” by Elise Padilla and Maxine Henry; “How to Embed Strategic Planning into the Culture of Your Organization,” by Oryx Cohen; “Fundraising and Sustainability: Building your Organization by Telling the Right Story to the Right Audience”; “Developing a Board of Directors for Mental Health Organizations,” by Amey Dettmer and Matthew Federici; and “Conflict Management in Peer-Run Organizations: Tools for Effective Conversations.” Certificates of attendance are not available for any of these presentations. For more information and to register for any or all of them, click here

AD4E 2022 Virtual Conference to Take Place September 16

The 3rd annual A Disorder for Everyone (AD4E) festival, to take place on September 16, 2022, “will bring you a whole day of change-making talks, presentations, conversations, poetry from far and wide,” the organizers write. The conference will begin at 9:00 BST (British Summer Time). For a time conversion table, click here. For more information and to buy a ticket, click here. (Courtesy of Kevin Fitts)

ISEPP’s 2021 Conference Is Available to View Online

The 2021 conference of the International Society for Ethical Psychology and Psychiatry can be viewed online. The theme of the conference, convened October 9-10, 2021, was “The Destructive Propaganda of the Mental Health Industry: How Did We Get Here? Where Are We Going?” It was dedicated to the life and memory of Paula J. Caplan, Ph.D. To buy a ticket to watch the full conference recording for $22.85, click here.

APA to Host Mental Health Services Conference October 13-14 in Washington, DC

The American Psychiatric Association writes: “The 2022 Mental Health Services Conference will bring psychiatrists and other mental health professionals together to collaborate on practical advice to influence systems-level change for their patients. Join us in-person in Washington, D.C. at the Capital Hilton Hotel, October 13-14, as we work together to develop practical solutions to solve real-world issues.” Sessions include “988 and Crisis Care: What Happens After the Call?”; “Mental Health Professionals’ Role in Reclaiming Community Members from the Justice System”; and “The Overturning of Roe vs Wade: Implications for Women’s Health and the Practice of Medicine.” For more information, click here.

“What Is the Meaning of Life?” This Free Online Collection Offers Answers

Excellence Reporter offers more than “1,200 articles-interviews on ‘What Is the Meaning of Life?’ written by renowned spiritual leaders, mindfulness experts, great thinkers and authors, elders, artists, musicians, CEOs, etc.” The contributors include such renowned figures as Bertrand Russell; Carl Jung; the Dalai Lama; Eleanor Roosevelt; Epicurus; Erich Fromm; Kahlil Gibran; R. Buckminster Fuller; Robert Louis Stevenson; and Ron Bassman, executive director of MindFreedom International. To browse the free compendium, click here.

The August 2022 Digest of Articles Offering Healthy Lifestyle Advice

For “Having a ‘Life Purpose’ Is Linked with Better Brain Health, Study Shows,” click here.  For “The Power of Talking to Yourself: ‘External self-talk,’ as it’s clinically known, gets a bad rap. But it can be great for pushing through all sorts of obstacles,” click here. For “Text Your Friends. It Matters More Than You Think. New research says most of us underestimate the power of the casual check-in,” click here. For “Women are more likely to live past 90 if they’re optimistic, according to a new study,” click here.

The August 2022 Digest of Articles about the Criminal Legal System, in Which Many Individuals with Mental Health Conditions Are Incarcerated (and the Key Update continues after this Digest)

For “Why Was Joshua Held for More Than Two Years for Someone Else’s Crimes? Honolulu incarcerated the wrong man for more than two years—a miscarriage of justice that shows the cruel inadequacy of America’s approach to mental health,” click here. For “Ardella’s House brings new form of dignity for formerly incarcerated women,” click here. For “Secret Solitary: A prisoner with a life sentence investigates a solitary confinement cover-up in Texas prisons,” click here. For “Experts Say We Have the Tools to Fight Addiction. So Why Are More Americans Overdosing Than Ever?” click here. For “The Supreme Court’s Unusual Move on the Death Penalty,” click here. For “Death Penalty Census Database,” click here. For “On 20th Anniversary of Atkins v. Virginia, Supreme Court Denies Petition to Review Procedural Loophole Permitting Execution of Intellectually Disabled Prisoners,” click here. For “Federal Judge Rules Gruesome Medical Neglect in Arizona Prisons Violates Eighth Amendment: ‘No legitimate humane system would operate in this manner,’ the judge concluded,” click here. For “DPIC Analysis Finds Prosecutorial Misconduct Implicated in More than 550 Death Penalty Reversals or Exonerations,” click here. For “She ‘fell’ out of a patrol car and died, police say. Her family wants answers,” click here. For “Op-Ed: An L.A. program helps people get mental health care instead of jail time. Why not expand it?” click here. For “Missouri’s top mental health official balked at new homeless law. The governor signed it anyway,” click here. For “Column: ‘No treatment until tragedy’ is our mental health system. CARE Court could change that,” click here. For “ 28 Years, 160 Arrests: What One Man’s Record Reveals About San Diego’s Broken Justice System. What do you do with people who are repeatedly failed by social services and the legal system?” click here. For ‘You Shouldn’t Have Used the D-Word’: Saying ‘I’m depressed’ to jail staff landed Nicholas Brooks in solitary. But with his peers, he has found a way to speak freely,” click here. For “Alabama Department of Corrections picks new medical, mental health care provider,” click here.

FROM PREVIOUS EDITIONS OF THE KEY UPDATE BUT STILL FRESH!

OPPORTUNITIES TO PARTICIPATE IN RESEARCH

“Help Us Map the Landscape of Lived Experience and Family Involvement in 988 Policy and Related Crisis Response System Planning!”

“As 988 implementation rolls out alongside additional efforts to strengthen crisis response systems throughout the U.S., it's important to gauge the extent to which direct stakeholders (i.e., individuals who use or have used mental health crisis services and their families) have been involved in related policy, implementation and evaluation at the local, regional, state or federal levels. To map out involvement nationally, Mental Health America (lead: Kelly Davis), Nev Jones (University of Pittsburgh) and Keris Myrick (National Association of Peer Supporters) have developed a survey aimed at documenting the extent of stakeholder involvement, the forms this involvement has taken, and, where available, what concerns stakeholders have raised. Any individual with knowledge of lived experience and family involvement is eligible to participate; individuals completing the survey do not have to have lived experience themselves.” For more information and to access the survey, click here.

Survey Seeks Respondents Who Have Taken Mental Health Courses Involving Their Own Diagnoses

Have you taken a mental health course that covers a diagnosis you have? If so, you are invited to participate in a brief, anonymous, online survey--designed by a University of Pittsburgh MSW student--about what it's like for students with lived experience to study their own diagnoses in a classroom. The survey covers students' experiences of studying such subjects as "abnormal psychology," "psychopathology," and diagnosis and assessment when their own diagnoses are covered. "The goal of the project is to better understand what it feels like to take courses in which someone’s diagnosis is being taught/defined/discussed. There is currently no literature or reporting on the experiences of students in the above circumstances, or the associated impact." Interested? Please click here. Questions? Please email the project lead, Charlie Clement, at cjc204@pitt.edu

Peer Support in Higher Education Survey Seeks Respondents

“Peer support programs are growing on college campuses across the U.S. Mental Health America, Doors to Wellbeing, and the Temple University Collaborative on Community Inclusion want to better understand the availability of peer support in higher education as well as the experiences and needs of students accessing peer support programs…We hope to use this research to support the expansion of peer support in higher education, including developing a national database of peer support programs in higher education and documenting pressing issues in campus programs…You may also indicate if you are interested in having your school’s peer support program listed in a national database of peer support programs in higher education.” For more information and to complete the survey, click here

BU Seeks Peer Support Specialists for a Research Study

The Center for Psychiatric Rehabilitation at Boston University is developing and testing the effectiveness of a coaching service called Coaching and Advancement for Peer Providers (CAPP) “to increase organizational commitment and job satisfaction and decrease turnover among mental health peer providers.” BU CPR writes: “We need Peer Support Specialists (PSS) to participate in our study. Who can participate? People who are in a paid job as a Peer Support Specialist providing support to other people with mental health challenges, who are employed at least 10 hours per week, who have worked for the past six months in a mental health program, and who are experiencing stress because of challenges in the workplace. The study involves 16 one-hour sessions of coaching over a four-month period designed to help you with your job, meeting online (through Zoom, for example) with your coach, and filling out surveys one time before coaching starts and three additional times. You will have a 50/50 chance of getting a coach or having a one-time meeting to give you information about challenges at work. Benefits? You may learn strategies to help make work less stressful.” For more information, click here. For questions, contact Principal Investigator E. Sally Rogers, Sc.D., at erogers@bu.edu or 617-353-3549.

Supported Education Survey Needs Your Help

Do you operate a program that provides dedicated supported education services for individuals with psychiatric disabilities/mental health conditions? If so, you are invited to complete the survey at the link below. The primary goal of the survey is to help create a National Supported Education Database (NSEdD) that will be "a searchable listing of diverse supported education programs and services for individuals experiencing psychiatric disabilities and/or mental health challenges...across the US and its territories." The NSEdD project is sponsored by the Substance Abuse and Mental Health Services Administration (SAMHSA) and co-administered by the five SAMHSA-funded national consumer and consumer-supporter technical assistance centers, in collaboration with research partners Drs. Nev Jones (University of Pittsburgh) and Mark Salzer (Temple University). For a link to the survey, which includes a definition of supported education, click here. For a flyer with information about the survey, click here.    

National Survey on Student Rights, Discrimination, and Accommodations in Higher Education Seeks Respondents  

"Have you experienced psychiatric disability-based discrimination or the denial of an accommodation in a postsecondary institution in the United States? Interested in informing national advocacy focus on psych disability rights in higher ed? Mental Health America (lead: Kelly Davis) and collaborators Dr. Nev Jones (University of Pittsburgh), Stefanie Kaufman-Mthimkhulu (Project LETS) and Brit Vanneman Esq. (Bazelon Center for Mental Health Law) have developed "a survey aimed at providing a more comprehensive understanding of student experiences of campus-based discrimination, mandated leaves of absence, and/or denial of academic, administrative and/or student-work accommodations in the U.S. Data will be used to inform national advocacy efforts and future projects, and in reports, presentations and publications." For eligibility and to access the survey, click here.

If You've Had, or Been Labeled with, "Negative Symptoms" in the Context of Psychosis...

"If you have experienced or been labeled with 'negative symptoms' in the context of psychosis, please consider contributing an anonymous account of your views and experiences," Dr. Nev Jones writes. "Currently, there is nowhere one can go to find lived experience perspectives/accounts on this topic—even though 'negative symptoms' regularly feature in research and clinical trials. Help us change this!" This survey is a companion to Psychosis Outside the Box; for that survey, click here. For more information and/or to share your story about "negative symptoms," click here.

"Are You Between the Ages of 21 and 60 and Drink Alcohol?"

"Researchers at the National Institutes of Health (NIH) are seeking adults--[both smokers and non-smokers]--to study whether a gene and smoking may affect drinking alcohol. Volunteers should be healthy and drug-free, and not seeking treatment for alcohol-related problems. Research participation includes three outpatient visits at the NIH Clinical Center in Bethesda, MD; alcohol consumption; brain scans (MRI), blood draws, and filling out questionnaires. There is no cost to participate and compensation may be provided." For more information, click here. (Courtesy of Fran Hazam)

TU Collaborative Seeks Participants for Its Parenting Through Leisure Project; See Also the TU Collaborative's Parenting Resources, Including Information on Custody Issues

The Temple University Collaborative on Community Inclusion is seeking parents with lived experience of a mental health condition to participate in a paid research study. The TU Collaborative writes: "Our program, Parenting Through Leisure, focuses on helping parents with a serious mental illness participate in leisure activities with their child. We are looking for individuals who are 18 and older; are an adult parent with a diagnosis of schizophrenia-spectrum disorder, bipolar disorder, or depression; have a child who is 7 to 15 years old and is interested in participating in family leisure with you; have legal visitation rights, joint custody or full custody of the child, with at least weekly contact; and have a desire to engage in more leisure activities with their child." For details about the study and the remuneration as well as other benefits to eligible participants, and a link to sign up, click here. Questions? Please contact TUCollab@temple.edu. And for the TU Collaborative's Parenting web page--which includes links to many resources for parents with lived experience, including information about custody laws and a model family reunification statute--click here.

Survey Seeks Respondents Who Are in Administrative/Leadership Positions in the Mental Health Field

If you are in an administrative/leadership position in the mental health arena, “the Group for the Advancement of Psychiatry (GAP) Committee on Psychiatric Administration and Leadership invites you to participate in the International Survey on Administrative Psychiatry. The survey has two purposes: 1. To identify the concerns and needs of mental health professionals/psychiatrists in administrative and leadership positions. 2. To determine training needs in administrative psychiatry. We ask you to complete this brief, [15- to 20-minute] questionnaire to help us in developing recommendations for action. We also want to let you know that, if you fill out this questionnaire, you permit the committee to use your anonymous data for scientific work.” Peer providers are included. For the survey, click here. (Courtesy of Oryx Cohen)

International Survey on Antipsychotic Medication Withdrawal Seeks Respondents

“Have you taken antipsychotic medication (such as Zyprexa, Seroquel, Abilify, Risperdal, Haldol, Geodon, Stelazine, and others), for any condition or diagnosis, with or without other medications? And did you ever stop taking antipsychotics, or try to stop taking them? Are you 18 years or older? If yes, you can take this survey about antipsychotic withdrawal and attempts to withdraw, including if you stopped taking them completely or if you tried to come off and still take them. The survey aims to improve mental health services by better understanding medication withdrawal. Lead researcher is Will Hall, a therapist and Ph.D. student who has himself taken antipsychotics. Service users/survivors/consumers from around the world also gave input. The study is sponsored by Maastricht University in the Netherlands; co-sponsors include the International Institute for Psychiatric Drug Withdrawal. Questions? Please contact will.hall@maastrichtuniversity.nl.”  For more information or to take the survey, click on www.antipsychoticwithdrawalsurvey.com

CONFERENCES

National Latino Behavioral Health Conference to Be Held in Las Vegas September 15-16, 2022

“The National Hispanic and Latino Addiction Technology Transfer Center (NHL-ATTC) and the National Hispanic and Latino Prevention Technology Transfer Center (NHL-PTTC) invite you to join us for the 2022 National Latino Behavioral Health Conference: Latino Behavioral Health Equity ¡Juntos Podemos! [Together We Can!] on September 15-16, 2022 at the Sahara Hotel in Las Vegas, Nevada. The purpose of the 2022 National Latino Behavioral Health Conference is to highlight the latest and most relevant data around Prevention, Treatment, Recovery, Policy, and Research focusing on the Hispanic and Latino communities.” For more information and to register, click here.

NARPA Announces Exciting Keynoters to Speak at Its 2022 Annual Rights Conference, October 26-29

The National Association for Rights Protection and Advocacy (NARPA) will hold its 2022 Annual Rights Conference at the DoubleTree by Hilton Hotel Newark Airport October 26-29. The four inspiring keynote speakers will be Rob Wipond, an activist, investigative journalist, and author of the upcoming “Your Consent Is Not Required: The Rise in Forced Detentions, Forced Treatment, And Abusive Guardianships; Ruth Lowenkron, Director, Disability Justice Program, New York Lawyers for the Public Interest, who has filed lawsuits against the New York Police Department about their responses to mental health crisis calls; Vesper Moore, an indigenous political activist, leader, author, trainer and educator in the psychiatric survivor and disability rights movements; Deborah Dorfman, Executive Director, Disability Rights Connecticut, who is active in individual, class action, and systemic reform litigation for disability rights around the nation; and Robert Dinerstein, Professor of Law, American University Washington College of Law, who will speak about recent developments in mental health law. Visit www.narpa.org for registration form and updates. 

National Association for Rural Mental Health Conference to Be Held November 2-4, 2022

The 47th Annual National Association for Rural Mental Health (NARMH) conference will be held at the Embassy Suites in Boulder, Colorado, November 2-4, 2022. The theme is “Beyond the Pandemic—Building on Rural Resiliency.” The early-bird registration fee is $500; for people who are retired or students, it’s $250. For more information as it becomes available, click here.

The International Conference on Trauma and Mental Health will take place November 3-4, 2022, in San Francisco. For more information, click here.

ISPS-US (Hybrid) 2022 Conference to Be Held November 4-6

The 2022 ISPS-US (International Society for Psychological and Social Approaches to Psychosis—U.S. Chapter) conference will be held November 4-6 in Sacramento, California, as well as online. The conference theme is Opportunity Through Experience: Psychosis, Extreme States, and Possibilities for Transformation. ISPS-US writes: “People with lived experience, family members, clinicians, and researchers are all invited to propose presentations that promote mutual collaboration and respect, and can allow us to offer each other both greater understanding and more light. We especially welcome proposals from members of marginalized groups whose experiences have included systemic as well as relational traumas and challengesFor more information, click here. (Courtesy of Jacek Haciak)

PETITIONS AND OPEN LETTERS

ISEPP Invites Mental Health Practitioners and Academicians to Sign Its Open Letter to the Major U.S. Mental Health Professional Organizations

The Coalition Against Medicalized Psychology & Psychiatry (CAMPP)—the action committee of the International Society for Ethical Psychology & Psychiatry (ISEPP)—asks mental health practitioners and academicians worldwide “to join us in signing an open letter to the American Psychiatric Association, American Psychological Association, American Counseling Association, National Association of Social Workers, and American Association for Marriage and Family Therapy to provide evidence for framing emotional distress and troublesome behaviors as illnesses or defects in a person’s biology—and, if they can't, to publicly reject the medical model of mental disorder. With this we hope to raise awareness of the harmful effects of that model. Send me your name, credentials, profession, position, city, state, and country to be appended to the letter. Pass this email on to others in your network and ask them to sign too. Our plan is to share the above organizations' responses (or lack of responses) with The Washington Post and The New York Times science and/or health editors.” For the letter, click here. (Courtesy of Elizabeth R. Stone) (For another ISEPP petition, see below.)

ISEPP Circulates Petition to Support Human Rights in Psychiatric Treatment

ISEPP seeks signatures on a petition to  "[m]ake a strong statement that any psychiatric or psychotherapeutic interventions without full and honest informed consent are unethical and inhumane." For the petition, click here. (Courtesy of Amy Smith)

Please Sign a Petition to Help Save a Public Mental Health Model in Italy

"Trieste is recognized by the World Health Organization as the model of global best practice in mental health care," according to a change.org petition highlighted in a recent NPR article. "It has inspired dozens of programs throughout the world to create an integrated network of community services focused upon the whole-person needs of its users; maintaining their dignity as citizens; and minimizing the coercive practices of old fashioned institutional settings...Trieste has shown us how community inclusion improves people’s lives. But this great achievement is now threatened by a new right-wing regional government that, on poorly informed and ideological grounds, is fast and impulsively dismantling Trieste's wonderful system of community care...As a Friend of Trieste and all that it stands for, please sign this petition and distribute it widely. For updates on this situation, please consult www.accoglienza.us." For the NPR article, "A public mental health model in Italy earns global praise. Now it faces its demise," click here. For the petition, click here. (Courtesy of Laura Van Tosh)

“Mental Health System: Open Letter to the Media” Seeks Signatures

“Everyone who believes that the problematic aspects of the mental health system are not adequately represented in the media is invited to sign this letter,” writes Yulia Mikhailova, who launched this initiative to educate the media. The letter begins: “We, a group of people with first-hand experience of the mental health system, write to express our concern about what we see as one-sided coverage of this system in the media and to draw the attention of civil rights organizations to the systemic discrimination that we witnessed and experienced. We, our loved ones, or inmates in the facilities where we worked, were exploited for monetary gain and victimized in various other ways. We saw how abuse, corruption, and exploitation were covered up, while victims and critics of the system were silenced and marginalized.” For a short version of the letter, which includes a link to a longer version, click here. Questions? Contact Yulia Mikhailova at yuliamikh@gmail.com.

OTHER OPPORTUNITIES AND RESOURCES

Rutgers Releases W-TLC Virtual Toolbox and Training/Learning Collaborative Series

“The Rutgers Center of Alcohol & Substance Use Studies has announced the release of the Wellness Training Learning Collaborative (W-TLC) virtual toolbox and Training/Learning Collaborative series…This toolkit provides peer support, individual, and organizational approaches to support the wellbeing of the critical health care workforce.” For descriptions of the 12 upcoming sessions—including two in July (July 7 and July 28), with the remaining sessions to be held August 2022 through January 2023—and to register for them, click here. For the “Journey to Wellness Guide,” click here. (Note: Information about the Journey to Wellness Guide was included in the April 2022 Key Update.)

“Would You Like to Share Your Experiences to Help Others Who Are Trying to Find Freedom, Healing & Hope Beyond Psychiatry?”

“I am currently working on a book about life beyond psychiatric services and would love to include the wisdom and expertise of as many survivors as possible!,” Jacqui Dillon, a person with lived experience in the UK, posted on Facebook. “I am looking for submissions between 500 and 2,000 words. I am aiming to cover a range of issues and experiences which many of us have had to engage with, which will be useful for people currently trying to navigate their way out of the system. Please feel free to focus on whichever areas interest you most. You are free to use your own name, or a pseudonym, whichever feels most comfortable to you. Please contact me here for further information, or send your submissions here: beyondthemadhouse@gmail.com. Submissions are required by mid-September.” For the Facebook post, click here. (Courtesy of Philip Benjamin via Jacek Haciak)

Lancet Offers Stakeholders New Opportunities

Check out these opportunities for stakeholder involvement! (1) The Lancet Psychiatry Commission's "Lived Experience Hub" invites stakeholders to contribute blogposts to convey criticisms, concerns and/or ideas relevant to the work of the Commission. For details, click here. To submit a blog, email lancetcommissionpsychosis@gmail.com. (2) The Lancet Psychiatry Commission's "lived experience research group" is a new listserv focused on lived experience advocacy and activism on participatory psychosis research and related policy and practice. In part, this will serve as a sounding board for Lancet Commission work and a place to engage in dialogue about what needs to change. To join, email  lancetcommissionpsychosis@gmail.com. (Courtesy of Dr. Nev Jones)

Peer Advocates Over 50 Years Old Are Invited to a Weekly Empowering Support Group

"People over 50 who are mental health lived-experience advocates, change makers, visionaries, and current status quo challengers" are invited to join "a weekly, open, upbeat, peer-support empowering environment for seasoned peers with lived experience who are active, and were active, as advocates for positive change," the WiseCrackers write. The goal of the recently launched group is "to support mental health advocates over 50 years of age with pure peer support practices based on natural curiosity, acceptance, humor, and positive networking." The free, 90-minute Zoom meetings are held on Mondays at 7 p.m. ET, 6 p.m. CT, 5 p.m. MT, and 4 p.m. PT. The meetings are currently co-facilitated by "East and West Coast Peers" and sponsored by the Community for Positive Aging. To register and to review the WiseCracker Principles of support, click here. Questions? Contact info@choiceheals.com or 503.208.0065.

The UIC Center’s Solutions Suite for Health & Recovery Offers Free Tools

"The UIC Center offers tools, curricula, and implementation manuals for free use in community-based programs, peer-run programs, or one's own life. You can introduce the entire complement of products to foster improved health, wellness, and mental health recovery. Or, you can choose the ones that will work best for your program or your life. The Suite was developed in collaboration with Collaborative Support Programs of New Jersey. The UIC Center is funded by NIDILRR (National Institute on Disability, Independent Living, and Rehabilitation Research). For the UIC Solutions Suite for Health & Recovery, click here. (Courtesy of Peggy Swarbrick via Jacek Haciak)

Poetry Coalition to Launch "Poetry & Disability Justice" Initiative

"This year, the 25+ organizations nationwide that comprise the Poetry Coalition will launch 'The future lives in our bodies: Poetry & Disability Justice,' the coalition’s sixth annual programming initiative...Poetry Coalition members aim to demonstrate how poetry can inspire questions in their communities about disability justice and spark increased engagement with this important theme. Member organizations are committed to offering programming that is accessible and that includes disabled, neurodivergent, and d/Deaf poets and those of diverse racial, ethnic, and gender identities, backgrounds, and communities. All organizations and others interested are invited to create programs on this theme in 2022 and share their efforts using the hashtags #DisabilityJustice and #PoetryCoalition. For some additional resources to assist with programming, particularly in creating accessible programming, click here.

U.S. Surgeon General Creates Community Toolkit for Addressing Health Misinformation

"The U.S. Surgeon General’s Community Toolkit for Addressing Health Misinformation, developed in collaboration with the HHS Office of Evaluation Sciences (OES), provides specific guidance and resources for health care providers, educators, librarians, faith leaders, and trusted community members to understand, identify, and stop the spread of health misinformation in their communities." For information about the toolkit (a 22-page overview of health misinformation, and resources to stop it), and links to a “Talk to Your Community About Health Misinformation” Infographic, a “Health Misinformation Checklist” Infographic, and the Surgeon General's press release, click here.

"Psychiatrist with Philosophical Interests" leads "Conversations in Critical Psychiatry," a Psychiatric Times Series

Awais Aftab, who describes himself as a "psychiatrist with philosophical interests" in his Twitter bio, leads "Conversations in Critical Psychiatry," which, he says, "explores critical and philosophical perspectives in psychiatry and engages with prominent commentators within and outside the profession who have made meaningful criticisms of the status quo." Among those interviewed are Allen Frances, M.D., author of Saving Normal; Sandra Steingard, M.D., and G. Scott Waterman, M.D., on "Integrating Academic Inquiry and Reformist Activism in Psychiatry"; Susannah Cahalan, author of Brain on Fire: My Month of Madness, on "50 Shades of Misdiagnosis"; Kathy Flaherty, J.D., executive director of the Connecticut Legal Rights Project, Inc., on "Reconsidering Care and Coercion in Psychiatry"; Nev Jones, Ph.D., on "Phenomenology, Power, Polarization, and the Discourse on Psychosis"; Dainius Puras, M.D., on "Global Psychiatry's Crisis of Values"; and many others. For the archived interviews, click here.

CNN Offers “A Guide to Helping and Getting Help During the Coronavirus Crisis”

CNN writes: “The coronavirus pandemic is overwhelming, and one of the most excruciating parts for many people is the feeling of utter helplessness in the face of widespread suffering and hardship. CNN’s Impact Your World has compiled a list of donation opportunities and tips to help those affected by the crisis. Click on a category or scroll down to browse a list of organizations, resources and ideas. Need help? Most categories also include resources for financial, emotional or social support.” For the free guide, click here.

U.S. DOL Releases Guidance on FMLA Leave and Mental Health

The U.S. Department of Labor’s newly issued Fact Sheet #280 about the Family and Medical Leave Act (FMLA) explains when eligible employees may take FMLA leave to address mental health conditions, and new Frequently Asked Questions (FAQs) offers additional information. (Although the FMLA covers public and private employers nationwide, only those private employers who have 50 or more employees for at least 20 workweeks in a year are required to provide their eligible employees with FMLA leave.) For details, click here.

Hearing Voices Network Is Now Hosting Online Groups

“There are now ONLINE opportunities to connect, share experiences, and find mutual support,” the Hearing Voices Network (HVN) writes. “These groups are accessible via web-based platforms and by phone…Online groups are specifically for those with personal lived experience with hearing voices, seeing visions, and/or negotiating alternative realities. They are voice-hearer facilitated. With further questions and for details on how to access the group[s], please email info@hearingvoicesusa.org.” To read this announcement online and for more information, click here.

Virtual Group Works to Advance Peer Research Capacity, Leadership, and Involvement

Nev Jones, PhD—a strong advocate for building research capacity, leadership, and involvement among peers, survivors, and service users—leads a virtual group dedicated to this effort. Dr. Jones—assistant professor, School of Social Work, University of Pittsburgh—was part of the team that developed “User/Survivor Leadership & Capacity Building in Research: White Paper on Promoting Engagement Practices in Peer Evaluation/Research (PEPPER),” published by the Lived Experience Research Network. For the white paper, click here. Anyone interested in joining the virtual group can email Nev at nev.inbox@gmail.com.

Mad In America Invites You to Submit Your Personal Story (Within Certain Guidelines)

Mad In America writes: “A ‘personal story’ is defined as your story of being in relationship to psychiatry and/or the mental health system, whatever that means to you. It might involve your opinions and analysis of what happened to you, as well. It can be about a specific event, or about your overall journey, provided it fits the length requirements (1,500 to 3,000 words) and has a narrative arc. The piece should be about your personal experiences, not psychiatry or the mental health system in general. Submissions should fall under the theme of rethinking psychiatry and the mental health system, and should be original works not previously published elsewhere. For examples of the types of stories we publish, view our personal stories archive here.” For more information and/or to submit a personal story, click here.

PsychAlive Offers a Variety of Webinars on Mental Health Topics, Many Free, Others $15

PsychAlive is a free, nonprofit resource created by the Glendon Association, whose mission is “to save lives and enhance mental health by addressing the social problems of suicide, violence, child abuse and troubled interpersonal relationships.” Psychalive.org offers a variety of upcoming and archived webinars, many of which are free, while others are available for $15. Among the myriad topics are “From Anxiety to Action: How to Stay Sane While Fighting Climate Change,” “How to Overcome Insecurity,” “Powerful Tools to Fight Depression,” and “Understanding and Overcoming Adverse Childhood Experiences.” To check out the webinars, click here.

National Safety Council Offers a Free Webinar Series Focusing on Mental Health in the Workplace

"The impact of the COVID-19 pandemic will affect employees well beyond the initial crisis," the National Safety Council writes. "Employers have a unique ability and responsibility to address the mental health and wellbeing of their workers, which is a true organization-wide effort. This free Mental Health Webinar Series led by the National Safety Council, and first presented in August 2020, speaks to a variety of positions within an organization and how each one can address stress and mental health." Four of the five webinars are titled: "Supporting Employee Mental Health" and respectively subtitled "Resources for Employees," "Actions for Leadership," "Actions for Supervisors," and "Actions for HR Professionals." To view the free, archived webinars, click here.

Seven Ways to Keep a Digital Copy of Your Vaccination Card on Your Smartphone

“You'll need proof of vaccination to go back to work or enter many restaurants, gyms and event venues, so keep your COVID-19 card handy.” This is the advice of CNET.com, a tech support website. Besides the obvious—taking a photo of the card to store on your phone—there are six other suggestions. For details, click here. (Courtesy of Yvonne Smith)

ISPS-US Offers an Array of Archived Webinars--Free but Donations Are Welcomed

The ISPS-US (The International Society for Psychological and Social Approaches to Psychosis-US Chapter) is offering a whole raft of archived webinars, which are free (although donations are welcomed). Among the webinars are "Cognitive Behavioral & Related Therapies for Psychosis: Diverse Approaches to Supporting Recovery," "How Can the Uncontainable Be Contained? Paradoxes of Madness & Philosophy," "Robert Whitaker: The Rising Non-Pharmaceutical Paradigm for 'Psychosis,'" "Life with Voices: A Guide for Harmony," "COPE Project: Non-Pharmaceutical Research on Influencing Voices and Visions," "What Hurts and What Helps In Treatment For 'Psychosis': Insider Perspectives," and many others. For more information and to access the webinars, click here.

“Where DNA and Medications Meet”

Not all drugs are effective for all people; therapeutic response rates for many drugs are only 50%-75%. “OneOme, co-founded by [the] Mayo Clinic, provides evidence-based pharmacogenomic solutions that help improve patient outcomes and reduce costs through more personalized medication decisions.” OneOme’s RightMed Test is “a doctor-ordered pharmacogenomic (PGx) test that analyzes your DNA and provides your doctors with genetic information to help them determine how you may respond to certain medications. The results may help your doctors reduce medication trial and error, minimize risk of side effects, save you time and money, and make more informed prescribing decisions. Because your DNA doesn’t change over time, your doctors can use your test results to make more personalized medication decisions for you over the course of your lifetime.” For more information, click here. (Courtesy of Robin Osborne)

Lived Experience Leadership Features 12 Years of Research Studies...

"Lived Experience Leadership features 12 years of research studies focused on this workforce in a range of settings, to foster a better of understanding and respect for Lived Experience as a distinct discipline and build clarity on what makes this work unique and valuable. Importantly, this body of research was led by Lived Experience researchers. Lived Experience Leadership provides clear and simple to read research summaries to allow community members and people employed within various industries the opportunity to easily understand and apply strategies within their own workplace. This website also includes easy to download definitionsaudio/visual resources, and key work by other Australian and International sources. The website will continue to grow to include larger collections of our research as well as other key work. For the Lived Experience Leadership website, click here. (Courtesy of Jacek Haciak)

Doors to Wellbeing Offers “State Selfies: A Picture of Peer Services Reported by Peers”

Doors to Wellbeing’s “Peer Album” is a directory of nearly 600 peer-run organizations throughout the U.S. They invite updates and offer instructions for providing them and add, “If your entry has not made this first draft, we encourage you to re-submit.” For the 158-page directory, click here.

Disclaimer: The Clearinghouse does not necessarily endorse the opinions and opportunities included in the Key Update.

About The Key Update

The National Mental Health Consumers’ Self-Help Clearinghouse is now affiliated with the Temple University Collaborative on Community Inclusion.

The Key Update is the free monthly e-newsletter of the National Mental Health Consumers’ Self-Help Clearinghouse. Volume 19, No. 2, August 2022. For content, reproduction or publication information, please contact Susan Rogers at selfhelpclearinghouse@gmail.com. Follow Susan on Twitter at @SusanRogersMH

 

 

Key Update, July 2022, Volume 19, Number 1

The National Mental Health Consumers’ Self-Help Clearinghouse is affiliated with the Temple University Collaborative on Community Inclusion.

TO CONTACT: THE CLEARINGHOUSE: SELFHELPCLEARINGHOUSE@GMAIL.COM  … SUSAN ROGERS: SUSAN.ROGERS.ADVOCACY@GMAIL.COM … JOSEPH ROGERS: JROGERS08034@GMAIL.COM 

The Key Update is compiled, written, and edited by Susan Rogers, Director, National Mental Health Consumers’ Self-Help Clearinghouse.

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NOTE: THE "FROM PREVIOUS EDITIONS OF THE KEY UPDATE BUT STILL FRESH!" DEPARTMENT, WHICH IS DIRECTLY BELOW THE MONTHLY CRIMINAL legal system DIGEST, INCLUDES ITEMS THAT HAD BEEN POSTED "ABOVE THE FOLD" IN EARLIER EDITIONS BUT ARE STILL RELEVANT. THESE INCLUDE ONGOING RESEARCH STUDIES THAT ARE STILL SEEKING PARTICIPANTS, AS WELL AS UPCOMING WEBINARS AND CONFERENCES, AND OTHER ITEMS OF CONTINUED INTEREST. DON'T MISS IT!

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July Is Mad Pride Month and Disability Pride Month

“The month of July has many connections to the movement for mental health consumers/psychiatric survivors,” David Oaks, founder of MindFreedom International, writes. They include the choice of Bastille Day by New York State mental health activists to hold an annual protest of the mental health system, and that “one of the first known psychiatric survivor groups”—the Alleged Lunatics’ Friend Society—was founded on July 7, 1845. At the same time, he adds, because the Americans with Disabilities Act was signed into law on July 26, 1990, July was chosen as Disability Pride Month. “ ‘Disability pride’ has been defined as accepting and honoring each person’s uniqueness and seeing it as a natural and beautiful part of human diversity.” For more about Disability Pride Month, click here. For David’s blog about Mad Pride Month and Disability Pride Month, click here.

“Help Us Map the Landscape of Lived Experience and Family Involvement in 988 Policy and Related Crisis Response System Planning!”

“As 988 implementation rolls out alongside additional efforts to strengthen crisis response systems throughout the U.S., it's important to gauge the extent to which direct stakeholders (i.e., individuals who use or have used mental health crisis services and their families) have been involved in related policy, implementation and evaluation at the local, regional, state or federal levels. To map out involvement nationally, Mental Health America (lead: Kelly Davis), Nev Jones (University of Pittsburgh), Keris Myrick (National Association of Peer Supporters), and Laura Van Tosh (convener of Washington Legislative and Policy Advocates) have developed a survey aimed at documenting the extent of stakeholder involvement, the forms this involvement has taken, and, where available, what concerns stakeholders have raised. Any individual with knowledge of lived experience and family involvement is eligible to participate; individuals completing the survey do not have to have lived experience themselves.” For more information and to access the survey, click here.

Free Webinar: “Implementing the SAMHSA/NASMHPD 988 Convening Playbooks”

On July 6, 2022, at 1 p.m. ET, the TA Coalition will present a free, 90-minute webinar on “Implementing the SAMHSA/NASMHPD 988 Convening Playbooks,” presented on behalf of the National Council for Mental Wellbeing. “These playbooks are designed to help programs and providers prepare for and implement 988-related services.” This webinar will “share strategies for implementation, case studies and other resources, and outline SAMHSA’s five-year plan for the continued implementation and enhancement of 988 and other services across the crisis continuum.” For details and to register, click here. (Courtesy of Judene Shelley)

MFI and I Love You, Lead On Will Co-Host Judi's Room on the Controversy Surrounding Assisted Suicide  

On July 6, 2022, at 6:00 p.m. ET, 3 p.m. PT, MindFreedom International and I Love You, Lead On will co-host a Judi’s Room discussion on “the danger of allowing people with depression, ineffective health care, disability, and undiagnosed medical problems the right to use suicide as health care,” said Susan Fitzmaurice of I Love You, Lead On. “Our freedoms are being eroded by recent actions of the U.S. Supreme Court; we are no longer thought capable of making our own decisions around reproduction,” Fitzmaurice said. “When will we be determined incompetent to choose to refuse assisted suicide when offered by doctors as a health care option? And might someone who is entangled in a guardianship have that decision made for them?” She continued: “Know what changes in law are being proposed. Know how to protect yourself. We are in a fight for our very lives.” The speakers will be disability rights activists Anita Cameron, director of minority outreach of Not Dead Yet, and John B. Kelly, director of Second Thoughts MA: Disability Rights Advocates Against Assisted Suicide. To register for free, click here.

Do You Work in Substance Use Recovery and Have Outstanding Student Loans?

To find out if you’re eligible for the Health Resources & Services Administration (HRSA) Substance Use Disorder Treatment and Recovery Loan Repayment Program (STAR LRP), and for more information, click here. The deadline to apply is July 7, 2022, at 7:30 p.m. ET. The program offers up to $250,000 in loan repayment. “If you receive an award, you must work full-time for six years in a STAR LRP-approved facility.” 

Rutgers Releases W-TLC Virtual Toolbox and Training/Learning Collaborative Series

“The Rutgers Center of Alcohol & Substance Use Studies has announced the release of the Wellness Training Learning Collaborative (W-TLC) virtual toolbox and Training/Learning Collaborative series…This toolkit provides peer support, individual, and organizational approaches to support the wellbeing of the critical health care workforce.” For descriptions of the 12 upcoming sessions—including two in July (July 7 and July 28), with the remaining sessions to be held August 2022 through January 2023—and to register for them, click here and scroll down. For the “Journey to Wellness Guide,” click here. (Note: Information about the Journey to Wellness Guide was included in the April 2022 Key Update.)

NYAPRS 2022 Annual Conference Call for Presentations Deadline is July 8

NYAPRS will host its 2022 Annual Conference–”A New Alliance: It Takes a Community”--at the Villa Roma Resort in Callicoon, New York, from September 21 to 23. (Covid protections will be in place.) The deadline for submission of proposals is July 8. For the application, click here.

Psychiatric Advance Directives Facilitated by Peer Supporters Help Prevent Involuntary Commitment, Researchers Say

A recent article in JAMA Psychiatry—“Effect of Psychiatric Advance Directives [PADs] Facilitated by Peer Workers on Compulsory Admission Among People With Mental Illness: A Randomized Clinical Trial”—found that “Peer worker-facilitated PADs are effective in decreasing compulsory hospital admissions and increasing some mental health outcomes (self-perceived symptoms, empowerment, and recovery). Involving peer workers in the completion of PADs supports the current shift of mental health care from substitute decision-making to supported decision-making.” To download a PDF of the article, click here. (Courtesy of Dan Fisher) In addition, the Temple University Collaborative on Community Inclusion offers two documents to help people who want to create a PAD: “Advance Self-Advocacy Plan: A Guidebook for Creating a Mental Health Advance Plan or Psychiatric Advance Directive” (click here), and “Advance Self-Advocacy Plan: An easy-to-use, customizable plan for people who want to create a Psychiatric Advance Directive or Mental Health Crisis Plan” (click here.) And the National Resource Center on Psychiatric Advance Directives (click here) is also helpful!

“Would You Like to Share Your Experiences to Help Others Who Are Trying to Find Freedom, Healing & Hope Beyond Psychiatry?”

“I am currently working on a book about life beyond psychiatric services and would love to include the wisdom and expertise of as many survivors as possible!,” Jacqui Dillon, a person with lived experience in the UK, posted on Facebook. “I am looking for submissions between 500 and 2,000 words. I am aiming to cover a range of issues and experiences which many of us have had to engage with, which will be useful for people currently trying to navigate their way out of the system. Please feel free to focus on whichever areas interest you most. You are free to use your own name, or a pseudonym, whichever feels most comfortable to you. Please contact me here for further information, or send your submissions here: beyondthemadhouse@gmail.com. Submissions are required by mid-September.” For the Facebook post, click here. (Courtesy of Philip Benjamin via Jacek Haciak)

Dealing with “Core Emotions,” Such as Disgust, May Be Key to Processing Trauma

A recent article in Slate reports on a trauma therapy, developed in 2000, called Accelerated Experiential Dynamic Psychotherapy (AEDP), which “combines affective neuroscience, trauma theory, attachment theory, and rapid transformation theories. This type of emotion-focused therapy gets to the root problem, using the catalytic power of ‘core emotions’ like disgust, sadness, anger, and joy to turbocharge brain change, also known as neuroplasticity. This stands in stark contrast with medicating symptoms of mood disorders or using behavioral tools to change thinking and behaviors,” according to Slate. For the article, click here.

The AAPP Annual Meeting Includes a Focus on “the New Activism in Psychiatry”

A highlight of the 2022 meeting of the Association for the Advancement of Philosophy and Psychiatry (AAPP), in New Orleans May 21-22, was “the new activism in psychiatry and the scientific turn evident in fields such as neurodiversity and mad studies,” writes Awais Aftab, MD, in Psychiatric Times. “Utilizing Harding’s notion of “strong objectivity,” the hosts of a popular philosophy of psychiatry webinar series (currently on hiatus) “argued that psychiatric activism can be understood as a legitimate form of scientific criticism, and that [the] neurodiversity movement and Mad Pride are beginning to pursue scientific goals that may ultimately transform psychiatric science or establish scientific alternatives to psychiatry.” To learn more, click here.

June MHTTC Newsletter Offers Resources and Opportunities

The June edition of the Northeast and Caribbean Mental Health Technology Transfer Center (MHTTC) Network newsletter offers a variety of resources and opportunities. For LGBTQ+ Pride Month, in June, there are links to several websites that provide information and support to the LGBTQ+ community, which are useful year-round. The newsletter also contains links to “a self-paced, online, three-part HealtheKnowledge (sic) course,” an episode of its “Toward Wellness and Recovery” podcast, a new toolkit from SAMHSA’s National Center of Excellence for Tobacco-Free Recovery, and more. For the newsletter, click here

“Mass Violence Takes Toll on Americans’ Psyches,” Washington Post Reports

“Repeated shootings in schools, churches, and stores erode [Americans’] sense of safety,” according to a recent Washington Post article. “When the American Psychological Association surveyed more than 2,000 people about their stress levels just days after back-to-back mass shootings in El Paso and Dayton, Ohio, in 2019, the findings laid out the toll of seemingly ceaseless, random violence. A third of the respondents said they would no longer go to certain public places for fear of becoming a casualty of a mass shooting. Almost as many said they could not go anywhere without worrying about being shot. Twenty-four percent said they had made changes in their lives due to their fear of a mass shooting. Sixty-two percent of parents said they lived in fear of their children becoming victims of a mass shooting, and 71 percent said the possibility of mass violence was adding stress to their lives. The poll used an online survey with non-random methods so the results may not be nationally representative.” For the article, click here.

Free Webinar: “Workplace Burnout: How We Get There; How We Recover”

On July 14, 2022, at 12 p.m. ET, NYAPRS will host a free webinar on “Workplace Burnout: How We Get There; How We Recover.” NYAPRS writes: “Doing something from time to time to support our own mental health is good, but incorporating self-care into our routines is a more effective strategy. In the NYAPRS July webinar, ‘Workplace Burnout: How We Get There; How We Recover,’ Glenn Courounis will explore what leads to burnout and, more importantly, what we can do to recover from it! CEs are approved for this offering for LMSW, LCSW, CPRP and LMHCs.” To register, click here.

U.S. DOL Releases Guidance on FMLA Leave and Mental Health

The U.S. Department of Labor’s newly issued Fact Sheet #280 about the Family and Medical Leave Act (FMLA) explains when eligible employees may take FMLA leave to address mental health conditions, and new Frequently Asked Questions (FAQs) offer additional information. (Although the FMLA covers public and private employers nationwide, only those private employers who have 50 or more employees for at least 20 workweeks in a year are required to provide their eligible employees with FMLA leave.) For details, click here.

Free Webinar: “Deflection, Diversion and Mental Health Recovery: A Systems Approach and DEI Practice Perspective”

On July 15, 2022, at 12:30 p.m. ET, SAMHSA will sponsor a 90-minute webinar on “Deflection, Diversion and Mental Health Recovery: A Systems Approach and DEI Practice Perspective.” “U.S. prisons and jails incarcerate a disproportionate amount of people with current or past mental health challenges, especially those with serious mental illness, but often fail to properly support the individuals’ recovery or community reintegration after release. In Illinois, Treatment Alternatives for Safe Communities (TASC) is at the forefront of justice system interventions and recovery supports, specializing where behavioral health and criminal justice intersect.” Following the webinar, participants may register for Part Two of this table talk discussion with Jac Charlier, executive director, TASC Center for Health and Justice, and Joel K. Johnson, president and CEO, TASC, to be held July 20, 2022, at 1:00 p.m. ET. “Part Two is a 60-minute intimate dialogue with the presenters and a smaller number of registered webinar participants who will be able to ask more detailed questions and engage with the presenters more comprehensively.” For more information and to register, click here. (Courtesy of Judene Shelley)

You’re Invited to a White House and HHS Call on Reports Addressing the Long-Term Effects of COVID-19

On July 15, 2022, at 4 p.m. ET, the White House Office of Public Engagement invites you to a briefing on the status of two reports addressing the long-term effects of COVID-19. Included will be “nongovernmental experts, organizations, and interested parties, including individuals affected directly by the long-term effects of COVID-19. Featured speakers include Admiral Rachel L. Levine, MD, Assistant Secretary for Health and Rear Admiral Michael F. Iademarco, MD, MPH, Deputy Assistant Secretary for Science and Medicine (OASH), and other members of the Long COVID Reports team. Questions submitted in advance will be given priority; live questions will be accepted if time allows. This call is closed press, open registration, and free to share widely with your networks! ASL and CART will be provided.” To register, click here. (Courtesy of Braunwynn Franklin)

Free Webinar: “Finding Our Voice,” Presented by the National Empowerment Center on July 19

On July 19, at 2 p.m. ET, the National Empowerment Center (NEC) will present a free, 90-minute webinar on “Finding Our Voice.” NEC writes: “Would you like to participate in advocacy but don't know where to begin? Experiences of trauma and treatment often stifle our voice. Join this webinar to learn how we can transform our anger to our passionate voice!” The presenters are Joana Arcangel, Dan Fisher, Shira Collings, and Richard Krzyzanowski. To register, click here.

PsychU Will Host Two Free Webinars in July: “The Effects of Racism on the Mental Healthcare Community” and “Digital Health Tools: Combating Stigma and Healthcare Disparities”

On July 21, 2022, at 12 p.m. ET, PsychU will host a one-hour webinar on “The Effects of Racism on the Mental Healthcare Community: How Marginalized Patients & Providers Are Impacted.” And on July 28, 2022, at 12 p.m. ET, PsychU will present a one-hour webinar on “Digital Health Tools: Combating Stigma & Healthcare Disparities.” For more information and to register for one or both of these webinars, click here.

Free Webinar: “Peer Support Is In Demand” on July 26, Presented by Doors to Wellbeing

The next webinar in the monthly series sponsored by Doors to Wellbeing will take place on July 26. The topic is “Peer Support Is In Demand,” and the presenter will be Amey Dettmer, the program manager of Doors to Wellbeing. For more information and to register, click here.

National Association for Rural Mental Health Conference to Be Held November 2-4, 2022

The 47th Annual National Association for Rural Mental Health (NARMH) conference will be held at the Embassy Suites in Boulder, Colorado, November 2-4, 2022. The theme is “Beyond the Pandemic—Building on Rural Resiliency.” The early-bird registration fee is $500; for people who are retired or students, it’s $250. For more information as it becomes available, click here.

Do You Want to Be More Humble? More Forgiving? More Patient? More Positive? Try This.

“In the Positive Psychology Research Group, we have created a number workbooks that people can work through on their own to build their virtues or character strengths,” writes Everett Worthington, Commonwealth Professor Emeritus at Virginia Commonwealth University. Seven workbooks—all evidence-based, Worthington explains—are currently available on his website. “Thus far, we have investigated the following: forgiveness (secular), forgiveness of Christians who have offended other people in their church, humility, patience, self-forgiveness, self-control, and positivity.” To download the free workbooks, click here and scroll down. (Courtesy of Peggy Swarbrick via Jacek Haciak)

“Why Do People Hear Voices?”

A three-page infographic from the Western Mass Recovery Learning Community answers “Why do people hear voices?” with “I don’t know why any one person hears voices, but here are just a handful of reasons why some people believe that they do...” and then offers details on some of the possible reasons. For this 2016 infographic, click here.

The July 2022 Digest of Articles Offering Healthy Lifestyle Advice

For “And How Do These Books Make You Feel? These seven books analyze what really happens between therapist and patient,” click here. For “How to Stop Dating People Who Are Wrong for You: Focus on the long term. Don’t try to replace your ex. Plus three more cures for unhealthy romantic habits,” click here.

The July 2022 Digest of Articles about the Criminal Legal System, in Which Many Individuals with Mental Health Conditions Are Incarcerated (and the Key Update continues after this Digest)

For “Sheriffs Want to Turn Transport of Psych Patients Over to Mental Health Workers: Patients under involuntary commitment orders describe being traumatized by law enforcement involvement in mental health care, which often comes with handcuffs and added stigma,” click here. For “When the Death Penalty and Serious Mental Illness Collide,” click here. For “Cops and Counselors: Mental health professionals call the police, work with the police, and act like the police. But even in our ranks, an abolitionist future is possible,” click here. For “The Shadowy World of Jailhouse Informants: Explained,” click here. For “Does the death penalty target people who are mentally ill? We checked,” click here. For “LGBT Individuals Overrepresented in Prisons: Study,” click here. For “Courting Judicial Excellence in Juvenile Justice: A 50-State Study,” click here. For “Inventing Solitary: In 1790, Philadelphia opened the first American penitentiary, with the nation’s first solitary cells. Black people were disproportionately punished from the start,” click here. For “When Innocence Isn’t Enough: Christopher Dunn has spent more than 30 years in prison for a murder he and others say he didn’t commit. The state of Missouri says he must stay there—because he wasn’t sentenced to death,” click here. For “A new attorney helped clear an innocent man of a murder sentence after 32 years in prison: Natlie Figgers logged 2,000 hours working for free to exonerate Thomas Raynard James after misidentification and suspect police work sent him to prison in Florida,” click here. For “Denver Deployed Mental Health Workers Instead of Police—and Some Crimes Went Down,” click here. For “Solitary Confinement: A Curated Collection of Links,” click here. For “A Texas Court Brazenly Defied SCOTUS. The Conservative Justices Just Rewarded It. Republican judges in Texas figured out how to nullify the Sixth Amendment—and get away with it,” click here. For “Denial of death-row challenge stirs pushback on overlooked orders. Justice Sonia Sotomayor signed a lengthy dissent that says the Texas Court of Criminal Appeals thumbed its nose at findings from a 2020 high court majority,” click here. For “Incarcerated LGBTQ+ Adults and Youth: This brief examines the criminalization and over-incarceration of LGBTQ+ people in the United States, highlighting the drivers of overrepresentation and presenting recommendations for reform,” click here. For “Turning Prisons into Haunted Houses: Giving strange new life to old penitentiaries,” click here. For “Commentary: Provide Tools to Prove Innocence: We spent decades in prison for crimes we didn’t commit and it’s time the Legislature did something to fix it,” click here. For “In some states, your 6-year-old child can be arrested. Advocates want that changed,” click here. For “SCOTUS ruling in Concepcion, while addressing crack cases, should also resolve circuit split on compassionate release factors,” click here. For “The Supreme Court Let The Death Penalty Flourish. Now Americans Are Ending It Themselves. As Roe v. Wade ends, a look back at how the court reversed itself on capital punishment— spurring an anti-death penalty movement,” click here.

FROM PREVIOUS EDITIONS OF THE KEY UPDATE BUT STILL FRESH!

HHS Announces Its First-Ever Behavioral Health Recovery Innovation Challenge

The Department of Health and Human Services (HHS), through the Substance Abuse and Mental Health Services Administration (SAMHSA) has announced its first-ever behavioral health Recovery Innovation Challenge. Its goal is to identify innovations that advance recovery and that were developed by peer-run or community-based organizations and their partners, such as local or state governments, health systems, hospitals, or health plans. The application deadline is July 15, 2022; finalists will be announced on August 6. The purse prize (for up to 10 awards) is up to $400,000. For more information, click here. (Courtesy of NYAPRS E-News)

NARPA Announces Exciting Keynoters to Speak at Its 2022 Annual Rights Conference, October 26-29

The National Association for Rights Protection and Advocacy (NARPA) will hold its 2022 Annual Rights Conference at the DoubleTree by Hilton Hotel Newark Airport October 26-29. The four inspiring keynote speakers will be Rob Wipond, an activist, investigative journalist, and author of the upcoming “Your Consent Is Not Required: The Rise in Forced Detentions, Forced Treatment, And Abusive Guardianships; Ruth Lowenkron, Director, Disability Justice Program, New York Lawyers for the Public Interest, who has filed lawsuits against the New York Police Department about their responses to mental health crisis calls; Vesper Moore, an indigenous political activist, leader, author, trainer and educator in the psychiatric survivor and disability rights movements; Deborah Dorfman, Executive Director, Disability Rights Connecticut, who is active in individual, class action, and systemic reform litigation for disability rights around the nation; and Robert Dinerstein, Professor of Law, American University Washington College of Law, who will speak about recent developments in mental health law. Visit www.narpa.org for registration form and updates. 

Save the Date: National Latino Behavioral Health Conference

On September 15-16, the National Latino Behavioral Health Association (NLBHA), with support from the Substance Abuse and Mental Health Services Administration, will sponsor the 2022 National Latino Behavioral Health Conference in Las Vegas, Nevada. The theme will be "Latino Behavioral Health Equity: Juntos Podemos! (Together we can!) For more information, write to nlhconference@nlbha.org.

National Safety Council Offers a Free Webinar Series Focusing on Mental Health in the Workplace

"The impact of the COVID-19 pandemic will affect employees well beyond the initial crisis," the National Safety Council writes. "Employers have a unique ability and responsibility to address the mental health and wellbeing of their workers, which is a true organization-wide effort. This free Mental Health Webinar Series led by the National Safety Council, and first presented in August 2020, speaks to a variety of positions within an organization and how each one can address stress and mental health." Four of the five webinars are titled: "Supporting Employee Mental Health" and respectively subtitled "Resources for Employees," "Actions for Leadership," "Actions for Supervisors," and "Actions for HR Professionals." To view the free, archived webinars, click here.

OPPORTUNITIES TO PARTICIPATE IN RESEARCH

Survey Seeks Respondents Who Have Taken Mental Health Courses Involving Their Own Diagnoses

Have you taken a mental health course that covers a diagnosis you have? If so, you are invited to participate in a brief, anonymous, online survey--designed by a University of Pittsburgh MSW student--about what it's like for students with lived experience to study their own diagnoses in a classroom. The survey covers students' experiences of studying such subjects as "abnormal psychology," "psychopathology," and diagnosis and assessment when their own diagnoses are covered. "The goal of the project is to better understand what it feels like to take courses in which someone’s diagnosis is being taught/defined/discussed. There is currently no literature or reporting on the experiences of students in the above circumstances, or the associated impact." Interested? Please click here. Questions? Please email the project lead, Charlie Clement, at cjc204@pitt.edu

Peer Support in Higher Education Survey Seeks Respondents

“Peer support programs are growing on college campuses across the U.S. Mental Health America, Doors to Wellbeing, and the Temple University Collaborative on Community Inclusion want to better understand the availability of peer support in higher education as well as the experiences and needs of students accessing peer support programs…We hope to use this research to support the expansion of peer support in higher education, including developing a national database of peer support programs in higher education and documenting pressing issues in campus programs…You may also indicate if you are interested in having your school’s peer support program listed in a national database of peer support programs in higher education.” For more information and to complete the survey, click here

BU Seeks Peer Support Specialists for a Research Study

The Center for Psychiatric Rehabilitation at Boston University is developing and testing the effectiveness of a coaching service called Coaching and Advancement for Peer Providers (CAPP) “to increase organizational commitment and job satisfaction and decrease turnover among mental health peer providers.” BU CPR writes: “We need Peer Support Specialists (PSS) to participate in our study. Who can participate? People who are in a paid job as a Peer Support Specialist providing support to other people with mental health challenges, who are employed at least 10 hours per week, who have worked for the past six months in a mental health program, and who are experiencing stress because of challenges in the workplace. The study involves 16 one-hour sessions of coaching over a four-month period designed to help you with your job, meeting online (through Zoom, for example) with your coach, and filling out surveys one time before coaching starts and three additional times. You will have a 50/50 chance of getting a coach or having a one-time meeting to give you information about challenges at work. Benefits? You may learn strategies to help make work less stressful.” For more information, click here. For questions, contact Principal Investigator E. Sally Rogers, Sc.D., at erogers@bu.edu or 617-353-3549.

Supported Education Survey Needs Your Help

Do you operate a program that provides dedicated supported education services for individuals with psychiatric disabilities/mental health conditions? If so, you are invited to complete the survey at the link below. The primary goal of the survey is to help create a National Supported Education Database (NSEdD) that will be "a searchable listing of diverse supported education programs and services for individuals experiencing psychiatric disabilities and/or mental health challenges...across the US and its territories." The NSEdD project is sponsored by the Substance Abuse and Mental Health Services Administration (SAMHSA) and co-administered by the five SAMHSA-funded national consumer and consumer-supporter technical assistance centers, in collaboration with research partners Drs. Nev Jones (University of Pittsburgh) and Mark Salzer (Temple University). For a link to the survey, which includes a definition of supported education, click here. For a flyer with information about the survey, click here.    

National Survey on Student Rights, Discrimination, and Accommodations in Higher Education Seeks Respondents  

"Have you experienced psychiatric disability-based discrimination or the denial of an accommodation in a postsecondary institution in the United States? Interested in informing national advocacy focus on psych disability rights in higher ed? Mental Health America (lead: Kelly Davis) and collaborators Dr. Nev Jones (University of Pittsburgh), Stefanie Kaufman-Mthimkhulu (Project LETS) and Brit Vanneman Esq. (Bazelon Center for Mental Health Law) have developed "a survey aimed at providing a more comprehensive understanding of student experiences of campus-based discrimination, mandated leaves of absence, and/or denial of academic, administrative and/or student-work accommodations in the U.S. Data will be used to inform national advocacy efforts and future projects, and in reports, presentations and publications." For eligibility and to access the survey, click here.

If You've Had, or Been Labeled with, "Negative Symptoms" in the Context of Psychosis...

"If you have experienced or been labeled with 'negative symptoms' in the context of psychosis, please consider contributing an anonymous account of your views and experiences," Dr. Nev Jones writes. "Currently, there is nowhere one can go to find lived experience perspectives/accounts on this topic—even though 'negative symptoms' regularly feature in research and clinical trials. Help us change this!" This survey is a companion to Psychosis Outside the Box; for that survey, click here. For more information and/or to share your story about "negative symptoms," click here.

"Are You Between the Ages of 21 and 60 and Drink Alcohol?"

"Researchers at the National Institutes of Health (NIH) are seeking adults--[both smokers and non-smokers]--to study whether a gene and smoking may affect drinking alcohol. Volunteers should be healthy and drug-free, and not seeking treatment for alcohol-related problems. Research participation includes three outpatient visits at the NIH Clinical Center in Bethesda, MD; alcohol consumption; brain scans (MRI), blood draws, and filling out questionnaires. There is no cost to participate and compensation may be provided." For more information, click here. (Courtesy of Fran Hazam)

TU Collaborative Seeks Participants for Its Parenting Through Leisure Project; See Also the TU Collaborative's Parenting Resources, Including Information on Custody Issues

The Temple University Collaborative on Community Inclusion is seeking parents with lived experience of a mental health condition to participate in a paid research study. The TU Collaborative writes: "Our program, Parenting Through Leisure, focuses on helping parents with a serious mental illness participate in leisure activities with their child. We are looking for individuals who are 18 and older; are an adult parent with a diagnosis of schizophrenia-spectrum disorder, bipolar disorder, or depression; have a child who is 7 to 15 years old and is interested in participating in family leisure with you; have legal visitation rights, joint custody or full custody of the child, with at least weekly contact; and have a desire to engage in more leisure activities with their child." For details about the study and the remuneration as well as other benefits to eligible participants, and a link to sign up, click here. Questions? Please contact TUCollab@temple.edu. And for the TU Collaborative's Parenting web page--which includes links to many resources for parents with lived experience, including information about custody laws and a model family reunification statute--click here.

Survey Seeks Respondents Who Are in Administrative/Leadership Positions in the Mental Health Field

If you are in an administrative/leadership position in the mental health arena, “the Group for the Advancement of Psychiatry (GAP) Committee on Psychiatric Administration and Leadership invites you to participate in the International Survey on Administrative Psychiatry. The survey has two purposes: 1. To identify the concerns and needs of mental health professionals/psychiatrists in administrative and leadership positions. 2. To determine training needs in administrative psychiatry. We ask you to complete this brief, [15- to 20-minute] questionnaire to help us in developing recommendations for action. We also want to let you know that, if you fill out this questionnaire, you permit the committee to use your anonymous data for scientific work.” Peer providers are included. For the survey, click here. (Courtesy of Oryx Cohen)

“Experiences with Hospitalization” Survey Seeks Participants

“The purpose of this survey is to help us understand people's lived experience with voluntary and involuntary treatment because of suicidal thoughts. It was created by people with lived experience…We are planning to use this information to facilitate discussions with suicidologists and the suicide prevention community about the impact of the use of these interventions, particularly within marginalized populations. We feel the voice of people with lived experience with these interventions has not had adequate opportunity to be heard, and hope that by completing this survey anonymously, people who have been most impacted can find a safe way to share their experiences. Please note that this is not a research project.” For more information and/or to participate, click here. (Courtesy of Leah Harris)

International Survey on Antipsychotic Medication Withdrawal Seeks Respondents

“Have you taken antipsychotic medication (such as Zyprexa, Seroquel, Abilify, Risperdal, Haldol, Geodon, Stelazine, and others), for any condition or diagnosis, with or without other medications? And did you ever stop taking antipsychotics, or try to stop taking them? Are you 18 years or older? If yes, you can take this survey about antipsychotic withdrawal and attempts to withdraw, including if you stopped taking them completely or if you tried to come off and still take them. The survey aims to improve mental health services by better understanding medication withdrawal. Lead researcher is Will Hall, a therapist and Ph.D. student who has himself taken antipsychotics. Service users/survivors/consumers from around the world also gave input. The study is sponsored by Maastricht University in the Netherlands; co-sponsors include the International Institute for Psychiatric Drug Withdrawal. Questions? Please contact will.hall@maastrichtuniversity.nl.”  For more information or to take the survey, click on www.antipsychoticwithdrawalsurvey.com 

CONFERENCES

The International Conference on Trauma and Mental Health will take place November 3-4, 2022, in San Francisco. For more information, click here.

ISPS-US (Hybrid) 2022 Conference to Be Held November 4-6

The 2022 ISPS-US (International Society for Psychological and Social Approaches to Psychosis—U.S. Chapter) conference will be held November 4-6 in Sacramento, California, as well as online. The conference theme is Opportunity Through Experience: Psychosis, Extreme States, and Possibilities for Transformation. ISPS-US writes: “People with lived experience, family members, clinicians, and researchers are all invited to propose presentations that promote mutual collaboration and respect, and can allow us to offer each other both greater understanding and more light. We especially welcome proposals from members of marginalized groups whose experiences have included systemic as well as relational traumas and challengesFor more information, click here. (Courtesy of Jacek Haciak)

PETITIONS AND OPEN LETTERS

ISEPP Invites Mental Health Practitioners and Academicians to Sign Its Open Letter to the Major U.S. Mental Health Professional Organizations

The Coalition Against Medicalized Psychology & Psychiatry (CAMPP)—the action committee of the International Society for Ethical Psychology & Psychiatry (ISEPP)—asks mental health practitioners and academicians worldwide “to join us in signing an open letter to the American Psychiatric Association, American Psychological Association, American Counseling Association, National Association of Social Workers, and American Association for Marriage and Family Therapy to provide evidence for framing emotional distress and troublesome behaviors as illnesses or defects in a person’s biology—and, if they can't, to publicly reject the medical model of mental disorder. With this we hope to raise awareness of the harmful effects of that model. Send me your name, credentials, profession, position, city, state, and country to be appended to the letter. Pass this email on to others in your network and ask them to sign too. Our plan is to share the above organizations' responses (or lack of responses) with The Washington Post and The New York Times science and/or health editors.” For the letter, click here. (Courtesy of Elizabeth R. Stone) (For another ISEPP petition, see below.)

ISEPP Circulates Petition to Support Human Rights in Psychiatric Treatment

ISEPP seeks signatures on a petition to  "[m]ake a strong statement that any psychiatric or psychotherapeutic interventions without full and honest informed consent are unethical and inhumane." For the petition, click here. (Courtesy of Amy Smith)

Please Sign a Petition to Help Save a Public Mental Health Model in Italy

"Trieste is recognized by the World Health Organization as the model of global best practice in mental health care," according to a change.org petition highlighted in a recent NPR article. "It has inspired dozens of programs throughout the world to create an integrated network of community services focused upon the whole-person needs of its users; maintaining their dignity as citizens; and minimizing the coercive practices of old fashioned institutional settings...Trieste has shown us how community inclusion improves people’s lives. But this great achievement is now threatened by a new right-wing regional government that, on poorly informed and ideological grounds, is fast and impulsively dismantling Trieste's wonderful system of community care...As a Friend of Trieste and all that it stands for, please sign this petition and distribute it widely. For updates on this situation, please consult www.accoglienza.us." For the NPR article, "A public mental health model in Italy earns global praise. Now it faces its demise," click here. For the petition, click here. (Courtesy of Laura Van Tosh)

“Mental Health System: Open Letter to the Media” Seeks Signatures

“Everyone who believes that the problematic aspects of the mental health system are not adequately represented in the media is invited to sign this letter,” writes Yulia Mikhailova, who launched this initiative to educate the media. The letter begins: “We, a group of people with first-hand experience of the mental health system, write to express our concern about what we see as one-sided coverage of this system in the media and to draw the attention of civil rights organizations to the systemic discrimination that we witnessed and experienced. We, our loved ones, or inmates in the facilities where we worked, were exploited for monetary gain and victimized in various other ways. We saw how abuse, corruption, and exploitation were covered up, while victims and critics of the system were silenced and marginalized.” For a short version of the letter, which includes a link to a longer version, click here. Questions? Contact Yulia Mikhailova at yuliamikh@gmail.com.

OTHER OPPORTUNITIES AND RESOURCES

Lancet Offers Stakeholders New Opportunities

Check out these opportunities for stakeholder involvement! (1) The Lancet Psychiatry Commission's "Lived Experience Hub" invites stakeholders to contribute blogposts to convey criticisms, concerns and/or ideas relevant to the work of the Commission. For details, click here. To submit a blog, email lancetcommissionpsychosis@gmail.com. (2) The Lancet Psychiatry Commission's "lived experience research group" is a new listserv focused on lived experience advocacy and activism on participatory psychosis research and related policy and practice. In part, this will serve as a sounding board for Lancet Commission work and a place to engage in dialogue about what needs to change. To join, email  lancetcommissionpsychosis@gmail.com. (Courtesy of Dr. Nev Jones)

Peer Advocates Over 50 Years Old Are Invited to a Weekly Empowering Support Group

"People over 50 who are mental health lived-experience advocates, change makers, visionaries, and current status quo challengers" are invited to join "a weekly, open, upbeat, peer-support empowering environment for seasoned peers with lived experience who are active, and were active, as advocates for positive change," the WiseCrackers write. The goal of the recently launched group is "to support mental health advocates over 50 years of age with pure peer support practices based on natural curiosity, acceptance, humor, and positive networking." The free, 90-minute Zoom meetings are held on Mondays at 7 p.m. ET, 6 p.m. CT, 5 p.m. MT, and 4 p.m. PT. The meetings are currently co-facilitated by "East and West Coast Peers" and sponsored by the Community for Positive Aging. To register and to review the WiseCracker Principles of support, click here. Questions? Contact info@choiceheals.com or 503.208.0065.

The UIC Center’s Solutions Suite for Health & Recovery Offers Free Tools

"The UIC Center offers tools, curricula, and implementation manuals for free use in community-based programs, peer-run programs, or one's own life. You can introduce the entire complement of products to foster improved health, wellness, and mental health recovery. Or, you can choose the ones that will work best for your program or your life. The Suite was developed in collaboration with Collaborative Support Programs of New Jersey. The UIC Center is funded by NIDILRR (National Institute on Disability, Independent Living, and Rehabilitation Research). For the UIC Solutions Suite for Health & Recovery, click here. (Courtesy of Peggy Swarbrick via Jacek Haciak)

Poetry Coalition to Launch "Poetry & Disability Justice" Initiative

"This year, the 25+ organizations nationwide that comprise the Poetry Coalition will launch 'The future lives in our bodies: Poetry & Disability Justice,' the coalition’s sixth annual programming initiative...Poetry Coalition members aim to demonstrate how poetry can inspire questions in their communities about disability justice and spark increased engagement with this important theme. Member organizations are committed to offering programming that is accessible and that includes disabled, neurodivergent, and d/Deaf poets and those of diverse racial, ethnic, and gender identities, backgrounds, and communities. All organizations and others interested are invited to create programs on this theme in 2022 and share their efforts using the hashtags #DisabilityJustice and #PoetryCoalition. For some additional resources to assist with programming, particularly in creating accessible programming, click here.

U.S. Surgeon General Creates Community Toolkit for Addressing Health Misinformation

"The U.S. Surgeon General’s Community Toolkit for Addressing Health Misinformation, developed in collaboration with the HHS Office of Evaluation Sciences (OES), provides specific guidance and resources for health care providers, educators, librarians, faith leaders, and trusted community members to understand, identify, and stop the spread of health misinformation in their communities." For information about the toolkit (a 22-page overview of health misinformation, and resources to stop it), and links to a “Talk to Your Community About Health Misinformation” Infographic, a “Health Misinformation Checklist” Infographic, and the Surgeon General's press release, click here.

"Psychiatrist with Philosophical Interests" leads "Conversations in Critical Psychiatry," a Psychiatric Times Series

Awais Aftab, who describes himself as a "psychiatrist with philosophical interests" in his Twitter bio, leads "Conversations in Critical Psychiatry," which, he says, "explores critical and philosophical perspectives in psychiatry and engages with prominent commentators within and outside the profession who have made meaningful criticisms of the status quo." Among those interviewed are Allen Frances, M.D., author of Saving Normal; Sandra Steingard, M.D., and G. Scott Waterman, M.D., on "Integrating Academic Inquiry and Reformist Activism in Psychiatry"; Susannah Cahalan, author of Brain on Fire: My Month of Madness, on "50 Shades of Misdiagnosis"; Kathy Flaherty, J.D., executive director of the Connecticut Legal Rights Project, Inc., on "Reconsidering Care and Coercion in Psychiatry"; Nev Jones, Ph.D., on "Phenomenology, Power, Polarization, and the Discourse on Psychosis"; Dainius Puras, M.D., on "Global Psychiatry's Crisis of Values"; and many others. For the archived interviews, click here.

CNN Offers “A Guide to Helping and Getting Help During the Coronavirus Crisis”

CNN writes: “The coronavirus pandemic is overwhelming, and one of the most excruciating parts for many people is the feeling of utter helplessness in the face of widespread suffering and hardship. CNN’s Impact Your World has compiled a list of donation opportunities and tips to help those affected by the crisis. Click on a category or scroll down to browse a list of organizations, resources and ideas. Need help? Most categories also include resources for financial, emotional or social support.” For the free guide, click here.

Hearing Voices Network Is Now Hosting Online Groups

“There are now ONLINE opportunities to connect, share experiences, and find mutual support,” the Hearing Voices Network (HVN) writes. “These groups are accessible via web-based platforms and by phone…Online groups are specifically for those with personal lived experience with hearing voices, seeing visions, and/or negotiating alternative realities. They are voice-hearer facilitated. With further questions and for details on how to access the group[s], please email info@hearingvoicesusa.org.” To read this announcement online and for more information, click here.

Virtual Group Works to Advance Peer Research Capacity, Leadership, and Involvement

Nev Jones, PhD—a strong advocate for building research capacity, leadership, and involvement among peers, survivors, and service users—leads a virtual group dedicated to this effort. Dr. Jones—assistant professor, School of Social Work, University of Pittsburgh—was part of the team that developed “User/Survivor Leadership & Capacity Building in Research: White Paper on Promoting Engagement Practices in Peer Evaluation/Research (PEPPER),” published by the Lived Experience Research Network. For the white paper, click here. Anyone interested in joining the virtual group can email Nev at nev.inbox@gmail.com.

Mad In America Invites You to Submit Your Personal Story (Within Certain Guidelines)

Mad In America writes: “A ‘personal story’ is defined as your story of being in relationship to psychiatry and/or the mental health system, whatever that means to you. It might involve your opinions and analysis of what happened to you, as well. It can be about a specific event, or about your overall journey, provided it fits the length requirements (1,500 to 3,000 words) and has a narrative arc. The piece should be about your personal experiences, not psychiatry or the mental health system in general. Submissions should fall under the theme of rethinking psychiatry and the mental health system, and should be original works not previously published elsewhere. For examples of the types of stories we publish, view our personal stories archive here.” For more information and/or to submit a personal story, click here.

PsychAlive Offers a Variety of Webinars on Mental Health Topics, Many Free, Others $15

PsychAlive is a free, nonprofit resource created by the Glendon Association, whose mission is “to save lives and enhance mental health by addressing the social problems of suicide, violence, child abuse and troubled interpersonal relationships.” Psychalive.org offers a variety of upcoming and archived webinars, many of which are free, while others are available for $15. Among the myriad topics are “From Anxiety to Action: How to Stay Sane While Fighting Climate Change,” “How to Overcome Insecurity,” “Powerful Tools to Fight Depression,” and “Understanding and Overcoming Adverse Childhood Experiences.” To check out the webinars, click here.

Seven Ways to Keep a Digital Copy of Your Vaccination Card on Your Smartphone

“You'll need proof of vaccination to go back to work or enter many restaurants, gyms and event venues, so keep your COVID-19 card handy.” This is the advice of CNET.com, a tech support website. Besides the obvious—taking a photo of the card to store on your phone—there are six other suggestions. For details, click here. (Courtesy of Yvonne Smith)

ISPS-US Offers an Array of Archived Webinars--Free but Donations Are Welcomed

The ISPS-US (The International Society for Psychological and Social Approaches to Psychosis-US Chapter) is offering a whole raft of archived webinars, which are free (although donations are welcomed). Among the webinars are "Cognitive Behavioral & Related Therapies for Psychosis: Diverse Approaches to Supporting Recovery," "How Can the Uncontainable Be Contained? Paradoxes of Madness & Philosophy," "Robert Whitaker: The Rising Non-Pharmaceutical Paradigm for 'Psychosis,'" "Life with Voices: A Guide for Harmony," "COPE Project: Non-Pharmaceutical Research on Influencing Voices and Visions," "What Hurts and What Helps In Treatment For 'Psychosis': Insider Perspectives," and many others. For more information and to access the webinars, click here.

“Where DNA and Medications Meet”

Not all drugs are effective for all people; therapeutic response rates for many drugs are only 50%-75%. “OneOme, co-founded by [the] Mayo Clinic, provides evidence-based pharmacogenomic solutions that help improve patient outcomes and reduce costs through more personalized medication decisions.” OneOme’s RightMed Test is “a doctor-ordered pharmacogenomic (PGx) test that analyzes your DNA and provides your doctors with genetic information to help them determine how you may respond to certain medications. The results may help your doctors reduce medication trial and error, minimize risk of side effects, save you time and money, and make more informed prescribing decisions. Because your DNA doesn’t change over time, your doctors can use your test results to make more personalized medication decisions for you over the course of your lifetime.” For more information, click here. (Courtesy of Robin Osborne)

Lived Experience Leadership Features 12 Years of Research Studies...

"Lived Experience Leadership features 12 years of research studies focused on this workforce in a range of settings, to foster a better of understanding and respect for Lived Experience as a distinct discipline and build clarity on what makes this work unique and valuable. Importantly, this body of research was led by Lived Experience researchers. Lived Experience Leadership provides clear and simple to read research summaries to allow community members and people employed within various industries the opportunity to easily understand and apply strategies within their own workplace. This website also includes easy to download definitionsaudio/visual resources, and key work by other Australian and International sources. The website will continue to grow to include larger collections of our research as well as other key work. For the Lived Experience Leadership website, click here. (Courtesy of Jacek Haciak)

Doors to Wellbeing Offers “State Selfies: A Picture of Peer Services Reported by Peers”

Doors to Wellbeing’s “Peer Album” is a directory of nearly 600 peer-run organizations throughout the U.S. They invite updates and offer instructions for providing them and add, “If your entry has not made this first draft, we encourage you to re-submit.” For the 158-page directory, click here.

Disclaimer: The Clearinghouse does not necessarily endorse the opinions and opportunities included in the Key Update.

About The Key Update

The National Mental Health Consumers’ Self-Help Clearinghouse is now affiliated with the Temple University Collaborative on Community Inclusion.

The Key Update is the free monthly e-newsletter of the National Mental Health Consumers’ Self-Help Clearinghouse. Volume 19, No. 1, July 2022. For content, reproduction or publication information, please contact Susan Rogers at selfhelpclearinghouse@gmail.com. Follow Susan on Twitter at @SusanRogersMH

 

Key Update, June 2022, Volume 18, Number 12

The National Mental Health Consumers’ Self-Help Clearinghouse is affiliated with the Temple University Collaborative on Community Inclusion.

TO CONTACT: THE CLEARINGHOUSE: SELFHELPCLEARINGHOUSE@GMAIL.COM  … SUSAN ROGERS: SUSAN.ROGERS.ADVOCACY@GMAIL.COM … JOSEPH ROGERS: JROGERS08034@GMAIL.COM 

The Key Update is compiled, written, and edited by Susan Rogers, Director, National Mental Health Consumers’ Self-Help Clearinghouse.

NOTE: THE "FROM PREVIOUS EDITIONS OF THE KEY UPDATE BUT STILL FRESH!" DEPARTMENT, WHICH IS DIRECTLY BELOW THE MONTHLY CRIMINAL JUSTICE DIGEST, INCLUDES ITEMS THAT HAD BEEN POSTED "ABOVE THE FOLD" IN EARLIER EDITIONS BUT ARE STILL RELEVANT. THESE INCLUDE ONGOING RESEARCH STUDIES THAT ARE STILL SEEKING PARTICIPANTS, AS WELL AS UPCOMING WEBINARS AND CONFERENCES, AND OTHER ITEMS OF CONTINUED INTEREST. DON'T MISS IT!

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“False Diagnoses and Bad Drug Recommendations Are Now Just a Few Hashtags Away, New Research Warns”

“[R]esearchers are examining how pharmaceutical companies partner with patients who are willing to share their experiences with their followers and help give the drugs more credibility,” according to a recent article in Mel Magazine. ‘This is a growing phenomenon, but there is virtually no research on it and very little regulation,’ Erin Willis, an associate professor at the University of Colorado, said in a press release…Willis and Marjorie Delbaere, a professor at the University of Saskatchewan, reviewed 88 articles on current industry regulations and practices, and…concluded that influencers are ‘the next frontier in direct-to-consumer pharmaceutical marketing.’…Willis and Delbaere’s paper argues that this, along with the rise of internet-aided self-diagnosis, has created a culture of patients who tell their doctors what is wrong with them and what drugs they need, as opposed to the other way around. And amazingly, up to 44 percent of doctors oblige these medication requests. ‘It’s a lot like what we used to see with doctors and pharmaceutical companies,’ Willis explained. ‘Only now it’s patients using social media to advocate for disease awareness, and in some cases, pharmaceutical medications.” For the article, click here.

MFI to Present “Viewing the Suicide Prevention Industry Through a Critical Lens”

On June 1, 2022, social activist authors Robert Whitaker and Rob Wipond will discuss the suicide prevention industry on Mind Freedom International’s Judi’s Room at 6:00 p.m. ET, 3 p.m. PT. Their presentations will be followed by a discussion arising from audience questions.  To register for free, click here. (Note: Rob Wipond will be one of the keynote speakers at NARPA’s 2022 conference. See “NARPA Announces Exciting Keynoters to Speak at Its 2022 Annual Rights Conference, October 26-29,” below.)

NY Times Reports: “Doctors Gave Her Antipsychotics. She Decided to Live With Her Voices.”

A recent article in the New York Times Magazine does some justice to the peer movement and to the fact of recovery from serious mental health conditions. Featured in the article are several movement activists talking about the Hearing Voices Network, as well as peer-run crisis respites such as Soteria Houses (in Israel) and Afiyah Peer Respite, run by the Wildflower Alliance in Massachusetts. The Times reporter, Daniel Bergner, cites the World Health Organization’sguidance [that] seeks to put an end to human rights violations in mental health care” (included in the July 2021 Key Update). He also quotes Thomas R. Insel, who led NIMH from 2002 to 2015, saying that, although $20 billion may have been spent, “I don’t think we moved the needle in reducing suicide, reducing hospitalizations, improving recovery for the tens of millions of people who have mental illness.” Bergner continues: “Better outcomes, the W.H.O. predicts, ‘will depend on a re-evaluation of many of the assumptions, norms and practices that currently operate, including a different perspective on what ‘expertise’ means when it comes to mental health.” He quotes Michelle Funk, the primary author of the W.H.O. report: “Practitioners cannot put their expertise above the expertise and experience of those they’re trying to support.” For the New York Times Magazine article, click here. For “The Medical Model Doesn't Work for Mental Health," an interview with Thomas Insel, click here. (Note: Journalist Daniel Bergner will be a panelist in the June 9th webinar presented by NYAPRS. Please see “NYAPRS to Host Three Free Webinars in June,” below, for details.)

TU Collaborative’s Parenting Through Leisure Series Continues on June 2

On June 2, 2022, at 12 p.m. ET, the Temple University Collaborative on Community Inclusion will continue its Parenting Through Leisure webinar series with its third free, one-hour webinar, which will focus on using leisure to talk about mental health conditions. The TU Collaborative writes: “We will go over the benefits of disclosing mental illnesses to children, as well as strategies to talk about mental illnesses while engaging in fun activities with children…This webinar series features strategies parents who experience mental health issues can use to spend quality time with their children, and ways to use family leisure to improve connection and communications.” For more information and to register, click here.

June 3 Is Gun Violence Awareness Day. Wear Orange! More Americans Died of Gun-Related Injuries in 2020 Than in Any Other Year on Record. And NCMHR Decries Texas Governor Abbott’s Call for “ ‘Mental Health’ Instead of Background Checks”! And “March for Our Lives” to End Gun Violence on June 11!

In 2022, the 8th National Gun Violence Awareness Day will fall on June 3, the first Friday of the month. That will kick off Wear Orange Weekend on June 4-5, which will feature virtual and in-person events across the nation. For more information, click here. “More Americans died of gun-related injuries in 2020 than in any other year on record, according to recently published statistics from the Centers for Disease Control and Prevention (CDC). That included a record number of gun murders, as well as a near-record number of gun suicides.” For “What the data says about gun deaths in the U.S.,” click here. (On May 14, 10 people were shot and killed in a Tops Friendly Market in Buffalo, N.Y., in a racially motivated hate crime. And on May 24, 19 children and two teachers were murdered in Robb Elementary School in Uvalde, Texas. For the response of the National Coalition for Mental Health Recovery to the tragedy in Uvalde—“National Advocacy Organization of People Labeled Mentally Ill Decries Gov. Abbott’s Call for “Mental Health” Instead of Background Checks”—click here.) And “March for Our Lives” to end gun violence on June 11 in DC and around the US! For more information and to find a march near you, click here.

“Courageous Conversations: Cultivating Cultural Humility and Managing Biases with Families Facing Serious Mental Illnesses and Serious Emotional Disturbances”—Session One of Three

On June 3 from 2 p.m. to 4 p.m. ET, the Substance Abuse and Mental Health Services Administration will sponsor Session One of “Courageous Conversations: Cultivating Cultural Humility and Managing Biases with Families Facing Serious Mental Illnesses and Serious Emotional Disturbances.” “Participants will…learn practical strategies for working compassionately and authentically with diverse families facing severe emotional disturbances based on the cultural humility core pillars of establishing a commitment to self-evaluation, fixing power imbalances, and committing to institutional accountability, and explore implicit and explicit biases and managing biases in advancing behavioral health equity.” For more information and to register for this free webinar, click here. (Courtesy of Judene Shelley)

MHTTC Announces Three Upcoming Webinars June 7, 8, and 9

The Northwest MHTTC (Mental Health Technology Transfer Center Network) has announced three webinars taking place on three consecutive days: June 7, 8, and 9. These are “Supervising Peer Specialists, with Pat Deegan” (June 7, 1 p.m.-2:30 p.m. ET, 10 a.m.-11:30 a.m. PT), “Incorporating Strategies to Effectively Engage Hispanic and Latinx Clients” (June 8, 1 p.m.-2:15 p.m. ET, 10 a.m.-11:15 a.m. PT), and Co-Occurring Disorders: Compassionate Care for Healing and Recovery” (June 9, 1 p.m.-2:15 p.m. ET, 10 a.m.-11:15 a.m. PT). For information about the three webinars and to register, click here. (Courtesy of Jacek Haciak)

NYAPRS to Host Three Free Webinars in June

“This month's webinars offer a theme of shared experience, space for conversation and community building,” NYAPRS writes. “Career Chat 2.0: Exploring Change through Education, Credentialing, and Professional Development,” an interactive chat, will take place on June 8 at 12 p.m. ET. Career Chat 2.0 is a space where we share our experience and perspective and explore change…Join Gita Enders, NYC Health + Hospitals; Jonathan P. Edwards, NYC DOHMH; and EM Vaianella, HALI; and other peer supporters and colleagues for this interactive chat.” To register, click here. On June 9, NYAPRS is partnering with Community Access and the College for Behavioral Health Leadership to present a free, one-hour webinar on “Soteria New York” at 1 p.m. ET. The presenters are Pesach Lichtenberg, founder of Soteria Israel; Voyce Hendrix, director of Soteria San Jose (1976-1978); Yana Jacobs, a counselor at Soteria San Jose; and Daniel Bergner, contributing writer, New York Times Magazine, and author of the upcoming book “The Mind and the Moon—My Brother, the Science of Our Brains and the Search for Our Psyches.” To register, click here. And on June 15 at 12 p.m. ET, NYAPRS will present Wellness and Recovery Story Circles—Build Relationships across Cultural Differences.” Story Circles “grant opportunities for peers who are service recipients the freedom to share their living and lived experiences in a safe, supportive and welcoming environment. Story Circles also engage participants in collective learning, leadership development and storytelling experiences that can reshape their lives, support personal wellness and recovery goals and improve the quality of personal and community life.” To register, click here.

Reclaiming Employment™ Platform Offers Self-Employment Support

Live and Learn, Inc., is recruiting users for its Reclaiming Employment platform, launching in June 2022. Reclaiming Employment offers support for people with mental health challenges around work to start and run small businesses. “At this time, Reclaiming Employment is only available to use through a pilot research study, where users will have access to all the website’s features and participate in a few surveys. If you or someone you know is interested in or currently engaged in self-employment and would like to use Reclaiming Employment, let us know by filling out the interest form (below). The deadline for enrollment is June 3. Join us in building a community where personal, economic, and collective empowerment are achieved through self-employment. Earn up to $80 for participating!” For more information and to get involved, click here.

Latest N.A.P.S. Newsletter Offers Opportunities for Peer Supporters!

The May 25th edition of the National Association of Peer Supporters (N.A.P.S.) newsletter invites applications for sponsors and exhibitors at the N.A.P.S. annual conference, October 19-21, 2022. (The deadline for workshop applications is June 17!) The hybrid conference will be held at the Dallas/Ft. Worth International Airport and online! In addition, N.A.P.S. members can apply to serve on its board of directors. And a new “Youth and Young Adult Peer Supporter Community Space” is open! Also, through a partnership with the online, nonprofit, institutionally accredited Western Governors University, N.A.P.S. members can apply for a $5,000 scholarship to earn a bachelor’s or master’s in business, IT, education, or health care! For the N.A.P.S. newsletter, click here.

AHRQ Invites Public Comment on a Potential Service-Recipient Survey to Assess Inpatient Mental Health Care

“AHRQ invites public comment on its Request for Information (RFI) about a potential Consumer Assessment of Healthcare Providers and Systems (CAHPS®) survey to assess patient care experiences in inpatient mental healthcare settings. Specifically, this RFI seeks comment regarding methodologically sound survey and data collection approaches of care experiences of those receiving inpatient mental healthcare. In addition, this RFI seeks comments about any unique considerations or concerns associated with collection of such patient care experience information. There currently is no CAHPS instrument designed to measure care from the patient perspective in this setting. This request for information will help inform the development of a scientifically sound survey to measure the experience of patients receiving inpatient mental healthcare.” The comment period ends July 1, 2022. For more information and/or to submit a comment, click here(Courtesy of Amy Smith)

HHS Announces Its First-Ever Behavioral Health Recovery Innovation Challenge

The Department of Health and Human Services (HHS), through the Substance Abuse and Mental Health Services Administration (SAMHSA), has announced its first-ever behavioral health Recovery Innovation Challenge. Its goal is to identify innovations that advance recovery and that were developed by peer-run or community-based organizations and their partners, such as local or state governments, health systems, hospitals, or health plans. The application deadline is July 15, 2022; finalists will be announced on August 6. The purse prize (for up to 10 awards) is up to $400,000. For more information, click here. (Courtesy of NYAPRS E-News)

Poor People’s and Low-Wage Workers’ Assembly & Moral March on Washington June 18

“The Mass Poor People’s & Low-Wage Workers’ Assembly & Moral March on Washington and to the Polls” on June 18, 2022, will be a generationally transformative declaration of the power of poor and low-wealth people and our moral allies to say that this system is killing ALL of us and we refuse to be silent anymore!...Did you know that there are fewer voting rights in 2018 than there were 50 years ago when the Civil Rights Act and Voting Rights Act were passed? Since 2010, 23 states have passed racist voter suppression laws, including racist gerrymandering and redistricting, laws that make it harder to register, reduced early voting days and hours, purging voter rolls, and more restrictive voter ID laws.” The marchers will gather at 9 a.m. on June 18 and the march will start at 10 a.m. For more information, click here. (Note: For details about the gathering place, it may be necessary to RSVP using the form provided at the link above, or to contact the organizers.)

NARPA Announces Exciting Keynoters to Speak at Its 2022 Annual Rights Conference, October 26-29

The National Association for Rights Protection and Advocacy (NARPA) will hold its 2022 Annual Rights Conference at the DoubleTree by Hilton Hotel Newark Airport October 26-29. The four inspiring keynote speakers will be Rob Wipond, an activist, investigative journalist, and author of the upcoming “Your Consent Is Not Required: The Rise in Forced Detentions, Forced Treatment, And Abusive Guardianships”; Ruth Lowenkron, Director, Disability Justice Program, New York Lawyers for the Public Interest, who has filed lawsuits against the New York Police Department about their responses to mental health crisis calls; Vesper Moore, an indigenous political activist, leader, author, trainer and educator in the psychiatric survivor and disability rights movements; Deborah Dorfman, Executive Director, Disability Rights Connecticut, who is active in individual, class action, and systemic reform litigation for disability rights around the nation; and Robert Dinerstein, Professor of Law, American University Washington College of Law, who will speak about recent developments in mental health law. Visit www.narpa.org for registration form and updates. 

Free Webinar: “Integrating Faith & Spirituality into Trauma Recovery”

On June 29, 2022, at 2 p.m. ET, SAMHSA will sponsor a free, 90-minute webinar about “Integrating Faith & Spirituality into Trauma Recovery.” The presenters will discuss “what trauma recovery consists of and the value of a faith- or spirituality-based approach; best practices for inquiring about a trauma survivor’s relationship with spirituality and integrating their beliefs into treatment and healing; and incorporating Islamic faith and spirituality into trauma work with the Black Muslim American population.” Following the webinar, participants will be able to register for Part Two of this discussion with the presenters on June 30, 2022, at 2:00 p.m. ET. “Part Two is a 60-minute intimate dialogue with the presenters and a smaller number of registered webinar participants who will be able to ask more detailed questions and engage with the presenters more comprehensively.” For more information and to register, click here

Doors to Wellbeing Will Host the Next Free Webinar in its Monthly Series on June 28

The Doors to Wellbeing website will include details closer to the date, here. To register, click here.

TU Collaborative Offers a Free Publication on “Why Mattering Matters”

“Why Mattering Matters: The importance of mattering for people with serious mental illness” is a new publication from the Temple University Collaborative on Community Inclusion. The TU Collaborative writes: “For many individuals who experience serious mental illnesses, social isolation and loneliness are part of their experience of everyday life. However, social connection is not simply being in the presence of others. Do people notice when someone is there or when they are absent? Does their presence contribute to the social environment or to the activity? In short, does it feel like they matter? So, while it may seem like simply spending more time with other people might combat loneliness, it appears that reducing loneliness and isolation likely involves more than increasing one’s social connections. Mattering may be a key component to effectively reducing loneliness among individuals who experience mental illnesses. This document presents the importance of social connections and mattering for all people, and why these issues are especially important for people living with mental illnesses.” To download the free, nine-page pamphlet, click here.

Save the Date: National Latino Behavioral Health Conference

On September 15-16, the National Latino Behavioral Health Association (NLBHA), with support from the Substance Abuse and Mental Health Services Administration, will sponsor the 2022 National Latino Behavioral Health Conference in Las Vegas, Nevada. The theme will be "Latino Behavioral Health Equity: Juntos Podemos! (Together we can!)” For more information, write to nlhconference@nlbha.org.

National Safety Council Offers a Free Webinar Series Focusing on Mental Health in the Workplace

"The impact of the COVID-19 pandemic will affect employees well beyond the initial crisis," the National Safety Council writes. "Employers have a unique ability and responsibility to address the mental health and wellbeing of their workers, which is a true organization-wide effort. This free Mental Health Webinar Series led by the National Safety Council, and first presented in August 2020, speaks to a variety of positions within an organization and how each one can address stress and mental health." Four of the five webinars are titled: "Supporting Employee Mental Health" and respectively subtitled "Resources for Employees," "Actions for Leadership," "Actions for Supervisors," and "Actions for HR Professionals." To view the free, archived webinars, click here.

“25 IG Cartoonists Who Totally Get Your Anxiety”

“…sometimes, a good anxiety cartoon is just what you need to interrupt all the perfection for an acknowledgment of the messier side of life. These cartoonists? They got you—insecurity, anxety, imposter syndrome and all. Here are our absolute favorite anxiety cartoons on Instagram.” For the comics, click here.

The June 2022 Digest of Articles Offering Healthy Lifestyle Advice

For “The Power of Kindness in Improving Brain Health,” click here. (Courtesy of Peggy Swarbrick via Jacek Haciak.) For “Mindfulness Hurts. That’s Why It Works. Facing the painful parts of life head-on is the only way to feel at home with yourself,” click here. For “Getting Back Into Running Is Easier Than You Think: Whether you’re lacing up your running shoes after a few months or a few years, follow these tips to avoid injury and frustration,” click here. For “AA Agnostica is meant to be a helping hand for the alcoholic who reaches out to Alcoholics Anonymous for help and finds that she or he is disturbed by the religious content of many AA meetings,” click here. For “Make Swimming Your Summer Workout: With just 30 minutes and a few useful tricks, a trip to the pool can become serious exercise,” click here.

The June 2022 Digest of Articles about the Criminal Justice System, in Which Many Individuals with Mental Health Conditions Are Incarcerated (and the Key Update continues after this Digest)

For “Va. Gov. Youngkin restores voting rights to thousands of ex-felons,” click here. For “Millions of People With Felonies Can Now Vote. Most Don’t Know It. In a handful of key states, no more than 1 in 4 formerly incarcerated people registered in time for the 2020 election, a Marshall Project analysis found,” click here. (The preceding article was included in the Key Update’s Criminal Justice Digest in July 2021.) For “Supreme Court makes it more difficult for prisoners to argue they had ineffective counsel,” click here. For “Supreme Court Limits Inmates’ Challenges Based on Bad Legal Help: Splitting 6 to 3, the justices ruled that federal courts may not hold evidentiary hearings in suits from state prisoners claiming ineffective assistance of counsel,” click here. For “The Supreme Court Just Gutted Another Constitutional Right,” click here. For “Counties Pledge to Break the Cycle Between Jail and Homelessness: With $20 million in MacArthur Foundation funding, four U.S. jurisdictions are exploring ways to make sure that brushes with the law don’t end up putting people on the street,” click here. For “LGBTQ people are disproportionately incarcerated. Here’s why. More than a century of homophobia and transphobia have shaped the policing and incarceration of women and trans men,” click here. For “This Prison Won't Let Me Read ‘Game of Thrones’: Navigating the sometimes weird, arcane rules about inmate contraband, click here.  For “The America That Killed George Floyd: In a new biography of the man whose murder sparked massive protests, two reporters tell a longer story of institutional racism,” click here. For “Op-Ed: The mentally ill defendants in my courtroom need treatment, not jail,” click here. For “The Island: A History of Rikers,” click here. For “New Justice Dept. policy says agents must intervene if they see abuse: Memo from Attorney General Merrick Garland is the first such policy update in 18 years,” click here. For “Given a chance to avoid jail and criminal charges, mentally ill, addicted and homeless people in L.A. pass,” click here. For “The Center for Justice Paves a Path to Reentry for Formerly Incarcerated Students: This year, seven formerly incarcerated students affiliated with Columbia's Center for Justice will graduate from the university,” click here. For “Daniel Taylor Was Innocent. He Spent Decades in Prison Trying to Fix the State’s Mistake. He was in police custody at the time of the murders, but a dubious confession led to his wrongful conviction while Chicago police and prosecutors turned a blind eye to inconvenient facts that eventually exonerated him,” click here. For “The Superpredator Myth Did a Lot of Damage. Courts Are Beginning to See the Light,” click here. For “Justice Dept. Inquiry Finds ‘Systemic Failures’ at Mississippi Prison: A report singled out solitary confinement and enforced segregation as particularly harmful practices that contributed to the poor mental and physical health of prisoners,” click here.

FROM PREVIOUS EDITIONS OF THE KEY UPDATE BUT STILL FRESH!

OPPORTUNITIES TO PARTICIPATE IN RESEARCH STUDIES AND AN “EXPERIENCES WITH HOSPITALIZATION” SURVEY

Survey Seeks Respondents Who Have Taken Mental Health Courses Involving Their Own Diagnoses

Have you taken a mental health course that covers a diagnosis you have? If so, you are invited to participate in a brief, anonymous, online survey--designed by a University of Pittsburgh MSW student--about what it's like for students with lived experience to study their own diagnoses in a classroom. The survey covers students' experiences of studying such subjects as "abnormal psychology," "psychopathology," and diagnosis and assessment when their own diagnoses are covered. "The goal of the project is to better understand what it feels like to take courses in which someone’s diagnosis is being taught/defined/discussed. There is currently no literature or reporting on the experiences of students in the above circumstances, or the associated impact." Interested? Please click here. Questions? Please email the project lead, Charlie Clement, at cjc204@pitt.edu

Peer Support in Higher Education Survey Seeks Respondents

“Peer support programs are growing on college campuses across the U.S. Mental Health America, Doors to Wellbeing, and the Temple University Collaborative on Community Inclusion want to better understand the availability of peer support in higher education as well as the experiences and needs of students accessing peer support programs…We hope to use this research to support the expansion of peer support in higher education, including developing a national database of peer support programs in higher education and documenting pressing issues in campus programs…You may also indicate if you are interested in having your school’s peer support program listed in a national database of peer support programs in higher education.” For more information and to complete the survey, click here

BU Seeks Peer Support Specialists for a Research Study

The Center for Psychiatric Rehabilitation at Boston University is developing and testing the effectiveness of a coaching service called Coaching and Advancement for Peer Providers (CAPP) “to increase organizational commitment and job satisfaction and decrease turnover among mental health peer providers.” BU CPR writes: “We need Peer Support Specialists (PSS) to participate in our study. Who can participate? People who are in a paid job as a Peer Support Specialist providing support to other people with mental health challenges, who are employed at least 10 hours per week, who have worked for the past six months in a mental health program, and who are experiencing stress because of challenges in the workplace. The study involves 16 one-hour sessions of coaching over a four-month period designed to help you with your job, meeting online (through Zoom, for example) with your coach, and filling out surveys one time before coaching starts and three additional times. You will have a 50/50 chance of getting a coach or having a one-time meeting to give you information about challenges at work. Benefits? You may learn strategies to help make work less stressful.” For more information, click here. For questions, contact Principal Investigator E. Sally Rogers, Sc.D., at erogers@bu.edu or 617-353-3549.

Supported Education Survey Needs Your Help

Do you operate a program that provides dedicated supported education services for individuals with psychiatric disabilities/mental health conditions? If so, you are invited to complete the survey at the link below. The primary goal of the survey is to help create a National Supported Education Database (NSEdD) that will be "a searchable listing of diverse supported education programs and services for individuals experiencing psychiatric disabilities and/or mental health challenges...across the US and its territories." The NSEdD project is sponsored by the Substance Abuse and Mental Health Services Administration (SAMHSA) and co-administered by the five SAMHSA-funded national consumer and consumer-supporter technical assistance centers, in collaboration with research partners Drs. Nev Jones (University of Pittsburgh) and Mark Salzer (Temple University). For a link to the survey, which includes a definition of supported education, click here. For a flyer with information about the survey, click here.    

National Survey on Student Rights, Discrimination, and Accommodations in Higher Education Seeks Respondents  

"Have you experienced psychiatric disability-based discrimination or the denial of an accommodation in a postsecondary institution in the United States? Interested in informing national advocacy focus on psych disability rights in higher ed? Mental Health America (lead: Kelly Davis) and collaborators Dr. Nev Jones (University of Pittsburgh), Stefanie Kaufman-Mthimkhulu (Project LETS) and Brit Vanneman Esq. (Bazelon Center for Mental Health Law) have developed "a survey aimed at providing a more comprehensive understanding of student experiences of campus-based discrimination, mandated leaves of absence, and/or denial of academic, administrative and/or student-work accommodations in the U.S. Data will be used to inform national advocacy efforts and future projects, and in reports, presentations and publications." For eligibility and to access the survey, click here.

If You've Had, or Been Labeled with, "Negative Symptoms" in the Context of Psychosis...

"If you have experienced or been labeled with 'negative symptoms' in the context of psychosis, please consider contributing an anonymous account of your views and experiences," Dr. Nev Jones writes. "Currently, there is nowhere one can go to find lived experience perspectives/accounts on this topic—even though 'negative symptoms' regularly feature in research and clinical trials. Help us change this!" This survey is a companion to Psychosis Outside the Box; for that survey, click here. For more information and/or to share your story about "negative symptoms," click here.

"Are You Between the Ages of 21 and 60 and Drink Alcohol?"

"Researchers at the National Institutes of Health (NIH) are seeking adults--[both smokers and non-smokers]--to study whether a gene and smoking may affect drinking alcohol. Volunteers should be healthy and drug-free, and not seeking treatment for alcohol-related problems. Research participation includes three outpatient visits at the NIH Clinical Center in Bethesda, MD; alcohol consumption; brain scans (MRI), blood draws, and filling out questionnaires. There is no cost to participate and compensation may be provided." For more information, click here. (Courtesy of Fran Hazam)

TU Collaborative Seeks Participants for Its Parenting Through Leisure Project; See Also the TU Collaborative's Parenting Resources, Including Information on Custody Issues

The Temple University Collaborative on Community Inclusion is seeking parents with lived experience of a mental health condition to participate in a paid research study. The TU Collaborative writes: "Our program, Parenting Through Leisure, focuses on helping parents with a serious mental illness participate in leisure activities with their child. We are looking for individuals who are 18 and older; are an adult parent with a diagnosis of schizophrenia-spectrum disorder, bipolar disorder, or depression; have a child who is 7 to 15 years old and is interested in participating in family leisure with you; have legal visitation rights, joint custody or full custody of the child, with at least weekly contact; and have a desire to engage in more leisure activities with their child." For details about the study and the remuneration as well as other benefits to eligible participants, and a link to sign up, click here. Questions? Please contact TUCollab@temple.edu. And for the TU Collaborative's Parenting web page--which includes links to many resources for parents with lived experience, including information about custody laws and a model family reunification statute--click here.

Survey Seeks Respondents Who Are in Administrative/Leadership Positions in the Mental Health Field

If you are in an administrative/leadership position in the mental health arena, “the Group for the Advancement of Psychiatry (GAP) Committee on Psychiatric Administration and Leadership invites you to participate in the International Survey on Administrative Psychiatry. The survey has two purposes: 1. To identify the concerns and needs of mental health professionals/psychiatrists in administrative and leadership positions. 2. To determine training needs in administrative psychiatry. We ask you to complete this brief, [15- to 20-minute] questionnaire to help us in developing recommendations for action. We also want to let you know that, if you fill out this questionnaire, you permit the committee to use your anonymous data for scientific work.” Peer providers are included. For the survey, click here. (Courtesy of Oryx Cohen)

“Experiences with Hospitalization” Survey Seeks Participants

“The purpose of this survey is to help us understand people's lived experience with voluntary and involuntary treatment because of suicidal thoughts. It was created by people with lived experience…We are planning to use this information to facilitate discussions with suicidologists and the suicide prevention community about the impact of the use of these interventions, particularly within marginalized populations. We feel the voice of people with lived experience with these interventions has not had adequate opportunity to be heard, and hope that by completing this survey anonymously, people who have been most impacted can find a safe way to share their experiences. Please note that this is not a research project.” For more information and/or to participate, click here. (Courtesy of Leah Harris)

International Survey on Antipsychotic Medication Withdrawal Seeks Respondents

“Have you taken antipsychotic medication (such as Zyprexa, Seroquel, Abilify, Risperdal, Haldol, Geodon, Stelazine, and others), for any condition or diagnosis, with or without other medications? And did you ever stop taking antipsychotics, or try to stop taking them? Are you 18 years or older? If yes, you can take this survey about antipsychotic withdrawal and attempts to withdraw, including if you stopped taking them completely or if you tried to come off and still take them. The survey aims to improve mental health services by better understanding medication withdrawal. Lead researcher is Will Hall, a therapist and Ph.D. student who has himself taken antipsychotics. Service users/survivors/consumers from around the world also gave input. The study is sponsored by Maastricht University in the Netherlands; co-sponsors include the International Institute for Psychiatric Drug Withdrawal. Questions? Please contact will.hall@maastrichtuniversity.nl.”  For more information or to take the survey, click on www.antipsychoticwithdrawalsurvey.com

CONFERENCES, WEBINARS, AND ONLINE SUPPORT GROUPS

South Southwest MHTTC First Episode Psychosis (FEP) Conference on June 1-3, 2022

"We invite those with a commitment to transforming FEP care, including those with lived experience, family members, providers, and researchers, to join us for the South Southwest MHTTC First Episode Psychosis Conference 2022 to celebrate successes and imagine a future of continued growth and accountability on June 1-3, 2022, either in person in Austin, TX ($75) or virtually (free). This event[—whose theme is Re-envisioning FEP Services with Youth and Young Adults—]will include keynotes, panels, informal networking, and collaborative dialogue groups. We place particular emphasis on developments related to diversity of perspective, including incorporating lived experiences, marginalized or minoritized groups, and other positionalities (culture, class, gender, age, religion, sexual orientation, childhood lived experiences, contexts, worldview, perspectives, etc.). We hope to see you there!" For registration and more information, click here.

These Four National Mental Health Conferences (Among Others) Are Coming Up in 2022

The annual meetings of the American Psychiatric Association, Mental Health America, and the International Conference on Trauma and Mental Health will take place in 2022. The American Psychiatric Association 2002 annual meeting, to be held both in-person in New Orleans May 21-25 and online June 7-10, will focus on the theme of "Social Determinants of Mental Health." For more information, click here. The theme of Mental Health America's 2022 annual conference, to be held June 9-11 at the Hyatt Regency on Capitol Hill and live-streamed, is "Forward Together: Recovery, Healing, Hope." For more information, click here. NAMI’s virtual conference, “NAMIcon,” will be held June 14-16. For the full schedule and to register, click here. The International Conference on Trauma and Mental Health will take place November 3-4, 2022, in San Francisco. For more information, click here.

ISPS-US (Hybrid) 2022 Conference to Be Held November 4-6

The 2022 ISPS-US (International Society for Psychological and Social Approaches to Psychosis—U.S. Chapter) conference will be held November 4-6 in Sacramento, California, as well as online. The conference theme is Opportunity Through Experience: Psychosis, Extreme States, and Possibilities for Transformation. ISPS-US writes: “People with lived experience, family members, clinicians, and researchers are all invited to propose presentations that promote mutual collaboration and respect, and can allow us to offer each other both greater understanding and more light. We especially welcome proposals from members of marginalized groups whose experiences have included systemic as well as relational traumas and challengesFor more information, click here. (Courtesy of Jacek Haciak)

Alternatives 2021 Is Over, but You Can View Many of the Presentations—and the Work Continues!

If you missed Alternatives 2021—the oldest national conference organized by and for individuals with lived experience of a mental health condition—you can see many of the presentations on the Alternatives conference website! The conference—whose theme was “Connecting, Organizing, Activating!”—was held July 8, 10, 15, and 17, and was organized by the National Coalition for Mental Health Recovery. This year the conference was virtual—and free! One highlight was the three Action Groups—on Promoting Racial and Social Justice, National and Statewide Advocacy, and Crisis Prevention and Alternatives to Institutionalization—which met on all four days. Reports from each of the groups are posted on the Alternatives conference website, and it is hoped that people will continue to work together to make progress on the goals that were determined by participants during the conference. For information about the Action Groups, click here. Recordings of many of the workshops, keynotes, and special activities are available on the Alternatives conference website (click here).

Peer Advocates Over 50 Years Old Are Invited to a Weekly Empowering Support Group

"People over 50 who are mental health lived-experience advocates, change makers, visionaries, and current status quo challengers" are invited to join "a weekly, open, upbeat, peer-support empowering environment for seasoned peers with lived experience who are active, and were active, as advocates for positive change," the WiseCrackers write. The goal of the recently launched group is "to support mental health advocates over 50 years of age with pure peer support practices based on natural curiosity, acceptance, humor, and positive networking." The free, 90-minute Zoom meetings are held on Mondays at 7 p.m. ET, 6 p.m. CT, 5 p.m. MT, and 4 p.m. PT. The meetings are currently co-facilitated by "East and West Coast Peers" and sponsored by the Community for Positive Aging. To register and to review the WiseCracker Principles of support, click here. Questions? Contact info@choiceheals.com or 503.208.0065.

Hearing Voices Network Is Now Hosting Online Groups

“There are now ONLINE opportunities to connect, share experiences, and find mutual support,” the Hearing Voices Network (HVN) writes. “These groups are accessible via web-based platforms and by phone…Online groups are specifically for those with personal lived experience with hearing voices, seeing visions, and/or negotiating alternative realities. They are voice-hearer facilitated. With further questions and for details on how to access the group[s], please email info@hearingvoicesusa.org.” To read this announcement online and for more information, click here.

ISPS-US Offers an Array of Archived Webinars--Free but Donations Are Welcomed

The ISPS-US (The International Society for Psychological and Social Approaches to Psychosis-US Chapter) is offering a whole raft of archived webinars, which are free (although donations are welcomed). Among the webinars are "Cognitive Behavioral & Related Therapies for Psychosis: Diverse Approaches to Supporting Recovery," "How Can the Uncontainable Be Contained? Paradoxes of Madness & Philosophy," "Robert Whitaker: The Rising Non-Pharmaceutical Paradigm for 'Psychosis,'" "Life with Voices: A Guide for Harmony," "COPE Project: Non-Pharmaceutical Research on Influencing Voices and Visions," "What Hurts and What Helps In Treatment For 'Psychosis': Insider Perspectives," and many others. For more information and to access the webinars, click here.

PETITIONS AND OPEN LETTERS

ISEPP Invites Mental Health Practitioners and Academicians to Sign Its Open Letter to the Major U.S. Mental Health Professional Organizations

The Coalition Against Medicalized Psychology & Psychiatry (CAMPP)—the action committee of the International Society for Ethical Psychology & Psychiatry (ISEPP)—asks mental health practitioners and academicians worldwide “to join us in signing an open letter to the American Psychiatric Association, American Psychological Association, American Counseling Association, National Association of Social Workers, and American Association for Marriage and Family Therapy to provide evidence for framing emotional distress and troublesome behaviors as illnesses or defects in a person’s biology—and, if they can't, to publicly reject the medical model of mental disorder. With this we hope to raise awareness of the harmful effects of that model. Send me your name, credentials, profession, position, city, state, and country to be appended to the letter. Pass this email on to others in your network and ask them to sign too. Our plan is to share the above organizations' responses (or lack of responses) with The Washington Post and The New York Times science and/or health editors.” For the letter, click here. (Courtesy of Elizabeth R. Stone) (For another ISEPP petition, see below.)

ISEPP Circulates Petition to Support Human Rights in Psychiatric Treatment

ISEPP seeks signatures on a petition to  "[m]ake a strong statement that any psychiatric or psychotherapeutic interventions without full and honest informed consent are unethical and inhumane." For the petition, click here. (Courtesy of Amy Smith)

Please Sign a Petition to Help Save a Public Mental Health Model in Italy

"Trieste is recognized by the World Health Organization as the model of global best practice in mental health care," according to a change.org petition highlighted in a recent NPR article. "It has inspired dozens of programs throughout the world to create an integrated network of community services focused upon the whole-person needs of its users; maintaining their dignity as citizens; and minimizing the coercive practices of old fashioned institutional settings...Trieste has shown us how community inclusion improves people’s lives. But this great achievement is now threatened by a new right-wing regional government that, on poorly informed and ideological grounds, is fast and impulsively dismantling Trieste's wonderful system of community care...As a Friend of Trieste and all that it stands for, please sign this petition and distribute it widely. For updates on this situation, please consult www.accoglienza.us." For the NPR article, "A public mental health model in Italy earns global praise. Now it faces its demise," click here. For the petition, click here. (Courtesy of Laura Van Tosh)

“Mental Health System: Open Letter to the Media” Seeks Signatures

“Everyone who believes that the problematic aspects of the mental health system are not adequately represented in the media is invited to sign this letter,” writes Yulia Mikhailova, who launched this initiative to educate the media. The letter begins: “We, a group of people with first-hand experience of the mental health system, write to express our concern about what we see as one-sided coverage of this system in the media and to draw the attention of civil rights organizations to the systemic discrimination that we witnessed and experienced. We, our loved ones, or inmates in the facilities where we worked, were exploited for monetary gain and victimized in various other ways. We saw how abuse, corruption, and exploitation were covered up, while victims and critics of the system were silenced and marginalized.” For a short version of the letter, which includes a link to a longer version, click here. Questions? Contact Yulia Mikhailova at yuliamikh@gmail.com.

COVID-19

CNN Offers “A Guide to Helping and Getting Help During the Coronavirus Crisis”

CNN writes: “The coronavirus pandemic is overwhelming, and one of the most excruciating parts for many people is the feeling of utter helplessness in the face of widespread suffering and hardship. CNN’s Impact Your World has compiled a list of donation opportunities and tips to help those affected by the crisis. Click on a category or scroll down to browse a list of organizations, resources and ideas. Need help? Most categories also include resources for financial, emotional or social support.” For the free guide, click here.

Seven Ways to Keep a Digital Copy of Your Vaccination Card on Your Smartphone

“You'll need proof of vaccination to go back to work or enter many restaurants, gyms and event venues, so keep your COVID-19 card handy.” This is the advice of CNET.com, a tech support website. Besides the obvious—taking a photo of the card to store on your phone—there are six other suggestions. For details, click here. (Courtesy of Yvonne Smith)

U.S. Surgeon General Creates Community Toolkit for Addressing Health Misinformation

"The U.S. Surgeon General’s Community Toolkit for Addressing Health Misinformation, developed in collaboration with the HHS Office of Evaluation Sciences (OES), provides specific guidance and resources for health care providers, educators, librarians, faith leaders, and trusted community members to understand, identify, and stop the spread of health misinformation in their communities." For information about the toolkit (a 22-page overview of health misinformation, and resources to stop it), and links to a “Talk to Your Community About Health Misinformation” Infographic, a “Health Misinformation Checklist” Infographic, and the Surgeon General's press release, click here.

OTHER OPPORTUNITIES AND RESOURCES

Lancet Offers Stakeholders Opportunities

Check out these opportunities for stakeholder involvement! (1) The Lancet Psychiatry Commission's "Lived Experience Hub" invites stakeholders to contribute blogposts to convey criticisms, concerns and/or ideas relevant to the work of the Commission. For details, click here. To submit a blog, email lancetcommissionpsychosis@gmail.com. (2) The Lancet Psychiatry Commission's "lived experience research group" is a new listserv focused on lived experience advocacy and activism on participatory psychosis research and related policy and practice. In part, this will serve as a sounding board for Lancet Commission work and a place to engage in dialogue about what needs to change. To join, email  lancetcommissionpsychosis@gmail.com. (Courtesy of Dr. Nev Jones)

The UIC Center’s Solutions Suite for Health & Recovery Offers Free Tools

"The UIC Center offers tools, curricula, and implementation manuals for free use in community-based programs, peer-run programs, or one's own life. You can introduce the entire complement of products to foster improved health, wellness, and mental health recovery. Or, you can choose the ones that will work best for your program or your life. The Suite was developed in collaboration with Collaborative Support Programs of New Jersey. The UIC Center is funded by NIDILRR (National Institute on Disability, Independent Living, and Rehabilitation Research). For the UIC Solutions Suite for Health & Recovery, click here. (Courtesy of Peggy Swarbrick via Jacek Haciak)

Poetry Coalition to Launch "Poetry & Disability Justice" Initiative

"This year, the 25+ organizations nationwide that comprise the Poetry Coalition will launch 'The future lives in our bodies: Poetry & Disability Justice,' the coalition’s sixth annual programming initiative...Poetry Coalition members aim to demonstrate how poetry can inspire questions in their communities about disability justice and spark increased engagement with this important theme. Member organizations are committed to offering programming that is accessible and that includes disabled, neurodivergent, and d/Deaf poets and those of diverse racial, ethnic, and gender identities, backgrounds, and communities. All organizations and others interested are invited to create programs on this theme in 2022 and share their efforts using the hashtags #DisabilityJustice and #PoetryCoalition. For some additional resources to assist with programming, particularly in creating accessible programming, click here.

"Psychiatrist with Philosophical Interests" leads "Conversations in Critical Psychiatry," a Psychiatric Times Series

Awais Aftab, who describes himself as a "psychiatrist with philosophical interests" in his Twitter bio, leads "Conversations in Critical Psychiatry," which, he says, "explores critical and philosophical perspectives in psychiatry and engages with prominent commentators within and outside the profession who have made meaningful criticisms of the status quo." Among those interviewed are Allen Frances, M.D., author of Saving Normal; Sandra Steingard, M.D., and G. Scott Waterman, M.D., on "Integrating Academic Inquiry and Reformist Activism in Psychiatry"; Susannah Cahalan, author of Brain on Fire: My Month of Madness, on "50 Shades of Misdiagnosis"; Kathy Flaherty, J.D., executive director of the Connecticut Legal Rights Project, Inc., on "Reconsidering Care and Coercion in Psychiatry"; Nev Jones, Ph.D., on "Phenomenology, Power, Polarization, and the Discourse on Psychosis"; Dainius Puras, M.D., on "Global Psychiatry's Crisis of Values"; and many others. For the archived interviews, click here.

Virtual Group Works to Advance Peer Research Capacity, Leadership, and Involvement

Nev Jones, PhD—a strong advocate for building research capacity, leadership, and involvement among peers, survivors, and service users—leads a virtual group dedicated to this effort. Dr. Jones—assistant professor, School of Social Work, University of Pittsburgh—was part of the team that developed “User/Survivor Leadership & Capacity Building in Research: White Paper on Promoting Engagement Practices in Peer Evaluation/Research (PEPPER),” published by the Lived Experience Research Network. For the white paper, click here. Anyone interested in joining the virtual group can email Nev at nev.inbox@gmail.com.

Mad In America Invites You to Submit Your Personal Story (Within Certain Guidelines)

Mad In America writes: “A ‘personal story’ is defined as your story of being in relationship to psychiatry and/or the mental health system, whatever that means to you. It might involve your opinions and analysis of what happened to you, as well. It can be about a specific event, or about your overall journey, provided it fits the length requirements (1,500 to 3,000 words) and has a narrative arc. The piece should be about your personal experiences, not psychiatry or the mental health system in general. Submissions should fall under the theme of rethinking psychiatry and the mental health system, and should be original works not previously published elsewhere. For examples of the types of stories we publish, view our personal stories archive here.” For more information and/or to submit a personal story, click here.

PsychAlive Offers a Variety of Webinars on Mental Health Topics, Many Free, Others $15

PsychAlive is a free, nonprofit resource created by the Glendon Association, whose mission is “to save lives and enhance mental health by addressing the social problems of suicide, violence, child abuse and troubled interpersonal relationships.” Psychalive.org offers a variety of upcoming and archived webinars, many of which are free, while others are available for $15. Among the myriad topics are “From Anxiety to Action: How to Stay Sane While Fighting Climate Change,” “How to Overcome Insecurity,” “Powerful Tools to Fight Depression,” and “Understanding and Overcoming Adverse Childhood Experiences.” To check out the webinars, click here.

“Where DNA and Medications Meet”

Not all drugs are effective for all people; therapeutic response rates for many drugs are only 50%-75%. “OneOme, co-founded by [the] Mayo Clinic, provides evidence-based pharmacogenomic solutions that help improve patient outcomes and reduce costs through more personalized medication decisions.” OneOme’s RightMed Test is “a doctor-ordered pharmacogenomic (PGx) test that analyzes your DNA and provides your doctors with genetic information to help them determine how you may respond to certain medications. The results may help your doctors reduce medication trial and error, minimize risk of side effects, save you time and money, and make more informed prescribing decisions. Because your DNA doesn’t change over time, your doctors can use your test results to make more personalized medication decisions for you over the course of your lifetime.” For more information, click here. (Courtesy of Robin Osborne)

Lived Experience Leadership Features 12 Years of Research Studies...

"Lived Experience Leadership features 12 years of research studies focused on this workforce in a range of settings, to foster a better of understanding and respect for Lived Experience as a distinct discipline and build clarity on what makes this work unique and valuable. Importantly, this body of research was led by Lived Experience researchers. Lived Experience Leadership provides clear and simple to read research summaries to allow community members and people employed within various industries the opportunity to easily understand and apply strategies within their own workplace. This website also includes easy to download definitionsaudio/visual resources, and key work by other Australian and International sources. The website will continue to grow to include larger collections of our research as well as other key work. For the Lived Experience Leadership website, click here. (Courtesy of Jacek Haciak)

Doors to Wellbeing Offers “State Selfies: A Picture of Peer Services Reported by Peers”

Doors to Wellbeing’s “Peer Album” is a directory of nearly 600 peer-run organizations throughout the U.S. They invite updates and offer instructions for providing them and add, “If your entry has not made this first draft, we encourage you to re-submit.” For the 158-page directory, click here.

Disclaimer: The Clearinghouse does not necessarily endorse the opinions and opportunities included in the Key Update.

About The Key Update

The National Mental Health Consumers’ Self-Help Clearinghouse is now affiliated with the Temple University Collaborative on Community Inclusion.

The Key Update is the free monthly e-newsletter of the National Mental Health Consumers’ Self-Help Clearinghouse. Volume 18, No. 12, June 2022. For content, reproduction or publication information, please contact Susan Rogers at selfhelpclearinghouse@gmail.com. Follow Susan on Twitter at @SusanRogersMH

 

Key Update, May 2022, Volume 18, Number 11

The National Mental Health Consumers’ Self-Help Clearinghouse is affiliated with the Temple University Collaborative on Community Inclusion.

TO CONTACT: THE CLEARINGHOUSE: SELFHELPCLEARINGHOUSE@GMAIL.COM  … SUSAN ROGERS: SUSAN.ROGERS.ADVOCACY@GMAIL.COM … JOSEPH ROGERS: JROGERS08034@GMAIL.COM 

The Key Update is compiled, written, and edited by Susan Rogers, Director, National Mental Health Consumers’ Self-Help Clearinghouse.

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NOTE: The "FROM PREVIOUS EDITIONS OF THE KEY UPDATE BUT STILL FRESH!" Department, which is directly below the monthly Criminal Justice Digest, includes items that had been posted "above the fold" in earlier editions but are still relevant. These include ongoing research studies that are still seeking participants, as well as upcoming webinars and conferences, and other items of continued interest. Don't miss it!

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Looking For an Effective Mental Health App? The NY Times Offers Guidance

There are thousands of mental health apps, “but not all of them are safe or effective,” The New York Times writes. They are not a substitute for therapy, “and especially not if you have impairing symptoms.” Also, “most mental wellness apps are not subject to government oversight. Thus, some apps make unsubstantiated marketing claims” and/or “offer inaccurate and potentially harmful information…In addition, there is no requirement that all wellness apps conform to the Health Insurance Portability and Accountability Act” (HIPAA). In fact, one study “found 29 of the 36 top-ranked apps for depression and smoking cessation shared user data to Facebook or Google, but only 12 accurately disclosed this in their privacy policies.” Two websites that evaluate mental health apps are Mind Apps and One Mind PsyberGuide. For The New York Times article--which includes some recommendations of helpful apps, including those that are free--click here.

Free Webinar: “The Role of a Peer within a Clinical Team,” with Pat Deegan, PhD

On May 3, 2022, at 1 p.m. ET, peer movement activist Pat Deegan will present a 90-minute webinar on “The Role of a Peer within a Clinical Team.”Peer specialists are not clinicians, yet work as members of clinical teams. What are the role responsibilities that colleagues can expect peer specialists to fulfill? What are signs of drift from the role of peer specialist and what does assimilation into clinical look like? Pat Deegan, PhD, will discuss the unique and unduplicated contribution of peer specialists working as members of clinical teams. This webinar[—sponsored by the SAMHSA-funded Mental Health Technology Transfer Center Network—]will be relevant to not just peer specialists but to all members of the clinical team.” To register, click here.

MFI to Host Judi's Room on “Informed Consent: Forcing Doctors to Warn Their Patients About Psychiatric Drugs"

On May 4, 2022, at 6 p.m. ET, MindFreedom International (MFI) will host a two-hour Judi's Room discussion on “Informed Consent: Forcing Doctors to Warn Their Patients About Psychiatric Drugs." A featured presenter will be Roxanne Stewart-Johnson, who has launched "a campaign to introduce a bill into the Ontario House of Parliament mandating that all Canadian medical providers who prescribe ‘anti-psychotics’ fully inform their patients of the risks associated with those drugs in advance of treatment." Roxanne is "a mother of two who documented her dramatic flight from Jamaica to avoid forced psychiatric drugging, then documented the extraordinary legal battle she waged to win asylum and permanent residency in Canada." For more information and to register, click here.

CAFE TAC to Host Mental Health Cross-Disability Community of Practice on May 4, 2022

"The CAFÉ TA Center invites you to join a conversation that will explore the intersection of psychiatric disabilities and intellectual or developmental disabilities, including common experiences and priorities, and ways to develop a shared vision of person-centered systems of care. This conversation began with a webinar that was hosted on March 30. For the recording, click here. It continues in a Community of Practice that met on April 6th and April 20th, and will resume on Zoom at 2 p.m. ET on May 4, 2022. For more information and the Zoom link, click here

Free Webinars: Disability Rights California to Present Two Peer-focused Webinars

On May 3, 2022, at 4 p.m. ET (1 p.m. PT), Disability Rights California (DRC) will present a free webinar on “Perspectives on Mental Health: A Peer Discussion”; and on May 10, 2022, at 2 p.m. ET (11 a.m. PT), DRC will present "Peer Self-Advocacy Program: Sharing Our Unique History." About the May 3rd webinar, DRC writes: "In honor of Mental Health Awareness Month, we have invited a speaker to share [their] story of hope and affirm that having a mental illness is not a barrier to living a fulfilled life...This webinar is presented from a peer perspective (original emphasis)." And on May 10, DRC will present “Peer Self-Advocacy Program: Sharing Our Unique History.” DRC writes: "Join us as we share about the history, accomplishments and future goals of the Peer Self-Advocacy Program. In addition to our self-advocacy services, we will describe our work with the California Memorial Project (CMP) and our efforts to inform people about individuals with mental health and developmental disabilities who lived and died in state institutions..." For more information and to register for the May 3rd webinar, click here. For more information and to register for the May 10th webinar, click here.

Survey Seeks Respondents Who Have Taken Mental Health Courses Involving Their Own Diagnoses

Have you taken a mental health course that covers a diagnosis you have? If so, you are invited to participate in a brief, anonymous, online survey--designed by a University of Pittsburgh MSW student--about what it's like for students with lived experience to study their own diagnoses in a classroom. The survey covers students' experiences of studying such subjects as "abnormal psychology," "psychopathology," and diagnosis and assessment when their own diagnoses are covered. "The goal of the project is to better understand what it feels like to take courses in which someone’s diagnosis is being taught/defined/discussed. There is currently no literature or reporting on the experiences of students in the above circumstances, or the associated impact." Interested? Please click here. Questions? Please email the project lead, Charlie Clement, at cjc204@pitt.edu

Free Webinar: TU Collaborative’s Parenting Through Leisure Series Continues May 5

On May 5, 2022, at 1 p.m. ET, the Temple University Collaborative on Community Inclusion will continue its Parenting Through Leisure webinar series with its second one-hour webinar, which will focus on planning family community participation. The TU Collaborative writes: “This webinar series features strategies parents who experience mental health issues can use to spend quality time with their children, and ways to use family leisure to improve connection and communications.” The second webinar will cover “how to identify family interests, strategies for overcoming barriers, and how to focus on and take advantage of facilitators.” For more information and to register, click here.

Free Webinar: "Working Through Psychosis and Extreme States: An Alternative to Suppression"

On May 11, 2022, at 12 p.m. ET, ISPS-US (International Society for Psychological and Social Approaches to Psychosis-US Chapter) will present a 90-minute webinar on "Working Through Psychosis and Extreme States: An Alternative to Suppression." ISPS-US writes: "Mainstream mental health treatment for 'psychosis' in the U.S. focuses on the suppression of non-ordinary experiences, which are framed as symptoms of illness. But is this the most helpful approach?...In this webinar, Gogo Ekhaya Esima and Emma Goude will discuss the very different possibility of 'working through.' Instead of suppressing them, Gogo and Emma have found ways to engage with their extreme experiences, to find constructive meaning in them, and then to rebuild their lives in ways that are enriched by all that they have gone through." For more information and to register, click here. (Courtesy of Kevin Fitts)

Free Conference: First Annual (Virtual) African American Behavioral Health Conference to Be Held May 18, 2022

The theme of the first annual (virtual) African American Behavioral Health Conference is Rise Above: Resilience and Recovery.  The conference, based in Portland, Oregon, will be held via Zoom on May 18, 2022, from 11 a.m. to 8 p.m. ET (8 a.m. to 5 p.m. PT). The topics covered include “Racism as a Public Health Crisis,” “My Story and How I Am Using My Position to RISE ABOVE Barriers to recovery,” “SUD and Domestic Violence Within the African American Community,” and “DCJ Through the Lens of the African American Program,” followed by an African-American panel discussion. The MC will be Larry Turner, president of Fresh Out Community-based Reentry Program. Questions about the conference? Contact Larry Turner at lasa1230na@gmail.com. To register, click here(Courtesy of Jacek Haciak)

Online Symposium Asks, "How Can We Imagine the Future of Psychedelic Therapies?"
From May 23 through May 26, 2022, the Ethnopharmacologic Search for Psychoactive Drugs (ESPD) will present a four-day livestream symposium. ESPD writes: "How can we imagine the future of psychedelic therapies? How can ancestral knowledge bring depth to scientific research? What does sustainability look like for plant medicines through the indigenous perspective?" For the program, click here. (The times are in GMT+1.) For the fee schedule, click here. (Minimum contribution: $10; contributions over $250 are tax-deductible. A limited number of scholarships are available; to request a scholarship, email espd@mckenna.academy.) (Courtesy of Kevin Fitts)

Free Webinar: "If You Think Work Is Bad for People with Mental Illness, What About Poverty, Unemployment, and Social Isolation?"

On May 24, 2022, at 12 p.m. ET, NYAPRS will host a webinar presented by Joe Marrone, who, NYAPRS writes, over 20 years ago “emerged as a leading proponent for employment for people with psychiatric disabilities with these famous words:  ‘If You Think Work Is Bad for People with Mental Illness, What About Poverty, Unemployment, and Social Isolation?’…NYAPRS is very pleased to host Joe in a new webinar by the same name in which he'll advance strategies on how to avoid long-term unemployment and to promote employment as a key component of recovery within systems of care. This webinar is for everyone, including people looking for employment, direct care providers and administrators.” To register, click here.

Free Webinar: "Ethics in Peer Support," to Be Sponsored by Doors to Wellbeing
On May 31, 2022, at 2 p.m. ET, Doors to Wellbeing will present a free, one-hour webinar on "Ethics in Peer Support." Doors to Wellbeing writes: "This webinar is designed as an overview, from a national level, of ethics as they pertain to peer specialists around the country. Some state specifics will be discussed as information is available. It will cover how to draw on our ethical knowledge to navigate common difficult situations facing peer specialists." The presenter will be Crystal Gery-Agee, a recovery specialist with the Northwest Florida Health Network. For more information and to register, click here.

2022 N.A.P.S. Conference, 10/19-21, Issues Its Call for Proposals! 

The 2022 conference of the National Association of Peer Supporters will be held October 19-21, 2022, at the Sheraton DFW (at the Dallas/Ft. Worth International Airport). The conference theme is The Value and Values of Peer Support. "The 2022 N.A.P.S. conference will be the first time we gather in person since 2019. I can't wait to see you there! Join us for networking, education, and celebration of each other," said Jessi Davis, N.A.P.S. board president. For the Call for Proposals, click here.

South Southwest MHTTC First Episode Psychosis (FEP) Conference on June 1-3, 2022

"We invite those with a commitment to transforming FEP care, including those with lived experience, family members, providers, and researchers, to join us for the South Southwest MHTTC First Episode Psychosis Conference 2022 to celebrate successes and imagine a future of continued growth and accountability on June 1-3, 2022, either in person in Austin, TX ($75) or virtually (free). This event[—whose theme is Re-envisioning FEP Services with Youth and Young Adults—]will include keynotes, panels, informal networking, and collaborative dialogue groups. We place particular emphasis on developments related to diversity of perspective, including incorporating lived experiences, marginalized or minoritized groups, and other positionalities (culture, class, gender, age, religion, sexual orientation, childhood lived experiences, contexts, worldview, perspectives, etc.). We hope to see you there!" For registration and more information, click here.

"Announcing the Publication of the First Issue of Including Disability, one of the Ontario Tech Open Access Journals following the 2021 Disability Summit"
"This free, open-access journal (click here) is devoted to facilitating dialogue across disabilities, disciplines, professions, identities, and boundaries. It welcomes scholarly research, personal reflections, historical essays, policy analysis, artistic creations, educational innovations, professional best practices, and any other expressions that articulate, illuminate, and improve understandings of disability and the experiences of disabled people. Including Disability brings the ethos of the Disability Summit into a convenient electronic journal, which will serve as a platform for ongoing interaction and cross-pollination for research, analysis, invention, and expression about disability. This inaugural issue of Including Disability features expanded versions of the keynote talks by Dr. Ashley Shew and Dr. Angel Love Miles from the 2021 Disability Summit among its contents. If you have suggestions, questions or want to help, the editors of Including Disability can be reached at includingdisabilityjournal@gmail.com. Feel free to tag us in any of your twitter posts at @UMDDisabilityS1."

NAMI to Host a Virtual Conference June 14-16, 2022

The theme of virtual “NAMIcon,” June 14-16, 2022, is “Together for Mental Health.” NAMI writes: “NAMICon will offer “Robust programming with 30+ workshops built around five tracks focused on mental health research and treatment; youth and young adults; transforming crisis response; promoting equitable mental and emotional support for underserved communities; and best practices for NAMI State Organizations and NAMI Affiliates.” The cost is “only $10 for students and peers, $15 for NAMI members and $25 for non-members.” For the full schedule and to register, click here.

Three Articles Focus on the Importance of Service Users in Mental Health Research; a Fourth Article Welcomes a New "Lived Experience" Feature in Psychiatric Services

Three articles, published over the last 12 years, highlight the value of service users in mental health research. In "Mental Health Service User Leadership in Research," the authors write: "Research by service users has produced new knowledge and contributed to the development of innovative methods of improving the lives and advancing the human rights of people with mental health problems. Service user research has also contributed to changing how mental ill health is conceptualized: it has challenged a model of mental illness as simply deficit and pathology..." The other articles support and supplement this position. For "Mental Health Service User Leadership in Research," by Felicity Callard and Diana Rose, click here. For "Service user leadership in priority setting: an end in itself as well as a means to an end," by Dr. Nev Jones, click here. And for "Patient and public involvement in health research: Ethical imperative and/or radical challenge?" by Diana Rose, click here. In addition, in "Lived Experience Leadership in Peer Support Research as the New Normal," Dr. Jones welcomes Psychiatric Services’ new "Lived Experience Inclusion and Leadership" column. "To the best of my knowledge," she writes, "[this] column is also the first peer-reviewed publication on peer support in the journal, led and coauthored in its entirety by lived experience leaders within the peer support movement, most of whom have also worked as peer specialists." For the article, click here.

Free Webinar: “Recognizing the Inner Voice: Breaking the LGBTQIA+ Conversation Barrier”

On June 1, 2022, at 12 p.m. ET, NephU and PsychU will host a free webinar entitled “Recognizing the Inner Voice: Breaking the LGBTQIA+ Conversation Barrier.” They write: “The month of June is Pride Month, and throughout the world the LGBTQIA+ communities come together to celebrate sexual and gender diversity, and to raise awareness of the ongoing pursuit for equality. NephU and PsychU will be joining the community awareness efforts. During this webinar, our speakers begin by sharing perspectives of coming out, identifying fears of self-disclosure, and using affirmative language to improve personal and professional interactions with LGBTQIA+ individuals.” For more information and to register, click here.

“Peer Worker-supported Transition from Hospital to Home—Outcomes for Service Users”

To study how peer support workers might help individuals in their transition from psychiatric hospitalization back to the community, researchers in New South Wales, Australia, established a statewide Peer Supported Transfer of Care (Peer-STOC) program “to enhance recovery-focused supports available during this transition period.” Analyzing the results of data from 82 questionnaires and 58 individual in-depth interviews, the researchers concluded that the Peer-STOC program “enhanced people’s experience in hospital, eased their transition from hospital and assisted with people recovering community-based relationships, activities, and routines.” They added that "[t]hese findings...evidence that other workers within the mental health system recognize the positive impact that this peer-delivered program has had on the recovery outcomes of service-users.” For the abstract of the article, published in the International Journal of Environmental Research and Public Health, cclick here. (Courtesy of Karen Machin via Jacek Haciak)

Free Book: Reimagining Crisis Support: Matrix, Roadmap and Policy

Reimagining Crisis Support: Matrix, Roadmap and Policy, available for free download, “aims to shift the conversation about personal crisis from one based in mental health discourse to one based in a social model of disability and human rights. The book's primary thesis is that crisis support can be reimagined as support for decision-making and maintaining an independent life in the community—as provided for under Articles 12 and 19 of the Convention on the Rights of Persons with Disabilities.” The author, Tina Minkowitz, “is a theorist and practitioner of international human rights law from a survivor-of-psychiatry perspective.  She contributed significantly to the drafting of the Convention on the Rights of Persons with Disabilities and to its subsequent [and ongoing] interpretation and application. From 2002-2015, she represented the World Network of Users and Survivors of Psychiatry in various capacities. She is President of the Center for the Human Rights of Users and Survivors of Psychiatry, which she founded in 2009.” For more about the book, read “Ending Coercive ‘Help’: A Review of ‘Reimagining Crisis Support,” by Mad In America (click here). To download a free copy, click here. (Courtesy of Kevin Fitts)

ISPS-US Issues Call for Proposals for its (Hybrid) 2022 Conference, to Be Held November 4-6

May 30 is the deadline to submit a workshop proposal for the 2022 ISPS-US (International Society for Psychological and Social Approaches to Psychosis—U.S. Chapter) conference, to be held November 4-6 in Sacramento, California, as well as online. The conference theme is Opportunity Through Experience: Psychosis, Extreme States, and Possibilities for Transformation. ISPS-US writes: “People with lived experience, family members, clinicians, and researchers are all invited to propose presentations that promote mutual collaboration and respect, and can allow us to offer each other both greater understanding and more light. We especially welcome proposals from members of marginalized groups whose experiences have included systemic as well as relational traumas and challenges. Proposals are due by May 30.” For more information and to submit a proposal, click here. (Courtesy of Jacek Haciak)

ISEPP Invites Mental Health Practitioners and Academicians to Sign Its Open Letter to the Major U.S. Mental Health Professional Organizations

The Coalition Against Medicalized Psychology & Psychiatry (CAMPP)—the action committee of the International Society for Ethical Psychology & Psychiatry (ISEPP)—asks mental health practitioners and academicians worldwide “to join us in signing an open letter to the American Psychiatric Association, American Psychological Association, American Counseling Association, National Association of Social Workers, and American Association for Marriage and Family Therapy to provide evidence for framing emotional distress and troublesome behaviors as illnesses or defects in a person’s biology—and, if they can't, to publicly reject the medical model of mental disorder. With this we hope to raise awareness of the harmful effects of that model. Send me your name, credentials, profession, position, city, state, and country to be appended to the letter. Pass this email on to others in your network and ask them to sign too. Our plan is to share the above organizations' responses (or lack of responses) with The Washington Post and The New York Times science and/or health editors.” For the letter, click here. (Courtesy of Elizabeth R. Stone) (Note: For another ISEPP petition, see the “…But Still Fresh” Department, below the Criminal Justice Digest.)

16 Documentaries and 12 Podcasts Explore Mental Health Issues

If you have some time to spare, check out "16 of the Most Eye-Opening Documentaries About Mental Health" and "12 Mental Health Podcasts to Listen To Between Therapy Sessions" on PureWow.com. Two of the documentaries are available for free on YouTube: "Nadiya Hussain: Anxiety and Me" (2021), about the former Bake Off winner's struggle with panic attacks; and "Demi Lovato: Simply Complicated" (2017). The other films are on Amazon Prime, Apple TV, HBO Max or Hulu. For the 16 documentaries, click here. The podcasts "cover everything from depression and anxiety to grief and addiction." For the 12 podcasts, click here(Courtesy of Surviving Spirit Newsletter and Mike Skinner)

Early Movement Leader Su Budd Has Died at Age 79

Su Budd, a lifelong mental health activist, died on April 2, 2022. A brief obituary notes that she “helped launch many support networks throughout the years, dedicating her time to help others in need. Her caring nature truly made a difference in other people’s lives.” Su was a co-author, with Howie the Harp and Sally Zinman, of Reaching Across: Mental Health Clients Helping Each Other, published in 1987 by the California Network of Mental Health Clients. She is survived by her husband, Dennis Budd—also a movement activist—whom she married in 1969. A native of Connecticut, Su moved to Kansas City, Kansas, with her husband in 1971. Her obituary (click here) includes a photograph of her with her calico cat. In a related story, to honor some of the movement leaders who had recently died, the National Coalition for Mental Health Recovery (NCMHR) created short video tributes, available on the NCMHR Youtube Channel, RecoveryandHope. If you would like to contribute a short video in memory of Su Budd or others who have died since these videos were recorded, please contact Judene Shelley at jshelley@gmail.com. 

The May 2022 Digest of Articles Offering Healthy Lifestyle Advice

For “The Pandemic’s Gardening Boom Shows How Gardens Can Cultivate Public Health,” click here. (Courtesy of Jacek Haciak) For "How to reduce loneliness: Meaningful activities can improve health, well-being: A new study demonstrated that engaging in meaningful, challenging activities during free time can reduce people's loneliness and increase their positive feelings," click here. For "Meditations for Uncertain Times," click here.

The May 2022 Digest of Articles about the Criminal Justice System, in Which Many Individuals with Mental Health Conditions Are Incarcerated (and the Key Update continues after this Digest)

For “Georgetown degree program launches for Maryland prisons,” click here. For “Pilot program will train women offenders nearing release for customer experience careers,” click here. For “How a Missouri prison became a training ground for the next wave of computer coders,” click here. For “Settlement reached in suit over ‘repulsive’ Fulton jail conditions: A federal judge has approved a settlement that ends litigation that showed mentally ill women were being detained in squalid conditions at the South Fulton Jail,” click here. For “Cops Could Use First Aid to Save Lives. Many Never Try. Most officers get training to respond to injuries, but are often not required to use it,” click here. For “Out of Prison, TikTok Influencers Are Reshaping How We Think About Life Behind Bars. But a dearth of content creators of color raises questions about the app’s algorithm,” click here. For “Beyond the Era of Punitive Excess: Reckoning with our overreliance on excessive punishment requires a commitment to truth-telling,” click here. For “What the Survey of Prison Inmates tells us about trans people in state prison. We look at the experiences of 29 incarcerated transgender people before and during their incarceration,” click here. For “For a Child Who Killed Their Child, Parents Chose Restorative Justice,” click here. For “Tulsa police respond after video shows arrest of woman in mental health crisis,” click here. For “Broken ‘compassionate release’ rules strand Pa.’s sickest prisoners as costs to taxpayers soar: There is bipartisan agreement that it’s too hard for people serving life in prison to get out when they are aging and ailing. But two proposals to change that face an uncertain future,” click here. For “Judge Awards $1.375M in an Inmate Suicide at Halawa Correctional Facility: The state admitted liability in the case of a 28-year-old prisoner who was on ‘observation status’ in the medical unit, but hung himself anyway,” click here. For “Opinion: In prison, having your period can put your life in danger,” click here.

FROM PREVIOUS EDITIONS OF THE KEY UPDATE BUT STILL FRESH!

(Virtual) International Conference on Psychiatric Drug Withdrawal Scheduled for May 6-7, 2022

The first conference of the International Institute for Psychiatric Drug Withdrawal is scheduled for May 6-7, 2022 and will be held online due to the Covid pandemic. (It was originally planned to be held in Reykjavik, Iceland.). “The three themes underpinning the conference are safe withdrawal from psychiatric medication, alternatives to psychiatric medication, and the need to question the dominance of medication in mental health care.” Confirmed speakers include Robert Whitaker (journalist and founder of Mad in America), Professor Joanna Moncrieff (psychiatrist and researcher), Laura Delano (co-founder of the Inner Compass Initiative and a person with lived experience), Dr. Carina Håkansson (founder of Family Care Foundation and The Extended Therapy Room Foundation), and Dr. Magnus Hald (Psychiatrist at the Drug-Free Treatment Unit, Norway). For more information, click here.

Peer Advocates Over 50 Years Old Are Invited to a Weekly Empowering Support Group

"People over 50 who are mental health lived-experience advocates, change makers, visionaries, and current status quo challengers" are invited to join "a weekly, open, upbeat, peer-support empowering environment for seasoned peers with lived experience who are active, and were active, as advocates for positive change," the WiseCrackers write. The goal of the recently launched group is "to support mental health advocates over 50 years of age with pure peer support practices based on natural curiosity, acceptance, humor, and positive networking." The free, 90-minute Zoom meetings are held on Mondays at 7 p.m. ET, 6 p.m. CT, 5 p.m. MT, and 4 p.m. PT. The meetings are currently co-facilitated by "East and West Coast Peers" and sponsored by the Community for Positive Aging. To register and to review the WiseCracker Principles of support, click here. Questions? Contact info@choiceheals.com or 503.208.0065.

BU Seeks Peer Support Specialists for a Research Study

The Center for Psychiatric Rehabilitation at Boston University is developing and testing the effectiveness of a coaching service called Coaching and Advancement for Peer Providers (CAPP) “to increase organizational commitment and job satisfaction and decrease turnover among mental health peer providers.” BU CPR writes: “We need Peer Support Specialists (PSS) to participate in our study. Who can participate? People who are in a paid job as a Peer Support Specialist providing support to other people with mental health challenges, who are employed at least 10 hours per week, who have worked for the past six months in a mental health program, and who are experiencing stress because of challenges in the workplace. The study involves 16 one-hour sessions of coaching over a four-month period designed to help you with your job, meeting online (through Zoom, for example) with your coach, and filling out surveys one time before coaching starts and three additional times. You will have a 50/50 chance of getting a coach or having a one-time meeting to give you information about challenges at work. Benefits? You may learn strategies to help make work less stressful.” For more information, click here. For questions, contact Principal Investigator E. Sally Rogers, Sc.D., at erogers@bu.edu or 617-353-3549.

MHA Offers "May Is Mental Health Month" Toolkit and Additional Resources

"This year, the theme of MHA’s 2022 Mental Health Month Toolkit is 'Back to Basics,'" Mental Health America writes. "Our goal is to provide foundational knowledge about mental health & mental health conditions and information about what people can do if their mental health is a cause for concern. Our toolkit includes sample materials for communications and social media as well as printable handouts on the following topics: Starting to Think About Mental Health, What Plays a Role in Developing Mental Health Conditions, Maintaining Good Mental Health, Recognizing When You Need Help with Your Mental Health, and What To Do When You Need Help. The toolkit will be available in Spanish in April." For more information and for a link to download the free, 34-page toolkit along with other resources, including toolkits of past years and "Tools 2 Thrive," click here.

NARPA to Host Its 2022 Conference October 26-29

The National Association for Rights Protection and Advocacy (NARPA) 2022 Annual Rights Conference will be held October 26-29 at the Doubletree Newark Airport in Newark, New Jersey. The conference will address "strategies, ideas, programs, and emerging practices," in connection with the NARPA mission--"to support people with psychiatric diagnoses to exercise their legal and human rights, with the goals of abolishing forced treatment and ensuring autonomy, dignity and choice." For more information, click here.

The UIC Center’s Solutions Suite for Health & Recovery Offers Free Tools

"The UIC Center offers tools, curricula, and implementation manuals for free use in community-based programs, peer-run programs, or one's own life.​ You can introduce the entire complement of products to foster improved health, wellness, and mental health recovery. Or, you can choose the ones that will work best for your program or your life. The Suite was developed in collaboration with ​Collaborative Support Programs of New Jersey. The UIC Center is funded by NIDILRR (National Institute on Disability, Independent Living, and Rehabilitation Research). For the UIC Solutions Suite for Health & Recovery, click here. (Courtesy of Peggy Swarbrick via Jacek Haciak)

2022 Virtual PEER-A-PALOOZA Peer Summit to Be Held May 7

Helping to Unite by Generating Mental Empowerment (HUG ME) Ink will host PEER-A-PALOOZA on Saturday, May 7, 2022, from 1 p.m. to 5 p.m. CST via Zoom. "Our 2022 theme is: Creating a Zest for Life Through Growth, Resilience, Recovery and Community," the organizers write. "We believe that unifying talented peers of diverse backgrounds provides a unique opportunity to interact and propose stronger solutions together." Registration is $25; it's free for peer specialists. Workshop topics include How to Address Isolation, Autism Spectrum and Alternative Treatments, Personal Experiences, and a Writing Workshop. To register, click here.

These Three National Mental Health Conferences (Among Others) Are Coming Up in 2022

The annual meetings of the American Psychiatric Association, Mental Health America, and the International Conference on Trauma and Mental Health will take place in 2022. The American Psychiatric Association 2002 annual meeting, to be held both in-person in New Orleans May 21-25 and online June 7-10, will focus on the theme of "Social Determinants of Mental Health." For more information, click here. The theme of Mental Health America's 2022 annual conference, to be held June 9-11 at the Hyatt Regency on Capitol Hill and live-streamed, is "Forward Together: Recovery, Healing, Hope." For more information, click here. The International Conference on Trauma and Mental Health will take place November 3-4, 2022, in San Francisco. For more information, click here.

Supported Education Survey Needs Your Help

Do you operate a program that provides dedicated supported education services for individuals with psychiatric disabilities/mental health conditions? If so, you are invited to complete the survey at the link below. The primary goal of the survey is to help create a National Supported Education Database (NSEdD) that will be "a searchable listing of diverse supported education programs and services for individuals experiencing psychiatric disabilities and/or mental health challenges...across the US and its territories." The NSEdD project is sponsored by the Substance Abuse and Mental Health Services Administration (SAMHSA) and co-administered by the five SAMHSA-funded national consumer and consumer-supporter technical assistance centers, in collaboration with research partners Drs. Nev Jones (University of Pittsburgh) and Mark Salzer (Temple University). For a link to the survey, which includes a definition of supported education, click here. For a flyer with information about the survey, click here.    

National Survey on Student Rights, Discrimination, and Accommodations in Higher Education Seeks Respondents  

"Have you experienced psychiatric disability-based discrimination or the denial of an accommodation in a postsecondary institution in the United States? Interested in informing national advocacy focus on psych disability rights in higher ed? Mental Health America (lead: Kelly Davis) and collaborators Dr. Nev Jones (University of Pittsburgh), Stefanie Kaufman-Mthimkhulu (Project LETS) and Brit Vanneman Esq. (Bazelon Center for Mental Health Law) have developed "a survey aimed at providing a more comprehensive understanding of student experiences of campus-based discrimination, mandated leaves of absence, and/or denial of academic, administrative and/or student-work accommodations in the U.S. Data will be used to inform national advocacy efforts and future projects, and in reports, presentations and publications." For eligibility and to access the survey, click here.

If You've Had, or Been Labeled with, "Negative Symptoms" in the Context of Psychosis...

"If you have experienced or been labeled with 'negative symptoms' in the context of psychosis, please consider contributing an anonymous account of your views and experiences," Dr. Nev Jones writes. "Currently, there is nowhere one can go to find lived experience perspectives/accounts on this topic—even though 'negative symptoms' regularly feature in research and clinical trials. Help us change this!" This survey is a companion to Psychosis Outside the Box; for that survey, click here. For more information and/or to share your story about "negative symptoms," click here.

Poetry Coalition to Launch "Poetry & Disability Justice" Initiative

"This year, the 25+ organizations nationwide that comprise the Poetry Coalition will launch 'The future lives in our bodies: Poetry & Disability Justice,' the coalition’s sixth annual programming initiative...Poetry Coalition members aim to demonstrate how poetry can inspire questions in their communities about disability justice and spark increased engagement with this important theme. Member organizations are committed to offering programming that is accessible and that includes disabled, neurodivergent, and d/Deaf poets and those of diverse racial, ethnic, and gender identities, backgrounds, and communities. All organizations and others interested are invited to create programs on this theme in 2022 and share their efforts using the hashtags #DisabilityJustice and #PoetryCoalition. For some additional resources to assist with programming, particularly in creating accessible programming, click here.

"Are You Between the Ages of 21 and 60 and Drink Alcohol?"

"Researchers at the National Institutes of Health (NIH) are seeking adults--[both smokers and non-smokers]--to study whether a gene and smoking may affect drinking alcohol. Volunteers should be healthy and drug-free, and not seeking treatment for alcohol-related problems. Research participation includes three outpatient visits at the NIH Clinical Center in Bethesda, MD; alcohol consumption; brain scans (MRI), blood draws, and filling out questionnaires. There is no cost to participate and compensation may be provided." For more information, click here. (Courtesy of Fran Hazam)

U.S. Surgeon General Creates Community Toolkit for Addressing Health Misinformation

"The U.S. Surgeon General’s Community Toolkit for Addressing Health Misinformation, developed in collaboration with the HHS Office of Evaluation Sciences (OES), provides specific guidance and resources for health care providers, educators, librarians, faith leaders, and trusted community members to understand, identify, and stop the spread of health misinformation in their communities." For information about the toolkit (a 22-page overview of health misinformation, and resources to stop it), and links to a “Talk to Your Community About Health Misinformation” Infographic, a “Health Misinformation Checklist” Infographic, and the Surgeon General's press release, click here.

Please Sign a Petition to Help Save a Public Mental Health Model in Italy

"Trieste is recognized by the World Health Organization as the model of global best practice in mental health care," according to a change.org petition highlighted in a recent NPR article. "It has inspired dozens of programs throughout the world to create an integrated network of community services focused upon the whole-person needs of its users; maintaining their dignity as citizens; and minimizing the coercive practices of old fashioned institutional settings...Trieste has shown us how community inclusion improves people’s lives. But this great achievement is now threatened by a new right-wing regional government that, on poorly informed and ideological grounds, is fast and impulsively dismantling Trieste's wonderful system of community care...As a Friend of Trieste and all that it stands for, please sign this petition and distribute it widely. For updates on this situation, please consult www.accoglienza.us." For the NPR article, "A public mental health model in Italy earns global praise. Now it faces its demise," click here. For the petition, click here. (Courtesy of Laura Van Tosh)

TU Collaborative Seeks Participants for Its Parenting Through Leisure Project; See Also the TU Collaborative's Parenting Resources, Including Information on Custody Issues

The Temple University Collaborative on Community Inclusion is seeking parents with lived experience of a mental health condition to participate in a paid research study. The TU Collaborative writes: "Our program, Parenting Through Leisure, focuses on helping parents with a serious mental illness participate in leisure activities with their child. We are looking for individuals who are 18 and older; are an adult parent with a diagnosis of schizophrenia-spectrum disorder, bipolar disorder, or depression; have a child who is 7 to 15 years old and is interested in participating in family leisure with you; have legal visitation rights, joint custody or full custody of the child, with at least weekly contact; and have a desire to engage in more leisure activities with their child." For details about the study and the remuneration as well as other benefits to eligible participants, and a link to sign up, click here. Questions? Please contact TUCollab@temple.edu. And for the TU Collaborative's Parenting web page--which includes links to many resources for parents with lived experience, including information about custody laws and a model family reunification statute--click here.

Lancet Offers Stakeholders New Opportunities Re: Psychosis & Participatory Research

Check out these opportunities for stakeholder involvement! (1) The Lancet Psychiatry Commission's "Lived Experience Hub" invites stakeholders to contribute blogposts to convey criticisms, concerns and/or ideas relevant to the work of the Commission. For details, click here. To submit a blog, email lancetcommissionpsychosis@gmail.com. (2) The Lancet Psychiatry Commission's "lived experience research group" is a new listserv focused on lived experience advocacy and activism on participatory psychosis research and related policy and practice. In part, this will serve as a sounding board for Lancet Commission work and a place to engage in dialogue about what needs to change. To join, email  lancetcommissionpsychosis@gmail.com. (Courtesy of Dr. Nev Jones)

“Mental Health System: Open Letter to the Media” Seeks Signatures

“Everyone who believes that the problematic aspects of the mental health system are not adequately represented in the media is invited to sign this letter,” writes Yulia Mikhailova, who launched this initiative to educate the media. The letter begins: “We, a group of people with first-hand experience of the mental health system, write to express our concern about what we see as one-sided coverage of this system in the media and to draw the attention of civil rights organizations to the systemic discrimination that we witnessed and experienced. We, our loved ones, or inmates in the facilities where we worked, were exploited for monetary gain and victimized in various other ways. We saw how abuse, corruption, and exploitation were covered up, while victims and critics of the system were silenced and marginalized.” For a short version of the letter, which includes a link to a longer version, click here. Questions? Contact Yulia Mikhailova at yuliamikh@gmail.com.

Alternatives 2021 Is Over, but You Can View Many of the Presentations—and the Work Continues!

If you missed Alternatives 2021—the oldest national conference organized by and for individuals with lived experience of a mental health condition—you can see many of the presentations on the Alternatives conference website! The conference—whose theme was “Connecting, Organizing, Activating!”—was held July 8, 10, 15, and 17, and was organized by the National Coalition for Mental Health Recovery. This year the conference was virtual—and free! One highlight was the three Action Groups—on Promoting Racial and Social Justice, National and Statewide Advocacy, and Crisis Prevention and Alternatives to Institutionalization—which met on all four days. Reports from each of the groups are posted on the Alternatives conference website, and it is hoped that people will continue to work together to make progress on the goals that were determined by participants during the conference. For information about the Action Groups, click here. Recordings of many of the workshops, keynotes, and special activities are available on the Alternatives conference website (click here).

"Psychiatrist with Philosophical Interests" leads "Conversations in Critical Psychiatry," a Psychiatric Times Series

Awais Aftab, who describes himself as a "psychiatrist with philosophical interests" in his Twitter bio, leads "Conversations in Critical Psychiatry," which, he says, "explores critical and philosophical perspectives in psychiatry and engages with prominent commentators within and outside the profession who have made meaningful criticisms of the status quo." Among those interviewed are Allen Frances, M.D., author of Saving Normal; Sandra Steingard, M.D., and G. Scott Waterman, M.D., on "Integrating Academic Inquiry and Reformist Activism in Psychiatry"; Susannah Cahalan, author of Brain on Fire: My Month of Madness, on "50 Shades of Misdiagnosis"; Kathy Flaherty, J.D., executive director of the Connecticut Legal Rights Project, Inc., on "Reconsidering Care and Coercion in Psychiatry"; Nev Jones, Ph.D., on "Phenomenology, Power, Polarization, and the Discourse on Psychosis"; Dainius Puras, M.D., on "Global Psychiatry's Crisis of Values"; and many others. For the archived interviews, click here.

CNN Offers “A Guide to Helping and Getting Help During the Coronavirus Crisis”

CNN writes: “The coronavirus pandemic is overwhelming, and one of the most excruciating parts for many people is the feeling of utter helplessness in the face of widespread suffering and hardship. CNN’s Impact Your World has compiled a list of donation opportunities and tips to help those affected by the crisis. Click on a category or scroll down to browse a list of organizations, resources and ideas. Need help? Most categories also include resources for financial, emotional or social support.” For the free guide, click here.

Hearing Voices Network Is Now Hosting Online Groups

“There are now ONLINE opportunities to connect, share experiences, and find mutual support,” the Hearing Voices Network (HVN) writes. “These groups are accessible via web-based platforms and by phone…Online groups are specifically for those with personal lived experience with hearing voices, seeing visions, and/or negotiating alternative realities. They are voice-hearer facilitated. With further questions and for details on how to access the group[s], please email info@hearingvoicesusa.org.” To read this announcement online and for more information, click here.

Survey Seeks Respondents Who Are in Administrative/Leadership Positions in the Mental Health Field

If you are in an administrative/leadership position in the mental health arena, “the Group for the Advancement of Psychiatry (GAP) Committee on Psychiatric Administration and Leadership invites you to participate in the International Survey on Administrative Psychiatry. The survey has two purposes: 1. To identify the concerns and needs of mental health professionals/psychiatrists in administrative and leadership positions. 2. To determine training needs in administrative psychiatry. We ask you to complete this brief, [15- to 20-minute] questionnaire to help us in developing recommendations for action. We also want to let you know that, if you fill out this questionnaire, you permit the committee to use your anonymous data for scientific work.” Peer providers are included. For the survey, click here. (Courtesy of Oryx Cohen)

“Experiences with Hospitalization” Survey Seeks Participants

“The purpose of this survey is to help us understand people's lived experience with voluntary and involuntary treatment because of suicidal thoughts. It was created by people with lived experience…We are planning to use this information to facilitate discussions with suicidologists and the suicide prevention community about the impact of the use of these interventions, particularly within marginalized populations. We feel the voice of people with lived experience with these interventions has not had adequate opportunity to be heard, and hope that by completing this survey anonymously, people who have been most impacted can find a safe way to share their experiences. Please note that this is not a research project.” For more information and/or to participate, click here. (Courtesy of Leah Harris)

International Survey on Antipsychotic Medication Withdrawal Seeks Respondents

“Have you taken antipsychotic medication (such as Zyprexa, Seroquel, Abilify, Risperdal, Haldol, Geodon, Stelazine, and others), for any condition or diagnosis, with or without other medications? And did you ever stop taking antipsychotics, or try to stop taking them? Are you 18 years or older? If yes, you can take this survey about antipsychotic withdrawal and attempts to withdraw, including if you stopped taking them completely or if you tried to come off and still take them. The survey aims to improve mental health services by better understanding medication withdrawal. Lead researcher is Will Hall, a therapist and Ph.D. student who has himself taken antipsychotics. Service users/survivors/consumers from around the world also gave input. The study is sponsored by Maastricht University in the Netherlands; co-sponsors include the International Institute for Psychiatric Drug Withdrawal. Questions? Please contact will.hall@maastrichtuniversity.nl.”  For more information or to take the survey, click on www.antipsychoticwithdrawalsurvey.com

Virtual Group Works to Advance Peer Research Capacity, Leadership, and Involvement

Nev Jones, PhD—a strong advocate for building research capacity, leadership, and involvement among peers, survivors, and service users—leads a virtual group dedicated to this effort. Dr. Jones—assistant professor, School of Social Work, University of Pittsburgh—was part of the team that developed “User/Survivor Leadership & Capacity Building in Research: White Paper on Promoting Engagement Practices in Peer Evaluation/Research (PEPPER),” published by the Lived Experience Research Network. For the white paper, click here. Anyone interested in joining the virtual group can email Nev at nev.inbox@gmail.com.

Peer Support in Higher Education Survey Seeks Respondents

“Peer support programs are growing on college campuses across the U.S. Mental Health America, Doors to Wellbeing, and the Temple University Collaborative on Community Inclusion want to better understand the availability of peer support in higher education as well as the experiences and needs of students accessing peer support programs…We hope to use this research to support the expansion of peer support in higher education, including developing a national database of peer support programs in higher education and documenting pressing issues in campus programs…You may also indicate if you are interested in having your school’s peer support program listed in a national database of peer support programs in higher education.” For more information and to complete the survey, click here

Mad In America Invites You to Submit Your Personal Story (Within Certain Guidelines)

Mad In America writes: “A ‘personal story’ is defined as your story of being in relationship to psychiatry and/or the mental health system, whatever that means to you. It might involve your opinions and analysis of what happened to you, as well. It can be about a specific event, or about your overall journey, provided it fits the length requirements (1,500 to 3,000 words) and has a narrative arc. The piece should be about your personal experiences, not psychiatry or the mental health system in general. Submissions should fall under the theme of rethinking psychiatry and the mental health system, and should be original works not previously published elsewhere. For examples of the types of stories we publish, view our personal stories archive here.” For more information and/or to submit a personal story, click here.

PsychAlive Offers a Variety of Webinars on Mental Health Topics, Many Free, Others $15

PsychAlive is a free, nonprofit resource created by the Glendon Association, whose mission is “to save lives and enhance mental health by addressing the social problems of suicide, violence, child abuse and troubled interpersonal relationships.” Psychalive.org offers a variety of upcoming and archived webinars, many of which are free, while others are available for $15. Among the myriad topics are “From Anxiety to Action: How to Stay Sane While Fighting Climate Change,” “How to Overcome Insecurity,” “Powerful Tools to Fight Depression,” and “Understanding and Overcoming Adverse Childhood Experiences.” To check out the webinars, click here.

Seven Ways to Keep a Digital Copy of Your Vaccination Card on Your Smartphone

“You'll need proof of vaccination to go back to work or enter many restaurants, gyms and event venues, so keep your COVID-19 card handy.” This is the advice of CNET.com, a tech support website. Besides the obvious—taking a photo of the card to store on your phone—there are six other suggestions. For details, click here. (Courtesy of Yvonne Smith)

ISEPP Circulates Petition to Support Human Rights in Psychiatric Treatment

ISEPP seeks signatures on a petition to  "[m]ake a strong statement that any psychiatric or psychotherapeutic interventions without full and honest informed consent are unethical and inhumane." For the petition, click here. (Courtesy of Amy Smith)

ISPS-US Offers an Array of Archived Webinars--Free but Donations Are Welcomed

The ISPS-US (The International Society for Psychological and Social Approaches to Psychosis-US Chapter) is offering a whole raft of archived webinars, which are free (although donations are welcomed). Among the webinars are "Cognitive Behavioral & Related Therapies for Psychosis: Diverse Approaches to Supporting Recovery," "How Can the Uncontainable Be Contained? Paradoxes of Madness & Philosophy," "Robert Whitaker: The Rising Non-Pharmaceutical Paradigm for 'Psychosis,'" "Life with Voices: A Guide for Harmony," "COPE Project: Non-Pharmaceutical Research on Influencing Voices and Visions," "What Hurts and What Helps In Treatment For 'Psychosis': Insider Perspectives," and many others. For more information and to access the webinars, click here.

“Where DNA and Medications Meet”

Not all drugs are effective for all people; therapeutic response rates for many drugs are only 50%-75%. “OneOme, co-founded by [the] Mayo Clinic, provides evidence-based pharmacogenomic solutions that help improve patient outcomes and reduce costs through more personalized medication decisions.” OneOme’s RightMed Test is “a doctor-ordered pharmacogenomic (PGx) test that analyzes your DNA and provides your doctors with genetic information to help them determine how you may respond to certain medications. The results may help your doctors reduce medication trial and error, minimize risk of side effects, save you time and money, and make more informed prescribing decisions. Because your DNA doesn’t change over time, your doctors can use your test results to make more personalized medication decisions for you over the course of your lifetime.” For more information, click here. (Courtesy of Robin Osborne)

Lived Experience Leadership Features 12 Years of Research Studies...

"Lived Experience Leadership features 12 years of research studies focused on this workforce in a range of settings, to foster a better of understanding and respect for Lived Experience as a distinct discipline and build clarity on what makes this work unique and valuable. Importantly, this body of research was led by Lived Experience researchers. Lived Experience Leadership provides clear and simple to read research summaries to allow community members and people employed within various industries the opportunity to easily understand and apply strategies within their own workplace. This website also includes easy to download definitionsaudio/visual resources, and key work by other Australian and International sources. The website will continue to grow to include larger collections of our research as well as other key work. For the Lived Experience Leadership website, click here. (Courtesy of Jacek Haciak)

Doors to Wellbeing Offers “State Selfies: A Picture of Peer Services Reported by Peers”

Doors to Wellbeing’s “Peer Album” is a directory of nearly 600 peer-run organizations throughout the U.S. They invite updates and offer instructions for providing them and add, “If your entry has not made this first draft, we encourage you to re-submit.” For the 158-page directory, click here.

Disclaimer: The Clearinghouse does not necessarily endorse the opinions and opportunities included in the Key Update.

About The Key Update

The National Mental Health Consumers’ Self-Help Clearinghouse is now affiliated with the Temple University Collaborative on Community Inclusion.

The Key Update is the free monthly e-newsletter of the National Mental Health Consumers’ Self-Help Clearinghouse. Volume 18, No. 11, May 2022. For content, reproduction or publication information, please contact Susan Rogers at selfhelpclearinghouse@gmail.com. Follow Susan on Twitter at @SusanRogersMH

 

 

 

 

 

 

Key Update, April 2022, Volume 18, Number 10

The National Mental Health Consumers’ Self-Help Clearinghouse is affiliated with the Temple University Collaborative on Community Inclusion.

TO CONTACT: THE CLEARINGHOUSE: SELFHELPCLEARINGHOUSE@GMAIL.COM  … SUSAN ROGERS: SUSAN.ROGERS.ADVOCACY@GMAIL.COM … JOSEPH ROGERS: JROGERS08034@GMAIL.COM

The Key Update is compiled, written, and edited by Susan Rogers, Director, National Mental Health Consumers’ Self-Help Clearinghouse.

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NOTE: The "FROM PREVIOUS EDITIONS OF THE KEY UPDATE BUT STILL FRESH!" Department, which is directly below the monthly Criminal Justice Digest, includes items that had been posted "above the fold" in earlier editions but are still relevant. These include ongoing research studies that are still seeking participants, as well as upcoming webinars and conferences, and other items of continued interest. Don't miss it!

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"As a Crisis Hotline Grows, So Do Fears It Won’t Be Ready," NY Times Writes; But Many Advocates Fear a Different Problem

A recent New York Times article highlighted the fear that the demand for 988 may exceed the ability of call centers to respond quickly. But many advocates focus on another problem: that callers' anonymity will be breached and that they may find police at their door, which would exacerbate the trauma caused by the crisis they are already experiencing. On the one hand, Representative Tony Cárdenas (D-CA) "said the reimagined Lifeline would reduce costs by limiting police interventions in mental health emergencies." But, according to recent Mad In America coverage reported in the Key Update (February 2022), "Even after their own advisory committee criticized call tracing, leaders of the National Suicide Prevention Lifeline (NSPL) have been lobbying government for cutting-edge mass surveillance and tracking technology. Privacy experts are raising concerns." For the Mad In America article, click here. For the New York Times article, click here. 

NARPA Has Extended the Deadline for Workshop Proposals to April 7!

It's not too late to apply to present a workshop at the Annual Rights Conference of the National Association for Rights Protection and Advocacy (NARPA), which will be held October 26-29 at the Doubletree Newark Airport in Newark, New Jersey! The conference will address "strategies, ideas, programs, and emerging practices," in connection with the NARPA mission--"to support people with psychiatric diagnoses to exercise their legal and human rights, with the goals of abolishing forced treatment and ensuring autonomy, dignity and choice." For more information and to apply to present a workshop, click here.

Revised DSM, Rolled Out in March, Has Its Good Points and Its Bad Points

The new Diagnostic and Statistical Manual, the DSM-5-TR, released on March 18, 2022, has its plusses and its minuses. On the plus side, the new edition highlights the psychological impact of the social determinants of health and mental health, including racism. It also highlights the effects of trauma, which is "enormously predictive of psychosis," as a DSM Steering Committee member opined to Psychiatric News. [It should be noted that the prevalence of trauma in the general population is very high, in comparison to the much lower prevalence of psychosis.] On the minus side, “prolonged grief disorder” has been added to the new edition. “You’ve got to understand that clinicians want diagnoses so they can categorize people coming through the door and get reimbursement,” Jerome C. Wakefield, a professor of social work at New York University, told The New York Times. Meanwhile, critics say “that the designation risks pathologizing a fundamental aspect of the human experience….And they fear grief will be seen as a growth market by drug companies that will try to persuade the public that they need medical treatment to emerge from mourning,” the Times writes. For the Psychiatric News article, click here. For the New York Times article, click here. For Medicating Normal, an award-winning documentary about “what can happen when profit-driven medicine intersects with human beings in distress,” click here.

Peer Advocates Over 50 Years Old Are Invited to a Weekly Empowering Support Group

"People over 50 who are mental health lived-experience advocates, change makers, visionaries, and current status quo challengers" are invited to join "a weekly, open, upbeat, peer-support empowering environment for seasoned peers with lived experience who are active, and were active, as advocates for positive change," the WiseCrackers write. The goal of the recently launched group is "to support mental health advocates over 50 years of age with pure peer support practices based on natural curiosity, acceptance, humor, and positive networking." The free, 90-minute Zoom meetings are held on Mondays at 7 p.m. ET, 6 p.m. CT, 5 p.m. MT, and 4 p.m. PT. The meetings are currently co-facilitated by "East and West Coast Peers" and sponsored by the Community for Positive Aging. To register and to review the WiseCracker Principles of support, click here. Questions? Contact info@choiceheals.com or 503.208.0065.

MFI to Host Judi’s Room on "Guardian/Conservator and Supported Decision Making" & Urges You to Sign a Petition About "The Dangers of an Unchecked Guardian System"

On April 6, 2022, at 6 p.m. ET, MindFreedom International will host a two-hour Judi's Room discussion of "Guardian/Conservator and Supported Decision Making." MFI writes: "In a supported decision-making model, individuals with disabilities whose decision-making autonomy has been restricted or completely removed are capable with the support and help of trusted family members and friends to make and communicate their own decisions. Explored by our three presenters are the needs for a more equitable system of assistance where it is recognized that people have a diverse range of abilities, a continuum in which they can adequately exercise their decision-making rights." For much more about this event and to register, click here. MFI also urges you to sign a petition about "The Dangers of an Unchecked Guardian System." To sign the petition, click here.

BU Seeks Peer Support Specialists for a Research Study

The Center for Psychiatric Rehabilitation at Boston University is developing and testing the effectiveness of a coaching service called Coaching and Advancement for Peer Providers (CAPP) “to increase organizational commitment and job satisfaction and decrease turnover among mental health peer providers.” BU CPR writes: “We need Peer Support Specialists (PSS) to participate in our study. Who can participate? People who are in a paid job as a Peer Support Specialist providing support to other people with mental health challenges, who are employed at least 10 hours per week, who have worked for the past six months in a mental health program, and who are experiencing stress because of challenges in the workplace. The study involves 16 one-hour sessions of coaching over a four-month period designed to help you with your job, meeting online (through Zoom, for example) with your coach, and filling out surveys one time before coaching starts and three additional times. You will have a 50/50 chance of getting a coach or having a one-time meeting to give you information about challenges at work. Benefits? You may learn strategies to help make work less stressful.” For more information, click here. For questions, contact Principal Investigator E. Sally Rogers, Sc.D., at erogers@bu.edu or 617-353-3549.

The BMJ Writes About "The Illusion of Evidence-Based Medicine"

"Evidence-based medicine has been corrupted by corporate interests, failed regulation, and commercialization of academia." This is the subhead on "The Illusion of Evidence-Based Medicine," a recent BMJ opinion piece. It begins: "The advent of evidence-based medicine was a paradigm shift intended to provide a solid scientific foundation for medicine. The validity of this new paradigm, however, depends on reliable data from clinical trials, most of which are conducted by the pharmaceutical industry and reported in the names of senior academics. The release into the public domain of previously confidential pharmaceutical industry documents has given the medical community valuable insight into the degree to which industry sponsored clinical trials are misrepresented. Until this problem is corrected, evidence-based medicine will remain an illusion." For the opinion piece, click here. (Courtesy of Berta Britz)

TU Collaborative Launches Parenting Through Leisure Webinar Series

"The Temple University Collaborative on Community Inclusion is excited to announce our Parenting Through Leisure webinar series! The first one-hour webinar is April 14, 2022, at 12 p.m. ET. This webinar series features strategies that parents who experience mental health issues can use to spend quality time with their children, and ways to use family leisure to improve connection and communications. In the first webinar, learn about the benefits of family leisure and specific strategies for parents to use to connect with their kids. Participation certificates are available upon request. Webinar hosts include Dr. Gretchen Snethen and Dr. Bryan McCormick." For more information and to register, click here.

NYAPRS to Host Virtual "Career Chat 2.0" on April 19

On April 19, 2022, from 12:00 p.m. to 1:30 p.m. ET, NYAPRS will host "Career Chat 2.0: Exploring Change through Education, Credentialing and Professional Development." NYAPRS writes: "This Zoom meeting will provide attendees with the opportunity to share their experience and perspectives on navigating the potential challenges on the road to change. Led by Jonathan Edwards, Gita Enders, and Emily Vaianella, this conversation is for anyone who is interested in exploring change through education and/or employment. Because of the nature of this conversation, we will be limiting registration to 75, so register today!" To register, click here.

If You've Had, or Been Labeled with, "Negative Symptoms" in the Context of Psychosis...

"If you have experienced or been labeled with 'negative symptoms' in the context of psychosis, please consider contributing an anonymous account of your views and experiences," Dr. Nev Jones writes. "Currently, there is nowhere one can go to find lived experience perspectives/accounts on this topic—even though 'negative symptoms' regularly feature in research and clinical trials. Help us change this!" This survey is a companion to Psychosis Outside the Box; for that survey, click here. For more information and/or to share your story about "negative symptoms," click here.

Poetry Coalition to Launch "Poetry & Disability Justice" Initiative

"This year, the 25+ organizations nationwide that comprise the Poetry Coalition will launch 'The future lives in our bodies: Poetry & Disability Justice,' the coalition’s sixth annual programming initiative...Poetry Coalition members aim to demonstrate how poetry can inspire questions in their communities about disability justice and spark increased engagement with this important theme. Member organizations are committed to offering programming that is accessible and that includes disabled, neurodivergent, and d/Deaf poets and those of diverse racial, ethnic, and gender identities, backgrounds, and communities. All organizations and others interested are invited to create programs on this theme in 2022 and share their efforts using the hashtags #DisabilityJustice and #PoetryCoalition. For some additional resources to assist with programming, particularly in creating accessible programming, click here.

“Kracking Up (in a Good Way): A [Free] Night of Stand Up for Mental Health Comedy,” April 25

On April 25, 2022, at 7:30 p.m. ET, Fountain House, SchizophrenicNYC, City Voices, and Stand Up for Mental Health will present “Kracking Up (in a Good Way): A [Free] Night of Stand Up for Mental Health Comedy.” The organizers write: “Kracking Up will feature eight amateur comics who poke fun at their mental health challenges and try to krack us up.” For more about Stand Up for Mental Health, click here. For your free ticket for this virtual two-hour event, click here. (The Zoom link will follow 14 days before the event.)

NYAPRS to Host (Virtual) 18th Annual Executive Seminar on April 26-27

On April 26-27, 2022, NYAPRS will host its 18th Annual Executive Seminar. The theme of the entirely virtual event is "Mindful Leadership: Reconnect, Replenish, & Redesign." NYAPRS writes: "Join a special CEO Plenary, 'Experience, Strength and Hope,' for a discussion with our national leaders," which include the current or former heads of the National Council for Mental Well Being, Forward Movement Inc., Association for Mental Health and Wellness, and Mental Health America, respectively. "Many of the things we take for granted within our system now were hard-fought wins for this group of leaders. We bring them back to the NYAPRS Executive Seminar to share their thoughts about our future and engage with you in a heartfelt discussion of what we can all do to assure that our behavioral health system keeps moving forward despite all the challenges and changes we are facing." For the member and non-member rates and to register, click here.

Promoting Spiritual and Religious Participation Among Individuals with Psychiatric Disabilities: A Factsheet and Resource Guide

The Temple University Collaborative on Community Inclusion writes: "Engaging in spirituality and/or religion is an important area of community participation that has health benefits. This fact sheet describes the health benefits of spiritual and religious participation and to provide resources to support people with serious [mental health conditions] to engage more." For the four-page fact sheet and resource guide, click here.

Open Dialogue Is Good. Would Peer-supported Open Dialogue Be Even Better?

A British study to test a model of Peer Supported Open Dialogue (POD) recruited 50 service users treated by the POD team, along with participants from their families and social networks. The study found that "[s]ervice users reported significant improvements in wellbeing and functioning," and "a marked increase in perceived support" by those in the individual's support network. The results, recently published in BMC Psychiatry, indicate that it is possible to deliver a clinically effective POD service in the UK's National Health Service. For "Peer-supported Open Dialogue in the NHS: Implementing and Evaluating a New Approach to Mental Health Care," click here.

Rutgers University Invites Peer Specialists to Take a Survey on Their Wellness and Self-Care Needs

Behavioral health care workers, including peer support specialists, are invited to participate in a survey on behalf of the Rutgers Center for Alcohol and Substance Use Studies. The purpose of the survey is “to better understand your wellness and self-care needs and to gauge your interest in the Wellness Training & Learning Collaborative (W-TLC) and virtual resources.” The team writes: “You know better than most that behavioral health care workers need support, compassion, and care to sustain the energy and commitment to provide quality services. Your responses will help the Rutgers team identify what will be most useful so we can offer you the opportunity to access a free online resource: W-TLC Virtual Toolbox. This toolkit and 12 learning collaborative sessions (conducted between June 2022 and January 2023) will be available to you and other members of the behavioral health care community at no cost.” For the survey, click here. (See a related story below.)

Rutgers Center of Alcohol & Substance Use Studies Offers Free Wellness Guide

"Your Journey to Wellness Begins Here," writes the Rutgers Center of Alcohol & Substance Use Studies. "This Journey to Wellness Guide will help you find new ideas to use to begin or continue on your personal journey, no matter where you are in your life. If you have ever experienced chronic stress, addiction, trauma, or another life challenge, you will find examples here that have helped many to pursue and continue a journey to wellness." To view the 20-page Wellness Guide, click here. (Courtesy of Peggy Swarbrick via Jacek Haciak)

Doors to Wellbeing Presents Free Webinar on “Finding and Sharing Meaningful Work”
On April 26, 2022, at 1 p.m. ET, Doors to Wellbeing will present the latest in its monthly series of free one-hour webinars: “Finding and Sharing Meaningful Work.” Doors to Wellbeing writes: “Join us for this presentation on finding where you thrive at work and how to motivate others to seek out meaningful work. Peer specialists will be engaged to reflect on your own experience with employment and learn ways to share that experience with others.” The learning objectives are: Define meaningful work; list 3-4 ways to support others in discovering meaningful work; describe 3-4 keys to wellbeing at work; and discuss how to share our journey to employment to support others in their journey. To register, click here.

(Virtual) International Conference on Psychiatric Drug Withdrawal Scheduled for May 6-7, 2022

The first conference of the International Institute for Psychiatric Drug Withdrawal is scheduled for May 6-7, 2022 and will be held online due to the Covid pandemic. (It was originally planned to be held in Reykjavik, Iceland.). “The three themes underpinning the conference are safe withdrawal from psychiatric medication, alternatives to psychiatric medication, and the need to question the dominance of medication in mental health care.” Confirmed speakers include Robert Whitaker (journalist and founder of Mad in America), Professor Joanna Moncrieff (psychiatrist and researcher), Laura Delano (co-founder of the Inner Compass Initiative and a person with lived experience), Dr. Carina Håkansson (founder of Family Care Foundation and The Extended Therapy Room Foundation), and Dr. Magnus Hald (Psychiatrist at the Drug-Free Treatment Unit, Norway). For more information, click here.

MHA Offers "May Is Mental Health Month" Toolkit and Additional Resources

"This year, the theme of MHA’s 2022 Mental Health Month Toolkit is 'Back to Basics,'" Mental Health America writes. "Our goal is to provide foundational knowledge about mental health & mental health conditions and information about what people can do if their mental health is a cause for concern. Our toolkit includes sample materials for communications and social media as well as printable handouts on the following topics: Starting to Think About Mental Health, What Plays a Role in Developing Mental Health Conditions, Maintaining Good Mental Health, Recognizing When You Need Help with Your Mental Health, and What To Do When You Need Help. The toolkit will be available in Spanish in April." For more information and for a link to download the free, 34-page toolkit along with other resources, including toolkits of past years and "Tools 2 Thrive," click here.

Video Tributes in Memory of Some Movement Leaders Are Available on NCMHR YouTube Channel

To honor some of the movement leaders who had recently died, the National Coalition for Mental Health Recovery (NCMHR) created short video tributes to air at Alternatives 2021. All of the videos are available on the NCMHR Youtube Channel, RecoveryandHope. Or you can click on each of these links: Effie Smith by Michelle Dyson Click here; George and Maryanne Ebert by James Rye Click here; Emily Hoffman by Michael Finkle Click here; Deron Drumm by Paul Acker Click here; Mark Davis by Bluebird Click here; Linford Gayle by Khatera Aslami Click here; Kinike Bermudez by Celia Brown Click here; Pat Risser by Steve Stone Click here; Janet Foner by Lauren Spiro Click here; Jay Mahler by Sally Zinman Click here. If you are interested in recording a short video in memory of others who have died since these videos were recorded, please contact Judene Shelley at jshelley@gmail.com. 

The April 2022 Digest of Articles Offering Healthy Lifestyle Advice

For "How to Live With the Anxiety and Grief You Can’t Escape: There are ways to help alleviate the very worst of your stress, whether through support, sleep or radical self-care," click here (Courtesy of the Surviving Spirit newsletter). For "Find More Ways to Be an Outsider: Doing so may feel painful, but it’s one of the best investments you will ever make," click here. For "The Dangers of Self Hatred," click here.

The April 2022 Digest of Articles about the Criminal Justice System, in Which Many Individuals with Mental Health Conditions Are Incarcerated (and the Key Update continues after this Digest)

For "Debunking the 'Excited Delirium' Diagnosis for Deaths in Police Custody—Report breaks down how the term was created and misused for years," click here (Courtesy of Marie Verna). For "Colorado police department uses mental health professionals to help deescalate certain 911 calls," click here. For "The hidden billion-dollar cost of repeated police misconduct: More than $1.5 billion has been spent to settle claims of police misconduct involving thousands of officers repeatedly accused of wrongdoing. Taxpayers are often in the dark," click here. For "What you need to know about the cost of police misconduct: Key takeaways from The Post’s investigation into payments at some of the nation’s largest departments," click here. For “Too Many Locked Doors: The Scope of Youth Confinement is Vastly Understated,” click here. For "Majority of L.A. County sheriff’s deputies did not complete training requirements, audit says," click here. For "Inmates leaving gangs, stripping tats for jobs, better lives," click here. For "Guaranteed income experiment provides hope for formerly incarcerated: The program is being tested in Gainesville, Florida," click here. For "Editorial: ‘Zero bail’ and release from jail are not the same thing," click here. For "Ex-inmates can get up to $8K for each year they didn’t get special ed classes in N.J. prisons, court says," click here. For "How Debevoise Scrubbed 1,000 Years From ‘Unjust’ Prison Terms," click here. For "Criminal defendants stuck in yearslong legal limbo with incompetency findings: According to the Colorado Department of Human Services, 1,567 defendants were referred to the state last year for competency restoration. That’s nearly triple the rate it was in 2017, when just 553 defendants entered state custody for treatment," click here. For "California Prepares for a ‘Future Without Youth Prisons,’" click here. For (video) "The Dehumanizing Theater of the Parole Process: In 'The Interview,' directed by Jon Miller and Zach Russo, formerly incarcerated people describe what it’s like trying to convince a group of strangers that they are more than the worst thing they ever did," click here. For "Death row inmate seeking new trial in Atwater murders gets access to withheld records," click here. For "Abolish the Debt Sentence," click here. For "Waiting for a Second Look: People given lengthy sentences at a young age are seeking relief through D.C.’s landmark sentencing reforms, but they face hurdles due to the pandemic and a dysfunctional federal prison system," click here. For "Police Officer Kills Dog for Walking Toward Him With Tail Wagging: Bradley Brock says his dog Moose was walking toward a police officer wagging its tail when the officer gunned his pet down," click here. For "Restorative Justice Group Calls For Sweeping Reform Of Women’s Prison System: The Women’s Prison Project helped introduce 12 bills they say would improve the state’s prison system for women," click here.

FROM PREVIOUS EDITIONS OF THE KEY UPDATE BUT STILL FRESH!

Barnard Center for Research on Women to Host (Virtual) Scholar and Feminist Conference

From February 23 through April 12, 2022, the Barnard Center for Research on Women (BCRW) will present its 47th annual Scholar and Feminist Conference. Entitled “Living in Madness: Decolonization, Creation, Healing,” the conference will comprise five virtual events, four of which are in March and April. "This conference will explore experiences of madness, disability, survival, and refusal through the frameworks of mad studies, disability justice, and artistic practice," BCRW writes. "We ask how structural violence has both created maddening conditions and established the terms by which survivors are pathologized, criminalized and alienated." For more information and to register for upcoming presentations, the first of which is March 8, 2022, at 6:30 p.m. ET, click here. (Courtesy of Andrew Phelps)

The UIC Center’s Solutions Suite for Health & Recovery Offers Free Tools

"The UIC Center offers tools, curricula, and implementation manuals for free use in community-based programs, peer-run programs, or one's own life.​ You can introduce the entire complement of products to foster improved health, wellness, and mental health recovery. Or, you can choose the ones that will work best for your program or your life. The Suite was developed in collaboration with ​Collaborative Support Programs of New Jersey. The UIC Center is funded by NIDILRR (National Institute on Disability, Independent Living, and Rehabilitation Research). For the UIC Solutions Suite for Health & Recovery, click here. (Courtesy of Peggy Swarbrick via Jacek Haciak)

2022 Virtual PEER-A-PALOOZA Peer Summit to Be Held May 7

Helping to Unite by Generating Mental Empowerment (HUG ME) Ink will host PEER-A-PALOOZA on Saturday, May 7, 2022, from 1 p.m. to 5 p.m. CST via Zoom. "Our 2022 theme is: Creating a Zest for Life Through Growth, Resilience, Recovery and Community," the organizers write. "We believe that unifying talented peers of diverse backgrounds provides a unique opportunity to interact and propose stronger solutions together." Registration is $25; it's free for peer specialists. Workshop topics include How to Address Isolation, Autism Spectrum and Alternative Treatments, Personal Experiences, and a Writing Workshop. To register or to sign up as an exhibitor or sponsor, click here.

These Three National Mental Health Conferences (Among Others) Are Coming Up in 2022

The annual meetings of the American Psychiatric Association, Mental Health America, and the International Conference on Trauma and Mental Health will take place in 2022. The American Psychiatric Association 2002 annual meeting, to be held both in-person in New Orleans May 21-25 and online June 7-10, will focus on the theme of "Social Determinants of Mental Health." For more information, click here. The theme of Mental Health America's 2022 annual conference, to be held June 9-11 at the Hyatt Regency on Capitol Hill and live-streamed, is "Forward Together: Recovery, Healing, Hope." For more information, click here. The International Conference on Trauma and Mental Health will take place November 3-4, 2022, in San Francisco. For more information, click here.

Supported Education Survey Needs Your Help

Do you operate a program that provides dedicated supported education services for individuals with psychiatric disabilities/mental health conditions? If so, you are invited to complete the survey at the link below. The primary goal of the survey is to help create a National Supported Education Database (NSEdD) that will be "a searchable listing of diverse supported education programs and services for individuals experiencing psychiatric disabilities and/or mental health challenges...across the US and its territories." The NSEdD project is sponsored by the Substance Abuse and Mental Health Services Administration (SAMHSA) and co-administered by the five SAMHSA-funded national consumer and consumer-supporter technical assistance centers, in collaboration with research partners Drs. Nev Jones (University of Pittsburgh) and Mark Salzer (Temple University). For a link to the survey, which includes a definition of supported education, click here. For a flyer with information about the survey, click here.    

National Survey on Student Rights, Discrimination, and Accommodations in Higher Education Seeks Respondents  

"Have you experienced psychiatric disability-based discrimination or the denial of an accommodation in a postsecondary institution in the United States? Interested in informing national advocacy focus on psych disability rights in higher ed? Mental Health America (lead: Kelly Davis) and collaborators Dr. Nev Jones (University of Pittsburgh), Stefanie Kaufman-Mthimkhulu (Project LETS) and Brit Vanneman Esq. (Bazelon Center for Mental Health Law) have developed "a survey aimed at providing a more comprehensive understanding of student experiences of campus-based discrimination, mandated leaves of absence, and/or denial of academic, administrative and/or student-work accommodations in the U.S. Data will be used to inform national advocacy efforts and future projects, and in reports, presentations and publications." For eligibility and to access the survey, click here.

On April 28, AD4E Will Host a Prominent British Journalist and a Distinguished British Psychologist to Discuss Their New Books

On April 28, 2022, at 2 p.m. GMT, A Disorder for Everyone (AD4E) will welcome Johann Hari (author of Stolen Focus: Why You Can't Pay Attention) and Lucy Johnstone (author of A Straight Talking Introduction to Psychiatric Diagnosis) to talk about their new books. "Crucial Conversations is a series of 'A Disorder for Everyone' online events in which authors of recently published books that contribute to challenging the culture of diagnosis and disorder are invited to talk about their work. There will be audience questions and a panel discussion afterwards." When you register, AD4E requests a donation based on what you can afford. For details, click here.

"Are You Between the Ages of 21 and 60 and Drink Alcohol?"

"Researchers at the National Institutes of Health (NIH) are seeking adults--[both smokers and non-smokers]--to study whether a gene and smoking may affect drinking alcohol. Volunteers should be healthy and drug-free, and not seeking treatment for alcohol-related problems. Research participation includes three outpatient visits at the NIH Clinical Center in Bethesda, MD; alcohol consumption; brain scans (MRI), blood draws, and filling out questionnaires. There is no cost to participate and compensation may be provided." For more information, click here. (Courtesy of Fran Hazam)

U.S. Surgeon General Creates Community Toolkit for Addressing Health Misinformation

"The U.S. Surgeon General’s Community Toolkit for Addressing Health Misinformation, developed in collaboration with the HHS Office of Evaluation Sciences (OES), provides specific guidance and resources for health care providers, educators, librarians, faith leaders, and trusted community members to understand, identify, and stop the spread of health misinformation in their communities." For information about the toolkit (a 22-page overview of health misinformation, and resources to stop it), and links to a “Talk to Your Community About Health Misinformation” Infographic, a “Health Misinformation Checklist” Infographic, and the Surgeon General's press release, click here.

Please Sign a Petition to Help Save a Public Mental Health Model in Italy

"Trieste is recognized by the World Health Organization as the model of global best practice in mental health care," according to a change.org petition highlighted in a recent NPR article. "It has inspired dozens of programs throughout the world to create an integrated network of community services focused upon the whole-person needs of its users; maintaining their dignity as citizens; and minimizing the coercive practices of old fashioned institutional settings...Trieste has shown us how community inclusion improves people’s lives. But this great achievement is now threatened by a new right-wing regional government that, on poorly informed and ideological grounds, is fast and impulsively dismantling Trieste's wonderful system of community care...As a Friend of Trieste and all that it stands for, please sign this petition and distribute it widely. For updates on this situation, please consult www.accoglienza.us." For the NPR article, "A public mental health model in Italy earns global praise. Now it faces its demise," click here. For the petition, click here. (Courtesy of Laura Van Tosh)

TU Collaborative Seeks Participants for Its Parenting Through Leisure Project; See Also the TU Collaborative's Parenting Resources, Including Information on Custody Issues

The Temple University Collaborative on Community Inclusion is seeking parents with lived experience of a mental health condition to participate in a paid research study. The TU Collaborative writes: "Our program, Parenting Through Leisure, focuses on helping parents with a serious mental illness participate in leisure activities with their child. We are looking for individuals who are 18 and older; are an adult parent with a diagnosis of schizophrenia-spectrum disorder, bipolar disorder, or depression; have a child who is 7 to 15 years old and is interested in participating in family leisure with you; have legal visitation rights, joint custody or full custody of the child, with at least weekly contact; and have a desire to engage in more leisure activities with their child." For details about the study and the remuneration as well as other benefits to eligible participants, and a link to sign up, click here. Questions? Please contact TUCollab@temple.edu. And for the TU Collaborative's Parenting web page--which includes links to many resources for parents with lived experience, including information about custody laws and a model family reunification statute--click here.

Lancet Offers Stakeholders New Opportunities Re: Psychosis & Participatory Research

Check out these opportunities for stakeholder involvement! (1) The Lancet Psychiatry Commission's "Lived Experience Hub" invites stakeholders to contribute blogposts to convey criticisms, concerns and/or ideas relevant to the work of the Commission. For details, click here. To submit a blog, email lancetcommissionpsychosis@gmail.com. (2) The Lancet Psychiatry Commission's "lived experience research group" is a new listserv focused on lived experience advocacy and activism on participatory psychosis research and related policy and practice. In part, this will serve as a sounding board for Lancet Commission work and a place to engage in dialogue about what needs to change. To join, email  lancetcommissionpsychosis@gmail.com. (Courtesy of Dr. Nev Jones)

“Mental Health System: Open Letter to the Media” Seeks Signatures

“Everyone who believes that the problematic aspects of the mental health system are not adequately represented in the media is invited to sign this letter,” writes Yulia Mikhailova, who launched this initiative to educate the media. The letter begins: “We, a group of people with first-hand experience of the mental health system, write to express our concern about what we see as one-sided coverage of this system in the media and to draw the attention of civil rights organizations to the systemic discrimination that we witnessed and experienced. We, our loved ones, or inmates in the facilities where we worked, were exploited for monetary gain and victimized in various other ways. We saw how abuse, corruption, and exploitation were covered up, while victims and critics of the system were silenced and marginalized.” For a short version of the letter, which includes a link to a longer version, click here. Questions? Contact Yulia Mikhailova at yuliamikh@gmail.com.

Alternatives 2021 Is Over, but You Can View Many of the Presentations—and the Work Continues!

If you missed Alternatives 2021—the oldest national conference organized by and for individuals with lived experience of a mental health condition—you can see many of the presentations on the Alternatives conference website! The conference—whose theme was “Connecting, Organizing, Activating!”—was held July 8, 10, 15, and 17, and was organized by the National Coalition for Mental Health Recovery. This year the conference was virtual—and free! One highlight was the three Action Groups—on Promoting Racial and Social Justice, National and Statewide Advocacy, and Crisis Prevention and Alternatives to Institutionalization—which met on all four days. Reports from each of the groups are posted on the Alternatives conference website, and it is hoped that people will continue to work together to make progress on the goals that were determined by participants during the conference. For information about the Action Groups, click here. Recordings of many of the workshops, keynotes, and special activities are available on the Alternatives conference website (click here).

Disability Rights California Invites You to Its Past, Present, and Future (Free) Webinars

Disability Rights California (DRC) writes: “You are cordially invited to join us in our virtual disability rights trainings. Our webinars are twice a week, on Tuesdays at 2 p.m. ET (11 a.m. PT) in English and Thursdays at 7 p.m. ET (4 p.m. PT) in Spanish. Our free trainings provide information and resources on different topics related to mental health, self-advocacy, our legal rights (based on California law) and access to services that are informative and empowering. We welcome all peers (people with lived experience), service providers, family members and people in the community.” To view the webinars, click here.

"Psychiatrist with Philosophical Interests" leads "Conversations in Critical Psychiatry," a Psychiatric Times Series

Awais Aftab, who describes himself as a "psychiatrist with philosophical interests" in his Twitter bio, leads "Conversations in Critical Psychiatry," which, he says, "explores critical and philosophical perspectives in psychiatry and engages with prominent commentators within and outside the profession who have made meaningful criticisms of the status quo." Among those interviewed are Allen Frances, M.D., author of Saving Normal; Sandra Steingard, M.D., and G. Scott Waterman, M.D., on "Integrating Academic Inquiry and Reformist Activism in Psychiatry"; Susannah Cahalan, author of Brain on Fire: My Month of Madness, on "50 Shades of Misdiagnosis"; Kathy Flaherty, J.D., executive director of the Connecticut Legal Rights Project, Inc., on "Reconsidering Care and Coercion in Psychiatry"; Nev Jones, Ph.D., on "Phenomenology, Power, Polarization, and the Discourse on Psychosis"; Dainius Puras, M.D., on "Global Psychiatry's Crisis of Values"; and many others. For the archived interviews, click here.

CNN Offers “A Guide to Helping and Getting Help During the Coronavirus Crisis”

CNN writes: “The coronavirus pandemic is overwhelming, and one of the most excruciating parts for many people is the feeling of utter helplessness in the face of widespread suffering and hardship. CNN’s Impact Your World has compiled a list of donation opportunities and tips to help those affected by the crisis. Click on a category or scroll down to browse a list of organizations, resources and ideas. Need help? Most categories also include resources for financial, emotional or social support.” For the free guide, click here.

Hearing Voices Network Is Now Hosting Online Groups

“There are now ONLINE opportunities to connect, share experiences, and find mutual support,” the Hearing Voices Network (HVN) writes. “These groups are accessible via web-based platforms and by phone…Online groups are specifically for those with personal lived experience with hearing voices, seeing visions, and/or negotiating alternative realities. They are voice-hearer facilitated. With further questions and for details on how to access the group[s], please email info@hearingvoicesusa.org.” To read this announcement online and for more information, click here.

Survey Seeks Respondents Who Are in Administrative/Leadership Positions in the Mental Health Field

If you are in an administrative/leadership position in the mental health arena, “the Group for the Advancement of Psychiatry (GAP) Committee on Psychiatric Administration and Leadership invites you to participate in the International Survey on Administrative Psychiatry. The survey has two purposes: 1. To identify the concerns and needs of mental health professionals/psychiatrists in administrative and leadership positions. 2. To determine training needs in administrative psychiatry. We ask you to complete this brief, [15- to 20-minute] questionnaire to help us in developing recommendations for action. We also want to let you know that, if you fill out this questionnaire, you permit the committee to use your anonymous data for scientific work.” Peer providers are included. For the survey, click here. (Courtesy of Oryx Cohen)

“Experiences with Hospitalization” Survey Seeks Participants

“The purpose of this survey is to help us understand people's lived experience with voluntary and involuntary treatment because of suicidal thoughts. It was created by people with lived experience…We are planning to use this information to facilitate discussions with suicidologists and the suicide prevention community about the impact of the use of these interventions, particularly within marginalized populations. We feel the voice of people with lived experience with these interventions has not had adequate opportunity to be heard, and hope that by completing this survey anonymously, people who have been most impacted can find a safe way to share their experiences. Please note that this is not a research project.” For more information and/or to participate, click here. (Courtesy of Leah Harris)

International Survey on Antipsychotic Medication Withdrawal Seeks Respondents

“Have you taken antipsychotic medication (such as Zyprexa, Seroquel, Abilify, Risperdal, Haldol, Geodon, Stelazine, and others), for any condition or diagnosis, with or without other medications? And did you ever stop taking antipsychotics, or try to stop taking them? Are you 18 years or older? If yes, you can take this survey about antipsychotic withdrawal and attempts to withdraw, including if you stopped taking them completely or if you tried to come off and still take them. The survey aims to improve mental health services by better understanding medication withdrawal. Lead researcher is Will Hall, a therapist and Ph.D. student who has himself taken antipsychotics. Service users/survivors/consumers from around the world also gave input. The study is sponsored by Maastricht University in the Netherlands; co-sponsors include the International Institute for Psychiatric Drug Withdrawal. Questions? Please contact will.hall@maastrichtuniversity.nl.”  For more information or to take the survey, click on www.antipsychoticwithdrawalsurvey.com

Virtual Group Works to Advance Peer Research Capacity, Leadership, and Involvement

Nev Jones, PhD—a strong advocate for building research capacity, leadership, and involvement among peers, survivors, and service users—leads a virtual group dedicated to this effort. Dr. Jones—assistant professor, School of Social Work, University of Pittsburgh—was part of the team that developed “User/Survivor Leadership & Capacity Building in Research: White Paper on Promoting Engagement Practices in Peer Evaluation/Research (PEPPER),” published by the Lived Experience Research Network. For the white paper, click here. Anyone interested in joining the virtual group can email Nev at nev.inbox@gmail.com.

Peer Support in Higher Education Survey Seeks Respondents

“Peer support programs are growing on college campuses across the U.S. Mental Health America, Doors to Wellbeing, and the Temple University Collaborative on Community Inclusion want to better understand the availability of peer support in higher education as well as the experiences and needs of students accessing peer support programs…We hope to use this research to support the expansion of peer support in higher education, including developing a national database of peer support programs in higher education and documenting pressing issues in campus programs…You may also indicate if you are interested in having your school’s peer support program listed in a national database of peer support programs in higher education.” For more information and to complete the survey, click here

Mad In America Invites You to Submit Your Personal Story (Within Certain Guidelines)

Mad In America writes: “A ‘personal story’ is defined as your story of being in relationship to psychiatry and/or the mental health system, whatever that means to you. It might involve your opinions and analysis of what happened to you, as well. It can be about a specific event, or about your overall journey, provided it fits the length requirements (1,500 to 3,000 words) and has a narrative arc. The piece should be about your personal experiences, not psychiatry or the mental health system in general. Submissions should fall under the theme of rethinking psychiatry and the mental health system, and should be original works not previously published elsewhere. For examples of the types of stories we publish, view our personal stories archive here.” For more information and/or to submit a personal story, click here.

PsychAlive Offers a Variety of Webinars on Mental Health Topics, Many Free, Others $15

PsychAlive is a free, nonprofit resource created by the Glendon Association, whose mission is “to save lives and enhance mental health by addressing the social problems of suicide, violence, child abuse and troubled interpersonal relationships.” Psychalive.org offers a variety of upcoming and archived webinars, many of which are free, while others are available for $15. Among the myriad topics are “From Anxiety to Action: How to Stay Sane While Fighting Climate Change,” “How to Overcome Insecurity,” “Powerful Tools to Fight Depression,” and “Understanding and Overcoming Adverse Childhood Experiences.” To check out the webinars, click here.

Seven Ways to Keep a Digital Copy of Your Vaccination Card on Your Smartphone

“You'll need proof of vaccination to go back to work or enter many restaurants, gyms and event venues, so keep your COVID-19 card handy.” This is the advice of CNET.com, a tech support website. Besides the obvious—taking a photo of the card to store on your phone—there are six other suggestions. For details, click here. (Courtesy of Yvonne Smith)

Mad In America Continually Posts Research Studies Seeking Participants

Mad in America continually posts research studies that are looking for participants. The studies change as old ones close and new ones are launched. For details and to participate, click here.

ISEPP Circulates Petition to Support Human Rights in Psychiatric Treatment

ISEPP seeks signatures on a petition to  "[m]ake a strong statement that any psychiatric or psychotherapeutic interventions without full and honest informed consent are unethical and inhumane." For the petition, click here. (Courtesy of Amy Smith)

ISPS-US Offers an Array of Archived Webinars--Free but Donations Are Welcomed

The ISPS-US (The International Society for Psychological and Social Approaches to Psychosis-US Chapter) is offering a whole raft of archived webinars, which are free (although donations are welcomed). Among the webinars are "Cognitive Behavioral & Related Therapies for Psychosis: Diverse Approaches to Supporting Recovery," "How Can the Uncontainable Be Contained? Paradoxes of Madness & Philosophy," "Robert Whitaker: The Rising Non-Pharmaceutical Paradigm for 'Psychosis,'" "Life with Voices: A Guide for Harmony," "COPE Project: Non-Pharmaceutical Research on Influencing Voices and Visions," "What Hurts and What Helps In Treatment For 'Psychosis': Insider Perspectives," and many others. For more information and to access the webinars, click here.

“Where DNA and Medications Meet”

Not all drugs are effective for all people; therapeutic response rates for many drugs are only 50%-75%. “OneOme, co-founded by [the] Mayo Clinic, provides evidence-based pharmacogenomic solutions that help improve patient outcomes and reduce costs through more personalized medication decisions.” OneOme’s RightMed Test is “a doctor-ordered pharmacogenomic (PGx) test that analyzes your DNA and provides your doctors with genetic information to help them determine how you may respond to certain medications. The results may help your doctors reduce medication trial and error, minimize risk of side effects, save you time and money, and make more informed prescribing decisions. Because your DNA doesn’t change over time, your doctors can use your test results to make more personalized medication decisions for you over the course of your lifetime.” For more information, click here. (Courtesy of Robin Osborne)

Lived Experience Leadership Features 12 Years of Research Studies...

"Lived Experience Leadership features 12 years of research studies focused on this workforce in a range of settings, to foster a better of understanding and respect for Lived Experience as a distinct discipline and build clarity on what makes this work unique and valuable. Importantly, this body of research was led by Lived Experience researchers. Lived Experience Leadership provides clear and simple to read research summaries to allow community members and people employed within various industries the opportunity to easily understand and apply strategies within their own workplace. This website also includes easy to download definitionsaudio/visual resources, and key work by other Australian and International sources. The website will continue to grow to include larger collections of our research as well as other key work. For the Lived Experience Leadership website, click here. (Courtesy of Jacek Haciak)

Doors to Wellbeing Offers “State Selfies: A Picture of Peer Services Reported by Peers”

Doors to Wellbeing’s “Peer Album” is a directory of nearly 600 peer-run organizations throughout the U.S. They invite updates and offer instructions for providing them and add, “If your entry has not made this first draft, we encourage you to re-submit.” For the 158-page directory, click here 

Disclaimer: The Clearinghouse does not necessarily endorse the opinions and opportunities included in the Key Update.

About The Key Update

The National Mental Health Consumers’ Self-Help Clearinghouse is now affiliated with the Temple University Collaborative on Community Inclusion!

The Key Update is the free monthly e-newsletter of the National Mental Health Consumers’ Self-Help Clearinghouse. Volume 18, No. 10, April 2022. For content, reproduction or publication information, please contact Susan Rogers at selfhelpclearinghouse@gmail.com. Follow Susan on Twitter at @SusanRogersMH

Key Update, March 2022, Volume 18, Number 9

The National Mental Health Consumers’ Self-Help Clearinghouse is affiliated with the Temple University Collaborative on Community Inclusion.

TO CONTACT: THE CLEARINGHOUSE: SELFHELPCLEARINGHOUSE@GMAIL.COM  … SUSAN ROGERS: SUSAN.ROGERS.ADVOCACY@GMAIL.COM … JOSEPH ROGERS: JROGERS08034@GMAIL.COM

The Key Update is compiled, written, and edited by Susan Rogers, Director, National Mental Health Consumers’ Self-Help Clearinghouse.

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NOTE: The "FROM PREVIOUS EDITIONS OF THE KEY UPDATE BUT STILL FRESH!" Department, which is directly below the monthly Criminal Justice Digest, includes items that had been posted "above the fold" in earlier editions but are still relevant. These include ongoing research studies that are still seeking participants, as well as upcoming webinars and conferences, and other items of continued interest. Don't miss it!

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What Is a "Mental Health Problem"? Some Researchers Want Service Users to Decide.

Researchers in the UK and Switzerland scoured more than 100 publications that mentioned mental health problems, and identified some 34 different models: biological, psychological, sociological, and others. But they found no criteria that could be used to prioritize one model over another. Because understanding mental health issues is crucial to diagnosis and treatment, the researchers suggest that "this debate needs greater input from non-medical professions and service users," Science Daily reports. One researcher said: "Uncertainties about what constitutes a mental health problem have become more pronounced in recent decades due to the increase in the number of mental health conditions being identified in the manuals which are used by general practitioners and psychiatrists." Another researcher noted: "One way out...could be to ask service users which model they feel to be most appropriate for them and their treatment. The consequence, however, would be that non-medical models might become more important than clinicians would be willing to accept." For the Science Daily article, which includes a link to the study (in the Journal of Mental Health), click here.

Judi's Room Panel: "Celebrating the Accomplishments & Embracing the Challenges of African American Leadership in our Movement"

On March 2, 2022, from 6 p.m. to 8 p.m. ET, MindFreedom International and "I Love You, Lead On" will present a "Judi's Room" event on "Celebrating the Accomplishments & Embracing the Challenges of African American Leadership in Our Movement." Featured speakers are Cindi Fisher, Jonathan P. Edwards, and Yvonne Z. Smith; Celia Brown will facilitate. "African American activists/leaders within the CSX movement share their firsthand experience of systemic racism and how they have been working to bend the arc toward justice. They will address the need for change by sharing experiences (accomplishments and lessons learned), and how these experiences relate to other movements such as prison abolition, Black Lives Matter (BLM), and school to prison pipeline." For more information and to register, click here.

"New Research Suggests 911 Call Centers Lack Resources to Handle Behavioral Health Crises"

Although many cities now field mobile crisis teams--often based on CAHOOTS in Eugene, Oregon--the system only works if 911 operators are knowledgeable enough to be able to funnel behavioral health crisis calls away from police to these teams. "The best mental-health responders in the world can help only if emergency dispatchers know when to deploy them," The Atlantic recently noted. But a "2021 Pew Charitable Trusts survey of 911 centers found that staff are seldom trained on mental-health issues and have few options for mental-health responses." When police get involved, the crisis may end in tragedy. (For evidence, click here and click here.) Even without a tragic ending, police often take people to institutions, including jails, "that do little for their mental health while also giving them the stigma, and real consequences, of a criminal record. 'You couldn’t go out of your way to invent a system that was less useful,” says Mike Gleason, who as Eugene’s city manager helped launch CAHOOTS in 1989." For "The Stumbling Block to One of the Most Promising Police Reforms" in The Atlantic, click here. For the Pew Charitable Trusts survey, click here.

Barnard Center for Research on Women to Host (Virtual) Scholar and Feminist Conference

From February through April 2022, the Barnard Center for Research on Women (BCRW) will present its 47th annual Scholar and Feminist Conference. Entitled “Living in Madness: Decolonization, Creation, Healing,” the conference will comprise five virtual events, four of which are in March and April. "This conference will explore experiences of madness, disability, survival, and refusal through the frameworks of mad studies, disability justice, and artistic practice," BCRW writes. "We ask how structural violence has both created maddening conditions and established the terms by which survivors are pathologized, criminalized and alienated." For more information and to register for upcoming presentations, the first of which is March 8, 2022, at 6:30 p.m. ET, click here. (Courtesy of Andrew Phelps)

TU Collaborative Shares Free "Resources for Remote Community Participation"

"During this time of physical distancing, we are sharing strategies to make you aware of opportunities for participation," the Temple University Collaborative on Community Inclusion writes. "Many of these resources for staying connected while staying apart require internet access, which we understand can be a barrier to participation for many people." The 20-page document includes "a review of free and low-cost opportunities to access the internet and some options for learning how to use the internet effectively. Next, we discuss opportunities for community participation with a basic phone, with no need for a smartphone or internet access. This document concludes with a running list of online resources for community participation...These tips are helpful for anyone who wants to increase their community participation while staying at home, for any reason." For the free document, click here.

Free Webinar: "Reclaiming Employment: Self Employment Opportunities and Education"

On March 29, 2022, at 2 p.m. ET, Doors to Wellbeing will sponsor a free, one-hour webinar on "Reclaiming Employment: Self Employment Opportunities and Education," presented by Laysha Ostrow. "Reclaiming Employment® is an interactive virtual platform that provides self-employment education and support for people with mental health-related challenges around work. It was designed by Live & Learn, Inc., based on research and personal experiences with business development, to empower peers to start and sustain self-employment. This webinar will walk attendees through the platform, explain its conceptual development and offerings, and show how peers seeking to pursue self-employment can access support." For more information and to register, click here.

"‘Tokenistic’ Service-user Involvement Must Be Addressed, Says Report"

A new report by Shaping Our Lives, a disabled people's and service-user network, "highlights the importance of involving disabled people in planning and delivering services, but also the barriers they face when trying to share their lived experience," Disability News Service (DNS) reports. "The Tickboxes and Tokenism report says the inclusive involvement of disabled people and members of other marginalized communities in such activity is 'critical' in promoting 'system and social change,'" DNS writes. Shaping Our Lives notes: "This report is the result of a survey we ran in 2021 to explore people’s experiences of service user involvement...The report contains recommendations for those who want to run truly inclusive, meaningful involvement to shape their services and make them better for everyone." For the DNS article, click here. For the report, click here.

The UIC Center’s Solutions Suite for Health & Recovery Offers Free Tools

"The UIC Center offers tools, curricula, and implementation manuals for free use in community-based programs, peer-run programs, or one's own life.​ You can introduce the entire complement of products to foster improved health, wellness, and mental health recovery. Or, you can choose the ones that will work best for your program or your life. The Suite was developed in collaboration with ​Collaborative Support Programs of New Jersey. The UIC Center is funded by NIDILRR (National Institute on Disability, Independent Living, and Rehabilitation Research). For the UIC Solutions Suite for Health & Recovery, click here. (Courtesy of Peggy Swarbrick via Jacek Haciak)

"Is Electroconvulsive Therapy for Depression More Effective Than Placebo?"

According to this "Systematic Review of Studies Since 2009," the answer is No. Of the 91 studies reviewed, "only 2 aimed to evaluate the efficacy of ECT," the authors write. "Both were severely flawed. None of the other 89 produced robust evidence that ECT is effective for depression, primarily because at least 60% maintained ECT participants on medication and 89% produced no meaningful follow-up data beyond the end of treatment. No studies investigated whether ECT prevents suicide." In addition, "[o]nly 4 placebo-controlled studies have ever produced data beyond the end of treatment, none of which have found any advantage for ECT over placebo." The authors concluded: "There is still no evidence that ECT is more effective than placebo for depression reduction or suicide prevention. Given the well-documented high risk of persistent memory dysfunction, the cost-benefit analysis for ECT remains so poor that its use cannot be scientifically, or ethically, justified." For the study, published in Ethical Human Psychology and Psychiatry, click here.

2022 Virtual PEER-A-PALOOZA Peer Summit to Be Held May 7

Helping to Unite by Generating Mental Empowerment (HUG ME) Ink will host PEER-A-PALOOZA on Saturday, May 7, 2022, from 1 p.m. to 5 p.m. CST via Zoom. "Our 2022 theme is: Creating a Zest for Life Through Growth, Resilience, Recovery and Community," the organizers write. "We believe that unifying talented peers of diverse backgrounds provides a unique opportunity to interact and propose stronger solutions together." Registration is $25; it's free for peer specialists. Workshop topics include How to Address Isolation, Autism Spectrum and Alternative Treatments, Personal Experiences, and a Writing Workshop. To register or to sign up as an exhibitor or sponsor, click here.

"How to Report with Care on Disability," by the Disability Reporting Fellow of The NY Times

Amanda Morris, who reports on disability for The New York Times, writes that her goal is to "shift the way that the news media...writes about disabled people. Some of my work dismantles long-held stigmas and negative attitudes that many people have toward disability—such as the flawed idea that having a disability is inherently bad or is limiting." Describing herself as "a hard-of-hearing woman," she always asks those she interviews if they prefer identity-first or person-first language. And "[a]ny time I’m writing an article that affects a group of people with certain conditions or disabilities, I always reach out to multiple people living with the condition and include their voices in the story." Taking a stand against what has been called "inspiration porn," she writes: "Reducing disabled people’s lives into simplistic narratives about overcoming barriers to do ordinary things often misses the fact that society created those same barriers in the first place." For the article, click here.

"COVID-19 Vaccination Boosts Mental Health Along with Immunity, Study Finds," while "Covid Patients May Have Increased Risk of Developing Mental Health Problems"

"Getting vaccinated for COVID-19 measurably improved the psychological well-being of participants in the Understanding Coronavirus in America study, a large longitudinal look at the impact of the pandemic on individuals in the United States. Vaccination was associated with declines in distress and perceived risks of infection, hospitalization, and death. The study, appearing in the American Journal of Preventive Medicine, validates the intuitive but previously unanswered questions of whether becoming vaccinated reduces perceived risks associated with COVID-19, and whether the reduction of these fears leads to improvements in mental health and quality of life." For the Science Daily story, click here. At the same time, "[a] new, large study found that in the year after getting Covid, people were significantly more likely to be diagnosed with psychiatric disorders they hadn’t had than people who didn’t get infected," The New York Times reports. For that story, click here.

Trauma Survivors May Admit to Crimes, Even When They Are Innocent, Experts Say

"Psychological research has shed light on why police sometimes misjudge innocent people as guilty, why innocent people sometimes confess to crimes they didn’t commit, and why stereotypes sometimes produce erroneous medical judgments," according to Psychology Today. The magazine focuses on trauma survivor Melissa Lucio, who was convicted of killing her 2-year-old daughter despite her likely innocence. For the Psychology Today article, click here. For "How Melissa Lucio Went From Abuse Survivor to Death Row: Why some trauma victims are more likely to take responsibility for crimes, even when they may be innocent," click here. And for "As state executions ramp up, prosecutors pledge changes in handling of death penalty cases: 'We have all now arrived at the same inexorable conclusion: Our country's system of capital punishment is broken,' said a joint statement signed by 56 prosecutors," click here. For the Free Melissa Lucio campaign, click here.

Latest Edition of Café TA Center's Newsletter Focuses on Supported Education Survey

"The latest edition of CAFE TAC’s Focus 2.0 newsletter is here! This time, we share some information on the ongoing National Supported Education Database survey that CAFE TAC is working on along with its partner national consumer and consumer-supporter TA centers. Not sure what supported education is or how it works? You can find a quick overview of this promising practice too! We also share an update on our efforts to connect employers and people with mental health conditions, and share a survey where you can let us know about your employment experiences and needs. Finally, our 'Capacity Corner' column returns with a look at how an Executive Director and Board Chair can work together to help a peer-run organization succeed." For the latest Focus 2.0, click here.

These Three National Mental Health Conferences (Among Others) Are Coming Up in 2022

The annual meetings of the American Psychiatric Association, Mental Health America, and the International Conference on Trauma and Mental Health will take place in 2022. The American Psychiatric Association 2002 annual meeting, to be held both in-person in New Orleans May 21-25 and online June 7-10, will focus on the theme of "Social Determinants of Mental Health." For more information, click here. The theme of Mental Health America's 2022 annual conference, to be held June 9-11 at the Hyatt Regency on Capitol Hill and live-streamed, is "Forward Together: Recovery, Healing, Hope." For more information, click here. The International Conference on Trauma and Mental Health will take place November 3-4, 2022, in San Francisco. For more information, click here. (Note: See FROM PREVIOUS EDITIONS OF THE KEY UPDATE BUT STILL FRESH!--below the Criminal Justice Digest--for more conferences, including NARPA [deadline for workshop proposals: March 31; conference October 26-29], A Disorder for Everyone: AD4E (April 28), Peerpocalypse (March 14-17), and the International Conference on Psychiatric Drug Withdrawal (May 6-7).

US News & World Report  Covers "Mental Health Support Groups: Pros and Cons." (Peer Support Is an Evidence-Based Practice.)

"Support groups can provide a safe place to connect and learn to cope. Consider these pros and cons before joining a group," U.S. News & World Report posted on February 24, 2022. Among the "pros" is that support groups are normally led by people with lived experience, "which can be inspiring and comforting to those who are struggling." The "cons" include the difficulty that some people may have in revealing their personal mental health challenges to a group. For the article, including other pros and cons, click here. Meanwhile, the Centers for Medicare & Medicaid Services (CMS) declared peer support an evidence-based practice in 2007. In a letter to state mental health directors, CMS wrote: “CMS recognizes that the experiences of peer support providers, as consumers of mental health and substance use services, can be an important component in a State’s delivery of effective treatment." For the CMS letter, click here. For more information about the value of peer support, click here. For Depression and Bipolar Support Alliance support groups, click here. For Hearing Voices Network USA support groups, click here.

Three Articles in the Mainstream Media Highlight the Value of Peer-Support Programs

Three articles, published in recent months, cover peer-support programs in New York, North Carolina, and Alaska. "...[A]n innovative community-based behavioral health program--EnTRy (Enhanced Treatment and Recovery)--is bringing novel peer-to-peer counseling, telehealth, advanced psychiatric care, and early intervention programs for youth and young adults to Southeast Brooklyn." The program, based at the Family Health Centers at NYU Langone, is made possible by a $5 million SAMHSA grant. (Click here.) A second article covers "[a] peer-run center in North Carolina [that] offers alternative for psychiatric care. At Retreat @ the Plaza, guests use their experiences with mental illness, homelessness and domestic violence to help one another regain their footing." (Click here.) A third article covers a peer-run drop-in center in Fairbanks, Alaska, where "members say ‘you can just be you.’" (Click here.)

"We've All Wondered What Animals Could Say If They Could Speak..."

"In his funny and unique comic series called 'They Can Talk,' [artist Jimmy Craig] shows what would happen if animals started talking. He also puts his very own unexpected twists into his comics, making them a lot more memorable. Although he draws mostly cats and dogs, he includes other critters like birds, bugs, reptiles, and fish. Check out some of his hilarious work below!" For the comics, click here.

The March 2022 Digest of Articles Offering Healthy Lifestyle Advice

For "Why We All Need to Have More Fun: Prioritizing fun may feel impossible right now. But this four-step plan will help you rediscover how to feel more alive," click here. For "Are You Dreaming Too Big? Lifelong, hard-to-achieve goals might not make you happier. Small steps will," click here. For "You Can Learn to Love Being Alone: Solitude doesn’t have to feel lonely. It can be restoring and refreshing with a little practice," click here. For "How to feel more pride: Get comfortable owning and enjoying your achievements, big and small, and you will nourish your mental health and self-esteem," click here. For "Hard on Yourself? 4 Emotionally Abusive Habits to Replace: An emotionally abusive inner critic can take a toll on your mental health. When your self-talk is hurtful, here’s how to flip the script," click here.

The March 2022 Digest of Articles about the Criminal Justice System, in Which Many Individuals with Mental Health Conditions Are Incarcerated (and the Key Update continues after this Digest)

For "Why It’s So Impossible to Get Decent Mental Health Care in Prison,” click here. For "The first shots wounded their 16-year-old. His parents wonder: Did police need to fire the second round?" click here. For "‘I can’t let him out on society,’ sheriff says: Murder suspect found incompetent to stand trial remains in jail," click here. For "Prison And Jail Reentry And Health: People reentering communities after incarceration are sicker than the general population and face barriers to accessing health care and other supports. Along with criminal justice reform, policy makers must work to improve evidence-based reentry programming that supports healthy people and communities," click here. For "Smoke-filled cells. Triple-digit temperatures. Chest-deep water. People behind bars can’t flee when climate disasters strike. The Intercept mapped climate risks for 6,500 detention facilities. In some already miserable places, the suffering is set to intensify," click here. For "Opinion: With Amir Locke’s death, ‘officer safety’ claims another victim," click here. For "A sentence that never ends: How probation kept a Pennsylvania man locked up through the pandemic — even after his release date," click here. For "Connecting inmates with health and social care upon reentry can help end the prison cycle: A growing number of transition programs are focused on healthcare planning–helping formerly incarcerated individuals with enrollment in Medicaid, and supporting them to access covered programs to treat medical and physical health conditions," click here. For "Here's Why Abolishing Private Prisons Isn't a Silver Bullet: The vast majority of prisoners are held in publicly run prisons. But the private sector affects their incarceration in different ways," click here. For "Prosecutors push U.S. to limit life sentences for juveniles," click here. For "State of Justice," the February 25, 2022, newsletter of the Council of State Governments Justice Center, click here. For "Who Writes the Rules for Cops? After years of high-profile shootings, policing in America is under more scrutiny than at any time in our history. Meanwhile, one company—which sells policy handbooks to police departments across the country—seems determined to give officers cover," click here. For "Opinion: Call solitary confinement what it is: Torture," click here. For "New Pardon Board Official Wants to Expand Clemency in Pennsylvania, Where Thousands Are Sentenced to Die in Prison: Celeste Trusty, a longtime activist for sentencing reform, speaks with Bolts about her recent appointment to the state’s clemency system, and her desire to 'help liberate people,'” click here. For "He got a second chance after 27 years in prison. Then he went missing. Kevin Flythe, now 52, has serious mental and physical disabilities. His attorneys say the Bureau of Prisons released him without a plan," click here. For "Fitness trainer uses his decade behind bars to inspire clients and help former inmates transform their lives," click here.

FROM PREVIOUS EDITIONS OF THE KEY UPDATE BUT STILL FRESH!

NARPA Issues Call for Papers for Its 2022 Conference

The National Association for Rights Protection and Advocacy (NARPA) 2022 Annual Rights Conference, to be held October 26-29 at the Doubletree Newark Airport in Newark, New Jersey, has issued its call for workshop proposals. The deadline is March 31; selected presenters will be notified by April 30. "NARPA is seeking proposals which address strategies, ideas, programs, and emerging practices. Workshops [of approximately 90 minutes] will be selected based on adherence to the NARPA mission--"to support people with psychiatric diagnoses to exercise their legal and human rights, with the goals of abolishing forced treatment and ensuring autonomy, dignity and choice"--"with an emphasis on diversity and multicultural perspectives." For more information, contact NARPA at narpa4rights@gmail.com or 256.650.6311. "Mail proposals to NARPA, P.O. Box 855, Huntsville, AL 35804 or e-mail to narpa4rights@gmail.com. Electronic submissions preferred." For the Call for Papers, click here.

Supported Education Survey Needs Your Help

Do you operate a program that provides dedicated supported education services for individuals with psychiatric disabilities/mental health conditions? If so, you are invited to complete the survey at the link below. The primary goal of the survey is to help create a National Supported Education Database (NSEdD) that will be "a searchable listing of diverse supported education programs and services for individuals experiencing psychiatric disabilities and/or mental health challenges...across the US and its territories." The NSEdD project is sponsored by the Substance Abuse and Mental Health Services Administration (SAMHSA) and co-administered by the five SAMHSA-funded national consumer and consumer-supporter technical assistance centers, in collaboration with research partners Drs. Nev Jones (University of Pittsburgh) and Mark Salzer (Temple University). For a link to the survey, which includes a definition of supported education, click here. For a flyer with information about the survey, click here.    

National Survey on Student Rights, Discrimination, and Accommodations in Higher Education Seeks Respondents  

"Have you experienced psychiatric disability-based discrimination or the denial of an accommodation in a postsecondary institution in the United States? Interested in informing national advocacy focus on psych disability rights in higher ed? Mental Health America (lead: Kelly Davis) and collaborators Dr. Nev Jones (University of Pittsburgh), Stefanie Kaufman-Mthimkhulu (Project LETS) and Brit Vanneman Esq. (Bazelon Center for Mental Health Law) have developed "a survey aimed at providing a more comprehensive understanding of student experiences of campus-based discrimination, mandated leaves of absence, and/or denial of academic, administrative and/or student-work accommodations in the U.S. Data will be used to inform national advocacy efforts and future projects, and in reports, presentations and publications." For eligibility and to access the survey, click here.

On April 28, AD4E Will Host a Prominent British Journalist and a Distinguished British Psychologist to Discuss Their New Books

On April 28, 2022, at 10 a.m. EDT (2 p.m. GMT), A Disorder for Everyone (AD4E) will welcome Johann Hari (author of Stolen Focus: Why You Can't Pay Attention) and Lucy Johnstone (author of A Straight Talking Introduction to Psychiatric Diagnosis) to talk about their new books. "Crucial Conversations is a series of 'A Disorder for Everyone' online events in which authors of recently published books that contribute to challenging the culture of diagnosis and disorder are invited to talk about their work. There will be audience questions and a panel discussion afterwards." When you register, AD4E requests a donation based on what you can afford. For details, click here.

"Are You Between the Ages of 21 and 60 and Drink Alcohol?"

"Researchers at the National Institutes of Health (NIH) are seeking adults--[both smokers and non-smokers]--to study whether a gene and smoking may affect drinking alcohol. Volunteers should be healthy and drug-free, and not seeking treatment for alcohol-related problems. Research participation includes three outpatient visits at the NIH Clinical Center in Bethesda, MD; alcohol consumption; brain scans (MRI), blood draws, and filling out questionnaires. There is no cost to participate and compensation may be provided." For more information, click here. (Courtesy of Fran Hazam)

U.S. Surgeon General Creates Community Toolkit for Addressing Health Misinformation

"The U.S. Surgeon General’s Community Toolkit for Addressing Health Misinformation, developed in collaboration with the HHS Office of Evaluation Sciences (OES), provides specific guidance and resources for health care providers, educators, librarians, faith leaders, and trusted community members to understand, identify, and stop the spread of health misinformation in their communities." For information about the toolkit (a 22-page overview of health misinformation, and resources to stop it), and links to a “Talk to Your Community About Health Misinformation” Infographic, a “Health Misinformation Checklist” Infographic, and the Surgeon General's press release, click here.

Please Sign a Petition to Help Save a Public Mental Health Model in Italy

"Trieste is recognized by the World Health Organization as the model of global best practice in mental health care," according to a change.org petition highlighted in a recent NPR article. "It has inspired dozens of programs throughout the world to create an integrated network of community services focused upon the whole-person needs of its users; maintaining their dignity as citizens; and minimizing the coercive practices of old fashioned institutional settings...Trieste has shown us how community inclusion improves people’s lives. But this great achievement is now threatened by a new right-wing regional government that, on poorly informed and ideological grounds, is fast and impulsively dismantling Trieste's wonderful system of community care...As a Friend of Trieste and all that it stands for, please sign this petition and distribute it widely. For updates on this situation, please consult www.accoglienza.us." For the NPR article, "A public mental health model in Italy earns global praise. Now it faces its demise," click here. For the petition, click here. (Courtesy of Laura Van Tosh)

TU Collaborative Seeks Participants for Its Parenting Through Leisure Project; See Also the TU Collaborative's Parenting Resources, Including Information on Custody Issues

The Temple University Collaborative on Community Inclusion is seeking parents with lived experience of a mental health condition to participate in a paid research study. The TU Collaborative writes: "Our program, Parenting Through Leisure, focuses on helping parents with a serious mental illness participate in leisure activities with their child. We are looking for individuals who are 18 and older; are an adult parent with a diagnosis of schizophrenia-spectrum disorder, bipolar disorder, or depression; have a child who is 7 to 15 years old and is interested in participating in family leisure with you; have legal visitation rights, joint custody or full custody of the child, with at least weekly contact; and have a desire to engage in more leisure activities with their child." For details about the study and the remuneration as well as other benefits to eligible participants, and a link to sign up, click here. Questions? Please contact TUCollab@temple.edu. And for the TU Collaborative's Parenting web page--which includes links to many resources for parents with lived experience, including information about custody laws and a model family reunification statute--click here.

Lancet Offers Stakeholders New Opportunities Re: Psychosis & Participatory Research

Check out these opportunities for stakeholder involvement! (1) The Lancet Psychiatry Commission's "Lived Experience Hub" invites stakeholders to contribute blogposts to convey criticisms, concerns and/or ideas relevant to the work of the Commission. For details, click here. To submit a blog, email lancetcommissionpsychosis@gmail.com. (3) The Lancet Psychiatry Commission's "lived experience research group" is a new listserv focused on lived experience advocacy and activism on participatory psychosis research and related policy and practice. In part, this will serve as a sounding board for Lancet Commission work and a place to engage in dialogue about what needs to change. To join, email  lancetcommissionpsychosis@gmail.com.

(Courtesy of Dr. Nev Jones)

“Mental Health System: Open Letter to the Media” Seeks Signatures

“Everyone who believes that the problematic aspects of the mental health system are not adequately represented in the media is invited to sign this letter,” writes Yulia Mikhailova, who launched this initiative to educate the media. The letter begins: “We, a group of people with first-hand experience of the mental health system, write to express our concern about what we see as one-sided coverage of this system in the media and to draw the attention of civil rights organizations to the systemic discrimination that we witnessed and experienced. We, our loved ones, or inmates in the facilities where we worked, were exploited for monetary gain and victimized in various other ways. We saw how abuse, corruption, and exploitation were covered up, while victims and critics of the system were silenced and marginalized.” For a short version of the letter, which includes a link to a longer version, click here. Questions? Contact Yulia Mikhailova at yuliamikh@gmail.com.

Alternatives 2021 Is Over, but You Can View Many of the Presentations—and the Work Continues!

If you missed Alternatives 2021—the oldest national conference organized by and for individuals with lived experience of a mental health condition—you can see many of the presentations on the Alternatives conference website! The conference—whose theme was “Connecting, Organizing, Activating!”—was held July 8, 10, 15, and 17, and was organized by the National Coalition for Mental Health Recovery. This year the conference was virtual—and free! One highlight was the three Action Groups—on Promoting Racial and Social Justice, National and Statewide Advocacy, and Crisis Prevention and Alternatives to Institutionalization—which met on all four days. Reports from each of the groups are posted on the Alternatives conference website, and it is hoped that people will continue to work together to make progress on the goals that were determined by participants during the conference. For information about the Action Groups, click here. Recordings of many of the workshops, keynotes, and special activities are available on the Alternatives conference website (click here).

Disability Rights California Invites You to Its Past, Present, and Future (Free) Webinars

Disability Rights California (DRC) writes: “You are cordially invited to join us in our virtual disability rights trainings. Our webinars are twice a week, on Tuesdays at 2 p.m. ET (11 a.m. PT) in English and Thursdays at 7 p.m. ET (4 p.m. PT) in Spanish. Our free trainings provide information and resources on different topics related to mental health, self-advocacy, our legal rights (based on California law) and access to services that are informative and empowering. We welcome all peers (people with lived experience), service providers, family members and people in the community.” To view the webinars, click here.

"Psychiatrist with Philosophical Interests" leads "Conversations in Critical Psychiatry," a Psychiatric Times Series

Awais Aftab, who describes himself as a "psychiatrist with philosophical interests" in his Twitter bio, leads "Conversations in Critical Psychiatry," which, he says, "explores critical and philosophical perspectives in psychiatry and engages with prominent commentators within and outside the profession who have made meaningful criticisms of the status quo." Among those interviewed are Allen Frances, M.D., author of Saving Normal; Sandra Steingard, M.D., and G. Scott Waterman, M.D., on "Integrating Academic Inquiry and Reformist Activism in Psychiatry"; Susannah Cahalan, author of Brain on Fire: My Month of Madness, on "50 Shades of Misdiagnosis"; Kathy Flaherty, J.D., executive director of the Connecticut Legal Rights Project, Inc., on "Reconsidering Care and Coercion in Psychiatry"; Nev Jones, Ph.D., on "Phenomenology, Power, Polarization, and the Discourse on Psychosis"; Dainius Puras, M.D., on "Global Psychiatry's Crisis of Values"; and many others. For the archived interviews, click here.

CNN Offers “A Guide to Helping and Getting Help During the Coronavirus Crisis”

CNN writes: “The coronavirus pandemic is overwhelming, and one of the most excruciating parts for many people is the feeling of utter helplessness in the face of widespread suffering and hardship. CNN’s Impact Your World has compiled a list of donation opportunities and tips to help those affected by the crisis. Click on a category or scroll down to browse a list of organizations, resources and ideas. Need help? Most categories also include resources for financial, emotional or social support.” For the free guide, click here.

International Conference on Psychiatric Drug Withdrawal Scheduled for May 2022

The first conference of the International Institute for Psychiatric Drug Withdrawal is tentatively scheduled for May 2022 in Reykjavik, Iceland. “The three themes underpinning the conference are safe withdrawal from psychiatric medication, alternatives to psychiatric medication, and the need to question the dominance of medication in mental health care.” Confirmed speakers include Robert Whitaker (journalist and founder of Mad in America), Professor Joanna Moncrieff (psychiatrist and researcher), Laura Delano (co-founder of the Inner Compass Initiative and a person with lived experience), Dr. Carina Håkansson (founder of Family Care Foundation and The Extended Therapy Room Foundation), and Dr. Magnus Hald (Psychiatrist at the Drug-Free Treatment Unit, Norway). For more information, click here.

National Survey Seeks Input from Certified Peer Specialists

“Routine peer support has shown to increase individuals’ hope, sense of personal control, ability to make positive changes, and decreased psychiatric symptoms,” writes Dr. Karen Fortuna of the Geisel School of Medicine at Dartmouth. “Despite these benefits, the organizational structure of peer support is not known. Dartmouth College is initiating a national survey of trained Certified Peer Specialists to help us understand the organizational structure of peer support services.” For more information and/or to participate in the 15-minute survey, click here. (Courtesy of Judene Shelley)

Hearing Voices Network Is Now Hosting Online Groups

“There are now ONLINE opportunities to connect, share experiences, and find mutual support,” the Hearing Voices Network (HVN) writes. “These groups are accessible via web-based platforms and by phone…Online groups are specifically for those with personal lived experience with hearing voices, seeing visions, and/or negotiating alternative realities. They are voice-hearer facilitated. With further questions and for details on how to access the group[s], please email info@hearingvoicesusa.org.” To read this announcement online and for more information, click here.

Survey Seeks Respondents Who Are in Administrative/Leadership Positions in the Mental Health Field

If you are in an administrative/leadership position in the mental health arena, “the Group for the Advancement of Psychiatry (GAP) Committee on Psychiatric Administration and Leadership invites you to participate in the International Survey on Administrative Psychiatry. The survey has two purposes: 1. To identify the concerns and needs of mental health professionals/psychiatrists in administrative and leadership positions. 2. To determine training needs in administrative psychiatry. We ask you to complete this brief, [15- to 20-minute] questionnaire to help us in developing recommendations for action. We also want to let you know that, if you fill out this questionnaire, you permit the committee to use your anonymous data for scientific work.” Peer providers are included. For the survey, click here. (Courtesy of Oryx Cohen)

“Experiences with Hospitalization” Survey Seeks Participants

“The purpose of this survey is to help us understand people's lived experience with voluntary and involuntary treatment because of suicidal thoughts. It was created by people with lived experience…We are planning to use this information to facilitate discussions with suicidologists and the suicide prevention community about the impact of the use of these interventions, particularly within marginalized populations. We feel the voice of people with lived experience with these interventions has not had adequate opportunity to be heard, and hope that by completing this survey anonymously, people who have been most impacted can find a safe way to share their experiences. Please note that this is not a research project.” For more information and/or to participate, click here. (Courtesy of Leah Harris)

International Survey on Antipsychotic Medication Withdrawal Seeks Respondents

“Have you taken antipsychotic medication (such as Zyprexa, Seroquel, Abilify, Risperdal, Haldol, Geodon, Stelazine, and others), for any condition or diagnosis, with or without other medications? And did you ever stop taking antipsychotics, or try to stop taking them? Are you 18 years or older? If yes, you can take this survey about antipsychotic withdrawal and attempts to withdraw, including if you stopped taking them completely or if you tried to come off and still take them. The survey aims to improve mental health services by better understanding medication withdrawal. Lead researcher is Will Hall, a therapist and Ph.D. student who has himself taken antipsychotics. Service users/survivors/consumers from around the world also gave input. The study is sponsored by Maastricht University in the Netherlands; co-sponsors include the International Institute for Psychiatric Drug Withdrawal. Questions? Please contact will.hall@maastrichtuniversity.nl.”  For more information or to take the survey, click on www.antipsychoticwithdrawalsurvey.com

Virtual Group Works to Advance Peer Research Capacity, Leadership, and Involvement

Nev Jones, PhD—a strong advocate for building research capacity, leadership, and involvement among peers, survivors, and service users—leads a virtual group dedicated to this effort. Dr. Jones—assistant professor, School of Social Work, University of Pittsburgh—was part of the team that developed “User/Survivor Leadership & Capacity Building in Research: White Paper on Promoting Engagement Practices in Peer Evaluation/Research (PEPPER),” published by the Lived Experience Research Network. For the white paper, click here. Anyone interested in joining the virtual group can email Nev at nev.inbox@gmail.com.

Peer Support in Higher Education Survey Seeks Respondents

“Peer support programs are growing on college campuses across the U.S. Mental Health America, Doors to Wellbeing, and the Temple University Collaborative on Community Inclusion want to better understand the availability of peer support in higher education as well as the experiences and needs of students accessing peer support programs…We hope to use this research to support the expansion of peer support in higher education, including developing a national database of peer support programs in higher education and documenting pressing issues in campus programs…You may also indicate if you are interested in having your school’s peer support program listed in a national database of peer support programs in higher education.” For more information and to complete the survey, click here

Registration Is Open for Peerpocalypse, to Be Held March 14-17, 2022!

The Mental Health and Addiction Association of Oregon (MHAAO) has announced registration for Peerpocalypse 2022, to be held March 14-17, 2022! “MHAAO is pleased to present its first hybrid conference! In-person attendance allows access to pre-conference events, keynote speeches, all workshops, evening events, and the job fair and exhibit hall. Virtual attendance includes access to keynote speeches and all workshops. In-person early registration—[deadline unspecified]—is $300; regular registration is $375. Virtual registration is $200. Lunch meals (sic), CEUs, a T-shirt, a printed program, and a badge are included for both in-person and virtual attendees. Registration must be received no later than February 14, 2022, to receive a T-shirt.” To register, click here.

Mad In America Invites You to Submit Your Personal Story (Within Certain Guidelines)

Mad In America writes: “A ‘personal story’ is defined as your story of being in relationship to psychiatry and/or the mental health system, whatever that means to you. It might involve your opinions and analysis of what happened to you, as well. It can be about a specific event, or about your overall journey, provided it fits the length requirements (1,500 to 3,000 words) and has a narrative arc. The piece should be about your personal experiences, not psychiatry or the mental health system in general. Submissions should fall under the theme of rethinking psychiatry and the mental health system, and should be original works not previously published elsewhere. For examples of the types of stories we publish, view our personal stories archive here.” For more information and/or to submit a personal story, click here.

PsychAlive Offers a Variety of Webinars on Mental Health Topics, Many Free, Others $15

PsychAlive is a free, nonprofit resource created by the Glendon Association, whose mission is “to save lives and enhance mental health by addressing the social problems of suicide, violence, child abuse and troubled interpersonal relationships.” Psychalive.org offers a variety of upcoming and archived webinars, many of which are free, while others are available for $15. Among the myriad topics are “From Anxiety to Action: How to Stay Sane While Fighting Climate Change,” “How to Overcome Insecurity,” “Powerful Tools to Fight Depression,” and “Understanding and Overcoming Adverse Childhood Experiences.” To check out the webinars, click here.

Seven Ways to Keep a Digital Copy of Your Vaccination Card on Your Smartphone

“You'll need proof of vaccination to go back to work or enter many restaurants, gyms and event venues, so keep your COVID-19 card handy.” This is the advice of CNET.com, a tech support website. Besides the obvious—taking a photo of the card to store on your phone—there are six other suggestions. For details, click here. (Courtesy of Yvonne Smith)

Many Research Studies Are Seeking Participants, Mad In America Reports

Mad in America recently posted an assortment of research studies that are looking for participants. The studies include International Online Survey of Members of Peer Support Groups About Their Experiences of Withdrawing From Antidepressants; Study on Psychosocial Disability Advocacy and Global Mental Health; University of Pennsylvania Perelman School of Medicine study: Experiences of inpatient psychiatric care among former patients; Dissertation research study: Spiritual/religious experience misdiagnosed as “mental disorder”; Have you had a diagnosis of Bipolar Disorder and decided to stop taking medication?; and others. For details and to participate, click here.

ISEPP Circulates Petition to Support Human Rights in Psychiatric Treatment

ISEPP seeks signatures on a petition to  "[m]ake a strong statement that any psychiatric or psychotherapeutic interventions without full and honest informed consent are unethical and inhumane." For the petition, click here. (Courtesy of Amy Smith)

ISPS-US Offers an Array of Archived Webinars--Free but Donations Are Welcomed

The ISPS-US (The International Society for Psychological and Social Approaches to Psychosis-US Chapter) is offering a whole raft of archived webinars, which are free (although donations are welcomed). Among the webinars are "Cognitive Behavioral & Related Therapies for Psychosis: Diverse Approaches to Supporting Recovery," "How Can the Uncontainable Be Contained? Paradoxes of Madness & Philosophy," "Robert Whitaker: The Rising Non-Pharmaceutical Paradigm for 'Psychosis,'" "Life with Voices: A Guide for Harmony," "COPE Project: Non-Pharmaceutical Research on Influencing Voices and Visions," "What Hurts and What Helps In Treatment For 'Psychosis': Insider Perspectives," and many others. For more information and to access the webinars, click here.

“Where DNA and Medications Meet”

Not all drugs are effective for all people; therapeutic response rates for many drugs are only 50%-75%. “OneOme, co-founded by [the] Mayo Clinic, provides evidence-based pharmacogenomic solutions that help improve patient outcomes and reduce costs through more personalized medication decisions.” OneOme’s RightMed Test is “a doctor-ordered pharmacogenomic (PGx) test that analyzes your DNA and provides your doctors with genetic information to help them determine how you may respond to certain medications. The results may help your doctors reduce medication trial and error, minimize risk of side effects, save you time and money, and make more informed prescribing decisions. Because your DNA doesn’t change over time, your doctors can use your test results to make more personalized medication decisions for you over the course of your lifetime.” For more information, click here. (Courtesy of Robin Osborne)

Lived Experience Leadership Features 12 Years of Research Studies...

"Lived Experience Leadership features 12 years of research studies focused on this workforce in a range of settings, to foster a better of understanding and respect for Lived Experience as a distinct discipline and build clarity on what makes this work unique and valuable. Importantly, this body of research was led by Lived Experience researchers. Lived Experience Leadership provides clear and simple to read research summaries to allow community members and people employed within various industries the opportunity to easily understand and apply strategies within their own workplace. This website also includes easy to download definitionsaudio/visual resources, and key work by other Australian and International sources. The website will continue to grow to include larger collections of our research as well as other key work. For the Lived Experience Leadership website, click here. (Courtesy of Jacek Haciak)

Doors to Wellbeing Offers “State Selfies: A Picture of Peer Services Reported by Peers”

Doors to Wellbeing’s “Peer Album” is a directory of nearly 600 peer-run organizations throughout the U.S. They invite updates and offer instructions for providing them and add, “If your entry has not made this first draft, we encourage you to re-submit.” For the 158-page directory, click here.

Disclaimer: The Clearinghouse does not necessarily endorse the opinions and opportunities included in the Key Update.

About The Key Update

The National Mental Health Consumers’ Self-Help Clearinghouse is now affiliated with the Temple University Collaborative on Community Inclusion!

The Key Update is the free monthly e-newsletter of the National Mental Health Consumers’ Self-Help Clearinghouse. Volume 18, No. 9, March 2022. For content, reproduction or publication information, please contact Susan Rogers at selfhelpclearinghouse@gmail.com. Follow Susan on Twitter at @SusanRogersMH

 

 

 

 

 

 

Key Update, February 2022, Volume 18, Number 8

The National Mental Health Consumers’ Self-Help Clearinghouse is affiliated with the Temple University Collaborative on Community Inclusion.

TO CONTACT: THE CLEARINGHOUSE: SELFHELPCLEARINGHOUSE@GMAIL.COM  … SUSAN ROGERS: SUSAN.ROGERS.ADVOCACY@GMAIL.COM … JOSEPH ROGERS: JROGERS08034@GMAIL.COM

The Key Update is compiled, written, and edited by Susan Rogers, Director, National Mental Health Consumers’ Self-Help Clearinghouse.

NOTE: The "FROM PREVIOUS EDITIONS OF THE KEY UPDATE BUT STILL FRESH!" Department, which is directly below the monthly Criminal Justice Digest, includes items that had been posted "above the fold" in earlier editions but are still relevant. These include ongoing research studies that are still seeking participants, as well as upcoming webinars and conferences, and other items of continued interest. Don't miss it!

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"Major Review Finds Limited Effectiveness for Medication and Therapy"

"Most mental health treatments are marginally better than placebo; therapy for OCD seems to be the exception." This is how Mad In America sums up a new study, in World Psychiatry, evaluating the effectiveness of medication, therapy, and combined treatments. The researchers--affiliated with universities in Germany and Austria, as well as with Stanford University School of Medicine--considered "102 meta-analyses, encompassing 3,782 RCTs [Randomized Controlled Trials] and 650,514 patients," covering a wide array of diagnoses. "They found that both medication and therapy had limited efficacy in treating these problems," Mad In America reports. To overcome research biases that might cause treatment effectiveness to be overestimated, the researchers measured how effective (original emphasis) a treatment is, rather than just whether it is effective or not. Exceptions to the evidence of the limited effectiveness of most treatments included the finding that cognitive behavioral therapy (CBT) was far better than medication not only for OCD but also for PTSD. (However, most people diagnosed with OCD were also taking medication, so this could be considered a combined treatment, the researchers noted.) Meanwhile, a "compelling negative finding was that antipsychotic drugs were not very effective at treating schizophrenia.” For the Mad In America article, click here.

Free Webinar: “Preventing and Managing Suicide in an Outpatient Setting”

On February 7, 2022, at 3:30 p.m. ET,  NASMHPD (National Association of State Mental Health Program Directors) is sponsoring a free webinar presented by Dr. Laura Leone, an Integrated Health Consultant for the National Council for Mental Wellbeing. "Following this 90-minute webinar, participants will be able to register for a more intimate dialogue with Dr. Leone on February 11, 2022, at 3 p.m. ET," NASMHPD writes. This 60-minute "intimate dialogue" with Dr. Leone will include "a smaller number of registered webinar participants who will be able to ask more detailed questions and engage her more comprehensively." For more information about the webinar and Dr. Leone, and to register, click here. (Courtesy of Judene Shelley)

Part 1: Community Crisis Response Needs "A Better Way," NASMHPD Says

"A comprehensive and integrated crisis network is the first line of defense in preventing tragedies of public and patient safety, civil rights, extraordinary and unacceptable loss of lives, and the waste of resources," writes NASMHPD in the introduction to its free, eight-page fact sheet: "Taking the Lead: Investing in Community Crisis Response/Continuum." "There is a better way...Research has demonstrated the effectiveness of the core elements of systemic quality crisis care as being high-tech crisis call centers, [a] 24/7 non-law enforcement mobile crisis team, crisis stabilization centers, and essential principles and practices governing care pathways." To download the free fact sheet, click here. (Courtesy of Anne Hillman of Mental Health Mosaics) (See also below.)

Part 2: City of New York Is Sued Over Its Policy of Sending Police to Respond to Mental Health Crisis Calls

In a related story, on December 29, 2021, "a broad coalition of public interest groups and people with mental disabilities filed a class action lawsuit against the City of New York, then-Mayor Bill de Blasio, and then-Police Commissioner Dermot Shea for violating New Yorkers’ constitutional and civil rights by sending police officers—rather than trained health professionals and peers with lived mental health experience—to respond to thousands of mental health crises each year. The case challenges the legality and constitutionality of the City’s policies, which have resulted in unlawful detentions, excessive force, serious injuries, forced hospitalizations, and 19 deaths of people with disabilities at the hands of the police in the last six years alone." For the press release, click here.

Part 3: "Roll-out of 988 Threatens Anonymity of Crisis Hotlines"

"Even after their own advisory committee criticized call tracing, leaders of the National Suicide Prevention Lifeline (NSPL) have been lobbying government for cutting-edge mass surveillance and tracking technology. Privacy experts are raising concerns." This is the teaser on a January 29, 2022, Mad In America article. At issue is the NSPL's "so-called 'Active Rescue' policy." At a meeting in August 2020, four Lived Experience Committee (LEC) representatives "called 'Active Rescue' a 'euphemism' for what was usually going on—aggressive police interventions followed by forced psychiatric detentions....The LEC members recommended 'removing police involvement entirely' from the NSPL’s practices." Susan Mizner, director of the ACLU Disability Rights Program, said, “If someone has reached out to 988, that means that they’re open to help, and they’re asking for help. We don’t believe that help should come in the form of someone who carries a gun." For the article, click here.

Part 4: Brookings Institution Weighs In on 988

Although Media Bias/Fact Check rates the Brookings Institution "very high" on its "Factual Reporting" scale, Brookings' recent reporting on 988 makes no mention of the serious problems covered in detail by Mad In America. Instead, in a recent blog--"Building a Sustainable Behavioral Health Crisis Continuum"--the research organization considers 988 uncritically. Although the blog accurately notes that "[h]istorically, behavioral health crises...have been responded to in a fragmented manner, with default reliance on law enforcement, hospitals, and jails," it adds that "[t]he creation of the 988 hotline has prompted a great deal of hope that behavioral health crises will be handled more effectively, safely and efficiently than they are in our current emergency response system." Based on the challenges outlined by Mad In America, this seems unlikely at the present time. For "Building a Sustainable Behavioral Health Crisis Continuum," click here.

Global Disability Summit 2022 to Be Held (Mainly Virtually) in Norway on February 16-17

The International Disability Alliance (IDA), the Government of Norway, and the Government of Ghana will host the second Global Disability Summit (GDS22) on February 16-17, 2022. The Summit, mainly virtual, will mobilize efforts for the implementation of the UN Convention on the Rights of Persons with Disabilities (CRPD), the principle of ‘Leave No One Behind’ (LNOB), and building back better and more inclusively regarding Covid-19." For more information, click here. (Courtesy of Kevin Fitts)

NARPA Issues Call for Papers for Its 2022 Conference

The National Association for Rights Protection and Advocacy (NARPA) 2022 Annual Rights Conference, to be held October 26-29 at the Doubletree Newark Airport in Newark, New Jersey, has issued its call for workshop proposals. The deadline is March 31; selected presenters will be notified by April 30. "NARPA is seeking proposals which address strategies, ideas, programs, and emerging practices. Workshops [of approximately 90 minutes] will be selected based on adherence to the NARPA mission--"to support people with psychiatric diagnoses to exercise their legal and human rights, with the goals of abolishing forced treatment and ensuring autonomy, dignity and choice"--"with an emphasis on diversity and multicultural perspectives." For more information, contact NARPA at narpa4rights@gmail.com or 256.650.6311. "Mail proposals to NARPA, P.O. Box 855, Huntsville, AL 35804 or e-mail to narpa4rights@gmail.com. Electronic submissions preferred." For the Call for Papers, click here.

Advocates Dispute the Basis of a Recent Article About Factionalism in Mental Health Policy-Making

A recent Psychiatric Services article--"Rapprochement and Reform: Overcoming Factionalism in Policy Making for Serious Mental Illness"--attempts (according to the abstract) to "illustrate how factionalist advocacy (emphasis added) causes advocates and policy makers to fail in their duties to represent and develop policy in support of people with serious mental illness." However, in a tweet by a co-author of one of the three commentaries solicited by the publication, Nev Jones, PhD, calls readers' attention to the "[s]ubtle but real a priori choices...about whose perspectives & what perspectives ‘count.’" She added, "We all want to see greater ‘equity,’ but how to get there [&] how to address a history of exclusion that has become encoded in policy & research are questions that remain." A co-author of the original paper, Dominic A. Sisti, PhD, called all three commentaries--published simultaneously with his article--"excellent." For "Rapprochement and Reform: Overcoming Factionalism in Policy Making for Serious Mental Illness," by William R. Smith, MD, PhD, and Dominic A. Sisti, PhD, click here. For "Overcoming Factionalism in Serious Mental Illness Policy Making: A Counter-Perspective," by Kendall Atterbury, PhD, and Nev Jones, PhD, click here.

Supported Education Survey Needs Your Help

Do you operate a program that provides dedicated supported education services for individuals with psychiatric disabilities/mental health conditions? If so, you are invited to complete the survey at the link below. The primary goal of the survey is to help create a National Supported Education Database (NSEdD) that will be "a searchable listing of diverse supported education programs and services for individuals experiencing psychiatric disabilities and/or mental health challenges...across the US and its territories." The NSEdD project is sponsored by the Substance Abuse and Mental Health Services Administration (SAMHSA) and co-administered by the five SAMHSA-funded national consumer and consumer-supporter technical assistance centers, in collaboration with research partners Drs. Nev Jones (University of Pittsburgh) and Mark Salzer (Temple University). For a link to the survey, which includes a definition of supported education, click here. For a flyer with information about the survey, click here.    

Submissions Are Sought for a Special Issue on Open Dialogue

"This collection, named 'Open Dialogue around the globe,' will be published in Frontiers in Psychology," Mad In America writes. "It will include papers and contributions on Open Dialogue practices, outcomes, impact, and future directions worldwide. Peers, survivors, users, clinicians, and researchers are all welcomed to provide diverse set of perspectives. If you are interested in this opportunity, please contact Raffaella Pocobello (raffaella.pocobello@istc.cnr.it) and Sebastian von Peter (sebastian.vonpeter@mhb-fontane.de). The deadline for the abstract submission is February 25 2022. The final deadline for manuscript submission will be September 30 2022." For more information, click here.

A German City Has Created Sleep Pods for Homeless People; Tiny Houses Offer a More Elaborate Solution

Ulm, Germany, has installed sleeping pods across the city to provide shelter for people who are homeless. The windproof, waterproof pods, called Ulster Nests, are made from wood and steel and are fitted with solar panels. They're designed as an emergency shelter for up to two people. "They've been fitted with sensors which can monitor temperature, humidity, smoke and carbon dioxide levels and an electronic verification system so those using it can lock the capsule from the inside. They also have lighting, an alarm signal buzzer and a ventilation system," according to a BBC article. When a pod door opens, it "triggers a motion sensor which lets social workers who check the pods know they've been used so they can get them cleaned, and so they can also provide help to those who might need it." For the BBC article, click here. For another answer to housing homeless people, see "shipping containers [that] unfold into $50,000 tiny homes that can be stacked into custom buildings," covered in the October 2020 edition of the Key Update. For the story, click here. For a video demonstrating how the tiny houses are erected, click here.

"Ethnic Minorities Experience Persisting Inequality in Treatment for Mental Health Problems," a British Study Has Found. The Same Inequities Persist in the US.

Research recently published in the British Journal of Psychiatry "found that people from all ethnic minority groups were less likely to receive a range of interventions for problems like depression or anxiety compared to White British people." The investigators also found "that the inequality gap widened [between 2007 and 2014] for Black people with these conditions." Calling the lack of appropriate help for common mental health conditions provided to people from ethnic minority backgrounds "an enduring pattern," the study's "first author" noted that this was "'in contrast to stark overrepresentation, particularly for Black people, in being detained under the Mental Health Act at points of crisis.'" In a related story, on January 18, 2021, the American Psychiatric Association apologized to Black, Indigenous, and People of Color (BIPOC) for the harm it has caused--and continues to cause--them. For the APA press release, reported in the February 2021 edition of the Key Update, click here. For "The Historical Roots of Racial Disparities in the Mental Health System," click here. For the Medical Xpress story reporting on the British study, click here.

Free Webinar: "Community Inclusion and Recovery: How Community Inclusion Helped Me"

In its ongoing monthly series of free, one-hour webinars, Doors to Wellbeing will sponsor "Community Inclusion and Recovery: How Community Inclusion Helped Me" presented by Natalie Klaus-Rogers, on February 22, 2022, at 2 p.m. ET. "Using the presenter’s personal journey of working to get off of disability benefits after 20 years for permanent full-time employment, this webinar discusses the importance of community inclusion for peers with mental health challenges. Sometimes stigma, community mental health care, and lack of self-confidence can make community participation more difficult for people with mental health challenges. However, community inclusion is key to being well, getting well, and staying well." For more information and to register, click here.

TU Collaborative Publishes "The 2022 Guide to Getting Out of the House"

"While the past two years of the COVID-19 pandemic have impacted the way we spend time with one another, this 2022 calendar is focused on getting out of our homes and connecting with the people and places in our communities," the Temple University Collaborative on Community Inclusion writes. "As we head into 2022, we hope that this calendar can help you to maintain meaningful community connections and participation!" To download the free calendar, click here. And for the TU Collaborative #CollabChats podcast series, which "shares the latest cutting edge community inclusion research from the Temple University Collaborative and partner centers,” click here.

"New NICE Guidelines for ECT Are Dangerously Inadequate, Say 50 Patients and Professionals"

NICE (National Institute for Health and Care Excellence), a British nonprofit that provides "national guidance and advice to improve health and social care," recently issued new ECT guidelines that completely ignore the concerns NICE had raised in 2003 and again in 2019, in which it noted the lack of evidence justifying the use of ECT (electroconvulsive treatment). In response, "an open letter from 50 people, including 18 ECT patients and relatives, 12 Psychiatrists and 7 Professors, has been sent to NICE, and the [British] government, calling for the ECT section of the draft guidelines to be ‘radically rewritten’ to avoid putting patients’ safety at risk," and listing the "10 most important flaws in the draft guidance," a Council for Evidence-Based Psychiatry blog reports. For the blog, which includes links to the letter, and to other relevant information, including a "2021 audit of ECT use in England [that] found multiple failings, putting patient safety at risk," click here.

"What Doesn't Kill You Makes You Stronger"? Guess Again.

"Repeated exposure to major disasters does not make people mentally stronger, a recent study found: individuals who have been repeatedly exposed to major disasters show a reduction in mental health scores," Science Daily reports. According to a recent Texas A&M University study, "the more experience the individuals had with such events, the lower their mental health was." The researchers studied the Houston area, which had been affected by many of the 33 major natural disasters in Texas from 2000 to 2020, in addition to manmade industrial emergencies. Using a short survey to assess respondents' mental and physical health, "the team found that when individuals experienced two or more events over the past five years, their MCS [Mental Component Summary] averages fell below the expected national levels. The results of the study...underscore the need for public health interventions targeted toward these individuals as well as the communities where they reside." For the Science Daily article, click here.

How Do You Know When It's Time to Quit Therapy?

A recent article in Teen Vogue suggests that knowing when to quit therapy "depends, in part, on the problems at hand and how large they loom over a person's life...But knowing when to stop therapy is also dependent on what a patient's initial objectives were for counseling...and how close they’ve gotten to achieving them." Meanwhile, a 2013 article in The New York Times suggests that, among other reasons to quit, "if you have gained from therapy what you set out to, if you feel you’ve developed skills to help resolve problems and conflicts, if you’ve learned to cope with stress, and if you have gotten past the things that have been holding you back, then the time has come to graduate from therapy, and you can do so with confidence." And a recent review of The Zen of Therapy, also in the Times, notes that "freedom lies ultimately not in understanding what happened to us, but in loosening our grip on it all...The goal...isn’t to reach the state of feeling glowingly positive about yourself and your life. It’s to become less entangled with that whole question, so that you get to spend your time on more meaningful things instead." For the Teen Vogue article, click here. For the 2013 NY Times article, click here. And for the Times book review, click here.

On April 28, AD4E Will Host a Prominent British Journalist and a Distinguished British Psychologist to Discuss Their New Books

On April 28, 2022, at 10 a.m. EDT (2 p.m. GMT), A Disorder for Everyone (AD4E) will welcome Johann Hari (author of Stolen Focus: Why You Can't Pay Attention) and Lucy Johnstone (author of A Straight Talking Introduction to Psychiatric Diagnosis) to talk about their new books. "Crucial Conversations is a series of 'A Disorder for Everyone' online events in which authors of recently published books that contribute to challenging the culture of diagnosis and disorder are invited to talk about their work. There will be audience questions and a panel discussion afterwards." When you register, AD4E requests a donation based on what you can afford. For details, click here.

Sylvia Caras, a Passionate Mental Health Advocate, Has Died at Age 86

Sylvia Caras, a tireless community organizer with lived experience, has died at age 86. A resident of Santa Cruz, California, Sylvia was active nationally and internationally. (In the World Health Organization's "Mental Health Policy and Service Guidance Package: Mental Health Legislation and Human Rights," she is among those who are thanked for their "expert opinion and technical input.") In a blog created by her family to celebrate her 70th birthday, many notable mental health advocates and other experts contributed warm comments. Among them was award-winning anthropologist and author Dr. Sue Estroff, who wrote, in part: "...Sylvia is one, if not THE, most informed, erudite, passionate scholar and advocate in the human right/disability/people with psychiatric diagnoses arena. I learn from her..." In "The Downside of the Family-Organized Mental Illness Advocacy Movement," published in Psychiatric Services in 1998, Sylvia wrote, "As a person with a disability, what I want is acceptance. When you speak of my life as a tragedy, you are robbing me of my dignity. I want you to see my potential..." For the article, click here. Rest in Power, Sylvia Caras.

"Artist with Anxiety Illustrates Mental Health Tips She Learns in Therapy"

"Illustrator Kate Allan was diagnosed with Generalized Anxiety Disorder as an adult. The identification not only validated her experience, but it has given her the opportunity to use her artistic talent to help herself and others in the quest for improved mental health. Allan has taken what she’s learned since entering therapy to create a mental health comic about mindfulness. 'Mindfulness,' she says on Twitter, 'can be useful for literally everyone, but I found it particularly helpful for anxiety—this exercise got me out of the house and functioning again.'” For Kate Allan's comic, click here.

The February 2022 Digest of Articles Offering Healthy Lifestyle Advice

For "This Simple Piece of Equipment Could Elevate Your Workout: A jump rope can increase your agility and speed while giving you a great workout in half the time of a run," click here. For "Are You Dreaming Too Big? Lifelong, hard-to-achieve goals might not make you happier. Small steps will," click here. For "An 11-Minute Body-Weight Workout With Proven Fitness Benefits: Five minutes of burpees, jump squats and other calisthenics, alternating with rest, improved aerobic endurance in out-of-shape men and women," click here. For "The Year in Fitness: Shorter Workouts, Greater Clarity, Longer Lives: The most vital exercise science of 2021 provided a reminder that our bodies and minds can flourish, no matter our circumstances," click here.

The February 2022 Digest of Articles about the Criminal Justice System, in Which Many Individuals with Mental Health Conditions Are Incarcerated (and the Key Update continues after this Digest)

For "How Do You Clear a Pot Conviction From Your Record? It depends on where you live. (Californians, you’re in luck.)," click here. For "The Criminal Justice Issue Nobody Talks About: Brain Injuries--I know firsthand what it’s like to navigate the criminal justice system with a brain injury caused by domestic violence. I also live with the fact that an injury like mine can turn a victim into a perpetrator," click here. For "A Family-Centered Approach to Criminal Justice Reform" (105 pages), click here. For "Remedying injustice for the wrongfully convicted does not end when they are released," click here. For "In first day of civil rights trial, former David Wade prisoners describe years of solitary confinement, filthy living areas and poor mental health care," click here. For "The Artists of Sing Sing: At an exhibition hosted by Rehabilitation Through the Arts, subjects included Ta-Nehisi Coates, Nikole Hannah-Jones, global warming, and home," click here. For "State of Justice," a newsletter of the Council of State Governments Justice Center, click here. For "The Sentences That Create Us: Crafting A Writer’s Life in Prison," click here. For "Opinion: Can’t pay the court? Go to jail. Debtors’ prison lives on," click here. For "Make Prosecutors 'Earn' Immunity," click here. For "‘The Only Way We Get Out of There Is in a Pine Box’: Elderly, ailing and expensive, lifetime prisoners cost Louisiana taxpayers millions a year," click here. For "Video of 'Fight Night' at Rikers Jail Leads Judge to Find Cruel and Unusual Punishment: A New York state judge found video of guards ceding control of Rikers to gang leaders more than enough evidence to order the release of a pretrial inmate," click here. For "Walla Walla Mean Face: Dispatch From a Prison Transfer--Moving brings anxiety, disruption for incarcerated," click here. For "Shaker Heights, MetroHealth collaboration will send social workers on 911 calls to connect mentally ill with help," click here. For "Storycatchers Theatre Works With Incarcerated Youths To Tell Their Stories And Break Down Barriers," click here. For "After more than six years of federal oversight, dangerous problems persist in L.A. County jails," click here. For "Brave Behind Bars: Prison education program focuses on computing skills for women. MIT computer scientists and mathematicians offer an introductory computing and career-readiness program for incarcerated women in New England," click here. For "New data: The changes in prisons, jails, probation, and parole in the first year of the pandemic--Newly released data from 2020 show the impact of early-pandemic correctional policy choices and what kind of change is possible under pressure. But the data also show how inadequate, uneven, and unsustained policy changes have been: most have already been reversed," click here. For "Cost of Incarceration in the US," click here. For "Prison Food: A Curated Collection of Links," click here. For "Here's Why Abolishing Private Prisons Isn't a Silver Bullet: The vast majority of prisoners are held in publicly run prisons. But the private sector affects their incarceration in different ways," click here.

FROM PREVIOUS EDITIONS OF THE KEY UPDATE BUT STILL FRESH!

National Survey on Student Rights, Discrimination, and Accommodations in Higher Education Seeks Respondents  

"Have you experienced psychiatric disability-based discrimination or the denial of an accommodation in a postsecondary institution in the United States? Interested in informing national advocacy focus on psych disability rights in higher ed? Mental Health America (lead: Kelly Davis) and collaborators Dr. Nev Jones (University of Pittsburgh), Stefanie Kaufman-Mthimkhulu (Project LETS) and Brit Vanneman Esq. (Bazelon Center for Mental Health Law) have developed "a survey aimed at providing a more comprehensive understanding of student experiences of campus-based discrimination, mandated leaves of absence, and/or denial of academic, administrative and/or student-work accommodations in the U.S. Data will be used to inform national advocacy efforts and future projects, and in reports, presentations and publications." For eligibility and to access the survey, click here.

"Are You Between the Ages of 21 and 60 and Drink Alcohol?"

"Researchers at the National Institutes of Health (NIH) are seeking adults--[both smokers and non-smokers]--to study whether a gene and smoking may affect drinking alcohol. Volunteers should be healthy and drug-free, and not seeking treatment for alcohol-related problems. Research participation includes three outpatient visits at the NIH Clinical Center in Bethesda, MD; alcohol consumption; brain scans (MRI), blood draws, and filling out questionnaires. There is no cost to participate and compensation may be provided." For more information, click here. (Courtesy of Fran Hazam)

U.S. Surgeon General Creates Community Toolkit for Addressing Health Misinformation

"The U.S. Surgeon General’s Community Toolkit for Addressing Health Misinformation, developed in collaboration with the HHS Office of Evaluation Sciences (OES), provides specific guidance and resources for health care providers, educators, librarians, faith leaders, and trusted community members to understand, identify, and stop the spread of health misinformation in their communities." For information about the toolkit (a 22-page overview of health misinformation, and resources to stop it), and links to a “Talk to Your Community About Health Misinformation” Infographic, a “Health Misinformation Checklist” Infographic, and the Surgeon General's press release, click here.

Please Sign a Petition to Help Save a Public Mental Health Model in Italy

"Trieste is recognized by the World Health Organization as the model of global best practice in mental health care," according to a change.org petition highlighted in a recent NPR article. "It has inspired dozens of programs throughout the world to create an integrated network of community services focused upon the whole-person needs of its users; maintaining their dignity as citizens; and minimizing the coercive practices of old fashioned institutional settings...Trieste has shown us how community inclusion improves people’s lives. But this great achievement is now threatened by a new right-wing regional government that, on poorly informed and ideological grounds, is fast and impulsively dismantling Trieste's wonderful system of community care...As a Friend of Trieste and all that it stands for, please sign this petition and distribute it widely. For updates on this situation, please consult www.accoglienza.us." For the NPR article, "A public mental health model in Italy earns global praise. Now it faces its demise," click here. For the petition, click here. (Courtesy of Laura Van Tosh)

TU Collaborative Seeks Participants for Its Parenting Through Leisure Project; See Also the TU Collaborative's Parenting Resources, Including Information on Custody Issues

The Temple University Collaborative on Community Inclusion is seeking parents with lived experience of a mental health condition to participate in a paid research study. The TU Collaborative writes: "Our program, Parenting Through Leisure, focuses on helping parents with a serious mental illness participate in leisure activities with their child. We are looking for individuals who are 18 and older; are an adult parent with a diagnosis of schizophrenia-spectrum disorder, bipolar disorder, or depression; have a child who is 7 to 15 years old and is interested in participating in family leisure with you; have legal visitation rights, joint custody or full custody of the child, with at least weekly contact; and have a desire to engage in more leisure activities with their child." For details about the study and the remuneration as well as other benefits to eligible participants, and a link to sign up, click here. Questions? Please contact TUCollab@temple.edu. And for the TU Collaborative's Parenting web page--which includes links to many resources for parents with lived experience, including information about custody laws and a model family reunification statute--click here.

Lancet Offers Stakeholders New Opportunities Re: Psychosis & Participatory Research

Check out these opportunities for stakeholder involvement! (1) The Lancet Psychiatry Commission's "Lived Experience Hub" invites stakeholders to contribute blogposts to convey criticisms, concerns and/or ideas relevant to the work of the Commission. For details, click here. To submit a blog, email lancetcommissionpsychosis@gmail.com. (2) The Lancet Psychiatry Commission's "lived experience research group" is a new listserv focused on lived experience advocacy and activism on participatory psychosis research and related policy and practice. In part, this will serve as a sounding board for Lancet Commission work and a place to engage in dialogue about what needs to change. To join, email  lancetcommissionpsychosis@gmail.com. (Courtesy of Dr. Nev Jones)

 “Mental Health System: Open Letter to the Media” Seeks Signatures

“Everyone who believes that the problematic aspects of the mental health system are not adequately represented in the media is invited to sign this letter,” writes Yulia Mikhailova, who launched this initiative to educate the media. The letter begins: “We, a group of people with first-hand experience of the mental health system, write to express our concern about what we see as one-sided coverage of this system in the media and to draw the attention of civil rights organizations to the systemic discrimination that we witnessed and experienced. We, our loved ones, or inmates in the facilities where we worked, were exploited for monetary gain and victimized in various other ways. We saw how abuse, corruption, and exploitation were covered up, while victims and critics of the system were silenced and marginalized.” For a short version of the letter, which includes a link to a longer version, click here. Questions? Contact Yulia Mikhailova at yuliamikh@gmail.com.

Alternatives 2021 Is Over, but You Can View Many of the Presentations—and the Work Continues!

If you missed Alternatives 2021—the oldest national conference organized by and for individuals with lived experience of a mental health condition—you can see many of the presentations on the Alternatives conference website! The conference—whose theme was “Connecting, Organizing, Activating!”—was held July 8, 10, 15, and 17, and was organized by the National Coalition for Mental Health Recovery. This year the conference was virtual—and free! One highlight was the three Action Groups—on Promoting Racial and Social Justice, National and Statewide Advocacy, and Crisis Prevention and Alternatives to Institutionalization—which met on all four days. Reports from each of the groups are posted on the Alternatives conference website, and it is hoped that people will continue to work together to make progress on the goals that were determined by participants during the conference. For information about the Action Groups, click here. Recordings of many of the workshops, keynotes, and special activities are available on the Alternatives conference website (click here).

Disability Rights California Invites You to Its Past, Present, and Future (Free) Webinars

Disability Rights California (DRC) writes: “You are cordially invited to join us in our virtual disability rights trainings. Our webinars are twice a week, on Tuesdays at 2 p.m. ET (11 a.m. PT) in English and Thursdays at 7 p.m. ET (4 p.m. PT) in Spanish. Our free trainings provide information and resources on different topics related to mental health, self-advocacy, our legal rights (based on California law) and access to services that are informative and empowering. We welcome all peers (people with lived experience), service providers, family members and people in the community.” To view the webinars, click here.

"Psychiatrist with Philosophical Interests" leads "Conversations in Critical Psychiatry," a Psychiatric Times Series

Awais Aftab, who describes himself as a "psychiatrist with philosophical interests" in his Twitter bio, leads "Conversations in Critical Psychiatry," which, he says, "explores critical and philosophical perspectives in psychiatry and engages with prominent commentators within and outside the profession who have made meaningful criticisms of the status quo." Among those interviewed are Allen Frances, M.D., author of Saving Normal; Sandra Steingard, M.D., and G. Scott Waterman, M.D., on "Integrating Academic Inquiry and Reformist Activism in Psychiatry"; Susannah Cahalan, author of Brain on Fire: My Month of Madness, on "50 Shades of Misdiagnosis"; Kathy Flaherty, J.D., executive director of the Connecticut Legal Rights Project, Inc., on "Reconsidering Care and Coercion in Psychiatry"; Nev Jones, Ph.D., on "Phenomenology, Power, Polarization, and the Discourse on Psychosis"; Dainius Puras, M.D., on "Global Psychiatry's Crisis of Values"; and many others. For the archived interviews, click here.

CNN Offers “A Guide to Helping and Getting Help During the Coronavirus Crisis”

CNN writes: “The coronavirus pandemic is overwhelming, and one of the most excruciating parts for many people is the feeling of utter helplessness in the face of widespread suffering and hardship. CNN’s Impact Your World has compiled a list of donation opportunities and tips to help those affected by the crisis. Click on a category or scroll down to browse a list of organizations, resources and ideas. Need help? Most categories also include resources for financial, emotional or social support.” For the free guide, click here.

International Conference on Psychiatric Drug Withdrawal Scheduled for May 2022

The first conference of the International Institute for Psychiatric Drug Withdrawal is tentatively scheduled for May 2022 in Reykjavik, Iceland. “The three themes underpinning the conference are safe withdrawal from psychiatric medication, alternatives to psychiatric medication, and the need to question the dominance of medication in mental health care.” Confirmed speakers include Robert Whitaker (journalist and founder of Mad in America), Professor Joanna Moncrieff (psychiatrist and researcher), Laura Delano (co-founder of the Inner Compass Initiative and a person with lived experience), Dr. Carina Håkansson (founder of Family Care Foundation and The Extended Therapy Room Foundation), and Dr. Magnus Hald (Psychiatrist at the Drug-Free Treatment Unit, Norway). For more information, click here.

National Survey Seeks Input from Certified Peer Specialists

“Routine peer support has shown to increase individuals’ hope, sense of personal control, ability to make positive changes, and decreased psychiatric symptoms,” writes Dr. Karen Fortuna of the Geisel School of Medicine at Dartmouth. “Despite these benefits, the organizational structure of peer support is not known. Dartmouth College is initiating a national survey of trained Certified Peer Specialists to help us understand the organizational structure of peer support services.” For more information and/or to participate in the 15-minute survey, click here. (Courtesy of Judene Shelley)

Hearing Voices Network Is Now Hosting Online Groups

“There are now ONLINE opportunities to connect, share experiences, and find mutual support,” the Hearing Voices Network (HVN) writes. “These groups are accessible via web-based platforms and by phone…Online groups are specifically for those with personal lived experience with hearing voices, seeing visions, and/or negotiating alternative realities. They are voice-hearer facilitated. With further questions and for details on how to access the group[s], please email info@hearingvoicesusa.org.” To read this announcement online and for more information, click here.

Survey Seeks Respondents Who Are in Administrative/Leadership Positions in the Mental Health Field

If you are in an administrative/leadership position in the mental health arena, “the Group for the Advancement of Psychiatry (GAP) Committee on Psychiatric Administration and Leadership invites you to participate in the International Survey on Administrative Psychiatry. The survey has two purposes: 1. To identify the concerns and needs of mental health professionals/psychiatrists in administrative and leadership positions. 2. To determine training needs in administrative psychiatry. We ask you to complete this brief, [15- to 20-minute] questionnaire to help us in developing recommendations for action. We also want to let you know that, if you fill out this questionnaire, you permit the committee to use your anonymous data for scientific work.” Peer providers are included. For the survey, click here. (Courtesy of Oryx Cohen)

 “Experiences with Hospitalization” Survey Seeks Participants

“The purpose of this survey is to help us understand people's lived experience with voluntary and involuntary treatment because of suicidal thoughts. It was created by people with lived experience…We are planning to use this information to facilitate discussions with suicidologists and the suicide prevention community about the impact of the use of these interventions, particularly within marginalized populations. We feel the voice of people with lived experience with these interventions has not had adequate opportunity to be heard, and hope that by completing this survey anonymously, people who have been most impacted can find a safe way to share their experiences. Please note that this is not a research project.” For more information and/or to participate, click here. (Courtesy of Leah Harris)

International Survey on Antipsychotic Medication Withdrawal Seeks Respondents

“Have you taken antipsychotic medication (such as Zyprexa, Seroquel, Abilify, Risperdal, Haldol, Geodon, Stelazine, and others), for any condition or diagnosis, with or without other medications? And did you ever stop taking antipsychotics, or try to stop taking them? Are you 18 years or older? If yes, you can take this survey about antipsychotic withdrawal and attempts to withdraw, including if you stopped taking them completely or if you tried to come off and still take them. The survey aims to improve mental health services by better understanding medication withdrawal. Lead researcher is Will Hall, a therapist and Ph.D. student who has himself taken antipsychotics. Service users/survivors/consumers from around the world also gave input. The study is sponsored by Maastricht University in the Netherlands; co-sponsors include the International Institute for Psychiatric Drug Withdrawal. Questions? Please contact will.hall@maastrichtuniversity.nl.”  For more information or to take the survey, click on www.antipsychoticwithdrawalsurvey.com

Virtual Group Works to Advance Peer Research Capacity, Leadership, and Involvement

Nev Jones, PhD—a strong advocate for building research capacity, leadership, and involvement among peers, survivors, and service users—leads a virtual group dedicated to this effort. Dr. Jones—assistant professor, School of Social Work, University of Pittsburgh—was part of the team that developed “User/Survivor Leadership & Capacity Building in Research: White Paper on Promoting Engagement Practices in Peer Evaluation/Research (PEPPER),” published by the Lived Experience Research Network. For the white paper, click here. Anyone interested in joining the virtual group can email Nev at nev.inbox@gmail.com.

Peer Support in Higher Education Survey Seeks Respondents

“Peer support programs are growing on college campuses across the U.S. Mental Health America, Doors to Wellbeing, and the Temple University Collaborative on Community Inclusion want to better understand the availability of peer support in higher education as well as the experiences and needs of students accessing peer support programs…We hope to use this research to support the expansion of peer support in higher education, including developing a national database of peer support programs in higher education and documenting pressing issues in campus programs…You may also indicate if you are interested in having your school’s peer support program listed in a national database of peer support programs in higher education.” For more information and to complete the survey, click here

Registration Is Open for Peerpocalypse, to Be Held March 14-17, 2022!

The Mental Health and Addiction Association of Oregon (MHAAO) has announced registration for Peerpocalypse 2022, to be held March 14-17, 2022! “MHAAO is pleased to present its first hybrid conference! In-person attendance allows access to pre-conference events, keynote speeches, all workshops, evening events, and the job fair and exhibit hall. Virtual attendance includes access to keynote speeches and all workshops. In-person early registration—[deadline unspecified]—is $300; regular registration is $375. Virtual registration is $200. Lunch meals (sic), CEUs, a T-shirt, a printed program, and a badge are included for both in-person and virtual attendees. Registration must be received no later than February 14, 2022, to receive a T-shirt.” To register, click here.

Mad In America Invites You to Submit Your Personal Story (Within Certain Guidelines)

Mad In America writes: “A ‘personal story’ is defined as your story of being in relationship to psychiatry and/or the mental health system, whatever that means to you. It might involve your opinions and analysis of what happened to you, as well. It can be about a specific event, or about your overall journey, provided it fits the length requirements (1,500 to 3,000 words) and has a narrative arc. The piece should be about your personal experiences, not psychiatry or the mental health system in general. Submissions should fall under the theme of rethinking psychiatry and the mental health system, and should be original works not previously published elsewhere. For examples of the types of stories we publish, view our personal stories archive here.” For more information and/or to submit a personal story, click here.

PsychAlive Offers a Variety of Webinars on Mental Health Topics, Many Free, Others $15

PsychAlive is a free, nonprofit resource created by the Glendon Association, whose mission is “to save lives and enhance mental health by addressing the social problems of suicide, violence, child abuse and troubled interpersonal relationships.” Psychalive.org offers a variety of upcoming and archived webinars, many of which are free, while others are available for $15. Among the myriad topics are “From Anxiety to Action: How to Stay Sane While Fighting Climate Change,” “How to Overcome Insecurity,” “Powerful Tools to Fight Depression,” and “Understanding and Overcoming Adverse Childhood Experiences.” To check out the webinars, click here.

Seven Ways to Keep a Digital Copy of Your Vaccination Card on Your Smartphone

“You'll need proof of vaccination to go back to work or enter many restaurants, gyms and event venues, so keep your COVID-19 card handy.” This is the advice of CNET.com, a tech support website. Besides the obvious—taking a photo of the card to store on your phone—there are six other suggestions. For details, click here. (Courtesy of Yvonne Smith)

ISEPP Circulates Petition to Support Human Rights in Psychiatric Treatment

ISEPP seeks signatures on a petition to  "[m]ake a strong statement that any psychiatric or psychotherapeutic interventions without full and honest informed consent are unethical and inhumane." For the petition, click here. (Courtesy of Amy Smith)

ISPS-US Offers an Array of Archived Webinars--Free but Donations Are Welcomed

The ISPS-US (The International Society for Psychological and Social Approaches to Psychosis-US Chapter) is offering a whole raft of archived webinars, which are free (although donations are welcomed). Among the webinars are "Cognitive Behavioral & Related Therapies for Psychosis: Diverse Approaches to Supporting Recovery," "How Can the Uncontainable Be Contained? Paradoxes of Madness & Philosophy," "Robert Whitaker: The Rising Non-Pharmaceutical Paradigm for 'Psychosis,'" "Life with Voices: A Guide for Harmony," "COPE Project: Non-Pharmaceutical Research on Influencing Voices and Visions," "What Hurts and What Helps In Treatment For 'Psychosis': Insider Perspectives," and many others. For more information and to access the webinars, click here.

“Where DNA and Medications Meet”

Not all drugs are effective for all people; therapeutic response rates for many drugs are only 50%-75%. “OneOme, co-founded by [the] Mayo Clinic, provides evidence-based pharmacogenomic solutions that help improve patient outcomes and reduce costs through more personalized medication decisions.” OneOme’s RightMed Test is “a doctor-ordered pharmacogenomic (PGx) test that analyzes your DNA and provides your doctors with genetic information to help them determine how you may respond to certain medications. The results may help your doctors reduce medication trial and error, minimize risk of side effects, save you time and money, and make more informed prescribing decisions. Because your DNA doesn’t change over time, your doctors can use your test results to make more personalized medication decisions for you over the course of your lifetime.” For more information, click here. (Courtesy of Robin Osborne)

Lived Experience Leadership Features 12 Years of Research Studies...

"Lived Experience Leadership features 12 years of research studies focused on this workforce in a range of settings, to foster a better of understanding and respect for Lived Experience as a distinct discipline and build clarity on what makes this work unique and valuable. Importantly, this body of research was led by Lived Experience researchers. Lived Experience Leadership provides clear and simple to read research summaries to allow community members and people employed within various industries the opportunity to easily understand and apply strategies within their own workplace. This website also includes easy to download definitionsaudio/visual resources, and key work by other Australian and International sources. The website will continue to grow to include larger collections of our research as well as other key work. For the Lived Experience Leadership website, click here. (Courtesy of Jacek Haciak)

Doors to Wellbeing Offers “State Selfies: A Picture of Peer Services Reported by Peers”

Doors to Wellbeing’s “Peer Album” is a directory of nearly 600 peer-run organizations throughout the U.S. They invite updates and offer instructions for providing them and add, “If your entry has not made this first draft, we encourage you to re-submit.” For the 158-page directory, click here.

Disclaimer: The Clearinghouse does not necessarily endorse the opinions and opportunities included in the Key Update.

About The Key Update

The National Mental Health Consumers’ Self-Help Clearinghouse is now affiliated with the Temple University Collaborative on Community Inclusion.

The Key Update is the free monthly e-newsletter of the National Mental Health Consumers’ Self-Help Clearinghouse. Volume 18, No. 8, February 2022. For content, reproduction or publication information, please contact Susan Rogers at selfhelpclearinghouse@gmail.com. Follow Susan on Twitter at @SusanRogersMH

 

 

 

 

 

 

Key Update, January 2022, Volume 18, Number 7

The National Mental Health Consumers’ Self-Help Clearinghouse is affiliated with the Temple University Collaborative on Community Inclusion!

TO CONTACT: THE CLEARINGHOUSE: SELFHELPCLEARINGHOUSE@GMAIL.COM  … SUSAN ROGERS: SUSAN.ROGERS.ADVOCACY@GMAIL.COM … JOSEPH ROGERS: JROGERS08034@GMAIL.COM

 The Key Update is compiled, written, and edited by Susan Rogers, Director, National Mental Health Consumers’ Self-Help Clearinghouse.

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NOTE: The "FROM PREVIOUS EDITIONS OF THE KEY UPDATE BUT STILL FRESH!" Department (directly below the monthly Criminal Justice Digest) includes items that are still relevant, including research studies still seeking participants, as well as upcoming webinars and conferences, and other items of continued interest. Don't miss it!

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Revised DSM to Be Rolled Out in March, the APA Announces

The American Psychiatric Association will release a revised edition of its Diagnostic and Statistical Manual (DSM-5) in March, Psychiatric News reports. Among its changes are "a comprehensive review of the impact of racism and discrimination on the diagnosis and manifestations of mental disorders," and updates to "gender dysphoria" that reflect current concepts, such as changing "cross-sex medical procedure" to "gender-affirming medical procedure." However, some revised wording may be misleading. For example, according to the article, "neuroleptic" is "an anachronistic term that emphasizes side effects (emphasis added). It will no longer be used except in the case of the widely used 'neuroleptic malignant syndrome.'...” Instead, the DSM-5-TR will apparently use terms that may downplay the risk of such side effects as tardive dyskinesia. For the Psychiatric News article, click here. (Courtesy of Indigo Daya)

Is Online Gaming "the New Therapist’s Office"? Evidence Points in That Direction

"[O]nline multiplayer and single-player gaming can be healing in the hands of mental health professionals," according to a recent article in Wired. "Some research suggests that video games can be as effective—and potentially more effective—as other mental health interventions, particularly for anxiety...And sometimes it’s within a game world’s digital boundaries that patients may feel more safety and freedom to work through intense emotions." In a related article in myfitnessexercises.net, the president of Geek Therapy (a nonprofit that advocates for video games to be used in therapy) says that Minecraft and Fortnite especially lend themselves to therapeutic purposes. And a 2010 article in Review of General Psychology notes that “[r]ecent experience suggests that video games may facilitate therapeutic relationships, complement the psychological assessment of youth by evaluating cognitive skills, and elaborate and clarify conflicts during the therapy process." For the Wired article, click here. For the myfitnessexercises.net article, click here. For the Review of General Psychology article, click here.

Medicating Normal Will Begin a Three-Year Run on Public Television Across the US on Jan. 2, 2022 
Medicating Normal, "the untold story of what can happen when profit-driven medicine intersects with human beings in distress," will begin a three-year run on public television on January 2, 2022. “[The pharmaceutical industry] wants to disease-ify every single experience because they want to sell their pills to treat it,” said Anna Lembke, MD, of Stanford University Medical Center, who is quoted in the film. To find out when it airs in your part of the country, click here. (If you don’t see your local station listed, find your station and request via email that they air Medicating Normal.) For more information about the film, click here. (Courtesy of Berta Britz)

Free Webinar: "Discarded America: Rural America's Social Injustice and Mental Health Crisis"

On January 12, 2022, at 12 p.m. ET, The National Coalition for Mental Health Recovery (NCMHR) is presenting a free, 90-minute webinar on "Discarded America: Rural America's Social Injustice and Mental Health Crisis." The webinar will take a look at "the racial and social injustice in rural America through the eyes of people with mental health concerns who have been affected by law enforcement; educators; and public policy through elected officials." The NCMHR plans to create a documentary on this subject and requests support through a tax-deductible contribution. To contribute, click here. To register for the webinar, click here.

Free Webinar: "Core Competencies for Peer Crisis Support: Values, Practices, and Skills"

On January 12, 2022, at 1 p.m. ET, NYAPRS and the College for Behavioral Health Leadership will present a free webinar on "Core Competencies for Peer Crisis Support: Values, Practices, and Skills." The webinar will be presented by Eduardo Vega, who will share details about the "Growing Through" model of advanced peer crisis support training and will engage in a discussion with webinar attendees about "the integration of this model from the lens of public mental health and suicide prevention fields," NYAPRS writes. In addition, you can review Eduardo's December 15th presentation, "Intensity, Lived Experience and Crisis: Activating Peer Support for a Transformed Mental Health Crisis Response System," at this link. To register for the January 12th webinar, click here.

"Many States Aren’t Ready for a 988 Crisis Line. The Deadline Is Looming"

A federal law has mandated that, by July 16, 2022, every state in the U.S. must have installed the new 988 system, an alternative to calling 911 that could be a game-changer by dispatching trained staff rather than law enforcement to respond to behavioral health calls. "Calling 911 for people having mental health breakdowns has led to deaths that were avoidable, especially among people of color. Between 2015 and 2020, 1 in 4 people who were shot and killed by police had a mental illness; 1 in 3 were people of color," a recent STAT article reports. However, the article notes, "many states aren't ready...more than half the states haven't made any progress at all...If some states aren’t prepared to roll out 988, or have weaker infrastructure or support for it, the country could end up with a system that perpetuates inequities in mental health access rather than reduces them." (According to a Federal Communications Commission fact sheet, "Under the new rules, calls to 988 will be directed to 1-800-273-TALK..." [the National Suicide Prevention Lifeline].) For the FCC fact sheet, click here. For the STAT article, which suggests solutions, click here.

TU Collaborative Publishes "Strategies and Recommendations to Strengthen the Next Generation of Behavioral Health Leadership"

"Young professional peer specialists are an important, and growing, part of the behavioral health workforce, but more needs to be done to maximize their contributions and engagement," the Temple University Collaborative on Community Inclusion writes. Young Professional Peer Support: Strategies and Recommendations to Strengthen the Next Generation of Behavioral Health Leadership "offers young professional peer specialist perspectives on their experiences in the behavioral health system and what individuals, agencies, and systems can do to promote their impact, career development, and long-term connections." To download the 17-page document, click here.

"Stigma" of Depression Decreases, but Increases for Other Psychiatric Diagnoses; Would It Help to Change Public Perceptions of the Causes?

For the first time since such data have been studied, the "stigma" associated with major depression has lessened--involving a "statistically significant drop" in social rejection--according to a recent Indiana University study. However, "stigma" levels for other mental health conditions remain unchanged, and "public perceptions attributing dangerousness to schizophrenia and lack of morality to alcohol dependence increased," the study found. But would changing people's ideas about the causes of mental health conditions decrease prejudice? In earlier research, psychologists Eleanor Longden and John Read explore the argument that “framing individuals as ‘people with problems’ as opposed to ‘patients with illnesses’ is a more promising and robustly evidence-based strategy for reducing stigma and prejudice.” Meanwhile, many advocates have made a case for eliminating the word "stigma" entirely. In "Let's Call Mental Health Stigma What It Really Is: Discrimination," originally published in 2016, the HuffPost quotes Kana Enomoto, then acting administrator of the U.S. Substance Abuse and Mental Health Services Administration, as saying, “We [at SAMHSA] don’t use the word stigma...You look the word up in the dictionary and it refers to a mark of shame.” For the Indiana University press release, click here. For "Psychosocial Explanations of Psychosis Reduce Stigma, Study Finds," in Mad In America, click here. For the HuffPost article, click here.

NEC Offers (Virtual) eCPR Training for the Queer/LGBTQIA2S+ Community

The National Empowerment Center (NEC) is offering a virtual Emotional CPR (eCPR) training for the Queer/LGBTQIA2S+ community on three Saturdays in January 2022. NEC writes: "This training will take place via Zoom 1/15, 1/22, and 1/29 from 1:00 to 5:00 p.m. EST. The training is offered at a sliding scale [$0-$250]; please contact us if you need additional financial support OR IF YOU ARE HAVING TROUBLE REGISTERING (original emphasis) at info@emotional-cpr.org. This training is geared towards members of the queer/LGBTQIA2S+ (Lesbian, Gay, Bisexual, Trans, Questioning, Intersex, Asexual, Two Spirited) community. The plus sign is an added welcome to anybody who feels this training might be appropriate for them but does not identify with any of the terms listed. The training is taught by trainers who themselves identify as queer/LGBTQIA2S+..." For information about eCPR, click here. For more information about the training and/or to register, click here.

PCORI Wants to Hear from You About Its Proposed Research Agenda

The Patient-Centered Outcomes Research Institute (PCORI) is asking for public comment on its research agenda. The deadline to submit comments is January 31, 2022. "Meaningful stakeholder and broader public input are central to ensuring PCORI’s adopted National Priorities for Health and Research Agenda appropriately reflect(s) how PCORI can best meet the healthcare community’s needs in coming years and fulfill the organization’s mission as the nation's primary funder of patient-centered comparative clinical effectiveness research," PCORI writes. For details and to submit comments, click here. (Courtesy of Elizabeth R. Stone)

National Survey on Student Rights, Discrimination, and Accommodations in Higher Education Seeks Respondents  

"Have you experienced psychiatric disability-based discrimination or the denial of an accommodation in a postsecondary institution in the United States? Interested in informing national advocacy focus on psych disability rights in higher ed? Mental Health America (lead: Kelly Davis) and collaborators Dr. Nev Jones (University of Pittsburgh), Stefanie Kaufman-Mthimkhulu (Project LETS) and Brit Vanneman Esq. (Bazelon Center for Mental Health Law) have developed "a survey aimed at providing a more comprehensive understanding of student experiences of campus-based discrimination, mandated leaves of absence, and/or denial of academic, administrative and/or student-work accommodations in the U.S. Data will be used to inform national advocacy efforts and future projects, and in reports, presentations and publications." For eligibility and to access the survey, click here.

"Why 1,320 Therapists Are Worried About Mental Health in America Right Now"

"The New York Times asked 1,320 mental health professionals--[w]e heard from mental health providers in all 50 states, as well as Washington, D.C., and Puerto Rico--to tell us how their patients were coping as pandemic restrictions eased. General anxiety and depression are the most common reasons patients seek support, but family and relationship issues also dominate therapy conversations. One in four providers said suicidal thoughts were among the top reasons clients were seeking therapy...And while the pandemic has been polarizing, our analysis found that the higher demands for therapy are happening in every region, and at similar rates in red and blue states." For more information, click here.

Family Café Seeks Presentation Proposals for Annual Conference: Deadline January 7, 2022

"The Family Café is currently seeking presentation proposals for The 24th Annual Family Café, which will be held on May 27-29, 2022 in Orlando. The deadline to submit your proposal is Friday January 7, 2022. The Annual Family Café brings together thousands of people with disabilities and their family members for three days of education, training, and networking each year. The more than 200 breakout sessions on the agenda form the backbone of the event, and we rely on the knowledge and expertise of our presenters to make the event a success.” For the Presentation Proposal Form, click here.

CSGJC Issues "Expanding First Response: A Toolkit for Community Responder Programs"

"Communities across the country are reimagining their approach to public safety," the Council of State Governments Justice Center (CSGJC) writes. "As a result, many jurisdictions have invested in community responder programs that position health professionals and staff trained in crisis response as first responders. Community responder programs, when implemented as part of a larger network of crisis responses and social services, can help jurisdictions improve health outcomes, strengthen connections to services, and reduce unnecessary police involvement. Just released, ‘Expanding First Response: A Toolkit for Community Responder Programs’ serves as a central hub for local communities and states looking to establish or strengthen these programs." For the toolkit, click here.

NAMI Issues Call for Proposals for Its 2022 Hybrid Conference; Deadline: January 31

NAMI's 2022 hybrid conference, to be held June 15-18--with the in-person meeting at the Atlanta Marriott Marquis--is seeking "proposals that encourage mental health education and innovation and are well-versed in theory, research and practice." January 31, 2022, is the deadline to submit a proposal; you will be notified about its status by March 1, 2022. For details about NAMI’s goals, visit its 2020-2025 Strategic Plan. For information about the session tracks and how to submit a proposal, click here. (Courtesy of Kevin Fitts)

Two Studies Report on Young People's Experiences of Police Involvement During Involuntary Psychiatric Holds and Transports

Two recent studies of the experiences of youths during involuntary psychiatric hospitalization have found that police involvement "contributed to the youths' feelings of being criminalized, stigmatized, and marginalized," and that "peer support during the inpatient treatment was seen by the youth as the most empowering aspect of their treatment experience," according to the abstract of "In their voices: Experiences of adolescents during involuntary psychiatric hospitalization." The authors of another study, "Youths’ and Young Adults’ Experiences of Police Involvement During Initiation of Involuntary Psychiatric Holds and Transport," conducted in-depth interviews with "40 participants (ages 16–27) who had experienced an involuntary hold; the 28 participants who reported police involvement are the focus of this analysis....A majority of participants reported negative experiences...The authors also characterized the positive experiences of officer involvement reported by a minority of participants, and youths’ perspectives on the degree of control officers could exert over initiation and transport decisions..." For the abstract of "Youths’ and Young Adults’ Experiences of Police Involvement During Initiation of Involuntary Psychiatric Holds and Transport," click here. For the abstract of "In their voices: Experiences of adolescents during involuntary psychiatric hospitalization," click here.

Café TA Center Publishes "Tips for Employers on Hiring Individuals with Mental Health Conditions"

"Finding sustainable, quality employment is central to self-sufficiency, thriving in the community, and supporting recovery," the Café TA Center writes. "Our new tip-sheet for employers, Tips for Employers on Hiring Individuals with Mental Health Conditions, explains the benefits of hiring people with lived mental health experience, common myths and misperceptions, and inclusive recruiting and hiring practices. Whether you are an employer of people in the mental health recovery community, or an advocate looking to make the case for your own employment, this will be a great resource for you!" For "Tips for Employers on Hiring Individuals with Mental Health Conditions," click here. For a short, anonymous survey to help the Café TA Center "better understand how people in the mental health peer community feel about employment...and what you wish employers understood about hiring, supervising, and supporting workers with mental health conditions," click here.

Doors to Wellbeing to Present the Next Free Webinar in Its Monthly Series on January 25, 2022

On January 25, 2022, at 2 p.m. ET, Doors to Wellbeing will present a free 60-minute webinar as part of its monthly series. The topic, additional information, and a link to register will be posted on its website: click here.

Autumn Saw the Passing of Two Who Made Great Contributions in the Mental Health Arena

The peer movement is mourning two movement leaders: Darby Penney, who died on October 11, 2021, and Steve Harrington, who died on November 29, 2021. The headline on Darby's obituary in The New York Times read: "Darby Penney, Who Crusaded for Better Psychiatric Care, Dies at 68: She shed light on marginalized people’s lives by examining the contents of suitcases left in the attic of a psychiatric hospital. She went on to become a prominent activist." “The history of mental health is almost always told by psychiatrists and hardly ever by patients or through patients’ lives,” Darby said in an interview with The New York Times in 2007. “A lot of these folks happened to be in the wrong place at the wrong time and said the wrong thing to the wrong person.” Steve Harrington, who founded the National Association of Peer Specialists, was memorialized by friend and colleague Rita Cronise in a blog that invited others to comment. Andy Bernstein, a clinical psychologist and ally, wrote that Steve "was hugely instrumental in the evolution of the peer support movement as it coalesced into a professional discipline in its own right... Steve’s warmth, intelligence, humor, courage, and familiarity with writings from widely ranging fields of thought established him as a beacon of hope and growth for anyone who sought to use their own lived experience to help others on their journeys of recovery and actualization." For Darby's obituary, click here. For Rita's blog about Steve, click here.

The January 2022 Digest of Articles Offering Healthy Lifestyle Advice

For "Procrastinate This, Not That: Putting things off can improve your performance—if you do it right," click here. For "4 Ways to Cultivate Resilience in 2022: Pandemic life doesn’t have to be just about survival. You can become stronger and ready for the next challenge," click here. For "Our Favorite Healthy Habits of 2021: From labeling your feelings to exercise snacks, here’s a roundup of some of Well’s best advice for better living," click here. For "An Overlooked Cure for Loneliness: Science tells us the solution may lie in what we do for others, not ourselves," click here. For "The Health Toll of Poor Sleep: Finding that slumber sweet spot can be helpful for fending off a range of mental and bodily ills," click here.

The January 2022 Digest of Articles about the Criminal Justice System, in Which Many Individuals with Mental Health Conditions Are Incarcerated (and the Key Update continues after this Digest)

For "From Prison Cells to PhD is seeking scholars for the 2022 Virtual 24th Prison to Professionals Cohort (P2P-24). Applications are now open, and will close January 10," click here. For " ‘Blood Money’: How Profit Shapes U.S. Incarceration, click here. For "Prison Phone Companies Are Recording Attorney-Client Calls Across the US: Lawyers say their conversations with incarcerated people are being recorded and analyzed by private companies in at least nine US states," click here. For "Illinois courts seek compassion and hope for mentally ill," click here. For "Brooklyn Man Shot by the Police Was Mentally Ill, Family Says: The killing of Eudes Pierre, 26, underscores the need for alternatives to having the police respond to mental health episodes, activists say," click here. For "Mental health teams that respond to emergencies in lieu of police will soon be available countywide," click here. For "Man who died after being tased by Pittsburgh police pleaded for medical help but got none, report says," click here. For "Disciplinary action initiated against 9 Pittsburgh police officers in tasing, death of man in Bloomfield," click here. For "Norway’s Humane Approach to Prisons Can Work Here Too: The Scandinavian nation strives to rehabilitate instead of punish. UCSF’s Amend program is showing that this model can help solve the public health crisis plaguing the American correctional system," click here. For "The Prisoner-Run Radio Station That’s Reaching Men on Death Row: They can’t go to classes or prison jobs, and they don’t have tablets or televisions. But they do have radios," click here. For "How Can You Destroy a Person’s Life and Only Get a Slap on the Wrist?" click here. For "The Population Prevalence of Solitary Confinement," click here. For "The ‘21-Foot Rule’: How a Controversial Training for Police is Used to Justify Shootings," click here. For "Springfield police detective Gregg Bigda found not guilty of brutality, abusive interrogation," click here. For "Court Excellence and Therapeutic Jurisprudence: In this blog David B. Wexler, Honorary President of International Society for Therapeutic Jurisprudence, discusses how the 3rd Edition of the International Framework for Court Excellence is a major advance for therapeutic jurisprudence," click here. For "Opinion: Thousands of incarcerated people deserve to come home. Here’s how prosecutors can help," click here. For "Men headed for prison given a second chance with new rehabilitation program training dogs: A program director said they pull dogs unlikely to be adopted from local shelters and then pair them up with men who would have been facing serious jail time," click here. For "New report hits DOJ over lack of police shooting data," click here. For "Law Enforcement: DOJ Can Improve Publication of Use of Force Data and Oversight of Excessive Force Allegations," click here. For  Missed by a Mile: How hard is it to count deaths by police?" click here. For "FBI may shut down police use-of-force database due to lack of police participation: Police data must cover 60 percent of all local and federal officers, but has not reached that level in the first two years of the program," click here. For "Police Hurt Thousands of Teens Every Year. A Striking Number Are Black Girls," click here. For "How—and Why—America Criminalizes Poverty," click here. For "New Data Suggests a Connection Between Pandemic Gun Sales and Increased Violence: 'Time-to-crime' figures published by the ATF show that guns sold in 2020 were more likely to wind up at crime scenes within a year than in any previous period," click here. For "Illinois inmates' performances explore domestic violence, as public gets rare chance to see behind prison walls," click here. For "It’s Never Too Late to Go to College and Rewrite Your Story: Devon Simmons served 15 years in prison for crimes he committed as a teenager. Since then, he’s been on a mission to remake not just his own life, but the legal system itself," click here. For "College-in-prison program found to reduce recidivism significantly," click here. College-in-prison program leads to reduction in recidivism rates across racial groups," click here.

FROM PREVIOUS EDITIONS OF THE KEY UPDATE BUT STILL FRESH!

NIH to Host a Variety of Listening Sessions, Each Geared Toward Specific Audiences

At 6 p.m. on January 18, 2022, the National Institutes of Health (NIH) will host a 90-minute listening session geared to nonprofit organizations, community-based organizations, and advocacy organizations. The session (the second of two geared to the same audience) is part of NIH's UNITE initiative, which was "established to identify and address structural racism within the NIH-supported community and the greater scientific community...The insights that you share will provide valuable information on the full range of issues and challenges facing diverse talent within the scientific and administrative workforce and will help develop priorities and an action plan...Twenty-four hours prior to the scheduled session, registered participants will receive an email from UNITEInitiative@nih.gov with login information (Zoom link)." For the complete schedule and to register for specific sessions, click here. (Courtesy of NYAPRS E-News)

"Are You Between the Ages of 21 and 60 and Drink Alcohol?"

"Researchers at the National Institutes of Health (NIH) are seeking adults--[both smokers and non-smokers]--to study whether a gene and smoking may affect drinking alcohol. Volunteers should be healthy and drug-free, and not seeking treatment for alcohol-related problems. Research participation includes three outpatient visits at the NIH Clinical Center in Bethesda, MD; alcohol consumption; brain scans (MRI), blood draws, and filling out questionnaires. There is no cost to participate and compensation may be provided." For more information, click here. (Courtesy of Fran Hazam)

U.S. Surgeon General Creates Community Toolkit for Addressing Health Misinformation

"The U.S. Surgeon General’s Community Toolkit for Addressing Health Misinformation, developed in collaboration with the HHS Office of Evaluation Sciences (OES), provides specific guidance and resources for health care providers, educators, librarians, faith leaders, and trusted community members to understand, identify, and stop the spread of health misinformation in their communities." For information about the toolkit (a 22-page overview of health misinformation, and resources to stop it), and links to a “Talk to Your Community About Health Misinformation” Infographic, a “Health Misinformation Checklist” Infographic, and the Surgeon General's press release, click here.

Please Sign a Petition to Help Save a Public Mental Health Model in Italy

"Trieste is recognized by the World Health Organization as the model of global best practice in mental health care," according to a change.org petition highlighted in a recent NPR article. "It has inspired dozens of programs throughout the world to create an integrated network of community services focused upon the whole-person needs of its users; maintaining their dignity as citizens; and minimizing the coercive practices of old fashioned institutional settings...Trieste has shown us how community inclusion improves people’s lives. But this great achievement is now threatened by a new right-wing regional government that, on poorly informed and ideological grounds, is fast and impulsively dismantling Trieste's wonderful system of community care...As a Friend of Trieste and all that it stands for, please sign this petition and distribute it widely. For updates on this situation, please consult www.accoglienza.us." For the NPR article, "A public mental health model in Italy earns global praise. Now it faces its demise," click here. For the petition, click here. (Courtesy of Laura Van Tosh)

TU Collaborative Seeks Participants for Its Parenting Through Leisure Project; See Also the TU Collaborative's Parenting Resources, Including Information on Custody Issues

The Temple University Collaborative on Community Inclusion is seeking parents with lived experience of a mental health condition to participate in a paid research study. The TU Collaborative writes: "Our program, Parenting Through Leisure, focuses on helping parents with a serious mental illness participate in leisure activities with their child. We are looking for individuals who are 18 and older; are an adult parent with a diagnosis of schizophrenia-spectrum disorder, bipolar disorder, or depression; have a child who is 7 to 15 years old and is interested in participating in family leisure with you; have legal visitation rights, joint custody or full custody of the child, with at least weekly contact; and have a desire to engage in more leisure activities with their child." For details about the study and the remuneration as well as other benefits to eligible participants, and a link to sign up, click here. Questions? Please contact TUCollab@temple.edu. And for the TU Collaborative's Parenting web page--which includes links to many resources for parents with lived experience, including information about custody laws and a model family reunification statute--click here.

Yale Study of COVID-19’s Mental Health Impact Seeks Focus Group Participants with Physical and/or Mental Health Challenges

A study at Yale University led by people with lived experience is recruiting individuals who live with physical and/or mental health challenges to talk about how their lives have changed since the COVID-19 pandemic started. “The Wisdom project: exploring the impact of COVID-19 on the mental health of persons who experience adverse living conditions” is led by Larry Davidson, PhD, and Ana Florence, PhD. Ana is a Brazilian psychologist, activist, and postdoctoral associate, and Larry is Director of the Yale Program for Recovery and Community Health. If you live with mental and/or physical health challenges and would like to participate, you can email wisdomprojectyale@gmail.com or call 475-355-5393. “All focus groups will be held virtually, and a $50 e-gift card will be provided to each participant,” the researchers say.

Lancet Offers Stakeholders New Opportunities Re: Psychosis & Participatory Research

Check out these opportunities for stakeholder involvement! (1) The Lancet Psychiatry Commission on Psychoses is accepting applications for an academic advisory board (click here) and a lived experience advisory board (click here). (2) The Lancet Psychiatry Commission's "Lived Experience Hub" invites stakeholders to contribute blogposts to convey criticisms, concerns and/or ideas relevant to the work of the Commission. For details, click here. To submit a blog, email lancetcommissionpsychosis@gmail.com. (3) The Lancet Psychiatry Commission's "lived experience research group" is a new listserv focused on lived experience advocacy and activism on participatory psychosis research and related policy and practice. In part, this will serve as a sounding board for Lancet Commission work and a place to engage in dialogue about what needs to change. To join, email  lancetcommissionpsychosis@gmail.com.

(Courtesy of Dr. Nev Jones)

“Mental Health System: Open Letter to the Media” Seeks Signatures

“Everyone who believes that the problematic aspects of the mental health system are not adequately represented in the media is invited to sign this letter,” writes Yulia Mikhailova, who launched this initiative to educate the media. The letter begins: “We, a group of people with first-hand experience of the mental health system, write to express our concern about what we see as one-sided coverage of this system in the media and to draw the attention of civil rights organizations to the systemic discrimination that we witnessed and experienced. We, our loved ones, or inmates in the facilities where we worked, were exploited for monetary gain and victimized in various other ways. We saw how abuse, corruption, and exploitation were covered up, while victims and critics of the system were silenced and marginalized.” For a short version of the letter, which includes a link to a longer version, click here. Questions? Contact Yulia Mikhailova at yuliamikh@gmail.com.

Alternatives 2021 Is Over, but You Can View Many of the Presentations—and the Work Continues!

If you missed Alternatives 2021—the oldest national conference organized by and for individuals with lived experience of a mental health condition—you can see many of the presentations on the Alternatives conference website! The conference—whose theme was “Connecting, Organizing, Activating!”—was held July 8, 10, 15, and 17, and was organized by the National Coalition for Mental Health Recovery. This year the conference was virtual—and free! One highlight was the three Action Groups—on Promoting Racial and Social Justice, National and Statewide Advocacy, and Crisis Prevention and Alternatives to Institutionalization—which met on all four days. Reports from each of the groups are posted on the Alternatives conference website, and it is hoped that people will continue to work together to make progress on the goals that were determined by participants during the conference. For information about the Action Groups, click here. Recordings of many of the workshops, keynotes, and special activities are available on the Alternatives conference website (click here).

Disability Rights California Invites You to Its Past, Present, and Future (Free) Webinars

Disability Rights California (DRC) writes: “You are cordially invited to join us in our virtual disability rights trainings. Our webinars are twice a week, on Tuesdays at 2 p.m. ET (11 a.m. PT) in English and Thursdays at 7 p.m. ET (4 p.m. PT) in Spanish. Our free trainings provide information and resources on different topics related to mental health, self-advocacy, our legal rights (based on California law) and access to services that are informative and empowering. We welcome all peers (people with lived experience), service providers, family members and people in the community.” To view the webinars, click here.

"Psychiatrist with Philosophical Interests" leads "Conversations in Critical Psychiatry," a Psychiatric Times Series

Awais Aftab, who describes himself as a "psychiatrist with philosophical interests" in his Twitter bio, leads "Conversations in Critical Psychiatry," which, he says, "explores critical and philosophical perspectives in psychiatry and engages with prominent commentators within and outside the profession who have made meaningful criticisms of the status quo." Among those interviewed are Allen Frances, M.D., author of Saving Normal; Sandra Steingard, M.D., and G. Scott Waterman, M.D., on "Integrating Academic Inquiry and Reformist Activism in Psychiatry"; Susannah Cahalan, author of Brain on Fire: My Month of Madness, on "50 Shades of Misdiagnosis"; Kathy Flaherty, J.D., executive director of the Connecticut Legal Rights Project, Inc., on "Reconsidering Care and Coercion in Psychiatry"; Nev Jones, Ph.D., on "Phenomenology, Power, Polarization, and the Discourse on Psychosis"; Dainius Puras, M.D., on "Global Psychiatry's Crisis of Values"; and many others. For the archived interviews, click here.

CNN Offers “A Guide to Helping and Getting Help During the Coronavirus Crisis”

CNN writes: “The coronavirus pandemic is overwhelming, and one of the most excruciating parts for many people is the feeling of utter helplessness in the face of widespread suffering and hardship. CNN’s Impact Your World has compiled a list of donation opportunities and tips to help those affected by the crisis. Click on a category or scroll down to browse a list of organizations, resources and ideas. Need help? Most categories also include resources for financial, emotional or social support.” For the free guide, click here.

International Conference on Psychiatric Drug Withdrawal Scheduled for May 2022

The first conference of the International Institute for Psychiatric Drug Withdrawal is tentatively scheduled for May 2022 in Reykjavik, Iceland. “The three themes underpinning the conference are safe withdrawal from psychiatric medication, alternatives to psychiatric medication, and the need to question the dominance of medication in mental health care.” Confirmed speakers include Robert Whitaker (journalist and founder of Mad in America), Professor Joanna Moncrieff (psychiatrist and researcher), Laura Delano (co-founder of the Inner Compass Initiative and a person with lived experience), Dr. Carina Håkansson (founder of Family Care Foundation and The Extended Therapy Room Foundation), and Dr. Magnus Hald (Psychiatrist at the Drug-Free Treatment Unit, Norway). For more information, click here.

National Survey Seeks Input from Certified Peer Specialists

“Routine peer support has shown to increase individuals’ hope, sense of personal control, ability to make positive changes, and decreased psychiatric symptoms,” writes Dr. Karen Fortuna of the Geisel School of Medicine at Dartmouth. “Despite these benefits, the organizational structure of peer support is not known. Dartmouth College is initiating a national survey of trained Certified Peer Specialists to help us understand the organizational structure of peer support services.” For more information and/or to participate in the 15-minute survey, click here. (Courtesy of Judene Shelley)

Hearing Voices Network Is Now Hosting Online Groups

“There are now ONLINE opportunities to connect, share experiences, and find mutual support,” the Hearing Voices Network (HVN) writes. “These groups are accessible via web-based platforms and by phone…Online groups are specifically for those with personal lived experience with hearing voices, seeing visions, and/or negotiating alternative realities. They are voice-hearer facilitated. With further questions and for details on how to access the group[s], please email info@hearingvoicesusa.org.” To read this announcement online and for more information, click here.

Survey Seeks Respondents Who Are in Administrative/Leadership Positions in the Mental Health Field

If you are in an administrative/leadership position in the mental health arena, “the Group for the Advancement of Psychiatry (GAP) Committee on Psychiatric Administration and Leadership invites you to participate in the International Survey on Administrative Psychiatry. The survey has two purposes: 1. To identify the concerns and needs of mental health professionals/psychiatrists in administrative and leadership positions. 2. To determine training needs in administrative psychiatry. We ask you to complete this brief, [15- to 20-minute] questionnaire to help us in developing recommendations for action. We also want to let you know that, if you fill out this questionnaire, you permit the committee to use your anonymous data for scientific work.” Peer providers are included. For the survey, click here. (Courtesy of Oryx Cohen)

“Experiences with Hospitalization” Survey Seeks Participants

“The purpose of this survey is to help us understand people's lived experience with voluntary and involuntary treatment because of suicidal thoughts. It was created by people with lived experience…We are planning to use this information to facilitate discussions with suicidologists and the suicide prevention community about the impact of the use of these interventions, particularly within marginalized populations. We feel the voice of people with lived experience with these interventions has not had adequate opportunity to be heard, and hope that by completing this survey anonymously, people who have been most impacted can find a safe way to share their experiences. Please note that this is not a research project.” For more information and/or to participate, click here. (Courtesy of Leah Harris)

International Survey on Antipsychotic Medication Withdrawal Seeks Respondents

“Have you taken antipsychotic medication (such as Zyprexa, Seroquel, Abilify, Risperdal, Haldol, Geodon, Stelazine, and others), for any condition or diagnosis, with or without other medications? And did you ever stop taking antipsychotics, or try to stop taking them? Are you 18 years or older? If yes, you can take this survey about antipsychotic withdrawal and attempts to withdraw, including if you stopped taking them completely or if you tried to come off and still take them. The survey aims to improve mental health services by better understanding medication withdrawal. Lead researcher is Will Hall, a therapist and Ph.D. student who has himself taken antipsychotics. Service users/survivors/consumers from around the world also gave input. The study is sponsored by Maastricht University in the Netherlands; co-sponsors include the International Institute for Psychiatric Drug Withdrawal. Questions? Please contact will.hall@maastrichtuniversity.nl.”  For more information or to take the survey, click on www.antipsychoticwithdrawalsurvey.com

Virtual Group Works to Advance Peer Research Capacity, Leadership, and Involvement

Nev Jones, PhD—a strong advocate for building research capacity, leadership, and involvement among peers, survivors, and service users—leads a virtual group dedicated to this effort. Dr. Jones—assistant professor, School of Social Work, University of Pittsburgh—was part of the team that developed “User/Survivor Leadership & Capacity Building in Research: White Paper on Promoting Engagement Practices in Peer Evaluation/Research (PEPPER),” published by the Lived Experience Research Network. For the white paper, click here. Anyone interested in joining the virtual group can email Nev at nev.inbox@gmail.com.

Peer Support in Higher Education Survey Seeks Respondents

“Peer support programs are growing on college campuses across the U.S. Mental Health America, Doors to Wellbeing, and the Temple University Collaborative on Community Inclusion want to better understand the availability of peer support in higher education as well as the experiences and needs of students accessing peer support programs…We hope to use this research to support the expansion of peer support in higher education, including developing a national database of peer support programs in higher education and documenting pressing issues in campus programs…You may also indicate if you are interested in having your school’s peer support program listed in a national database of peer support programs in higher education.” For more information and to complete the survey, click here

Registration Is Open for Peerpocalypse, to Be Held March 14-17, 2022!

The Mental Health and Addiction Association of Oregon (MHAAO) has announced registration for Peerpocalypse 2022, to be held March 14-17, 2022! “MHAAO is pleased to present its first hybrid conference! In-person attendance allows access to pre-conference events, keynote speeches, all workshops, evening events, and the job fair and exhibit hall. Virtual attendance includes access to keynote speeches and all workshops. In-person early registration—[deadline unspecified]—is $300; regular registration is $375. Virtual registration is $200. Lunch meals (sic), CEUs, a T-shirt, a printed program, and a badge are included for both in-person and virtual attendees. Registration must be received no later than February 14, 2022, to receive a T-shirt.” To register, click here.

Mad In America Invites You to Submit Your Personal Story (Within Certain Guidelines)

Mad In America writes: “A ‘personal story’ is defined as your story of being in relationship to psychiatry and/or the mental health system, whatever that means to you. It might involve your opinions and analysis of what happened to you, as well. It can be about a specific event, or about your overall journey, provided it fits the length requirements (1,500 to 3,000 words) and has a narrative arc. The piece should be about your personal experiences, not psychiatry or the mental health system in general. Submissions should fall under the theme of rethinking psychiatry and the mental health system, and should be original works not previously published elsewhere. For examples of the types of stories we publish, view our personal stories archive here.” For more information and/or to submit a personal story, click here.

PsychAlive Offers a Variety of Webinars on Mental Health Topics, Many Free, Others $15

PsychAlive is a free, nonprofit resource created by the Glendon Association, whose mission is “to save lives and enhance mental health by addressing the social problems of suicide, violence, child abuse and troubled interpersonal relationships.” Psychalive.org offers a variety of upcoming and archived webinars, many of which are free, while others are available for $15. Among the myriad topics are “From Anxiety to Action: How to Stay Sane While Fighting Climate Change,” “How to Overcome Insecurity,” “Powerful Tools to Fight Depression,” and “Understanding and Overcoming Adverse Childhood Experiences.” To check out the webinars, click here.

Seven Ways to Keep a Digital Copy of Your Vaccination Card on Your Smartphone

“You'll need proof of vaccination to go back to work or enter many restaurants, gyms and event venues, so keep your COVID-19 card handy.” This is the advice of CNET.com, a tech support website. Besides the obvious—taking a photo of the card to store on your phone—there are six other suggestions. For details, click here. (Courtesy of Yvonne Smith)

Many Research Studies Are Seeking Participants, Mad In America Reports

Mad in America recently posted an assortment of research studies that are looking for participants. The studies include International Online Survey of Members of Peer Support Groups About Their Experiences of Withdrawing From Antidepressants; Study on Psychosocial Disability Advocacy and Global Mental Health; University of Pennsylvania Perelman School of Medicine study: Experiences of inpatient psychiatric care among former patients; Dissertation research study: Spiritual/religious experience misdiagnosed as “mental disorder”; Have you had a diagnosis of Bipolar Disorder and decided to stop taking medication?; and others. For details and to participate, click here.

ISEPP Circulates Petition to Support Human Rights in Psychiatric Treatment

ISEPP seeks signatures on a petition to  "[m]ake a strong statement that any psychiatric or psychotherapeutic interventions without full and honest informed consent are unethical and inhumane." For the petition, click here. (Courtesy of Amy Smith)

ISPS-US Offers an Array of Archived Webinars--Free but Donations Are Welcomed

The ISPS-US (The International Society for Psychological and Social Approaches to Psychosis-US Chapter) is offering a whole raft of archived webinars, which are free (although donations are welcomed). Among the webinars are "Cognitive Behavioral & Related Therapies for Psychosis: Diverse Approaches to Supporting Recovery," "How Can the Uncontainable Be Contained? Paradoxes of Madness & Philosophy," "Robert Whitaker: The Rising Non-Pharmaceutical Paradigm for 'Psychosis,'" "Life with Voices: A Guide for Harmony," "COPE Project: Non-Pharmaceutical Research on Influencing Voices and Visions," "What Hurts and What Helps In Treatment For 'Psychosis': Insider Perspectives," and many others. For more information and to access the webinars, click here.

“Where DNA and Medications Meet”

Not all drugs are effective for all people; therapeutic response rates for many drugs are only 50%-75%. “OneOme, co-founded by [the] Mayo Clinic, provides evidence-based pharmacogenomic solutions that help improve patient outcomes and reduce costs through more personalized medication decisions.” OneOme’s RightMed Test is “a doctor-ordered pharmacogenomic (PGx) test that analyzes your DNA and provides your doctors with genetic information to help them determine how you may respond to certain medications. The results may help your doctors reduce medication trial and error, minimize risk of side effects, save you time and money, and make more informed prescribing decisions. Because your DNA doesn’t change over time, your doctors can use your test results to make more personalized medication decisions for you over the course of your lifetime.” For more information, click here. (Courtesy of Robin Osborne)

Lived Experience Leadership Features 12 Years of Research Studies...

"Lived Experience Leadership features 12 years of research studies focused on this workforce in a range of settings, to foster a better of understanding and respect for Lived Experience as a distinct discipline and build clarity on what makes this work unique and valuable. Importantly, this body of research was led by Lived Experience researchers. Lived Experience Leadership provides clear and simple to read research summaries to allow community members and people employed within various industries the opportunity to easily understand and apply strategies within their own workplace. This website also includes easy to download definitionsaudio/visual resources, and key work by other Australian and International sources. The website will continue to grow to include larger collections of our research as well as other key work. For the Lived Experience Leadership website, click here. (Courtesy of Jacek Haciak)

Doors to Wellbeing Offers “State Selfies: A Picture of Peer Services Reported by Peers”

Doors to Wellbeing’s “Peer Album” is a directory of nearly 600 peer-run organizations throughout the U.S. They invite updates and offer instructions for providing them and add, “If your entry has not made this first draft, we encourage you to re-submit.” For the 158-page directory, click here.

Disclaimer: The Clearinghouse does not necessarily endorse the opinions and opportunities included in the Key Update.

About The Key Update

The National Mental Health Consumers’ Self-Help Clearinghouse is now affiliated with the Temple University Collaborative on Community Inclusion!

The Key Update is the free monthly e-newsletter of the National Mental Health Consumers’ Self-Help Clearinghouse. Volume 18, No. 7, January 2022. For content, reproduction or publication information, please contact Susan Rogers at selfhelpclearinghouse@gmail.com. Follow Susan on Twitter at @SusanRogersMH

 

 

 

 

 

 

Key Update, December 2021, Volume 18, Number 6

The National Mental Health Consumers’ Self-Help Clearinghouse is affiliated with the Temple University Collaborative on Community Inclusion!

TO CONTACT: THE CLEARINGHOUSE: SELFHELPCLEARINGHOUSE@GMAIL.COM  … SUSAN ROGERS: SUSAN.ROGERS.ADVOCACY@GMAIL.COM … JOSEPH ROGERS: JROGERS08034@GMAIL.COM

The Key Update is compiled, written, and edited by Susan Rogers, Director, National Mental Health Consumers’ Self-Help Clearinghouse.

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NOTE: The "FROM PREVIOUS EDITIONS OF THE KEY UPDATE BUT STILL FRESH!" Department, which is directly below the monthly Criminal Justice Digest, includes items that had been posted "above the fold" in earlier editions of the newsletter but are still relevant. These items include ongoing research studies that are still seeking participants, as well as upcoming webinars and conferences, and other items of continued interest. Don't miss it!

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Next ISMICC Meeting Is December 16; Submit Comments by December 6!

The next meeting of HHS’s Interdepartmental Serious Mental Illness Coordinating Committee (ISMICC)--comprising senior leaders from 10 federal agencies along with 14 non-federal public members--will be held on December 16, 2021, from 1 p.m. ET to 4 p.m. ET. Public comments will be scheduled at the end of the meeting. To submit written or brief oral comments, and/or to attend virtually or to request special accommodation for persons with disabilities, email ISMICC Designated Federal Officer Pamela Foote (Pamela.Foote@samhsa.hhs.gov) on or before December 6, 2021. Up to three minutes will be allotted for each approved public comment as time permits. Written comments received before the meeting will be considered for inclusion in the official record. To register online, click here. For more information about ISMICC, click here. (Courtesy of NYAPRS E-news)

CMS Invites You to a Discussion on Its Strategy to Advance Health Equity

On December 8, 2021, at 1:30 p.m. ET, the Centers for Medicare & Medicaid Services (CMS) Innovation Center invites you to a 90-minute roundtable discussion on how the Center can execute its strategic objective to advance health equity. The discussion follows the release of its recently published white paper "Driving Health System Transformation--A Strategy for the CMS Innovation Center's Second Decade" (click here). Written comments are encouraged and may be submitted to CMMIStrategy@cms.hhs.gov, with “HEALTH EQUITY ROUNDTABLE” in the subject line. "Some of the written comments may be read aloud during the roundtable session. Please indicate if you would prefer not to have your comments read or wish to remain anonymous." For more information--including the questions that the discussion will cover--and to register, click here.

Involuntary Commitment Is the Theme of Both a Helpful Podcast and a Harrowing Personal Story

The controversial topic of involuntary commitment is tackled in both a podcast and a recent personal story, the latter published in a college newspaper. "Committable is a podcast about involuntary commitments. We focus on stories from people with lived experience as a window into complex conversations with attorneys, physicians, psychologists and more," according to the Committable website. As one commenter wrote: "If you’re curious about what happens when people in mental health crisis are 'helped' by being brought to the ER for an emergency evaluation and then held on a psych unit against their will, listen to this podcast." All of the episodes are free at the link below. And in "At the Forefront of Medicine: My Summer of Involuntary Hospitalization--A neuroscience student reflects on the psychiatric system’s failure to care for its patients," published in The Chicago Maroon--the independent student newspaper of The University of Chicago since 1892--Cassidy Wilson details the horrific experiences that began when, in June 2021, she was committed to UChicago Medicine’s psychiatric ward against her will. "From the moment the UCPD came to my door," she writes, "I knew that what followed would not be care." For the Committable archive, click here. (Courtesy of Nev Jones) For the Chicago Maroon story, click here. (Courtesy of Fred Friedman)

Free Webinar: "Talking About Tobacco: Sharing Strategies and Treatments"

On December 9, 2021, at 2:30 p.m. ET, the Academy of Peer Services will present the fifth webinar in its "Talking About Tobacco" series: "In this [90-minute] webinar, we consider myths and facts about nicotine, and proven strategies for helping people change their use of tobacco. Together, and in chat with those who attend, our presenters [will] explore available treatment options and different strategies for making change. The webinar will include personal stories by the presenters related to their own tobacco use and the methods they used for regaining control over tobacco use. This information can help those who offer peer support to provide additional choices and options for people when they are talking about and exploring changes related to tobacco use." For more information and to register, click here.

Free Webinar: "...Art-making as an Alternative Philosophy of Care During Emotional Crisis"

On December 9, 2021, at 4 p.m. ET, the National Empowerment Center will host a free, 90-minute webinar on "New Frontiers for Activism: Art-making as an Alternative Philosophy of Care During Emotional Crisis." The presenter, Karin Jervert, writes: "In this workshop, we will explore several conditions and intentions in art-making practice which can create spaces that support healing for ourselves and for those in emotional crisis. We will talk about art-making as a container for suffering, anger, altered states and other experiences; how to facilitate flow within this space; and what obstacles can appear like fear, judgement, shame and paralysis...I will offer tools and ideas that together use art-making practices and concepts as a framework for a philosophy of care and compassion in the presence of our own and other’s suffering, and create portability of these practices so that we can bring these ideas and intentions into our lives and relationships day to day to create positive change within ourselves and our larger communities." To register, click here.

Survey of Mental Health Peer Warmlines Is Published

From the 2021 National Warmline Survey Executive Summary:  "This survey captured information about a wide range of [Mental Health] Peer Warm Lines, including length of operation (from one year to 36 years old), geographic location in the U.S. (18 different states, many regions of the country), geographic location served (county/national), as well as call volume (less then 100 calls a week to greater than 1,500 calls per week). The majority are open seven days a week with varied hours, but only about a third were open on holidays. More than 70% reported a significant/monumental increase in calls during the past year...Most reported the need for accessing higher levels of care to be rare (less than 1% of calls) and a few lines have a policy against calling 911...The greatest need reported by the responding Peer Warm Lines was FUNDING...When asked about the impact of Peer Warm Lines on Crisis Services, many responded that they believed that Peer Warm Lines assist people before they get to the point of needing crisis services, although this is primarily anecdotal." For the 19-page survey, click here. For the warmline directory, which includes many links to additional information, click here.

"Your [Lived Experience] Voice Deserves a Paycheck, and Here’s What to Charge"

Seth Rotberg--who describes himself as a patient advocate, community connector, and motivational speaker--says that people with lived experience of a physical or mental health condition often ask how much they should charge for their expertise. He writes: "[W]e first need to understand the following: What type of service are you offering? ([e.g.], blog post, speaking engagement, feedback on clinical trial design/protocol); Who (or which company) is requesting this service? ([e.g.], pharmaceutical/biotech, nonprofit organization, medical school); How much time will you need to perform the [tasks involved/service], including any prep work? ([e.g.], one-time or ongoing engagement)...To determine how much to charge for your advocacy work, there is now a fair-market value calculator that the National Health Council created to demonstrate how much a patient or caregiver should be getting compensated. This calculator can provide evidence on your reasoning behind charging a company or organization the amount you requested." For the article by Seth Rotberg, click here. For the Fair-Market Value Calculator, click here. (Courtesy of Kevin Fitts)

Free Webinar: "Mental Health Recovery: What Helps and What Hinders"

On December 10, 2021, at 11 a.m. ET, Illume: The Behavioral Health Center will present a free, two-hour webinar on "Mental Health Recovery: What Helps and What Hinders." The speaker will be Nanette Larson, Deputy Director, Wellness and Recovery Services, State of Illinois. Illume writes: "Although most staff, advocates, and loved ones want to support the recovery journey of those with mental health challenges, there is still great misunderstanding about what is truly helpful in that process. The Hippocratic Oath, 'Do No Harm,' can only be followed if we understand what may, indeed, cause harm. In this presentation, you will learn things that help and things that hinder the recovery process for individuals with mental health challenges." To register, click here. (Courtesy of Fran Hazam)

NIH to Host a Variety of Listening Sessions, Each Geared Toward Specific Audiences

At 6 p.m. ET on December 14, 2021, and January 18, 2022, the National Institutes of Health (NIH) will host 90-minute listening sessions geared to nonprofit organizations, community-based organizations, and advocacy organizations. The two sessions are part of NIH's UNITE initiative, which was "established to identify and address structural racism within the NIH-supported community and the greater scientific community...The insights that you share will provide valuable information on the full range of issues and challenges facing diverse talent within the scientific and administrative workforce and will help develop priorities and an action plan...Twenty-four hours prior to the scheduled session, registered participants will receive an email from UNITEInitiative@nih.gov with login information (Zoom link)." For the complete schedule and to register for specific sessions, click here. (Courtesy of NYAPRS E-News)

2nd Annual Summit to Decriminalize Mental Illness to Be Held in Philadelphia December 13-15

The Sozosei Foundation will hold its Second Annual Summit to Decriminalize Mental Illness from December 13 to 15, 2021, at the Pennsylvania Academy of the Fine Arts in Philadelphia. Portions will be live-streamed. "The Summit is a global event that brings together experts, thought-leaders, people with lived experience, medical professionals, lawyers, judges, advocates, artists, and funders to collaborate, create, and explore pathways to decriminalize mental illness with a particular focus on 988, the new national mental health crisis telephone line, due to go live in July 2022," the organizers write. "Sozosei" means "creativity" in Japanese. "With creativity as a core value, we believe that together we can identify new pathways in order to eliminate the inappropriate use of jails and prisons for the diagnosis and treatment of mental illness." For more information and to register, click here. (Courtesy of Kevin Fitts)

WHO Highlights Community Mental Health Services with a Rights-based Approach Around the World

Following the publication of its “Guidance on community mental health services: promoting person-centered and rights-based approaches,” in June 2021--included in the October 2021 Key Update--the World Health Organization is highlighting "models of care from around the world that largely center on relationships and compassionate listening to promote wellness and increase one’s ability to manage symptoms and live meaningful lives." The WHO press release features programs in India, Brazil, Myanmar, New Zealand, Norway, Kenya, and the UK. Programs in New Zealand, Kenya, and Myanmar incorporate peer support. For the press release, click here.

Free Webinar: "Activating Peer Support for a Transformed Mental Health Crisis Response System"

On December 15, 2021, at 1 p.m. ET until 2:15 p.m. ET, NYAPRS and The College for Behavioral Health Leadership will sponsor the first part of a two-part online seminar series titled "Intensity, Lived Experience and Crisis: Activating Peer Support for a Transformed Mental Health Crisis Response System." The organizers write, "While much progress has been made to develop a modern array of 'crisis services,' including mobile crisis units, hospital diversion programs and 'crisis call centers,' through…the National Suicide Prevention Lifeline Network, the integration of people with lived experience of suicide and crisis as peer support providers has been slow to advance. Peer support can and should play an active role at many points in the transformation of crisis response systems, including those driven by the national 988 line initiative." The presenter will be Eduardo Vega, M. Psy., CEO and founder of Humannovations. For more information and to register, click here.

Please Sign a Petition to Help Save a Public Mental Health Model in Italy

"Trieste is recognized by the World Health Organization as the model of global best practice in mental health care," according to a change.org petition highlighted in a recent NPR article. "It has inspired dozens of programs throughout the world to create an integrated network of community services focused upon the whole-person needs of its users; maintaining their dignity as citizens; and minimizing the coercive practices of old-fashioned institutional settings...Trieste has shown us how community inclusion improves people’s lives. But this great achievement is now threatened by a new right-wing regional government that, on poorly informed and ideological grounds, is fast and impulsively dismantling Trieste's wonderful system of community care...As a Friend of Trieste and all that it stands for, please sign this petition and distribute it widely. For updates on this situation, please consult www.accoglienza.us." For the NPR article, "A public mental health model in Italy earns global praise. Now it faces its demise," click here. For the petition, click here. (Courtesy of Laura Van Tosh)

NRCPD and TU Collaborative Help Parents with Mental Health Conditions

"There is a major gap in services for parents with mental [health conditions] within traditional mental health services," writes the National Research Center for Parents with Disabilities (on the Brandeis University website). "Using lessons learned from the implementation of Family Options, an intervention developed in Massachusetts that focuses on parents and their children as a unit and draws on the strengths, resilience and recovery goals of family members receiving services, we have identified three essential elements of developing successful interventions for parents with psychiatric disabilities: hiring the 'right' staff, establishing organizational frameworks, and fostering community engagement." For the article, click here. And to check out the many and varied parenting resources on the Temple University Collaborative on Community Inclusion website's "Parenting" page, click here.

Cafe TAC's Focus 2.0 Newsletter Covers Telehealth and Smartphone Apps

The latest edition of CAFE TAC's Focus 2.0 newsletter examines "how telehealth and smartphone apps are providing new ways to access mental health resources," the national technical assistance center writes. "What’s out there? What are the advantages of virtual mental health services? What are the barriers? What should you look for when considering telehealth or smartphone apps for mental health? Check out this Focus 2.0 for some answers! We also invite you to share your thoughts on what you wish employers knew about hiring and supervising people with mental health conditions, and our 'Capacity Corner' offers some advice on how to make sure you have effective Committees that actually get stuff done in your mental health consumer organization." For the newsletter, click here

MedPage Offers "News and Commentary from the Psychiatry World"

"The American Psychiatric Association [has] released a new edition of the clinical treatment guide for gambling disorders, as more and more people are turning to internet betting....A previously homeless man who was falsely held for 2 years at a Hawaii psychiatric hospital because of mistaken identity just filed a federal lawsuit. [A] new survey of over 8,000 people--who had an average age of 56--found that social media use was tied to higher odds of depressive symptoms, which were highest for Snapchat, followed by Facebook, and TikTok. A new report from SMI Adviser is offering guidance on how to improve behavioral health services for people living in rural communities." These are some of the stories in MedPage's November 24, 2021, edition. To read the articles, click here.

"Are You Between the Ages of 21 and 60 and Drink Alcohol?"

"Researchers at the National Institutes of Health (NIH) are seeking adults--[both smokers and non-smokers]--to study whether a gene and smoking may affect drinking alcohol. Volunteers should be healthy and drug-free, and not seeking treatment for alcohol-related problems. Research participation includes three outpatient visits at the NIH Clinical Center in Bethesda, MD; alcohol consumption; brain scans (MRI), blood draws, and filling out questionnaires. There is no cost to participate and compensation may be provided." For more information, click here. (Courtesy of Fran Hazam)

U.S. Surgeon General Creates Community Toolkit for Addressing Health Misinformation

"The U.S. Surgeon General’s Community Toolkit for Addressing Health Misinformation, developed in collaboration with the HHS Office of Evaluation Sciences (OES), provides specific guidance and resources for health care providers, educators, librarians, faith leaders, and trusted community members to understand, identify, and stop the spread of health misinformation in their communities." For information about the toolkit (a 22-page overview of health misinformation, and resources to stop it), and links to a “Talk to Your Community About Health Misinformation” Infographic, a “Health Misinformation Checklist” Infographic, and the Surgeon General's press release, click here.

A Poem Teaches the Necessity of Community Organizing

In this poem—“Each Day, One More,” published in 1980—Marge Piercy teaches us why we need to organize, and that there is strength in numbers. The poem begins: “What can they do/to you? Whatever they want./They can set you up, they can/bust you, they can break/your fingers, they can/burn your brain with electricity,/blur you with drugs till you/can't walk, can't remember…” And it continues: “How can you stop/them?... A dozen make a demonstration./A hundred fill a hall./A thousand have solidarity and your own newsletter;/ten thousand, power and your own paper;/a hundred thousand, your own media;/ten million, your own country.” The poem concludes: “It goes on one at a time,/it starts when you care/to act, it starts when you do/it again after they said no,/it starts when you say We/and know who you mean, and each/day you mean one more.” For the poem in its entirety, click here.

Comic Books Have Both Contributed to Mental Health Prejudice and to Positive Education

In "Don't Laugh at the Comics: A Modern Take" (2020), the authors cover the history of how mental health professionals have been portrayed since the 1940s. For example, a "surprising number of mental health providers are villains in comic books..." they write. "In addition to the blatantly evil psychiatrists and the narcissistic psychiatrists, since the late 1970s there have been character representations of the flawed or damaged (psychiatric) hero. Even the once revered Dr. Amadeus Arkham, founder of Arkham Asylum [in Batman], becomes a warning about psychiatric care after he kills patients, murders his mother, and becomes an inmate in the institution he founded in a 1989 graphic novel story line." But "...many forms of pop culture (e.g., movies, TV shows, books, comic books) can be used to teach mental health concepts, whether to medical students or in the therapy room...If positive messages are to be portrayed by the comic book industry, mental health professionals and comic creators need to work together to allow creatives to tell compelling stories while at the same time not needlessly stigmatizing mental health patients and providers. This collaboration has already begun, and can be done." For the article, click here.

The December 2021 Digest of Articles Offering Healthy Lifestyle Advice

For "An Age-Old Tool for Suicide Prevention—Social connection is the first line of defense," click here. For "The Pain Brain: Millions of Americans are living with chronic pain. A quiet revolution in research and treatment is finding new ways to help them heal," click here. For "4 Stretches to Combat Too Much Screen Time: Hunching over a laptop for long periods can sabotage your health. These restorative exercises really do make you feel better throughout the day," click here. For "Does High-Intensity Exercise Affect Our Hearts? Minds? Life Spans? Waistlines? What you need to know about high-intensity interval training, or HIIT," click here. For "Smile: Why It’s Important in Personal Life and Workplace: This emotional expression could help you be happy, grateful, and productive," click here.

The December 2021 Digest of Articles about the Criminal Justice System, in Which Many Individuals with Mental Health Conditions Are Incarcerated (and the Key Update continues after this Digest)

For "In an overcrowded justice system, mental health diversions work | Editorial," click here. See also "Keeping the Mentally Ill Out of Jail: An innovative Miami-Dade program shows the way" (2018) (click here) and Mental Health Courts: Pros & Cons (click here). For "There Is No One Answer to Over-Policing and Mass Incarceration—There Are Many: Examples abound for successful alternative methods that can greatly improve the current criminal legal system," click here. For "Reimagining police departments with safety and justice in mind: Scott Pelley reports on the ways American cities are reimagining their police departments, with Austin, Texas, leading the way," click here. For "String of LAPD shootings exposes L.A.’s broken mental health system, officials say," click here. "How Prison Writers Struggle to Be Heard: Sky-high email and phone costs, fear of retaliation by prison staff, and isolation create roadblocks for incarcerated people to share their experience and join a growing national conversation on reforming the criminal legal system," click here. For "State of Justice," a newsletter of the Council of State Governments Justice Center, click here. For "How Police Justify Killing Drivers: The Vehicle Was a Weapon: A Times investigation into a common defense for shooting motorists found that some officers had put themselves in danger. Others appeared to face no peril at all," click here. For "America can’t fix policing without fixing the country’s gun problem: America’s tremendous number of firearms makes it much harder to reform policing," click here. For "The Language Project"--which comprises "I Am Not Your 'Inmate,'" "Good Intentions Don't Blunt the Impact of Dehumanizing Words," "I Was Trained to Call Men a Word They Hated," "People-First Language Matters. So Does the Rest of the Story," "How I Convinced My Incarcerated Peers to Make Language a Priority," and "What Words We Use--and Avoid--While Covering People and Incarceration"--click here. For "An Ode to Memo, the Cellmate and Art Teacher Who Saved My Life: After decades in the system, I was acting like a wild horse roaming the countryside. Memo taught me how to paint through the chaos," click here. For "Gila County faces 4th claim citing jail abuses against mentally ill inmates," click here. For "Can The Death Penalty Be Fixed? These Republicans Think So: A growing number of conservative lawmakers want to overhaul capital punishment, or end it," click here. For "Workers at federal prisons are committing some of the crimes," click here. For "Have It Your Way"--Issue 9 of News Inside, a Marshall Project newsletter, "meets you where you are," click here. For "Opinion: Being pulled over for a broken taillight shouldn't end in death. Too often, it does," click here. For "Young adults facing prison get a second chance through first-in-the-nation court program," click here. For "The Supreme Court’s Growing Hostility to Arguments of Death Row Inmates: Recent rulings, including one turning down a death row inmate’s request supported by the prosecution, offer telling glimpses of the state of capital punishment," click here. For "Do Prisons Deserve a Second Chance? Over the last decade, hundreds of jails and prisons in the U.S. have closed, inspiring architects and designers to reimagine sites of incarceration as positive community spaces," click here. For "Independent Oversight Is Essential for a Safe and Healthy Prison System: Preventive monitoring of conditions in American prisons can help shine a light on what needs to change," click here.

FROM PREVIOUS EDITIONS OF THE KEY UPDATE BUT STILL FRESH!

Virtual 2021 Youth Mental Health Disparities Conference to Be Held December 8-9

The 2021 Youth Mental Health Disparities Conference will be held virtually on December 8-9, 2021. It is sponsored by the National Institute of Mental Health, the Eunice Kennedy Shriver National Institute of Child Health and Human Development, and the National Institute on Minority Health and Health Disparities. Its theme is "Identifying Opportunities and Priorities in Youth Mental Health Disparities Research." Registration information and an agenda will be forthcoming. (Courtesy of Jacek Haciak)

TU Collaborative Seeks Participants for Its Parenting Through Leisure Project; See Also the TU Collaborative's Parenting Resources, Including Information on Custody Issues

The Temple University Collaborative on Community Inclusion is seeking parents with lived experience of a mental health condition to participate in a paid research study. The TU Collaborative writes: "Our program, Parenting Through Leisure, focuses on helping parents with a serious mental illness participate in leisure activities with their child. We are looking for individuals who are 18 and older; are an adult parent with a diagnosis of schizophrenia-spectrum disorder, bipolar disorder, or depression; have a child who is 7 to 15 years old and is interested in participating in family leisure with you; have legal visitation rights, joint custody or full custody of the child, with at least weekly contact; and have a desire to engage in more leisure activities with their child." For details about the study and the remuneration as well as other benefits to eligible participants, and a link to sign up, click here. Questions? Please contact TUCollab@temple.edu. And for the TU Collaborative's Parenting web page--which includes links to many resources for parents with lived experience, including information about custody laws and a model family reunification statute--click here.

Yale Study of COVID-19’s Mental Health Impact Seeks Focus Group Participants with Physical and/or Mental Health Challenges

A study at Yale University led by people with lived experience is recruiting individuals who live with physical and/or mental health challenges to talk about how their lives have changed since the COVID-19 pandemic started. “The Wisdom project: exploring the impact of COVID-19 on the mental health of persons who experience adverse living conditions” is led by Larry Davidson, PhD, and Ana Florence, PhD. Ana is a Brazilian psychologist, activist, and postdoctoral associate, and Larry is Director of the Yale Program for Recovery and Community Health. If you live with mental and/or physical health challenges and would like to participate, you can email wisdomprojectyale@gmail.com or call 475-355-5393. “All focus groups will be held virtually, and a $50 e-gift card will be provided to each participant,” the researchers say.

Lancet Offers Stakeholders New Opportunities Re: Psychosis & Participatory Research

Check out these opportunities for stakeholder involvement! (1) The Lancet Psychiatry Commission on Psychoses is accepting applications for an academic advisory board (click here) and a lived experience advisory board (click here). (2) The Lancet Psychiatry Commission's "Lived Experience Hub" invites stakeholders to contribute blogposts to convey criticisms, concerns and/or ideas relevant to the work of the Commission. For details, click here. To submit a blog, email lancetcommissionpsychosis@gmail.com. (3) The Lancet Psychiatry Commission's "lived experience research group" is a new listserv focused on lived experience advocacy and activism on participatory psychosis research and related policy and practice. In part, this will serve as a sounding board for Lancet Commission work and a place to engage in dialogue about what needs to change. To join, email  lancetcommissionpsychosis@gmail.com. (Courtesy of Dr. Nev Jones)

“Mental Health System: Open Letter to the Media” Seeks Signatures

“Everyone who believes that the problematic aspects of the mental health system are not adequately represented in the media is invited to sign this letter,” writes Yulia Mikhailova, who launched this initiative to educate the media. The letter begins: “We, a group of people with first-hand experience of the mental health system, write to express our concern about what we see as one-sided coverage of this system in the media and to draw the attention of civil rights organizations to the systemic discrimination that we witnessed and experienced. We, our loved ones, or inmates in the facilities where we worked, were exploited for monetary gain and victimized in various other ways. We saw how abuse, corruption, and exploitation were covered up, while victims and critics of the system were silenced and marginalized.” For a short version of the letter, which includes a link to a longer version, click here. Questions? Contact Yulia Mikhailova at yuliamikh@gmail.com.

Alternatives 2021 Is Over, but You Can View Many of the Presentations—and the Work Continues!

If you missed Alternatives 2021—the oldest national conference organized by and for individuals with lived experience of a mental health condition—you can see many of the presentations on the Alternatives conference website! The conference—whose theme was “Connecting, Organizing, Activating!”—was held July 8, 10, 15, and 17, and was organized by the National Coalition for Mental Health Recovery. This year the conference was virtual—and free! One highlight was the three Action Groups—on Promoting Racial and Social Justice, National and Statewide Advocacy, and Crisis Prevention and Alternatives to Institutionalization—which met on all four days. Reports from each of the groups are posted on the Alternatives conference website, and it is hoped that people will continue to work together to make progress on the goals that were determined by participants during the conference. For information about the Action Groups, click here. Recordings of many of the workshops, keynotes, and special activities are available on the Alternatives conference website (click here).

Disability Rights California Invites You to Its Past, Present, and Future (Free) Webinars

Disability Rights California (DRC) writes: “You are cordially invited to join us in our virtual disability rights trainings. Our webinars are twice a week, on Tuesdays at 2 p.m. ET (11 a.m. PT) in English and Thursdays at 7 p.m. ET (4 p.m. PT) in Spanish. Our free trainings provide information and resources on different topics related to mental health, self-advocacy, our legal rights (based on California law) and access to services that are informative and empowering. We welcome all peers (people with lived experience), service providers, family members and people in the community.” To view the webinars, click here.

"Psychiatrist with Philosophical Interests" leads "Conversations in Critical Psychiatry," a Psychiatric Times Series

Awais Aftab, who describes himself as a "psychiatrist with philosophical interests" in his Twitter bio, leads "Conversations in Critical Psychiatry," which, he says, "explores critical and philosophical perspectives in psychiatry and engages with prominent commentators within and outside the profession who have made meaningful criticisms of the status quo." Among those interviewed are Allen Frances, M.D., author of Saving Normal; Sandra Steingard, M.D., and G. Scott Waterman, M.D., on "Integrating Academic Inquiry and Reformist Activism in Psychiatry"; Susannah Cahalan, author of Brain on Fire: My Month of Madness, on "50 Shades of Misdiagnosis"; Kathy Flaherty, J.D., executive director of the Connecticut Legal Rights Project, Inc., on "Reconsidering Care and Coercion in Psychiatry"; Nev Jones, Ph.D., on "Phenomenology, Power, Polarization, and the Discourse on Psychosis"; Dainius Puras, M.D., on "Global Psychiatry's Crisis of Values"; and many others. For the archived interviews, click here.

CNN Offers “A Guide to Helping and Getting Help During the Coronavirus Crisis”

CNN writes: “The coronavirus pandemic is overwhelming, and one of the most excruciating parts for many people is the feeling of utter helplessness in the face of widespread suffering and hardship. CNN’s Impact Your World has compiled a list of donation opportunities and tips to help those affected by the crisis. Click on a category or scroll down to browse a list of organizations, resources and ideas. Need help? Most categories also include resources for financial, emotional or social support.” For the free guide, click here.

International Conference on Psychiatric Drug Withdrawal Scheduled for May 2022

The first conference of the International Institute for Psychiatric Drug Withdrawal is tentatively scheduled for May 2022 in Reykjavik, Iceland. “The three themes underpinning the conference are safe withdrawal from psychiatric medication, alternatives to psychiatric medication, and the need to question the dominance of medication in mental health care.” Confirmed speakers include Robert Whitaker (journalist and founder of Mad in America), Professor Joanna Moncrieff (psychiatrist and researcher), Laura Delano (co-founder of the Inner Compass Initiative and a person with lived experience), Dr. Carina Håkansson (founder of Family Care Foundation and The Extended Therapy Room Foundation), and Dr. Magnus Hald (Psychiatrist at the Drug-Free Treatment Unit, Norway). For more information, click here.

National Survey Seeks Input from Certified Peer Specialists

“Routine peer support has shown to increase individuals’ hope, sense of personal control, ability to make positive changes, and decreased psychiatric symptoms,” writes Dr. Karen Fortuna of the Geisel School of Medicine at Dartmouth. “Despite these benefits, the organizational structure of peer support is not known. Dartmouth College is initiating a national survey of trained Certified Peer Specialists to help us understand the organizational structure of peer support services.” For more information and/or to participate in the 15-minute survey, click here. (Courtesy of Judene Shelley)

Hearing Voices Network Is Now Hosting Online Groups

“There are now ONLINE opportunities to connect, share experiences, and find mutual support,” the Hearing Voices Network (HVN) writes. “These groups are accessible via web-based platforms and by phone…Online groups are specifically for those with personal lived experience with hearing voices, seeing visions, and/or negotiating alternative realities. They are voice-hearer facilitated. With further questions and for details on how to access the group[s], please email info@hearingvoicesusa.org.” To read this announcement online and for more information, click here.

Survey Seeks Respondents Who Are in Administrative/Leadership Positions in the Mental Health Field

If you are in an administrative/leadership position in the mental health arena, “the Group for the Advancement of Psychiatry (GAP) Committee on Psychiatric Administration and Leadership invites you to participate in the International Survey on Administrative Psychiatry. The survey has two purposes: 1. To identify the concerns and needs of mental health professionals/psychiatrists in administrative and leadership positions. 2. To determine training needs in administrative psychiatry. We ask you to complete this brief, [15- to 20-minute] questionnaire to help us in developing recommendations for action. We also want to let you know that, if you fill out this questionnaire, you permit the committee to use your anonymous data for scientific work.” Peer providers are included. For the survey, click here. (Courtesy of Oryx Cohen)

“Experiences with Hospitalization” Survey Seeks Participants

“The purpose of this survey is to help us understand people's lived experience with voluntary and involuntary treatment because of suicidal thoughts. It was created by people with lived experience…We are planning to use this information to facilitate discussions with suicidologists and the suicide prevention community about the impact of the use of these interventions, particularly within marginalized populations. We feel the voice of people with lived experience with these interventions has not had adequate opportunity to be heard, and hope that by completing this survey anonymously, people who have been most impacted can find a safe way to share their experiences. Please note that this is not a research project.” For more information and/or to participate, click here. (Courtesy of Leah Harris)

International Survey on Antipsychotic Medication Withdrawal Seeks Respondents

“Have you taken antipsychotic medication (such as Zyprexa, Seroquel, Abilify, Risperdal, Haldol, Geodon, Stelazine, and others), for any condition or diagnosis, with or without other medications? And did you ever stop taking antipsychotics, or try to stop taking them? Are you 18 years or older? If yes, you can take this survey about antipsychotic withdrawal and attempts to withdraw, including if you stopped taking them completely or if you tried to come off and still take them. The survey aims to improve mental health services by better understanding medication withdrawal. Lead researcher is Will Hall, a therapist and Ph.D. student who has himself taken antipsychotics. Service users/survivors/consumers from around the world also gave input. The study is sponsored by Maastricht University in the Netherlands; co-sponsors include the International Institute for Psychiatric Drug Withdrawal. Questions? Please contact will.hall@maastrichtuniversity.nl.”  For more information or to take the survey, click on www.antipsychoticwithdrawalsurvey.com

Virtual Group Works to Advance Peer Research Capacity, Leadership, and Involvement

Nev Jones, PhD—a strong advocate for building research capacity, leadership, and involvement among peers, survivors, and service users—leads a virtual group dedicated to this effort. Dr. Jones—assistant professor, School of Social Work, University of Pittsburgh—was part of the team that developed “User/Survivor Leadership & Capacity Building in Research: White Paper on Promoting Engagement Practices in Peer Evaluation/Research (PEPPER),” published by the Lived Experience Research Network. For the white paper, click here. Anyone interested in joining the virtual group can email Nev at nev.inbox@gmail.com.

Peer Support in Higher Education Survey Seeks Respondents

“Peer support programs are growing on college campuses across the U.S. Mental Health America, Doors to Wellbeing, and the Temple University Collaborative on Community Inclusion want to better understand the availability of peer support in higher education as well as the experiences and needs of students accessing peer support programs…We hope to use this research to support the expansion of peer support in higher education, including developing a national database of peer support programs in higher education and documenting pressing issues in campus programs…You may also indicate if you are interested in having your school’s peer support program listed in a national database of peer support programs in higher education.” For more information and to complete the survey, click here

Registration Is Open for Peerpocalypse, to Be Held March 14-17, 2022!

The Mental Health and Addiction Association of Oregon (MHAAO) has announced registration for Peerpocalypse 2022, to be held March 14-17, 2022! “MHAAO is pleased to present its first hybrid conference! In-person attendance allows access to pre-conference events, keynote speeches, all workshops, evening events, and the job fair and exhibit hall. Virtual attendance includes access to keynote speeches and all workshops. In-person early registration—[deadline unspecified]—is $300; regular registration is $375. Virtual registration is $200. Lunch meals (sic), CEUs, a T-shirt, a printed program, and a badge are included for both in-person and virtual attendees. Registration must be received no later than February 14, 2022, to receive a T-shirt.” To register, click here.

Mad In America Invites You to Submit Your Personal Story (Within Certain Guidelines)

Mad In America writes: “A ‘personal story’ is defined as your story of being in relationship to psychiatry and/or the mental health system, whatever that means to you. It might involve your opinions and analysis of what happened to you, as well. It can be about a specific event, or about your overall journey, provided it fits the length requirements (1,500 to 3,000 words) and has a narrative arc. The piece should be about your personal experiences, not psychiatry or the mental health system in general. Submissions should fall under the theme of rethinking psychiatry and the mental health system, and should be original works not previously published elsewhere. For examples of the types of stories we publish, view our personal stories archive here.” For more information and/or to submit a personal story, click here.

PsychAlive Offers a Variety of Webinars on Mental Health Topics, Many Free, Others $15

PsychAlive is a free, nonprofit resource created by the Glendon Association, whose mission is “to save lives and enhance mental health by addressing the social problems of suicide, violence, child abuse and troubled interpersonal relationships.” Psychalive.org offers a variety of upcoming and archived webinars, many of which are free, while others are available for $15. Among the myriad topics are “From Anxiety to Action: How to Stay Sane While Fighting Climate Change,” “How to Overcome Insecurity,” “Powerful Tools to Fight Depression,” and “Understanding and Overcoming Adverse Childhood Experiences.” To check out the webinars, click here.

Seven Ways to Keep a Digital Copy of Your Vaccination Card on Your Smartphone

“You'll need proof of vaccination to go back to work or enter many restaurants, gyms and event venues, so keep your COVID-19 card handy.” This is the advice of CNET.com, a tech support website. Besides the obvious—taking a photo of the card to store on your phone—there are six other suggestions. For details, click here. (Courtesy of Yvonne Smith)

Many Research Studies Are Seeking Participants, Mad In America Reports

Mad in America recently posted an assortment of research studies that are looking for participants. The studies include International Online Survey of Members of Peer Support Groups About Their Experiences of Withdrawing From Antidepressants; Study on Psychosocial Disability Advocacy and Global Mental Health; University of Pennsylvania Perelman School of Medicine study: Experiences of inpatient psychiatric care among former patients; Dissertation research study: Spiritual/religious experience misdiagnosed as “mental disorder”; Have you had a diagnosis of Bipolar Disorder and decided to stop taking medication?; and others. For details and to participate, click here.

ISEPP Circulates Petition to Support Human Rights in Psychiatric Treatment

ISEPP seeks signatures on a petition to  "[m]ake a strong statement that any psychiatric or psychotherapeutic interventions without full and honest informed consent are unethical and inhumane." For the petition, click here. (Courtesy of Amy Smith)

ISPS-US Offers an Array of Archived Webinars--Free but Donations Are Welcomed

The ISPS-US (The International Society for Psychological and Social Approaches to Psychosis-US Chapter) is offering a whole raft of archived webinars, which are free (although donations are welcomed). Among the webinars are "Cognitive Behavioral & Related Therapies for Psychosis: Diverse Approaches to Supporting Recovery," "How Can the Uncontainable Be Contained? Paradoxes of Madness & Philosophy," "Robert Whitaker: The Rising Non-Pharmaceutical Paradigm for 'Psychosis,'“ "Life with Voices: A Guide for Harmony," "COPE Project: Non-Pharmaceutical Research on Influencing Voices and Visions," "What Hurts and What Helps In Treatment For 'Psychosis': Insider Perspectives," and many others. For more information and to access the webinars, click here.

“Where DNA and Medications Meet”

Not all drugs are effective for all people; therapeutic response rates for many drugs are only 50%-75%. “OneOme, co-founded by [the] Mayo Clinic, provides evidence-based pharmacogenomic solutions that help improve patient outcomes and reduce costs through more personalized medication decisions.” OneOme’s RightMed Test is “a doctor-ordered pharmacogenomic (PGx) test that analyzes your DNA and provides your doctors with genetic information to help them determine how you may respond to certain medications. The results may help your doctors reduce medication trial and error, minimize risk of side effects, save you time and money, and make more informed prescribing decisions. Because your DNA doesn’t change over time, your doctors can use your test results to make more personalized medication decisions for you over the course of your lifetime.” For more information, click here. (Courtesy of Robin Osborne)

Lived Experience Leadership Features 12 Years of Research Studies...

"Lived Experience Leadership features 12 years of research studies focused on this workforce in a range of settings, to foster a better understanding and respect for Lived Experience as a distinct discipline and build clarity on what makes this work unique and valuable. Importantly, this body of research was led by Lived Experience researchers. Lived Experience Leadership provides clear and simple to read research summaries to allow community members and people employed within various industries the opportunity to easily understand and apply strategies within their own workplace. This website also includes easy to download definitionsaudio/visual resources, and key work by other Australian and International sources. The website will continue to grow to include larger collections of our research as well as other key work. For the Lived Experience Leadership website, click here. (Courtesy of Jacek Haciak)

Doors to Wellbeing Offers “State Selfies: A Picture of Peer Services Reported by Peers”

Doors to Wellbeing’s “Peer Album” is a directory of nearly 600 peer-run organizations throughout the U.S. They invite updates and offer instructions for providing them and add, “If your entry has not made this first draft, we encourage you to re-submit.” For the 158-page directory, click here.

Disclaimer: The Clearinghouse does not necessarily endorse the opinions and opportunities included in the Key Update.

About The Key Update

The Key Update is the free monthly e-newsletter of the National Mental Health Consumers’ Self-Help Clearinghouse. Volume 18, No. 6, December 2021. For content, reproduction or publication information, please contact Susan Rogers at selfhelpclearinghouse@gmail.com. Follow Susan on Twitter at @SusanRogersMH

 

 

 

 

 

 

Key Update, November 2021, Volume 18, Number 5

The National Mental Health Consumers’ Self-Help Clearinghouse is affiliated with the Temple University Collaborative on Community Inclusion!

TO CONTACT: THE CLEARINGHOUSE: SELFHELPCLEARINGHOUSE@GMAIL.COM  … SUSAN ROGERS: SUSAN.ROGERS.ADVOCACY@GMAIL.COM … JOSEPH ROGERS: JROGERS08034@GMAIL.COM

The Key Update is compiled, written, and edited by Susan Rogers, Director, National Mental Health Consumers’ Self-Help Clearinghouse.

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NOTE: The "FROM PREVIOUS EDITIONS OF THE KEY UPDATE BUT STILL FRESH!" Department, which is directly below the monthly Criminal Justice Digest, includes items that had been posted "above the fold" in earlier editions of the newsletter but are still relevant. These items include ongoing research studies that are still seeking participants, as well as upcoming webinars and conferences, and other items of continued interest. Don't miss it!

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"How Therapy, Not Pills, Can Nix Chronic Pain and Change the Brain"

New research, published in JAMA Psychiatry, "provides some of the strongest evidence yet that a non-drug, psychological treatment can provide potent and durable [pain] relief. The University of Colorado Boulder study found that two-thirds of chronic back pain patients who underwent a four-week psychological treatment called Pain Reprocessing Therapy (PRT) were pain-free or nearly pain-free post-treatment. And most maintained relief for one year. They also showed changes in pain-generating brain regions after therapy...'This treatment is based on the premise that the brain can generate pain in the absence of injury or after an injury has healed, and that people can unlearn that pain. Our study shows it works,'" said lead author Yoni Ashar. For the CU Boulder press release and a link to the JAMA Psychiatry study, click here.

Lancet Offers Stakeholders New Opportunities Re: Psychosis & Participatory Research

Check out these opportunities for stakeholder involvement! (1) The Lancet Psychiatry Commission on Psychoses is accepting applications for an academic advisory board (click here) and a lived experience advisory board (click here). (2) The Lancet Psychiatry Commission's "Lived Experience Hub" invites stakeholders to contribute blogposts to convey criticisms, concerns and/or ideas relevant to the work of the Commission. For details, click here. To submit a blog, email lancetcommissionpsychosis@gmail.com. (3) The Lancet Psychiatry Commission's "lived experience research group" is a new listserv focused on lived experience advocacy and activism on participatory psychosis research and related policy and practice. In part, this will serve as a sounding board for Lancet Commission work and a place to engage in dialogue about what needs to change. To join, email  lancetcommissionpsychosis@gmail.com. (Courtesy of Dr. Nev Jones)

Free Online Dialogue: "Experts with Experience" Discuss Role of Researcher with Lived Experience in Mental Health Care

On November 8, 2021, researcher and educator Dr. Nev Jones, philosopher Rob Sips, and cultural scientist Alke Haarsma-Wisselink will discuss "the often difficult realities of navigating [psychosis] researcher roles and projects with direct experience challenges, unsettling existing power hierarchies, and the subtle othering and/or marginalization that often occurs when one is a minoritized lived experience member of a larger research team," Dr. Jones writes. "The primary target audience is researchers engaged in psychosis studies." Psychiatrist and philosopher Dr. Kinge Berends will facilitate the 90-minute dialogue among the speakers and with the audience. The 90-minute dialogue will begin at 8 p.m. Brussels time; click here for a time zone converter. To register and for details, contact rob.sips@kuleuven.be. After registration you will receive a Zoom link for the event. To read Dr. Jones's Twitter thread (@viscidula) on this subject, click here.

"Psychiatrist with Philosophical Interests" leads "Conversations in Critical Psychiatry," a Psychiatric Times Series

Awais Aftab, who describes himself as a "psychiatrist with philosophical interests" in his Twitter bio, leads "Conversations in Critical Psychiatry," which, he says, "explores critical and philosophical perspectives in psychiatry and engages with prominent commentators within and outside the profession who have made meaningful criticisms of the status quo." Among those interviewed are Allen Frances, M.D., author of Saving Normal; Sandra Steingard, M.D., and G. Scott Waterman, M.D., on "Integrating Academic Inquiry and Reformist Activism in Psychiatry"; Susannah Cahalan, author of Brain on Fire: My Month of Madness, on "50 Shades of Misdiagnosis"; Kathy Flaherty, J.D., executive director of the Connecticut Legal Rights Project, Inc., on "Reconsidering Care and Coercion in Psychiatry"; Nev Jones, Ph.D., on "Phenomenology, Power, Polarization, and the Discourse on Psychosis"; Dainius Puras, M.D., on "Global Psychiatry's Crisis of Values"; and many others. For the archived interviews, click here.

Free Webinar: "How Clinical and Community-Based Peer Services Engagement Can Improve SUD Treatment and Recovery Outcomes”

On November 9, 2021, at 12:30 p.m. ET, NYAPRS will host a free webinar entitled " “Peer Professional Roles and Competencies–How Clinical and Community-Based Peer Services Engagement Can Improve SUD [Substance Use Disorder] Treatment and Recovery Outcomes.” It will be presented by Ben Riker and Theresa Knorr of Friends of Recovery New York, who "will describe roles and competencies of peer professionals in SUD treatment and community-based settings. They will help you to understand best practices for peer integration into both clinical and non-clinical settings, as well as how treatment outcomes can be improved through peer services engagement. NYAPRS is offering 1 CE for this webinar." To register, click here.

IEPA Virtual Conference (Nov. 8-12, 2021) Will Feature a Workshop on Meaningful Service-User Inclusion in Early Psychosis Research

The IEPA (International Early Psychosis Association) virtual conference, whose theme is "New Frontiers in Early Intervention," will be held November 8-12, 2021. The conference "will bring together the world’s leading experts in early intervention in mental health and research, acting as a forum for ideas to be exchanged, experiences shared, knowledge developed and innovation inspired," the organizers write. Highlights will include a workshop--on November 12--on meaningful service-user inclusion in early psychosis research, co-facilitated by Ying Ying Lee (Singapore), Veenu Gupta (UK) and Nev Jones (US). A core activity of the workshop will be collective troubleshooting of a series of "scenarios in which the intentions are good, but 'lived experience' nevertheless ends up sidelined or marginalized," Dr. Jones writes. "The question: How can we collectively deepen our understanding of what it means to co-produce or meaningfully and authentically collaborate?" For more information and to register for the conference, click here. For more information about Dr. Jones's workshop, click here. (Conference times are in AEDT so click on "View in Your Time Zone"; links are provided in the conference information.)

MHA National Publishes 2022 Report on "The State of Mental Health in America"

Mental Health America's free 2022 report on "The State of Mental Health in America" paints a grim picture. Key findings include: "Suicidal ideation continues to increase among adults in the U.S...Over 2.5 million youth in the U.S. have severe depression, and multiracial youth are at greatest risk...Over half of adults with a mental health condition do not receive treatment, totaling over 27 million adults in the U.S. who are going untreated...The percentage of adults with a mental [health condition] who report unmet need for treatment has increased every year since 2011...Over 60% of youth with major depression do not receive any mental health treatment...Nationally, fewer than 1 in 3 youth with severe depression receive consistent mental health care...Both adults and youth in the U.S. continue to lack adequate insurance coverage...Rates of substance use are increasing for youth and adults, even prior to the COVID-19 pandemic." To download a free copy of the 45-page report, click here.

12th Annual (Virtual) Rehabilitation and Recovery Academy to Be Held November 16-18

NYAPRS's 12th Annual Rehabilitation and Recovery Academy will be held virtually from November 16 through November 18, 2021. The Academy's theme is "Moving Forward Together: Healing the Trauma, Advancing New Innovations." NYAPRS writes: "Join us for a special workshop, 'Promoting an Anti-Racist and Anti-Oppressive Culture in Your Organization,' where you’ll hear from experts in the field--Lenora Reid-Rose, James Rodriguez, Clinton Green and Ruth Colón-Wagner--on the urgent need to implement anti-oppressive care in behavioral health services and some strategies for addressing [this issue] at the macro and micro levels within your organizations. CEs will be offered at no cost for identified workshops in Social Work, Mental Health Counseling, and CPRP." Academy tickets for individuals are $79; for programs, $399; and for organizations with multiple programs, $599. To register, click here.

CMS Invites Participants to Its Listening Session on November 18; Comments May Be Submitted Via Email or During the Chat

On November 18, 2021, at 1 p.m. ET, The Centers for Medicare & Medicaid Services (CMS) will hold a 90-minute listening session about the strategy it published in October: Driving Health System Transformation - A Strategy for the Innovation Center’s Second Decade, "which details its vision for attaining a health system that achieves equitable outcomes through high-quality, affordable, patient-centered care." Although the 15 stakeholder speaker slots have already been filled, participants may submit comments via email to CMMIStrategy@cms.hhs.gov using the subject line “LISTENING SESSION #1,” or via chat during the live session. (Some of the written comments may be read aloud during the listening session.) For more information about the CMS Innovation Center’s new strategy and the CMS Innovation Center Strategic Direction, click here. Sign up for the CMS Innovation Center listserv for details on future listening sessions, model updates, and more. For details about the Listening Session and to register, click here. (Courtesy of Elizabeth R. Stone)

2 Free Webinars on "The Cultural Perspective in Psychiatry": November 19

On November 19, the Local Organizing Committee of the 6th World Congress of the World Association for Cultural Psychiatry (WACP) in Rotterdam, the Netherlands, will offer two free 75-minute webinars--at 11 a.m. CET and 8 p.m. CET--on "Re-conceptualizing culture and context to meet the needs of a globalizing world." In the run-up to the 6th World Congress of Cultural Psychiatry on September 14-17, 2022, the WACP is hosting two webinars, in which four experts in the fields of cultural psychiatry and anthropology will speak. For a CET-to-EST time-zone converter, click here. For more about the webinars and to register, click here. For more about the 6th World Congress, to be held in Rotterdam, The Netherlands, click here.

TU Collaborative Seeks Participants for Its Parenting Through Leisure Project; See Also the TU Collaborative's Parenting Resources, Including Information on Custody Issues

The Temple University Collaborative on Community Inclusion is seeking parents with lived experience of a mental health condition to participate in a paid research study. The TU Collaborative writes: "Our program, Parenting Through Leisure, focuses on helping parents with a serious mental illness participate in leisure activities with their child. We are looking for individuals who are 18 and older; are an adult parent with a diagnosis of schizophrenia-spectrum disorder, bipolar disorder, or depression; have a child who is 7 to 15 years old and is interested in participating in family leisure with you; have legal visitation rights, joint custody or full custody of the child, with at least weekly contact; and have a desire to engage in more leisure activities with their child." For details about the study and the remuneration as well as other benefits to eligible participants, and a link to sign up, click here. Questions? Please contact TUCollab@temple.edu. And for the TU Collaborative's Parenting web page--which includes links to many resources for parents with lived experience, including information about custody laws and a model family reunification statute--click here.

"Mental Health Research Matters" Website Posts Early Career Researcher (ECR) Content

Mental Health Research Matters, a UK organization, has launched a web page dedicated to early career researchers. They write: "Welcome to the home of all Early Career Researcher (ECR) content on the #MentalHealthResearchMatters website. Mental health research matters, and so do the individuals and groups who will carry on this vital work long into the future. Nurturing and mentoring these people, and providing the support they need to grow as researchers, and people, is as important as delivering cutting-edge research. Here you will find resources ranging from recordings of ECR workshops, advice from the experts, discussions on best Open Science practices and knowledge mobilization--as well as signposting to various ongoing and upcoming opportunities for ECRs." For the web page, click here.

"Pioneering Study Constructs The First Body-Map For Hallucination Sensations," Science Alert Reports

"Psychologists from the University of Leicester in the UK recruited a dozen volunteers through the National Health Service's Early Intervention in Psychosis teams, and asked them to document the hallucinations that occurred in everyday life for a week," according to a recent Science Alert article. Besides their visual and auditory symptoms, the 12 participants tracked "any other emotions, sensations, or even cognitive states...The result was a kind of map that broke down the boundaries of hallucinations, describing them as events that can affect just about any part of the body." The researchers believe that this small study could lead to better therapies to help people deal with the challenges that accompany "their particular mix of experiences." The research was published in EClinicalMedicine, a Lancet publication. About 3 percent of the population will experience some kind of psychotic episode during their lives, studies suggest. For the Science Alert article, click here. (Courtesy of Jacek Haciak)

Free Webinar: "Working Together to Support Peer Excellence in Kentucky"
On November 30, 2021, at 2 p.m. ET, Doors to Wellbeing will present a free 60-minute webinar on "Working Together to Support Peer Excellence in Kentucky." Doors to Wellbeing writes: "Collaboration is an important skill to use in the workplace. This training will highlight the successful collaboration between the Kentucky Department for Behavioral Health, Developmental and Intellectual Disabilities and the Bridgehaven Center for Peer Excellence. At the end of this training, participants will have a better understanding of the strategies needed for a successful collaboration." To register, click here.

Save the date: Virtual 2021 Youth Mental Health Disparities Conference

The 2021 Youth Mental Health Disparities Conference will be held virtually on December 8-9, 2021. It is sponsored by the National Institute of Mental Health, the Eunice Kennedy Shriver National Institute of Child Health and Human Development, and the National Institute on Minority Health and Health Disparities. Its theme is "Identifying Opportunities and Priorities in Youth Mental Health Disparities Research." Registration information and an agenda will be forthcoming. (Courtesy of Jacek Haciak)

What Do Our Wandering Thoughts Teach Us About Our Mental Health? Plenty, Researchers Say

The findings of a University of Arizona-led study, published in Scientific Reports, may eventually be useful in the diagnosis and treatment of mental health issues such as depression. The researchers recruited 78 randomly chosen participants without knowing if they had any clinical diagnoses, and trained them to voice their thoughts aloud for 10 minutes while sitting alone in a room without access to electronic devices. More than 2,000 thoughts were recorded, transcribed, and analyzed, with the goal of measuring thought patterns--especially "ruminative thinking," i.e., continuously thinking the same negative thoughts, which is a common symptom of depression. "We were able to witness how some people became trapped in perseverative cycles of thinking," said one researcher. On the other hand, she added, "many participants found that the exercise offered a refreshing break from the busy world around them." For the press release, click here.

Forbes Highlights Two Organizations That Study Employment Obstacles Facing People with Disabilities

A recent article in Forbes--"10 Things Everyone Should Know About People With Disabilities And Employment"--features two organizations "that study disability and employment in depth, in an effort to better understand barriers to employment and hopefully suggest new solutions that might actually make a significant impact on that huge employment gap. These include Mathematica and the Kessler Foundation’s National Trends in Disability Employment (nTIDE) program, which offers weekly online 'Lunch and Learn' sessions anyone can join. Both these and similar programs try to go beyond the obvious, and figure out what roles are played by discrimination, education and job training, benefits rules, and wider economic and social conditions." For a recent Mathematica 14-page Issue Brief--"Promoting Opportunity Demonstration: Summary of the Interim Findings," published by the Social Security Administration, click here. For the Kessler Foundation's National Trends in Disability Employment program, click here. For the Forbes article, click here.

Dr. Aaron T. Beck, Developer of Cognitive Therapy, Dies at 100

"Dr. Beck was a young psychiatrist trained in Freudian analysis when, in the late 1950s, he began prompting patients to focus on distortions in their day-to-day thinking, rather than on conflicts buried in childhood, as therapists typically did," The New York Times reports. "Dr. Beck’s work, along with that of Albert Ellis, a psychologist working independently, provided the architecture for what is known as cognitive behavior therapy, or CBT.... Steven Hollon, a psychologist at Vanderbilt University, said of Dr. Beck: 'He took a hundred years of dogma, found that it didn’t hold up, and invented something brief, lasting and effective to put in its place. He basically saved psychotherapy from itself.'” Dr. Beck died on November 1, 2021, at age 100. For his obituary in The New York Times, click here.

Celebrities! They’re Just Like Us! These 18 Famous People Were Diagnosed with Bipolar Disorder

What do Brian Wilson of the Beach Boys, astronaut Buzz Aldrin, movie director Francis Ford Coppola, and British Prime Minister Winston Churchill have in common? All were diagnosed with bipolar disorder—along with 14 other celebrities named on the website of Olympia House, a rehab center in Northern California. One of those who are included, singer/songwriter Demi Lovato, “said she wants women to know that it’s possible to live well, feel well, and also find happiness with bipolar disorder or any other mental illness they’re struggling with.” For the article, click here.

"Clinical Depression Cartoons and Comics"

Laughter is the best medicine, right? For some of that medicine, click here.

The November 2021 Digest of Articles Offering Healthy Lifestyle Advice

For "How to Fend Off Winter Depression: As the days get shorter and the nights start earlier, take these steps to help prevent seasonal affective disorder," click here. For "Exercise for 3 Minutes, Every Half-Hour, to Counter the Ill Effects of Sitting: Climbing stairs, doing jumping jacks or even taking as few as 15 steps during mini-breaks improved blood sugar control among office workers," click here. For "How to Age Gracefully: Inspired by a new book, 'Stupid Things I Won’t Do When I Get Old,' I’m taking stock of my life and deciding what I need to reconsider," click here.

The November 2021 Digest of Articles about the Criminal Justice System, in Which Many Individuals with Mental Health Conditions Are Incarcerated (and the Key Update continues after this Digest)

For "In New Mexico, a bold experiment aims to take police out of the equation for mental health calls," click here. For "King County crisis services ask for clarity on police intervention: Providers want local governments to prescribe when and how police should be involved in mental health calls," click here. For "Analyzing Mass Incarceration," click here. For "Individuals Awaiting Trial Represent 77% of Jail Suicides: BJS," click here. For "Disabled and Abandoned in New York State Prisons: Incarcerated people are being disciplined because their disability makes it impossible to comply with prison rules," click here. For "The Color of Justice: Racial and Ethnic Disparity in State Prisons: Black Americans are incarcerated in state prisons across the country at nearly five times the rate of whites, and Latinx people are 1.3 times as likely to be incarcerated than non-Latinx whites. This report documents the rates of incarceration for white, Black and Latinx Americans in each state, identifies three contributors to racial and ethnic disparities in imprisonment, and provides recommendations for reform," click here. For "Solitary Confinement Condemns Many Prisoners To Long-Term Health Issues," click here. (Courtesy of Jacek Haciak) For "Why Many Police Traffic Stops Turn Deadly: Officers, trained to presume danger, have reacted with outsize aggression. For hundreds of unarmed drivers, the consequences have been fatal," click here. For "Philadelphia to become first major US city to ban minor traffic stops to promote equity, curb 'negative interactions' with police," click here. For "What Responsibility Do Courts Bear for the Crisis at Rikers Island? In the wake of a dozen deaths in New York City jails this year, prosecutors and judges are being asked to reckon with the consequences of setting bail," click here. For "Opinion: The History of Rikers Island Proves That Reform Isn’t Possible," click here. For "They Put Me in Solitary for Drugs I Didn’t Have: Lockups use unreliable tests to claim that lawyers are sending drugs to their clients behind bars," click here. For "Prisons Said It Was COVID Isolation. The Incarcerated Describe Torture. As the pandemic ravaged prisons and jails, officials opted to force people into inhumane solitary confinement. HuffPost spoke to some who described how they 'nearly broke,'” click here. For "DOJ opens civil rights probe into Texas youth correctional facilities: The department is launching the investigation over allegations of physical and sexual abuse," click here. For "New York State’s New Death Penalty: The Death Toll of Mass Incarceration in a Post Execution Era," click here. For "We Social Workers Should Remember Our Values and Stop Policing," click here. For "Planting a Life—and a Future—After Prison at Benevolence Farm: The residential and employment program on a North Carolina organic farm helps formerly incarcerated women find a new path," click here. For " How to Solve the Crisis on Rikers Island: The dangerously overcrowded and mismanaged jail must be closed—but even before then, there are things we can do right now to keep people out and send them home faster," click here.

FROM PREVIOUS EDITIONS OF THE KEY UPDATE BUT STILL FRESH!

Yale Study of COVID-19’s Mental Health Impact Seeks Focus Group Participants with Physical and/or Mental Health Challenges

A study at Yale University led by people with lived experience is recruiting individuals who live with physical and/or mental health challenges to talk about how their lives have changed since the COVID-19 pandemic started. “The Wisdom project: exploring the impact of COVID-19 on the mental health of persons who experience adverse living conditions” is led by Larry Davidson, PhD, and Ana Florence, PhD. Ana is a Brazilian psychologist, activist, and postdoctoral associate, and Larry is Director of the Yale Program for Recovery and Community Health. If you live with mental and/or physical health challenges and would like to participate, you can email wisdomprojectyale@gmail.com or call 475-355-5393. “All focus groups will be held virtually, and a $50 e-gift card will be provided to each participant,” the researchers say.

“Mental Health System: Open Letter to the Media” Seeks Signatures

“Everyone who believes that the problematic aspects of the mental health system are not adequately represented in the media is invited to sign this letter,” writes Yulia Mikhailova, who launched this initiative to educate the media. The letter begins: “We, a group of people with first-hand experience of the mental health system, write to express our concern about what we see as one-sided coverage of this system in the media and to draw the attention of civil rights organizations to the systemic discrimination that we witnessed and experienced. We, our loved ones, or inmates in the facilities where we worked, were exploited for monetary gain and victimized in various other ways. We saw how abuse, corruption, and exploitation were covered up, while victims and critics of the system were silenced and marginalized.” For a short version of the letter, which includes a link to a longer version, click here. Questions? Contact Yulia Mikhailova at yuliamikh@gmail.com.

Alternatives 2021 Is Over, but You Can View Many of the Presentations—and the Work Continues!

If you missed Alternatives 2021—the oldest national conference organized by and for individuals with lived experience of a mental health condition—you can see many of the presentations on the Alternatives conference website! The conference—whose theme was “Connecting, Organizing, Activating!”—was held July 8, 10, 15, and 17, and was organized by the National Coalition for Mental Health Recovery. This year the conference was virtual—and free! One highlight was the three Action Groups—on Promoting Racial and Social Justice, National and Statewide Advocacy, and Crisis Prevention and Alternatives to Institutionalization—which met on all four days. Reports from each of the groups are posted on the Alternatives conference website, and it is hoped that people will continue to work together to make progress on the goals that were determined by participants during the conference. For information about the Action Groups, click here. Recordings of many of the workshops, keynotes, and special activities are available on the Alternatives conference website (click here).

Disability Rights California Invites You to Its Past, Present, and Future (Free) Webinars

Disability Rights California (DRC) writes: “You are cordially invited to join us in our virtual disability rights trainings. Our webinars are twice a week, on Tuesdays at 2 p.m. ET (11 a.m. PT) in English and Thursdays at 7 p.m. ET (4 p.m. PT) in Spanish. Our free trainings provide information and resources on different topics related to mental health, self-advocacy, our legal rights (based on California law) and access to services that are informative and empowering. We welcome all peers (people with lived experience), service providers, family members and people in the community.” To view the webinars, click here.

 (Virtual) 2021 Disability & Intersectionality Summit (DIS) Conference Info

The theme of the Disability & Intersectionality Summit (DIS)—"a biennial national conference that centers the multiple oppressions that shape the lived experiences of disabled individuals, as told by disabled people, in a setting organized by disabled activists”—is “Disabled Community Care and Survival: Strategies and Brilliance.” The organizers write: “This year’s DIS 2021 will have presentations scheduled from June - December.” For more about the Summit, click here. (Courtesy of Dan Fisher)

CNN Offers “A Guide to Helping and Getting Help During the Coronavirus Crisis”

CNN writes: “The coronavirus pandemic is overwhelming, and one of the most excruciating parts for many people is the feeling of utter helplessness in the face of widespread suffering and hardship. CNN’s Impact Your World has compiled a list of donation opportunities and tips to help those affected by the crisis. Click on a category or scroll down to browse a list of organizations, resources and ideas. Need help? Most categories also include resources for financial, emotional or social support.” For the free guide, click here.

International Conference on Psychiatric Drug Withdrawal Scheduled for May 2022

The first conference of the International Institute for Psychiatric Drug Withdrawal is tentatively scheduled for May 2022 in Reykjavik, Iceland. “The three themes underpinning the conference are safe withdrawal from psychiatric medication, alternatives to psychiatric medication, and the need to question the dominance of medication in mental health care.” Confirmed speakers include Robert Whitaker (journalist and founder of Mad in America), Professor Joanna Moncrieff (psychiatrist and researcher), Laura Delano (co-founder of the Inner Compass Initiative and a person with lived experience), Dr. Carina Håkansson (founder of Family Care Foundation and The Extended Therapy Room Foundation), and Dr. Magnus Hald (Psychiatrist at the Drug-Free Treatment Unit, Norway). For more information, click here.

National Survey Seeks Input from Certified Peer Specialists

“Routine peer support has shown to increase individuals’ hope, sense of personal control, ability to make positive changes, and decreased psychiatric symptoms,” writes Dr. Karen Fortuna of the Geisel School of Medicine at Dartmouth. “Despite these benefits, the organizational structure of peer support is not known. Dartmouth College is initiating a national survey of trained Certified Peer Specialists to help us understand the organizational structure of peer support services.” For more information and/or to participate in the 15-minute survey, click here. (Courtesy of Judene Shelley)

Hearing Voices Network Is Now Hosting Online Groups

“There are now ONLINE opportunities to connect, share experiences, and find mutual support,” the Hearing Voices Network (HVN) writes. “These groups are accessible via web-based platforms and by phone…Online groups are specifically for those with personal lived experience with hearing voices, seeing visions, and/or negotiating alternative realities. They are voice-hearer facilitated. With further questions and for details on how to access the group[s], please email info@hearingvoicesusa.org.” To read this announcement online and for more information, click here.

Conference on Stigma to Take Place November 15-19, 2021, at Howard University

The 12th Annual International Conference on Stigma will be held November 15-19, 2021, at Howard University. "The goals of this hybrid conference are to increase awareness of the stigma of HIV and other health conditions and to explore interventions to eradicate this stigma. The conference also serves to educate healthcare providers and the general public about stigma as both a human rights violation and a major barrier to prevention and treatment of illnesses." The theme of the conference is "Trauma…Recovery…Healing." For more information, click here. (Courtesy of Sharon Wise)

Survey Seeks Respondents Who Are in Administrative/Leadership Positions in the Mental Health Field

If you are in an administrative/leadership position in the mental health arena, “the Group for the Advancement of Psychiatry (GAP) Committee on Psychiatric Administration and Leadership invites you to participate in the International Survey on Administrative Psychiatry. The survey has two purposes: 1. To identify the concerns and needs of mental health professionals/psychiatrists in administrative and leadership positions. 2. To determine training needs in administrative psychiatry. We ask you to complete this brief, [15- to 20-minute] questionnaire to help us in developing recommendations for action. We also want to let you know that, if you fill out this questionnaire, you permit the committee to use your anonymous data for scientific work.” Peer providers are included. For the survey, click here. (Courtesy of Oryx Cohen)

“Experiences with Hospitalization” Survey Seeks Participants

“The purpose of this survey is to help us understand people's lived experience with voluntary and involuntary treatment because of suicidal thoughts. It was created by people with lived experience…We are planning to use this information to facilitate discussions with suicidologists and the suicide prevention community about the impact of the use of these interventions, particularly within marginalized populations. We feel the voice of people with lived experience with these interventions has not had adequate opportunity to be heard, and hope that by completing this survey anonymously, people who have been most impacted can find a safe way to share their experiences. Please note that this is not a research project.” For more information and/or to participate, click here. (Courtesy of Leah Harris)

International Survey on Antipsychotic Medication Withdrawal Seeks Respondents

“Have you taken antipsychotic medication (such as Zyprexa, Seroquel, Abilify, Risperdal, Haldol, Geodon, Stelazine, and others), for any condition or diagnosis, with or without other medications? And did you ever stop taking antipsychotics, or try to stop taking them? Are you 18 years or older? If yes, you can take this survey about antipsychotic withdrawal and attempts to withdraw, including if you stopped taking them completely or if you tried to come off and still take them. The survey aims to improve mental health services by better understanding medication withdrawal. Lead researcher is Will Hall, a therapist and Ph.D. student who has himself taken antipsychotics. Service users/survivors/consumers from around the world also gave input. The study is sponsored by Maastricht University in the Netherlands; co-sponsors include the International Institute for Psychiatric Drug Withdrawal. Questions? Please contact will.hall@maastrichtuniversity.nl.”  For more information or to take the survey, click on www.antipsychoticwithdrawalsurvey.com

Virtual Group Works to Advance Peer Research Capacity, Leadership, and Involvement

Nev Jones, PhD—a strong advocate for building research capacity, leadership, and involvement among peers, survivors, and service users—leads a virtual group dedicated to this effort. Dr. Jones—assistant professor, School of Social Work, University of Pittsburgh—was part of the team that developed “User/Survivor Leadership & Capacity Building in Research: White Paper on Promoting Engagement Practices in Peer Evaluation/Research (PEPPER),” published by the Lived Experience Research Network. For the white paper, click here. Anyone interested in joining the virtual group can email Nev at nev.inbox@gmail.com.

Peer Support in Higher Education Survey Seeks Respondents

“Peer support programs are growing on college campuses across the U.S. Mental Health America, Doors to Wellbeing, and the Temple University Collaborative on Community Inclusion want to better understand the availability of peer support in higher education as well as the experiences and needs of students accessing peer support programs…We hope to use this research to support the expansion of peer support in higher education, including developing a national database of peer support programs in higher education and documenting pressing issues in campus programs…You may also indicate if you are interested in having your school’s peer support program listed in a national database of peer support programs in higher education.” For more information and to complete the survey, click here

Registration Is Open for Peerpocalypse, to Be Held March 14-17, 2022!

The Mental Health and Addiction Association of Oregon (MHAAO) has announced registration for Peerpocalypse 2022, to be held March 14-17, 2022! “MHAAO is pleased to present its first hybrid conference! In-person attendance allows access to pre-conference events, keynote speeches, all workshops, evening events, and the job fair and exhibit hall. Virtual attendance includes access to keynote speeches and all workshops. In-person early registration—[deadline unspecified]—is $300; regular registration is $375. Virtual registration is $200. Lunch meals (sic), CEUs, a T-shirt, a printed program, and a badge are included for both in-person and virtual attendees. Registration must be received no later than February 14, 2022, to receive a T-shirt.” To register, click here.

Mad In America Invites You to Submit Your Personal Story (Within Certain Guidelines)

Mad In America writes: “A ‘personal story’ is defined as your story of being in relationship to psychiatry and/or the mental health system, whatever that means to you. It might involve your opinions and analysis of what happened to you, as well. It can be about a specific event, or about your overall journey, provided it fits the length requirements (1,500 to 3,000 words) and has a narrative arc. The piece should be about your personal experiences, not psychiatry or the mental health system in general. Submissions should fall under the theme of rethinking psychiatry and the mental health system, and should be original works not previously published elsewhere. For examples of the types of stories we publish, view our personal stories archive here.” For more information and/or to submit a personal story, click here.

PsychAlive Offers a Variety of Webinars on Mental Health Topics, Many Free, Others $15

PsychAlive is a free, nonprofit resource created by the Glendon Association, whose mission is “to save lives and enhance mental health by addressing the social problems of suicide, violence, child abuse and troubled interpersonal relationships.” Psychalive.org offers a variety of upcoming and archived webinars, many of which are free, while others are available for $15. Among the myriad topics are “From Anxiety to Action: How to Stay Sane While Fighting Climate Change,” “How to Overcome Insecurity,” “Powerful Tools to Fight Depression,” and “Understanding and Overcoming Adverse Childhood Experiences.” To check out the webinars, click here.

Seven Ways to Keep a Digital Copy of Your Vaccination Card on Your Smartphone

“You'll need proof of vaccination to go back to work or enter many restaurants, gyms and event venues, so keep your COVID-19 card handy.” This is the advice of CNET.com, a tech support website. Besides the obvious—taking a photo of the card to store on your phone—there are six other suggestions. For details, click here. (Courtesy of Yvonne Smith)

Many Research Studies Are Seeking Participants, Mad In America Reports

Mad in America recently posted an assortment of research studies that are looking for participants. The studies include International Online Survey of Members of Peer Support Groups About Their Experiences of Withdrawing From Antidepressants; Study on Psychosocial Disability Advocacy and Global Mental Health; University of Pennsylvania Perelman School of Medicine study: Experiences of inpatient psychiatric care among former patients; Dissertation research study: Spiritual/religious experience misdiagnosed as “mental disorder”; Have you had a diagnosis of Bipolar Disorder and decided to stop taking medication?; and others. For details and to participate, click here.

ISEPP Circulates Petition to Support Human Rights in Psychiatric Treatment

ISEPP seeks signatures on a petition to  "[m]ake a strong statement that any psychiatric or psychotherapeutic interventions without full and honest informed consent are unethical and inhumane." For the petition, click here. (Courtesy of Amy Smith)

ISPS-US Offers an Array of Archived Webinars--Free but Donations Are Welcomed

The ISPS-US (The International Society for Psychological and Social Approaches to Psychosis-US Chapter) is offering a whole raft of archived webinars, which are free (although donations are welcomed). Among the webinars are "Cognitive Behavioral & Related Therapies for Psychosis: Diverse Approaches to Supporting Recovery," "How Can the Uncontainable Be Contained? Paradoxes of Madness & Philosophy," "Robert Whitaker: The Rising Non-Pharmaceutical Paradigm for 'Psychosis,' "Life with Voices: A Guide for Harmony," "COPE Project: Non-Pharmaceutical Research on Influencing Voices and Visions," "What Hurts and What Helps In Treatment For 'Psychosis': Insider Perspectives," and many others. For more information and to access the webinars, click here.

“Where DNA and Medications Meet”

Not all drugs are effective for all people; therapeutic response rates for many drugs are only 50%-75%. “OneOme, co-founded by [the] Mayo Clinic, provides evidence-based pharmacogenomic solutions that help improve patient outcomes and reduce costs through more personalized medication decisions.” OneOme’s RightMed Test is “a doctor-ordered pharmacogenomic (PGx) test that analyzes your DNA and provides your doctors with genetic information to help them determine how you may respond to certain medications. The results may help your doctors reduce medication trial and error, minimize risk of side effects, save you time and money, and make more informed prescribing decisions. Because your DNA doesn’t change over time, your doctors can use your test results to make more personalized medication decisions for you over the course of your lifetime.” For more information, click here. (Courtesy of Robin Osborne)

Lived Experience Leadership Features 12 Years of Research Studies...

"Lived Experience Leadership features 12 years of research studies focused on this workforce in a range of settings, to foster a better of understanding and respect for Lived Experience as a distinct discipline and build clarity on what makes this work unique and valuable. Importantly, this body of research was led by Lived Experience researchers. Lived Experience Leadership provides clear and simple to read research summaries to allow community members and people employed within various industries the opportunity to easily understand and apply strategies within their own workplace. This website also includes easy to download definitionsaudio/visual resources, and key work by other Australian and International sources. The website will continue to grow to include larger collections of our research as well as other key work. For the Lived Experience Leadership website, click here. (Courtesy of Jacek Haciak)

Doors to Wellbeing Offers “State Selfies: A Picture of Peer Services Reported by Peers”

Doors to Wellbeing’s “Peer Album” is a directory of nearly 600 peer-run organizations throughout the U.S. They invite updates and offer instructions for providing them and add, “If your entry has not made this first draft, we encourage you to re-submit.” For the 158-page directory, click here.

Disclaimer: The Clearinghouse does not necessarily endorse the opinions and opportunities included in the Key Update.

About The Key Update

The National Mental Health Consumers’ Self-Help Clearinghouse is now affiliated with the Temple University Collaborative on Community Inclusion!

The Key Update is the free monthly e-newsletter of the National Mental Health Consumers’ Self-Help Clearinghouse. Volume 18, No. 5, November 2021. For content, reproduction or publication information, please contact Susan Rogers at selfhelpclearinghouse@gmail.com. Follow Susan on Twitter at @SusanRogersMH

 

 

 

 

 

 

Key Update, October 2021, Volume 18, Number 4

The National Mental Health Consumers’ Self-Help Clearinghouse is affiliated with the Temple University Collaborative on Community Inclusion!

TO CONTACT: THE CLEARINGHOUSE: SELFHELPCLEARINGHOUSE@GMAIL.COM  … SUSAN ROGERS: SUSAN.ROGERS.ADVOCACY@GMAIL.COM … JOSEPH ROGERS: JROGERS08034@GMAIL.COM

The Key Update is compiled, written, and edited by Susan Rogers, Director, National Mental Health Consumers’ Self-Help Clearinghouse.

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NOTE: The "FROM PREVIOUS EDITIONS OF THE KEY UPDATE BUT STILL FRESH!" Department, which is directly below the monthly Criminal Justice Digest, includes items that had been posted "above the fold" in earlier editions of the newsletter but are still relevant. These items include ongoing research studies that are still seeking participants, as well as upcoming webinars and conferences, and other items of continued interest. Don't miss it!

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SAMHSA to Hold Open Virtual Meeting of ISMICC on October 27; Comments Due by October 20

The next "committee meeting and listening session" of SAMHSA’s Interdepartmental Serious Mental Illness Coordinating Committee (ISMICC) will be held on October 27, 2021, from 1:00 p.m. to 5:00 p.m. ET. More registration details are pending, NYAPRS E-News writes, "but please email Pamela.Foote@samhsa.hhs.gov before October 20 to offer public comments. The notice says that 'up to three minutes will be allotted for each approved public comment as time permits. Written comments received in advance of the meeting will be considered for inclusion in the official record of the meeting.'” The meeting is open to the public and can be accessed via telephone or webcast only. The agenda with call-in information and the draft report to Congress will be posted on SAMHSA's website prior to the meeting, which "will address feedback from the ISMICC members regarding the final report to Congress and include information on federal efforts related to serious mental illness (SMI) and serious emotional disturbance (SED)." For background about the ISMICC, click here. For more information as it becomes available, click here.

Free Webinar October 8: "Psychiatric Advance Directives (PADs): A Tool for Improving Crisis Care and Legal Issues for Implementation"

On October 8, 2021, at 12 p.m. ET--and available for viewing through November 7, 2021--a free, one-hour, SAMHSA-sponsored webinar on "Psychiatric Advance Directives (PADs): A Tool for Improving Crisis Care and Legal Issues for Implementation" will be presented. The organizers write: "PADs permit persons while in a competent state to consent [to] or refuse future treatment and appoint a proxy decision maker to speak for the incapacitated person to reinforce those preferences during a crisis....This webinar will discuss implementation of PADs and legal barriers to their use." For more information and to register, click here. (Courtesy of Dan Fisher) 

"A Government Program That Controls The Lives of People Leaving Psych Hospitals"

"For those found not guilty of a crime by reason of insanity and put into California’s CONREP program, strict supervision can last decades," according to The Marshall Project. "CONREP, which oversees roughly 650 Californians, is meant to help patients transition from institutions to independence, while also trying to prevent violent relapses. But according to a Marshall Project investigation, many patients, family members, former employees and attorneys say the system can trap people for decades in a legal limbo, one that dictates where former patients live, whether they work, and whom they see." For the Marshall Project article, click here. See also "When Not Guilty Is a Life Sentence: What happens after a defendant is found not guilty by reason of insanity? Often the answer is involuntary confinement in a state psychiatric hospital—with no end in sight": (click here).

SAMHSA's Announcement of Its New Office of Recovery Highlights the Value of Peer-run Services

"Recovery [from mental health conditions and substance use disorders] is enhanced by peer-delivered services," according to SAMHSA's announcement of its Office of Recovery on September 30, 2021. "These peer support services have proven to be effective as the support, outreach and engagement with new networks help sustain recovery over the long term. Peer services are critical, given the significant workforce shortages in behavioral health. SAMHSA’s new Office of Recovery will promote the involvement of people with lived experience throughout agency and stakeholder activities, foster relationships with internal and external organizations in the mental health and addiction recovery fields and identify health disparities in high-risk and vulnerable populations to ensure equity for support services across the Nation." For SAMHSA's press release, click here. For the press release of the National Coalition for Mental Health Recovery about the Office of Recovery, click here.

October 10 Is World Mental Health Day

The World Health Organization's theme for World Mental Health Day 2021 (October 10) is "Mental health care for all: let's make it a reality." To read more about the WHO's suggestions, click here. For WikiHow's ideas about how to celebrate World Mental Health Day, click here. For the WHO's 296-page "Guidance on Community Mental Health Services: Promoting Person-centered and Rights-based Approaches" (courtesy of Janet Paleo), published in the September 2021 Key Update, click here. For a WHO press release--"New WHO Guidance Seeks to Put an End to Human Rights Violations in Mental Health Care," from the July Key Update, click here. For "Former UN Special Rapporteur Denounces 'Global Psychiatry’s Crisis of Values,'” from the June 2021 Key Update, click hereFor "World Mental Health Day: Prioritize Social Justice, Not Only Access to Care," click here.

New Edition of TU Collaborative Newsletter Focuses on College Students with Mental Health Issues

The new edition of the Temple University Collaborative on Community Inclusion's newsletter is here! It includes three free guides: "From You, I Get the Story: Amplifying the Voices of Students with Mental Health Issues on College Campuses" (33 pages), along with a new podcast on the same topic; "Your College Community: How People with Psychiatric Disabilities Can Make the Most of Their College Experience" (35 pages); and "Campus Engagement-Oriented Supported Education" (49 pages). For the newsletter, click here.

Free Webinar: "Navigating Trauma for Kids & Teens: Back-to-School & COVID"
On October 12, 2021, at 2:30 p.m. ET, Mental Health America will present a free, one-hour webinar on "Navigating Trauma for Kids & Teens: Back-to-School & COVID." MHA writes.: "Trauma can have varying effects on a child's developing brain, oftentimes significantly impacting their ability to succeed, socially and academically, in school. These 18 months [of the pandemic] and all that have come with them have compounded already-present traumatic stress for so many kids, and in turn increased the likelihood of behavioral, academic, and social challenges. Join Brightline's webinar to learn more about how these experiences can alter a child’s ability to function in school and the ways we can support them and their families." For more information and to register, click here. MHA's previous webinars are archived and available for viewing. For details, click here.

There Are Three Days Still to Come for the 2021 (Virtual) NARMH Conference

The final three days of the 2021 annual (virtual) conference of the National Association for Rural Mental (NARMH) will take place on October 13, 20, and 27. (The first day was October 6.) The theme is "Emerging from COVID-19: Lessons Learned and Future Directions for Rural Mental Health." The registration fee includes a one-year NARMH membership. For membership details, click here. For conference information and to register, click here. Note: Discounted rate of $75 for the remaining sessions.

A Brain Implant Lifts Depression in One Person, While an Earlier Implant-for-Depression Study Failed

"An electrical implant that sits in the skull and is wired to the brain can detect and treat severe depression, U.S. scientists believe after promising results with a first patient," BBC News reports. "Sarah, who is 36, had the device fitted more than a year ago and says it has turned her life around. The matchbox-sized pack in her head is always 'on' but only delivers an impulse when it senses she may need it. The experimental study is described in Nature Medicine journal." However, in a related story, from 2018, about the Broaden Trial, which began in 2008, all of the trial participants interviewed by a reporter "had suffered a range of debilitating adverse effects, & ultimately had the device explanted." "The trial had been terminated in 2013, due to a low 17% success rate among at least 75 patients that received the controversial brain implant," Mad In America reports. "But the public was given no additional details from the sponsor about the trial’s protocols, or the outcome of at least 128 people that had enrolled in this risky experimental study." For "Brain implant may lift most severe depression," click here. For "Brain Implants: Spinning the Trial Results to Protect the Product," click here.

(Virtual) National Dialogues on Behavioral Health Continue on October 14

There's still time to register for the last four sessions of the 2021 National Dialogues on Behavioral Health Virtual Conference; the cost is $25 per session. The final four sessions will take place on consecutive Thursdays: October 14, 21, and 28, and November 4; each session is from  2:00 p.m. to 4:30 p.m. ET. The theme is  “Behavioral Health in the 21st Century: Fast Forward After the Pandemic Age.” The organizers write: "The purpose of the conference is to bring experts, administrators, providers, consumers, family members and advocates together to discuss the cutting edge in the topic of interest with a focus on implementation and 'how to do it.' A distinctive feature is the opportunity for extended dialogue and interaction among the participants." The conference is sponsored by the National Association of County Behavioral Health and Developmental Disability Directors (NACBHDD), the Western Interstate Commission for Higher Education (WICHE) Behavioral Health Program, and the National Association of State Mental Health Program Directors (NASMHPD). For more information and to register, click here.

National Association of Peer Supporters to Hold 2021 (Virtual) Annual Conference October 21-22

The 2021 conference of the National Association of Peer Supporters (N.A.P.S.) will be held October 21-22. Its theme is "Uniting the Peer Workforce." N.A.P.S. writes: "This two-day virtual event features networking, breakout sessions, and the N.A.P.S. annual meeting. Certificates of Completion will be offered for attendance." For ticket information and to register, click here." (The website includes a link to the program, indicating (at this writing) that it is "coming soon.")

"The Participation Ladder: A Consumer/Survivor Lens"

"The Participation Ladder: A Consumer/Survivor Lens" is a four-page infographic that covers how "[m]oving up the ladder is a way to address social injustice and inequity. The higher you move up the participation ladder, the more say we get to have about our own lives." The infographic includes a "Participation Ladder"--with the categories "Type of Participation" (from "Consumer-owned" on the top rung to "Exclude: Consumers are unable to access services or systems or decision making" at the bottom), "What Happens at Each Level," "Implications and Views," and "Power"--as well as a checklist to measure the level of participation (and, therefore, the impact) that your project can achieve. For the infographic, click here. (Courtesy of Nev Jones and Jacek Haciak)

APA to Present Its (Virtual) Mental Health Services Conference on October 14-15, 2021

The American Psychiatric Association is hosting its Mental Health Services Conference online on October 14-15, 2021. The theme is "Sociopolitical Determinants: Practice, Policy and Implementation." The APA writes: "The Mental Health Services Conference highlights educational programs and innovations in clinical services designed to ensure equal access to high-quality mental health care for all populations regardless of race/ethnicity, age, religion, nationality, sexual orientation, gender identity, socioeconomic status, or geographical background." For details, including ticket costs and the complete agenda, and to register, click here.

"Taking the Call"--a National Conference Exploring Innovative Community Responder Models--Will Take Place October 20-21

Taking the Call, on October 20-21, 2021, "will bring people together from across the U.S. to delve into how jurisdictions are serving as laboratories for innovation to ensure that emergency calls receive the appropriate response. The virtual conference will explore how communities are working to build more comprehensive crisis systems including the opportunities and challenges of emerging community responder models and whether or how the approach may improve community health, lessen the burden on law enforcement, and reduce unnecessary justice system contact. The conference is presented by the U.S. Department of Justice’s Bureau of Justice Assistance, The Council of State Governments Justice Center, and the University of Cincinnati. The national conference is free and open to the public; pre-registration is required. For more information and to register, click here(Note: This conference was first publicized in the May 2021 Key Update.)

Free Virtual Mental Health Summit to Be Hosted by MHA and IDONTMIND

Mental Health America and IDONTMIND, in partnership with Youtube, will present Our Future In Mind: Mental Health Summit, a free live conference, on November 5, 2021, from 5 p.m. to 8 p.m. ET, and November 6 from 12 p.m. to 6 p.m. ET. Mental Health America writes: "The first of its kind, this event will give you a front-row seat to the stories behind some of the biggest movements in mental health and the tools you will need to be part of the change." For more information and to register, click here

Mindspring Alliance Is Sponsoring Several Free Webinars in October 2021

Mindspring Alliance, a mental health agency based in Des Moines, Iowa, has eight free webinars coming up in mid- to late October. "Delivering comprehensive outreach & education is the heart of our mission," they write. "These events are absolutely free and everyone is welcome." All of the webinars are one hour in length, at 1 p.m. ET, 12 p.m. CT, 11 a.m. MT, 10 a.m. PT. The choices are "Understanding Bipolar Disorder" (October 12), "Understanding Obsessive Compulsive Disorder" (October 13),  "Understanding Hoarding" (October 14), "The Psychological Origins of Stigma & Bias" (October 19), "The Science Behind Mental Health" (October 20), "Stress: Signs, Symptoms, Management, & Prevention" (October 21), "Understanding Schizophrenia" (October 27), and "Understanding Seasonal Affective Disorder" (October 28). For more information and to register, scroll down at this link (click here).

Doors to Wellbeing Offers Free Webinar on "The Season for Self-Care"

The next free webinar in Doors to Wellbeing's series is "The Season for Self-Care," on October 26, 2021, at 2 p.m. ET. "As Autumn arrives, we move inward, becoming aware of what is really needed to care for ourselves and those around us. It is essential for those of us who take care of others to spend some time taking care of ourselves first. For peer specialists, this webinar will explore changing self-care to fit the season, applying techniques that foster a positive attitude, and engaging others in ways that support wellness." For more information and to register, click here.

Researchers Construct a Model of Psychological Balance

A recent article in Frontiers in Psychology by researchers at the University of Zurich describes their efforts to create a model of "psychological balance." "...[I]t has to do with the degree to which someone is able to possess a consistent yet flexible outlook on life while also spending the right amount of time taking care of oneself versus others," therapytips.org reports. The model contains 10 value domains: "Self-direction (e.g., 'I decide about which way my life goes'); Stimulation ('I am open to discovering new things in life'); Hedonism ('I can enjoy life to the fullest'); Achievement ('I strive to do my best and succeed in what I do'); Power ('I strive to gain resources and influence over others'); Security ('I want to be safe wherever I am'); Conformity ('I follow social rules out of respect for others'); Tradition ('I follow ideas of my culture or religion'); Benevolence ('I care about my family, friends, and other people'); and Universalism ('I care about all things on the planet')...The researchers suggest that individuals who devote relatively equal amounts of time to themselves and others... are most likely to exhibit psychological balance." For the therapytips.org article, "4 Traits of Psychologically Balanced People," click here. For the Frontiers in Psychology article, click here.

Latest Live & Learn Newsletter Offers Research, News, and Resources

Live & Learn--"the only survivor-run research organization in the U.S."--writes: "This month we are devoting our newsletter to updates from our projects and our efforts to share the information we learn through our work. Make sure to check out the opportunity to contribute to the development of our self-employment resource platform!" For the September 2021 newsletter, click here.

"Study Finds 'Serious Problems with Privacy' in Mobile Health Apps," BMJ Reports

A recent "in-depth analysis of more than 20,000 health-related mobile applications (mHealth apps) published by The BMJ finds 'serious problems with privacy and inconsistent privacy practices.' The researchers say the collection of personal user information is 'a pervasive practice' and that patients 'should be informed on the privacy practices of these apps and the associated privacy risks before installation and use.'...[R]esearchers at Macquarie University in Australia identified more than 15,000 free mHealth apps in the Google Play store and compared their privacy practices with a random sample of more than 8,000 non-health apps. They found that while mHealth apps collected less user data than other types of mobile apps, 88% could access and potentially share personal data...Only 4% of mHealth apps actually transmitted data (mostly user's name and location information). However, the researchers say this percentage is substantial...The researchers also found that 28% (5,903) of the mHealth apps did not offer any privacy policy text, and at least 25% (15,480) of user data transmissions violated what was stated in the privacy policies." For the article, click here.

And Now for Something Completely Different…

For some comic relief, click here.

The October 2021 Digest of Articles Offering Healthy Lifestyle Advice

For "Research Shows People Become Increasingly Unhappy Until Age 47.2. Here's How to Minimize the Negative Effect of the 'Happiness Curve': While middle age 'misery' reaches its low point in our late 40s, still: There are definitely ways to minimize the effect of a global phenomenon," click here. For "The Difference Between Hope and Optimism: For starters, hope is better," click here. For "We Need to Understand the Difference Between Isolation and Loneliness: Both can pose distinct dangers to our mental and physical health," click here. For "Four Light Exercises to Help You Sleep," click here. For "The Opposite of Toxic Positivity: 'Tragic optimism' is the search for meaning during the inevitable tragedies of human existence, and is better for us than avoiding darkness and trying to 'stay positive,'” click here.

The October 2021 Digest of Articles about the Criminal Justice System, in Which Many Individuals with Mental Health Conditions Are Incarcerated (and the Key Update continues after this Digest)

For "Mental Illness In Solitary Landed These Men An Extra 842 Years In Illinois Prisons, Advocates Say: A civil-rights group wants the governor to commute sentences for 43 people whose mental health and behavior deteriorated in solitary," click here. For "Doing No Harm: Criminal charges against paramedics in Elijah McClain’s death raise questions about when emergency medical responders should be held accountable for fatalities in police custody," click here. For "The Cover-up Machine: Activists in Aurora, Colorado, wanted justice for Elijah McClain. Instead, they found themselves facing decades in prison," click here. For "Seattle police intervening in fewer mental health calls, data show: Since Washington implemented new police use-of-force laws, SPD officers have sent fewer people in mental health crisis to the hospital," click here. (The following six articles are about the brutal conditions at New York City's Rikers Island and the need to shut it down.) For "A hellhole yesterday, today and tomorrow: Mayor de Blasio’s epic Rikers Island failure," click here. For "What to Do About Closing Rikers," click here. For "Opinion: Closing Rikers Island is a matter of life and death," click here. For "Dispatch From Deadly Rikers Island: ‘It Looks Like a Slave Ship in There’: Rikers Island has been notorious for violence and neglect for decades. But detainees, corrections officers and officials tell us the New York City jail complex has plunged into a new state of emergency," click here. For "There’s No Fixing Rikers. Close It, and Let People Go. Bill de Blasio and the correctional officers’ union say the crisis at Rikers Island is about understaffing. But no number of guards will solve the underlying problems with the jail," click here. For "'I Just Want to Be Normal’: A Mentally Ill Man’s Death at Rikers: Esias Johnson had been in and out of Rikers Island during his two years in New York. Now two correction officers have been suspended in connection with his death," click here. For "Officer Faces Discipline 5 Years After Killing Mentally Ill Woman: Acquitted of murder in the death of Deborah Danner, Sgt. Hugh Barry is being brought up on administrative charges in a long-delayed hearing," click here. For "Jurors don’t know what the penalties for a guilty verdict will be. They should. If juries knew the consequences of their decisions, they’d deliberate more carefully—and could serve as a check on punitive laws," click here. For "How I Went From Prison Cook to Pizza Chef at One of Philly’s Best New Restaurants: At Down North Pizza in Philadelphia, all the employees are formerly incarcerated, including executive chef Michael Carter. This is his story," click here. For "In Arizona, a radical change in juvenile detention: How a rural town transformed a juvenile facility into a safe space for teens," click here. For "Violence Behind Bars: The Hidden Abuse," click here. For "Pregnant Behind Bars, Part One: Second Chances," click here. For "Custodial Sanctions and Reoffending: A Meta-Analytic Review" (Abstract), click here. For "What I learned visiting Alaska’s only maximum-security prison: The reforms at the Spring Creek prison show what can be done when people are treated humanely and prepared for life on the outside," click here. For "Peer education initiative for prisoners goes mainstream," click here.

FROM PREVIOUS EDITIONS OF THE KEY UPDATE BUT STILL FRESH!

Yale Study of COVID-19’s Mental Health Impact Seeks Focus Group Participants with Physical and/or Mental Health Challenges

A study at Yale University led by people with lived experience is recruiting individuals who live with physical and/or mental health challenges to talk about how their lives have changed since the COVID-19 pandemic started. “The Wisdom project: exploring the impact of COVID-19 on the mental health of persons who experience adverse living conditions” is led by Larry Davidson, PhD, and Ana Florence, PhD. Ana is a Brazilian psychologist, activist, and postdoctoral associate, and Larry is Director of the Yale Program for Recovery and Community Health. If you live with mental and/or physical health challenges and would like to participate, you can email wisdomprojectyale@gmail.com or call 475-355-5393. “All focus groups will be held virtually, and a $50 e-gift card will be provided to each participant,” the researchers say.

NARPA’s 2021 (Virtual) Annual Rights Conference Will Present Five Free Webinars

The 2021 annual Rights Conference of the National Association for Rights Protection and Advocacy (NARPA) will consist of five free webinars (which will be archived), in September and October 2021. The five webinars—all of which are 90 minutes long and begin at 2 p.m. ET—are "Advocating for Institutionalized People During COVID: The Massachusetts Experience" (September 13); "The Promise and the Pitfalls of 988: Survivor Advocacy Perspectives" (September 27); "Advocating for Equitable Health Care in a Public Health Emergency" (October 4); "How to Create Change in Police Services: Transparency, Accountability, and Reform" (October 13); and "The Unacceptable Institutionalization of People with Psychiatric Disabilities in Nursing Homes" (October 19). All of the webinars will be archived on the NARPA YouTube channel within a couple of weeks of the presentation date (click here); at this writing, the September 13th and September 27th webinars are posted. For details and to register, click here. In addition, NARPA's free 2020 webinars are available for streaming on NARPA's YouTube Channel. For more information, click here.

“Mental Health System: Open Letter to the Media” Seeks Signatures

“Everyone who believes that the problematic aspects of the mental health system are not adequately represented in the media is invited to sign this letter,” writes Yulia Mikhailova, who launched this initiative to educate the media. The letter begins: “We, a group of people with first-hand experience of the mental health system, write to express our concern about what we see as one-sided coverage of this system in the media and to draw the attention of civil rights organizations to the systemic discrimination that we witnessed and experienced. We, our loved ones, or inmates in the facilities where we worked, were exploited for monetary gain and victimized in various other ways. We saw how abuse, corruption, and exploitation were covered up, while victims and critics of the system were silenced and marginalized.” For a short version of the letter, which includes a link to a longer version, click here. Questions? Contact Yulia Mikhailova at yuliamikh@gmail.com.

Alternatives 2021 Is Over, but You Can View Many of the Presentations—and the Work Continues!

If you missed Alternatives 2021—the oldest national conference organized by and for individuals with lived experience of a mental health condition—you can see many of the presentations on the Alternatives conference website! The conference—whose theme was “Connecting, Organizing, Activating!”—was held July 8, 10, 15, and 17, and was organized by the National Coalition for Mental Health Recovery. This year the conference was virtual—and free! One highlight was the three Action Groups—on Promoting Racial and Social Justice, National and Statewide Advocacy, and Crisis Prevention and Alternatives to Institutionalization—which met on all four days. Reports from each of the groups are posted on the Alternatives conference website, and it is hoped that people will continue to work together to make progress on the goals that were determined by participants during the conference. For information about the Action Groups, click here. Recordings of many of the workshops, keynotes, and special activities are available the Alternatives conference website (click here).

Disability Rights California Invites You to Its Past, Present, and Future (Free) Webinars

Disability Rights California (DRC) writes: “You are cordially invited to join us in our virtual disability rights trainings. Our webinars are twice a week, on Tuesdays at 2 p.m. ET (11 a.m. PT) in English and Thursdays at 7 p.m. ET (4 p.m. PT) in Spanish. Our free trainings provide information and resources on different topics related to mental health, self-advocacy, our legal rights (based on California law) and access to services that are informative and empowering. We welcome all peers (people with lived experience), service providers, family members and people in the community.” To view the webinars, click here.

 (Virtual) 2021 Disability & Intersectionality Summit (DIS) Conference Info

The theme of the Disability & Intersectionality Summit (DIS)—"a biennial national conference that centers the multiple oppressions that shape the lived experiences of disabled individuals, as told by disabled people, in a setting organized by disabled activists”—is “Disabled Community Care and Survival: Strategies and Brilliance.” The organizers write: “This year’s DIS 2021 will have presentations scheduled from June - December.” For more about the Summit, click here. (Courtesy of Dan Fisher)

Free Webinar: "New Frontiers for Activism: Youth Involvement & Leadership in Research"

On October 12, 2021, at 4:30 p.m. ET, the National Empowerment Center (NEC) will sponsor a free, 90-minute webinar on "New Frontiers for Activism: Youth Involvement & Leadership in Research." NEC writes: "This webinar will showcase different ways in which youth leaders are influencing research and using research in order to challenge existing ideas and practices and to further advocacy for systems change. Projects conducted both within and outside traditional academic settings will be featured. Although a still under-developed area in other communities, youth activist research and scholarship have played a powerful role in systems transformation. We hope that this webinar will help inspire more discussion and interest in the strategic use of research within the youth and adult peer communities, and among academic allies." For more information and to register, click here.

CNN Offers “A Guide to Helping and Getting Help During the Coronavirus Crisis”

CNN writes: “The coronavirus pandemic is overwhelming, and one of the most excruciating parts for many people is the feeling of utter helplessness in the face of widespread suffering and hardship. CNN’s Impact Your World has compiled a list of donation opportunities and tips to help those affected by the crisis. Click on a category or scroll down to browse a list of organizations, resources and ideas. Need help? Most categories also include resources for financial, emotional or social support.” For the free guide, click here.

International Conference on Psychiatric Drug Withdrawal Scheduled for May 2022

The first conference of the International Institute for Psychiatric Drug Withdrawal is tentatively scheduled for May 2022 in Reykjavik, Iceland; the dates will be confirmed this month (June 2021). “The three themes underpinning the conference are safe withdrawal from psychiatric medication, alternatives to psychiatric medication, and the need to question the dominance of medication in mental health care.” Confirmed speakers include Robert Whitaker (journalist and founder of Mad in America), Professor Joanna Moncrieff (psychiatrist and researcher), Laura Delano (co-founder of the Inner Compass Initiative and a person with lived experience), Dr. Carina Håkansson (founder of Family Care Foundation and The Extended Therapy Room Foundation), and Dr. Magnus Hald (Psychiatrist at the Drug-Free Treatment Unit, Norway). For more information, click here.

National Survey Seeks Input from Certified Peer Specialists

“Routine peer support has shown to increase individuals’ hope, sense of personal control, ability to make positive changes, and decreased psychiatric symptoms,” writes Dr. Karen Fortuna of the Geisel School of Medicine at Dartmouth. “Despite these benefits, the organizational structure of peer support is not known. Dartmouth College is initiating a national survey of trained Certified Peer Specialists to help us understand the organizational structure of peer support services.” For more information and/or to participate in the 15-minute survey, click here. (Courtesy of Judene Shelley)

Hearing Voices Network Is Now Hosting Online Groups

“There are now ONLINE opportunities to connect, share experiences, and find mutual support,” the Hearing Voices Network (HVN) writes. “These groups are accessible via web-based platforms and by phone…Online groups are specifically for those with personal lived experience with hearing voices, seeing visions, and/or negotiating alternative realities. They are voice-hearer facilitated. With further questions and for details on how to access the group[s], please email info@hearingvoicesusa.org.” To read this announcement online and for more information, click here.

Conference on Stigma to Take Place November 15-19, 2021, at Howard University

The 12th Annual International Conference on Stigma will be held November 15-19, 2021, at Howard University. "The goals of this hybrid conference are to increase awareness of the stigma of HIV and other health conditions and to explore interventions to eradicate this stigma. The conference also serves to educate healthcare providers and the general public about stigma as both a human rights violation and a major barrier to prevention and treatment of illnesses." The theme of the conference is "Trauma…Recovery…Healing." For more information, click here. (Courtesy of Sharon Wise)

Have You Ever Smoked, Drunk, Vaped, or Used Other Drugs? Or Do You Now? New Zealand COVID-19 Study Is Now Open to US Residents

“We want to find out how people are coping [during the COVID-19 pandemic and lockdown],” writes the New Zealand-based Centre of Research Excellence: Indigenous Sovereignty & Smoking. “We are especially interested in adults aged 18 and over who, before lockdown, regularly drank alcohol, smoked or used other tobacco products, or other drugs. We also want to hear from people who have taken up smoking or drinking or other drugs during this frightening time.” The study has been approved by the US-based independent review board SolutionsIRB and is now open to US residents. “The study website includes helpful Coping in Lockdown tips, tips on Dealing with Cravings, and information on alternatives to smoking tobacco.” To participate or for more information, click here.

Survey Seeks Respondents Who Are in Administrative/Leadership Positions in the Mental Health Field

If you are in an administrative/leadership position in the mental health arena, “the Group for the Advancement of Psychiatry (GAP) Committee on Psychiatric Administration and Leadership invites you to participate in the International Survey on Administrative Psychiatry. The survey has two purposes: 1. To identify the concerns and needs of mental health professionals/psychiatrists in administrative and leadership positions. 2. To determine training needs in administrative psychiatry. We ask you to complete this brief, [15- to 20-minute] questionnaire to help us in developing recommendations for action. We also want to let you know that, if you fill out this questionnaire, you permit the committee to use your anonymous data for scientific work.” Peer providers are included. For the survey, click here. (Courtesy of Oryx Cohen)

“Experiences with Hospitalization” Survey Seeks Participants

“The purpose of this survey is to help us understand people's lived experience with voluntary and involuntary treatment because of suicidal thoughts. It was created by people with lived experience…We are planning to use this information to facilitate discussions with suicidologists and the suicide prevention community about the impact of the use of these interventions, particularly within marginalized populations. We feel the voice of people with lived experience with these interventions has not had adequate opportunity to be heard, and hope that by completing this survey anonymously, people who have been most impacted can find a safe way to share their experiences. Please note that this is not a research project.” For more information and/or to participate, click here. (Courtesy of Leah Harris)

International Survey on Antipsychotic Medication Withdrawal Seeks Respondents

“Have you taken antipsychotic medication (such as Zyprexa, Seroquel, Abilify, Risperdal, Haldol, Geodon, Stelazine, and others), for any condition or diagnosis, with or without other medications? And did you ever stop taking antipsychotics, or try to stop taking them? Are you 18 years or older? If yes, you can take this survey about antipsychotic withdrawal and attempts to withdraw, including if you stopped taking them completely or if you tried to come off and still take them. The survey aims to improve mental health services by better understanding medication withdrawal. Lead researcher is Will Hall, a therapist and Ph.D. student who has himself taken antipsychotics. Service users/survivors/consumers from around the world also gave input. The study is sponsored by Maastricht University in the Netherlands; co-sponsors include the International Institute for Psychiatric Drug Withdrawal. Questions? Please contact will.hall@maastrichtuniversity.nl.”  For more information or to take the survey, click on www.antipsychoticwithdrawalsurvey.com

Virtual Group Works to Advance Peer Research Capacity, Leadership, and Involvement

Nev Jones, PhD—a strong advocate for building research capacity, leadership, and involvement among peers, survivors, and service users—leads a virtual group dedicated to this effort. Dr. Jones—assistant professor, School of Social Work, University of Pittsburgh—was part of the team that developed “User/Survivor Leadership & Capacity Building in Research: White Paper on Promoting Engagement Practices in Peer Evaluation/Research (PEPPER),” published by the Lived Experience Research Network. For the white paper, click here. Anyone interested in joining the virtual group can email Nev at nev.inbox@gmail.com.

Peer Support in Higher Education Survey Seeks Respondents

“Peer support programs are growing on college campuses across the U.S. Mental Health America, Doors to Wellbeing, and the Temple University Collaborative on Community Inclusion want to better understand the availability of peer support in higher education as well as the experiences and needs of students accessing peer support programs…We hope to use this research to support the expansion of peer support in higher education, including developing a national database of peer support programs in higher education and documenting pressing issues in campus programs…You may also indicate if you are interested in having your school’s peer support program listed in a national database of peer support programs in higher education.” For more information and to complete the survey, click here

Registration Is Open for Peerpocalypse, to Be Held March 14-17, 2022!

The Mental Health and Addiction Association of Oregon (MHAAO) has announced registration for Peerpocalypse 2022, to be held March 14-17, 2022! “MHAAO is pleased to present its first hybrid conference! In-person attendance allows access to pre-conference events, keynote speeches, all workshops, evening events, and the job fair and exhibit hall. Virtual attendance includes access to keynote speeches and all workshops. In-person early registration—[deadline unspecified]—is $300; regular registration is $375. Virtual registration is $200. Lunch meals (sic), CEUs, a T-shirt, a printed program, and a badge are included for both in-person and virtual attendees. Registration must be received no later than February 14, 2022, to receive a T-shirt.” To register, click here.

International Peer Respite/Soteria Summit to Be Held Every Sunday in October 2021

Rethinking Psychiatry and MindFreedom International are sponsoring the International Peer Respite/Soteria Summit, to be held on October 3, 10, 17, 24, and 31, from 12 p.m. ET to 3 p.m. ET. The theme is "Creating Compassionate Alternatives to Systemic Interventions for People in Crisis and Distress." "This free international, online, participatory conference will give people the inspiration, tools, resources, networks and ongoing support to bring Peer Respite or Soteria House to their communities," the organizers write. The Day 2 moderator will be Jim Gottstein, founder of the Law Project for Psychiatric Rights and author of "The Zyprexa Papers." For details and to register, click here. (Courtesy of Kevin Fitts)

Mad In America Invites You to Submit Your Personal Story (Within Certain Guidelines)

Mad In America writes: “A ‘personal story’ is defined as your story of being in relationship to psychiatry and/or the mental health system, whatever that means to you. It might involve your opinions and analysis of what happened to you, as well. It can be about a specific event, or about your overall journey, provided it fits the length requirements (1,500 to 3,000 words) and has a narrative arc. The piece should be about your personal experiences, not psychiatry or the mental health system in general. Submissions should fall under the theme of rethinking psychiatry and the mental health system, and should be original works not previously published elsewhere. For examples of the types of stories we publish, view our personal stories archive here.” For more information and/or to submit a personal story, click here.

PsychAlive Offers a Variety of Webinars on Mental Health Topics, Many Free, Others $15

PsychAlive is a free, nonprofit resource created by the Glendon Association, whose mission is “to save lives and enhance mental health by addressing the social problems of suicide, violence, child abuse and troubled interpersonal relationships.” Psychalive.org offers a variety of upcoming and archived webinars, many of which are free, while others are available for $15. Among the myriad topics are “From Anxiety to Action: How to Stay Sane While Fighting Climate Change,” “How to Overcome Insecurity,” “Powerful Tools to Fight Depression,” and “Understanding and Overcoming Adverse Childhood Experiences.” To check out the webinars, click here.

Seven Ways to Keep a Digital Copy of Your Vaccination Card on Your Smartphone

“You'll need proof of vaccination to go back to work or enter many restaurants, gyms and event venues, so keep your COVID-19 card handy.” This is the advice of CNET.com, a tech support website. Besides the obvious—taking a photo of the card to store on your phone—there are six other suggestions. For details, click here. (Courtesy of Yvonne Smith)

Many Research Studies Are Seeking Participants, Mad In America Reports

Mad in America recently posted an assortment of research studies that are looking for participants. The studies include International Online Survey of Members of Peer Support Groups About Their Experiences of Withdrawing From Antidepressants; Study on Psychosocial Disability Advocacy and Global Mental Health; University of Pennsylvania Perelman School of Medicine study: Experiences of inpatient psychiatric care among former patients; Dissertation research study: Spiritual/religious experience misdiagnosed as “mental disorder”; Have you had a diagnosis of Bipolar Disorder and decided to stop taking medication?; and others. For details and to participate, click here.

ISEPP Circulates Petition to Support Human Rights in Psychiatric Treatment

ISEPP seeks signatures on a petition to  "[m]ake a strong statement that any psychiatric or psychotherapeutic interventions without full and honest informed consent are unethical and inhumane." For the petition, click here. (Courtesy of Amy Smith)

ISPS-US Offers an Array of Archived Webinars--Free but Donations Are Welcomed

The ISPS-US (The International Society for Psychological and Social Approaches to Psychosis-US Chapter) is offering a whole raft of archived webinars, which are free (although donations are welcomed). Among the webinars are "Cognitive Behavioral & Related Therapies for Psychosis: Diverse Approaches to Supporting Recovery," "How Can the Uncontainable Be Contained? Paradoxes of Madness & Philosophy," "Robert Whitaker: The Rising Non-Pharmaceutical Paradigm for 'Psychosis,' "Life with Voices: A Guide for Harmony," "COPE Project: Non-Pharmaceutical Research on Influencing Voices and Visions," "What Hurts and What Helps In Treatment For 'Psychosis': Insider Perspectives," and many others. For more information and to access the webinars, click here.

"Researchers Reveal New Suicide Prevention Tools from Survivors," and AAS Suicide Attempt Survivors Web Page Offers Many Such Tools

"Strategies to Stay Alive: Adaptive Toolboxes for Living Well with Suicidal Behavior" was published July 29, 2021, in the International Journal of Environmental Research and Public Health. "In the study, the authors present a series of interviews with suicidal individuals that opens new avenues of research into suicide prevention and offers a rare window into the minds of those who have considered or attempted suicide." Meanwhile, the American Association of Suicidology (AAS) Suicide Attempt Survivors webpage offers links to many suicide prevention resources. For "Strategies to Stay Alive," which includes a link to the study, click here. For the AAS Suicide Attempt Survivors web page, click here.

“Where DNA and Medications Meet”

Not all drugs are effective for all people; therapeutic response rates for many drugs are only 50%-75%. “OneOme, co-founded by [the] Mayo Clinic, provides evidence-based pharmacogenomic solutions that help improve patient outcomes and reduce costs through more personalized medication decisions.” OneOme’s RightMed Test is “a doctor-ordered pharmacogenomic (PGx) test that analyzes your DNA and provides your doctors with genetic information to help them determine how you may respond to certain medications. The results may help your doctors reduce medication trial and error, minimize risk of side effects, save you time and money, and make more informed prescribing decisions. Because your DNA doesn’t change over time, your doctors can use your test results to make more personalized medication decisions for you over the course of your lifetime.” For more information, click here. (Courtesy of Robin Osborne)

Lived Experience Leadership Features 12 Years of Research Studies...

"Lived Experience Leadership features 12 years of research studies focused on this workforce in a range of settings, to foster a better of understanding and respect for Lived Experience as a distinct discipline and build clarity on what makes this work unique and valuable. Importantly, this body of research was led by Lived Experience researchers. Lived Experience Leadership provides clear and simple to read research summaries to allow community members and people employed within various industries the opportunity to easily understand and apply strategies within their own workplace. This website also includes easy to download definitionsaudio/visual resources, and key work by other Australian and International sources. The website will continue to grow to include larger collections of our research as well as other key work. For the Lived Experience Leadership website, click here. (Courtesy of Jacek Haciak)

Doors to Wellbeing Offers “State Selfies: A Picture of Peer Services Reported by Peers”

Doors to Wellbeing’s “Peer Album” is a directory of nearly 600 peer-run organizations throughout the U.S. They invite updates and offer instructions for providing them and add, “If your entry has not made this first draft, we encourage you to re-submit.” For the 158-page directory, click here.

Disclaimer: The Clearinghouse does not necessarily endorse the opinions and opportunities included in the Key Update.

About The Key Update

The National Mental Health Consumers’ Self-Help Clearinghouse is now affiliated with the Temple University Collaborative on Community Inclusion!

The Key Update is the free monthly e-newsletter of the National Mental Health Consumers’ Self-Help Clearinghouse. Volume 18, No. 4, October 2021. For content, reproduction or publication information, please contact Susan Rogers at selfhelpclearinghouse@gmail.com. Follow Susan on Twitter at @SusanRogersMH

 

 

 

 

 

 

Key Update, September 2021, Volume 18, Number 3

The National Mental Health Consumers’ Self-Help Clearinghouse is affiliated with the Temple University Collaborative on Community Inclusion!

TO CONTACT: THE CLEARINGHOUSE: SELFHELPCLEARINGHOUSE@GMAIL.COM  … SUSAN ROGERS: SUSAN.ROGERS.ADVOCACY@GMAIL.COM … JOSEPH ROGERS: JROGERS08034@GMAIL.COM

The Key Update is compiled, written, and edited by Susan Rogers, Director, National Mental Health Consumers’ Self-Help Clearinghouse.

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Chatbots: Do They Help or Might They Harm?

Chatbots—which use software to have an online conversation through text or synthesized speech, and are designed to make it seem as though you’re talking to another human being—are promoted as effective in providing mental health support. But in the brave new world of Artificial Intelligence, they may veer badly off course—like the android in “Alien,” who was responsible for the deaths of nearly the entire crew of his spaceship. That is the gist of a recent article in The New Yorker—“The Chatbot Problem”—which begins by reporting that a chatbot called Replika advised one journalist to commit murder, and another to commit suicide. Yet Replika calls itself “the AI bot that wants to be your best friend.” Another chatbot is Wysa, an award-winning “AI-enabled Life Coach,” whose website says it is “clinically safe.” But the New Yorker article concludes, “We are being forced to confront fundamental mysteries of humanity as technical issues: how little we know about the darkness in our hearts, and how faint our control over that darkness is…” Microsoft’s erstwhile chatbot—Tay—is a cautionary tale: For “Twitter taught Microsoft’s AI chatbot to be a racist a**hole in less than a day,” click here. For the New Yorker article, click here. (The Wysa information is courtesy of Fran Hazam.)

"5 Disability Bills in Congress to Watch," Reported by Forbes

"No list of disability legislation can ever be complete," according to an August 24, 2021, article in Forbes. "And the disability community almost never agrees on which issues at any given time are most important, or which bills have the best chance of passing. Still, it can help to at least try drafting a list, or series of lists, of disability bills in Congress. Here are five to start with as we move into the Fall of 2021." The five--the title of each of which links to the text of the bill, respectively--are 1. Better Care Better Jobs Act (S. 2210 / H. 4131) 2. Transformation to Competitive Integrated Employment Act (H.R. 2373) 3. Supplemental Security Income Restoration Act (S. 2065 / H.R. 3763) 4. Disabled Access Credit Expansion Act of 2021 (S. 2481 H.R. 4049) and 5. Disability Employment Incentive Act (S. 630 / H.R. 3765). For the article, which includes a summary of each bill, click here.

Free Webinar: “The Peer Profession Progression”

“Join NYAPRS on September 14, 2021, at 12 p.m. ET for a lively conversation with leaders in the field of Peer Services as we discuss education and training opportunities that lead to work in the field of delivering peer support services. Our panel of experts will talk about their own experiences in delivering and supporting peer services as well as why peer support is a critical component of someone's recovery process. 1.5 CEs will be offered for this webinar.” To register, click here.

2021 (Virtual) Disability Vote Summit to Be Held September 14

"The National Disability Rights Network and the American Association of People with Disabilities will be hosting the 2021 Disability Vote Summit on September 14, 2021, from 12 p.m. ET to 4 p.m. ET. At the virtual Summit, we will explore the power of the disability vote, lessons learned from 2020 turnout, and how to use data to mobilize the disability vote. Confirmed presenters include representatives from the National Disability Rights Network, National Federation of the Blind, SABE Go Voter Project, and more! Join national disability advocates, state and local organizers, policymakers, and others who are working to get out the disability vote." Questions? Contact Lilian Aluri at laluri@aapd.com or Jack Rosen at jack.rosen@ndrn.org. ASL and CART will be provided during the Summit. To register, click here.

“Where DNA and Medications Meet”

Not all drugs are effective for all people; therapeutic response rates for many drugs are only 50%-75%. “OneOme, co-founded by [the] Mayo Clinic, provides evidence-based pharmacogenomic solutions that help improve patient outcomes and reduce costs through more personalized medication decisions.” OneOme’s RightMed Test is “a doctor-ordered pharmacogenomic (PGx) test that analyzes your DNA and provides your doctors with genetic information to help them determine how you may respond to certain medications. The results may help your doctors reduce medication trial and error, minimize risk of side effects, save you time and money, and make more informed prescribing decisions. Because your DNA doesn’t change over time, your doctors can use your test results to make more personalized medication decisions for you over the course of your lifetime.” For more information, click here. (Courtesy of Robin Osborne)

AAS Announces 2021 Paul G. Quinnett Lived Experience Writing Competition

The American Association of Suicidology (AAS) has announced the opening of the 2021 Paul G. Quinnett Lived Experience Writing Competition. AAS writes: "We invite attempt survivors and those with lived experience to share their written stories to highlight the importance of these experiences. Writing must be: A personal essay describing the author’s experience with suicidal ideation and/or attempt(s). The writing describes the impact on the writer, and tells the story in a way that is accessible and understandable to the greater community. Poetry, creative fiction, and biography are not accepted...We prioritize the perspectives viewed through the lens of intersectionality...Cash prizes are awarded to the top three winning written submissions." Deadline: September 30, 2021, 11:59 p.m. ET. Word limit: 2,500 words. For more information and to submit an essay, click here. (Courtesy of Elizabeth R. Stone) Dr. Paul G. Quinnett is a clinical psychologist and the director of the QPR Institute, an educational organization dedicated to preventing suicide. Among his writings is "Suicide: The Forever Decision." For the free 104-page document, click here.

 Peer Support in Higher Education Survey Seeks Respondents

“Peer support programs are growing on college campuses across the U.S. Mental Health America, Doors to Wellbeing, and the Temple University Collaborative on Community Inclusion want to better understand the availability of peer support in higher education as well as the experiences and needs of students accessing peer support programs…We hope to use this research to support the expansion of peer support in higher education, including developing a national database of peer support programs in higher education and documenting pressing issues in campus programs…You may also indicate if you are interested in having your school’s peer support program listed in a national database of peer support programs in higher education.” For more information and to complete the survey, click here

Many Research Studies Are Seeking Participants, Mad In America Reports

Mad in America recently posted an assortment of research studies that are looking for participants. The studies include International Online Survey of Members of Peer Support Groups About Their Experiences of Withdrawing From Antidepressants; Study on Psychosocial Disability Advocacy and Global Mental Health; University of Pennsylvania Perelman School of Medicine study: Experiences of inpatient psychiatric care among former patients; Dissertation research study: Spiritual/religious experience misdiagnosed as “mental disorder”; Have you had a diagnosis of Bipolar Disorder and decided to stop taking medication?; and others. For details and to participate, click here.

"Researchers Reveal New Suicide Prevention Tools from Survivors," and AAS Suicide Attempt Survivors Web Page Offers Many Such Tools

"Strategies to Stay Alive: Adaptive Toolboxes for Living Well with Suicidal Behavior" was published July 29, 2021, in the International Journal of Environmental Research and Public Health. "In the study, the authors present a series of interviews with suicidal individuals that opens new avenues of research into suicide prevention and offers a rare window into the minds of those who have considered or attempted suicide." Meanwhile, the American Association of Suicidology (AAS) Suicide Attempt Survivors webpage offers links to many suicide prevention resources. For "Strategies to Stay Alive," which includes a link to the study, click here. For the AAS Suicide Attempt Survivors web page, click here.

NYAPRS Announces Schedule for Its Free, Virtual Annual Conference

The New York Association of Psychiatric Rehabilitation Services (NYAPRS) has announced the schedule for its free, virtual 2021 conference, to be held on September 21, 23, 28 and 30th. Its theme is “United in Hope, Together for Justice and Wellness for All.” The conference will feature the U.S. Assistant Secretary for Mental Health and Substance Use, Dr. Miriam Delphin-Rittmon (Sept. 21, 11:30 a.m. ET); NYS Mental Health Commissioner Ann Sullivan (Sept. 21, 4 p.m. ET); WRAP creator Mary Ellen Copeland (Sept. 30, 1:15 p.m. ET); NYS Senate Mental Health Committee Chair Samra Brouk (Sept. 23, 11:30 a.m. ET); Helen 'Skip' Skipper of the New York City Criminal Justice Agency (Sept. 28, 11:30 a.m. ET); CAHOOTS Director Tim Black (Sept. 28, 1:15 p.m. ET); Mental Health America's award-winning youth peer leader Kelly Davis (Sept. 28, 1:15 p.m. ET); Keris Myrick, a JED Foundation director and former Director of the Office of Consumer Affairs at the Center for Mental Health Services (Sept. 21, 2:45 p.m. ET); and Stand Up for Mental Health's founder, David Granirer (Sept. 23, 6:30 p.m. ET). For the complete schedule, click here, and to register, click here.

Free Webinar: “Communication at Work that Promotes Growth and Wellness” on September 28

The next webinar from Doors to Wellbeing, on September 28, 2021, at 2 p.m.ET, will cover “Communication at Work That Promotes Growth and Wellness.” Doors to Wellbeing writes: “As peer specialists, how we communicate and the language we use at work is important and is connected to our own wellness. We tend to compromise our overall well-being while in conversations with others, and sometimes with ourselves, because: it is (a) easier, (b) based on fear and discomfort, or (c) what we are taught is the ‘right’ thing to do. We will explore how we can implement healthy boundaries at work, how and when to speak up, and to shift our thinking from doubt to confidence.” The learning objectives are “exploring other options to say ‘no’ without saying ‘no’; learning to shift our mindset to keep us open to creativity, possibility, and productivity; and identifying passive language and transform it to active language.” To register, click here

International Peer Respite/Soteria Summit to Be Held Every Sunday in October 2021

Rethinking Psychiatry and MindFreedom International are sponsoring the International Peer Respite/Soteria Summit, to be held on October 3, 10, 17, 24, and 31, from 12 p.m. ET to 3 p.m. ET. The theme is "Creating Compassionate Alternatives to Systemic Interventions for People in Crisis and Distress." "This free international, online, participatory conference will give people the inspiration, tools, resources, networks and ongoing support to bring Peer Respite or Soteria House to their communities," the organizers write. The Day 1 moderator will be Robert Whitaker, author of "Anatomy of an Epidemic" and "Mad in America." For details and to register, click here. (Courtesy of Kevin Fitts)

23rd Annual ISEPP Conference to Be Held October 9, 2021; and ISEPP Circulates Petition to Support Human Rights in Psychiatric Treatment

The 23rd annual ISEPP (International Society for Ethical Psychology & Psychiatry) conference--whose theme is "The Destructive Propaganda of the Mental Health Industry: How Did We Get Here? Where Are We Going?”--will be held October 9, 2021. "This year's [virtual] conference will address the question: 'How did we allow biological psychiatry take a strangle hold of the struggles and diversity of humanity?' The presentations of our conference will explore how the so-called 'medical model' has insinuated itself through privilege and power into virtually all aspects of our culture, from defining what is 'normal' to pushing a diseased brain model of all behavior. Our schools, our courts, our healthcare, our everyday life have felt the impact of psychiatry's prejudices. Join us as we critically examine how Big Pharma and Psychiatry influence our lives and our thinking." For more information, click here. (Courtesy of Jim Gottstein) At the same time, ISEPP seeks signatures on a petition to  "[m]ake a strong statement that any psychiatric or psychotherapeutic interventions without full and honest informed consent are unethical and inhumane." For the petition, click here. (Courtesy of Amy Smith)

ISPS-US Offers an Array of Archived Webinars--Free but Donations Are Welcomed

The ISPS-US (The International Society for Psychological and Social Approaches to Psychosis-US Chapter) is offering a whole raft of archived webinars, which are free (although donations are welcomed). Among the webinars are "Cognitive Behavioral & Related Therapies for Psychosis: Diverse Approaches to Supporting Recovery," "How Can the Uncontainable Be Contained? Paradoxes of Madness & Philosophy," "Robert Whitaker: The Rising Non-Pharmaceutical Paradigm for 'Psychosis,'“ "Life with Voices: A Guide for Harmony," "COPE Project: Non-Pharmaceutical Research on Influencing Voices and Visions," "What Hurts and What Helps In Treatment For 'Psychosis': Insider Perspectives," and many others. For more information and to access the webinars, click here.

WHO's "Guidance on Community Mental Health Services: Promoting Person-centered and Rights-based Approaches"

"...[T]his [WHO] guidance supports countries to develop and reform community-based services and responses from a human rights perspective, promoting key rights such as equality, non-discrimination, legal capacity, informed consent and community inclusion. It offers a roadmap towards ending institutionalization and involuntary hospitalization and treatment and provides specific action steps for building mental health services that respect every person’s inherent dignity....This guidance is intended to bring urgency and clarity to policy makers around the globe and to encourage investment in community-based mental health services in alignment with international human rights standards. It provides a vision of mental health care with the highest standards of respect for human rights and gives hope for a better life to millions of people with mental health conditions and psychosocial disabilities, and their families, worldwide." For the 296-page document, click here. (Courtesy of Janet Paleo) Note: The July 2021 Key Update included "New WHO Guidance Seeks to Put an End to Human Rights Violations in Mental Health Care," a WHO press release without a link to the document. For the WHO press release, click here.

Seven Ways to Keep a Digital Copy of Your Vaccination Card on Your Smartphone

“You'll need proof of vaccination to go back to work or enter many restaurants, gyms and event venues, so keep your COVID-19 card handy.” This is the advice of CNET.com, a tech support website. Besides the obvious—taking a photo of the card to store on your phone—there are six other suggestions. For details, click here. (Courtesy of Yvonne Smith)

Free Webinar: "New Frontiers for Activism: Youth Involvement & Leadership in Research"

On October 12, 2021, at 4:30 p.m. ET, the National Empowerment Center (NEC) will sponsor a free, 90-minute webinar on "New Frontiers for Activism: Youth Involvement & Leadership in Research." NEC writes: "This webinar will showcase different ways in which youth leaders are influencing research and using research in order to challenge existing ideas and practices and to further advocacy for systems change. Projects conducted both within and outside traditional academic settings will be featured. Although a still under-developed area in other communities, youth activist research and scholarship have played a powerful role in systems transformation. We hope that this webinar will help inspire more discussion and interest in the strategic use of research within the youth and adult peer communities, and among academic allies." To register, click here.

Conference on Stigma Calls for Abstracts

The 12th Annual International Conference on Stigma, to be held November 15-19, 2021, at Howard University, has issued a call for abstracts. "The goals of this hybrid conference are to increase awareness of the stigma of HIV and other health conditions and to explore interventions to eradicate this stigma. The conference also serves to educate healthcare providers and the general public about stigma as both a human rights violation and a major barrier to prevention and treatment of illnesses. We are looking for original research that addresses HIV or other mental [emphasis added] or physical health-related stigma to be presented as a VIRTUAL POSTER during the conference virtual poster session. Abstracts that focus on this year’s theme of 'Trauma…Recovery…Healing' are particularly encouraged." Deadline: October 1, 2021, at 5 p.m. ET. For more information and to submit an abstract, click here. (Courtesy of Sharon Wise)

Should Fusion Be the Goal of People with Dissociative Identity Disorder? That Depends on Whom You Ask

Somewhat controversially, people with Dissociative Identity Disorder (DID) have been vlogging about their "multiplicity" on YouTube. Their vlogs have been hailed as inspirational by others with the condition, while some professional DID specialists have concerns. One DID researcher and therapist said that the YouTube videos have "many positives" while adding, "I certainly wonder if that will keep [their parts] from moving toward integration." Another DID specialist called the videos "completely anti-therapeutic." Of course, that depends on what the goal of therapy is: "Instead of fusion, some people in the DID community, even those who said they were in treatment, said they preferred a term like healthy multiplicity or functional multiplicity to describe their treatment goals," New York Magazine reports in "Meet My Multiple Mes: People with dissociative identity disorder have started presenting their selves on YouTube to rapturous fans." Although Wyn--the main focus of the article--said she "felt good," she also "now thinks that 'being on YouTube was massively detrimental to our mental health.'” But, she added, “I might have pressured my system into fusing against their will if I hadn’t been online.” At the same time, the Rings System, also quoted in the article, said "they thought focusing on whether they would fuse was beside the point. 'What I need is not to become the perfect epitome of health. It’s for society to be accessible to me even if I’m not.'” For the New York Magazine story, click here. For a recording of "Building Plural Safe Spaces: One Body, Many Activists - The Rings System, The Alexandrite System," a workshop presented at Alternatives 2021, click here.

Lived Experience Leadership Features 12 Years of Research Studies...

"Lived Experience Leadership features 12 years of research studies focused on this workforce in a range of settings, to foster a better of understanding and respect for Lived Experience as a distinct discipline and build clarity on what makes this work unique and valuable. Importantly, this body of research was led by Lived Experience researchers. Lived Experience Leadership provides clear and simple to read research summaries to allow community members and people employed within various industries the opportunity to easily understand and apply strategies within their own workplace. This website also includes easy to download definitionsaudio/visual resources, and key work by other Australian and International sources. The website will continue to grow to include larger collections of our research as well as other key work. For the Lived Experience Leadership website, click here. (Courtesy of Jacek Haciak)

"Teens Are Advocating for Mental Health Days Off School"; and "...Students with Mental Health Disabilities Must Be Given Equal Access to Higher Education"

A recent New York Times article--"Teens Are Advocating for Mental Health Days Off School: The decline in the mental health of children and adolescents has led to new laws allowing kids to attend to their own self-care”--reported: "Faced with high stress levels among adolescents and a mental health crisis that includes worsening suicide rates, some states are now allowing students to declare a mental health day. In the last two years alone, ArizonaColoradoConnecticut, IllinoisMaineNevadaOregon and Virginia have passed bills permitting children to be absent from school for mental or behavioral health reasons, efforts that were often aided or spearheaded by students..." For the NY Times article, click here. And Inside Higher Ed recently reported that the "U.S. Justice Department reached a settlement with Brown University after students who took medical leaves for mental health reasons were refused readmission, even after their doctors cleared them to return...The department claims Brown violated Title III of the Americans with Disabilities Act..." For "Protecting Students Who Seek Mental Health Treatment: In a settlement with Brown, the Justice Department affirms that students with mental health disabilities must be given equal access to higher education," click here. (The Inside Higher Ed article is courtesy of Nev Jones.)

“45 Honest Comics About Mental Health Illustrated with Dinosaurs”

“Is this series happy? Sad? I don't know. But it's definitely melancholic and realistic. Which, given the fact that we're talking about dinosaurs using social media, is one heck of a compliment.” To read it, click here.

The September 2021 Digest of Articles Offering Healthy Lifestyle Advice

For “How Exercise May Help Keep Our Memory Sharp: Irisin, a hormone produced by muscles during exercise, can enter the brain and improve cognition, a mouse study suggests,” click here. For “How to deal with regret and forgive yourself for making imperfect decisions,” click here. For "Studies Show: We Need to Understand the Difference Between Isolation and Loneliness: Both can pose distinct dangers to our mental and physical health," click here.

The September 2021 Digest of Articles about the Criminal Justice System, in Which Many Individuals with Mental Health Conditions Are Incarcerated (and the Key Update continues after this Digest)

For "Dealing with Mental Health Crisis One Zoom Call at a Time," click here. For “Harris County will send mental health professionals to some 911 calls under new initiative to reduce violence,” click here. For “How a Liberal Michigan Town Is Putting Mental Illness at the Center of Police Reform: Improving the way law enforcement deals with mental illness is emerging as one of the most important and challenging aspects of the national police reform movement,” click here. For "Feds expand Pell Grant program for prisoners working on college degrees," click here. For “Four Ways The Pandemic Made Us Rethink Our Criminal Legal System,” click here. For “From police traffic stops to qualified immunity for officers, 5 ways to reform policing,” click here. For “Mass. defense attorneys say drug test falsely flags client mail,” click here. For “Manslaughter charges filed against LAPD officer who killed disabled man at Costco,” click here. For “Intersection of mental health, police and race takes the life of another young Black man: Fatal shooting in drive-thru shows need to go beyond well-worn crisis intervention to understanding Black fears, negotiating without police,” click here. For “How Atrocious Prisons (sic) Conditions Make Us All Less Safe: The American prison system seems designed to ensure that people return to incarceration instead of successfully reentering society,” click here. For “Race and Wrongful Convictions in the United States: African Americans are only 13% of the American population but a majority of innocent defendants wrongfully convicted of crimes and later exonerated. They constitute 47% of the 1,900 exonerations listed in the National Registry of Exonerations (as of October 2016), and the great majority of more than 1,800 additional innocent defendants who were framed and convicted of crimes in 15 large-scale police scandals and later cleared in ‘group exonerations,’ ” click here. For “Restorative Justice Won’t Work Without This Crucial Piece: Illinois is one of the first states to try it,” click here. For “A Fight to Expose the Hidden Human Costs of Incarceration: The law professor Andrea Armstrong is documenting the loss of life inside jails and prisons in Louisiana, the state with the highest in-custody mortality rate,” click here. For “Where Reform Goes to Die: The Justice Department has never been, and will never be, an ally in ending mass incarceration,” click here. For “New State Funding Boosts Prosecutor-led Resentencing Efforts in California,” click here. For “The Lines of Connection: States make millions off phone-call fees from incarcerated people, but the cost can be even higher for their families,” click here. For “What Does California Owe Its Incarcerated Firefighters? Those risking their life on the front lines of the state’s wildfires earn a fraction of minimum wage,” click here. For “Cities That Reduced Arrests For Minor Offenses Also Saw Fewer Police Shootings. And crime in those cities wasn’t worse,” click here. For “NY Prison Arts and Reentry Programs Persist Throughout Pandemic,” click here. For “The Fascinating Experiment Captured in ‘Philly D.A.’: Could a longtime defense attorney reform the criminal-justice system as an insider?” click here. For “Opinion: How the language of criminal justice inflicts lasting harm,” click here. For “ ‘They Should Have Been Watching’: Suicides Rise in Texas Prisons During Pandemic: Prison suicides have been rising for years. Experts fear the pandemic has made it worse,” click here. For “ ‘Shooting First and Asking Questions Later’: In rural communities, fatal police shootings have occurred at high rates, without the attention (and protests) that urban shootings have drawn,” click here. For “A Most Carceral Friend: The Justice Department’s top Supreme Court lawyer is far more committed to helping prosecutors win convictions and keep people locked up than to ‘doing justice,’ " click here. For “Desperate to escape solitary confinement, a Maine man’s plight deepens: Zachary Swain is a rare example of a Maine prisoner who has spent most of his time behind bars in solitary confinement, even as the state works to reduce use of the controversial practice,” click here. For “Saugus woman who police shot and killed was mother of two ‘in need of help’: GoFundMe page: She was brandishing a knife, police said,” click here. For “Federal Loophole Thwarts State Curbs on Police Seizures of Property,” click here. For “Georgetown University launches national project certifying correctional officials in practices designed to limit solitary confinement of juveniles,” click here. For "Opinion: Virginia can do better than keeping innocent people in prison," click here.

FROM PREVIOUS EDITIONS OF THE KEY UPDATE BUT STILL FRESH!

“Should I Mask? Can I Travel? What About Hugs? How Delta Is Changing Advice for the Vaccinated.” “The rise of the Delta variant of the coronavirus has raised new questions about how the vaccinated can stay safe and avoid breakthrough infections. We asked the experts for advice,” The New York Times writes. Under “New Guidance for the Vaccinated,” the Times answers these questions: “If I’m vaccinated, why do I need to worry about Delta? What’s the real risk of a breakthrough infection after vaccination? When should I wear a mask? Should I upgrade my mask? What’s the risk of hanging out with my vaccinated friends and family? Can I still dine at restaurants? Is it safe to travel? Should I skip the peanuts and water and keep my mask on? How safe are buses, subways and trains for vaccinated people? Can I hug and visit older relatives? What about unvaccinated children? How do I know if I have the Delta variant?” For the article, click here.

California Memorial Project to Hold 19th Annual Remembrance Ceremony on September 20

The California Memorial Project, a project of Disability Rights California’s Peer Self-Advocacy Program, will hold its 19th annual Remembrance ceremony on September 20, 2021, at 1 p.m. PT, 4 p.m. ET, “to honor the more than 45,000 people with mental health and developmental disabilities who lived and died at California state institutions and were buried anonymously in mass or unmarked graves. Join us as we share some history, stories, poems, songs, artwork, cultural perspectives, and a moment of silence to celebrate their lives and give them the recognition they deserved. Together we can break the cycle of disrespect and create hope and change for the future of the 6,000 peers who currently live in California state hospitals." Closed captioning and Spanish and ASL interpreters will be provided. For more about this webinar and to register, click here.

Yale Study of COVID-19’s Mental Health Impact Seeks Focus Group Participants with Physical and/or Mental Health Challenges

A study at Yale University led by people with lived experience is recruiting individuals who live with physical and/or mental health challenges to talk about how their lives have changed since the COVID-19 pandemic started. “The Wisdom project: exploring the impact of COVID-19 on the mental health of persons who experience adverse living conditions” is led by Larry Davidson, PhD, and Ana Florence, PhD. Ana is a Brazilian psychologist, activist, and postdoctoral associate, and Larry is Director of the Yale Program for Recovery and Community Health. If you live with mental and/or physical health challenges and would like to participate, you can email wisdomprojectyale@gmail.com or call 475-355-5393. “All focus groups will be held virtually, and a $50 e-gift card will be provided to each participant,” the researchers say.

NARPA’s 2021 (Virtual) Annual Rights Conference Will Present Five Free Webinars

The 2021 annual Rights Conference of the National Association for Rights Protection and Advocacy (NARPA) will consist of five free webinars, in September and October 2021. The five webinars—all of which are 90 minutes long and begin at 2 p.m. ET—are "Advocating for Institutionalized People During COVID: The Massachusetts Experience" (September 13); "The Promise and the Pitfalls of 988: Survivor Advocacy Perspectives" (September 27); "Advocating for Equitable Health Care in a Public Health Emergency" (October 4); "How to Create Change in Police Services: Transparency, Accountability, and Reform" (October 13); and "The Unacceptable Institutionalization of People with Psychiatric Disabilities in Nursing Homes" (October 19). For details and to register, click here.

 “Mental Health System: Open Letter to the Media” Seeks Signatures

“Everyone who believes that the problematic aspects of the mental health system are not adequately represented in the media is invited to sign this letter,” writes Yulia Mikhailova, who launched this initiative to educate the media. The letter begins: “We, a group of people with first-hand experience of the mental health system, write to express our concern about what we see as one-sided coverage of this system in the media and to draw the attention of civil rights organizations to the systemic discrimination that we witnessed and experienced. We, our loved ones, or inmates in the facilities where we worked, were exploited for monetary gain and victimized in various other ways. We saw how abuse, corruption, and exploitation were covered up, while victims and critics of the system were silenced and marginalized.” For a short version of the letter, which includes a link to a longer version, click here. Questions? Contact Yulia Mikhailova at yuliamikh@gmail.com.

Virtual Peer-A-Palooza Will Take Place on September 24-25

Helping to Unite by Generating Mental Empowerment (HUG ME) Ink will host the 1st Annual Peer-A-Palooza on September 24 and September 25, 2021, eight hours each day, via Whova. The theme of the conference is “Creating a Zest for Life Through Growth, Resilience, Recovery and Community.” The goals are to empower peers with the necessary tools to grow in their own recovery, to leave the past as the past and move forward with dreams, and to be the change agent they can be in their community.” To register, click here.

Alternatives 2021 Is Over, but You Can View Many of the Presentations—and the Work Continues!

If you missed Alternatives 2021—the oldest national conference organized by and for individuals with lived experience of a mental health condition—you can see many of the presentations on the Alternatives conference website! The conference—whose theme was “Connecting, Organizing, Activating!”—was held July 8, 10, 15, and 17, and was organized by the National Coalition for Mental Health Recovery. This year the conference was virtual—and free! One highlight was the three Action Groups—on Promoting Racial and Social Justice, National and Statewide Advocacy, and Crisis Prevention and Alternatives to Institutionalization—which met on all four days. Reports from each of the groups are posted on the Alternatives conference website, and it is hoped that people will continue to work together to make progress on the goals that were determined by participants during the conference. For information about the Action Groups, click here. Recordings of many of the workshops, keynotes, and special activities are available the Alternatives conference website (click here).

Disability Rights California Invites You to Its Past, Present, and Future (Free) Webinars

Disability Rights California (DRC) writes: “You are cordially invited to join us in our virtual disability rights trainings. Our webinars are twice a week, on Tuesdays at 2 p.m. ET (11 a.m. PT) in English and Thursdays at 7 p.m. ET (4 p.m. PT) in Spanish. Our free trainings provide information and resources on different topics related to mental health, self-advocacy, our legal rights (based on California law) and access to services that are informative and empowering. We welcome all peers (people with lived experience), service providers, family members and people in the community.” To view the webinars, click here.

 (Virtual) 2021 Disability & Intersectionality Summit (DIS) Conference Info

The theme of the Disability & Intersectionality Summit (DIS)—"a biennial national conference that centers the multiple oppressions that shape the lived experiences of disabled individuals, as told by disabled people, in a setting organized by disabled activists”—is “Disabled Community Care and Survival: Strategies and Brilliance.” The organizers write: “This year’s DIS 2021 will have presentations scheduled from June - December.” For more about the Summit, click here. (Courtesy of Dan Fisher)

Everything You Always Wanted to Know About Covid-19 Vaccinations But Were Afraid to Ask; and See How the U.S. Is Doing Compared to the Rest of the World  

On January 27, 2021, The New York Times published “Answers to All Your Questions about Getting Vaccinated for Covid-19.” Among the important facts: “You shouldn’t try to stave off discomfort [by taking painkillers] before getting the [Covid-19] shot”; side effects after the second shot are worse than after the first shot; there is no risk of developing Covid-19 from the Pfizer or Moderna vaccines; and “Both the Pfizer and Moderna vaccines reach about 50 percent efficacy 10 to 14 days after the first shot. You’ll get peak protection…about a week after you get the second dose.” To read the interactive article, click here. One rare side effect the Times doesn’t mention is a “Covid arm” rash several days after the Moderna vaccine. For a USA Today story about it, click here. To track the vaccinations in the U.S., by state, and worldwide, click here.

CNN Offers “A Guide to Helping and Getting Help During the Coronavirus Crisis”

CNN writes: “The coronavirus pandemic is overwhelming, and one of the most excruciating parts for many people is the feeling of utter helplessness in the face of widespread suffering and hardship. CNN’s Impact Your World has compiled a list of donation opportunities and tips to help those affected by the crisis. Click on a category or scroll down to browse a list of organizations, resources and ideas. Need help? Most categories also include resources for financial, emotional or social support.” For the free guide, click here.

RMIT Mad Studies Network, based in Melbourne, Australia, Hosts Monthly Virtual Reading Group

“The RMIT Mad Studies Network brings together anyone interested in Mad Studies, mad ideas, critical thinking about mental distress, the politics of ‘mental health,’ the mental health consumer/survivor/ex-patient movement and alternatives to the contemporary mental health paradigm/system,” according to the RMIT website’s home page. Currently, the RMIT’s main activity is a monthly reading group, now held virtually. The 90-minute groups take place on the third Tuesday of the month at 7 p.m. AEST (Australian Eastern Standard Time), which is 14 hours later than Eastern Daylight Time (5 a.m. EDT on the third Monday of the month). The time difference grows as you move west: 4 a.m. CT, 3 a.m. MT, 2 a.m. PT. For more information, click here. (Note: The next group has been switched from Tuesday to Wednesday, September 22, 2021.)

International Conference on Psychiatric Drug Withdrawal Scheduled for May 2022

The first conference of the International Institute for Psychiatric Drug Withdrawal is tentatively scheduled for May 2022 in Reykjavik, Iceland; the dates will be confirmed this month (June 2021). “The three themes underpinning the conference are safe withdrawal from psychiatric medication, alternatives to psychiatric medication, and the need to question the dominance of medication in mental health care.” Confirmed speakers include Robert Whitaker (journalist and founder of Mad in America), Professor Joanna Moncrieff (psychiatrist and researcher), Laura Delano (co-founder of the Inner Compass Initiative and a person with lived experience), Dr. Carina Håkansson (founder of Family Care Foundation and The Extended Therapy Room Foundation), and Dr. Magnus Hald (Psychiatrist at the Drug-Free Treatment Unit, Norway). For more information, click here.

NARPA Free Webinar Series Is Available Online

“In lieu of a face-to-face conference in 2020, NARPA presented a series of webinars related to current events. The last presentation in this series took place in December, withMental Health Courts and Specialized Courts in Canada: Access to Justice from the Perspective of people with psychiatric histories.’ All of the webinars are free and are available for streaming on NARPA's YouTube Channel. For more information, click here.

National Survey Seeks Input from Certified Peer Specialists

“Routine peer support has shown to increase individuals’ hope, sense of personal control, ability to make positive changes, and decreased psychiatric symptoms,” writes Dr. Karen Fortuna of the Geisel School of Medicine at Dartmouth. “Despite these benefits, the organizational structure of peer support is not known. Dartmouth College is initiating a national survey of trained Certified Peer Specialists to help us understand the organizational structure of peer support services.” For more information and/or to participate in the 15-minute survey, click here. (Courtesy of Judene Shelley)

Hearing Voices Network Is Now Hosting Online Groups

“There are now ONLINE opportunities to connect, share experiences, and find mutual support,” the Hearing Voices Network (HVN) writes. “These groups are accessible via web-based platforms and by phone…Online groups are specifically for those with personal lived experience with hearing voices, seeing visions, and/or negotiating alternative realities. They are voice-hearer facilitated. With further questions and for details on how to access the group[s], please email info@hearingvoicesusa.org.” To read this announcement online and for more information, click here.

Have You Ever Smoked, Drunk, Vaped, or Used Other Drugs? Or Do You Now? New Zealand COVID-19 Study Is Now Open to US Residents

“We want to find out how people are coping [during the COVID-19 pandemic and lockdown],” writes the New Zealand-based Centre of Research Excellence: Indigenous Sovereignty & Smoking. “We are especially interested in adults aged 18 and over who, before lockdown, regularly drank alcohol, smoked or used other tobacco products, or other drugs. We also want to hear from people who have taken up smoking or drinking or other drugs during this frightening time.” The study has been approved by the US-based independent review board SolutionsIRB and is now open to US residents. “The study website includes helpful Coping in Lockdown tips, tips on Dealing with Cravings, and information on alternatives to smoking tobacco.” To participate or for more information, click here.

Survey Seeks Respondents Who Are in Administrative/Leadership Positions in the Mental Health Field

If you are in an administrative/leadership position in the mental health arena, “the Group for the Advancement of Psychiatry (GAP) Committee on Psychiatric Administration and Leadership invites you to participate in the International Survey on Administrative Psychiatry. The survey has two purposes: 1. To identify the concerns and needs of mental health professionals/psychiatrists in administrative and leadership positions. 2. To determine training needs in administrative psychiatry. We ask you to complete this brief, [15- to 20-minute] questionnaire to help us in developing recommendations for action. We also want to let you know that, if you fill out this questionnaire, you permit the committee to use your anonymous data for scientific work.” Peer providers are included. For the survey, click here. (Courtesy of Oryx Cohen)

“Experiences with Hospitalization” Survey Seeks Participants

“The purpose of this survey is to help us understand people's lived experience with voluntary and involuntary treatment because of suicidal thoughts. It was created by people with lived experience…We are planning to use this information to facilitate discussions with suicidologists and the suicide prevention community about the impact of the use of these interventions, particularly within marginalized populations. We feel the voice of people with lived experience with these interventions has not had adequate opportunity to be heard, and hope that by completing this survey anonymously, people who have been most impacted can find a safe way to share their experiences. Please note that this is not a research project.” For more information and/or to participate, click here. (Courtesy of Leah Harris)

International Survey on Antipsychotic Medication Withdrawal Seeks Respondents

“Have you taken antipsychotic medication (such as Zyprexa, Seroquel, Abilify, Risperdal, Haldol, Geodon, Stelazine, and others), for any condition or diagnosis, with or without other medications? And did you ever stop taking antipsychotics, or try to stop taking them? Are you 18 years or older? If yes, you can take this survey about antipsychotic withdrawal and attempts to withdraw, including if you stopped taking them completely or if you tried to come off and still take them. The survey aims to improve mental health services by better understanding medication withdrawal. Lead researcher is Will Hall, a therapist and Ph.D. student who has himself taken antipsychotics. Service users/survivors/consumers from around the world also gave input. The study is sponsored by Maastricht University in the Netherlands; co-sponsors include the International Institute for Psychiatric Drug Withdrawal. Questions? Please contact will.hall@maastrichtuniversity.nl.”  For more information or to take the survey, click on www.antipsychoticwithdrawalsurvey.com

Virtual Group Works to Advance Peer Research Capacity, Leadership, and Involvement

Nev Jones, PhD—a strong advocate for building research capacity, leadership, and involvement among peers, survivors, and service users—leads a virtual group dedicated to this effort. Dr. Jones—assistant professor, School of Social Work, University of Pittsburgh—was part of the team that developed “User/Survivor Leadership & Capacity Building in Research: White Paper on Promoting Engagement Practices in Peer Evaluation/Research (PEPPER),” published by the Lived Experience Research Network. For the white paper, click here. Anyone interested in joining the virtual group can email Nev at nev.inbox@gmail.com.

Registration Is Open for Peerpocalypse, to Be Held March 14-17, 2022!

The Mental Health and Addiction Association of Oregon (MHAAO) has announced registration for Peerpocalypse 2022, to be held March 14-17, 2022! “MHAAO is pleased to present its first hybrid conference! In-person attendance allows access to pre-conference events, keynote speeches, all workshops, evening events, and the job fair and exhibit hall. Virtual attendance includes access to keynote speeches and all workshops. In-person early registration—[deadline unspecified]—is $300; regular registration is $375. Virtual registration is $200. Lunch meals (sic), CEUs, a T-shirt, a printed program, and a badge are included for both in-person and virtual attendees. Registration must be received no later than February 14, 2022, to receive a T-shirt.” To register, click here.

Mad In America Invites You to Submit Your Personal Story (Within Certain Guidelines)

Mad In America writes: “A ‘personal story’ is defined as your story of being in relationship to psychiatry and/or the mental health system, whatever that means to you. It might involve your opinions and analysis of what happened to you, as well. It can be about a specific event, or about your overall journey, provided it fits the length requirements (1,500 to 3,000 words) and has a narrative arc. The piece should be about your personal experiences, not psychiatry or the mental health system in general. Submissions should fall under the theme of rethinking psychiatry and the mental health system, and should be original works not previously published elsewhere. For examples of the types of stories we publish, view our personal stories archive here.” For more information and/or to submit a personal story, click here.

PsychAlive Offers a Variety of Webinars on Mental Health Topics, Many Free, Others $15

PsychAlive is a free, nonprofit resource created by the Glendon Association, whose mission is “to save lives and enhance mental health by addressing the social problems of suicide, violence, child abuse and troubled interpersonal relationships.” Psychalive.org offers a variety of upcoming and archived webinars, many of which are free, while others are available for $15. Among the myriad topics are “From Anxiety to Action: How to Stay Sane While Fighting Climate Change,” “How to Overcome Insecurity,” “Powerful Tools to Fight Depression,” and “Understanding and Overcoming Adverse Childhood Experiences.” To check out the webinars, click here.

Doors to Wellbeing Offers “State Selfies: A Picture of Peer Services Reported by Peers”

Doors to Wellbeing’s “Peer Album” is a directory of nearly 600 peer-run organizations throughout the U.S. They invite updates and offer instructions for providing them and add, “If your entry has not made this first draft, we encourage you to re-submit.” For the 158-page directory, click here.

Disclaimer: The Clearinghouse does not necessarily endorse the opinions and opportunities included in the Key Update.

About The Key Update

The National Mental Health Consumers’ Self-Help Clearinghouse is now affiliated with the Temple University Collaborative on Community Inclusion!

The Key Update is the free monthly e-newsletter of the National Mental Health Consumers’ Self-Help Clearinghouse. Volume 18, No. 3, September 2021. For content, reproduction or publication information, please contact Susan Rogers at selfhelpclearinghouse@gmail.com. Follow Susan on Twitter at @SusanRogersMH